Stephanie, can you invite Olympic triathlete Kevin McDowell on your podcast? He is an Olympic Silver medalist in Triathlon and a cancer survivor. His story is very inspiring and he would be a very intriguing guest on your channel.
I had infections and swollen lymphs in neck for long time. Then at my physical Dr. Noted swollen lymphs under my arm. Had ct scan then sent to onc. Also around Xmas Dr couldn't see me till after New Year's. Proceeded with pet scan then biopsy. Confirmed CLL and put on wait and watch. Did not like that. Then 2yrs later I had vertigo then swollen groin lymphs. Again over Xmas. Went in jan and pet scan confirmed it was now stage 3. I had 6 months chemo rounds bendamustine and Riruxinab. This was 2018. I'm on 6 month check ups now.
I found my breast lump myself. Went to the radiologist I’d been going to for mammograms. She did a mammo and a breast ultrasound and said, “I see nothing. Come back in a year.” She did not do a needle biopsy. Luckily, her report went to my then gynecologist, who called me and said I should go to another radiologist, as cysts and other benign lumps usually show up on ultrasounds, and if mine were only something benign, it should’ve shown up. Anyway, I went to a team of radiologists (rather than my solo practitioner). They said it looked suspicious; I went to a breast doctor, who took a needle biopsy and called me three hours later and told me it was cancer. I had treatment at MSKCC. This was twenty-four years ago, and I’ve been okay so far. That gynecologist saved my life.
So glad you advocated for yourself - what a difference that made. Thank you for sharing your experience, it will undoubtedly help countless others who see it! -Stephanie
I had ovarian cancer. The tumor was the size of a football. There is an ultrasound wand and they can see if any thing is abnormal . I suffered for years, but my doctor acted like I was drug seeking. I survived. This was in 2011, and I’m cancer free.
hiya Kathy! my ovarian cancer was the size of a cantaloupe at the time of surgery in 2012. 10 yrs cancer free! i had a CT scan today because of random pain but am sure it is ok
Because women are gas-lit in medical settings every day! That is why we need to not be afraid to advocate for ourselves and not worry about what people may think of us!
@@carolynsunseri5179 The tumor didn’t get wrapped around, it came out , they did a debulking and removed some lymph nodes and the cancer had not spread. The doctor said it was a miracle, I had no chemo or radiation but had to get a blood test ca-125 for 5 years. They graded it 1A cancer. Everyone thought I was going to die, but I never felt that. I was just happy finally I knew what it was. I said this prayer “ Thy name is my healing, O My God, and remembrance of Thee is my Remedy. When they brought me back to my room their was a bottle of lotion and across the front said “ Remedy”
my platelet count has been high for 5 years. I wish my doctor had done something sooner to lower it but instead I ended up almost losing my life with a heart attack and stroke. my aorta in my heart was disected and completely blocked by a blood clot.doctors need to take action when blood work is outside of norm
I was diagnosed with Invasive Lobular Carcinoma 7 years after it showed up on a mammogram. As a consumer, I always received a letter each year informing me that I was healthy and with instructions to return the following year. It was just by chance that I obtained the actual radiologist's report after my diagnosis, and unfortunately, I lost a breast. While I am not a litigious person, I sued the radiologist and won. It was very apparent that I had it, and it was overlooked. Consequently, my entire life has been affected. At this point I am going on 9 years without the cancer recurring! I can completely empathize with you, as I am one who experienced a similar situation. Thanks for sharing your story - Best wishes!
Sometimes you're only treated as well as the insurance you have. I can't say how many doctors I've had that made me spend more time in the waiting room than in the examining room. Always read your results. See if anything is flagged. I was in the ER a couple of years ago and had stomach pain. I was told my results were all normal. I got home and read my results and found out I had a bone problem with my pelvis and the doctors said nothing. As far as this woman, what was done to her is unforgivable. I wish her well. Easily bruising is one of the most common symptoms of leukemia. If you think your doctor is not treating you well, seek care elsewhere.
Self advocacy is a MUST these day and age. Its and industry now...not a professional. It took me 2 orthos and pain management to get a diagnosis of ..new hip. 2 YEARS!!!! All of them said oh its wear and tear...stupid now Im on the brinknof sepsis. Its disgusting how they get away with it.
Hearing the ways that your diagnosis was delayed is so disheartening and I am so sorry that occurred. I wanted to thank you for sharing your experience with us viewers and for helping us learn through your experiences.
I appreciate the detailed account of Leesa's initial symptoms, tests, treatments, progression of symptoms and appearance of new ones, and then new treatments to address them. Leesa has a great attitude through it all -- she is taking care of her health problems while living a beautiful, positive life.
I appreciate you sharing your story. I am in the process of being referred to Hematologist. My GP found my red blood cell count was high on two different rounds of blood work. When she first told me that, I said to her, "well my red blood cell count has always been high, doctors have been telling me that for several years", She said, why hasn't anyone looked into it? OMg I had no idea it was ever an issue. SO now I am playing the anxious waiting game. GOd Bless you and your family!
I had two re-occuring, fast growing what they thought were pituitary adnomas, removed. After the second brain surgery i got a phone call saying they were the radiology/oncology department and the tumor board and my neurology surgeon wanted to make an appointment. I put it off because no one told me anything. It ended up the assistant who was supposed to tell me didnt do it. It ended up i have a really rare benign brain cancer. 1 in a million. Most people have a 50 percent chance of reoccurrence. Mine isn't if it will reoccur its when. It doesn't metastasize just grows back over and over. It has lots of different symptoms one of my tumors loves my optic nerve, they cant take it all off. I gradually almost grow blind over and over. Sorry to ramble. Bless everyone.😊
My GYN did a uterus biopsy without meds, and I screamed in pain and almost lost consciousness from shock! Would they make men endure that? My guess is nope!!
I had a similar experience. In the early 90's I was having bout of extreme tiredness. I had blood tests and my white blood count was very high. I attended a specialust and had ultra sound check for non hodgkins lymphoma. Nothing found and was sent home. In 2000 i was admitted for surgery that turned out to be bowel cancer. It was caught very early and I have been fine. Tired spells came and went but overall I felt ok. 24 years later i had a large swelling on the side of my neck that came and went within a couple of hours ? After two more of these episodes I went to see a doctor who new the symptoms and sent me for blood tests and I have been diagnosed with CLL . Had I had it all along ? I am now on watch and wait and having regular blood tests and check ups. I feel ok and apart from a permanent sweling on my neck and occasional tiredness. Of course everyone is different but dont be frightened and try to live life to the full.
