Hey Steve tell me how you came off of lorazepam ? Did you take it every day and how many milligrams did you take ? And what was the timeline of withdrawals because I know you had to have withdrawals if you were taking it any amount of time over to three months . Help me out please , I just wanna hear your story how you doing I am seeing a doctor for the lorazepam but I don’t know if I trust him yet .
I love gardening and landscaping and was very active leading up to my ablation (was on Amioderone leading up to it) I was digging out a patio and bringing in foundation and laying the patio slabs and finished it 3 days before I went to London on a train, all by myself, had the ablation and came back home on the train, by myself, the day after the ablation. After the recovery period I couldn't even mow the lawn, this set me off, gradually got worse week by week where I couldn't even brush my teeth without setting me off. I stopped the Amiodarone 1 month post and this started to come out of my system and that's when I started declining around 2 months post ablation. 6 months post I'm back on a previous drug that failed Propafenone which has so far really helped, still loading them in, had some slow breakthrough A-fib still. Review in Jan 2023 and I feel I really want a touch up ablation (2nd) I will beat this MOFO
Hi from the uk 🇬🇧 I eat chocolate when my pvcs are better knowing it could trigger them again but I treat myself to chocolate still, I don't do much I enjoy and lose out on alot due to pvcs so abit of chocolate is my risk
Caffeine and anxiety are my triggers. I've cut back on the caffeine, yes I should quit but I haven't yet. I'm an anxious person even though I try not to be. I have a lot of pvc's and svt's of which both make me feel wore out. Long story short, I've tried meds and talked about ablation. Meds make me feel worse. They make my chest feel tight and that's bad because I feel short of breath a lot to begin with. I keep going every day because it doesn't matter if I sit or if I'm up doing things, I still feel bad. People that don't have them do not understand how debilitating they are. I appreciate you speaking out about them. Where I hate that you also deal with them, it's nice for someone to be able to validate how they make me feel.
I haven’t had any is so long, but now they’ve come back. Caffeine will definitely trigger mine, but I can go months without an issue. Doesn’t make any sense. I am taking Magnesium citrate and it helps.
I'm 27 pvcs started 6 months ago for me it went from having 10 a week to having 30 a day I'm on beta blocker it doesn't help its very very bad been to er 100 times its definitely not anxiety. Life is very bad if u have pvcs everyday
Have you ever considered a catheter ablation? I have been diagnosed with Wolf Parkinson’s White and it has caused PVCs… i get about 8 PVCs every minute. I am scheduled to get a catheter ablation next month and very scared, but hopefully it will take it away. However, to answer your question… I have been a weed smoker my whole adult life.. as a night time ritual to get me to sleep. I have noticed the most times I get PVCs is when I smoke weed. I don’t drink alcohol, and nicotine and caffeine actually doesn’t make my heart act up at all (I vape and only drink one cup off coffee in the morning) Why do I keep smoking weed when I know that’s what makes me PVCS the worst? Because it makes my mind still disappear from what’s actually happening. Still trying to quit smoking but it’s very hard. Thanks for all your videos… I have watched every one ❤️
I get roughly the same amount of PVCs as you but don’t have WPW. I totally sympathize with you being worried/scared for the ablation, but know that it is an extremely safe procedure that 99% of people come out of totally fine. Please let us know how the ablation goes 🙏
I suffer with pvcs everyday, 😩I don’t drink alcohol anymore, don’t smoke, have a good diet and try not to have caffeine but sometimes when I’m out I’ll have a caffeinated coffee ( the temptation is too strong!) and I will suffer later. I’m not sure if I get more pvcs because I’m anxious that I’ve just had a caffeinated coffee or it’s the caffeine itself. 😆
Good you’re back mate. We all no how scary these things are and can be. Seems to be only a small community but speaking to someone and hearing from someone who genuinely understands them on a level is a breath of fresh air. It’s alright to have the papers to say these things are benign and don’t cause harm. But to physically live with them is demobilising. The constant feeling of death whispering in your ear. I suffer with 100’s a day, I’m 28. I train everyday and I eat clean take vits etc. over eating is defo a trigger for me that I sometimes take the risk on I suffer with chronic anxiety and have a constant feeling of the breaks are on but the foots on the accelerator sort of thing and these defo don’t help.. I’ve always put my eptopics down to the constant stream of adrenaline pumping through me. I hope you’re doing good pal, I’m looking forward to hearing what’s been helping you with them. Take care
