INVISIBLE ILLNESSES with JESSICA KELLGREN-FOZARD
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- Опубликовано: 25 июл 2019
- Watch our video on CFS/ME on Jessica's Channel: • Life with ME // ft. Di...
Jessica and Chloe talk about living with a chronic invisible illness, and how it affects the way society views us as individuals! We hope you'll forgive the mic troubles, as this turned out to be a very inspiring and feel-good video. Thank you for collaborating with us, Jessica!
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The collab we didn’t deserve, but the collab we-
LOVE WAY TOO MUCH!
I swear I was just about to write this! Damn it beat me to it 😂
Haha! I can’t believe so many people liked this on a serious note though!
"it's not a stroke"
"great... but what was it?"
Aah I relate, and I hate that.
xD
omg so true
"it's not this particular autoimmune disease" OKAY THEN WHICH AUTO IMMUNE DISEASE IS IT?????
LITERALLY OMG.
Jessica helping Chloe ground was the most precious thing I have ever seen. 😭 I've been watching you both for a long time and I love you both.
What dose it mean when chloe grounds
@@mokkabeanful touching textures and other sensory stuff helps with grounding like feeling more here, if that makes sense.
@@mokkabeanful Grounding means making yourself present in the moment and being actively aware of your surroundings. There are many different grounding techniques that help with acute flare-ups of things like anxiety or dissociating.
@@_sch_eme_ thank you
@@R.F.9847 thank you
omg all these camera angles and editing,wow! much love from a fellow chronically fatigued human
Jessica helping Chloe ground is such a beautiful thing. I feel like that moment just embodied true empathy and human emotion. It's also a model for how we should all be treating each other, regardless of whether or not we know someone has a disability.
Thanks for leaving the dissociated ending in there, it's so encouraging and helpful to see someone being kind and supportive while your brain is malfunctioning but you're aware enough to know it isn't working right. I always feel super embarrassed when this happens to me and I don't think I've ever seen someone else experience it to the intensity I do sometimes nor have I seen someone react in an empathic and attentive way like Jessica did. I love that when you said you used cold drinks to help ground then she remembered that later and held her diet coke against her cheek to see if it was cold because her hands can't feel temperature well 💯💯💯
Yeah, I was impressed with that as well! Especially considering Jessica's short term memory problems, I was impressed to see her brain was like; I need to remember that
Thank you! Those are the words I was trying to come up with!
I’m not great with words, but I agree it was very nice to see the dissociative moments in the video and how to react/help and also how to handle dissociating when you are trying to get something done. That’s so hard, but it was nice to see.
That moment with the cold drink was precious.
I always watched DissociaDID strictly for the curiosity I found in it and the great things I was learning about DID and how it works but I never thought that it would affect me directly. Later in life, a good friend of mine's roommate has DID and I now know a good bit about how her brain works and how I can be the best friend I can to her. Knowledge is power!! Thanks Chloe and Gang :*
I love both of you and when I saw this collab I clicked instantly
Me too! I wish I could like this video more than once!
Same here!
Same
Yes!
For me, they were on top of each other in my subscriptions
my ex-girlfriend (we’re still friends we just didn’t want to do long distance over summer) also has a connective tissue disorder! she ended up using a wheelchair, which she hated, but she needed to, so that she wouldn’t hurt herself walking around all day.
I can remember people saying “does she even *need* the wheelchair?” whenever she walked a little bit, and it always made me really upset, because they knew nothing of all the nights in the hospital, the pain, and just everything she’s been through. they just wanted to judge her because she could walk a bit.
i’d always try and explain to them nicely why, and how just because she CAN walk now doesn’t mean she should, and she shouldn’t be constantly testing her limits. it’s just something that’s always killed me, that just because she didn’t “look” disabled enough, they’d just make assumptions about everything that she was going through.
tired this is why I keep my walker in my car even though my chemo has my lupus pretty under control
"even if your heart is at risk you have got a beautiful heart" - Chloe 😍😭❤️
I always get really panicky when I have to use a disabled bathroom (because there are a few reasons I do, though I don't always need it) and I think I hear a person wheeling nearby, like "Oh no, I'm holding up the toilet from someone who really/actually needs it" and I have to remind myself that it says on the door outside that not all disabilities are visible, so I shouldn't feel guilty when coming out or going in, but I do.
