I want to cry! You're amazing. I had a stroke one year ago & I'm 25. Sometimes I'm depressed because of my life is done. You're making me hopeful again 🙏🏽
Don't give up... life changes for everyone but you must consider that you are young and have so much to offer...so using your talents you adapt to another way to work... I face the same challenge at 60 but goals are a good thing... attitude is truly everything...so make your goals and work them... there are people who will cheerlead you on...even I would be glad to... I met a gentleman in the hospital who is a Vietnam veteran... I befriended him and he became one of my inspirations to this day...he suran enemy set on trying to kill on an airstrip fence and I no where suffered anything like that so he became a focus of my hope... when you find a focal point latch on to it and share in it's power... you will get better and thrive...FOCUS !
I had it in my calf, it was a complete game changer. My left ankle was also rolling and I couldn’t flex my ankle due to spasticity. In the U.K. the treatment is free. I don’t have pain so can’t comment on that. It’s really helped do my exercises. I walk better, I no longer trip over my foot, and I can now bend my knee. I see one of the U.K’s leading MS neurologists and he recommended it 😊
Hope to start PT soon too here in the UK. Suffered stroke in August 2022.Hope it will be recommended for me too pain's and tightness on the left shoulder and fingers. Pains behind the left knee too. It stretches when trying to walk.. these videos are helpful.
I've been getting botox since 2015, about 6 months after my stroke. Then I stopped in 2017, started back up in 2019. Whenever I get them I use it as an opportunity to gain more control over specific muscles. I now have pretty much full control of my arm and walk pretty well. Example, when I first had my stroke my bicep was so tight it would pull my arm up a little bit. Now it doesn’t, so I think it’s a good tool if you put in the work.
I am a parcel quad. I have been getting botox injections for 2 years and I have had spasticity. It does seem to work on helping me flattened the feet. If someone doesn't work on the ancle and foot stretching then the benefit is minimal.
Botox has made a significant difference in the pain I’ve experienced from severe spasticity in my arm shoulder and leg - I don’t care if it’s making a huge impact on functioning, the pain reduction has been dramatic. You have to pair stretching and weight bearing exercise with it.
I started getting Bored last year. I had my stroke in 2018. I've tried oral meds for elasticity but to no avail. I use the Boots in my arm in conjunction with OT. I am diligently working on my walking and have made improvements through physical therapy and learning so much from this channel at home. Which was my first form of physical therapy outside of the hospital. For me, Boots is awesome for my hand. Especially for my thumb . 15 -20 minutes after getting the shots, (usually I get about 7 strategic shots) I begin to feel a little muscular pain. Most are done in my forearm and will feel it in my shoulder. I wish it did last longer. It usually wears off just before my 3 mos are up. I was reluctant at first that's why I opted for oral meds but caved in and glad I made the switch.
I'm so grateful I was led to this channel. Yes. I want this treatment in that I'm in Physical/Occupational therapy. I was healthy/physically active. Having experience a TIA stroke in 2023. Being in physical therapy I'm hopeful for muscle function. Manifesting a blessed positive outcome... HalleluYah!!!❤❤❤
Had my first botox treatment for my MS 2 weeks ago and it is amazing. So far I'm able to add this to my PTHERAPY and it's helping me to get walking again. There are a number of things I can now do. I keep keep an open mind as I am pretty confident things will only get better as long as I do my part!!!
I have Botox every 6 months. For 4 years. It enables me to exercise ( stretch ) my arm more easily. It has enabled me to wear an increasingly stretched splint on my hand, hopefully heading towards getting hand use back. Stretching and exercising is critical for weeks after the injection.
Hi Dr. Tara, I had a second botox treatment in Dec 2021, It helped greatly with the contracture I had in my wrist...it has also improved the flexibility of my fingers which were in a fist...the treatments also helped with my ability to wear a splint and see results with my hand, my doctor told me if I didn't do my exercises my hand and wrist would return back to contracture and clenched fist...I have an OT and PT that I work with twice a week in addition to home exercise...I had a stroke i Jan 2020, that left me with left side paralysis...so I am blessed with the ability to walk well with an AFO and fair use of my left arm to assist in carrying objects my focus now is my left hand and the fingers.
Blessings to you! Thank you for your wisdom. I was diagnosed with MS 20 years ago. For the last year and ahalf I have been unable to walk, but I am determined to regain my mobility! I am going for Botox. Fingers crossed! Thanks again XO.❤
Ever had your foot contorted due to spasm, at night for example, well imagine this pain all day, with every movement, for the reduction in pain alone, it is worth it
I had my stroke in 2019 and I've been receiving botox at Cleveland Clinic every 3 months since january 2020. It works well for me and I gain more control of my arm with every treatment. It allows me to put in the work so that I can maintain control and movement.
@Daniel Saucedo the goal is relaxing the muscles so you can manage to do stretching and exercise so you don't need the botox. I still get it done because my therapy isn't really possible without it. I have more control over my arm and hand with the botox.
I've been getting Botox into my spastic calves every 3 months. It's great! Really helps the muscle tightness and the injections themselves aren't painful.
I'm a 50 year old(nearly) American living in Japan. I've been living with impaired motion on my left side all my life since a stroke at 3 years old. My doctor in Japan recommended Botox and I just had the injection in my leg today. It made me drowsy at first. I'll try to comment in a few weeks as to the effects.
I had a massive double stroke in 2018 at 37. I’ve made significant improvements since then. I still have significant spasticity and weakness on my affected side. I asked my PT about Botox and they basically said I’d be trading having spasticity for foot drop until the Botox wore off. Thankfully I can use the VA for my rehab so if I choose to get Botox it won’t cost me anything and I will get rehab approved immediately as well.
Had my second Botox injection and things improve while doing PT and stretching. Give it a try its been painless be brave and hope for the best after 23yrs.of MS it's worth a try!!!
Tara Botox was helpful for the first couple of years with OT and PT but over time it has had no effect on my muscle tightness so I stopped injections and continued my work without it. My spasticity has increased over time (8 years) but the grind continues. Thank you for your insight and continued support 🙂
the last 2 times that I had botox physio was not offered or suggested but this time I will ask for pt and see I get any results this tim my biggest problem I see is the spasticity causes my foot to turn and suppinate
I've had years of botox and it helped so much. Its been 2 years now I haven't had to have it as the tone in my arm and fingers is improving on it's own . The botox injections are free in Australia and my physio and I believe we no longer need it which is very promising for me.
I had my brain haemorrhage in December 2015 and was first given Botox injections in my left arm about six months later, but my NHS physiotherapy sessions had ceased by then. The injections definitely relaxed my overactive biceps, so we’re useful. I continued having Botox injections for 3 years, but had to pay for physiotherapy sessions. As time passed, the length of time that the Botox was effective decreased and I finally stopped having them, as I assumed that I was developing immunity. My biceps are still tight, so my arm won’t stay down when I walk, but I stretch and do passive exercises every day, using a regime set by my physiotherapist. Luckily, I do not experience pain, but have not regained function in my left arm or hand.
Thanks for the video, Tara! I also appreciated reading through all the comments on everyone’s experiences! 🙏🏼 After my stroke (Sep. 2017), Botox was suggested as a consideration by an OT. I asked my MD who referred me to a rehab doctor who provides Botox treatments. The rehab doctor explained the pros/cons & we decided against it, in my case. We did try an oral medication, but I eventually decided it wasn’t worth it. Your video certainly helps me feel better about the decision we made. Thanks!
I had my stroke in May 2019 right before the country shut down. So I had a lull in PT and OT. Everyone PT and DO insisted I get Botox and it's benefits. I had about 4 injections and have not seen any benefits. I have noticed with the last injections I started having problems swallowing called the DO who said it was too early for that to happen. It started to affect other areas of my body .My last follow up with my DO it was whispered in my ear I would be on Botox for the rest of my life. At that point ,I stopped taking the shots. I feel much better . Still working to get back to normal though.
