Oh! And you saying “THIS IS A SUBJECT that many have very strong emotions about” helped me! I forget that it’s EMOTIONAL for anyone who is concerned about all the scary implications or consequences for their loved one! I’m not alone. And neither is my situation unique. I don’t want to have guilt! AND .. I’m learning that when being the sole caregiver is causing many health crises for me it’s not a decision that is ONLY based on the loved one’s wishes or what I imagined I’d be able to handle! Blessings to all who are Careblazer and Dr Natali!
I appreciate the suggestions but most of what you mention is not an option for most people. You either have to be poor in order to qualify for help or rich enough to pay for it yourself. If you're just a regular person, all these homes, facilities and programs won't help you. That's not your fault of course, it just sucks.
Sometimes the worry about nursing homes are the high price tag that they have. In my area in particular they run from $5,000 to 7,500 per month. That is impossible for some retired people.
There's no way my friend or her family can do that. The question is "What, then?" So far, it seems to be living with her only remaining family members, who have two very young children who are already affected by my friend's aberrant behavior when she stays there for a few days. It's a quandary.
@@opinionated4219 It really is. Dementia is a BEAR of a problem and very, very difficult to live with. I am an only child with two parents who have dementia. I, also, have young children. I had a social worker tell me early on that if I wanted to keep my kids, I need to make plans for them to live elsewhere... because "It only takes one time for the police to come to your residence for your children to be removed." I was lucky in that I was on a waitlist for a care home when the police came. The cost of the care home? $6k per person, per month. It was a cheaper one. It goes up 4% every. single. year.
Probably ur best video. Tried putting my 78yr old in a nursing home rec. by Dr. Their total focus was on wheelchairs and adsorption diapers. After 3 months in wheelchair, u forget how to walk. Diapers are the most cost-efficient way to run a nursing home b/c they can't afford a 30 min. wait while the patient is on potty. Falls continued during the 3 mo. stay b/c Medicare doesn't allow a restraint on wheelchairs. Wife is now at home where hoesekeepers, Amazon and HEB curbside pickup are doing a fair job. 1K$ vs $6K in nursing home.
It’s kindof a double edged sword with the wheelchairs, eh? Keeps them from being prisoners, but it also gives too much mobility for some people. My MIL, who had a stroke, was in a wheelchair, was left for literally five minutes, and fell down some stairs. (She was at home, and I TOLD them that she was going to, but nobody listened🤷♀️)
Great ideas ! I have both my parents living with us. They tried an assisted place . I wasn’t overly impressed with it. My dad was the difficult one in the assisted living, here at home he’s on auto pilot it’s my mom who is very very needy . I was still working full time 3 days a week( I’m a nurse ) but cut back a day. I work nights so mom is ok . All day cares are shut down . I have thought of having 2-3 ladies over like my mom just to hang out for a few hours and give families a much needed break.. My mom loves people !
I"m kinda glad that my mom is in a nursing home, they seemed to be taking care of her. She just stays in bed all day and waits for people to come see her. I really hope she doesn't have to go to hospice, I probably will need professional help,wow!
I'm disable and can't take adiquitly care of my mother .because of a back injury I'm mostly bed ridden . 4 time my mother filled my house up with gas , she puts our frozen foods from frig into lower cabinets , closets and around the house . I find my important mail in her bedroom months to late to respond . She sends strangers knocking at the door straight to my room when I'm laying down and turns my friends away saying I'm not home. She tries to cook behind my back putting on food to fry then laying down herself 3 times she caught the stove on fire . she " IS " going to hurt us both. No nursing home will take her without a doctor and list of meds and she won't go to doctors . I only wait for that one accident that puts her or myself in the ER so I can ask for state help . I'm completely lost because I don't feel this is the right thing to do. I completely alone on this.
Hi Dr. This was a very good video, thank you for posting and making it. I am a caregiver to my sister who has early onset Alzheimer’s, she’s 54. She does not qualify for Medicaid although she does have Medicare. We are in need of free or low cost services for her. We’ve talked with a few social workers and have come up with no helpful ideas. Do you have any information on where to find low cost or free services to help my sister?
Does your LO have supplemental insurance? Either way, I believe that Medicare does provide some help for non-medical care or if there are any safety measures that need to get done (hand rails in bathroom or in hallways). My MIL has Blue Cross Medicare plan and their plan is called “Essential Extras”. Contact the customer service on the back of her health care card and ask. Another option is to try to contact your regional Area Agency on Aging office and see which programs you can sign up for (there is a program for your LO or one for the caregiver). They may have access to a grant that can help pay for respite care or adult day care services.