Still struggle with shortness of breath. My left ventricular wall is borderline increased. A few months ago it was the right side now the right ventricle is fine and now it’s normal and the left is. I got ablated in December and had avrt on the right side. Still had pvcs for 6 months to where I was calling Amed every other day because I was having svt and shortness of breath and pvc runs as well. Finally I got ablated again and they made a transeptal hole in my heart to the left side and found I had afib. They ablated the pulmonary veins because that’s where afib starts and now I’m three weeks in on blood thinners and amiodarone for the arrhythmias and also on a beta blocker metroprolol. I have anxiety pretty bad and thought that was the answer for years now I know it just makes them worse. It doesn’t cause them. I feel better and have a lot less pvcs since surgery but still have flutters. What’s shitty is the doctor said that’s pretty much all they can do. They’ve looked at my heart extensively and besides the small wall increase my heart is fine but yet I’m so short of breath but I can breathe deeply with my lungs. I don’t have a cough or mucus and just got a checkup last week and the doctor said I sound good. So basically I’m still in the same situation as I was before. Just a little better. Hopefully healing from surgery they will get even better. Pvcs do suck. For me they have controlled my life since svt started 5 years ago. What’s messed up is they paced my heart and couldn’t what so ever cause my svt but yet I caught it on the ekg in the ambulance and converted out blowing into a syringe. But yet they found afib which I never for a minute thought I had. Hope all is well with you Steve. Please keep making more videos.
🙏🏻🙏🏻🙏🏻. Prayers coming your way. You’re not alone with all this crazy heart stuff . I’ve had two cardiac ablation’s one was for a fib which like you I didn’t think I had . My first ablation was for that then PVCs . It’s been about 130 days since I got my second cardiac ablation I’m on a two week heart monitor again and the last three days I’ve been having PVCs like crazy one after another , heart bigeminy trigeminy , I have no idea why it has got them so fired up . I try not to panic but when I start having really bad runs I can’t help but panic . 😫 .
There are certain foods that I love, but they ALWAYS trigger pvc's. I think I still try them every once in awhile because I might go for a few days or a week or two where my pvc's aren't so bad and so I think "maybe this time the reaction will be different". And sometimes it is......sort of. I might try that dish that makes me suffer, but for some reason on rare occasions I DON'T have pvc's soon after. So maybe I do it on the off chance that I might enjoy something that once brought me joy? Hope that makes sense, love the channel! Glad your back and doing ok!
I think most of my problems seem connected to the stomach and what I eat. I am not a smoker/drinker, nor do I do coffee... But I do love food. And more to the point some foods that I know will make my PVCs (and whatnots) worse. It is not like I can eat "just right" and be free, but if I eat the wrong things I will most often suffer. But here's the thing. When I have stayed away from temptation for a while, and I'm feeling a bit better... Weeeeeell, just one bite of this and one bite of that. How bad can it be? It'll be worth it! But sadly, no, it never is... So why do I do it anyway? I'm stupid, I guess!? ;) But also, I find it really hard to have to cut down on "everything" good.
Finally I have a clear picture of my heart condition. I have AIVR / VT from RBB, near HIS bundle. It caused in the past lot of PVCs, accelerated idioventricular rhythm and non sustained ventricular tachycardia with max hr of 180 bpm for max 18 second (I was hospitalized). I'm now in therapy with metoprolol 100 mg per day and about 0 PVCs for months. Fortunately this condition is benign, the only risk is cardiomyopathy induced by PVCs if the load is 20% but in my case I make about 0 PVCs so it's not a risk. I hope the issue will resolve by itself with time.
Has anyone try to sign up for Social Security disability because they cannot do a full day job . Due to PVCs , Bigeminy hours on hours , where you have to lay down because of it , then a person thinks there going to die . I’m talking like 45,000 PVCs in 24 hours , with taking medication for it ...
Glad you'll be making some videos again, Steve. I did a few of my own as well, and I always recommend your channel as well.
Awesome, thank you!
Hey Steve tell me how you came off of lorazepam ? Did you take it every day and how many milligrams did you take ?
And what was the timeline of withdrawals because I know you had to have withdrawals if you were taking it any amount of time over to three months .
