Fears, tears, and new symptoms.

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  • Опубликовано: 25 ноя 2024
  • Determination and sheer stubbornness has got me up and out.

Комментарии • 83

  • @cassandrasaundersdj
    @cassandrasaundersdj 8 месяцев назад +14

    Hi Jo, I've only commented a couple of times on your videos but felt compelled to comment on this one. Although I don't have MS, I do have a disability and if I had a vlog channel, I would probably be documenting the good and bad about my disability. So what I want you to know is if you lose subscribers because of this video, they weren't meant to be here. The community you build on RUclips should be of people who support you through good and bad. The "wheel" in your channel's name could easily have been a substitute for "real" so please don't feel bad or wrong about being real with us.

  • @katherinegoodrich9095
    @katherinegoodrich9095 8 месяцев назад +2

    Everyone has a bad day and we’re here for you! Sending lots of hugs. Xxoo

  • @marydowey9738
    @marydowey9738 8 месяцев назад

    Hi Jo you are a very special person and inspirational sending you hugs take care xx ❤️❤️❤️

  • @sandrasonger8765
    @sandrasonger8765 8 месяцев назад +1

    Sending Hugs!

  • @CherylFears-k6y
    @CherylFears-k6y 8 месяцев назад

    Jo I’m so sorry you’re feeling so low at the moment. Sending a massive hug to you ❤

  • @carolescharacters
    @carolescharacters 8 месяцев назад

    You’ve done well you’ve done absolutely amazingly well! 🩷🥰

  • @suesmith3744
    @suesmith3744 8 месяцев назад

    I’m so sorry , I’ve been feeling pissed off and sorry for myself all day , it’s comforting to know I’m not alone , while at the same time really sad there is so much suffering in the world. I have severe osteoarthritis over much of my body , severe cervical and lumbar stenosis plus depression and anxiety . I’m in varying degrees of pain 24/7 both physical and emotional and life is miserable . Only my son keeps me here , God Bless, hope you feel better soon 💐

  • @kathyferrara4444
    @kathyferrara4444 8 месяцев назад +1

    Hello Jo, it will be okay honey. No worries do what you need to do to feel better. Hugs and kisses!!!

  • @traciemarsh1611
    @traciemarsh1611 8 месяцев назад +2

    sending you loads of hugs and love jo. im in a wheelchair i have some symptoms you said but ive got trapped nerves and muscle problems. the symptoms are a horrible feeling. i dont have ms but i have another disability. this nerve and muscle problem is an add on. ive had it 10ys. where ive had my disability from birth. dont say sorry for showing your emotions jo if people dont like it they can bog off love you xx

  • @JeannetteStanier
    @JeannetteStanier 8 месяцев назад +4

    Thank you for being your true self & how terrifying these new symptoms must feel for you, your strength & determination is inspirational xx

  • @Xxxxxx19-p1c
    @Xxxxxx19-p1c 8 месяцев назад +2

    Don’t know why this came across my feed, but I clicked anyway. Glad I did. I’m looking for a community of “real” people, and it looks like this is a good place to stop! Jo, you seem like a sweet neighbor I would enjoy visiting with everyday. 🦋 I look forward to getting to know you. 🌺🌷💙

    • @Marymary999-h8s
      @Marymary999-h8s 8 месяцев назад

      Hi Cora 👋🏻
      What you see is what you get with Jo. I've followed Jo since day one and always will ❤

  • @janepovey17
    @janepovey17 8 месяцев назад +3

    Sending you a big hug Jo, you are not alone, we are all here for you xxx

  • @Xxxxxx19-p1c
    @Xxxxxx19-p1c 8 месяцев назад +3

    Isn’t it amazing that something so natural like sunshine can motivate us to tackle our difficulties with a stronger spirit than we did the day before? Praise God for the common grace of sunshine!
    Im glad you had the motivation to go out today regardless of your struggles! For some of us, that’s a HUGE step. Be proud of yourself and build on that! ❤