Thanks for this video, great ideas. Has anyone gone with memory care over a nursing home? I am at the point where I am looking into this and memory care seems like a good choice but I'm feeling lots of guilt.
I would give my mom until Christmas. She lives with me, and it’s getting VERY hard. She’s barely mobile, I do everything to make her safe and comfortable, but she still thinks she can do stuff, amd gets PISSED. The other day she told me she was going to take a cab! “I can, and I WILL!” 🙈I DO have time to clean, etc. but the energy, I just don’t have any more. This was a great video, thank you. I have no idea how to apply for anything. My mom has Kaiser, I don’t know about medical. I don’t believe she’s on state at all. I wouldn’t want to put her into a state hospital, but maybe I could get some help paying for a different one. I’m in CA.
Many assisted living/nursing facilities allow a family member to spend as much time as they want (excluding extreme circumstances, such as COVID-19) with their family member. A lot of them are thrilled to have more helping hands around.
Thanks for this video. My Dad is 81 with progressive dementsia. It is my understanding that he is getting set up for Hospice Palliative here in his home. I live with him while My own home sits idle. Please cover Ho
My sister was just diagnosed with this disease FTD. We are all scared for her. She is only 53. She doesn’t want to do anything even get up out of bed, shower or visit with anyone. Her conversation are 5 mins at the most. It’s been a year and she had declined quickly.
There are also no PACE locations in my city and it is a large city of 1.5 million people so I cannot use that. Hospice care is usually for people declared terminal by either their primary care provider or a medicare medical doctor who evaluates them as having 6 months or less to live and you know they will not want to declare them terminal that far ahead of time because this would mean that medicare would actually have to pay/give coverage which they really do not want to do unless it is absolutely necessary and this is why people like my aunt and people like my uncle were only evaluated at the last possible moment and each got hospice care one week before they each died. That way medicare does not actually have to provide 6 months of actual hospice care and this is why all these people end up getting that coverage at the last minute because the medicare medical professionals are not going to want to diagnose them as terminal unless they can be absolutely sure that the person will not be around for more than 6 months.
These is a good overview of available programs. Unfortunately, assisted living is very expensive, and finding a good nursing home can be hit-or-miss. In the United States there are limited programs which allow the elderly to live in their own homes, and even less for patients with dementia who need 24/7 supervision.
Freedom care exists in my area but doesn't provide any training and in my county it doesn't provide any assistance besides just income for the caregiver there is no support you as a caregiver are stand alone. So your videos have been invaluable. The five things not to do video was amazing and literally saved my butt. I adjusted it to include Grandma's gnpd and she has not threatened me once since. She has gotten paranoid and she has made accusations but she is diffusable for the most part. And the three times in the past week that she has not been pursuaded i have just let her find out on her own. Question though what do we do when there is a battle of wills over a food safety issue? In our house it has been hard boiled egg protocol and eating spilled food off of the floor. I cleaned the spilled food up quickly before she could eat it and have given her more personal space emotionally and physically at meals so that incident has yet to repeat, but she still believes it is ok for her to eat a hot meal off of the floor.the egg thing I don't know.
Hi Natalie! My 89 yr old Mother has Dementia. I’ve been watching all your videos. So helpful! You mentioned the PACE Program but I couldn’t find the link for PACE. Could you please put the link on here where my question is posted? I would really appreciate that! Thanks & have a great day!🩷🩷
VA care is income based. I already talked to a social worker and filled out the VA application and brought my dad and all his paperwork and military papers down to the VA office and even though he is a WWII veteran and a veteran of the Korean War, the whole thing was a joke. I was told by the VA that he does not qualify for ANY aid because it is income based. It seems like a lot of these programs are income based and that it the problem I am running into because he does not qualify for most of them.
There was a time when visiting a VA clinic only poor crippled old vets were there. Then came my generation of older but not ancient vets. These days, when I go to the clinic I see young healthy kids pull up in new cars. The VA was supposed to be a last resort, these days it is just free or cheap depending on income. All vets qualify, however, if you are wealthy, there’s copayments, so go to a real doctor the care is so much better.
@@justplinkin4809 The VA is just an option that senior vets can make - Blue Cross, Blue Shield, Kaiser, etc. or the VA. When my hubby retired, he left Blue Shield and opted for the VA and yes, there was some paperwork, but we have received exemplary care. He's had a team of "real" doctors that go beyond what is needed. In fact, his health care is much better than mine!