Also remember that some people don't feel safe in either gendered toilets; so they may also need to use the 'disabled toilets' and should not be judged just because they aren't disabled, even if they don't look obviously trans or nonbinary/genderqueer/etc.
No one should feel bad about using those toilets unless they're wasting everyone's time by doing (illicit) drugs or stealing stuff or vandalizing them or otherwise clearly not using the toilets for their intended purpose as expediently as is healthy and they are able to.
Same! I once came out of one and thought "I held up someone that *really* needs it" when I myself need it too!
Is it an official thing where you that those doors get labeled "Not all disabilities are visible?"
Maybe I should buy out those stickers on Etsy and just stick them on every accessible bathroom I ever go to. Might be considered vandalism, I don't know. I mean, I guess I could show it to the manager and ask if it's okay... But stealth activism is so much fun.
My god, older people are always telling me about my "young energy!" Hahaha. Meanwhile, they can do more work in one day than I could manage in a week or more with difficulty.
I love this.
People are like "Enjoy your youth!" And then they're going doing exercises at the gym, while I'm in PT for an hour having a trainer make sure I'm not going to pass out or something while I walk in a straight line.
Same lol
I can definitely relate. Wishing you the very best, from Australia.
Me, looking at the thumbnail: Wait what?
My brain: **registering**
*10 Seconds later*
Me: Oh my god!!
"You weren't even going to sit here, why are you mad at me?" I love it😅😅
Hey that thing about intrusive thoughts helped me more than you'll know. Thank you
Angel watch sanders sides video on intrusive thoughts.
Hilde is so right that video is a super creative way of explaining the clinical and practical arguments surrounding the topic and says how to handle them better! This video makes some of the same points.
Hilde Yes! That video helped me SO much with them!
Saaaaame
I really appreciate you pointing out intrusive thoughts and the fact that they don’t reflect you as a person.
But, for the people with more serious intrusive thoughts like myself that this applies for homicidal, violent, sexual or any other type of thought that you have. They ARENT you!!!
This applies to all types of intrusive thoughts not just innocent ones.
I have chronic pain, myofascial pain syndrome plus a mental disorder which are all invisible illnesses. I can’t walk very far so I have a disabled parking pass, but I’m always anxious to use it because I look like a healthy 17 year old girl. So I definitely understand where both of you are coming from! Please keep up the amazing work of spreading awareness! Love you both!💜
I also have chronic pain conditions and ever since I was a teenager with - then undiagnosed endometriosis - found it so frustrating as people judge on appearances and if they don't see a plaster cast or a wheelchair they assume you're fine. It's decades on now and I sometimes think it might help if I carried MRI results and surgery reports with me but I still doubt it'd make much difference. So I know how frustrating it can be and want to send you my love and support. Best wishes from Australia 🌷
My husband is exactly the same. He has a lot of problems with his back. I mean a lot. It's really hard sometimes. And he does park in handicapped spots at times and people get so angry at him bc they say he doesn't look like he has problems.
I feel this so deeply in my soul. I get scared to use my disability placard too.
Isabel Waddell I hope you feel better soon or just better overall
I have fibromyalgia and a mood disorder, both of which can cause fatigue. (I stay home and bed a lot which makes me look even younger, due to lack of sun damage I guess. Ha!) Doesn't mean I can handle walking far when I have to actually walk around inside a store and push a cart, plus carrying of items. So much pain and fatigue!!!
When I applied for my disabled parking pass I opted for the whole license plate, not just the thing you hang on your mirror. Go for the big guns! I'm here and I'm permanent!
I also added a magnet next to my license plate that says "Not all disabilities are visible."
I waited so many years to ask a doctor to sign the form, because I didn't think I counted as physically disabled "enough." But he said yes right away! Validating.
Wow, this is old footage. Jessica got rediagnosed from MCTD to EDS last year. And of course it was a shock seeing Chloe.
"most disabilities are NOT visible" - thank you for your work!!
I love how much you two simply listen to each other. The support you exude is so palpable and it’s such a joy to watch. Much love always ❤️
MY TWO BEST GIRLS HELLO DARLINGS!