  • @sherriewright6241
    @sherriewright6241 8 месяцев назад +2

    Hello dear. We love you and your tears!! We'll ALWAYS be here for you!....❤❤❤

  • @holliethomson6147
    @holliethomson6147 8 месяцев назад +1

    Bless your beautiful heart Jo ❤ I really hope you start to feel better very soon. I’m sending you so much love always and you are definitely stronger and braver than you know xxxx❤

  • @Woobysgirl69
    @Woobysgirl69 8 месяцев назад +9

    Hi jo ❤hi kacee ❤
    Aaaw...jo....you are such a little warrior...just to get out of bed each day is a triumph over your symptoms...you blow the MS a big huge raspberry and tell it "not today I'm out of bed..this is my day" 😊sending you such a huge amount of love and a great big 🫂 hug...you take care our jo 😊❤ xxxxx

  • @wendycarter5973
    @wendycarter5973 8 месяцев назад +1

    Dear Jo your so brave I’m so very sorry that you have this new challenge please give yourself many more pats on the back you deserve them I’m praying for you your the inspiration to so many and we all love you thankyou for being you big hugs 🙏🥰🧸🐻🐻‍❄️ Xxxxxxxxxx

  • @Marymary999-h8s
    @Marymary999-h8s 8 месяцев назад +1

    I love you for who you are and support you all the way😊❤

  • @sasharix8685
    @sasharix8685 8 месяцев назад +1

    Sending you hugs jo i have ms and it can be a real bugger at tines but we tend to play down our ms symptoms to peope or i docos i feel like im a moaner about everything i still walk and will do as long as i can we are stubburn when you have a disease cos we want to beleive we are okay xxx one warrior to another xxx

    • @sasharix8685
      @sasharix8685 8 месяцев назад +1

      We cry alone Jo it breaks my heart to see you like this I've been there many times too it's frightening for what holds for us all Jo you are not alone xxxx I don't drive now as I go into day dreams and don't feel my brain can cope with the concentration xxx much love Jo you are a warrior xxx my new thing was last year the heat made my legs be restless and a year on my legs as my neuro says spasms and am now medicated for it but I worry for the hot weather and heat tolerance frightens me for this summer and how it will progress xxx 😊❤❤❤❤

  • @palmyrapilato7256
    @palmyrapilato7256 8 месяцев назад +7

    Please don't apologize for your tears. You are allowed to cry,be angry and vulnerable and not feel badly about it. Im praying for you and sending you good vibes from across the pond. 😊

  • @susanannhagger7637
    @susanannhagger7637 8 месяцев назад

    Hi jo I'm sorry your having all these problems its so unfair with your MS I hope you do get the sensation back im putting a feed on every night sometimes dont eat at all im not hungry my feed only 800 calories I already lost a stone x❤❤

  • @viviennekay3807
    @viviennekay3807 8 месяцев назад

    Oh Jo I feel your fears and pain. Please don’t apologise for getting upset. Anybody would. I wish I could just give you a really big hug. Keep smiling Jo xx

  • @cathysqueri7201
    @cathysqueri7201 8 месяцев назад +1

    Hopefully singing lifted you up a bit. Hugs to you.

  • @patricia49509
    @patricia49509 8 месяцев назад +1

    ❤🙏

  • @jennifer1872
    @jennifer1872 8 месяцев назад +1

    Lovely Jo I admire you so much , please don’t be sorry about the tears they are a release mechanism and if you can’t show your tears among us your friends it would be a sad world , sending love over to you Jo x💐

  • @lindanewton1142
    @lindanewton1142 8 месяцев назад +1

    Sending lots and lots of love and huggs to you jo 🩷🩷🩷🌹🌹🌹🙏🙏🙏xxx

  • @karenracher-ch6mt
    @karenracher-ch6mt 8 месяцев назад +1

    I'm sorry your so upset today but glad you could talk to us , big hug to you ❤ X

  • @clairepope4607
    @clairepope4607 8 месяцев назад +1

    Oh Jo so sorry you are getting new symptoms with your MS & feeling scared you put up with a lot & are such a strong & determined lady ❤❤lots of love 🥰🥰🤗🤗

