Cognitive Disengagement Syndrome vs ADHD - Part VI: Treatment

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  • Опубликовано: 28 ноя 2024

Комментарии • 112

  • @mateolamuno6629
    @mateolamuno6629 Год назад +42

    During an appointment with my insurance's psychiatrist I brought up a limited response to stimulant medication. Even though it helped with some ADHD symptoms (which I manifest), specifically improving sustained attention and emotional dysregulation, it didn't help with other complaints I had, mainly: slow behavior, drowsiness for several hours of the day, noticeable slowness in everything I do. My psychiatrist suggested that maybe I didn't have ADHD and sent to get a sleep study, which came out with within normal range results, some marks being even very good, and therefore I wasn't eligible for any sleep apnea treatment. Desperate, I googled "Psychiatric disorder with sluggish as a symptom" and that led me to an Additude article about SCT. I brought it to my psychiatrist but the response was they did not treat on speculative disorders, and just left me with an increase dose of stimulant. To this day, I don't feel the stimulant medication has the effect that professionals suggest it should have but I've hit a wall with my insurance and psychiatrist. Even if for me this is a lost cause and I can't receive treatment until this disorder appears in the DSM-5.
    Is there a way for me to connect with professionals that are currently researching this disorder?
    I pretty much check every single symptom to different degrees and they have been consistent since childhood. I wonder if my experience could inform the research and would gladly offer my time to fill out questionnaires, participate in studies, or even go through medication trials should they be developed.

    • @jinny9997
      @jinny9997 Год назад +8

      Everybody's different, but Strattera helped with my drowsiness. It has not helped much with many of the ADHD problems such as sustained attention. The problem came up that I have tachycardia on a high dose of Strattera, so I haven't gotten to try stimulants.
      The chicken-egg of physical maladies and psychological maladies is so complicated. I have excessive sleepiness in response to eating gluten. My mom gets worsening inflammatory responses (and mental sluggishness) to several types of foods the older she's gotten and also has always ADHD symptoms. She grew up in a traumatic environment too. I suspect SCT could be pretty complicated and might even occur for different reasons in each of us.

    • @yfdvjjjhvdd
      @yfdvjjjhvdd Год назад +8

      SOMEONE WITH THE SAME EXPERIENCE AS ME THANK GOD

    • @yfdvjjjhvdd
      @yfdvjjjhvdd Год назад +4

      I SECOND EVERYTHING YOU SAID.

    • @russellbarkleyphd2023
      @russellbarkleyphd2023  Год назад +33

      Probably the place doing the most research right now is Steve Becker at Cincinnati Childrens Hospital. They are studying adults and his colleague aloe French just set up the first CDS clinic in the US there. Let them know of your interest in research.

    • @mateolamuno6629
      @mateolamuno6629 Год назад

      Thank you @@russellbarkleyphd2023!

  • @giovannifontanetto9604
    @giovannifontanetto9604 Год назад +21

    Once I finally had vyvance, I could study enough to my calculus tests, but even then, most of the answers were wrong by simples reasons( a plus or minus sine), or I would lose track of time. By creating a rigorous attention routine in every exercise, by going through what was being asked and the calculations multiple times, and constantly looking at a timer, (and doing it for three months), only then I passed calculus 3, with a 10. I believe training therapy should be tested for the accuracy of the homework of CDS people.

    • @sharonaumani8827
      @sharonaumani8827 Год назад +8

      Definitely agree about training to be tested for accuracy! My first college Algebra class, I got a "C" grade because of several careless mistakes. Following that experience, I always forced myself to review the entire test a second time [I had time....I either knew it, or I didn't!]. By doing so, I would catch all of my careless mistakes and I ended up with an "A" in the class.

    • @hardcorestymie
      @hardcorestymie 10 месяцев назад

      @@sharonaumani8827 One of a ton of coping mechanisms that got me As in college across 3 degrees, and As/Bs for 4th degree. Even before I was diagnosed and medicated. Was critical to review my work before handing tests or even homework in.

    • @hardcorestymie
      @hardcorestymie 10 месяцев назад

      I do wonder if your dosage may have been slightly too low? Sounds like your working memory, concentration, and focus were not fully attenuated. Fully optimising symptom reduction without going high enough for euphoria and to prevent building tolerance.

