Yes! You hit the nail on the head. The fear of collapsing is on my mind 24hours a day, 7 days a week. I fear going anywhere by myself and being alone. This shit is torture.
I won’t go on hikes by myself or work out in an empty gym. PVCs really effect quality of life. I just sent my MD an email about trying a beta blocker. Frustrating trying to figure this out.
I feel every PVC too, I swear I can sometimes tell when I’m going to get one too, this weird feeling in my chest, it’s like I can think myself into a pvc or bigeminy pattern
I’m in the middle of the the battle now too! PVCs really effect one’s quality of life…I get right in the lower throat too…I’m also down 20lbs as well and still have 60lbs to go! Wish me luck 🍀 Thank You for your videos Steve! ❤️
Hi all, I'm a Registered nurse (31 years now with cardiac experience) and I too am having PVC's. I'm 62 now. I recall PVC's starting in my 30's but only happening rarely, increasing little by little over the years. Once in my 30's I had ventricular trigeminy while working in the ICU. I got dizzy but it stopped. Man that scared me. I think anxiety definitely plays a role, but for me I have low thyroiditis caused by an autoimmune disease called Hashimotos. I think I also have a gastro cardiac connection and a low vagus nerve tone. Possibly a histamine sensitivity involved. None of these things can be detected by the standard tests cardiologists do which is why I'm done with cardiology. I'm not going to go into debt while they do their expensive tests which will determine nothing! I would suggest to others what has helped me: lose weight, avoid foods that make your heart race, get mild exercise if you can tolerate it, get sunshine without the cancer causing chemicals, eat vitamin d foods (I'm on ketovore), try to get enough sleep, eat enough salt (my sodium is low normal) get enough electrolytes (just the right amount not too much or too little) and work on your breathing when the PVC's start. I've found that deliberate breathing helps sometimes. Pray. I won't charge one red cent for that advice. Hope it helps. Check with your own PCP about these things before implementing them. I'm not a doctor but I know what it's like to go through this.
I've had the same problem for awhile now. I'm 47 and had a fixation on my heart for 25 years. Having a health anxiety can be a huge factor in having PAC/PVC. Your heart is apparently not the culprit. I can see in your video how distressed you are, the mind controls the body. Getting active, going for walks, relaxing and reminding yourself that your heart is ok, and it's been tested more than most peoples hearts ever have. Remind yourself you have a clean bill of health on your heart. Losing weight, walking, eating better and relaxing will do wonders for you. Just taking from my personal experience with these for years. And for me the anxiety, a hiatal hernia/feed and walking and losing weight made the difference. Hope this helps you, as you said you are not alone.
I’m always scared! And I feel you. I live with PVC’s and I feel everything you’re saying. I hate leaving the ER/Doctors/Cardiologist knowing that it’s just going to happen again. I know something’s wrong with me. But I’m tired of going to the ER just for them to say “You’re fine, come back if symptoms get worse”. But honestly, watching your videos calms me down a lot! I just want to be normal again, and not always thinking “I’m going to die”. There has to be a cure… medications are the worse for me.
I feel your pain I’ve been to the ER so many times due to PVCs I get into this bygimeny rhythm , and then I’ll go into trigeminy then I’ll get them like every 15 to 20 beats then it’ll go back to normal sometimes for 30 minutes or more and then I start getting that little rhythms again , it’s ruining my life I’m miserable Sucks !!! 😫
I love all of your videos thank you so much. I feel exactly the same as you, and I ask myself the same questions - it’s like I’m pushing for someone to tell me I have something horrible when the very thought is what makes me 1000 times worse
Wow. I relate to everything you've said in this video. Those thoughts are always in the back of my mind. Have been for years. I have cardiophobia thanks to the pvcs!