I practiced medicine for 30 years. I started medical school in the 1970s. Before neo liberal economics, also known as Reaganomics, took a hold of our healthcare system, it would never have been the patient’s responsibility to remember to follow up on abnormal labs. A nurse would have never said that to her. Would’ve been the responsibility of the treating physician to pass that information on to the physician that was next taking responsibility for the case. Until another doctor excepted responsibility for this patient’s abnormal blood count, the doctor that first ordered the blood test would’ve been responsible for any poor outcomes from lack of follow up. The whole point of Reaganomics is to enrich the wealthy. The way you enrich the wealthy people that own the health insurance companies and the hospital supply companies and the big hospital corporations is the squeeze more and more work out of the workers (doctors and nurses and other healthcare providers and support staff), to squeeze more money out of people buying insurance plans and individual patients who have to pay for certain parts of their medical care if not all of it. Dollar bill McGwire the head of United healthcare received over $1 billion in compensation for 10 years of “service“. The United States pays twice as much per capita for healthcare as Canada but we have way worse outcomes. I remember spending hours on the phone trying to get care paid for for patients. One particular time I remember quite well I was at a hospital and it was before cell phones had really taken hold. I’ll let the nurses desk using the phone to try to get an insurance company to pay for a treatment. Without that treatment this patient’s chronic condition would kill him sooner rather than later. It was clear to me that I was talking to someone on the phone that maybe had a high school education and knew nothing about healthcare. They were reading from a script And just refusing. The healthcare insurance companies employ could not explain to me why the treatment was being refused. He could not give me alternatives it would be paid for. Clearly a sham review process. I was on the phone for three hours. Sitting in the next year at the desk was one of the nephrologists. Her patient was visiting from about 1000 miles away when he suddenly developed acute renal failure. He could have very severe additional kidney damage if he was not treated immediately. The reason is is that the very toxins the kidney filters out of the blood will kill the kidney if the blood level of those toxins gets too high. The distant insurance company was refusing to pay for treatment to start immediately. The man was very sick because his kidney values were so high. The distant insurance companies wanted the nephrologist to put this very sick man on a plane and fly him back to their facility 1000 miles away. The nephrologist was not sure he could survive the trip. She was not any more successful than I was in getting the very critical care our patients needed. Our phone calls ended about the same time. We just turned to each other, hugged each other, and cried. You see the insurance company has absolutely no liability if they refuse care and the patient dies. If the patient’s survivors want to sue, they have to see the doctor. They have to sue the doctor even if the doctor was totally not the cause. Do United States has the least regulated insurance industry in the world. And the result is that the owners of the insurance companies become very rich, patients die, doctors have a five year shorter life expectancy and massive stress problems, and it doesn’t work nearly as well as Medicare for all works in other countries. Starting in the early 1980s doctors hours increase so much and their pay decrease so much that people stopped applying to medical school. Men were much more likely to not apply so more women were admitted. The unfortunate result of increased hours, and decreased pay, as well as decreased support staff for physicians is it they can’t keep track of everything. They have more patience than ever, less time to see them and less support. There was a medical research article in the late 1990s that clearly showed that the doctors had to work more hours, the number of medical mistakes increased.
Hhhhmmm you have obviously never heard of the universal declaration of human rights of which two are autonomy and self determination. Also we are no longer situated in the medical model of society, rather we are located in the social model of society. Both the social model and human rights dictate that the powers are with the individual and common person not with the authorities in systems of power. It is in the knowing of our own self that we have the power to help others to understand who we are, how to treat us and what our needs are.
Thanks for sharing. I have medicare due to low income.its taken 2 years to find an ortho to approve hip repl...2 orthos and pain management told me..just take inbuprofen. Now my hip is so bad its practically septic..looks like groud up glass in my hip joint. Thanks God I found this doc who straight up told me you need a hip...but your back is really a mess. So after Christmas I will get this checkes out. Its crazy how non chalant doctors are. My gp has been seeing me for 9 months...no blodd work yet! Im 70 with several issues and pre diabetic with using metformin...its disgusting.
Seems like you are being sexist saying they started letting women in. Of course it’s been our history that when women start entering a work field they earn less. Such as school teachers for example.
Thank you for sharing this with us. I understand now, why things are like this, so you really answered many questions that I had regarding this medical system. I truly appreciate your comment, and the transparency of the truth.
I am living with cll almost 9 years. But it's only in my blood. Not in the lymph nodes or spleen. So I am very lucky. No treatment. I don't feel sick. It progresses very slowly.
Finally got a diagnosis! Not one to stick my head in the sand, but have had so many really bad doctors, they just weren't used to having a patient with SO many rare conditions, they weren't used to seeing to diagnose any or all of what has been my reality! What a ride, thought dealing with my husband having a brain tumor, would be the worst of it all when now he has dementia/alzheimers and who will care for him if I go first? I can't die first! So many doctors dropped the ball with my conditions, I'm tired of handing them my paperwork/file and saying connect the dots! There HAS to be a common thread of it all? Rare this, rare that, I'm just unique and special, my Super-Powers! I will refuse chemo. Bone marrow blood cancer? Non smoker, non drinker, no drugs, healthy life, vitamins, minerals and all natural base. Lab must have screwed up?
Hello,dear friend Thanks for sharing your story It’s a real shame that your Cancer was not caught in time Hopefully you will continue to do well Warm Hugs and Good Luck
I was told by my primary doctor that my WBC was high. That was 2016. She sent me to onc/hemo and he is awesome. So far I've been under monitoring every 3 months. Once I had to get a couple of iron infusions. Once I had to get the JAK2 gene test. All okay so far. But since Covid, I've developed pseudo tumor cerebri . My vision worsened with double vision. Stay up to date appointments with eye doctor. Had lumbar puncture. I had high CSF pressure. All being monitored. No infections or diseases noted. So, I'm still monitoring my blood every 3 months. I don't feel good but I get checked when I especially don't feel well. My eye doctor clearly tests my eyes and I do wear glasses. I wear lenses that are prisms. I've had reddened eyes off and on with headaches. My left eye is the worst. But 2 yrs now and doing well with check ups and prisms.
I haven't watched this all the way through, but I have a few observations that might be helpful to others based on Leesa's experience. (1) Always check your lab results. If you don't have access to them automatically, as I do through a patient portal, request a copy from the physician who ordered your tests. If you get pushback or significant delay, change doctors. If you have results that are out of the normal range, start asking questions; (2) Know your family history as much as you possibly can. My guess -- and it's just a guess -- is that her prior physicians should have put her blood count data and her family history together. If the doctors don't do it, you have to. (3) This leads to this third point: Take charge of your medical care. If you can't do it, have a friend of family member help you, preferably a nurse or a nurse practitioner. In Leesa's case, I'm going to guess that a sharp-eyed nurse would have put two and two together. (4) Regardless of whether you feel physically healthy, should your data suggest otherwise, follow up. (5) And, if you have a concern, get a second opinion OUTSIDE YOUR DOCTOR'S PRACTICE. This is important. Physicians within an office or a clinic will most likely back each other up. This is not nefarious; it's just human nature. In Leesa's case, she was within the Kaiser system, so this might not have been an option for her; 6) Since I didn't watch the video all the way through, Leesa might eventually have seen a CLL specialist eventually. If you get a specific diagnosis, see the best specialist you can find who works in the area of your condition. This might not have been possible with Kaiser but give it a try and see what your insurance will accept; (7) Remember that you can always fire your doctor. But be honest with yourself. Don't be one of those people who doctor shop in order to get a diagnosis or treatment that you want that doesn't line up with adequately addressing your condition. Good luck to Leesa and to those watching this video.