    • @giovannifontanetto9604
      @giovannifontanetto9604 10 месяцев назад

      adhd stimulant are not a complete treatment, you need to create the mechanisms and habits that, together with the medicine, negate the simptoms. Barkley himself has said this multiple times. I have taken even 60 mg a day of vyvance and its still not enough( maximum is 70). But again, even high intelligence neurotipicals struggle in engineering college.@@hardcorestymie

    • @zacharishubin3959
      @zacharishubin3959 3 месяца назад

      Hey, Giovanni. Would you be willing to go over more of what you did for your calc class to pass it either in a video or a blog? I flunked Calculus 1 four times and I had the same issues you did. I would love to learn more about what you did

  • @MeredithDomzalski
    @MeredithDomzalski 11 месяцев назад +5

    Mindfulness isn't exactly the same as disengagement from the environment. While many focus on the breath, some will also allow you to focus on external anchors in the environment like all of the information taken in by the senses similar to grounding exercises. That said, your points about PTSD and anxiety are very true, and more caution should be urged in this area than what we're seeing currently.
    I identify with a lot of the symptoms of CDS, and I can say that mindfulness *seems* to help me more than it harms me. The best way I can describe mindfulness is that it feels like the opposite of how you described mind-blanking in the last video. That said, I haven't done very large doses of mindfulness, and if I increase it too much, it's possible it would cause issues for me as well.
    Take that with the usual mound of salt of any anecdotal evidence of n=1.

    • @craig01001
      @craig01001 10 месяцев назад +3

      I have the same experience, in fact, I think that there are large differences in different types of meditation and some act as accelarators for 'mind blank' or as direct counters.
      For example: 'grounding in the body' / where you have to disengage from mental activity to feel moment-by-moment is very different from breathing meditations where you visualize the breath's movements (mental activity)or focus on a single point of contact until you get 'absorbed' in it.

  • @Herfinnur
    @Herfinnur Год назад +13

    Thank you so much for publishing this lecture series. CDS accounts for every single symptom that doesn't jive with my ADHD diagnosis. I have a terrible time trying to plan for the future and understanding calendars or schedules and I'm not sure I can even feel the passage of time, which must be an ADHD thing.
    But brain fog, mindwandering and fantasizing has been a serious problem since probably the beginning of elementary school. As a child I was terribly aware of what was wrong or right, socially unacceptable or dangerous. I was particularly focused on what other people thought.
    I tried so hard to be a good student, partially because I was always genuinely interested, but also because I felt bad for the teachers standing up there by the blackboard, trying to make us interested in their subject. But my mind would nevertheless wander way the hell of into a different galaxy.
    I didn't get any treatment or diagnosis, but at age 16 I decided that enough was enough, and that I would force myself to do anything I noticed myself being scared of. I now guess that would be called exposure therapy. I'm still very aware of what other people might think, but I can very easily go against expectations without any anxiety or remorse (as long as I'm not doing anything that's actually cruel or bad, of course).
    The weird thing is that when external forces demand that I learned something quickly, I can acquire skills and information with an almost savant speed. I don't know if that's true for STEM subjects though.
    That made me think I might have autism, also because I was embarrassingly late to the game with girls, drinking or partying, but except for maybe info dumping (duh!), none of the diagnostic symptoms for autism really rang true for me.
    The CDS symptoms are another thing though: twelve for twelve! So I guess I have CDS with the added ADHD symptoms of time blindness, decision fatigue (or is that CDS?), serious memory retrieval and object permanence problems, and - obvious by my comments section behaviour - jammering on endlessly from (justified and time proven) fear I will forget all the information in my head if asked at a later date.

  • @PaulMarsicano
    @PaulMarsicano 10 месяцев назад +5

    SCT/CDS doesn't seem mentioned together with chronic fatigue syndrome CFS. They seem to overlap quite a bit (many symptoms are the same). Also both are commonly comorbid with what is called ADHD (?).
    The amount of overlapping diagnoses is confusing but I'm sure there's good reasoning behind it.
    Thank you for the all the videos from someone with diagnosed ADHD and self-diagnosed SCT. Please keep up the good work!

