Omg. Thank you so much for sharing this information. I am experiencing this too. Ivermectin is helping with the other long vax syndrome symptoms like fatigue, but this particular symptom is crazymaking. I feel so very isolated and it’s very painful
I have been going through this long covid for a little over a year now. It seems to come in waves. It feels like 2 steps forward 1 step backwards at times. It can definitely make you feel like you're going crazy. Thank you so much for making this content and bringing inspiration to those of us going through this. We shall overcome
Hey thanks for watching and taking the time to leave a comment. You hit the nail on the head with your third sentence there. It really is 2 steps forward and one step back. I do still deal with this occasionally when I have a flare up. Recent one is from a nasty flu. Could have been COVID but don’t know. Some days really are amazing and others are not. We all just have to keep pushing. I’m sorry you’ve been at this for a year! I know it can be hard. Over the last year what are you finding is helping you the most?
@@beatinglongcovid Thank you so much for your response. I been taking D3/K2, probiotic, b12, and more recently monolaurin which seems to be helping. I quit smoking and drinking at the start of feeling this way and thought those were the culprit for how I was feeling. Although after a year of being clean I felt like it didn't change anything. I still don't smoke but have an occasional drink and it does seem to help a little too surprisingly
@@HMonk-hd1zr very interesting! I to found that at the beginning drinking would help but for me that could get out of hand very quickly as it would rid me of so many of my symptoms. Either that or just make me not “feel” them anymore. That lead me to the gaba glutamate theory and to Ativan. Which helped temporarily in the worst of it. Since been off that now for awhile but have it for when the panic gets terrible which is very rarely now. Look into the gaba and glutamate imbalance in long COVID. Do you have Reddit? I leaned so much from a couple of specific posts from one user on this. I could link it for you.
Thank you for making this video. I agree about the inflammation. Everytime I get a virus now (not just covid) I get increased dpdr. Weirdly my inflammation markers are normal but I expect there is inflammation in the body that isn't picked up by blood tests.
Of course! I really do think inflammation is the key to this! I’m currently sick right now and had throbbing brain pressure. Not anywhere like the first year of long COVID brain inflammation but it’s defiantly there! Feel oddly out of it today and just can’t concentrate. 🤧
@@Littleone88888 hey there. Yes I had this probably started around the same time as you. 2-3 weeks after Covid acute. Constant panic started before that and is probably what set off the dpdr ☹️. Were you fine after Covid no other long covid symptoms?
@@beatinglongcovid hey! I got covid 3 or 4 months ago ,i got nothing like a cold or something like that nothing... 3 weeks went by and suddently i was so confused like a was drunk or something, my chest Hurt and i could breathed it Turned out i had an inflamation in the Heart , Myocarditis and Pericarditis i almost died and Neurocovid and PoTs! :( for Neuro covid i took Lions mane, magnesium and omega 3 i felt slowly better.... but Just today i got again that horrible feeling of beeing in a movie and not being real, i think it comes and go right? I took to my doctor and next week i Will start the hyperbaric chamber i dont know if you heart something about it , they said they it helps a lot with neurocovid and long covid.
I'd highly recommend the channel Pain Free You. His work is based on Dr Sarno but he's taken it further. Sarno's main theory was that symptoms are created to distract from "dangerous" emotions. Whereas the current thinking within the TMS community is that symptoms can be created due to any perceived danger. A lot of the time the perceived danger is about the symptoms themselves. This makes the most sense to me personally because after years of emotional processing my symptoms did not resolve. In fact they got worse because fixing them became my life purpose. 🤦♀️
I had dp/dr once in my life before covid. I had a very bad experience when I was younger when I tried weed. I had dp/dr for like a week after because of the panic attack the weed gave me. This type of dp/dr just doesn’t want to leave. It’s brutal
@@beatinglongcovid dr/dr has gone away to a degree but the fight or flight is still crazy! The only thing working for me is Xanax but I’m really trying to not take it daily. Even the smallest dose helps a lot. This is brutal. It’s basically like a 24/7 panic attack for no reasoning behind it. The smallest little thing can set it off as well. Had to give up caffeine completely as well. Even a quarter cup of coffee would trigger either an immune response or an adrenaline attack
@@joealitz4157 I’m happy your dpdr has calmed down a bit. The panic and fight or flight was crazy for me as well! I also used Ativan to help this. I took it daily. I tapered off properly when I was ready with a mg scale. My worry for you is you might be experiencing intra dose withdrawal. Are you using meditation, grounding and breathwork as well?