Every year when I had my physical my white count was slightly elevated and my PC would mention it. So after so many times of it being elevated he really pushed for me to get it check out. He sent me to a hematologist/oncologist as well. To check for a certain marker for Leukemia. Now if he had mentioned Leukemia earlier I would have taken it more serious. Since almost anything can can an elevated white count. Thankfully I don’t have the marker but I do the the perpensity to get it in the future. So now I need to get follow up blood work on a yearly basis for this marker and to watch to see if a certain number starts to raise. Which is nice to know and to watch out for.😂 That’s exactly what they are looking for with me CLL
Im bawling rn. My dad's sis has cll/sll and wegeners disease. Ive been very ill since 2017. Still undiagnosed...acute bm loss, bergers disease and unknown aggressive autoimmune disease. They still are unsure of whats causing all of this (they say all of this is secondary to something, back and forth from leukemia and some other odd diseases) and i continue to be poked amd prodded when i don't quit for a while, but it is devastating and disheartening and lonely and frustrating.
Sara, just wanted to say I’m sorry for all you’re going through. The worst part for me was not knowing what the diagnosis was, and I can only imagine how it feels to be so uncertain for so long. I’m sending you big hugs- please know you’re not alone. ❤️ Stephanie
Well, I disagree. Most people don't know they can sue or don't have the money to hire an attorney. I work in a state where health care providers of most types carry their own malpractice insurance and also have to have additional insurance via state government. I only see claims that are projected to settle over a certain dollar amount. I see a lot of "delay in diagnosing..." or "failure to diagnose..." claims. I enter them into our specialized data system and they are assigned by managers to attorney examiners. I think I've "seen it all" until something new and unusual or tragic comes up on my screen. I don't usually tell my doctors exactly where I work if they ask, but I let it slip one day when my radiologist asked what state department I worked for. Instead of "Insurance Department" I said the specific name. She burst out with "Oh, Great!!" and I cracked up laughing. She's an excellent doctor. I recognize mistakes can happen because we're all human and they're trying to sort out the information we're giving them--especially primary care doctors. It just depends on what mistake and when, and how it affects the patient. On a personal level, if they respect me and I have respect for them, we're good. If I find they're going through the motions, not listening at all and I can't respect them, I'm done. I've only personally encountered a few over a lifetime that were outright terrible. It's hard for people who don't have any medical background, aren't able to do their own research, or have no one to advocate for them. And then there's a man I know of who had a botched cataract surgery and went back to the same doctor for the same surgery in his other eye! Haven't heard yet how that worked out.
Agree. Even if you have an indolent (very slow growing blood cancer), better to treat immediately and ease some of the fear of "worryful watching". It buys really important worry-free time.
Thank you for this !, very informative. My mother is awaiting results . FISH & other blood work . Her WBC went from 27,000 to 37,000 to 41,000 within one week. Hematologist said she may have a slow or fast form of leukemia . Just so scared for my mother and I just want to get as much information for her & support her . She started to have blood in her urine and excessive this month so we took her to the ER. I’ve been looking at her records prior years her WBC was always elevated 12,000-16,000. Im wondering if my mother has always had it .she always bruise easy as well . Thank you for this channel i will be watching all of it ❤
Hi Shirley here, I just found your channel. About 2 years ago I thought I had cancer. I was lucky it was I had a sciatica nerve causing this sent me to therapy to painful. Then to a nurse surgeon, working in the garden did it the Dr wanted me to get MRI. Then some kind of pain relief which help, the pain finally subsided. I thought I had cancer the pain was so bad I didn't want to even wake up the next day to facing the pain. I am OK no cancer. Hope your going to be fine u look healthy.
The Gas lighting is really something else to be honest , I am always noticing especially how women are getting Gas Lit in Canada here where I live its every person i come into contact with , when I meet some one new through work , same story every one was already sick with symptoms for so long being told its depression or anxiety or Fibromyalgia. Sick and Tired of it.
@@powerofloveism you can thank socialized medicine for that all I see on you tube are Canadian stories of cancer patients being passed along like cattle
@@cristianasaras6898 not just cancer! I saved the lives of friends, family members and myself by doing my own medical research. I had cavernous sinus cellulitis 4 x and is fatal. The last time was told to go to the ER by my doctor asap. The admitting staff rushed me in and no wait but a smug doctor told I did not have sinus cellulitis and to leave. Next day the infection was in the orbital cavity before to the brain causing meningitis. Took 7 IVs of antibiotics to save my life. Fact: number third cause of death is misdiagnosed. Worst is the ER. Heart attack, cancer and serious infections are the majority of misdiagnoses. I have MS and for the past 4 years I kept on telling the Neurologist that my symptoms were not due to MS but something wrong with spine. She refused to refer me to a spinal surgeon. Just received copies of all my MRIs 2013-2021 and Radiologist Reported I have myelomalacia which requires emergency surgery due to cord hemorrhage. Now since I just found out my GP referred me to a neurosurgeon but my doctor, surgeon and Neurologist are all covering up for this medical error. It is obvious the Neurologist was too busy to read the Reports and narrow minded always focused on MS and the symptoms. Now I am partially paralyzed and will die from respiratory failure. I also discovered I had a serious type of tinnitus called Pulsatile Vascular Tinnitus. I tried to educate my new doctor but doctor refused to listen and screamed at me saying “you have anxiety listen to your voice”. I had to have my Neurologist order all the scans to find the cause. I also have a CSF leak because of clear liquid draining from one side when head is looking down. Doctor told me to use a netipot. Asked my new doctor for a vaccine to prevent meningitis and said it u is s for children. He is unaware of Prevnar 20 vaccine that prevents pneumococcal, streptococcus, sepsis, pneumonia and meningitis. Have a thymus tumour for over a year. Can feel it and see it. I asked my new doctor for a chest X-ray and he refused stating too much radiation. I told him not concerned. He ordered an ultrasound. I contacted BC Cancer Clinic and they stated an ultrasound is not a diagnostic tool for thymus cancer. X-ray, CT and MRI is. Doctors hate me because I have to tell them what to do or educate them. I have swollen left flank and kidney problem for months and doctor was not concerned. I sent him photos which you can obviously see the difference of left and right flank. He said it was fat, I was shocked. I have no fat just swelling, pain and warm to touch. I said look at the photo of right flank which is normal. He said “well you know women have fattier sides of their body. My friends and family all laughed because they said I am too skinny. I spoke to a telehealth doctor who was concerned and she ordered a private ultrasound. In July went to ER and the ER doctir ordered a lumbar X-ray and not sn ultrasound. Cannot believe it! In Admitting I state left flank pain and swelling. She said it was my posture and to exercise. I exercise on a stationary bike and weights every day because of MS balance and strength issues. I refuse to return to ER. I am scared will get another incompetent doctor. Canada’s health care is bad. All the good doctors have left to the US.