On May 26th 2018 I was involved in an ATV accident flipped over the handlebars and landed on my head and fractured some vertebrae in my neck. I now have two rods and 14 screws and a bruised spinal cord I am considered to be C2 to C 7 incomplete. I was basically a temporarily quadriplegic. First set of Botox injections was August of 2018 they hurt like hell but I continue to get botox injections every 3 months it is a slow process but it works. In September 2019 I had a baclofen pump installed to help aid in my walking. I now have the best of both worlds. With the increase of Baclofen reduced the clones that was developing in my body. Every 3 months I would get a a pump adjustment increase of Baclofen by about 15 to 20% and a couple of weeks after more Botox shots mainly in the arms that still hurts like hell but it still works. My Botox shots range from 15 to 20 shots every 3 months. Then in October 2020 after receiving my 100th shot I did not get any more pain I can feel it go into the muscle and no more pain. And mind you I'm still doing physical therapy and occupational therapy during this process. I am not in a wheelchair I am walking with a walker and a wheel Walker. In December of 2021, I started to get a reduced amount of Baclofen because I was starting to walk like a drunken sailor that's when you no you had enough Baclofen. Then in January of 2022 I had the guts to start walking around my bedroom without the Walker or the four-wheel Walker I am walking on my own! As of January 2023 I have a total of 255 Botox shots throughout my body. So for me Botox is a good tool to have to get me going. I hope this story helps influence others during their recovery.
I'm doing quite well I'm getting more use out of my right hand I can dress myself without any other assistance getting my socks on without a sock caddy and getting a shirt over my head without a use of a stick or a cane and also getting more Independence doing a lot better this year than what I was last year @@jadwigap3018
Namaste, yes I have been getting Botox since 2021 I have had improvement and also my multi specialist Botox doctor works hand in hand with my physical therapist so they can communicate on where I'm getting the botox it's usually in the quadricep if they're contracting or the hamstrings sometimes both and other muscles
Had a stroke (April 2021) at the age of 41. Spent 6 months in hospital. Had a course of Botox injections while in hospital (left wrist, arm, and leg)and another as an out-patient (left leg only) in December. Would recommend it if your doctor/specialist/consultation suggest it. It didn't do much for my arm, but the patient in the next bed to me notice how my foot would point down when I walk only a day later. On the second course, I felt the difference straight as I walked out of the treatment room and down the corridor back to the car. I'm in the situation of having a new AFO made, and I will be contacting the clinic this week to book another appointment for another course in my wrist and arm, but I know I'm going to have to develop a more intensive exercise routine with my physio. Still positive of regaining function back in my hand and arm, but I know it will be hard work and will take a long time. Thank you Tara for your videos, it really helped me in those first few months coming to terms with what happened to me. It was really tough as the lockdown rules in the UK meant I was not allowed to see any friends or family in those first few months.
I’ve had brain injury in 2016 and because of which I started feeling spasticity after 2-3 years in my right hand and right leg(side effects of brain injury). I tried to control it for 2-3 years but my hand wouldn’t open until I pull my fingers out with my left hand so I got Botox and it actually helped a lot but I didn’t use to go to PT daily because of which it’s getting bad and I have to increase the dose, now my right leg was in control till last year but then the condition started to get even worse and now my right foot rejects my body weight, I’m thinking to go for Botox in my right leg too. My advice would be to take Botox and to exercise each and everyday till you are alive. Share your experience if you got Botox in leg for Clonus.
The Xeomin (Botox) injections did gradually help reduce the spasticity in my hand, so it is no longer stuck in a fist. I did stretching while receiving the Botox to help accomplish this. Now I can focus on exercising my hand to hopefully regain some function. :)
Cervical spinal cord injury here. 30 years ago, I had an accident. I'm older now and have a job that has me sitting a lot. The cord lesion is "aging" faster than the rest of me, so my spasticity has progressively worsened due to all these factors. Botox has not been a magic pill, but it does allow me to have a fuller range of motion for a time, which allows me to have more beneficial (and less painful) physical therapy. It's an emotional boost to end the tug-of-war going on in my body. Less fatigue. Less pain. I understand it won't cure me, but it keeps discouragement at bay. I dislike muscle relaxers, so Botox has been really helpful.
I think I had about 3 treatments before my neurologist asked me if it did any good or not, it didn't so I quit receiving botox injections. My spasticity is in my left arm and shoulder. I've never had any pain other than during the numerous injections. I worked out with a 2lb weight after I got home from rehab, I began to move my fingers and gain enough strength to carry a heavy laundry basket. When I started getting botox, I lost strength and couldn't hold laundry basket. The only thing it did for me was make my arm feel lighter. Though in a way it sorta begs the question what is the purpose of exercising a paralyzed muscle? Is it even possible? I did notice that when I started more rigorous exercises I began having terrible nightmares which the neurologist said were seizures, so now I take seizure medications. Progress seems very slow though I've adapted somewhat. It's also not my dominate hand, fortunately. It's as if my spastic hand is able in a way do what my right hand can but in extremely slow motion, so yes I can release my grip, though I usually don't have the patience to wait and use my good hand to pry my fingers loose. Brain plasticity, yes, but it needs to find a place to store the info, so it likely finds a less efficient neurological path, accounting for the slowness, the ideal postion is in the area that is now dead. It's unlike starting from scratch like a baby, because a baby uses that part that I used which is gone for me. That's why the doctors can almost tell how you''ll likely be affected by what part of the brain is damaged. I think walking was easier to rehabilitate because unlike other primates, we don't use our feet like hands. I'm not sure if anything I said was scientific or just pure speculation.
Thank you so much for doing your videos on helping recovery from stroke! Re my experience with Botox, the only place to get Botox injections for spasticity treatment is 100 miles away. Back when I was living with family for the first 13 years after my stoke, who could drive me to the appointments, I DID get regular Botox injections. I did not see any helpful effect in regaining use (but honestly, I really did not work diligently on my recovery on my own at home like I should have) But the benefits of the Botox injections became VERY apparent after I could no longer get them when my Physiatrist retired. After going without the regular Botox injections in my arm, my useless arm became stiff snd contracted. After a few years, when I realized that my arm had become contracted after not being able to get the Botox injections, I contacted the hospital to see if they had since acquired a new physiatrist skilled in Botox injections to treat spasticity. They had, so I was able to get a couple more treatments and a prescribed set of PT sessions, but by that time my arm had become so stiff and contracted that within 30 after leaving each PT stretching session, my arm stiffened right back up. I was finally able to get moved into my own apartment in town again, so I had to seize that opportunity while I could. While I LOVE having my own place again, the biggest downside of living independently is that I no longer have a driver available to drive me to Botox appointments 100 miles away, so once again I have been going without Botox injections. Summary of my personal experience: Botox is very effective and well worth the pain and expense to PREVENT developing spasticity and I wish that I lived in the city which it is available in, so that I could get it regularly again.
I have spasticity in my arm and hand. I got Botox in my pectoral and below my elbow on two sides. I had an injection in my hand to loosen my fingers and allow my thumb to straighten away from my palm. I had no significant changes in my arm or elbow. In my hand my thumb straightened and moved away from my palm which allowed me to do therapy on my hand.
Tara,I suffered a severe stroke in 2007; I ave had Botox treatments twice many years ago!yes I found that it reduced my spacicity in my hand! My nurologist that I had at the Tim suggested that I continue; but it is only temporarily and what is okay in the world today,oilfield be tomorrow plisen that will effect you possibly in a very negative manor! Doctors are certainly much more inteligent, and educated than me but I am wary of the long term affects of something that does have the potential of long ter negative side effects. I like your conservative approach of stretching and exercise. My stroke occurred at work so everything was coved,no I am officially retired,do not have nothing other than Medicare for insurance and I am not financially able to afford more Botox even if I wanted to! My problem is that I worked hard earlier and made good progress but now; it I that I am resting on my laurels of my past progress, I surmise that I need to dig deep to find my motivation or find something or someone to kick start me! Attitude, Attitude, Attitude!