I have pvcs anxiety disorder and depression. I’m. 59 have occasional since I was 20. My pvcs are worse now going to see my cardio tomorrow. You’re an artist also. My cardio always tells I feel everything because I’m extra wired. I just wish I didn’t feel them
Just found your series, this is the 2nd I'm watching (living with PVCs was the first) and I'll be watching all you've posted. The first 20 seconds of this monologue brought me to tears (and I don't cry often). I've been dealing with these feelings (and PVCs) for the last few months, and its awful. Nobody has ever explained things as straight forward and honest as you just have, and the people I've confided in give me the 'you're a hypochondriac' treatment, which doesn't help. Thank you so much for making these videos. I've felt so all alone and been hard on myself (buying in to the hypo commentary) and it really, REALLY helps to know I'm not alone and this experience (and the feelings) are not just me being a whackadoodle. I'm really sorry you and others go through this. It sucks, I know. Congrats on the weight loss and dietary changes - that's really impressive. I'm working on that now and it's tough to change habits (especially when we're in the latter part of our 4th decade!). Kudos, and again - heartfelt (pun intended) thanks for these videos.
Zenyatta: Thanks for your wonderful post! I appreciate your kind comments about the videos and channel. It's good to know that folks are getting something out of them! That was my hope! Keep coming back!
Omg I can relate to everything you said with always wanting someone around, it's debilitating, my last attack I called an ambulance they did ecg my ecg was abnormal unconfirmed ventricular tachycardia. Hospital did ecg said everything was normal bloods,xrays, ecg my heart rate was 140bpm, I'm 38 year old female , i wouldn't wish this on my worst enemy. I so feel your pain
I appreciate this video, you have no idea. I feel the exact same way as you. I feel every single one. Although I haven’t had all your tests, but have been to the ER several times, heart monitors put on etc. All telling me it’s good. You have no idea how what you have said in this video is the EXACT same way I feel. My gawd I thought I was alone in my thinking. Thank you for this video, you have no idea how much this has helped me .
Just wanted to post an update a year later. Stress was my main trigger for my heart going wonky. Continually living in the “fight or flight” mode. Since I took on a new position in my job where I can manage my stress levels, my irregular heart beats have become more manageable and less frequent. Not saying stress is a trigger for everyone, but it was mine! Fingers crossed!
i was put on beta blockers for svt's but i too feel terrible blood presser get low and my heart rate dips below 60bpm which isnt so bad but its never that low ever i usually have a higher resting heart rate between 70 and 80 bpm taking the beta blockers almo made me have dizzy spells and and just uneasy
I have been thru all of this, in the long run I evolved into Afib. I just had a cardiac ablation for the Afib it has fixed everything no more crazy heart beats. I am pretty sure you can have an ablation for the Issues your having.. It was done in the hospital spent one overnight. It was not bad at all well worth it check it out with your Cardiologist.It started at 30 years old I'm now 66 don't suffer as long as I did..
Craig: I wish my doctors agreed with you, but they will not do the ablation. Maybe in the future when they get bad again, but right now they won't. Thanks for the post!
Hi! I get the odd one or two every day. When I’m going through a ‘flare up’ I get pvcs every other beat in bigeminy, this can last for 30 seconds but feels like forever! I normally can get about 15/20 minutes of relief before the next wave! With me now I barely get isolate pvc’s they are almost always in bigeminal pattern but it’s enough to send a warm course of adrenaline throughout my body and put me into a state of alarm every single time. When I’m going through a ‘flare up’ they can wake me from sleep and have me awake most the night - they’re the worst!
@@kellymyers3215 me too , i’m going through the same thing it’s horrible , I’ve been taking some antibiotics the last two days to get some dental work done next week and I think the antibiotics has caused mine to flare up , but I’m not 100% sure but that’s the only thing that’s really changed .