-Harlie
Hello sweetie! 💖👋
Nobody:
Jessica: I have great bones
Her pride in her bones made me smile and kinda reminded me of Amy from little women bragging about her small feet
I only discovered Jessica yesterday and subscribed and then today, there’s a collab with my favorite youtube channel!? I’m apparently psychic...
Edit: Where’d y’all come from?
Mari 132 same but opposite! I’m new to DID and loving this colab
Same, but I found her channel a few days ago.
Same, the RUclips algorithms must be on point!
So weird. Same thing happened to me
Same I came across Jessie the other day and love all of her videos and I've been watching DissocaiDID for like a few months now and they are my favorite educational youtubers and maybe my favorite in general
I can understand the bus situation.
I have epilepsy anxiety and functional tremors.
I have a disability bus pass, I sit at the front incase I feel the need to get off.
I get the look up and down treatment, I just show them my pass but they still look for a disability.
Thank you both so much. You are two of my all time favorite media creators. I am in the process of disability grief myself and you both are truly inspiring. I cried several times watching this because it just touched my heart. Thank you for the beautiful healing experience.
"it's all about not where you're coming from, but what you're making from that situation"
brilliantly put
you’re both so articulate and it’s so wonderfully refreshing
Ooohhh I wasn't expecting a video today! I'm so happy!
Oh my goodness, I just had the strangest "duh" moment. There was a frame where Chloe smiled and glanced at the camera and my brain went "oh my gosh, she looked EXACTLY like Kyle for a second." Then a few seconds later it clicked in my head that they literally share a body hahaha!
Oh good, I'm not the only one who does this! 😂
I watched this around the time it came out for the first time. I was an able bodied individual and I watched this because I wanted to understand physical disabilities as well as mental ones. Now three years later, I’ve been diagnosed with POTS and an rewatching this to accept that I’ve lost who I used to be but that doesn’t mean I don’t have any worth. Thank you for making this video and helping me see understand disabilities from both sides of them!! Love and hugs!
Ugh we are being SPOILT with the good content recently 😭💞✨
I'm glad you kept your dissociation moment in the video - the impact of an oncoming dissociation episode can be SO frustrating for me and I really appreciated seeing that here, as well as the kindness and acknowledgement of your illness' impact. The people around me have gotten quite good at recognizing when I'm 'going' or need some help to just ground for a while (I have PTSD, as well as moderate-severe neurological side-effects with my migraines and auras, and when my mind & memory decide to go, off they go!!). It was lovely to see that kindness/grounding support happen organically with Jessica. Hope you are doing well! I came over here from Jessica's channel and will definitely stick around here - seeing another dissociative person is awesome. ʕ•ᴥ•ʔ (also: I would've held the tulle skirt too, fabric and other textures can be super comforting for me!)
Yesssss I’ve been WAITING for this, your voices are both so sooooothing
I have diabetes and servere neuropathy (nerve damage in the legs/arms/stomach), it causes sharp, burning pain and almost total numbness. You wouldn't be able to tell normally, but if you were to ask me to run I'd look like a damn dinosaur, it's literally impossible because I can't feel what my legs are doing. Stairs are also a task, people at college would get pissed because it would take me a while to go up the stairs, but if I took the elevator, I get even worse looks from others. Thank you DID system and Jess for shining a light on invisible illness!!
Much love💖💖💖
My girlfriend of 7 and a half years has been going through a lot of changes in the past 6 months and we are just discovering these disorders, watching videos like this helps us out a lot and got her into therapy, thank you for making these videos to help people like us.
This is so wholesome and cute it's unbelievable! Lots of love both all of y'all x P.S both of y'alls voices are so soft and it's so calming x
Chloe's outfit was soooooo cuteeeee slayyyyyy the game queeeeeennnnnnnnn 👏🏼👏🏼👏🏼
Jessica helping Chloe ground and feel better was the sweetest thing ever. I wish I could meet her and be friends. We have so much in common
OMG LEGIT when you go to the doctor and get told all your tests are fine and then you literally never find out whats going on or why youve had random symptoms come up or never get any type of treatment. Thats literally a common thing in the chronic illness community so i found it amusing that you both mentioned that. (I have ME/CFS by the way, fibromyalgia, and several other ones).