Hi Tara I had a stroke in 2021 Jan 9. I tried Botox treatments for my hand and received six shots in my arm. After a week my hand was doing better. But it did not last about 30 to 45 days, I received a second round of shots 12 shots in the arm one time , that was very painful, I was under physical therapy at that time . . The problem is does not last long after one to two months.. that is correct of tug of war, my spasticity My spasticity is quite strong. I am 73 yrs. Old. I do my stretching every day . I have limited use of my right hand.
I had it in my affected hand and it worked briefly so that I could stretch the fingers it lasted on one finger the pinky if your spasticity causes pain it will relieve it ( doc never found the best spot for the thumb I no longer get it
I have been going for 1 year for Botox. It helps. I never complain when getting the needles. They do not use freeze spray. They always are surprised I never complain. It is what it is. I am one tough dude I suppose. $1250 each time. Peanuts. I just pay. I stretch and exercise daily. Weekly massages.
Thank you so much Dr. Tara Tobias for sharing this vital information regarding Botox treatment. My neurologist suggested for the same next week, I'll definitely share and comment my experience. Once again thank you so much 😊
so Botox is a good assist to spasticity and contractures, that may better help along with PT or ot? Post stroke for myself it was difficult to recover with PT and ot my hand was extremely contracted and my Achilles tendon was in high tone so regular stretching was ineffective also I believe that hyper tone on my affected side became foot drop?
Have M.S. get botox and without exercise and exercise after 3 months I feel my muscles tighten in the foot and my foot rotates and makes wearing my night AFO almost painful
I’ve had MS for 10 years now and I’ve used Botox but for me when it starts it gives me better balance when walking but unfortunately it works only for a few days for me every time so I stopped getting it🤷🏾♂️
Spasticity in left Pectoralis major was subluxing my shoulder several times a day. Following low dose botox injections into pec major this has stopped and I've been able to gain control of muscles on the back of the shoulder. I now also get injections into both wrist flexors and am slowly gaining strength in wrist extensors. Yes it's slow progress but I feel it's worth it.
I had Botox by for one year in the arm and hand to reduce the clawed fingers , the consultant just approximated where to inject . Unfortunately it had no effect after every 3 month session. The second year I got myself referred to another consultant who used a device to home in on the specific nerve , I noticed the effect after a few days and I was able with much less effort to get a glove on . I bought a Saebo glove after trying with a physiotherapist first . it helped little but after several sessions the injections became less and less effective to no effect at all now.. The reason - my body built up resistance to Botox ! This is something that's not often mentioned. Its been 7 years post stroke despite resuming my gym sessions and exercises from a private physio, and a two week upper limb therapy trial at University College London. Spasticity still has been the major issue in the left arm hand and left leg especially the foot,. Despite all the gym work after I got out of hospital for two months later waiting for a place in rehab which never came in the end - so much time wasted doing only 25 mins of physio a day in a hospital with so little equipment I should of discharged myself earlier and got back to my old Gym . I got sold into buying over priced Saebo products paying for various physio sessions on different types of equipment and keeping active as possible. However I've made very little progress in all those years. My stroke was ICH , one physio told me that due to damage near the centre of the brain - the high degree of activity in that region means there is little spare capacity to to create new pathways. I've yet to find a medical journal to back that up , but it would certainly explain why I've made little progress. I'm currently waiting for a session using Dysport ( a Botox variant ) to see if that works , but due to Covid, hospital appointments are taking 6 months or more in the UK , besides mine is none urgent or important compared to those are in pain waiting for treatment.
I have done Botox 100 units 6/2023,200 units in September 9/2023 for spasticity. 10/28/2023 it was difficult to weight bare,stretch, move. The tendon or ligament is contracted and seems like it is trying to drop😖
Can Botox help if we have just muscle tightness after stroke.No problem walking and running(at low speed).I can lift dumbles 20lb for bicep curl, 100lb for leg press and 40lb for shoulder press.But muscle get tight after exercise and in morning
Thanks Tara for the explanation, they gave me some pills orally instead of Botox. After 3 days, almost all my muscles for movement relaxed so much that I could barely move. I stopped doing that, now I stretch and exercise regularly. I'm making progress slowly but surely. Happy Valentines day.
@@idealfitness1094 Hi, Gabi, Here I managed to find, Lioresal tablets, it's actually Baclofen. They were not good for me, they have a lot of side effects. I have heard that some have used Tizanidine or Sirdalud very successfully, the drug stabilizes the bladder muscle, if you have a problem with it. These are the trade names for medicines in Europe, if you are outside, try to find an equivalent. I would be glad if I helped anything. Regards, Darko
It’s not coming up in my feed can you just write the name of the pill and send it to me. I looked above and it didn’t come up with your response to the other person
Thanks for the insightful explanation DrTara, I had drop foot and your videos helped me greatly to recover, currently my toes curl and my therapist says it’s because of spasticity and suggested me to get botox injections, but most of comments here suggest I need to take one every three months and I am from India where the cost is way to high for Botox could you please upload some exercises for curled toes.
I’m losing hope in Botox, been getting it every 3 months for a year and I’m not seeing any major changes and I’m doing all my exercises at home and gym
I appreciate your videos so much! Thank you. I had a stroke at 12 years old back in the 70’s. My left side was affected and I didn’t get physio therapy afterwards, thus I ended up with some ‘bad’ patterns. I was definitely trying hard to hide my disability. Now I get Botox injections in my left calf and sole of my foot every 4 months or so and am pretty much always able to walk flat footed now. My foot often used to be curled inwards and I’d be walking on my toenails. It was very painful and I developed thickened toenails and a corns between my toes. My present doctor has a machine that he uses to specifically locate the spastic muscle(s). Sorry I don’t know what it is called but it sounds like loud radio static when he finds the right spot(s) to inject. Prior to this doctor I had a doctor who did not use the ‘locator’ machine and my results were literally hit and miss giving me mediocre results. I stopped seeing the first doctor because quite frankly the results weren’t worth the pain… the calf injections are very tolerable but the one(s) in the sole of my foot make me break out in a sweat. Emla cream helps a bit. I travel 8 hrs away to see this doctor for my Botox injections and it’s worth every minute of driving, worth the short lived intense pain and worth every penny for how much normalcy I have gained with my ability to walk! Good luck to whoever tries it.
Thanks Heidi for sharing your experience? I believe that is an EMG (electromyography) guided botox injection (the machine you mention). My understanding was that all MDs use this method. Good to know that some don't. :)
I too had a stroke in the 70’s with no therapy because well, I was an active kid. I learned quickly to “compensate” for any disability. Now I get Botox ever three months, increasing issues with mobility. In the last 10 years of getting Botox on my entire right side, seems to be worse. In 6 months I have been getting a lot more jerky spasms in my hip especially, so now I use a walker. Humiliated and depressed.
@@b.jarvis2897 It’s funny, I have felt embarrassed and discouraged with my own condition and physical struggles but when I read your story, I think YOU are an inspiration because you keep walking and keep trying. Maybe the two of us need to spend equal time looking at our accomplishments instead of just what we lost? Good luck to you and don’t give up.
Multiple Sclerosis. EDSS 6.5. 56 yo female. 36 years disease process with SPMS for 20+ years. I have an appointment for Botox injections in the muscles of my hips and legs in a few weeks. I asked my neurologist for a referral to PT prior to the injections for an evaluation on which specific muscles should be targeted. He had never had such a request but he readily agreed. Do you think this evaluation would be beneficial prior to the injections? TIA 😊
Why after the Botox shots am I getting weaker and pain is worse? I can’t move my arm no more after every injection. I do all cooking for the house so using the arm. But pretty sure it is now frozen Shoulder.