@@powerofloveism Yes agree! Had life threatening illnesses and diseases I discovered by doing my own medical research and listening to my body. Doctor told me I had anxiety, swollen kidney flank that it was fat, spinal cord injury and Neurologist did not review Radiologist MRI Report and blamed my symptoms on MS. Now I am a paraplegic. Had serious cavernous sinus cellulitis and a smug doctor kicked me out of ER and said my nose is not red enough. Clueless. It was the sinus area and the infection was moving into orbital cavity and brain. It was the internet that saved my life again. It made me return to ER after reading it was 98% fatal. Took 7 IVs of antibiotics to save my life. Everyone must get second, third or fourth opinion, do your medical research, request all blood work, scan reports and be persistent. It will save your life and improve your quality of life.
@@cristianasaras6898 Trust me, the US is not much better either. Too many stories of misdiagnosis or dismissal. It's just ridiculous. Speaking from experience.
I've had low red and high leukocites on every test. Still can't get help. Lost 40# My family has alot of cancer. First breast exam showed something so more tests. I'm so sick no life.
What the heck? Who would try to do a bone marrow biopsy in a regular doctor's office?! I watched my grandma have a bone marrow biopsy and I can't even imagine how painful it must have been.
This happens more often than you think, there was another woman interviewed on this site who had this cruel experience and had a bone marrow biopsy without sedation. Sounds
I had a tumor in my breast and they tried to drain the fluid but it was solid and it was the size of a grape fruit they removed the tumor thank god it was not cancer I am self aware of it and I try to examine my Brest for any signs of it returning please do exam on yourself to make sure you don’t have a tumor
I don't know if God is preparing me or what with me coming across this. 1998 I was diagnosed with fibromyalgia. Then about 3 years ago it got worse My ANA came back positive so I was referred to a rheumatologist. He questioned about me having an elevated WBC. but some other things to the fact I fired him. I got another one. Every time I have labs my WBC is elevated and not one Dr says anything about it until my gastroenterologist because I was having other issues and one would be chest pains. So after2 more lab results with the same I was referred to a hematologist/oncologist. I forgot to mention the rheumatologist diagnosed me with fibromyalgia scourge s and raynaud. I go back Friday to the hematologist to get results
Hi I’m 22 my name is Aliyah and I’ve been having extreme pain in my stomach since i was pregnant with my daughter and even a little bit before I’ve been crying going to the er telling them help me but no one will listen er man said I had a stomach bug because my white blood count is high and then I finally get in with my OBGYN and he said “on one hand it could be endometriosis which is what I’ve BEEN thinking it is or it could be ovarian cancer I just don’t know” and I have an appointment with a pelvic floor specialist on 19th that I have to pay $240 for and I don’t have the money but I will still try and then I have to also go to a gastroenterologist
I am married to a Gastroenterologist. See if you can see one that is affiliated to a medical school & it’s pertaining hospital. Why bc if you do need to get admitted to a hospital, you will have plenty of doctors all tied with the medical school. Example if, you live in Houston Tx then I would see a GI doc that works out Herman Hospital or Ben Taub county hospital, both are tied with either Univ of Tx Med Sch Houston and the other with Baylor Med Sch. Good luck !
So it took her doctor to tell her what she already new herself why wouldn’t she tell her oncologist that she new something had been wrong and that she had been back and forth to the doctors. I don’t understand how people can be so patient with doctors if I need something done I demand it it’s my life at the end of the day. If you have been suffering with something debilitating for more than say 3 months and your doctors not listening go to another doctor or another doctors office or the hospital or even have private tests. It’s so important not to just take a doctors word on things they don’t know what’s going on inside your body from just looking you over. You could be the statistic of people who unfortunately get cancer and doctors never have that in there mind for some strange reason there’s always the saying “your to young” it infuriates me because no one is to young for cancer and young people get cancer every day just because something is rare doesn’t mean it’s non exitent!
Thank you from the bottom of my heart for your video!! I have read so many posts from people with "good" genetics and felt so lonely and doomed. Finally, I have hope hearing about someone with genetics like mine expressing my own emotions. Thank you.
What was your initial white blood cell count? What number got their attention? Mine is 14,000 with no alternate infection. My doctor didn't seem concerned, so I was asked to retest my blood in 3 months and review with him. My red blood cell count is also very low, again: he wasn't concerned. Just curious if I should have this escalated. I'm 52 and a smoker. Thank you.
That's you in the puzzle if so how did they but you in the puzzle how did they put your picture in the puzzle? Hope you're doing well how are you doing right now how's your cancer? I'm sick I have covid-19 sore throat stuffy nose too. Feels like a cold. Not too severe for me. I hate being sick I hate covid. It's my first experience with covid 2023
How did you find out about your cancer diagnosis? Leave us a comment below 👇
Stephanie, can you invite Olympic triathlete Kevin McDowell on your podcast? He is an Olympic Silver medalist in Triathlon and a cancer survivor. His story is very inspiring and he would be a very intriguing guest on your channel.
I had infections and swollen lymphs in neck for long time. Then at my physical Dr. Noted swollen lymphs under my arm. Had ct scan then sent to onc. Also around Xmas Dr couldn't see me till after New Year's.
Proceeded with pet scan then biopsy. Confirmed CLL and put on wait and watch. Did not like that. Then 2yrs later I had vertigo then swollen groin lymphs. Again over Xmas. Went in jan and pet scan confirmed it was now stage 3. I had 6 months chemo rounds bendamustine and Riruxinab. This was 2018. I'm on 6 month check ups now.
I found my breast lump myself. Went to the radiologist I’d been going to for mammograms. She did a mammo and a breast ultrasound and said, “I see nothing. Come back in a year.” She did not do a needle biopsy. Luckily, her report went to my then gynecologist, who called me and said I should go to another radiologist, as cysts and other benign lumps usually show up on ultrasounds, and if mine were only something benign, it should’ve shown up. Anyway, I went to a team of radiologists (rather than my solo practitioner). They said it looked suspicious; I went to a breast doctor, who took a needle biopsy and called me three hours later and told me it was cancer. I had treatment at MSKCC. This was twenty-four years ago, and I’ve been okay so far. That gynecologist saved my life.