  • @suemoo22
    @suemoo22 8 месяцев назад +2

    Good for you, Jo, you got yourself to go out. That’s very difficult sometimes, you are brave. I’m praying that the problem with your back goes away soon. Take care ❤

  • @jdavis3129
    @jdavis3129 8 месяцев назад +1

    You are one of the most positive people I know, and thank you for sharing your bad days as well as your good days. I’m so sorry to hear about your back pain, you have so much on your plate, but once again you always add some wisdom at the end. I have my fingers crossed as well, that the pain will go away very soon. Love always. 💜💜

  • @maryjobartell1540
    @maryjobartell1540 8 месяцев назад +2

    Jo, I have CRPS a chronic pain condition. You inspire me, I stay in and don't go out. I just have lost me and feel lost. Hope you are feeling better. Prayers and hugs

  • @Libranpoet
    @Libranpoet 8 месяцев назад +1

    I'm so very sorry for your pain and sadness, my darling girl. My chronic diseases are colitis and asthma. To see you struggling as you do breaks my heart. Please know you are loved! Hugs and hearts, Michelle in Los Angeles

  • @lynnedorris91
    @lynnedorris91 8 месяцев назад +1

    Hi Jo! Prayers for you to feel better real soon. You are so strong ! We are all here for you.

  • @danicacharles4221
    @danicacharles4221 8 месяцев назад +1

    Be kind to yourself lovely Jo....you are amazing 😊❤

  • @patclark9857
    @patclark9857 8 месяцев назад +1

    Hi Jo please don't get upset I can't help but be sad when you are so upset so I'm sending you big hugs and please stay strong.xx

  • @lindav3455
    @lindav3455 8 месяцев назад +1

    Jo, you are so amazing, inspiring and strong. Please never apologize, we are here for you through thick and thin, good and bad. All of it. If there are subscribers here that are no they should just move on. We love you Jo. Prayers and hugs coming your way. Until next time. 🙏🙏🤗🤗🧡🧡

  • @Loz1995
    @Loz1995 8 месяцев назад +1

    I wish i could hug you and tell you everything will be ok

  • @vbrandon1858
    @vbrandon1858 8 месяцев назад +1

    Hey, you seen Sooz yet? I'm praying for you, Sooz, and Emma. You all are always in my prayers 🙏 ❤️ 💛

  • @sharon6024
    @sharon6024 8 месяцев назад +1

    Lovely Jo ❤ We r here for u ❤ u r such a warrior ❤ Sending u so much love ❤

  • @loulou-783
    @loulou-783 8 месяцев назад +1

    Jo you are fierce and strong. You have an amazing smile, what shines through is Jo living her life not ms. At the same time recognising your iit iis at times an hard battle with an invisible foe. Thank you for sharing your life. I really appreciate it. I have diabetes and wish at times it would just b. gger right off .

  • @sjb209
    @sjb209 8 месяцев назад +1

    Dearest Joanne, Thank you for trusting all of us here with your pain and fears as well as your joys in life. You are such a warrior and inspiration with the way you’ve overcome so much in your life. Just the fact that you got out today and did what needed to be done for your family proves what a warrior your are. You have a community here that love you and pray for you daily, myself included. Thank you for trusting us enough to share your life. I love you and KaCee so much and lift you by name before the Throne of God daily. He sees your pain and hears our prayers on your behalf. Keep your eyes on Jesus and trust Him to carry you when you’re having a hard day. Keep us updated when you’re able. Love you sweet Joanne…
    Xoxo, Aunt Starla 🙏🏻♥️

  • @lindasnyder8463
    @lindasnyder8463 8 месяцев назад +2

    Dont ever be sorry about the tears, most of us would be crying all day long. I had cancer twice and have lupus and 3 autoimmune duseases. You remind me so much of my loving sister Barb. She got MS at the age o 18 right out of high school. She fought valiantly for 43 years with this horrible disease. Her last 19 years, she was bedrudden, but she did not stop living, she was like you, she smiled and laughed everyday, she was a blessing to all around her like you are. Her positive attitude was amazing. We lost her at 61 in 2007. She would call me sometimes 6 times per day and ask me something. I helped care for her and her feeding tube. She fought everyday , so when im having a bad day, i look over at her picture and say no way after what she wrnt through. She had the symptoms you are talking about. Im sure your on Gabapantin. She was on neurotin for years for her symptoms. Doing just one thing a day is a big accomplishment , even combing her hair was a big achievement.,so be proud of yourself fir all you do. Prayers for you❤❤ Linda from Ohio

  • @wandagillett7034
    @wandagillett7034 8 месяцев назад +1

    Jo you are a strong, intelligent, caring and loving woman. People who make fun, criticise or talk about your disabilities are not worth your time or energy. You are a wonderful person and I think you are such a great example.