My illnesses are invisible but i guess youd see it when i have to use canes to walk around or sometimes a mobility walker, or when i need to go lye down or when i have extra bags under my eyes. Lol. Like it IS visible.. just not in the way people would expect.
You're both so intelligent and genuine and kind and wonderful and im really glad you made this video. I really hope people can take alot out of these videos.. particularly about how to see, acknowledge and treat disabled and chronically ill people and how to in general be more inclusive which is SO IMPORTANT 💖
I love you both
I wasn’t expecting a video from you all today! So happy to be blessed though!!
Hi DissicisDID system. Thank yiu so much. Im bi and mtf trans and you aleays make me feel better. Im 14 and am in a tough spot. Thanks.
Abbie
Sending lots of love your way!
You are valid and worthy and more than your struggles ❤️ Sending good vibes
much love, hang in there ❤️❤️❤️
Good luck, Abbie!! Hang in there, it'll get better soon!! 💜💜💜
ABBIE i know how you are struggling, so remember, sexuality is not defined & supported as a vehicle to your individuality until your brain is fully formed at 26 yrs old, please stay kind & safe & continue to love yourself until then
Hello, I never knew about this channel, I just came from the video on Jessica's channel.
I will definitely watch other video's of u.
Both of u are just so sweet and smart. This video was cute but also very important.
I have chronic fatigue, fibromyalgia and derealisation (even if I don't like to say those names cause I feel like most doctors don't really know enough nor care enough). I'm 29 and off work since 4 years.
I'm from Belgium and the whole process with doctors and research about my condition had been very exausting and dissapointing.
So people like me need people like u who make video's about it :) Greets
im sure this happened, but out of curiosity, did Jessica meet any of the other alters? if so, who and what was her reaction?
also, I'm so happy this collaboration exists because Jessica is someone whom I love and I love you guys too! thank you for putting it effort for us to see this! you guys are amazing :)
I kept thinking Jessica and Nadia would get along well. :)
from what i saw on instagram the day they filmed this i believe kyle switched out
So excited to finally be seeing this! Love you guys!
It was so special to watch Jessica help ground Chloe. Thank you for sharing that with us. Very nice video on a very important topic!
Alicia Lives Here woah your profile picture hit me hard cause at first I thought that was my mom
Omg I didn’t even know I needed to hear all this, but this video is EVERYTHING. I have Chronic Daily Migraine and you two were speaking to my soul. Invisible illness is so hard and isolating sometimes! Came here for DissociaDID, but will be following Jessica now too! 💕💕
I love this! I have EDS and depression/anxiety and people don’t take me seriously because I either don’t have motivation or if my knees give out I look like I’m asking for attention.. so thank you for speaking about invisible disabilities :)
I completely agree with Nin about helping strangers. When I used to work, a girl in my office I never met before was sitting on the floor crying on her cellphone, I initially thought she would probably appreciate space. I started walking away, something told me to turn around (I now realize it was an alter), well I decided to turn around, and the minute I got to her she fell over having convulsions, everyone started panicking thinking it was a seizure however, I recognized what was happening, I layed down next to her, I started to rub her back as I began to take slow deep breaths talking to her to get on my same breath pattern. She slowly came to, and the next day she ran up to me in the parking lot so thankful I knew what was happening and did not call for an ambulance, instead helped her out of her panic attack. I think so many of us are raised "it's not our business" however per human nature it is absolutely 100% our business.
the ending of this video was so wholesome! jessica was so supportive when you were dissociating, we need more people like that 💕💕
EXACTLY !! If you feel pain there is definetely something wrong.. I hate when I say that I feel pain and doctors are like "Nothings wrong with you"..
My therapist recently went to a conference/training thing for the therapists in my area for dissociation and various disorders and added a worksheet to the packet of things you fill out. I was very happily surprised and smiled the whole time I was filling it out.
Found you through Jessica's video, and I feel like I identify a lot with the things you said in both videos, so I am so grateful I've found you! I hope you got a chance to rest after filming ❤️
I commented on Jessica's video and I want to also comment here to let you know how much I appreciate the messages you are sending out to the world. If anyone gets anything from this video I hope they absorb the message about kindness. We certainly need more kindness and understanding and Chloe was right when she said people can and need to forgive themselves for past negative thoughts or opinions and move forward with kindness.