@@textilady I have no problems with the VA since Trump fixed it. I go to civilian doctors and only see my VA doctor for my regular blood work and prescription visits. I will say my VA doctor is better than he used to be. He is still a government hack but not as bad.
To John I've been in Yuma az since April. Dad died June 24th and he was My mother's care giver. she's in late stage of dementia😒 not sure how he did it all thru covid? He had late stage Cancer. Bone and prostate. Very painful Way to go. Mom's always been very social but suffers from late stage dimension. Groundhog's Day X 10s she actually called the police on me three times saying that I was a intruder in the house because she doesn't recognize her oldest daughter 😒. Hopefully she'll be very happy and Yuma's. Best, emerald springs retirement memory center. ❤️ I Love My Mom.❤️
Sending you so much love. You will forever be a part of the Careblazer family. Thank you for being there for your loved one when they needed you most. 💖
I had placed my mom with dementia in a nursing home during the current pandemic. I was not ever able to actually see her room and building she was in. Recently I was able to visit. I am now crippled with guilt and sadness because it not what she is used too. She is on Medicaid and I know it is not private care. I just feel so overwhelmed with sadness. I want better for her. Should I find another facility? I am also very concerned about moving her. I afraid that it would be very hard on her mentally to move her again.
Hi Dani! This has given me an idea to do a future video on this topic. I will do it in the very near future for you. My short response is to give your mom some money to have. Give her small bills that you wouldn't mind if she loses. Given that she is stage 6, she may even believe it if you gave her fake money so then you can give her as much as she wants without worrying about her losing the "money." I hope this helps!
Where are the links for PACE and Home & Community Based Services? I am seeking assisted for my Father as well. He just requires about 2 hours a day for bathing and dressing my Mother. An hour in the morning and one at evening. I'm desperately seeking this assistance for him.
Thank you! I am so desperate and lost in this sudden situation as only caregiver for my mother. How can I have a conversation or chat with you, please? Consultation?
I would rather keep my Dad at home and will do what I can to make that happen. However, I know two other caregivers who had to place their loved ones in a nursing facility, and both said, to their surprise, their loved one was happier in the facility. Not sure why, but it seems that many folks with dementia feel animosity toward their main caregiver, so perhaps when that person becomes a visitor, the relationship can revert back to the initial one rather than the caregiver.
Hello. I realize this video is from 4 years ago, but need help, please. When you say that you'll "post a video below in the description", where is that? I can't find anything about the PACE program you mentioned here, when looking at all the info and links that are listed between this comment area and the actual video. I usually watch on my smart TV, but decided to look you up on my computer just so that I can access the links and info you often mention, and still can't find it. Thanks.
I live in South Africa and having a Carer move in, is a good option here... I am wondering how to inform my husband that Our day carer will be sleeping in our home and that he will be moving out of our bedroom and will be sharing a room with him !!
I am a live-in caregiver, and often I am described as a house guest! Or, if the family is accustomed to having a housekeeper, you could call them that. When I am needed to be near at night a cot in the dressing room or outside the bedroom door works. Depending on the patient's mental position, they may think they are in a hospital, so the carer could be called 'nurse'. But I do agree, moving the dementia patient out of their bedroom isn't a good idea.
Hi doctor my mother's 85 years and has Dementia. She has anger issues aggressive refuses to take her high blood medications. How would you handle that.
Does she really need the meds? What’s the harm in letting her do what she wants? Is the fight over the meds worth the stress? Is there another way to get her to take the medication? Putting it in a drink or a snack maybe. Sometimes deceptive tactics are needed even if you’re not comfortable or familiar with them. As long as it with the best intentions, you can do what needs to be done
Yes, if she is considered competent to do that. I don't understand how this could be done with out her knowledge. It usually would require her signature.
When a patient wakes up and thinks snakes or large spiders are in the bed ,is this considered hullicinations when he wakes to seeing these things. He ask me to turn the light on so he could get the spider out of the bed..
It sounds like it could be hallucinations. If the hallucinations occur only when waking up, they are called hypnapompic hallucinations and usually the fear goes away quickly. If the hallucinations occur at random parts during the day and don't go away easily, it can be more related to the dementia. Hopefully your loved one is able to calm down quickly, especially when the lights are turned on. Wishing you all the best of luck!
My husband screams at me everyday that his mother and her sisters hated me. We had his mother living with us for 12years while she had Altheimers. Now he has it and I feel like I'm dying from torment... all day and night, he's needy and angry at me. He wanders off, and if he can find the keys, he drives off. Police found him after a Silver alert after12 hours...I can't live like this. Been married for 42years.... it is killing me
You have to get some help you poor woman. If you can afford a place an ad in a local Facebook group book group or Something similar I don’t know if you’ve heard but caring for a spouse with dementia raises your chance of getting it. It must be the stress which it sounds like you’re definitely under.