I’m so sorry to read this but remember they will pass and no harm has come to you yet! It sucks having to ride the wave when you are stuck in the midst of it all not really knowing when you’re going to get back to ‘normal’ but mindset and also acceptance is so important. They really wreak havoc on my mental health when I have reoccurring episodes consistently over the course of days/weeks, I’ve noticed the worse my mind is the worse I feel the sensations are and how my body reacts to them and how I feel about them. Sending you lots of love!
i been there done that! noting was done! except for ressurance by my interne medicine doctor as long as u get a normal acho cardio test back ur fine dont worry about it dont expect the doctors to do more, from what they hv already done for you! bec its not in there control! not yours either.. it is wt it is like every thing else tc
Hi Steve I hope that you are feeling okay, are your pvcs still bad? I'm going through some bad insomnia right now, and I believe that makes me feel the pvcs. I'm 51 years old , jersey guy that has alot of health anxiety. I'll keep you in my prayers God Bless You Mike
Michael: Sleep issues have been linked to increases in PVCs. Dr. Gupta talks of one patient who was having thousands, and they were able to cut them drastically once they found he had sleep apnea and was put on CPAP. Check out his videos; I'm not sure which one it was. I'm doing pretty good right now! Thanks for asking. My PVCs are under control. Yes, I still have occasional flare-ups but they are pretty good. Thanks for the post and asking about my PVCs.
Sleeplessness is a monster sometimes. With me, the more my sleep is interrupted, the more PVCs I can have. Not pleasant. I hope that the betos work out for you and give you some relief. Let me know how you do on them. Very curious! Good luck!
Steven Spears they seem to be working pretty good but i know i can also do good without them dont want to be on them forever just until i feel better once i do ill slowly get off them just like these PVCs came one day they will leave my friend we just cant keep thinking about them we have to slowly think that they will one day be gone
Thanks for the videos. I am a marathon runner and my fastest time is 3 hours 19 mins. I was terrified when I first experienced PVC. But the funny thing is I actually feel most comfortable while I am running and I don’t feel any PVC. I only feel it when I am at rest. Anyway, I guess not much I can do but I will try to make some lifestyle changes, such as less caffine.
Thanks for asking, Gabriel! I made some lifestyle changes and I also had traditional Chinese herbal medicine. I would say my condition has improved quite a bit though I still have some bad days occasionally.
I think you should get referred to a new electrophysiologist- one who will do the ablation. Find a new primary if you have to but get it tabulated and fixed maybe?
I know exactly what you mean about feeling like you need someone around you all the time just incase.. Is there a way we can chat. I could really really do with speaking to someone going through the same thing as I am. Please reach out of you read this
Hello Rachel, were you able to find away to speak with Steven? I do too feel that speaking with others that are going through similar or identical situation as we are, would help
Hey Steve.. I feel for you man! Google Dr Stephen Sinatra: Calming premature ventricular contractions. Also check out his book "Metabolic Cardiology". See if any of that makes sense to you or better still arms you better in your struggle. Peace!
Certainly there are something dont working as expected. The heart have a circuit and on some place it have a fail. Bad conduction or bad isolation. The medics need to discover how to fix that. I still have a lot of PVC (sometimes one for each 50 pulsations). Obviously my heart have a damaged circuit on some place. The question is how to repair that.
The problem you are circling in the video is that increased PVC's overlap with real deadly issues, some which develop over time with your risk factors, and so if you have "benign" ones it makes it impossible to differentiate a real issue happening, and thus your logical mind tells you to be extra vigilant. Logical anxiety. Logical anxiety is the worst kind of anxiety, because if your intelligent, you cant stop being anxious about those things because its rational to be worried about them.
Yes! You hit the nail on the head. The fear of collapsing is on my mind 24hours a day, 7 days a week. I fear going anywhere by myself and being alone. This shit is torture.
I won’t go on hikes by myself or work out in an empty gym. PVCs really effect quality of life. I just sent my MD an email about trying a beta blocker. Frustrating trying to figure this out.
I feel every PVC too, I swear I can sometimes tell when I’m going to get one too, this weird feeling in my chest, it’s like I can think myself into a pvc or bigeminy pattern
How many of them do you have in a day ?
I feel every single one of them no matter how hard or how light they are
I’m in the middle of the the battle now too! PVCs really effect one’s quality of life…I get right in the lower throat too…I’m also down 20lbs as well and still have 60lbs to go! Wish me luck 🍀
Thank You for your videos Steve! ❤️
I'm with you! 100%. I've had every test that you can name, including the very invasive heart cath.