Hi Tara I just found you and Sub ❤️, god bless you! I have a weak left leg 1 year and half , can’t jump , After sitting down for a while , when stand up hesitation from brain to move the legs . CT said u have spinal stenosis on left side , and I started to have weak neurological systems , I easily scared from objects falling on the floor I mean my body it gets shaking from loud noise . Definitely gaits problem, knee extension when I walk more on left leg abnormal walking , fell a few time from toe curling! I would appreciate what exercise you introduce from your videos? Hi from Australia
My neurologist said it’s my choice it I want to continue with the shots. I have noticed that when I manually bend my stroke up with my other hand there is less pain and moves more easily
I've been having botox for 5 years now and believe I'm becoming immune to it. It doesn't have the same effect anymore. The window for stretches and exercises is getting shorter
. It won't cure the problem but allows you to stretch your muscles more to maintain muscle length. I continue to have it because I dread to think what I'd be like without it. My spasticity gets worse over time whatever I do and I never stop exercising.
I know that this comment is going to be off topic but one thing I have noticed is that the muscles in my leg get a lot stiffer when it's really cold outside. Is one ever able to totally overcome spasticity? Thank you for your time and support
I have also noticed that spasticity is really bad in cold weather. It was kinda scary the first times(s) I experienced it. Now, I make sure I dress warm enough (I live in PA).
Hi Fred! Thanks for sharing this. I am pretty sure this is a common issue. I don't have any really good suggestions for this. Oh wait, I take that back.......I guess you all just need to move to Florida 😊 ☀️ (just not this week.......it is ccccccccooooooooollllllllldddddd 🥶)
I agree with RehaHQ, moving to Florida is a great idea! I currently live in New Jersey and had to escape to my moms house in Tampa and boy this that help! I felt it a soon as fall was hitting. Im only one year in and felt that this was going to happen. Currently back in Hoboken and making the life decision to move to Florida.
I had a MVA causing a brain bleed and stroke in November 2021 at age 30. I received Botox injections 2 weeks ago. The spasticity in my right hand and arm was severe. To the point where I wasn’t getting anywhere in OT because the tone was so overpowering. They aren’t as tight anymore, allowing me to do more stretching/exercise. My neurologist also injected my neck in hopes of relieving some discomfort. I think if anything it made me more aware of the pain. Overall, I would recommend. Not a cure, but I can tell there is improvement already. The injections weren’t comfortable, but not unbearable by any means.
Hell nah it don’t work plain and simple I’ve had multiple rounds of Botox since 2015 after suffering my brain injury and the blunt truth is it doesn’t make a difference at all.
All my injections only provided very minimal relief . If I can just have use of my hand again I’ll be happy and I’ll be fine with everything else taking longer
When I try to lift my right foot my right hamstring locks up and goes hard and I can’t dorsiflex unless my foot is further out in front of me. Any thoughts?
I got 2 shots early on in shoulder after a subluxation and a fall which blew my clavical out, so i got two shots 2 months apart. it was good for controlling spasticity and i feel it allowed passive ROM with less pain. it was recentlty suggested that i get it again for my finger flexion- but ill skip that, it hurt so bad as it wore off that i couldnt sleep. my hand is open now as i type, i stretch regularly.
I have had two injections of botox in my legs for spasticity due to multiple sclerosis. I didn't notice any difference after both treatments. I may try one more time and ask my doctor to inject in the quads instead of the hamstrings. I'll let you know if it works.
I have a patient with MS in form of spastic paraplegia grade 4 spasticity in hamstring , she can’t sit because of the spasticity tend to extend the hip and flex the knee , could I recommend to inject to get more range to sit or not ?
You are good as explain with helping decisions and broke more on what I was think I was diagnosed with spastic pelvic floor syndrome and my rectum doc did suggest I see a therapy first which she did also explained but didn’t prefer I try Botox first which I like that even more when listening but my contractions in super bad just trying to see what’s my best route cause I have been doing stretches so now trying to see best to to getting control back ??
Hello Julio Reyes I got Botox on 4/2024 have getting it for 3 years it is a waste of money. This does nothing for me. Nothing I believe the doctor doesn’t know what he is doing. What a false , had a stroke I get 500 units and nada very disappointed. Angry
i have been getting botox injections for 10 years every 3 months , on my left arm, i would be very interested in a way to make these last longer than 3 months, iwill continue these as long as possible in order to at least keep my arm/fingers from becoming permanently contracted. i have not regained function but i can def see the benefits from the botox and i dont cancel or put off these appointments b/c my fingers become very "angry " i sometimes do dry needling with a PT within 10 days of injections and that seems to prolong the effectiveness or maybe im imaging it! lol i do not inject my leg anymore, because once it wore off i became wheelchair bound b/c i was no longer able to put my foot flat on ththr ground to take steps.
My personal experience has been as you discribe, I believe I may have had a placebo reaction initially, I wanted it to work, so it seemed to work, but I stopped after a year of injections because it seemed to not be as useful as I thought over time, plus I was paying out of pocket, and yes very expensive. I have considered a baclifin pump, because it seemed to work orally but like you said lethargic etc. With a pump apparently it can be programmed to give you what you need when necessary and reduced when you don't.
I did not look at any studies regarding the efficacy of baclofen pumps but anecdotally, patient report an improvement in the perception of the severity of their symptoms. Down side is you have to have a foreign object in your body. So, there is always risk involved with going the baclofen pump route.
I also wonder if the seizures weren't just all the neurons carrying all the new data crashing around on the neural networks trying to fin a place to park.
My patient have a botox injection. The doctor advice no physio should be done at the injected area for 1 week. Please clear my doubt on this. My patient remain same after botox. Ankle still so much still. He going for 2nd botox injection advice by Dr. I actually suggesting him on backslab or casting after the botox. Is it alright to do so?
I want to cry! You're amazing. I had a stroke one year ago & I'm 25. Sometimes I'm depressed because of my life is done. You're making me hopeful again 🙏🏽
I had a fitness business but I can't do everything anymore 😔
I was in the same difficulties before he helped me few days ago okay....
Contact Dr Wilson 🏃🏃
Messaging him on WhatsApp
➕2348102689570⏯⏯!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Don't give up... life changes for everyone but you must consider that you are young and have so much to offer...so using your talents you adapt to another way to work... I face the same challenge at 60 but goals are a good thing... attitude is truly everything...so make your goals and work them... there are people who will cheerlead you on...even I would be glad to... I met a gentleman in the hospital who is a Vietnam veteran... I befriended him and he became one of my inspirations to this day...he suran enemy set on trying to kill on an airstrip fence and I no where suffered anything like that so he became a focus of my hope... when you find a focal point latch on to it and share in it's power... you will get better and thrive...FOCUS !
I had it in my calf, it was a complete game changer. My left ankle was also rolling and I couldn’t flex my ankle due to spasticity. In the U.K. the treatment is free. I don’t have pain so can’t comment on that.
It’s really helped do my exercises.
I walk better, I no longer trip over my foot, and I can now bend my knee.
I see one of the U.K’s leading MS neurologists and he recommended it 😊
I am glad it worked for you! Thanks for sharing your experience!!
just suggested to one of my patients in physio and am hoping for similar results.
Hope to start PT soon too here in the UK. Suffered stroke in August 2022.Hope it will be recommended for me too pain's and tightness on the left shoulder and fingers. Pains behind the left knee too. It stretches when trying to walk.. these videos are helpful.
That’s exactly what I’m going for. My dorsal flexion feels like I’m working against another muscle through my ankle.
I've been getting botox since 2015, about 6 months after my stroke. Then I stopped in 2017, started back up in 2019. Whenever I get them I use it as an opportunity to gain more control over specific muscles. I now have pretty much full control of my arm and walk pretty well. Example, when I first had my stroke my bicep was so tight it would pull my arm up a little bit. Now it doesn’t, so I think it’s a good tool if you put in the work.
Thanks for sharing your experience Jason!
Jason where did you go to get botox? It takes 6 months to assess the 6 months to get an appt.
@@ladonaherrera9184 UCSD
What did you do..? Weight lifting or just repitition motions and weight bearing..? How long did it take..?
I am a parcel quad. I have been getting botox injections for 2 years and I have had spasticity. It does seem to work on helping me flattened the feet. If someone doesn't work on the ancle and foot stretching then the benefit is minimal.
Botox has made a significant difference in the pain I’ve experienced from severe spasticity in my arm shoulder and leg - I don’t care if it’s making a huge impact on functioning, the pain reduction has been dramatic. You have to pair stretching and weight bearing exercise with it.