Will you please help me? Where do I find help for my mother? No insurance. I am the only caregiver , both widows , living on my savings as only source of income. PLEASE HELP! WHERE do I go for meds, help etc? Please, any idea or info will be so appreciated.
Hi Carmen, I am so sorry you are navigating this on your own! I would start with your local area agency on aging. They can help you find resources in your area and help you apply for medicare/medicaid if your mother qualifies (and you are in the US). The Alzheimer's Association also has a hotline and website that you can call that can help you find resources as well: 800-272-3900 www.alz.org/help-support
My husband with dementia is at home with 24/7 care by me. The docs say the option now is a feeding tube since he can no longer eat without foods, meds, liquids going into the lungs. My husband doesn't want a feeding tube so is our option Hospice at this point?
If your loved one with dementia qualifies for MediCal and is on Social Security, then the nursing home will take their SS payment minus a stipend and there is no extra cost foe the care.
Dr Natalie you've been the best help I like this video I'm probably one of the few people or the only person seems like I can't get any of this care and the care that's there is beyond my financial reaches your videos throughout the last year and a half that I accidentally stumbled on his definitely help me beyond measure where where I live the the state has denied me every assistance available they denied my wife every assistance available this is very unique and something I don't understand they have used her dementia against her she leaves her dementia against me the state is taken away the only caregiver that's actually cared about her they have ripped apart our marriage they have actually the ones that that have not helped I needed someone just in the house a little bit when I went to work and that's everything they're trying their best to make to avoid that I get the only help that I need I am crushed I am heartbroken beyond repair your videos have absolutely been a lifeline for me for all the things I've endured as a caretaker to have that all ripped out from underneath me only because they can thank you I some people I don't know if anybody else hasn't been able to get any help that you required but I've checked all those avenues when I'm from and they exist only if I was a richer person but my wife never qualified thank you
Thanks for this video. My Dad is 81 with progressive dementsia. It is my understanding that he is getting set up for Hospice Palliative here in his home. I live with him while My own home sits idle. Please cover Ho
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Hi Careblazers! What other tips do you have to help care for your loved one with dementia in the home?
I don't see the link you mentioned in the description. The link to finding whether PACE program in my area. Please post links and resources...
I don’t either. I’m interested in the PACE program
Oh! And you saying “THIS IS A SUBJECT that many have very strong emotions about” helped me! I forget that it’s EMOTIONAL for anyone who is concerned about all the scary implications or consequences for their loved one! I’m not alone. And neither is my situation unique. I don’t want to have guilt! AND .. I’m learning that when being the sole caregiver is causing many health crises for me it’s not a decision that is ONLY based on the loved one’s wishes or what I imagined I’d be able to handle!
Blessings to all who are Careblazer and Dr Natali!
I appreciate the suggestions but most of what you mention is not an option for most people. You either have to be poor in order to qualify for help or rich enough to pay for it yourself. If you're just a regular person, all these homes, facilities and programs won't help you. That's not your fault of course, it just sucks.
Heavenly father I pray that you keep the person reading this alive, safe, healthy and financially blessed. Amen.
Thank you precious one.
I 🙏 for God's Mercy daily...
Thank you my wife has dementia and me with a stroke we're both in a nursing home together. Keep us in your prayers 😢😢😢❤
Amen!
Thankyou, I receive!
Sometimes the worry about nursing homes are the high price tag that they have. In my area in particular they run from $5,000 to 7,500 per month. That is impossible for some retired people.
There's no way my friend or her family can do that. The question is "What, then?" So far, it seems to be living with her only remaining family members, who have two very young children who are already affected by my friend's aberrant behavior when she stays there for a few days. It's a quandary.
@@opinionated4219 It really is. Dementia is a BEAR of a problem and very, very difficult to live with. I am an only child with two parents who have dementia. I, also, have young children. I had a social worker tell me early on that if I wanted to keep my kids, I need to make plans for them to live elsewhere... because "It only takes one time for the police to come to your residence for your children to be removed." I was lucky in that I was on a waitlist for a care home when the police came. The cost of the care home? $6k per person, per month. It was a cheaper one. It goes up 4% every. single. year.