Hi all, I'm a Registered nurse (31 years now with cardiac experience) and I too am having PVC's. I'm 62 now. I recall PVC's starting in my 30's but only happening rarely, increasing little by little over the years. Once in my 30's I had ventricular trigeminy while working in the ICU. I got dizzy but it stopped. Man that scared me. I think anxiety definitely plays a role, but for me I have low thyroiditis caused by an autoimmune disease called Hashimotos. I think I also have a gastro cardiac connection and a low vagus nerve tone. Possibly a histamine sensitivity involved. None of these things can be detected by the standard tests cardiologists do which is why I'm done with cardiology. I'm not going to go into debt while they do their expensive tests which will determine nothing! I would suggest to others what has helped me: lose weight, avoid foods that make your heart race, get mild exercise if you can tolerate it, get sunshine without the cancer causing chemicals, eat vitamin d foods (I'm on ketovore), try to get enough sleep, eat enough salt (my sodium is low normal) get enough electrolytes (just the right amount not too much or too little) and work on your breathing when the PVC's start. I've found that deliberate breathing helps sometimes. Pray. I won't charge one red cent for that advice. Hope it helps. Check with your own PCP about these things before implementing them. I'm not a doctor but I know what it's like to go through this.
I've had the same problem for awhile now. I'm 47 and had a fixation on my heart for 25 years. Having a health anxiety can be a huge factor in having PAC/PVC. Your heart is apparently not the culprit. I can see in your video how distressed you are, the mind controls the body. Getting active, going for walks, relaxing and reminding yourself that your heart is ok, and it's been tested more than most peoples hearts ever have. Remind yourself you have a clean bill of health on your heart. Losing weight, walking, eating better and relaxing will do wonders for you. Just taking from my personal experience with these for years. And for me the anxiety, a hiatal hernia/feed and walking and losing weight made the difference. Hope this helps you, as you said you are not alone.
I’m always scared! And I feel you. I live with PVC’s and I feel everything you’re saying. I hate leaving the ER/Doctors/Cardiologist knowing that it’s just going to happen again. I know something’s wrong with me. But I’m tired of going to the ER just for them to say “You’re fine, come back if symptoms get worse”. But honestly, watching your videos calms me down a lot! I just want to be normal again, and not always thinking “I’m going to die”. There has to be a cure… medications are the worse for me.
Well said, I suffer the same with PVCs and find Steve and York Cardiology very comforting
I feel your pain I’ve been to the ER so many times due to PVCs I get into this bygimeny rhythm , and then I’ll go into trigeminy then I’ll get them like every 15 to 20 beats then it’ll go back to normal sometimes for 30 minutes or more and then I start getting that little rhythms again , it’s ruining my life I’m miserable
Sucks !!! 😫
I love all of your videos thank you so much. I feel exactly the same as you, and I ask myself the same questions - it’s like I’m pushing for someone to tell me I have something horrible when the very thought is what makes me 1000 times worse
Dude. I went on keto and it helped me tremendously.
Wow. I relate to everything you've said in this video. Those thoughts are always in the back of my mind. Have been for years. I have cardiophobia thanks to the pvcs!
ive seen this video many times last year 2022 how you diong now?
I have pvcs anxiety disorder and depression. I’m. 59 have occasional since I was 20. My pvcs are worse now going to see my cardio tomorrow.
You’re an artist also. My cardio always tells I feel everything because I’m extra wired.
I just wish I didn’t feel them
Just found your series, this is the 2nd I'm watching (living with PVCs was the first) and I'll be watching all you've posted. The first 20 seconds of this monologue brought me to tears (and I don't cry often). I've been dealing with these feelings (and PVCs) for the last few months, and its awful. Nobody has ever explained things as straight forward and honest as you just have, and the people I've confided in give me the 'you're a hypochondriac' treatment, which doesn't help. Thank you so much for making these videos. I've felt so all alone and been hard on myself (buying in to the hypo commentary) and it really, REALLY helps to know I'm not alone and this experience (and the feelings) are not just me being a whackadoodle. I'm really sorry you and others go through this. It sucks, I know.