I started getting Bored last year. I had my stroke in 2018. I've tried oral meds for elasticity but to no avail. I use the Boots in my arm in conjunction with OT. I am diligently working on my walking and have made improvements through physical therapy and learning so much from this channel at home. Which was my first form of physical therapy outside of the hospital. For me, Boots is awesome for my hand. Especially for my thumb . 15 -20 minutes after getting the shots, (usually I get about 7 strategic shots) I begin to feel a little muscular pain. Most are done in my forearm and will feel it in my shoulder. I wish it did last longer. It usually wears off just before my 3 mos are up. I was reluctant at first that's why I opted for oral meds but caved in and glad I made the switch.
I'm so grateful I was led to this channel. Yes. I want this treatment in that I'm in Physical/Occupational therapy. I was healthy/physically active.
Having experience a TIA stroke in 2023. Being in physical therapy I'm hopeful for muscle function.
Manifesting a blessed positive outcome...
HalleluYah!!!❤❤❤
Had my first botox treatment for my MS 2 weeks ago and it is amazing. So far I'm able to add this to my PTHERAPY and it's helping me to get walking again. There are a number of things I can now do. I keep keep an open mind as I am pretty confident things will only get better as long as I do my part!!!
How are you doing since your first treatment with Botox ?
I have Botox every 6 months. For 4 years. It enables me to exercise ( stretch ) my arm more easily. It has enabled me to wear an increasingly stretched splint on my hand, hopefully heading towards getting hand use back. Stretching and exercising is critical for weeks after the injection.
Hi Dr. Tara, I had a second botox treatment in Dec 2021, It helped greatly with the contracture I had in my wrist...it has also improved the flexibility of my fingers which were in a fist...the treatments also helped with my ability to wear a splint and see results with my hand, my doctor
told me if I didn't do my exercises my hand and wrist would return back to contracture and clenched fist...I have an OT and PT that I work with twice a week in addition to home exercise...I had a stroke i Jan 2020, that left me with left side paralysis...so I am blessed with the ability to walk well with an AFO and fair use of my left arm to assist in carrying objects my focus now is my left hand and the fingers.
Blessings to you! Thank you for your wisdom. I was diagnosed with MS 20 years ago. For the last year and ahalf I have been unable to walk, but I am determined to regain my mobility! I am going for Botox. Fingers crossed! Thanks again XO.❤
Ever had your foot contorted due to spasm, at night for example, well imagine this pain all day, with every movement, for the reduction in pain alone, it is worth it
I had my stroke in 2019 and I've been receiving botox at Cleveland Clinic every 3 months since january 2020. It works well for me and I gain more control of my arm with every treatment. It allows me to put in the work so that I can maintain control and movement.
Thanks for sharing your experience!
Will u have to take injections forever?
@Daniel Saucedo the goal is relaxing the muscles so you can manage to do stretching and exercise so you don't need the botox. I still get it done because my therapy isn't really possible without it. I have more control over my arm and hand with the botox.
@@mjc8248 thank you for responding! God bless you and best wishes
Yes, exactly
I've been getting Botox into my spastic calves every 3 months. It's great! Really helps the muscle tightness and the injections themselves aren't painful.
I'm a 50 year old(nearly) American living in Japan. I've been living with impaired motion on my left side all my life since a stroke at 3 years old. My doctor in Japan recommended Botox and I just had the injection in my leg today. It made me drowsy at first. I'll try to comment in a few weeks as to the effects.
Please let me know, i'm looking to get one for my father.
Did it help ?
I had a massive double stroke in 2018 at 37. I’ve made significant improvements since then. I still have significant spasticity and weakness on my affected side. I asked my PT about Botox and they basically said I’d be trading having spasticity for foot drop until the Botox wore off. Thankfully I can use the VA for my rehab so if I choose to get Botox it won’t cost me anything and I will get rehab approved immediately as well.
Thanks for sharing!
Had my second Botox injection and things improve while doing PT and stretching. Give it a try its been painless be brave and hope for the best after 23yrs.of MS it's worth a try!!!
Tara Botox was helpful for the first couple of years with OT and PT but over time it has had no effect on my muscle tightness so I stopped injections and continued my work without it. My spasticity has increased over time (8 years) but the grind continues. Thank you for your insight and continued support 🙂
the last 2 times that I had botox physio was not offered or suggested but this time I will ask for pt and see I get any results this tim my biggest problem I see is the spasticity causes my foot to turn and suppinate
Thanks so much for this video because I was about to get Botox for spasticity and I feel more informed now to make a good decision
I've had years of botox and it helped so much. Its been 2 years now I haven't had to have it as the tone in my arm and fingers is improving on it's own . The botox injections are free in Australia and my physio and I believe we no longer need it which is very promising for me.
Thanks for sharing your experience! Btw, nothing is free so it is always good to ask whether or not a medical treatment is necessary 😊
I had my brain haemorrhage in December 2015 and was first given Botox injections in my left arm about six months later, but my NHS physiotherapy sessions had ceased by then. The injections definitely relaxed my overactive biceps, so we’re useful. I continued having Botox injections for 3 years, but had to pay for physiotherapy sessions. As time passed, the length of time that the Botox was effective decreased and I finally stopped having them, as I assumed that I was developing immunity. My biceps are still tight, so my arm won’t stay down when I walk, but I stretch and do passive exercises every day, using a regime set by my physiotherapist. Luckily, I do not experience pain, but have not regained function in my left arm or hand.
Thank you Ruth for sharing your experience!
I got it, and it helped me tremendously. I couldn’t exercise . But after I got it I was able to.
Thanks for the video, Tara! I also appreciated reading through all the comments on everyone’s experiences! 🙏🏼
After my stroke (Sep. 2017), Botox was suggested as a consideration by an OT. I asked my MD who referred me to a rehab doctor who provides Botox treatments.
The rehab doctor explained the pros/cons & we decided against it, in my case. We did try an oral medication, but I eventually decided it wasn’t worth it.
Your video certainly helps me feel better about the decision we made. Thanks!
Thanks for sharing this Randy! This is exactly how it should be done. A back and forth conversation with your MD. 😊
I was in the same difficulties before he helped me few days ago okay....
Contact Dr Wilson 🏃🏃
Messaging him on WhatsApp
➕2348102689570⏯⏯!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I had my stroke in May 2019 right before the country shut down. So I had a lull in PT and OT. Everyone PT and DO insisted I get Botox and it's benefits. I had about 4 injections and have not seen any benefits. I have noticed with the last injections I started having problems swallowing called the DO who said it was too early for that to happen. It started to affect other areas of my body .My last follow up with my DO it was whispered in my ear I would be on Botox for the rest of my life. At that point ,I stopped taking the shots. I feel much better . Still working to get back to normal though.
Thanks for sharing your experience!
On May 26th 2018 I was involved in an ATV accident flipped over the handlebars and landed on my head and fractured some vertebrae in my neck. I now have two rods and 14 screws and a bruised spinal cord I am considered to be C2 to C 7 incomplete. I was basically a temporarily quadriplegic. First set of Botox injections was August of 2018 they hurt like hell but I continue to get botox injections every 3 months it is a slow process but it works. In September 2019 I had a baclofen pump installed to help aid in my walking. I now have the best of both worlds. With the increase of Baclofen reduced the clones that was developing in my body. Every 3 months I would get a a pump adjustment increase of Baclofen by about 15 to 20% and a couple of weeks after more Botox shots mainly in the arms that still hurts like hell but it still works. My Botox shots range from 15 to 20 shots every 3 months. Then in October 2020 after receiving my 100th shot I did not get any more pain I can feel it go into the muscle and no more pain. And mind you I'm still doing physical therapy and occupational therapy during this process. I am not in a wheelchair I am walking with a walker and a wheel Walker. In December of 2021, I started to get a reduced amount of Baclofen because I was starting to walk like a drunken sailor that's when you no you had enough Baclofen. Then in January of 2022 I had the guts to start walking around my bedroom without the Walker or the four-wheel Walker I am walking on my own! As of January 2023 I have a total of 255 Botox shots throughout my body. So for me Botox is a good tool to have to get me going. I hope this story helps influence others during their recovery.
