I had surgery to remove 1 on my left frontal lobe and still have 1 on my right frontal lobe. The one on the right is in an area, unless absolutely necessary, they will not remove. I have been suffering with seizures with the AVM.
@@lisal4573 my mum has seizures and also muscle weakness numbness down one side etc she is very nervous and doesn't leave her house now. How are the doctors treating you? What medication do they prescribe and does it work? My mum had gamma knife and it's only worked 70% so they want to do it again to get the remainder.
@@LAW-Automotive I’m what doctors call an enigma. Medicines for seizures haven’t worked, I’m allergic to pain meds, I’m on blood pressure meds to help. Basically, unless my AVM grows or swells, I’m stuck with it lol. I’m blessed. Talking about it, 2 other people went to their doctor. They both had brain tumors and successfully removed.
I am diagnosed with AV malformation in Utres.. and now i am 7 month pregnant.. i just scared of my delivery.. please pray for me guyz from Kerala... Thank u... 😞🙏
Did you have any symptoms? I have problems with eyes being misaligned and got a MRI done and doctor noticed a avm in my brain. I'm seeing another doctor in August
I got told that I have an AVM on my brain last Friday, so now I’m waiting for a CT Scan, then after that having Surgery, just the waiting game now just freaking a bit cause it will be my first brain surgery in 5/6 years
I collapsed on 6-12-21 and suffered a bleed on my brain and they done an MRI and realised I had a AVM so they put me in a coma and rushed me for emergency surgery. Then on 25-3-22 I had another surgery to remove the rest of the AVM and then put a titanium plate in my skull
I was diagnosed with a brain AVM in 2003. I consulted 3 specialists. Mass General, UVA, and Columbia Presbyterian. All were foaming at the bit to treat my AVM with surgery or gamma ray, except for Dr. Solomon at Columbia which said leaving it untreated was an option. The option I chose. And here I am 17 years later commenting on youtube. My choice may not be right for everyone, but there is another option.
@@samuelmeghnathan8072 I was diagnosed with my AVM because I had a grand mal seizure. My one and only seizure thank god. Because of the seizure I have been on anti-convulsants since 2003 and will be for the rest of my life. The reason being according to my neurologist, the AVM likely caused the seizure, so it's a preventive. Not everyone that has a seizure has to be on meds forever. Hope that helps.
@@quickflip7185 my mom having am avm since her birth now she is 45 and and before 4 years she suffered with internal bleeding in her head doctor suggest we need to tackel this avm in 4 steps like surgery embolization etc,but we went to banglore and there doctors suggest that surgery is an not an option because avm is to large,so they told us take her home and don't go for surgery there is more risk in this so we went home now 4 years completed and she's fine....from 2017 she's taking bp tablet and levipil 500 mg I don't what to do right now should we stop that tablet intake by consulting doctor??..
Hi there, I have an AVM on the lateral side of my right eyelid above my eyelashes. It seems to get bigger as the years have gone on. I am so tired of jumping from different docs because they can’t just send me to the right place. Do you have recommendations as to where I could go? I live in MN, please help.
What about cerebellar avm? The back of my head has gotten more swollen in the past week. I found out last week by my pcp that its what I have through an mri. I have an appointment on the 30th for a video call with a neurologist. But the pain I'm going through and the migrains are just getting worse and worse. All my symptoms. Tell me more about that kind of avm.
A month back my right thigh was scanned through an mri and it said that I have an avm in my right thigh. It never bothered me... the docs said just because it's there doesn't mean we need to operate it. If it bothers me then we could do a surgery. That's what he said. So like for the past 2 days ive been feeling a little pain in the area. I could walk it it never palms but when I relax the muscles it sometimes pains me. Should I contact the doctor for the surgery or is it normal if I would be careful? Would there be a bad effect if I prolong the surgery longer?
hey, i have avm from birth on left knee cap and it causes me some issues and dont know how i am gonna treat it but will see what the lord has for me but in your case dont do surgery if no major issue and watch it if it gets bigger and when it does and you decide to do surgery, i have found online, radiation is the best way and no risk.
My mum has an avm actual 3 which resulted in 2 strokes. She had gamma knife already but only 2 part was affected 1 part is remaining. She has non epileptic seizures about 10 per day since having gamma knife which is apparently a rare side effect. She also has muscle weakness and restrictions for movement, swelling of limbs etc. The doctor say this has nothing to do with the avm at all, which we think is incorrect. The Doctors don't know how to treat her and it been 3yrs now. She is getting worse every week and doesn't leave the house. Any advice you can give to treat this please I beg for your help.