Congrats on the weight loss and dietary changes - that's really impressive. I'm working on that now and it's tough to change habits (especially when we're in the latter part of our 4th decade!). Kudos, and again - heartfelt (pun intended) thanks for these videos.
Zenyatta:
Thanks for your wonderful post! I appreciate your kind comments about the videos and channel. It's good to know that folks are getting something out of them! That was my hope!
Keep coming back!
I get the same, it’s a fucking nightmare, every pac makes me jump and wonder if I’m going to go into SVT/tachycardia
Omg I can relate to everything you said with always wanting someone around, it's debilitating, my last attack I called an ambulance they did ecg my ecg was abnormal unconfirmed ventricular tachycardia. Hospital did ecg said everything was normal bloods,xrays, ecg my heart rate was 140bpm, I'm 38 year old female , i wouldn't wish this on my worst enemy. I so feel your pain
I am 36 year old female with 35% pvc's and it is a nightmare. I am always scared of dying, leaving behind two toddlers
@@hargun3062 at 35% have they suggested an ablation? Do you know what is triggering the high burden of pvcs ?
I feel ya, bro. I go through the same exact stuff. No one understands what it's like until they've had them.
I appreciate this video, you have no idea. I feel the exact same way as you. I feel every single one. Although I haven’t had all your tests, but have been to the ER several times, heart monitors put on etc. All telling me it’s good. You have no idea how what you have said in this video is the EXACT same way I feel. My gawd I thought I was alone in my thinking. Thank you for this video, you have no idea how much this has helped me .
Just wanted to post an update a year later. Stress was my main trigger for my heart going wonky. Continually living in the “fight or flight” mode. Since I took on a new position in my job where I can manage my stress levels, my irregular heart beats have become more manageable and less frequent. Not saying stress is a trigger for everyone, but it was mine! Fingers crossed!
How did u get rid of yours
Have you had a Lexi Scan done yet?
i was put on beta blockers for svt's but i too feel terrible blood presser get low and my heart rate dips below 60bpm which isnt so bad but its never that low ever i usually have a higher resting heart rate between 70 and 80 bpm taking the beta blockers almo made me have dizzy spells and and just uneasy
Thanks, for making these videos you are a God sent
Great video i feel your pain
I have been thru all of this, in the long run I evolved into Afib. I just had a cardiac ablation for the Afib it has fixed everything no more crazy heart beats. I am pretty sure you can have an ablation for the Issues your having.. It was done in the hospital spent one overnight. It was not bad at all well worth it check it out with your Cardiologist.It started at 30 years old I'm now 66 don't suffer as long as I did..
Craig:
I wish my doctors agreed with you, but they will not do the ablation. Maybe in the future when they get bad again, but right now they won't. Thanks for the post!
Beta blockers made my breathing terrible and it was horrible because that felt like the only solution I had to stop these pvc’s
How many do you have a day or how many do you have in like five minutes .
Hi! I get the odd one or two every day. When I’m going through a ‘flare up’ I get pvcs every other beat in bigeminy, this can last for 30 seconds but feels like forever! I normally can get about 15/20 minutes of relief before the next wave! With me now I barely get isolate pvc’s they are almost always in bigeminal pattern but it’s enough to send a warm course of adrenaline throughout my body and put me into a state of alarm every single time. When I’m going through a ‘flare up’ they can wake me from sleep and have me awake most the night - they’re the worst!
@@kellymyers3215 me too , i’m going through the same thing it’s horrible ,
I’ve been taking some antibiotics the last two days to get some dental work done next week and I think the antibiotics has caused mine to flare up , but I’m not 100% sure but that’s the only thing that’s really changed .