More collaborations please. ❤🙂
I've got Clinical Depression and have had it since I was about 9. I feel like people don't often understand my mental illness because they think of it as something that can be easily fixed. They liken it to normal teen angst, or me faking an illness to miss school and dodge responsibilities, or some experience with a lesser depressive disorder they have had. (not that all depression doesn't suck, I'm not shitting on you, it just works differently between you and me)
In my life I've been quite lucky to have understanding people around me. My school district hasn't given up on me despite my mental health problems which means the world to me. People don't chose to be mentally ill, they don't decide to throw away their future one day and just not attend school anymore. Instead they feel like garbage everyday that they don't attend school and wish they had the mental power to just be normal.
I think half of being mentally ill is just wanting to be normal. "Normal" people take for granted the fact that they can go to school. That they can have familial ties. That they can date anyone at all, knowing that they can handle a relationship.
Sorry for the ramble, just had to get it off my chest.
Side note: bus thing. I have scoliosis, osteoarthritis, and chronic fatigue. And anytime I sit at the front of the bus I either get an earful of how I'm selfish and rude, or extreme glares. :/
Ooh, Maybe we should all wear a hat or a t-shirt or a button that says "THIS IS WHAT A DISABLED PERSON LOOKS LIKE." or "Not all disabilities are visible."
You may want to also consider carrying a lightweight cane. Even if you don't need to lean on it all that often. I did that for a while, to reduce the weight put on my feet with each step, but it also caused fibromyalgia pain in my arms and upper body, so I didn't do that for very long. But a visible accessory goes a long way.
Dear Chloe & Jessica,
I want to thank you for sharing these most personal topics in a compassionate & caring way, in order to educate others. You are both such beautiful & lovely souls. 💞 My gratitude for your courage & openness. 🙏🏼
And, I love the part toward the end when you share “grounding”. I know quite a lot about that myself, & it was brilliant to see two people be able to share, with no judgements, the NEED to GROUND oneself. My hope is that it will educate others as to why, how & what it important in the area of grounding.
Sending you both much love 💖 & blessings, 💫
Belle🦋
What she says at 14:10 made me cry. I’m still struggling so hard to accept that my life will not be how I foresaw it before I was diagnosed. It’s nice to know that I’m not alone though
Gosh I hate how society treats people with invisible illnesses! I have EDS, which is invisible, but I have some physical limitations and actually visual injuries from it. It’s so hard to deal with teachers and accommodations (I’m still a student) because they can’t visibly see what’s wrong with me. I have multiple teachers who have blatantly ignored doctors notes and accommodation plans and literally kept me from doing what I need to do to get through a school day. Thank you so much for bringing some light on invisible illness and disabilities and a wide variety of them! ❤️
After listening to so many stories about interactions with doctors who don't get your condition it must be good to talk to someone who gets what you're going through. I really wish more people with disorders join medical fields so they can help others better
My queens together. I love this, thank you
This video is so soft spoken, it's like a unintentional asmr video! Seriously, it's really relaxing to listen to.
As someone with multiple invisible illnesses (depression, panic attacks, rheumatoid arthritis and fibromyalgia which shows symptoms such as nausea, dizziness, brain fog, a lot of pain, sleeping problems, etc.) I can definitely say that I found myself in this video. It took me a long time.. not only to get diagnosed but also getting used to not being able to do everything I want and receiving help from others when needed. I'm so damn independent, but I appreciate everyone asking if they could help when I've got trouble standing up alone or walking stairs. So keep educating yourself, folks. You can't read a person's story based on what you see.
Thank you! My sister has passed but she was a very attractive healthy looking woman who had a heart transplant in her 20s and was extremely ill most days. The rude comments and looks she got drove me to madness but they really hurt her feelings and self worth even though she was an amazing loving funny person, strangers could affect her so deeply.