Probably ur best video. Tried putting my 78yr old in a nursing home rec. by Dr. Their total focus was on wheelchairs and adsorption diapers. After 3 months in wheelchair, u forget how to walk. Diapers are the most cost-efficient way to run a nursing home b/c they can't afford a 30 min. wait while the patient is on potty. Falls continued during the 3 mo. stay b/c Medicare doesn't allow a restraint on wheelchairs.
Wife is now at home where hoesekeepers, Amazon and HEB curbside pickup are doing a fair job. 1K$ vs $6K in nursing home.
Thank you, glad it was helpful.
It’s kindof a double edged sword with the wheelchairs, eh? Keeps them from being prisoners, but it also gives too much mobility for some people. My MIL, who had a stroke, was in a wheelchair, was left for literally five minutes, and fell down some stairs. (She was at home, and I TOLD them that she was going to, but nobody listened🤷♀️)
Great ideas ! I have both my parents living with us. They tried an assisted place . I wasn’t overly impressed with it. My dad was the difficult one in the assisted living, here at home he’s on auto pilot it’s my mom who is very very needy . I was still working full time 3 days a week( I’m a nurse ) but cut back a day. I work nights so mom is ok . All day cares are shut down . I have thought of having 2-3 ladies over like my mom just to hang out for a few hours and give families a much needed break.. My mom loves people !
How are you managing? Something about your comments touches me so much.
Thank you Doctor. This video hits home and is much appreciated 🙏
Thankyou, I'm glad you find it helpful!
Thank you for taking time to explain these services.
these videos have helped me a lot ! ...
I"m kinda glad that my mom is in a nursing home, they seemed to be taking care of her. She just stays in bed all day and waits for people to come see her. I really hope she doesn't have to go to hospice, I probably will need professional help,wow!
Thanks for takn the time
I'm disable and can't take adiquitly care of my mother .because of a back injury I'm mostly bed ridden . 4 time my mother filled my house up with gas , she puts our frozen foods from frig into lower cabinets , closets and around the house . I find my important mail in her bedroom months to late to respond . She sends strangers knocking at the door straight to my room when I'm laying down and turns my friends away saying I'm not home. She tries to cook behind my back putting on food to fry then laying down herself 3 times she caught the stove on fire . she " IS " going to hurt us both. No nursing home will take her without a doctor and list of meds and she won't go to doctors . I only wait for that one accident that puts her or myself in the ER so I can ask for state help . I'm completely lost because I don't feel this is the right thing to do. I completely alone on this.
If you can’t do it, you should ask for help. It’s hard to admit that to yourself. It feels like you’re letting them or yourself down
God bless you! So much wonderful information!
Thank you so much. Your videos and information and approach are so very helpful. Blessings to you.
Hi Dr. This was a very good video, thank you for posting and making it. I am a caregiver to my sister who has early onset Alzheimer’s, she’s 54. She does not qualify for Medicaid although she does have Medicare. We are in need of free or low cost services for her. We’ve talked with a few social workers and have come up with no helpful ideas. Do you have any information on where to find low cost or free services to help my sister?
My j case exactly! No insurance and no idea of eere to go or what to do. Only 30 days of meds left. Only God knows my concern and stress.
Does your LO have supplemental insurance? Either way, I believe that Medicare does provide some help for non-medical care or if there are any safety measures that need to get done (hand rails in bathroom or in hallways). My MIL has Blue Cross Medicare plan and their plan is called “Essential Extras”. Contact the customer service on the back of her health care card and ask.
Another option is to try to contact your regional Area Agency on Aging office and see which programs you can sign up for (there is a program for your LO or one for the caregiver). They may have access to a grant that can help pay for respite care or adult day care services.
Bubblegumswitch l
I care for my 86 year old husband with dementia and I too am exhausted. Listening to you carefully.
Wow!! You are truly amazing to still be giving care!! The Lord Bless you!!
Wonderful options! Thank you!
Thanks for this video, great ideas. Has anyone gone with memory care over a nursing home? I am at the point where I am looking into this and memory care seems like a good choice but I'm feeling lots of guilt.
Thank you for this very helpful video 🥰🥰🥰
Wiow! a boatload of great ideas, thanks!
Very informative.
I would give my mom until Christmas. She lives with me, and it’s getting VERY hard. She’s barely mobile, I do everything to make her safe and comfortable, but she still thinks she can do stuff, amd gets PISSED. The other day she told me she was going to take a cab! “I can, and I WILL!” 🙈I DO have time to clean, etc. but the energy, I just don’t have any more. This was a great video, thank you. I have no idea how to apply for anything. My mom has Kaiser, I don’t know about medical. I don’t believe she’s on state at all. I wouldn’t want to put her into a state hospital, but maybe I could get some help paying for a different one. I’m in CA.