  • @SharronWalsh
    @SharronWalsh 8 месяцев назад +1

    Bless you. I have been so down for the past year with my symptoms. I spend most of the time sleeping rather than getting out. If you keep going I will do the same shall we make a pact let's live in the moment xx

  • @kathrynJMwest
    @kathrynJMwest 8 месяцев назад

    Oh Jo, if only you could hug someone through a screen. Never apologise for tears, they are cathartic and help us regulate/process emotions effectively. Sending you lots of love xx

  • @hjcdormouse7337
    @hjcdormouse7337 8 месяцев назад +1

    Jo we are here to support you your honesty is refreshing it makes you relatable.
    My Nurse head that supported after MS patients for many years you are right to consider is this a new form of your MS.
    However I would to exclude nerves being pinched from your hip causing odd sensations.
    Another area to double check is wheelchair fit changed in any way.... you can get pressure area develop from inside to outside of skin so initially you see nothing if you or someone looks until it breaks thro skin and maybe a simple adjustment required to wheelchair relives if not all but some symptoms.
    I would think discuss with MS Nurse and ask for a Wheelchair fit assessment and also a, Tissue Viablity one along with review again of your hip.
    It seems a long list but it may make you feel more in control.
    Please do not feel defined by your disability you have helped me so much with your I can do attitude and I am now up cooking again most days of week... It is hard as not a height adjustable wheelchair but I am saying I can do this I will find a way and making slow steps.
    I now need to find confidence to join groups we moved in during Covid I do not know anyone still and it gets lonely.
    I was never a social butterfly as so shy my work as a Nurse my life but amazing how when you become long term unwell folk disappear.
    I watch you and go right Dormouse achieve something tomorrow so TQ Jo and a big hug sometimes tears are needed to release worry 💜x

  • @carolynwalker9920
    @carolynwalker9920 8 месяцев назад +1

    Im glad you are sharing your experience and it’s okay to let people know how you are feeling. Please speak with your doctor or ms nurse. You are a strong person but even strong people can have a rough time. Sending healing thoughts and prayers ❤❤❤❤❤❤❤❤❤

  • @suelaver6537
    @suelaver6537 8 месяцев назад +1

    Bless you jo sending huge hugs and love and prayers xxx

  • @cindyperez1085
    @cindyperez1085 8 месяцев назад

    Thinking of you.❤🙏

  • @kendagrimm-js9on
    @kendagrimm-js9on 8 месяцев назад +1

    Oh sweet Jo! You are one of the greatest warrior’s ever! You are incredible and so honest! I’m sure many will agree that you are an amazing person and please…. No apologies for any of your feelings! If you need to vent, cry, yell, etc. we’re here for you! Many of us might join in with you! Please know that I’m praying for you and your loved ones. I believe that prayer is immensely powerful and God is the Great Physician! I pray you feel much better asap! Big hugs, prayers and hugs from Roswell. NM. USA🙏🏻🩷🙏🏻🩷

  • @genamartin229
    @genamartin229 8 месяцев назад +1

    Sweet, lovely Jo….I really take your words to heart, especially when you say what you have is not as bad as what someone else my have.
    We can see when you’re down and you have the right to let yourself experience those tough days just like anyone else does. God gave us emotions for a reason and if we can’t feel them and let them out…we can die inside before our life is over.
    It has been a long pattern of darkness trying to get out of the covid and it’s new strains and the aftermath it has left behind.
    We’ve been in a dark cloud for so long, we haven’t adjusted our gaze to fixate on us.
    I’m sure I could say many more things but the main thing I got out of this video is how genuine, inspirational, calm and strong willed you are. You make a better person just by sharing your life with us. And always you are a brilliant example of Gods word. God Bless you on your continuing journey through life. Much admiration and Love…🙏🏻❤️😘👍🏻🎉

