A research team at the University Health Network in Toronto has described the genomic landscape of schwannoma tumours in a paper published online in Nature Genetics.
Hello, I suffer from schwannomatosis. It has been confirmed in genetic testing. My illness is quite aggressive. In total, 11 tumors of the vertebral canal were removed, some of them enlarged to large size, I had a tumor of the nerve Vlll, a retroperitoneal tumor of the male fist. At the moment I have a tumor of the abdominal spine and 5 tumors of the spinal canal. I would like to get tested on a drug that could stop the disease from developing, but I can not get anywhere. I'm tired of operations :( I'm scared of my life and my future.
unfortunately, i have 17 schwannomas. the extension goes from my middle finger till my forearm, in the medial nerve. the pain is quite hallucinating sometimes.
Mine is an vestibular Shwanoma between my ear and brain. St George’s hospital in London will be carrying out my surgery which will leave me profoundly deaf in my left ear.
how do i get rid of the toe pain which is still with me since after the surgery ? It was shwanama . its been 2 months and i still take pain killers for the toe of my left leg .
My son has a Schwannoma tumor on the Triimgeminal nerve, third branch. It has changed his life. He is in pain and also sick from the side affects of the pills 20 plus he has to take every day. He is only 33. Can you help him? Are there any clinical trials available? Please let me know. Thank you so very much.
Hi, I just read this, I am curious how did evolved, I guess after 2 years, I had my surgery a month ago, still hurts, same thing in a hand, did yours went away?
Hello, I suffer from schwannomatosis. It has been confirmed in genetic testing.
My illness is quite aggressive. In total, 11 tumors of the vertebral canal were removed, some of them enlarged to large size, I had a tumor of the nerve Vlll, a retroperitoneal tumor of the male fist.
At the moment I have a tumor of the abdominal spine and 5 tumors of the spinal canal.
I would like to get tested on a drug that could stop the disease from developing, but I can not get anywhere.
I'm tired of operations :(
I'm scared of my life and my future.
Me too tired of surgeries
unfortunately, i have 17 schwannomas. the extension goes from my middle finger till my forearm, in the medial nerve. the pain is quite hallucinating sometimes.
I have just gone through surgery as I had a 33inch tumour in my plural cavity. I’m concerned it may occur again.
That should have read 3 inches
I from the Indonesian and i have schwannoma tumor in L1-S3 (help me)
As someone with schwannomatosis and several tumors... i would love to know where this process is at.
How far with the research my doctor told me there is no surgen for my condition in my country
Mine is an vestibular Shwanoma between my ear and brain. St George’s hospital in London will be carrying out my surgery which will leave me profoundly deaf in my left ear.
how do you feel now ?
Big schwannoma in neck but has no medicine for cure... Surgery is not possible.... suggest any treatment...
Thank you for your hard work. I also have this disease, let us know when will be more news.
Por favor explicado en español
Hi I have been diagnosed with schwannoma tumor fighting to get rid of they're running out of options
don't let it grow too much, have they found any options yet, not in my country. Ours are heritage, I just had my first one removed...
I have sachwomma tumor on sacrum anyone cured from homeopathy
What is schwannoma cancer
My comes in pair...¡
how do i get rid of the toe pain which is still with me since after the surgery ? It was shwanama . its been 2 months and i still take pain killers for the toe of my left leg .
syed zaidi I
My son has a Schwannoma tumor on the Triimgeminal nerve, third branch. It has changed his life. He is in pain and also sick from the side affects of the pills 20 plus he has to take every day. He is only 33. Can you help him? Are there any clinical trials available? Please let me know. Thank you so very much.
Hi, I just read this, I am curious how did evolved, I guess after 2 years, I had my surgery a month ago, still hurts, same thing in a hand, did yours went away?
@@magdalena.7778 do you have tinnitus after being removed
A P hi, no, it don't, oh no, is there a possibilty to suffer it after?