Thank you so much. 8’ in the same boat.
Many assisted living/nursing facilities allow a family member to spend as much time as they want (excluding extreme circumstances, such as COVID-19) with their family member. A lot of them are thrilled to have more helping hands around.
Thank you Dr. for this information as I didn't know about a few...
Glad it was helpful!
Thanks for this video.
My Dad is 81 with progressive dementsia.
It is my understanding that he is getting set up for Hospice Palliative here in his home. I live with him while My own home sits idle.
Please cover Ho
My sister was just diagnosed with this disease FTD.
We are all scared for her. She is only 53. She doesn’t want to do anything even get up out of bed, shower or visit with anyone. Her conversation are 5 mins at the most. It’s been a year and she had declined quickly.
fabulous ideas, thank you.
You are welcome!
There are also no PACE locations in my city and it is a large city of 1.5 million people so I cannot use that. Hospice care is usually for people declared terminal by either their primary care provider or a medicare medical doctor who evaluates them as having 6 months or less to live and you know they will not want to declare them terminal that far ahead of time because this would mean that medicare would actually have to pay/give coverage which they really do not want to do unless it is absolutely necessary and this is why people like my aunt and people like my uncle were only evaluated at the last possible moment and each got hospice care one week before they each died. That way medicare does not actually have to provide 6 months of actual hospice care and this is why all these people end up getting that coverage at the last minute because the medicare medical professionals are not going to want to diagnose them as terminal unless they can be absolutely sure that the person will not be around for more than 6 months.
Check out "Extended Care Hospice"--not only for the dying (well, we're all dying!)
These is a good overview of available programs. Unfortunately, assisted living is very expensive, and finding a good nursing home can be hit-or-miss. In the United States there are limited programs which allow the elderly to live in their own homes, and even less for patients with dementia who need 24/7 supervision.
Freedom care exists in my area but doesn't provide any training and in my county it doesn't provide any assistance besides just income for the caregiver there is no support you as a caregiver are stand alone. So your videos have been invaluable. The five things not to do video was amazing and literally saved my butt. I adjusted it to include Grandma's gnpd and she has not threatened me once since. She has gotten paranoid and she has made accusations but she is diffusable for the most part. And the three times in the past week that she has not been pursuaded i have just let her find out on her own. Question though what do we do when there is a battle of wills over a food safety issue? In our house it has been hard boiled egg protocol and eating spilled food off of the floor. I cleaned the spilled food up quickly before she could eat it and have given her more personal space emotionally and physically at meals so that incident has yet to repeat, but she still believes it is ok for her to eat a hot meal off of the floor.the egg thing I don't know.
Hi Natalie! My 89 yr old Mother has Dementia. I’ve been watching all your videos. So helpful! You mentioned the PACE Program but I couldn’t find the link for PACE. Could you please put the link on here where my question is posted? I would really appreciate that! Thanks & have a great day!🩷🩷
VA care is income based. I already talked to a social worker and filled out the VA application and brought my dad and all his paperwork and military papers down to the VA office and even though he is a WWII veteran and a veteran of the Korean War, the whole thing was a joke. I was told by the VA that he does not qualify for ANY aid because it is income based. It seems like a lot of these programs are income based and that it the problem I am running into because he does not qualify for most of them.
There was a time when visiting a VA clinic only poor crippled old vets were there. Then came my generation of older but not ancient vets. These days, when I go to the clinic I see young healthy kids pull up in new cars. The VA was supposed to be a last resort, these days it is just free or cheap depending on income. All vets qualify, however, if you are wealthy, there’s copayments, so go to a real doctor the care is so much better.
@@justplinkin4809 The VA is just an option that senior vets can make - Blue Cross, Blue Shield, Kaiser, etc. or the VA. When my hubby retired, he left Blue Shield and opted for the VA and yes, there was some paperwork, but we have received exemplary care. He's had a team of "real" doctors that go beyond what is needed. In fact, his health care is much better than mine!
@@textilady I have no problems with the VA since Trump fixed it. I go to civilian doctors and only see my VA doctor for my regular blood work and prescription visits. I will say my VA doctor is better than he used to be. He is still a government hack but not as bad.
My Mom qualified for 13 hours a week in help and the VA didn't ask about her income.