Awww the grounding was so sweet! Lots of love to Jessica as well as everyone in your system ❤
I can totally tell you from the bottom of my heart how greatful i am for your channel. Before i watched your videos i had no idea what DID was and infact if faced with the expirience of meeting someone with it i mightve even been scared of them. I had ever only heard of "bad" people having it and very negative connotations when growing up and the horror movies that came out didnt help at all either. I've learned so much from your videos and i am so glad i can say im so much more knowlegable of what DID is. I dont struggle with DID but i do struggle with dissosiation a lot due to a head injury a couple years ago. I use to think i was disappearing, floating away and nothing could ground me. I still have some problems but its gotten better. I still stutter and lose my train of thought a lot and i struggle getting my words together but i feel more with reality now. You sharing how your dissosiation makes you feel made me realize that what i was experiencing wasnt and didnt have to be so scary. You made me feel not so alone and i cant thank you all enough. I love your channel and videos. Thank you all for what you do ❤
i feel so validated i might cry. in so many situations i have to excuse my disability with "lol im just lazy" in order to lessen judgements and it really grates on my psyche. but i'm not lazy!!! i have an actual disability!!!!! and i shouldn't have to keep lying!! thank you so much for this video. i've decided to make an effort to replace "lol i'm lazy" with "i have a severe executive disfunction disability".
Watching you grounding was very interesting, and I know that you have already done a video on grounding, but it is different then actually seeing it. If you are comfortable i think that it would be very cool to see more on it.
Unus annus fan?
100% know the feeling of going for tests and being told I'm fine. Because I am young and relatively able to do things they think I just overexagurate everything. Still trying to find someone to take me seriously.
Don't stop fighting for yourself!!
my mom always told me that the first thought you have when looking at something/someone unusual is what society has trained you to think and the thought after that is your genuine opinion:)
Ugh, I relate to this way too much. As an autistic person, especially an autistic girl, I’ve struggled for years with teachers or other people thinking I’m being intentionally obtuse when I don’t understand things, or that I’m being lazy, because I present as quite intelligent, but I do need some things explained to me in ways neurotypical people don’t. As much as it might be easier to make negative assumptions, there are so many reasons people could behave the way they do that you just can’t know.
Thank you for this. I have multiple autoimmune diseases and I don't know how many times I've been looked up and down and told, "well, you look good" so dismissively. Even when they know I'm just out of the hospital. How sad is it that in some ways I was grateful for the first time I was on chemotherapy because people finally validated my illness. I like to think that I've dealt with my own feelings on this over the last few years, but i still feel those dismissive raised eyebrows, whispered hurtful words, and shaking heads. 💜
I have severe chronic pain, and I have to use the beeper carts as I call em because walking around the store would make life a lot harder, along with mental and emotional disabilities as well. You're videos really help me understand your system and how to recognize a system and my friends who are systems have really appreciated me looking into DID. So thank you for your work!
I struggle with postural orthostatic tachycardia syndrome and I'm actually in the middle of a flareup, but this was really encouraging to see and made me feel a little better. Thank you
That One Cosmic Autobot I have tachycardia
In addition to the invisible part, I find the chronic part of my illness is also difficult for some people to wrap their head around. People expect that because I'm a young person with support, resources, and the resolve to get well and a "a model patient" I'm just going to magically get better. Then they act shocked and confused when I show signs of still being ill. Educating people on the fact that yes an incurable chronic illness really means nobody can cure it and it will continue to be something I live with has really been a revelation for some people. It's also a reminder to them that just because I "look" well doesn't mean I feel well.
It would be so helpful if you could talk more about chronic fatigue. Once Nan said you would fall asleep while talking to them at Skype and I was so surprised because I thought chronic fatigue was something else entirely and I would LOVE to learn more about it too and you have so much to teach (I can honestly picture you lecturing crowds someday, you are just great with words)
Thank you for this video. I have an invisible disability myself. I have epilepsy and when people find out, they are very surprised and say that I don't look like someone who would have epilepsy.
You’re all a true inspiration. These videos have changed my life for the better and I hope you all know that and feel good about all the good you’re doing every day!
Y’all don’t know how much I needed this. I’ve had an invisible disability for a decade now and sometimes it’s still hard to come to terms with the fact that you are disabled and it’s okay to accept help when it looks like you don’t need it. You are two of the most amazing individuals and have helped me so much with your messages, so seeing this colab happen is everything!!
Oh goodness! I've got ME, EDS, neuropathy, and POTS. My weakness is on my right side though. I love all the positivity despite the challenges. You are both wonderful!