I’m so sorry to read this but remember they will pass and no harm has come to you yet! It sucks having to ride the wave when you are stuck in the midst of it all not really knowing when you’re going to get back to ‘normal’ but mindset and also acceptance is so important. They really wreak havoc on my mental health when I have reoccurring episodes consistently over the course of days/weeks, I’ve noticed the worse my mind is the worse I feel the sensations are and how my body reacts to them and how I feel about them. Sending you lots of love!
@@kellymyers3215 Thank you , God bless 🙏🏻🙏🏻🙏🏻.
Great video!!!!
i been there done that! noting was done! except for ressurance by my interne medicine doctor as long as u get a normal acho cardio test back ur fine dont worry about it dont expect the doctors to do more, from what they hv already done for you! bec its not in there control! not yours either.. it is wt it is like every thing else tc
Supra Ventricular Tachycardia is dangerous are on any meds for that?
Hi Steve
I hope that you are feeling okay, are your pvcs still bad? I'm going through some bad insomnia right now, and I believe that makes me feel the pvcs.
I'm 51 years old , jersey guy that has alot of health anxiety.
I'll keep you in my prayers
God Bless
You Mike
Michael:
Sleep issues have been linked to increases in PVCs. Dr. Gupta talks of one patient who was having thousands, and they were able to cut them drastically once they found he had sleep apnea and was put on CPAP. Check out his videos; I'm not sure which one it was.
I'm doing pretty good right now! Thanks for asking. My PVCs are under control. Yes, I still have occasional flare-ups but they are pretty good.
Thanks for the post and asking about my PVCs.
Do u take Magnesium and do u exercise daily? it helps me
The worst thing is the fear they give us and the sleeplessness im going on betablockers for now then get off them to see how i feel after the meds
Sleeplessness is a monster sometimes. With me, the more my sleep is interrupted, the more PVCs I can have. Not pleasant. I hope that the betos work out for you and give you some relief. Let me know how you do on them. Very curious! Good luck!
Steven Spears they seem to be working pretty good but i know i can also do good without them dont want to be on them forever just until i feel better once i do ill slowly get off them just like these PVCs came one day they will leave my friend we just cant keep thinking about them we have to slowly think that they will one day be gone
Thanks for the videos. I am a marathon runner and my fastest time is 3 hours 19 mins. I was terrified when I first experienced PVC. But the funny thing is I actually feel most comfortable while I am running and I don’t feel any PVC. I only feel it when I am at rest. Anyway, I guess not much I can do but I will try to make some lifestyle changes, such as less caffine.
How did it go?
Thanks for asking, Gabriel! I made some lifestyle changes and I also had traditional Chinese herbal medicine. I would say my condition has improved quite a bit though I still have some bad days occasionally.
I think you should get referred to a new electrophysiologist- one who will do the ablation. Find a new primary if you have to but get it tabulated and fixed maybe?
How many do you get a day
I know exactly what you mean about feeling like you need someone around you all the time just incase.. Is there a way we can chat. I could really really do with speaking to someone going through the same thing as I am. Please reach out of you read this
Hello Rachel, were you able to find away to speak with Steven? I do too feel that speaking with others that are going through similar or identical situation as we are, would help
Hey Steve.. I feel for you man!
Google Dr Stephen Sinatra: Calming premature ventricular contractions. Also check out his book "Metabolic Cardiology". See if any of that makes sense to you or better still arms you better in your struggle.
Peace!
Certainly there are something dont working as expected. The heart have a circuit and on some place it have a fail. Bad conduction or bad isolation. The medics need to discover how to fix that.
I still have a lot of PVC (sometimes one for each 50 pulsations).
Obviously my heart have a damaged circuit on some place.
The question is how to repair that.
I’ve counted 16 in a minute, they suck so bad.
The problem you are circling in the video is that increased PVC's overlap with real deadly issues, some which develop over time with your risk factors, and so if you have "benign" ones it makes it impossible to differentiate a real issue happening, and thus your logical mind tells you to be extra vigilant. Logical anxiety. Logical anxiety is the worst kind of anxiety, because if your intelligent, you cant stop being anxious about those things because its rational to be worried about them.