So glad you advocated for yourself - what a difference that made. Thank you for sharing your experience, it will undoubtedly help countless others who see it! -Stephanie
Wow that rad should be fired. I worked on imaging for 10 years
I had ovarian cancer. The tumor was the size of a football. There is an ultrasound wand and they can see if any thing is abnormal . I suffered for years, but my doctor acted like I was drug seeking. I survived. This was in 2011, and I’m cancer free.
hiya Kathy! my ovarian cancer was the size of a cantaloupe at the time of surgery in 2012. 10 yrs cancer free! i had a CT scan today because of random pain but am sure it is ok
Because women are gas-lit in medical settings every day! That is why we need to not be afraid to advocate for ourselves and not worry about what people may think of us!
Tami, yes! So well said. Thank you watching!
Did they use chemo or radiation after ovarian cancer was removed
@@carolynsunseri5179 The tumor didn’t get wrapped around, it came out , they did a debulking and removed some lymph nodes and the cancer had not spread. The doctor said it was a miracle, I had no chemo or radiation but had to get a blood test ca-125 for 5 years. They graded it 1A cancer. Everyone thought I was going to die, but I never felt that. I was just happy finally I knew what it was. I said this prayer “ Thy name is my healing, O My God, and remembrance of Thee is my Remedy. When they brought me back to my room their was a bottle of lotion and across the front said “ Remedy”
my platelet count has been high for 5 years. I wish my doctor had done something sooner to lower it but instead I ended up almost losing my life with a heart attack and stroke. my aorta in my heart was disected and completely blocked by a blood clot.doctors need to take action when blood work is outside of norm
I was diagnosed with Invasive Lobular Carcinoma 7 years after it showed up on a mammogram. As a consumer, I always received a letter each year informing me that I was healthy and with instructions to return the following year. It was just by chance that I obtained the actual radiologist's report after my diagnosis, and unfortunately, I lost a breast. While I am not a litigious person, I sued the radiologist and won. It was very apparent that I had it, and it was overlooked. Consequently, my entire life has been affected. At this point I am going on 9 years without the cancer recurring! I can completely empathize with you, as I am one who experienced a similar situation. Thanks for sharing your story - Best wishes!
If suing them is what it takes to get a bad doctor to pay attention
I am so sorry the radiologist was wrong. Will keep you in prayers.
Thank you also for sharing you have been cancer free for nine years. That is a comfort to me. I had ILC , and am 6 months out from my lumpectomy.
Sometimes you're only treated as well as the insurance you have. I can't say how many doctors I've had that made me spend more time in the waiting room than in the examining room.
Always read your results. See if anything is flagged.
I was in the ER a couple of years ago and had stomach pain. I was told my results were all normal. I got home and read my results and found out I had a bone problem with my pelvis and the doctors said nothing.
As far as this woman, what was done to her is unforgivable. I wish her well.
Easily bruising is one of the most common symptoms of leukemia. If you think your doctor is not treating you well, seek care elsewhere.
EXACTLY
Self advocacy is a MUST these day and age. Its and industry now...not a professional. It took me 2 orthos and pain management to get a diagnosis of ..new hip. 2 YEARS!!!! All of them said oh its wear and tear...stupid now Im on the brinknof sepsis. Its disgusting how they get away with it.
Hearing the ways that your diagnosis was delayed is so disheartening and I am so sorry that occurred. I wanted to thank you for sharing your experience with us viewers and for helping us learn through your experiences.
I appreciate the detailed account of Leesa's initial symptoms, tests, treatments, progression of symptoms and appearance of new ones, and then new treatments to address them. Leesa has a great attitude through it all -- she is taking care of her health problems while living a beautiful, positive life.
Thank you for watching! Please let us know if there are any topics we should cover that would be helpful
Detailed? They don't even say what CLL is!
I appreciate you sharing your story. I am in the process of being referred to Hematologist. My GP found my red blood cell count was high on two different rounds of blood work. When she first told me that, I said to her, "well my red blood cell count has always been high, doctors have been telling me that for several years", She said, why hasn't anyone looked into it? OMg I had no idea it was ever an issue. SO now I am playing the anxious waiting game. GOd Bless you and your family!
The interviewer is brilliant. Lots of deep listening, active reflection and feedback, lots of open questions.
Thank you for watching Kylie!
Yea if she didn’t ask she would only have givin 2 symptoms
I had two re-occuring, fast growing what they thought were pituitary adnomas, removed. After the second brain surgery i got a phone call saying they were the radiology/oncology department and the tumor board and my neurology surgeon wanted to make an appointment. I put it off because no one told me anything. It ended up the assistant who was supposed to tell me didnt do it.
It ended up i have a really rare benign brain cancer. 1 in a million. Most people have a 50 percent chance of reoccurrence. Mine isn't if it will reoccur its when. It doesn't metastasize just grows back over and over. It has lots of different symptoms one of my tumors loves my optic nerve, they cant take it all off. I gradually almost grow blind over and over. Sorry to ramble. Bless everyone.😊
Bless you. I wish more beautiful happy days than hard days
I'm so sorry you have had these experiences. Sending hugs and warm wishes for many better years ahead of you.
What kind of a sadist doctor attempts a bone marrow biopsy without sedation? My goodness.
My GYN did a uterus biopsy without meds, and I screamed in pain and almost lost consciousness from shock! Would they make men endure that? My guess is nope!!
@Wimbledon womble me too. Misogyny is more than common in medical offices.
It happens a lot.
I had a similar experience. In the early 90's I was having bout of extreme tiredness. I had blood tests and my white blood count was very high. I attended a specialust and had ultra sound check for non hodgkins lymphoma. Nothing found and was sent home. In 2000 i was admitted for surgery that turned out to be bowel cancer. It was caught very early and I have been fine. Tired spells came and went but overall I felt ok. 24 years later i had a large swelling on the side of my neck that came and went within a couple of hours ? After two more of these episodes I went to see a doctor who new the symptoms and sent me for blood tests and I have been diagnosed with
CLL . Had I had it all along ? I am now on watch and wait and having regular blood tests and check ups. I feel ok and apart from a permanent sweling on
my neck and occasional tiredness. Of course everyone is different but dont be frightened and try to live life to the full.
I practiced medicine for 30 years. I started medical school in the 1970s. Before neo liberal economics, also known as Reaganomics, took a hold of our healthcare system, it would never have been the patient’s responsibility to remember to follow up on abnormal labs. A nurse would have never said that to her. Would’ve been the responsibility of the treating physician to pass that information on to the physician that was next taking responsibility for the case. Until another doctor excepted responsibility for this patient’s abnormal blood count, the doctor that first ordered the blood test would’ve been responsible for any poor outcomes from lack of follow up.