Hi, how are you doing now?
I'm doing quite well I'm getting more use out of my right hand I can dress myself without any other assistance getting my socks on without a sock caddy and getting a shirt over my head without a use of a stick or a cane and also getting more Independence doing a lot better this year than what I was last year @@jadwigap3018
Namaste, yes I have been getting Botox since 2021 I have had improvement and also my multi specialist Botox doctor works hand in hand with my physical therapist so they can communicate on where I'm getting the botox it's usually in the quadricep if they're contracting or the hamstrings sometimes both and other muscles
Had a stroke (April 2021) at the age of 41. Spent 6 months in hospital. Had a course of Botox injections while in hospital (left wrist, arm, and leg)and another as an out-patient (left leg only) in December.
Would recommend it if your doctor/specialist/consultation suggest it. It didn't do much for my arm, but the patient in the next bed to me notice how my foot would point down when I walk only a day later. On the second course, I felt the difference straight as I walked out of the treatment room and down the corridor back to the car.
I'm in the situation of having a new AFO made, and I will be contacting the clinic this week to book another appointment for another course in my wrist and arm, but I know I'm going to have to develop a more intensive exercise routine with my physio.
Still positive of regaining function back in my hand and arm, but I know it will be hard work and will take a long time.
Thank you Tara for your videos, it really helped me in those first few months coming to terms with what happened to me. It was really tough as the lockdown rules in the UK meant I was not allowed to see any friends or family in those first few months.
I’ve had brain injury in 2016 and because of which I started feeling spasticity after 2-3 years in my right hand and right leg(side effects of brain injury). I tried to control it for 2-3 years but my hand wouldn’t open until I pull my fingers out with my left hand so I got Botox and it actually helped a lot but I didn’t use to go to PT daily because of which it’s getting bad and I have to increase the dose, now my right leg was in control till last year but then the condition started to get even worse and now my right foot rejects my body weight, I’m thinking to go for Botox in my right leg too. My advice would be to take Botox and to exercise each and everyday till you are alive.
Share your experience if you got Botox in leg for Clonus.
This is such an important and useful video- thank you Dr Tara!
The Xeomin (Botox) injections did gradually help reduce the spasticity in my hand, so it is no longer stuck in a fist. I did stretching while receiving the Botox to help accomplish this. Now I can focus on exercising my hand to hopefully regain some function. :)
Cervical spinal cord injury here. 30 years ago, I had an accident. I'm older now and have a job that has me sitting a lot. The cord lesion is "aging" faster than the rest of me, so my spasticity has progressively worsened due to all these factors. Botox has not been a magic pill, but it does allow me to have a fuller range of motion for a time, which allows me to have more beneficial (and less painful) physical therapy. It's an emotional boost to end the tug-of-war going on in my body. Less fatigue. Less pain. I understand it won't cure me, but it keeps discouragement at bay. I dislike muscle relaxers, so Botox has been really helpful.
I think I had about 3 treatments before my neurologist asked me if it did any good or not, it didn't so I quit receiving botox injections. My spasticity is in my left arm and shoulder. I've never had any pain other than during the numerous injections. I worked out with a 2lb weight after I got home from rehab, I began to move my fingers and gain enough strength to carry a heavy laundry basket. When I started getting botox, I lost strength and couldn't hold laundry basket. The only thing it did for me was make my arm feel lighter. Though in a way it sorta begs the question what is the purpose of exercising a paralyzed muscle? Is it even possible? I did notice that when I started more rigorous exercises I began having terrible nightmares which the neurologist said were seizures, so now I take seizure medications. Progress seems very slow though I've adapted somewhat. It's also not my dominate hand, fortunately. It's as if my spastic hand is able in a way do what my right hand can but in extremely slow motion, so yes I can release my grip, though I usually don't have the patience to wait and use my good hand to pry my fingers loose. Brain plasticity,
yes, but it needs to find a place to store the info, so it likely finds a less efficient neurological path, accounting for the slowness, the ideal postion is in the area that is now dead. It's unlike starting from scratch like a baby, because a baby uses that part that I used which is gone for me. That's why the doctors can almost tell how you''ll likely be affected by what part of the brain is damaged. I think walking was easier to rehabilitate because unlike other primates, we don't use our feet like hands. I'm not sure if anything I said was scientific or just pure speculation.
Thank you so much for doing your videos on helping recovery from stroke! Re my experience with Botox, the only place to get Botox injections for spasticity treatment is 100 miles away. Back when I was living with family for the first 13 years after my stoke, who could drive me to the appointments, I DID get regular Botox injections. I did not see any helpful effect in regaining use (but honestly, I really did not work diligently on my recovery on my own at home like I should have) But the benefits of the Botox injections became VERY apparent after I could no longer get them when my Physiatrist retired. After going without the regular Botox injections in my arm, my useless arm became stiff snd contracted. After a few years, when I realized that my arm had become contracted after not being able to get the Botox injections, I contacted the hospital to see if they had since acquired a new physiatrist skilled in Botox injections to treat spasticity. They had, so I was able to get a couple more treatments and a prescribed set of PT sessions, but by that time my arm had become so stiff and contracted that within 30 after leaving each PT stretching session, my arm stiffened right back up. I was finally able to get moved into my own apartment in town again, so I had to seize that opportunity while I could. While I LOVE having my own place again, the biggest downside of living independently is that I no longer have a driver available to drive me to Botox appointments 100 miles away, so once again I have been going without Botox injections. Summary of my personal experience: Botox is very effective and well worth the pain and expense to PREVENT developing spasticity and I wish that I lived in the city which it is available in, so that I could get it regularly again.
I have spasticity in my arm and hand. I got Botox in my pectoral and below my elbow on two sides. I had an injection in my hand to loosen my fingers and allow my thumb to straighten away from my palm. I had no significant changes in my arm or elbow. In my hand my thumb straightened and moved away from my palm which allowed me to do therapy on my hand.
Tara,I suffered a severe stroke in 2007; I ave had Botox treatments twice many years ago!yes I found that it reduced my spacicity in my hand! My nurologist that I had at the Tim suggested that I continue; but it is only temporarily and what is okay in the world today,oilfield be tomorrow plisen that will effect you possibly in a very negative manor! Doctors are certainly much more inteligent, and educated than me but I am wary of the long term affects of something that does have the potential of long ter negative side effects. I like your conservative approach of stretching and exercise. My stroke occurred at work so everything was coved,no I am officially retired,do not have nothing other than Medicare for insurance and I am not financially able to afford more Botox even if I wanted to! My problem is that I worked hard earlier and made good progress but now; it I that I am resting on my laurels of my past progress, I surmise that I need to dig deep to find my motivation or find something or someone to kick start me! Attitude, Attitude, Attitude!
very informative but one problem what if my pcp does not know what spasticity is?? what then??
I shot every 3 mos is bloody worth it to prevent spastic pain!
It absolutely helps *only* when used to facilitate exercises
Hi Tara I had a stroke in 2021 Jan 9. I tried Botox treatments for my hand and received six shots in my arm. After a week my hand was doing better. But it did not last about 30 to 45 days, I received a second round of shots 12 shots in the arm one time , that was very painful, I was under physical therapy at that time . . The problem is does not last long after one to two months.. that is correct of tug of war, my spasticity My spasticity is quite strong. I am 73 yrs. Old. I do my stretching every day . I have limited use of my right hand.
I had it in my affected hand and it worked briefly so that I could stretch the fingers it lasted on one finger the pinky if your spasticity causes pain it will relieve it ( doc never found the best spot for the thumb I no longer get it
I recall being delighted after the first time
I genuinely love and appreciate your videos.
I have been going for 1 year for Botox. It helps. I never complain when getting the needles. They do not use freeze spray. They always are surprised I never complain. It is what it is. I am one tough dude I suppose. $1250 each time. Peanuts. I just pay. I stretch and exercise daily. Weekly massages.