@@beatinglongcovid yes I’ve been doing breathing and grounding. I have actually spoken to you in chat in Reddit a few times haha. I haven’t been on Xanax long at all so idk if it’s withdrawal from that yet. I will admit foolishly when this first happened I tried drinking alcohol and it made my symptoms insane. I guess I was looking for something to calm my nerves down. Anyway I have a pretty interesting link I wanted to share with you and I’ll send it to you on Reddit. It’s a dr that kinda explains the fight or flight and how histamine is a huge factor with it. Also besides the fact the benzodiazepines calm the nerves down, they also stabilize mast cells. It’s dangerous though to take them for a long time so I try and honestly take them during the times when the adrenaline is insane
@@beatinglongcovid hey I sent you a message on Reddit. We have talked before. I can explain a few more things and I sent you an article that you might find interesting
@@Littleone88888 hey there. Yes absolutely the panic and fight or flight was one of the worse symptoms. Some days I would have 5-10 panic attacks and some days they would never end. I was in a constant state of unreasonable panic. I also had/ very well could still have long covid ptsd. It was worse last year but it still hangs around a bit. I have done and still do a hell of a lot to work on it. It’s one of my main focuses now, to try and move past everything but always remember. Sorry you are struggling as well. Are you having a lot of panic attacks.
@@beatinglongcovid yes , the same here before covid i didnt have that, the doctor gave me this week antidepresive drugs and for panick atacks , she also told me they need time to make efect like 2 weeks or so ❤ but Just like you they are and were Bad i feel like i was going crazy
Omg. Thank you so much for sharing this information. I am experiencing this too. Ivermectin is helping with the other long vax syndrome symptoms like fatigue, but this particular symptom is crazymaking. I feel so very isolated and it’s very painful
I have been going through this long covid for a little over a year now. It seems to come in waves. It feels like 2 steps forward 1 step backwards at times. It can definitely make you feel like you're going crazy. Thank you so much for making this content and bringing inspiration to those of us going through this. We shall overcome
Hey thanks for watching and taking the time to leave a comment. You hit the nail on the head with your third sentence there. It really is 2 steps forward and one step back. I do still deal with this occasionally when I have a flare up. Recent one is from a nasty flu. Could have been COVID but don’t know.
Some days really are amazing and others are not. We all just have to keep pushing.
I’m sorry you’ve been at this for a year! I know it can be hard.
Over the last year what are you finding is helping you the most?
@@beatinglongcovid Thank you so much for your response. I been taking D3/K2, probiotic, b12, and more recently monolaurin which seems to be helping. I quit smoking and drinking at the start of feeling this way and thought those were the culprit for how I was feeling. Although after a year of being clean I felt like it didn't change anything. I still don't smoke but have an occasional drink and it does seem to help a little too surprisingly
@@HMonk-hd1zr very interesting! I to found that at the beginning drinking would help but for me that could get out of hand very quickly as it would rid me of so many of my symptoms. Either that or just make me not “feel” them anymore. That lead me to the gaba glutamate theory and to Ativan. Which helped temporarily in the worst of it. Since been off that now for awhile but have it for when the panic gets terrible which is very rarely now.
Look into the gaba and glutamate imbalance in long COVID. Do you have Reddit? I leaned so much from a couple of specific posts from one user on this. I could link it for you.
Thank you for making this video. I agree about the inflammation. Everytime I get a virus now (not just covid) I get increased dpdr. Weirdly my inflammation markers are normal but I expect there is inflammation in the body that isn't picked up by blood tests.
Of course!
I really do think inflammation is the key to this! I’m currently sick right now and had throbbing brain pressure. Not anywhere like the first year of long COVID brain inflammation but it’s defiantly there! Feel oddly out of it today and just can’t concentrate. 🤧
I get waves of this, and my panic disorder/mental health is exponentially worse since having Covid over two years ago 😢
I’m so sorry to hear you are also struggling with this ❤️🩹
Thank you 🥺🙏
This happend to me today , i was fine for 3 weeks the same happend to you?
@@Littleone88888 hey there. Yes I had this probably started around the same time as you. 2-3 weeks after Covid acute. Constant panic started before that and is probably what set off the dpdr ☹️.
Were you fine after Covid no other long covid symptoms?