Help me out please , I just wanna hear your story how you doing I am seeing a doctor for the lorazepam but I don’t know if I trust him yet .
I love gardening and landscaping and was very active leading up to my ablation (was on Amioderone leading up to it) I was digging out a patio and bringing in foundation and laying the patio slabs and finished it 3 days before I went to London on a train, all by myself, had the ablation and came back home on the train, by myself, the day after the ablation. After the recovery period I couldn't even mow the lawn, this set me off, gradually got worse week by week where I couldn't even brush my teeth without setting me off. I stopped the Amiodarone 1 month post and this started to come out of my system and that's when I started declining around 2 months post ablation. 6 months post I'm back on a previous drug that failed Propafenone which has so far really helped, still loading them in, had some slow breakthrough A-fib still. Review in Jan 2023 and I feel I really want a touch up ablation (2nd) I will beat this MOFO
Update, Propafenone gave me runs of VT so I had to flip back onto Amioderone
Comments are allowed now. Hit the wrong checkbox. :)
Hi from the uk 🇬🇧 I eat chocolate when my pvcs are better knowing it could trigger them again but I treat myself to chocolate still, I don't do much I enjoy and lose out on alot due to pvcs so abit of chocolate is my risk
Caffeine and anxiety are my triggers. I've cut back on the caffeine, yes I should quit but I haven't yet. I'm an anxious person even though I try not to be. I have a lot of pvc's and svt's of which both make me feel wore out.
Long story short, I've tried meds and talked about ablation. Meds make me feel worse. They make my chest feel tight and that's bad because I feel short of breath a lot to begin with.
I keep going every day because it doesn't matter if I sit or if I'm up doing things, I still feel bad. People that don't have them do not understand how debilitating they are.
I appreciate you speaking out about them. Where I hate that you also deal with them, it's nice for someone to be able to validate how they make me feel.
How many a day would you say you have ? And when you do start having them does it just scare you where are you just don’t know what to do ?
I had PVC and it was affecting my everyday life. My PVC is gone after I had ablation. That really changed my life
I haven’t had any is so long, but now they’ve come back. Caffeine will definitely trigger mine, but I can go months without an issue. Doesn’t make any sense. I am taking Magnesium citrate and it helps.
I'm 27 pvcs started 6 months ago for me it went from having 10 a week to having 30 a day I'm on beta blocker it doesn't help its very very bad been to er 100 times its definitely not anxiety. Life is very bad if u have pvcs everyday
Have you ever considered a catheter ablation? I have been diagnosed with Wolf Parkinson’s White and it has caused PVCs… i get about 8 PVCs every minute. I am scheduled to get a catheter ablation next month and very scared, but hopefully it will take it away.
However, to answer your question… I have been a weed smoker my whole adult life.. as a night time ritual to get me to sleep. I have noticed the most times I get PVCs is when I smoke weed. I don’t drink alcohol, and nicotine and caffeine actually doesn’t make my heart act up at all (I vape and only drink one cup off coffee in the morning)
Why do I keep smoking weed when I know that’s what makes me PVCS the worst? Because it makes my mind still disappear from what’s actually happening. Still trying to quit smoking but it’s very hard. Thanks for all your videos… I have watched every one ❤️
I get roughly the same amount of PVCs as you but don’t have WPW.
I totally sympathize with you being worried/scared for the ablation, but know that it is an extremely safe procedure that 99% of people come out of totally fine.
Please let us know how the ablation goes 🙏
I suffer with pvcs everyday, 😩I don’t drink alcohol anymore, don’t smoke, have a good diet and try not to have caffeine but sometimes when I’m out I’ll have a caffeinated coffee ( the temptation is too strong!) and I will suffer later. I’m not sure if I get more pvcs because I’m anxious that I’ve just had a caffeinated coffee or it’s the caffeine itself. 😆
May i ask do you have high blood presure aswell?
Good you’re back mate. We all no how scary these things are and can be. Seems to be only a small community but speaking to someone and hearing from someone who genuinely understands them on a level is a breath of fresh air. It’s alright to have the papers to say these things are benign and don’t cause harm. But to physically live with them is demobilising. The constant feeling of death whispering in your ear. I suffer with 100’s a day, I’m 28. I train everyday and I eat clean take vits etc. over eating is defo a trigger for me that I sometimes take the risk on
I suffer with chronic anxiety and have a constant feeling of the breaks are on but the foots on the accelerator sort of thing and these defo don’t help.. I’ve always put my eptopics down to the constant stream of adrenaline pumping through me.