Thank you for this info. I’m not seeing the links you mentioned in the description though? Thanks so much
To John I've been in Yuma az since April. Dad died June 24th and he was My mother's care giver. she's in late stage of dementia😒 not sure how he did it all thru covid? He had late stage Cancer. Bone and prostate. Very painful Way to go. Mom's always been very social but suffers from late stage dimension. Groundhog's Day X 10s she actually called the police on me three times saying that I was a intruder in the house because she doesn't recognize her oldest daughter 😒. Hopefully she'll be very happy and Yuma's. Best, emerald springs retirement memory center. ❤️ I Love My Mom.❤️
Sending you so much love. You will forever be a part of the Careblazer family. Thank you for being there for your loved one when they needed you most. 💖
I had placed my mom with dementia in a nursing home during the current pandemic. I was not ever able to actually see her room and building she was in. Recently I was able to visit. I am now crippled with guilt and sadness because it not what she is used too. She is on Medicaid and I know it is not private care. I just feel so overwhelmed with sadness. I want better for her. Should I find another facility? I am also very concerned about moving her. I afraid that it would be very hard on her mentally to move her again.
Pace available in Tennessee?
What if you can’t afford an assisted living home. They don’t take Medicaid or Medicare.
Dear Careblazers, my Mom has dementia (stage 6) and she kept asking for money. How to handle that? thanks
Hi Dani! This has given me an idea to do a future video on this topic. I will do it in the very near future for you. My short response is to give your mom some money to have. Give her small bills that you wouldn't mind if she loses. Given that she is stage 6, she may even believe it if you gave her fake money so then you can give her as much as she wants without worrying about her losing the "money." I hope this helps!
Could you please kindly update us with the newly developed drug for Dimentia. Thanks 🙏
Thank you for not playing that music all the way thru, uggg a bit loud and distracting.
Hi i am trying to find the site that pays a love one to take care of a family member in new jersey
Milta Miranda is your loved one a veteran of the military? If so, you could apply for aid and attendance which would pay family to provide care.
The music is a distraction & too loud. Other than that Great video.
Where are the links for PACE and Home & Community Based Services? I am seeking assisted for my Father as well. He just requires about 2 hours a day for bathing and dressing my Mother. An hour in the morning and one at evening. I'm desperately seeking this assistance for him.
Thank you! I am so desperate and lost in this sudden situation as only caregiver for my mother. How can I have a conversation or chat with you, please? Consultation?
Where are all the links you said would be below?
I would rather keep my Dad at home and will do what I can to make that happen. However, I know two other caregivers who had to place their loved ones in a nursing facility, and both said, to their surprise, their loved one was happier in the facility. Not sure why, but it seems that many folks with dementia feel animosity toward their main caregiver, so perhaps when that person becomes a visitor, the relationship can revert back to the initial one rather than the caregiver.
Adult day care won't accept AD patients in my area. There was one but closed after budget cuts.
The music is too loud and lasts too long...It overpowers your videos, which are great.
Thank you for all your videos....you truly are providing a wonderful service.
Hello. I realize this video is from 4 years ago, but need help, please. When you say that you'll "post a video below in the description", where is that? I can't find anything about the PACE program you mentioned here, when looking at all the info and links that are listed between this comment area and the actual video. I usually watch on my smart TV, but decided to look you up on my computer just so that I can access the links and info you often mention, and still can't find it. Thanks.
How do you get to the first step? How do I get a loved one assessed when they don’t want to or believe they are sick?
I live in South Africa and having a Carer move in, is a good option here... I am wondering how to inform my husband that Our day carer will be sleeping in our home and that he will be moving out of our bedroom and will be sharing a room with him !!
Anthony, I wonder if it might be better for your husband to remain in his room for comfort and familiarity?
I am a live-in caregiver, and often I am described as a house guest! Or, if the family is accustomed to having a housekeeper, you could call them that. When I am needed to be near at night a cot in the dressing room or outside the bedroom door works. Depending on the patient's mental position, they may think they are in a hospital, so the carer could be called 'nurse'. But I do agree, moving the dementia patient out of their bedroom isn't a good idea.
Hi doctor my mother's 85 years and has Dementia. She has anger issues aggressive refuses to take her high blood medications. How would you handle that.
Does she really need the meds? What’s the harm in letting her do what she wants? Is the fight over the meds worth the stress? Is there another way to get her to take the medication? Putting it in a drink or a snack maybe. Sometimes deceptive tactics are needed even if you’re not comfortable or familiar with them. As long as it with the best intentions, you can do what needs to be done
Thank you. If one sibling has power of attorney without mom's knowing and mom has moderate dementia can mom change POA?
Yes, if she is considered competent to do that. I don't understand how this could be done with out her knowledge. It usually would require her signature.