  • @danielward4091
    @danielward4091 Год назад +6

    Thank you so much for putting this together. This is me for sure. I'm looking forward to ten years from now when we have more research done.
    For the record I take Atimoxitin and it does wonders for my mind wondering.
    My math inability spelling problems and ability to be accurate on documents do indeed hold me back in the workplace.
    I'd be willing to be a research subject in future studies.

  • @Chriskijiji
    @Chriskijiji 7 дней назад

    I was diagnosed with sct/CDS. And mind blankness is surprisingly hard to explain. I'm glad it was explicitly mentioned in addition to the mind wandering.

  • @Averagesasquatch
    @Averagesasquatch 3 месяца назад +1

    This disorder fits me better than any of the other ones I've ever had doctors try to diagnose me with. And yoga was many times over the best treatment I've ever had.
    One point, meditation isn't really clearing your mind entirely. It's clearing your mind of clutter. It's focusing on one thing instead of many, your breath, for example.
    In reading books about parenting they talked about the default mode network and it seemed to me that I had excessive activity there. I've told many therapists and psychiatrists that I wish they could prescribe yoga or occupational therapy to do focus training. They often became angry with me. Their malicious ignorance is so damaging.

  • @manizales18
    @manizales18 9 месяцев назад +5

    Thank you for doing this lecture. I was recently diagnosed with ADHD. when i had the conversation with my dad sbout it he mentioned alot of the same innatentive symptoms that i have. However, he often mentioned the daydreaming, something i couldnt relate to and was confused by. I think my dad may more likely have this than ADHD himself. I am going to share this with him. Thank you.

    • @leogrrrl5876
      @leogrrrl5876 5 месяцев назад

      It's interesting that you don't really relate to the Daydreaming symptom. I also find I hesitate over this one. Do you otherwise relate to symptoms of CDS &/or Inattentive ADHD moreso than the Hyperactive & Impulsive version?

    • @coconutandcardamom2897
      @coconutandcardamom2897 3 месяца назад +1

      @@leogrrrl5876 I also don't. Daydreaming means basically making up fake scenarios in your head. For me it is more complete disengagement. Like my brain falls asleep.

    • @leogrrrl5876
      @leogrrrl5876 3 месяца назад

      @@coconutandcardamom2897 That can happen to me sometimes when I'm stressed or overstimulated.
      Otherwise I wonder if it's moreso how we can appear to other people at times?
      Because for me I experience my mind as quite active & even analytical. But I have Aphantasia so I can't visualize. I tend to think in words & often hyperfocus on concepts & reading. But often times I'm doing more of this on my own or at night, than when I was a child.
      I am much more likely Hyperlexic than Hyperphantasic, so I wonder if this creates a difference somehow. But I still relate strongly to other aspects of CDS/Inattentive ADHD.
      It's a bit confusing & I wonder if it would effect diagnosis, but I haven't received an answer yet from Dr. Barkley on the matter.
      (My apologies if I lost you, &/or you haven't seen his video on Aphantasia).

  • @Mightydoggo
    @Mightydoggo Год назад +4

    Very interesting and kind of a bummer, because the described symptom cluster of CDS almost perfectly matches me. I did got diagnosed with ADHD (inattentive) ~16 but didn´t really got into medication until 28 because in my country, ADHD just wasn´t a thing, let alone adult ADHD. Isn´t much today either, though they start catching on. There´s just too few experts. CDS is pretty much unknown and when you try to bring it up with your medical professional, they will just raise eyebrows. Doesn´t seem to get taken seriously, similar to ADHD ~20 years ago. So it´s really hard to find people to talk about this. Professionals, anyway.
    Right now I´m on MPH (30mg, 20 morning 10 noon) I tried literally everything else before that, from self help groups, tight schedules, emotional responsibility by telling people what I´m going to do so I don´t want to fail them, pretty much every drug that doesn´t throw you straight into the grave... Hadn´t much luck yet. It´s not that my life is too bad, as we do have a good social system here, but it ain´t much either and I kinda hate my self for wasting all that potential tbh.

  • @H-GWatson
    @H-GWatson Год назад +8

    Well shit. I was diagnosed with ADHD recently and now Im wondering if its actually been CDS all along. Taking meds has helped a bit, but not as well as I would like and upping the dose hasn't done much to improve things. The lack of impulsivity, constant daydreaming, and poor performance in sports all seen in CDS match with my life experience and its quite depressing to see so little knowledge in effective treatments. I will continue to experiment around with medications and cognitive techniques to see if anything works for me and update this comment accordingly.
    Thanks for providing this information.