Aspergers here! Talking about invisible disabilities 💚
Popped over to watch. Big fan of Jessica and Claudia. My current lessons to learn is to NOT over help. My wife recently suffered a stroke with right side impairment and speech/hearing aphasia (sp?) You both looked lovely and were informative Thank you for sharing.
I definitely fall into that category of "I don't have DID, but this is so interesting." I minored in psychology in college, which was a good baseline for understanding lots of various psychological disorders and illnesses. But I have learned so much more nuance from watching both of your channels and others centered around a specific persons mental health journey and life. Listening to the personal experiences of youtubers around mental health is such an incredible thing!
Fabulous collab! I have fibromyalgia, anxiety, and depression! Such a needed conversation!
I have been waiting so impatiently for this!! Both your channels have really helped with my mental health at difficult times, and today in particular it was really needed. I love you all and thank you for everything you do 💕💕
while getting my major in special education we were assigned to interview two people with disabilities. I found this extremely helpful and one of these people did not have any visible disabilities. he said similar things as you did. In school she needed certain accommodations like extra time taking tests. She hated using it though as often she felt judged by other students. There was even one time where she was being open about it on a day she was becoming very distracted and a teacher heard her. He openly told her that she did not have that. She then did something I am very proud of her for doing. She looked him straight in the eye and said yes I do, explained how it affects her, and used it as an educational opportunity. She had AD/HD which often is known to affect grades do to a harder time sitting and focusing. She instead had fairly good grades. I heard of one other person similar to her who had a harder time. Her mom noticed work took her longer at home and she just seemed so distracted. She brought this up to the teacher and was told she can't have AD/HD, she's too smart. Her mom then took her to a specialist and received a formal diagnosis. Invisible disabilities are challenging as outwardly you seem capable of doing everything. However inwardly it can be something mentally or physically that leads to challenges.
I have Crohn’s Disease (and as a result of this, I have CFS). People with invisible illnesses don’t have many moments in a day, a week, or even a month, where they can truly say ‘THATS IT... THEY UNDERSTAND ME’. But I truly felt... understood in this video. This video was one of those moments for me ❤️
As someone who's dealt with chronic invisible illnesses (on top of the lovely mental health problems ad well), I related to all of this so much. Thank you for pointing these things out and hopefully changing peoples' minds when it comes to things like this. 💕
Hello DissociaDID's System 😊
Thank you all, once more, for letting us see and know a fragment of the reality of DID.
It could be easy, seeing your amazing work, to think that "it's not so bad to have DID. Looks like everybody else's life."
Yes but no. We only see edited videos, on an educational purpose. We could esealy forget those videos are only 20 (ich) minutes of their life. Of their everyday and very real life of very real People. How many headaches, perhaps painfull or inconfortable switches, or worst, flash-backs, it takes to make only one of those videos ? How long could a footage be ? How many takes, hours, days for 20 minutes edited video ? How many amnesia we don't see, how many times members of the system fronted during a footage and was not pleased about it ? Or even frightned ? But can you imagine how it should feel to let People know or see how and how much DID could make you vulnérable ? I admire your braveness (if this is Just a word in english 😆), and your intelligence. You do your work with finesse, intelligence and pertinence. You know how to be authentic, without exposing yourselves in bad and unsafe ways.
We can see how much you share and give already about you on your videos, but I Just wanted to say how much bigger it is than what we can see. What you are doing is precious. Really and very precious. So thanks. 😊
Ahhh!! Jessica! I'm so excited for this collaboration. I'm deaf, and love her videos. It's so cool to see 2 of my favorite RUclipsrs in the same room! 💜❤ (Sitting through every single ad for the $$$ )
this video was great!
as someone whose disabilities are mostly invisible (im autistic and have anxiety and depression, the only disability that is visible but still invalidated by so many people is having very very poor eyesight) this rang so incredibly true with me
It is such a pleasure to meet you, Chloe. I found you through your post on Jessica's channel. Chloe, I have invisible physical and mental disabilities, and just today, had a conversation with my mental health therapist that I need to be ok with this being the best me I'll ever be, that I will not "get well," that I will never be cured from my mental or physical disabilities. It was a deep breath of relief, that even the one who is "supposed" to make me get better, acknowledges that I'm me, as good as I can be. Which sucks, but also feels really good to know. I'm so happy to find your channel.