Thank you so much Dr. Tara Tobias for sharing this vital information regarding Botox treatment.
My neurologist suggested for the same next week, I'll definitely share and comment my experience.
Once again thank you so much 😊
Great Arjun! I will be looking for your update :)
Hi Tara,
Thanks for sharing such a nice useful video on spasticity. Can you please make a video on Etanercept Injection for stroke recovery?
Recently I saw this video ruclips.net/video/-nEtQ-Wxkas/видео.html and got to know about Etanercept Injection
Yes I second that.
so Botox is a good assist to spasticity and contractures, that may better help along with PT or ot? Post stroke for myself it was difficult to recover with PT and ot my hand was extremely contracted and my Achilles tendon was in high tone so regular stretching was ineffective also I believe that hyper tone on my affected side became foot drop?
Same boat for me exactly, so Botox helped??
Going today for Botox feeling scared cuz I have low pain tolerance. Las time I had it it felt like torture
Have M.S. get botox and without exercise and exercise after 3 months I feel my muscles tighten in the foot and my foot rotates and makes wearing my night AFO almost painful
I’ve had MS for 10 years now and I’ve used Botox but for me when it starts it gives me better balance when walking but unfortunately it works only for a few days for me every time so I stopped getting it🤷🏾♂️
my fingers, hand and arm is coming back too normal after getting it, this is my second shot this year 2024
Spasticity in left Pectoralis major was subluxing my shoulder several times a day. Following low dose botox injections into pec major this has stopped and I've been able to gain control of muscles on the back of the shoulder. I now also get injections into both wrist flexors and am slowly gaining strength in wrist extensors. Yes it's slow progress but I feel it's worth it.
MORE POWER TO THE CHANNEL DR. TOBIAS!!!
I had Botox by for one year in the arm and hand to reduce the clawed fingers , the consultant just approximated where to inject . Unfortunately it had no effect after every 3 month session. The second year I got myself referred to another consultant who used a device to home in on the specific nerve , I noticed the effect after a few days and I was able with much less effort to get a glove on . I bought a Saebo glove after trying with a physiotherapist first . it helped little but after several sessions the injections became less and less effective to no effect at all now.. The reason - my body built up resistance to Botox ! This is something that's not often mentioned. Its been 7 years post stroke despite resuming my gym sessions and exercises from a private physio, and a two week upper limb therapy trial at University College London. Spasticity still has been the major issue in the left arm hand and left leg especially the foot,. Despite all the gym work after I got out of hospital for two months later waiting for a place in rehab which never came in the end - so much time wasted doing only 25 mins of physio a day in a hospital with so little equipment I should of discharged myself earlier and got back to my old Gym . I got sold into buying over priced Saebo products paying for various physio sessions on different types of equipment and keeping active as possible. However I've made very little progress in all those years. My stroke was ICH , one physio told me that due to damage near the centre of the brain - the high degree of activity in that region means there is little spare capacity to to create new pathways. I've yet to find a medical journal to back that up , but it would certainly explain why I've made little progress. I'm currently waiting for a session using Dysport ( a Botox variant ) to see if that works , but due to Covid, hospital appointments are taking 6 months or more in the UK , besides mine is none urgent or important compared to those are in pain waiting for treatment.
Enjoyed your video as usual Dr. Tobias. I hope you have a great week and Valentine's day.
You too Teresa!
Good
I have done Botox 100 units 6/2023,200 units in September 9/2023 for spasticity. 10/28/2023 it was difficult to weight bare,stretch, move. The tendon or ligament is contracted and seems like it is trying to drop😖
Can Botox help if we have just muscle tightness after stroke.No problem walking and running(at low speed).I can lift dumbles 20lb for bicep curl, 100lb for leg press and 40lb for shoulder press.But muscle get tight after exercise and in morning
Thanks Tara for the explanation, they gave me some pills orally instead of Botox. After 3 days, almost all my muscles for movement relaxed so much that I could barely move. I stopped doing that, now I stretch and exercise regularly. I'm making progress slowly but surely. Happy Valentines day.
Hi, Darko Just read your comment.... By any chanse what kind of pills are they ? I Will appreciate a lot thanks
@@idealfitness1094 Hi, Gabi, Here I managed to find, Lioresal tablets, it's actually Baclofen. They were not good for me, they have a lot of side effects. I have heard that some have used Tizanidine or Sirdalud very successfully, the drug stabilizes the bladder muscle, if you have a problem with it. These are the trade names for medicines in Europe, if you are outside, try to find an equivalent. I would be glad if I helped anything. Regards, Darko
What type of pills
@@angelabowman343 Read my answer Gabi Rebegea pasos right above, your question, I described everything there. Regards, Darko
It’s not coming up in my feed can you just write the name of the pill and send it to me. I looked above and it didn’t come up with your response to the other person
Thanks for the insightful explanation DrTara, I had drop foot and your videos helped me greatly to recover, currently my toes curl and my therapist says it’s because of spasticity and suggested me to get botox injections, but most of comments here suggest I need to take one every three months and I am from India where the cost is way to high for Botox could you please upload some exercises for curled toes.
Thanks for watching and for sharing! Yes, search rehab hq and toe curling. :)
@Manjula eshwarappa Alot..it is expensive.
I’m losing hope in Botox, been getting it every 3 months for a year and I’m not seeing any major changes and I’m doing all my exercises at home and gym
Wonder if you need to try a different form of it like one person commented. Just an idea.... Have blessed day 😊
I appreciate your videos so much! Thank you. I had a stroke at 12 years old back in the 70’s. My left side was affected and I didn’t get physio therapy afterwards, thus I ended up with some ‘bad’ patterns. I was definitely trying hard to hide my disability. Now I get Botox injections in my left calf and sole of my foot every 4 months or so and am pretty much always able to walk flat footed now. My foot often used to be curled inwards and I’d be walking on my toenails. It was very painful and I developed thickened toenails and a corns between my toes. My present doctor has a machine that he uses to specifically locate the spastic muscle(s). Sorry I don’t know what it is called but it sounds like loud radio static when he finds the right spot(s) to inject. Prior to this doctor I had a doctor who did not use the ‘locator’ machine and my results were literally hit and miss giving me mediocre results. I stopped seeing the first doctor because quite frankly the results weren’t worth the pain… the calf injections are very tolerable but the one(s) in the sole of my foot make me break out in a sweat. Emla cream helps a bit. I travel 8 hrs away to see this doctor for my Botox injections and it’s worth every minute of driving, worth the short lived intense pain and worth every penny for how much normalcy I have gained with my ability to walk! Good luck to whoever tries it.
Thanks Heidi for sharing your experience? I believe that is an EMG (electromyography) guided botox injection (the machine you mention). My understanding was that all MDs use this method. Good to know that some don't. :)
I too had a stroke in the 70’s with no therapy because well, I was an active kid. I learned quickly to “compensate” for any disability. Now I get Botox ever three months, increasing issues with mobility. In the last 10 years of getting Botox on my entire right side, seems to be worse. In 6 months I have been getting a lot more jerky spasms in my hip especially, so now I use a walker. Humiliated and depressed.
@@b.jarvis2897 It’s funny, I have felt embarrassed and discouraged with my own condition and physical struggles but when I read your story, I think YOU are an inspiration because you keep walking and keep trying. Maybe the two of us need to spend equal time looking at our accomplishments instead of just what we lost? Good luck to you and don’t give up.
Thank you
Multiple Sclerosis. EDSS 6.5. 56 yo female. 36 years disease process with SPMS for 20+ years.
I have an appointment for Botox injections in the muscles of my hips and legs in a few weeks.
I asked my neurologist for a referral to PT prior to the injections for an evaluation on which specific muscles should be targeted. He had never had such a request but he readily agreed.
Do you think this evaluation would be beneficial prior to the injections? TIA 😊
Affected right-hand fingers, and foots ankles never worked !