    • @moafwaz5563
      @moafwaz5563 Год назад +3

      same, I found Dr Barkley yesterday and today found out about CDS and it explains a lot. The best I ever was was when I was self medicating with Modafinil and an SSRI, working memory was so much better it was ridiculous and after going from Atomoxetine, ritalin and vyvanse (both IR and XR), it's starting to feel like it makes a bit more sense. Sadly we are very behind in the UK when it comes to these matters.

  • @RoxanaApollonio
    @RoxanaApollonio 3 месяца назад

    Thank you very much Dr Russell, we are so fortunate you upload these videos

  • @tsuntsun657
    @tsuntsun657 Год назад +20

    As someone nearing his 30s, I really hope for breakthroughs in effective treatment plans for CDS/SCT within the next decade
    - Someone with comorbid ADHD & CDS who has tried nearly every single ADHD medication. Currently trying Qelbree after giving Strattera a shot

    • @KB-tu4zw
      @KB-tu4zw Год назад +2

      I got diagnosed at 51 yrs old after 3 decades of being treated for depression and anxiety. The inattentive presentation. I have been on Wellbutrin for couple decades and it’s the only anti depressant that worked for me but it wanes in effectiveness. My doctors had tried every combination of meds etc and ran out of options. Stayed on Wellbutrin and Xanax. Then I guess I got the right therapist and she picked up on it. Pissed me off because I thought she wasn’t really listening to me. Since then, 2 different psych docs and 2 different therapist agree I have it. I kept questioning it. I have gone down the rabbit hole of YT and now researching it and I think I have it but like you think I have both. About a month ago I stopped taking Straterra. I tried it for 6 months! Longest time I have ever endured massive amount of side effects in order to increase to a level that might help my executive dysfunction. I stopped feeling overwhelmed and I lost 30 pounds on it. What I realized was happening though was it was blunting all my emotions. I didn’t like that and as far as the executive function side of things it made them worse in the sense that my anxiety was blunted so I basically didn’t care if I missed a deadline or my house was getting worse. So, stopped it and tried Quelbree and quit it QUICK! It was like I was headed 100 mph to major depression. Now, going the stimulant route. So far results up in the air. Vyvanse was a smooth on but after that peak I was so damn irritable and after it wore off I would have this unbelievable strong feeling to binge eat. So now on Adderall, IR, 5 mg didn’t do it so now on 10mg AM, 10mg Noon, 5 mg before 6pm to keep the wanting to binge off. I don’t think 10mg is enough. Wait and see. Hope Quelbree helps you.

    • @tsuntsun657
      @tsuntsun657 Год назад +5

      I’ve tried Strattera for a few months (because it was a non-stimulant that you had to let build up in your system as you know) and stopped taking it after giving it a solid go. I stopped taking it because just like you, it gave me severe emotional blunting and turned me into an “emotionless zombie” as well as erectile dysfunction. Everything was greyed out / toned down and in regards to the things I cared for and deeply enjoyed - I couldn’t elicit the same feelings I had for them anymore
      I’ve tried stimulants such as Ritalin, Concerta, Dexedrine, Adderall IR & ER, and Vyvanse, but they all gave me painful headaches and terrible “tunnelvision”. The higher the dose, the worse it got. Plus the comedown period for each stimulant left me completely drained - I could only handle ingesting Adderall IR twice a day at most meaning only 6-8 hours of coverage
      I’ve read a lot of stories about people not finding success on Qelbree or finding the side effects too strong or intolerable, but I decided to give it a go anyways since I was a non-responder to a lot of the medications I have tried and this could possibly work for me
      I’ve been on Qelbree 200mg for 1.5 months so far and the results have been very pleasant. I’ve lost 5-10 lbs due to my appetite being suppressed (am 10-15 lbs away from my ideal weight). I’ve started maintaining a consistent sleep-wake routine. I’ve been sleeping at night and waking up in the early morning whereas before it used to be very, very erratic. I exercise everyday now. I’ve picked up lifting and jogging / walking. I struggled with showering everyday and basic hygiene and now Ive managed to make it a daily habit. The side effects were all mild for me and most disappeared over the course of a month. All in all, I’ve adapted a much healthier lifestyle and diet
      It’s very strange and does not seem placebo at all to me personally, but I can actually feel a very strong noticeable difference everyday when I take my pill in the morning and when I don’t. When I wake up, I feel just like my usual unfiltered, “untamed”, normal ADHD self, then within 5-10 minutes of taking my pill, I feel like myself but better - like a more functional member of society.
      I am still “slow”, and I still have my bad days and days where I’m feeling very foggy and out of it, but overall Qelbree might be the one for me. It doesn’t completely help with all my ADHD symptoms and SCT/CDS ones, but it has made my life a lot better than the one I’ve led without it. Hopefully my prior authorization goes through because Qelbree costs $200-400/mo out of pocket for me since the manufacturer’s card didn’t work out for me and taking 400mg requires taking 2 200mg pills... (there’s no pill size beyond 200mg)
      I hope you find a treatment plan that really works out for you. Fortunately or rather, unfortunately?, each person responds to each medication differently so there’s no one size fits all and that means we each have to keep trying til we get there