Great job and collba pick👍🏻 so happy invisible illness was the topic. Love both channels. I also have an invisible illness very similar to Jess’ called Elhers Danilo’s Syndrome, POTS, CFS and a few others. My daughter has severe nonverbal autism and from the outside you wouldn’t know by looking at either of us. But the moral of the story.......... Be Kind 💚 love both ladies and channels. 🥰😍
The ending of this video just re-emphasises the need for good, genuine people in this world! Y'all did such a good job on this video loves!
I have psoriatic arthritis, endometriosis, and central pain syndrome, and I know they are not bad disabilities, and they are manageable with treatment. But I have trouble walking and standing, even sitting on a toilet is sometimes way harder than it should be. I’ve constantly been told “it’s not that bad”, “you just need to exercise”, “you’re to young to be in this much pain”, and I just wanted to thank you both for making this video. This message is so important. I am constantly posting on Facebook and kind of showing people what life is like with three chronic pain illnesses, trying to get people to understand that even if someone doesn’t look “disabled” or they look healthy, they might be fighting a battle you can’t see, whether it’s physical or mental because I also have severe anxiety with panic disorder which is often worsened by bad pain days, and this video just made me feel not so alone. Which sounds kind of crazy because I don’t deal with nearly the struggles you both do, but I wanted you to know that the messages you are sending are so important and I just wanted to thank you for making me feel not so alone. You two are incredible women, (and men, didn’t want to leave the boys out). And Jessica if you see this, my sister has EDS, POTS and Chiari so I know first hand what you go through and thank you for putting out videos, I told my sister she should watch you! Especially since she just got her hearing aids in September!
Thank you guys again for making me feel understood, even if we weren’t talking directly. 💕
This video is SO IMPORTANT. There are so many types of invisible disabilities, and society tends to tell us to keep it to ourselves or we'll be judged, but if we do keep it to ourselves, we will ALSO be judged. It's like "Yes, I genuinely need to sit in that handicapped spot, and no, you can't see a wheelchair or some sort of visible deformity. It's all internal." I hate that conversation, but I have it most times I leave the house. Awareness is the key to improving our quality of life without this constant fear of able bodied people basically fighting you. I find it terrifying sometimes.
If I didn't find this channel, I would have continued under the assumption that my multiple concussions (caused by falls from Ehlers Danlos, another invisible illness which I suffer with) caused me major brain damage. I thought that's why I had black outs/lost time, would suddenly find things I had no recollection of purchasing or owning, constant misplacement of various IMPORTANT objects, people who I have zero memory of interacting with knowing me personally and by name, randomly feeling like I'm anywhere from 4 - 27 years old, suddenly losing track of where I am and what I'm doing, etc. etc. etc., and I just.... accepted that I sucked at life and thought that I was just fucked forever. I closed myself off to the world because I thought that there was no way that I would be able to find happiness or succeed.
Surprise, it's actually a dissociative disorder, and I have a chance at functioning. I'm about to see a specialist on dissociative disorders, and without this channel I never would have had a clue that _that's_ what has been going on in my brain. Thank you Chloe. Thank you to the entire DissociaDID system. You guys are incredible.
And I'm actually already subbed to Jessica!! You both have incredibly supportive channels that are amazing resources for people like me (and people in general).
This was such an fascinating discussion, it was so interesting to learn how invisible illnesses can affect people's lives and about HMPP, I found all of this so intriguing. Thank you Chloe and Jessica :)
I love what you both do, opening people's eyes and changing hearts and point of views.
i just LOVE when people say "but you don't look like you would have x disorder/condition" i never know what to say
I really loved DissociaDID’s explanation about intrusive thoughts
Chloe!!!! You continue to amaze me. I've been following you REGULARLY for 1 1/2 years. While I don't have DID, I do have trauma triggers and PTSD that I've been working through... and everything you've shared about DID and all the other things you dig into 1) has brought an awareness to me that I'm grateful for, and 2) has been relevant to my personal growth work.Thank you. Keep up the good work!
.... and SO MUCH LOVE to Team Piñata. I've got a big gift box for them. ❤️