  • @alisonlishman8174
    @alisonlishman8174 8 месяцев назад +1

    Hi Jo Keep strong You are such a lovely lady Don't let it beat you and don't apologiize for crying Take care xxx ♥️🙂🙏

  • @darlenepietzak9847
    @darlenepietzak9847 8 месяцев назад +1

    Oh Jo, I am glad you spoke to us about your fears and cried and let it out. I know several people who have MS. Some in wheel chairs, one who walks with a can. My other friend has more problems with her arms, hands and balance. We're here for you to vent. Don't worry about anyone else. You do what you need to do. You are in my prayers. 🙏💜❤🌹

  • @jeancrawford4934
    @jeancrawford4934 8 месяцев назад +1

    Thank you for sharing your fear with us, I would be scared too. I come on to listen to whatever you have to say and am amazed by the energy you have even today. Everybody on here should be supporting you and if there any negative comments , just delete them. Stay strong and keep with it. Love and hugs xxxxxx

  • @Catherine-j3g
    @Catherine-j3g 8 месяцев назад

    We are with you it's ok to be scared honey xxx

  • @ppthegreatest3941
    @ppthegreatest3941 8 месяцев назад +1

    Darling Jo, you are so strong and brave. To be in constant pain is no joke. Take care ❤ love to you ❤ xsuex

  • @maryanderson-r5l
    @maryanderson-r5l 8 месяцев назад +1

    Lovely Jo, you are such a blessing in my life. Your strength and determination remind me of how lucky I am even when I start feeling sorry for myself. Don't ever be afraid to cry or "unload" on us. Your mind and body need the release and if people don't like it, they can move on to the next video. I am praying that this is just a flare up that will calm down quickly. I also know that whatever the future brings, you are going to work through it and we are going to be here supporting you every step of the way. Blowing you back kisses and sending along a big hug!! Mary in Mich.

  • @TheMunrochambersgirl
    @TheMunrochambersgirl 8 месяцев назад +2

    Praying for you dear Jo. I hate that MS is overwhelming you. Just keep living your life the beat you can. You are awesome! Love, hugs and prayers from Cathy in Cape Coral.

  • @lhasalynn2091
    @lhasalynn2091 8 месяцев назад +1

    Dear Jo, You are doing so much more than others in your situation---and I feel so glad to have met a person like yourself, who tries to overcome the odds and finds happiness behind every corner. Have you told your MS doctor, yet, about this new symptom---perhaps there is something to relieve it. In any case, you are one very amazing person and I am proud to know you!❤Lynn in NYC

  • @ilovegingers4ever
    @ilovegingers4ever 8 месяцев назад +1

    Aww Jo I pray you will can feel better soon. Crying is ok and good it helps get it out . I have disability too and I don’t get out as much as I wish . Infacr it’s a rare occasion but I’m so proud you are keeping going . You are a fighter because none one can judge your pain levels or how you’re feeling inside . I have a chronic illness with pain and because people can’t see it on the outside unless I need my stick , no one knows and you’re judged for looking well and how can I be disabled etc. Always from the mouths of people who don’t have chronic pain or illness. I wouldn’t wish it on anyone as none of us should . It’s Ramadan just now I’m exempt from doing the fasting of this month but every year I push myself to do it because its the only thing I feel I can achieve and it doesn’t matter that I’m stuck indoors. Every day you get up and do anything whether you just got dressed , or managed to make something or take yourself out and about you are achieving a lot . So don’t be sorry for your tears it helps . I will keep you in my prayers and hope things get better and easier for you . Sending you & Kacee love ❤❤and healing ❤️‍🩹 hugs 🤗 to you.