    • @elinmansson5535
      @elinmansson5535 Год назад +1

      I have the same experience. I have never tried stratera though.. wellbutrin works best for me I think. Vyvanse too but the sideffects long term can be brutal

    • @BrazilcarnivalSamba
      @BrazilcarnivalSamba Год назад

      Have you tried an MAOI ? I did and it helped me ...

    • @KB-tu4zw
      @KB-tu4zw Год назад

      @@tsuntsun657 Thank you for your reply. I am glad you found something that worked for you! I haven’t gotten there but working on it.

  • @paarma1752
    @paarma1752 8 месяцев назад +2

    17:35 the two conditons have very different comorbidities and very different life course outcomes, but what if a person has both ADHD-PI and CDS? As evidently there are plenty of such people.

  • @CHKrause
    @CHKrause Год назад +6

    Many thanks for this wonderful little series. I became big fan of your talks after a recent diagnosis of mixed ADHD at the tender age of 54. Your comprehensive consice and engaging explanations explaned nearly all my lifelong problems and the success (or lack of) of varying coping strategies . An addional problem with CDS might just explain my propensity to disengage from reality nearly as soon as I am not totally "wired". I will discuss with my psychiatrist.
    My question: How much "sluggishness" is required for a diagnosis of CDS? I still tend to move around/ doodle, even during daydreaming episodes; I could even get into a brief run, if something exiting happens in my head, and frequent startling reactions if somebody pulls me back into real life are anything but sluggish. Is this still compatible with mixed ADHD + CDS?

    • @russellbarkleyphd2023
      @russellbarkleyphd2023  Год назад +9

      Yes, it’s still compatible as the sluggishness is episodic and likely coincident with the disengagement episodes.

  • @pamelatanner788
    @pamelatanner788 3 месяца назад +1

    Thank you so much for these lectures, Dr. Barkley! Very enlightening. Oh how I wish I had this information much earlier in my life. I have a very challenging brain with a flaming case of innattentive ADD and apparently have CDS along with depression and developmental trauma. My EEG that was done prior to neurofeedback was quite abnormal (and the neurofeedback wasnt helpful). I have tried soooooo many other treatments and medications but nothing has helped much. Fortunately, I have a high IQ but all these problems have really handicapped it in terms of accomplishing much.
    One thing I was wondering about is how introversion and CDS overlap and interact. Introverts are more internally focused and tend to be more socially withdrawn. I am an introvert and get distracted more by internal thoughts than external things. It is kind of hard to imagine an extrovert with CDS since they are so focused on the external world and not socially withdrawn.
    Thank you again for sharing your knowledge with us.

  • @elinmansson5535
    @elinmansson5535 Год назад +6

    I have This and the only medication that works long term is wellbutrin as it helps with fatigue, sluggishness, motivation, drive and depression.
    I have also tried all the other stimulants like concerta, vyvanse, and ritalin and they do work in The sense that I feel less slow, more motivated have more energy etc but the sideffects can be brutal… (when the crash hits I get very depressed and unmotivated)

    • @sharonaumani8827
      @sharonaumani8827 Год назад +2

      I experience that with all but Vyvanse. I could tell when the Vyvanse wears off in that I am a little tired, but it isn't horrible. It would be nice to have a small "rescue" PRN Adderall dose, given the Vyvanse does only last 12 hours [what about the other hours you might like to be productive?]. I am seriously going to miss Vyvanse now that I will no longer be able to get it affordably.