Thank you for your message. We cannot answer medical questions on this page, but you may be able to get an answer if you email our webmail service. The link is included below. cle.clinic/391FPw8
It's most common in the brain and most spectacular, as it has the most severe consequences. However I agree that other types of AvMs are often left out of the discussion altogether, and people still suffer from AvMs in extremities, Uterus, Lungs ect.
Hi , my 1 year daughter have AVM s in lungs and it's diffuse type .. in india dr. Said lund transplant is only option ..I dont want to do such risky operation. Want to repair her lung any how anyone pls suggest bestest specialist who can treat this case.
![Blox Fruits Dragon Rework Update [Full Stream]](http://i.ytimg.com/vi/EqDAp8udhm0/mqdefault.jpg)
This doctor is the best of the best. He saved my daughters life and has operated on me twice for two different issues.
My wife was just diagnosed with a Vascular Malformations of the Brain. This was great help with knowing the possible ways that it can be fixed.
It is only rare until it happens to you 😥
Ayman Rahman so true 😥😥
Yess...got the diagnose 3 weeks ago...
I had surgery to remove 1 on my left frontal lobe and still have 1 on my right frontal lobe. The one on the right is in an area, unless absolutely necessary, they will not remove. I have been suffering with seizures with the AVM.
@@lisal4573 my mum has seizures and also muscle weakness numbness down one side etc she is very nervous and doesn't leave her house now. How are the doctors treating you? What medication do they prescribe and does it work?
My mum had gamma knife and it's only worked 70% so they want to do it again to get the remainder.
@@LAW-Automotive I’m what doctors call an enigma. Medicines for seizures haven’t worked, I’m allergic to pain meds, I’m on blood pressure meds to help. Basically, unless my AVM grows or swells, I’m stuck with it lol. I’m blessed. Talking about it, 2 other people went to their doctor. They both had brain tumors and successfully removed.
I am diagnosed with AV malformation in Utres.. and now i am 7 month pregnant.. i just scared of my delivery.. please pray for me guyz from Kerala... Thank u... 😞🙏
God bless you nd ur baby, nothing will happen be brave God is there with you
@@v-can. thnk u .. We both are fine. And im blessed with a baby girl ❤️😍
Iam also diagnosed with uterine av malformations...by embolization procedure...one month ago...iam afraid about my health....and future pregnancy
After delivery...do you have any health issues like avm again please reply
Dr. Bain gave me the radiation surgery for my AVM. I thought I was going to die before I met Dr. Bain. He saved my life!!!
Did you have any symptoms? I have problems with eyes being misaligned and got a MRI done and doctor noticed a avm in my brain. I'm seeing another doctor in August
Please let me know how I can contact as one of my relative is suffering from AVM.. PLEASE it's a request
Would have been nice to know before mine burst.
The fact that you got to know makes you luckier than most
Thank you for the great explanation!
Hello, can I send you the certificate of my 13-year-old daughter who is suffering from AVM and tell me your opinion?
I got told that I have an AVM on my brain last Friday, so now I’m waiting for a CT Scan, then after that having Surgery, just the waiting game now just freaking a bit cause it will be my first brain surgery in 5/6 years
upDATE?
I collapsed on 6-12-21 and suffered a bleed on my brain and they done an MRI and realised I had a AVM so they put me in a coma and rushed me for emergency surgery. Then on 25-3-22 I had another surgery to remove the rest of the AVM and then put a titanium plate in my skull
I had AVM and unfortunately I had a stroke.
I was diagnosed with a brain AVM in 2003. I consulted 3 specialists. Mass General, UVA, and Columbia Presbyterian. All were foaming at the bit to treat my AVM with surgery or gamma ray, except for Dr. Solomon at Columbia which said leaving it untreated was an option. The option I chose. And here I am 17 years later commenting on youtube. My choice may not be right for everyone, but there is another option.
My friend has one, any specific food/diet you follow?
@@SharkFishSF No I don't
Bro have you took any medicines in that 17 years plz reply ...
@@samuelmeghnathan8072 I was diagnosed with my AVM because I had a grand mal seizure. My one and only seizure thank god. Because of the seizure I have been on anti-convulsants since 2003 and will be for the rest of my life. The reason being according to my neurologist, the AVM likely caused the seizure, so it's a preventive. Not everyone that has a seizure has to be on meds forever. Hope that helps.