The whole point of Reaganomics is to enrich the wealthy. The way you enrich the wealthy people that own the health insurance companies and the hospital supply companies and the big hospital corporations is the squeeze more and more work out of the workers (doctors and nurses and other healthcare providers and support staff), to squeeze more money out of people buying insurance plans and individual patients who have to pay for certain parts of their medical care if not all of it. Dollar bill McGwire the head of United healthcare received over $1 billion in compensation for 10 years of “service“.
The United States pays twice as much per capita for healthcare as Canada but we have way worse outcomes.
I remember spending hours on the phone trying to get care paid for for patients. One particular time I remember quite well I was at a hospital and it was before cell phones had really taken hold. I’ll let the nurses desk using the phone to try to get an insurance company to pay for a treatment. Without that treatment this patient’s chronic condition would kill him sooner rather than later. It was clear to me that I was talking to someone on the phone that maybe had a high school education and knew nothing about healthcare. They were reading from a script And just refusing. The healthcare insurance companies employ could not explain to me why the treatment was being refused. He could not give me alternatives it would be paid for. Clearly a sham review process. I was on the phone for three hours. Sitting in the next year at the desk was one of the nephrologists. Her patient was visiting from about 1000 miles away when he suddenly developed acute renal failure. He could have very severe additional kidney damage if he was not treated immediately. The reason is is that the very toxins the kidney filters out of the blood will kill the kidney if the blood level of those toxins gets too high. The distant insurance company was refusing to pay for treatment to start immediately. The man was very sick because his kidney values were so high. The distant insurance companies wanted the nephrologist to put this very sick man on a plane and fly him back to their facility 1000 miles away. The nephrologist was not sure he could survive the trip.
She was not any more successful than I was in getting the very critical care our patients needed. Our phone calls ended about the same time. We just turned to each other, hugged each other, and cried.
You see the insurance company has absolutely no liability if they refuse care and the patient dies. If the patient’s survivors want to sue, they have to see the doctor. They have to sue the doctor even if the doctor was totally not the cause.
Do United States has the least regulated insurance industry in the world. And the result is that the owners of the insurance companies become very rich, patients die, doctors have a five year shorter life expectancy and massive stress problems, and it doesn’t work nearly as well as Medicare for all works in other countries.
Starting in the early 1980s doctors hours increase so much and their pay decrease so much that people stopped applying to medical school. Men were much more likely to not apply so more women were admitted.
The unfortunate result of increased hours, and decreased pay, as well as decreased support staff for physicians is it they can’t keep track of everything. They have more patience than ever, less time to see them and less support. There was a medical research article in the late 1990s that clearly showed that the doctors had to work more hours, the number of medical mistakes increased.
Hhhhmmm you have obviously never heard of the universal declaration of human rights of which two are autonomy and self determination. Also we are no longer situated in the medical model of society, rather we are located in the social model of society. Both the social model and human rights dictate that the powers are with the individual and common person not with the authorities in systems of power. It is in the knowing of our own self that we have the power to help others to understand who we are, how to treat us and what our needs are.
Thanks for sharing. I have medicare due to low income.its taken 2 years to find an ortho to approve hip repl...2 orthos and pain management told me..just take inbuprofen. Now my hip is so bad its practically septic..looks like groud up glass in my hip joint. Thanks God I found this doc who straight up told me you need a hip...but your back is really a mess. So after Christmas I will get this checkes out. Its crazy how non chalant doctors are. My gp has been seeing me for 9 months...no blodd work yet! Im 70 with several issues and pre diabetic with using metformin...its disgusting.
Seems like you are being sexist saying they started letting women in. Of course it’s been our history that when women start entering a work field they earn less. Such as school teachers for example.
Thank you for sharing this with us. I understand now, why things are like this, so you really answered many questions that I had regarding this medical system. I truly appreciate your comment, and the transparency of the truth.
I disagree on soooo many levels.
I am living with cll almost 9 years. But it's only in my blood. Not in the lymph nodes or spleen. So I am very lucky. No treatment. I don't feel sick. It progresses very slowly.
Thanks Leesa. I really enjoyed listening to this conversation. So happy that you are doing so well. 🤍
Thank you for watching!
Finally got a diagnosis! Not one to stick my head in the sand, but have had so many really bad doctors, they just weren't used to having a patient with SO many rare conditions, they weren't used to seeing to diagnose any or all of what has been my reality! What a ride, thought dealing with my husband having a brain tumor, would be the worst of it all when now he has dementia/alzheimers and who will care for him if I go first? I can't die first! So many doctors dropped the ball with my conditions, I'm tired of handing them my paperwork/file and saying connect the dots! There HAS to be a common thread of it all? Rare this, rare that, I'm just unique and special, my Super-Powers! I will refuse chemo. Bone marrow blood cancer? Non smoker, non drinker, no drugs, healthy life, vitamins, minerals and all natural base. Lab must have screwed up?
Have you checked for Celiac?
Hello,dear friend
Thanks for sharing your story
It’s a real shame that your Cancer was not caught in time
Hopefully you will continue to do well
Warm Hugs and Good Luck
Thank you for watching!
I was told by my primary doctor that my WBC was high. That was 2016. She sent me to onc/hemo and he is awesome. So far I've been under monitoring every 3 months. Once I had to get a couple of iron infusions. Once I had to get the JAK2 gene test. All okay so far. But since Covid, I've developed pseudo tumor cerebri . My vision worsened with double vision. Stay up to date appointments with eye doctor. Had lumbar puncture. I had high CSF pressure. All being monitored. No infections or diseases noted. So, I'm still monitoring my blood every 3 months. I don't feel good but I get checked when I especially don't feel well. My eye doctor clearly tests my eyes and I do wear glasses. I wear lenses that are prisms. I've had reddened eyes off and on with headaches. My left eye is the worst. But 2 yrs now and doing well with check ups and prisms.
I haven't watched this all the way through, but I have a few observations that might be helpful to others based on Leesa's experience.
(1) Always check your lab results. If you don't have access to them automatically, as I do through a patient portal, request a copy from the physician who ordered your tests. If you get pushback or significant delay, change doctors. If you have results that are out of the normal range, start asking questions; (2) Know your family history as much as you possibly can. My guess -- and it's just a guess -- is that her prior physicians should have put her blood count data and her family history together. If the doctors don't do it, you have to. (3) This leads to this third point: Take charge of your medical care. If you can't do it, have a friend of family member help you, preferably a nurse or a nurse practitioner. In Leesa's case, I'm going to guess that a sharp-eyed nurse would have put two and two together. (4) Regardless of whether you feel physically healthy, should your data suggest otherwise, follow up. (5) And, if you have a concern, get a second opinion OUTSIDE YOUR DOCTOR'S PRACTICE. This is important. Physicians within an office or a clinic will most likely back each other up. This is not nefarious; it's just human nature. In Leesa's case, she was within the Kaiser system, so this might not have been an option for her; 6) Since I didn't watch the video all the way through, Leesa might eventually have seen a CLL specialist eventually. If you get a specific diagnosis, see the best specialist you can find who works in the area of your condition. This might not have been possible with Kaiser but give it a try and see what your insurance will accept; (7) Remember that you can always fire your doctor. But be honest with yourself. Don't be one of those people who doctor shop in order to get a diagnosis or treatment that you want that doesn't line up with adequately addressing your condition. Good luck to Leesa and to those watching this video.