    • @elinmansson5535
      @elinmansson5535 Год назад

      Have you tried wellbutrin?@@sharonaumani8827

    • @hardcorestymie
      @hardcorestymie 10 месяцев назад

      Have you tried modafinil or armodafinil. I do know one study that found it worked better than ADHD meds for SCT symptoms. Wellbutrin might be better or in combination best if you have comorbidities that Wellbutrin is specifically designed to address.

    • @elinmansson5535
      @elinmansson5535 10 месяцев назад

      Yes i have, it gave me energy but it did nothing to improve my mood and motivation. Basically i was lying in bed with my eyes wide open...@@hardcorestymie

  • @sapphireflowers
    @sapphireflowers 3 месяца назад

    My neuropsychologist speculated I have CDS in her report. Something that surprised me was, however that I did score low (in the 3rd percentile) for processing and if I understood it right you say that isn't linked with CDS. I also struggled most with math too which seems to go against some of the correlations. I have anxiety/depression as well. My neuropsychologist suggested I take breaks from tasks every 25 minutes. Between all of this it has significantly affected my ability to work. I've noticed a little more productivity since starting Focalin but the brain fog and issues with not working fast enough hasn't gone away.

  • @dancingonthe3dge
    @dancingonthe3dge 10 месяцев назад +2

    What about those of us that have PTSD and CDS - PTSD is one of the things that qualifies for a medical marijuana card. How can you tell whether or not it's dissociation, or mind wandering?

  • @ldao4680
    @ldao4680 Месяц назад

    My son has tried all types of stimulants, nonstimulant Adhd meds like guanfacine, Strattera and Wellbutrin. None of them really helped other than maybe Vyvanse but all of them had bad affects for him including rapid heart rate, increase BP, decreased motivation, depression and anxiety. We are still looking for something for him. Currently, he is having high anxiety with his health (with symptoms triggered by Wellbutrin and Starttera). It has been incredibly impairing for him particularly since he is a senior at a highly selective university studying mechanical engineering.

  • @roro3793
    @roro3793 Год назад +8

    I can tell you that I took wellbutrin for the first time and I felt awake like I had never felt before. It was like I could feel it in my eyes. Like my eyes felt more open which sounds weird 😂 buts true

    • @PabloYaos
      @PabloYaos Год назад +1

      Hi! Why were you prescribed this? Was your CBS diagnostic coupled with another diagnosis ?

    • @roro3793
      @roro3793 Год назад +2

      @PabloYaos I was diagnosed with ADD/ADHD-PI as a child. I never took any meds as a child but as an adult I feel like a struggle to feel awake and energized. I was aware that I had the val/val varient of the comt gene which impacts dopamine so I just asked my dr to try wellbutrin.

    • @PabloYaos
      @PabloYaos Год назад

      @@roro3793 ok, thanks for your answer

    • @playlistofsongs
      @playlistofsongs 8 месяцев назад

      @@roro3793 Wellbutrin mainly messes with norepinephrine/adrenaline, not so much dopamine. Very few people report feeling euphoric on Wellbutrin, so it is obviously not a drug that does very much with dopamine.

  • @tdang9528
    @tdang9528 7 месяцев назад

    Im pretty sure I have this, but i doubt my GP or most paychologists would know about it. Even if you didnt have a name like CDS SCT, i could more or less write down these symptoms I experience daily for most of my life. And they are quite unique in that other people find it quirlky and bizzare, but they sa, thats just him, hes like that...and i thougjht so too.
    Personally, i dont find it that impairing, in fact is is quite comforting to esily zone out or daydream, people assume this is bad, bit it isnt, its often relaxing or enjoyable

  • @n.radonjic3082
    @n.radonjic3082 Год назад +2

    I was just thinking that I have to tell my psychiatrist on my next check up how stimulant medication (I’m currently on Concerta, 36 mg) has almost no effect on me, other than increased resting heart rate (up to 120 bpm) and now Wellbutrin was the first medication that ever made me feel “normal” (sadly we had to switch because I had a persistent allergic reactions)I’ve been diagnosed with ADHD with possible comorbidity with ASD, and this sounds like a potential missing piece of a puzzle.