  • @dhoffie1960
    @dhoffie1960 8 месяцев назад +3

    Please see your Dr

  • @dhoffie1960
    @dhoffie1960 8 месяцев назад +1

    Be as strong as you can Jo

  • @xMichelex
    @xMichelex 8 месяцев назад +2

    You have lots of supporters Jo. Better out than in as my mum used to say. A problem shared is a problem halved. Hope you feel better soon and that your new sensations are temporary. xx

  • @PugMama64
    @PugMama64 8 месяцев назад +1

    ❤❤❤🙏🙏🙏😘😘😘

  • @carolezimmerman2253
    @carolezimmerman2253 8 месяцев назад +1

    We are here for you. So much better to share with others and get it out. ❤

  • @henriettagoldsmith5056
    @henriettagoldsmith5056 8 месяцев назад +1

    Hi Jo. 😘😘😘 You should make appointment to see your Dr as soon as possible.😘😘 If not ,then see private Dr and get. whatever is going on within your body...Get it seen to as so as possible.😘😘 praying for you 😘😘😘

  • @sharonquinlan9679
    @sharonquinlan9679 8 месяцев назад +1

    Sending lotsa love & hugs to you Jo, take care Xx 😘

  • @Fiona6784
    @Fiona6784 8 месяцев назад +1

    Sending the biggest hugs Jo xxxx

  • @coressaclark6354
    @coressaclark6354 8 месяцев назад +1

    Prayer

  • @annetteingle1410
    @annetteingle1410 8 месяцев назад +2

    Jo your a very beautiful woman really sorry your upset and what's going on can your dr do anything to help

  • @Gardengirl112
    @Gardengirl112 8 месяцев назад

    Hope all is ok. Hugs ❤

  • @louiseroe778
    @louiseroe778 8 месяцев назад +1

    Sending hugs jo ❤

  • @jaktag
    @jaktag 8 месяцев назад +1

    Ihermitte's is the word you were looking for Jo,i get it with my MS too.Just a thought,when you have dental injections are they adrenaline free? I am asking because when i have any dental work i have to have adrenaline free ones,because i found out i would relapse after dental work and i researched it and found that normal injections caused me to relapse,so i ever since i found this out i have the adrenaline free ones and i do not relapse after dental work now.I have mentioned it because i know you had a tooth out recently.I used to feel very ill for ages after going to the dentist and i got some weird symptoms.I have had to work out a lot of things myself with my MS over the years,i have not had much help at all with drs and neuros. One dr told me i had post natel depression,when i had a massive relapse 6 week after giving birth 🙄 Chin up Jo this sensation you are getting might go off,i get it on and off and have done for years. 💕xx

  • @victoriahaworth2651
    @victoriahaworth2651 8 месяцев назад +1

    Jo please see the Doctor , you will drive yourself mad speculating . Find out what is going on and it will be easier to deal with . Keep talking it’s much better than bottling it up x

  • @patchaput9461
    @patchaput9461 8 месяцев назад +1

    Dear sweet Jo. Do you think it possible that you have some pinched nerves? From having the broken hip and the different ways your body has been compensating?
    Kacee's not going anywhere. He loves you SO MUCH!!! It's so obvious. You just have to see his face when he looks at you.
    Have you thought about seeing your Dr? I know you put things off, not that I blame you. Medical professionals can leave a lot to be desired for sure.
    Please don't be offended Jo. Just putting in my two cents. Thank you for sharing your life with us. We will be here for you always. Take care luv. Love you! ❤❤❤❤❤❤❤❤❤❤❤❤❤

  • @shannonchi1
    @shannonchi1 8 месяцев назад +1

    😘❤❤

  • @karenracher-ch6mt
    @karenracher-ch6mt 8 месяцев назад

    Hi Jo hope your OK? ❤

  • @TessB1966
    @TessB1966 8 месяцев назад

    Oh Jo, this is the most "Real, roar,emotional"vlog youve ever posted? Your feelings are most validated, I would feel scared too? If anyone is going to give their "MS" absolute hell it's you? And that's why we love you, for you being you? Your stronger than you think? 🥰🩷😘🇦🇺🫂

  • @TheDogPooPro
    @TheDogPooPro 8 месяцев назад +1

    🫂🥲