@@quickflip7185 my mom having am avm since her birth now she is 45 and and before 4 years she suffered with internal bleeding in her head doctor suggest we need to tackel this avm in 4 steps like surgery embolization etc,but we went to banglore and there doctors suggest that surgery is an not an option because avm is to large,so they told us take her home and don't go for surgery there is more risk in this so we went home now 4 years completed and she's fine....from 2017 she's taking bp tablet and levipil 500 mg I don't what to do right now should we stop that tablet intake by consulting doctor??..
I have a birth defect which high flow vascular malformation in my right hand specifically in my ring finger and it has been my dilemma since forever.
I have this but mine is more towards the bottom of my stomach and is way bigger then normal so mine is super rare
Hi there, I have an AVM on the lateral side of my right eyelid above my eyelashes. It seems to get bigger as the years have gone on. I am so tired of jumping from different docs because they can’t just send me to the right place. Do you have recommendations as to where I could go? I live in MN, please help.
It took me a year before the doctors found out what was wrong with my knee so please be patient and get a mri
What about cerebellar avm? The back of my head has gotten more swollen in the past week. I found out last week by my pcp that its what I have through an mri. I have an appointment on the 30th for a video call with a neurologist. But the pain I'm going through and the migrains are just getting worse and worse. All my symptoms. Tell me more about that kind of avm.
A month back my right thigh was scanned through an mri and it said that I have an avm in my right thigh. It never bothered me... the docs said just because it's there doesn't mean we need to operate it. If it bothers me then we could do a surgery. That's what he said. So like for the past 2 days ive been feeling a little pain in the area. I could walk it it never palms but when I relax the muscles it sometimes pains me. Should I contact the doctor for the surgery or is it normal if I would be careful? Would there be a bad effect if I prolong the surgery longer?
hey, i have avm from birth on left knee cap and it causes me some issues and dont know how i am gonna treat it but will see what the lord has for me but in your case dont do surgery if no major issue and watch it if it gets bigger and when it does and you decide to do surgery, i have found online, radiation is the best way and no risk.
My mum has an avm actual 3 which resulted in 2 strokes. She had gamma knife already but only 2 part was affected 1 part is remaining. She has non epileptic seizures about 10 per day since having gamma knife which is apparently a rare side effect. She also has muscle weakness and restrictions for movement, swelling of limbs etc. The doctor say this has nothing to do with the avm at all, which we think is incorrect. The Doctors don't know how to treat her and it been 3yrs now. She is getting worse every week and doesn't leave the house.
Any advice you can give to treat this please I beg for your help.
Thank you for your message. We cannot answer medical questions on this page, but you may be able to get an answer if you email our webmail service. The link is included below.
cle.clinic/391FPw8
Might want to check if she has HHT.
Does a patent foramen ovale qualify as an AV malformation?
Why is the assumption that AVM only occurs in the brain?
Yeah I have it in the knee and I want to know more but sometimes they don’t tell me it’s for the brain and I get scared when mines not that serious
It's most common in the brain and most spectacular, as it has the most severe consequences. However I agree that other types of AvMs are often left out of the discussion altogether, and people still suffer from AvMs in extremities, Uterus, Lungs ect.
I have a AVM in my elbow and I can't straighten my arm out
I have it in my left bottom cheek
I have large vascular wads in my saddlebags.
It happened to me year 2015. I was undergo operation called embolization.. im just seraching nownthe effects
Hi , my 1 year daughter have AVM s in lungs and it's diffuse type .. in india dr. Said lund transplant is only option ..I dont want to do such risky operation. Want to repair her lung any how anyone pls suggest bestest specialist who can treat this case.
Same here
I had to undergo embolization in 2015
Since then i m having severe pain in my left arm and leg
Please somebody suggest me a good doctor or treatment of brain AVM
In nagpur (M.H.) NEURON hospital
Best neurologist Dr. Pramod Giri best surgen
hello ...hw
what treatment you got for avm ... please guide
1:42 1:44
wait this isnt stick figure animation
There should be a cure to heal all our cells in the body
EXACTLY!!! SOMETHING IS GOING ON IN THE GOVERNMENT MAKING US SICK
@@LawrenceIsLightobviously.. no one should die off cancer !! Everyone should fast . Doctors don’t wanna help us or someone somewhere doesn’t
Tell us the Cure Please! And dont you give me that same old there is no cure stuff!!
animation vs minecrart (AVM)