    • @russellbarkleyphd2023
      @russellbarkleyphd2023  Год назад +6

      You can make a copy of the article I cited in the description for this video and take it with you. it's a review of all we know about CDS. Most clinicians have never heard of it and it's not (yet) an official diagnosis. Jut go to the journal website and search for the review by Becker and colleagues. Good luck!

    • @yfdvjjjhvdd
      @yfdvjjjhvdd Год назад +1

      @@russellbarkleyphd2023will it be any time soon?😖

  • @becklovely8307
    @becklovely8307 11 месяцев назад +2

    Hey Dr Barkley, I live in Cincinnati and struggle with SCT. I know that Stephen Becker is a leading researcher in the field of SCT but he works out of children’s hospital and I am too old to be treated there. Do you know about any adult clinics that he is involved with?

    • @russellbarkleyphd2023
      @russellbarkleyphd2023  11 месяцев назад +4

      I think they have a separate clinic that sees adults. Call Dr. Beckers office for more details.

  • @akramalhaddad3718
    @akramalhaddad3718 6 месяцев назад +1

    Guys, is there any forum or a platform in which we can share our experiences in order to find out what works ???

  • @omalou42
    @omalou42 8 месяцев назад

    Could this be more of a difference between the symptoms vs the functional impairments? Functional impairments are what symptoms cause. If diagnosed as an adult, I would think that the abilities we are trying to access, haven't had adequate time to develop, and while we are looking for instant improvement, we might give ourselves some time to allow for this brain function to produce the desired behavior.

  • @ceciliapoliolopez5232
    @ceciliapoliolopez5232 4 дня назад

    Please Dr. Is there any medication that is more recommended for depression and anxiety? I have already tried 4 RRSI medications plus Bupropion, Atomoxetine and Ritalin, and even microdoses of psilocybin. The anxiety does not improve with any of them and with some it gets worse.

  • @yfdvjjjhvdd
    @yfdvjjjhvdd Год назад +4

    So nobody can diagnose me with cds and give me the accommodations I deserve?

    • @Abbody1337
      @Abbody1337 Год назад

      Well, sorry, but the world doesn't have to give you what you deserve, no one gets what they deserve fully.
      Hope for a proper medication and treatment for this (I sure do)

    • @yfdvjjjhvdd
      @yfdvjjjhvdd Год назад +10

      @@Abbody1337 1) Obviously I hope for a proper medication treatment. Obviously. 2) The world doesn’t **have** to do anything. I am very much aware of that. That doesn’t mean they shouldn’t, and surely that doesn’t mean I shouldn’t at the very least ask for what I do deserve, even if there’s only the slightest chance it would help anything. 3) please don’t compare other people’s problems with my own. You say some aren’t getting what they deserve fully, I’m not getting what I deserve at all, and regardless the fact that it’s normal for people to suffer does not make it okay, so let’s not.

    • @Abbody1337
      @Abbody1337 Год назад

      I don't know what gotten into me, the way I said is very rude and depressing so I apologize.
      Though, CDS has no official diagnosis and seems that stimulants and some supplements (maybe?) work the best for it.
      I do also suffer from CDS, and diagnosed with ADHD-PI but hopefully a seperate better treatment for CDS comes along.@@yfdvjjjhvdd

    • @coconutandcardamom2897
      @coconutandcardamom2897 3 месяца назад

      Very likely not. Been to 30 doctors in 3 countries and 50k out of pocket and senseless attempts with medication. I pray that more research will be done and a book or at least articles come out that we can take to our doctors, although then you need a doctor who is willing to take information from a patient. Best to get informed yourself and ask for the medication you feel will help. Also, nothing is known about therapy and frequently you are put into the same box as people with hyperactive ADHD who need completely different type of therapy.

  • @SeraphimZero
    @SeraphimZero Год назад +1

    What became of Metadoxine XR as treatment for CDS? You mentioned it in your 2014 presentation.
    And are there studies about Modafinil for CDS?