I recommend it through searching it and my doctor also recommend therapy with it
Why after the Botox shots am I getting weaker and pain is worse? I can’t move my arm no more after every injection. I do all cooking for the house so using the arm. But pretty sure it is now frozen Shoulder.
Hi Tara I just found you and Sub ❤️, god bless you! I have a weak left leg 1 year and half , can’t jump , After sitting down for a while , when stand up hesitation from brain to move the legs . CT said u have spinal stenosis on left side , and I started to have weak neurological systems , I easily scared from objects falling on the floor I mean my body it gets shaking from loud noise . Definitely gaits problem, knee extension when I walk more on left leg abnormal walking , fell a few time from toe curling! I would appreciate what exercise you introduce from your videos? Hi from Australia
I used to get Botox, but then I developed the tolerance for it and bacoafin didn’t work for me either
How often can one get a Botox shot?
My neurologist said it’s my choice it I want to continue with the shots. I have noticed that when I manually bend my stroke up with my other hand there is less pain and moves more easily
Can you please put subtitles in the video?
I’m due to see a specialist tomorrow, because I have dystonia in my left foot, so hopefully will get Botox soon in my foot.
Hi Dra. Tara, My hips is very weak because of stroke. My right leg is heavy and my balance affected. Does the botox will help?
I've been having botox for 5 years now and believe I'm becoming immune to it.
It doesn't have the same effect anymore. The window for stretches and exercises is getting shorter
. It won't cure the problem but allows you to stretch your muscles more to maintain muscle length.
I continue to have it because I dread to think what I'd be like without it.
My spasticity gets worse over time whatever I do and I never stop exercising.
I had Botox 8years ago, but now my fingers & foot joints hadn’t worked, what next please?
I know that this comment is going to be off topic but one thing I have noticed is that the muscles in my leg get a lot stiffer when it's really cold outside. Is one ever able to totally overcome spasticity? Thank you for your time and support
I have also noticed that spasticity is really bad in cold weather. It was kinda scary the first times(s) I experienced it. Now, I make sure I dress warm enough (I live in PA).
Hi Fred! Thanks for sharing this. I am pretty sure this is a common issue. I don't have any really good suggestions for this. Oh wait, I take that back.......I guess you all just need to move to Florida 😊 ☀️ (just not this week.......it is ccccccccooooooooollllllllldddddd 🥶)
I agree with RehaHQ, moving to Florida is a great idea! I currently live in New Jersey and had to escape to my moms house in Tampa and boy this that help! I felt it a soon as fall was hitting. Im only one year in and felt that this was going to happen. Currently back in Hoboken and making the life decision to move to Florida.
Cold weather makes spastivity really worse @@rehabhqofficial
I had a MVA causing a brain bleed and stroke in November 2021 at age 30. I received Botox injections 2 weeks ago. The spasticity in my right hand and arm was severe. To the point where I wasn’t getting anywhere in OT because the tone was so overpowering. They aren’t as tight anymore, allowing me to do more stretching/exercise. My neurologist also injected my neck in hopes of relieving some discomfort. I think if anything it made me more aware of the pain. Overall, I would recommend. Not a cure, but I can tell there is improvement already. The injections weren’t comfortable, but not unbearable by any means.
Hell nah it don’t work plain and simple I’ve had multiple rounds of Botox since 2015 after suffering my brain injury and the blunt truth is it doesn’t make a difference at all.
Anecdotally, I agree.
All my injections only provided very minimal relief . If I can just have use of my hand again I’ll be happy and I’ll be fine with everything else taking longer
Hi I can’t straighten or bend my arm doctors say I have calcium deposits in my elbow should I consider botox injection
any special exercises after inject butox on stroke patien
When I try to lift my right foot my right hamstring locks up and goes hard and I can’t dorsiflex unless my foot is further out in front of me. Any thoughts?
I got 2 shots early on in shoulder after a subluxation and a fall which blew my clavical out, so i got two shots 2 months apart. it was good for controlling spasticity and i feel it allowed passive ROM with less pain. it was recentlty suggested that i get it again for my finger flexion- but ill skip that, it hurt so bad as it wore off that i couldnt sleep. my hand is open now as i type, i stretch regularly.
I have had two injections of botox in my legs for spasticity due to multiple sclerosis. I didn't notice any difference after both treatments. I may try one more time and ask my doctor to inject in the quads instead of the hamstrings. I'll let you know if it works.
Did it work?
Have you done a video on a lazy Glute Maximus when walking?
Hey Tara would you recommend using Innrika 150👀for spasticity instead of Botox injections
Great information! Thank you for this video.
I have a patient with MS in form of spastic paraplegia grade 4 spasticity in hamstring , she can’t sit because of the spasticity tend to extend the hip and flex the knee , could I recommend to inject to get more range to sit or not ?
You are good as explain with helping decisions and broke more on what I was think I was diagnosed with spastic pelvic floor syndrome and my rectum doc did suggest I see a therapy first which she did also explained but didn’t prefer I try Botox first which I like that even more when listening but my contractions in super bad just trying to see what’s my best route cause I have been doing stretches so now trying to see best to to getting control back ??
My daughter is 4 & half year old.she is dyplegic cp .she can not speak & walk .what should I do???pls help me
I had Botox but it didn’t work on me I was wondering why it actually curl my foot and my arm a bit
Your life is not over at 25 keep tryin and get help 8:20 8:21 8:22
Can someone get botox more often than every 3-4 months if not injecting into the same muscles?
Will it help with my ankle I feel like if it can decrease the tone I will be able to walk because I feel ankle wanting to move
Can v use botox for right side hand & leg tremors? Please inform.
How about regarding people with Ehlers Danlos Syndrome? With cervical dystonia, muscle tension headaches, and occipital neuralgia ?
Hello Julio Reyes I got Botox on 4/2024 have getting it for 3 years it is a waste of money. This does nothing for me. Nothing I believe the doctor doesn’t know what he is doing. What a false , had a stroke I get 500 units and nada very disappointed.
Angry
i have been getting botox injections for 10 years every 3 months , on my left arm, i would be very interested in a way to make these last longer than 3 months, iwill continue these as long as possible in order to at least keep my arm/fingers from becoming permanently contracted. i have not regained function but i can def see the benefits from the botox and i dont cancel or put off these appointments b/c my fingers become very "angry " i sometimes do dry needling with a PT within 10 days of injections and that seems to prolong the effectiveness or maybe im imaging it! lol i do not inject my leg anymore, because once it wore off i became wheelchair bound b/c i was no longer able to put my foot flat on ththr ground to take steps.
My personal experience has been as you discribe, I believe I may have had a placebo reaction initially, I wanted it to work, so it seemed to work, but I stopped after a year of injections because it seemed to not be as useful as I thought over time, plus I was paying out of pocket, and yes very expensive. I have considered a baclifin pump, because it seemed to work orally but like you said lethargic etc. With a pump apparently it can be programmed to give you what you need when necessary and reduced when you don't.
I did not look at any studies regarding the efficacy of baclofen pumps but anecdotally, patient report an improvement in the perception of the severity of their symptoms. Down side is you have to have a foreign object in your body. So, there is always risk involved with going the baclofen pump route.
Is there a way i can contact you on more information?
I have had 2 botox injections for runners dystonia and so far no benefit at all.
I also wonder if the seizures weren't just all the neurons carrying all the new data crashing around on the neural networks trying to fin a place to park.
My patient have a botox injection. The doctor advice no physio should be done at the injected area for 1 week. Please clear my doubt on this. My patient remain same after botox. Ankle still so much still. He going for 2nd botox injection advice by Dr. I actually suggesting him on backslab or casting after the botox. Is it alright to do so?
You need to find the right amount of Botox you need in your muscle first of all and it needs to be injected correctly only then it will work
@@nabilkhan1032 thank you for your kind reply. Botox injection by Dr will be out of what I can control
I had a stroke since 2015.i had been injected with butox 4 times for spasticity in my RT.arm and fingers , with no benefit at all.what can I do?!
Thanks for sharing your experience! I have lots of videos on this channel talking about spasticity. :)
Weight bearing on your arm on a chair..table..or floor