Every year when I had my physical my white count was slightly elevated and my PC would mention it. So after so many times of it being elevated he really pushed for me to get it check out. He sent me to a hematologist/oncologist as well. To check for a certain marker for Leukemia. Now if he had mentioned Leukemia earlier I would have taken it more serious. Since almost anything can can an elevated white count. Thankfully I don’t have the marker but I do the the perpensity to get it in the future. So now I need to get follow up blood work on a yearly basis for this marker and to watch to see if a certain number starts to raise. Which is nice to know and to watch out for.😂
That’s exactly what they are looking for with me CLL
Advocate for yourself! Absolutely. We are the consumer with any service including physicians!
Thank You for telling your story.
Im bawling rn. My dad's sis has cll/sll and wegeners disease. Ive been very ill since 2017. Still undiagnosed...acute bm loss, bergers disease and unknown aggressive autoimmune disease. They still are unsure of whats causing all of this (they say all of this is secondary to something, back and forth from leukemia and some other odd diseases) and i continue to be poked amd prodded when i don't quit for a while, but it is devastating and disheartening and lonely and frustrating.
Sara, just wanted to say I’m sorry for all you’re going through. The worst part for me was not knowing what the diagnosis was, and I can only imagine how it feels to be so uncertain for so long. I’m sending you big hugs- please know you’re not alone. ❤️ Stephanie
I am retired to about a year and just love it. Working all your life retirement is 👍👌
doctors don't get sued any more, i can guarantee you if these docs had something to actually lose ppl wouldn't have to fight and be gaslit so much
Well, I disagree. Most people don't know they can sue or don't have the money to hire an attorney. I work in a state where health care providers of most types carry their own malpractice insurance and also have to have additional insurance via state government. I only see claims that are projected to settle over a certain dollar amount. I see a lot of "delay in diagnosing..." or "failure to diagnose..." claims. I enter them into our specialized data system and they are assigned by managers to attorney examiners. I think I've "seen it all" until something new and unusual or tragic comes up on my screen. I don't usually tell my doctors exactly where I work if they ask, but I let it slip one day when my radiologist asked what state department I worked for. Instead of "Insurance Department" I said the specific name. She burst out with "Oh, Great!!" and I cracked up laughing. She's an excellent doctor. I recognize mistakes can happen because we're all human and they're trying to sort out the information we're giving them--especially primary care doctors. It just depends on what mistake and when, and how it affects the patient. On a personal level, if they respect me and I have respect for them, we're good. If I find they're going through the motions, not listening at all and I can't respect them, I'm done. I've only personally encountered a few over a lifetime that were outright terrible. It's hard for people who don't have any medical background, aren't able to do their own research, or have no one to advocate for them. And then there's a man I know of who had a botched cataract surgery and went back to the same doctor for the same surgery in his other eye! Haven't heard yet how that worked out.
I was on watch and wait for cll for 2 years. That was hard. Easier to get treated
Agree. Even if you have an indolent (very slow growing blood cancer), better to treat immediately and ease some of the fear of "worryful watching". It buys really important worry-free time.
Thank you for this !, very informative. My mother is awaiting results . FISH & other blood work . Her WBC went from 27,000 to 37,000 to 41,000 within one week. Hematologist said she may have a slow or fast form of leukemia . Just so scared for my mother and I just want to get as much information for her & support her . She started to have blood in her urine and excessive this month so we took her to the ER. I’ve been looking at her records prior years her WBC was always elevated 12,000-16,000. Im wondering if my mother has always had it .she always bruise easy as well . Thank you for this channel i will be watching all of it ❤
Hi Shirley here, I just found your channel. About 2 years ago I thought I had cancer. I was lucky it was I had a sciatica nerve causing this sent me to therapy to painful. Then to a nurse surgeon, working in the garden did it the Dr wanted me to get MRI. Then some kind of pain relief which help, the pain finally subsided. I thought I had cancer the pain was so bad I didn't want to even wake up the next day to facing the pain. I am OK no cancer. Hope your going to be fine u look healthy.
Hi Shirley! Thanks for watching ❤️ Let us know if there are any topics that would be helpful to cover
@@ThePatientStory I sure will sweetie.
I swear, so many misses, it's just nuts.
The Gas lighting is really something else to be honest , I am always noticing especially how women are getting Gas Lit in Canada here where I live its every person i come into contact with , when I meet some one new through work , same story every one was already sick with symptoms for so long being told its depression or anxiety or Fibromyalgia. Sick and Tired of it.
@@powerofloveism you can thank socialized medicine for that all I see on you tube are Canadian stories of cancer patients being passed along like cattle
@@cristianasaras6898 not just cancer! I saved the lives of friends, family members and myself by doing my own medical research. I had cavernous sinus cellulitis 4 x and is fatal. The last time was told to go to the ER by my doctor asap. The admitting staff rushed me in and no wait but a smug doctor told I did not have sinus cellulitis and to leave. Next day the infection was in the orbital cavity before to the brain causing meningitis. Took 7 IVs of antibiotics to save my life. Fact: number third cause of death is misdiagnosed. Worst is the ER. Heart attack, cancer and serious infections are the majority of misdiagnoses. I have MS and for the past 4 years I kept on telling the Neurologist that my symptoms were not due to MS but something wrong with spine. She refused to refer me to a spinal surgeon. Just received copies of all my MRIs 2013-2021 and Radiologist Reported I have myelomalacia which requires emergency surgery due to cord hemorrhage. Now since I just found out my GP referred me to a neurosurgeon but my doctor, surgeon and Neurologist are all covering up for this medical error. It is obvious the Neurologist was too busy to read the Reports and narrow minded always focused on MS and the symptoms. Now I am partially paralyzed and will die from respiratory failure. I also discovered I had a serious type of tinnitus called Pulsatile Vascular Tinnitus. I tried to educate my new doctor but doctor refused to listen and screamed at me saying “you have anxiety listen to your voice”. I had to have my Neurologist order all the scans to find the cause. I also have a CSF leak because of clear liquid draining from one side when head is looking down. Doctor told me to use a netipot. Asked my new doctor for a vaccine to prevent meningitis and said it u is s for children. He is unaware of Prevnar 20 vaccine that prevents pneumococcal, streptococcus, sepsis, pneumonia and meningitis. Have a thymus tumour for over a year. Can feel it and see it. I asked my new doctor for a chest X-ray and he refused stating too much radiation. I told him not concerned. He ordered an ultrasound. I contacted BC Cancer Clinic and they stated an ultrasound is not a diagnostic tool for thymus cancer. X-ray, CT and MRI is. Doctors hate me because I have to tell them what to do or educate them. I have swollen left flank and kidney problem for months and doctor was not concerned. I sent him photos which you can obviously see the difference of left and right flank. He said it was fat, I was shocked. I have no fat just swelling, pain and warm to touch. I said look at the photo of right flank which is normal. He said “well you know women have fattier sides of their body. My friends and family all laughed because they said I am too skinny. I spoke to a telehealth doctor who was concerned and she ordered a private ultrasound. In July went to ER and the ER doctir ordered a lumbar X-ray and not sn ultrasound. Cannot believe it! In Admitting I state left flank pain and swelling. She said it was my posture and to exercise. I exercise on a stationary bike and weights every day because of MS balance and strength issues. I refuse to return to ER. I am scared will get another incompetent doctor. Canada’s health care is bad. All the good doctors have left to the US.