    • @russellbarkleyphd2023
      @russellbarkleyphd2023  Год назад +4

      I mentioned Atomoxetine as possibly beneficial in that lecture, which one study I discussed showed it to be. I also mentioned the possibility of modafinil but there is no evidence yet on how well it might work. We need a lot more research

    • @SeraphimZero
      @SeraphimZero Год назад +1

      @@russellbarkleyphd2023 Thanks for the reply.
      You mentioned Metadoxine XR here (ruclips.net/video/XYmPWq8QPQg/видео.html ), study was for inattentive ADHD. Everything I found was that the trial was later canceled. Not sure why.

  • @leslietaylor2172
    @leslietaylor2172 23 дня назад

    I was diagnosed with ADHD Inattentive type a few years ago (I'm 61). Do you think those who have that diagnosis should be given a different label (CDS) and not ADHD Inattentive type?

  • @morneemall8482
    @morneemall8482 Год назад +1

    Saya merasakan bahwa CDS ini mirip dengan apa yg saya alami, selama ini sy merasa seperti autis, skizoid, atau gejala negatif skizofrenia, anhedonia, avolisi, alogia, anergia, ini mirip dg adhd tapi sy kurang yakin , saya diberi stimulan metilfenidat utk gejala inatentif saya, tapi sayangnya di Indonesia tdk ada atomoxetine!!! Apa obat yg cocok utk saya?

  • @mattw5840
    @mattw5840 Год назад +2

    This isn’t my first comment on your channel, but I just laughed at myself so hard. I was reading up on the CDS wiki and going through their little list of symptoms “Prone to daydreaming, mind seems to be elsewhere, stares blankly into space, gets lost in own thoughts” and I thought to myself “hmm idk if this describes me” so I think of work for a second to see what’ll happen, next think I know I’m imagining my next shift at work running the register, thinking of how i’ll greet them, ask them how’s their day and whatnot, basically fantasizing about my day tomorrow (it’s a new job), and then I snapped out of it and looked up at my computer and realized I definitely have some of those CDS symptoms 😅. Maybe I’m wrong but I think CDS might be what I have, I’ve always felt that ADHD alone didn’t describe me all too well. Anyways, I just wanted to share my anecdotal experience to anyone who might be interested in listening. Thanks

  • @apollo6905
    @apollo6905 Год назад +1

    Sorry why is the first video in this series is hidden

    • @Piohm
      @Piohm Год назад

      The first video is "hidden" in the playlist (maybe the video got reuploaded to modify some of its segments?), but is accessible on the channel.
      Here's the link to the "missing" part I: ruclips.net/video/tQDuF-MKBDI/видео.html

    • @russellbarkleyphd2023
      @russellbarkleyphd2023  Год назад +4

      I don’t know. It may be because someone is not a subscriber?

  • @diannaannette6956
    @diannaannette6956 Год назад

    Is there a link to find the POSS manual?

  • @jefetce
    @jefetce 7 месяцев назад

    I guess this people group are idealistic. Looking for answers and solutions. Teaching like this can help to look for solutions. Medic is not resolving and that becomes depresive or leads to frustation or anxiety mind wondering. Thx for posting.

    • @jefetce
      @jefetce 7 месяцев назад

      Pls dont tell these people about stories of your sail turn holidays.you are the doc.

  • @hanskraut2018
    @hanskraut2018 Год назад +1

    Low impact / non consise comment, recommendation: skip if even remotely low on time:
    I apologize for my non consise quite trivial comments but i struggle with motivation to write appropriate ones deserving of attention, they will come, i just could not resist making many admiration filled premature ones: I loved ur presentations on SCT it almost seems long presentations to colleges and or organisations are bringing or have benefited for ur being at ur „best“. At least what i have seen so far. Adhd lecture for parents and „SCT 2 lectures where brilliant super convincing“ this is also high quality and very appreachiated but i really gotta constrain myself to point out something constructive in my compliments, admiration. Thank you. I think there is more that would suprise you and start a new little breakthrough/mini revolution in the understanding of adhd, i will make better comments giving concreate examples and leads that might be unique to my very special and very painful, (but determined, i wont give up some day when im perfectly finetuned or figured out more things… 🦾) experience im almost 30 years now. Anyway. Appreciation. Be well you seem extreamly rare not only in the adhd research field.
    Have a great evening sir. 🌇🏞️⚕️🔬