When a patient wakes up and thinks snakes or large spiders are in the bed ,is this considered hullicinations when he wakes to seeing these things. He ask me to turn the light on so he could get the spider out of the bed..
It sounds like it could be hallucinations. If the hallucinations occur only when waking up, they are called hypnapompic hallucinations and usually the fear goes away quickly. If the hallucinations occur at random parts during the day and don't go away easily, it can be more related to the dementia. Hopefully your loved one is able to calm down quickly, especially when the lights are turned on. Wishing you all the best of luck!
Thank you so much your videos,they are very important to me in this journey with my husband.
My husband screams at me everyday that his mother and her sisters hated me. We had his mother living with us for 12years while she had Altheimers. Now he has it and I feel like I'm dying from torment... all day and night, he's needy and angry at me. He wanders off, and if he can find the keys, he drives off. Police found him after a Silver alert after12 hours...I can't live like this. Been married for 42years.... it is killing me
You have to get some help you poor woman. If you can afford a place an ad in a local Facebook group book group or Something similar I don’t know if you’ve heard but caring for a spouse with dementia raises your chance of getting it. It must be the stress which it sounds like you’re definitely under.
I'm trying to get a waver for alzheimers patients
Will you please help me? Where do I find help for my mother? No insurance. I am the only caregiver , both widows , living on my savings as only source of income. PLEASE HELP! WHERE do I go for meds, help etc? Please, any idea or info will be so appreciated.
Hi Carmen, I am so sorry you are navigating this on your own! I would start with your local area agency on aging. They can help you find resources in your area and help you apply for medicare/medicaid if your mother qualifies (and you are in the US). The Alzheimer's Association also has a hotline and website that you can call that can help you find resources as well: 800-272-3900 www.alz.org/help-support
The music is louder than your voice.
My husband with dementia is at home with 24/7 care by me. The docs say the option now is a feeding tube since he can no longer eat without foods, meds, liquids going into the lungs. My husband doesn't want a feeding tube so is our option Hospice at this point?
Yes, it sounds like hospice would be appropriate at this point just based on the fact that feeding tube was considered. Sending love your way.
Thank you. We have hospice now and they are helping me keep my husband comfortable as we enter this last stage of dementia.
Thanks for the information, but LOSE THE MUSIC! (please!)
Please the music is got to go , your videos are great
I got rid of the music about 2 years ago :) This video is from 2017.
If your loved one with dementia qualifies for MediCal and is on Social Security, then the nursing home will take their SS payment minus a stipend and there is no extra cost foe the care.
All of the adult care centers are closed to to covid 19!
Please reduce the relative volume of the music compared to your voice. I found it made it more difficult to follow your words.
Ditch the music the chimes
Oh Man..this music in the background is TERRIBLE 😭😭😭😭😭😭😭
Are you a PhD. Or M.D.. PLEASE STATE THIS. WE the public need to know. The music is distracting. The advice is good.
Hi! . I am a PsyD. A geropsychologist. I took out the music over my voice about 6 months ago...unfortunately, I can't change these older videos.
Assisted Living is for people with money. If you're low income, tuff !
No, some of the facilities have low prices for dementia patients.
I don't want to put husband in a nursing home
Stop that music!
VA help😂. only if you have $120,000 (including home). in assets otherwise 0
Why in gods name would anyone put this loud and this annoying music over such important information. Could not even watch it. Two thumbs down
Dr Natalie you've been the best help I like this video I'm probably one of the few people or the only person seems like I can't get any of this care and the care that's there is beyond my financial reaches your videos throughout the last year and a half that I accidentally stumbled on his definitely help me beyond measure where where I live the the state has denied me every assistance available they denied my wife every assistance available this is very unique and something I don't understand they have used her dementia against her she leaves her dementia against me the state is taken away the only caregiver that's actually cared about her they have ripped apart our marriage they have actually the ones that that have not helped I needed someone just in the house a little bit when I went to work and that's everything they're trying their best to make to avoid that I get the only help that I need I am crushed I am heartbroken beyond repair your videos have absolutely been a lifeline for me for all the things I've endured as a caretaker to have that all ripped out from underneath me only because they can thank you I some people I don't know if anybody else hasn't been able to get any help that you required but I've checked all those avenues when I'm from and they exist only if I was a richer person but my wife never qualified thank you
Thanks for this video.
My Dad is 81 with progressive dementsia.
It is my understanding that he is getting set up for Hospice Palliative here in his home. I live with him while My own home sits idle.
Please cover Ho
Hospice Palliative care