I hope you’re doing good pal, I’m looking forward to hearing what’s been helping you with them. Take care
Still struggle with shortness of breath. My left ventricular wall is borderline increased. A few months ago it was the right side now the right ventricle is fine and now it’s normal and the left is. I got ablated in December and had avrt on the right side. Still had pvcs for 6 months to where I was calling Amed every other day because I was having svt and shortness of breath and pvc runs as well. Finally I got ablated again and they made a transeptal hole in my heart to the left side and found I had afib. They ablated the pulmonary veins because that’s where afib starts and now I’m three weeks in on blood thinners and amiodarone for the arrhythmias and also on a beta blocker metroprolol. I have anxiety pretty bad and thought that was the answer for years now I know it just makes them worse. It doesn’t cause them. I feel better and have a lot less pvcs since surgery but still have flutters. What’s shitty is the doctor said that’s pretty much all they can do. They’ve looked at my heart extensively and besides the small wall increase my heart is fine but yet I’m so short of breath but I can breathe deeply with my lungs. I don’t have a cough or mucus and just got a checkup last week and the doctor said I sound good. So basically I’m still in the same situation as I was before. Just a little better. Hopefully healing from surgery they will get even better. Pvcs do suck. For me they have controlled my life since svt started 5 years ago. What’s messed up is they paced my heart and couldn’t what so ever cause my svt but yet I caught it on the ekg in the ambulance and converted out blowing into a syringe. But yet they found afib which I never for a minute thought I had. Hope all is well with you Steve. Please keep making more videos.
🙏🏻🙏🏻🙏🏻. Prayers coming your way.
You’re not alone with all this crazy heart stuff . I’ve had two cardiac ablation’s one was for a fib which like you I didn’t think I had . My first ablation was for that then PVCs . It’s been about 130 days since I got my second cardiac ablation I’m on a two week heart monitor again and the last three days I’ve been having PVCs like crazy one after another , heart bigeminy trigeminy , I have no idea why it has got them so fired up . I try not to panic but when I start having really bad runs I can’t help but panic . 😫 .
There are certain foods that I love, but they ALWAYS trigger pvc's. I think I still try them every once in awhile because I might go for a few days or a week or two where my pvc's aren't so bad and so I think "maybe this time the reaction will be different". And sometimes it is......sort of. I might try that dish that makes me suffer, but for some reason on rare occasions I DON'T have pvc's soon after. So maybe I do it on the off chance that I might enjoy something that once brought me joy? Hope that makes sense, love the channel! Glad your back and doing ok!
I think most of my problems seem connected to the stomach and what I eat. I am not a smoker/drinker, nor do I do coffee... But I do love food. And more to the point some foods that I know will make my PVCs (and whatnots) worse. It is not like I can eat "just right" and be free, but if I eat the wrong things I will most often suffer.
But here's the thing. When I have stayed away from temptation for a while, and I'm feeling a bit better... Weeeeeell, just one bite of this and one bite of that. How bad can it be? It'll be worth it! But sadly, no, it never is...
So why do I do it anyway? I'm stupid, I guess!? ;) But also, I find it really hard to have to cut down on "everything" good.
Finally I have a clear picture of my heart condition. I have AIVR / VT from RBB, near HIS bundle. It caused in the past lot of PVCs, accelerated idioventricular rhythm and non sustained ventricular tachycardia with max hr of 180 bpm for max 18 second (I was hospitalized). I'm now in therapy with metoprolol 100 mg per day and about 0 PVCs for months. Fortunately this condition is benign, the only risk is cardiomyopathy induced by PVCs if the load is 20% but in my case I make about 0 PVCs so it's not a risk. I hope the issue will resolve by itself with time.
hi steve how u felling? hs ur cond effected ur qaulity of life? if so how bad?
hi steve! hw r u now
Has anyone try to sign up for Social Security disability because they cannot do a full day job . Due to PVCs , Bigeminy hours on hours , where you have to lay down because of it , then a person thinks there going to die . I’m talking like 45,000 PVCs in 24 hours , with taking medication for it ...
What is the discord?
i 2 have pacs i dont hv triggers