@@powerofloveism Yes agree! Had life threatening illnesses and diseases I discovered by doing my own medical research and listening to my body. Doctor told me I had anxiety, swollen kidney flank that it was fat, spinal cord injury and Neurologist did not review Radiologist MRI Report and blamed my symptoms on MS. Now I am a paraplegic. Had serious cavernous sinus cellulitis and a smug doctor kicked me out of ER and said my nose is not red enough. Clueless. It was the sinus area and the infection was moving into orbital cavity and brain. It was the internet that saved my life again. It made me return to ER after reading it was 98% fatal. Took 7 IVs of antibiotics to save my life. Everyone must get second, third or fourth opinion, do your medical research, request all blood work, scan reports and be persistent. It will save your life and improve your quality of life.
@@cristianasaras6898 Trust me, the US is not much better either. Too many stories of misdiagnosis or dismissal. It's just ridiculous. Speaking from experience.
If your doctor won’t do appropriate and give you a diagnosis get another doctor. If they are negligent, sue them!
I've had low red and high leukocites on every test. Still can't get help. Lost 40# My family has alot of cancer. First breast exam showed something so more tests. I'm so sick no life.
What the heck? Who would try to do a bone marrow biopsy in a regular doctor's office?! I watched my grandma have a bone marrow biopsy and I can't even imagine how painful it must have been.
This happens more often than you think, there was another woman interviewed on this site who had this cruel experience and had a bone marrow biopsy without sedation. Sounds
I had a tumor in my breast and they tried to drain the fluid but it was solid and it was the size of a grape fruit they removed the tumor thank god it was not cancer I am self aware of it and I try to examine my Brest for any signs of it returning please do exam on yourself to make sure you don’t have a tumor
I don't know if God is preparing me or what with me coming across this. 1998 I was diagnosed with fibromyalgia. Then about 3 years ago it got worse My ANA came back positive so I was referred to a rheumatologist. He questioned about me having an elevated WBC. but some other things to the fact I fired him. I got another one. Every time I have labs my WBC is elevated and not one Dr says anything about it until my gastroenterologist because I was having other issues and one would be chest pains. So after2 more lab results with the same I was referred to a hematologist/oncologist. I forgot to mention the rheumatologist diagnosed me with fibromyalgia scourge s and raynaud. I go back Friday to the hematologist to get results
Hang in there ❤
Thank you. The Lord has blessed me. The hematologist said the elevated WBC was from the inflammation because of the autoimmune disorder.
she looks really young to be retired for 7 yrs
Hi I’m 22 my name is Aliyah and I’ve been having extreme pain in my stomach since i was pregnant with my daughter and even a little bit before I’ve been crying going to the er telling them help me but no one will listen er man said I had a stomach bug because my white blood count is high and then I finally get in with my OBGYN and he said “on one hand it could be endometriosis which is what I’ve BEEN thinking it is or it could be ovarian cancer I just don’t know” and I have an appointment with a pelvic floor specialist on 19th that I have to pay $240 for and I don’t have the money but I will still try and then I have to also go to a gastroenterologist
I am married to a Gastroenterologist.
See if you can see one that is affiliated to a medical school & it’s pertaining hospital. Why bc if you do need to get admitted to a hospital, you will have plenty of doctors all tied with the medical school. Example if, you live in Houston Tx then I would see a GI doc that works out Herman Hospital or Ben Taub county hospital, both are tied with either Univ of Tx Med Sch Houston and the other with Baylor Med Sch.
Good luck !
Don’t be afraid. Push those assholes until they give you a diagnosis.
So it took her doctor to tell her what she already new herself why wouldn’t she tell her oncologist that she new something had been wrong and that she had been back and forth to the doctors. I don’t understand how people can be so patient with doctors if I need something done I demand it it’s my life at the end of the day. If you have been suffering with something debilitating for more than say 3 months and your doctors not listening go to another doctor or another doctors office or the hospital or even have private tests. It’s so important not to just take a doctors word on things they don’t know what’s going on inside your body from just looking you over. You could be the statistic of people who unfortunately get cancer and doctors never have that in there mind for some strange reason there’s always the saying “your to young” it infuriates me because no one is to young for cancer and young people get cancer every day just because something is rare doesn’t mean it’s non exitent!
Thank you from the bottom of my heart for your video!! I have read so many posts from people with "good" genetics and felt so lonely and doomed. Finally, I have hope hearing about someone with genetics like mine expressing my own emotions. Thank you.
I have absolute myelocytes in my blood but my WBC is normal.
I have blurry vision outbreaks of hives .fatigue hives itchiness i have all the symptoms today I'm gunna call my Dr x
how ? what blood markers 3 years prior ?
What was your initial white blood cell count? What number got their attention? Mine is 14,000 with no alternate infection. My doctor didn't seem concerned, so I was asked to retest my blood in 3 months and review with him. My red blood cell count is also very low, again: he wasn't concerned. Just curious if I should have this escalated. I'm 52 and a smoker. Thank you.
I would check into it. For sure. Good luck!
Your white cell is high, do a mielogram quickly
I have CLL
So what did she find in her medical records that was abnormal 3 years ago?? I don’t find this helpful.
Most likely her white blood count was high previous years.
Her white blood cell counts
That's you in the puzzle if so how did they but you in the puzzle how did they put your picture in the puzzle? Hope you're doing well how are you doing right now how's your cancer? I'm sick I have covid-19 sore throat stuffy nose too. Feels like a cold. Not too severe for me. I hate being sick I hate covid. It's my first experience with covid 2023
what blood test can you get with a finger stick
Glucose (blood sugar), maybe a couple others. Type your question into Google.
It sounds like kaiser was a good fit for her.
Anyone have withi normal range wbc count and have leukemia?
Your funny a Demon in that eye. I have had injection in eye for cataracts. Not bad at all for that just to numb it.
Different type/location of injection and different condition. Not same at all.