@@beatinglongcovid hey! I got covid 3 or 4 months ago ,i got nothing like a cold or something like that nothing... 3 weeks went by and suddently i was so confused like a was drunk or something, my chest Hurt and i could breathed it Turned out i had an inflamation in the Heart , Myocarditis and Pericarditis i almost died and Neurocovid and PoTs! :( for Neuro covid i took Lions mane, magnesium and omega 3 i felt slowly better.... but Just today i got again that horrible feeling of beeing in a movie and not being real, i think it comes and go right? I took to my doctor and next week i Will start the hyperbaric chamber i dont know if you heart something about it , they said they it helps a lot with neurocovid and long covid.
Thank you so much for sharing this, just reaching the end of your video has given me hope ❤
Absolutely happy it has helped you! Keep that hope going ❤️🩹🙏🏻
Yes, and now 18 months later I feel about 95% better but also almost totally emotionally numb. Other than ptsd lol
Look up dr Sarno the mindbody prescription. This is TMS emotions based. Its helping me a lot
Great recommendation! I just started his audio book! Can you let us know your thoughts on the book and how it’s help3: you heal? 🙏🏻❤️🩹
@@beatinglongcovid in brief. repressed emotions. Please do get the book.
@@briechilli4496 which is weird because I cried literally every day for the 18 months lol
I'd highly recommend the channel Pain Free You. His work is based on Dr Sarno but he's taken it further.
Sarno's main theory was that symptoms are created to distract from "dangerous" emotions.
Whereas the current thinking within the TMS community is that symptoms can be created due to any perceived danger. A lot of the time the perceived danger is about the symptoms themselves.
This makes the most sense to me personally because after years of emotional processing my symptoms did not resolve. In fact they got worse because fixing them became my life purpose. 🤦♀️
I had dp/dr once in my life before covid. I had a very bad experience when I was younger when I tried weed. I had dp/dr for like a week after because of the panic attack the weed gave me. This type of dp/dr just doesn’t want to leave. It’s brutal
Hey Joe. I hear you. I think mine was heavily related to the constant panic and fight or flight. How are you doing now? Any improvements?
@@beatinglongcovid dr/dr has gone away to a degree but the fight or flight is still crazy! The only thing working for me is Xanax but I’m really trying to not take it daily. Even the smallest dose helps a lot. This is brutal. It’s basically like a 24/7 panic attack for no reasoning behind it. The smallest little thing can set it off as well. Had to give up caffeine completely as well. Even a quarter cup of coffee would trigger either an immune response or an adrenaline attack
@@joealitz4157 I’m happy your dpdr has calmed down a bit. The panic and fight or flight was crazy for me as well! I also used Ativan to help this. I took it daily. I tapered off properly when I was ready with a mg scale. My worry for you is you might be experiencing intra dose withdrawal.
Are you using meditation, grounding and breathwork as well?
@@beatinglongcovid yes I’ve been doing breathing and grounding. I have actually spoken to you in chat in Reddit a few times haha. I haven’t been on Xanax long at all so idk if it’s withdrawal from that yet. I will admit foolishly when this first happened I tried drinking alcohol and it made my symptoms insane. I guess I was looking for something to calm my nerves down. Anyway I have a pretty interesting link I wanted to share with you and I’ll send it to you on Reddit. It’s a dr that kinda explains the fight or flight and how histamine is a huge factor with it. Also besides the fact the benzodiazepines calm the nerves down, they also stabilize mast cells. It’s dangerous though to take them for a long time so I try and honestly take them during the times when the adrenaline is insane
@@beatinglongcovid hey I sent you a message on Reddit. We have talked before. I can explain a few more things and I sent you an article that you might find interesting
Did you ever get the crawling sensations
New to me too, been 10 months now.
I’m sorry this is also new for you.. have you been struggling with this for the full 10 months?
@@beatinglongcovid yes and insomnia and fatigue
Hey i want to asked you if you really had bad bad really bad panic attacks and PTSS?
@@Littleone88888 hey there. Yes absolutely the panic and fight or flight was one of the worse symptoms. Some days I would have 5-10 panic attacks and some days they would never end. I was in a constant state of unreasonable panic.
I also had/ very well could still have long covid ptsd. It was worse last year but it still hangs around a bit. I have done and still do a hell of a lot to work on it. It’s one of my main focuses now, to try and move past everything but always remember.
Sorry you are struggling as well. Are you having a lot of panic attacks.
@@beatinglongcovid yes , the same here before covid i didnt have that, the doctor gave me this week antidepresive drugs and for panick atacks , she also told me they need time to make efect like 2 weeks or so ❤ but Just like you they are and were Bad i feel like i was going crazy
Please, stick around-
Like the never ending fakecines they promote