Rituxan IV Infusion * My Rituxan Experience * Side Effects * Chronic Illness
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- Опубликовано: 16 ноя 2023
- #chronicillness #ivinfusion #rituxan
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You are such a brave lady, wish we lived closer, we would be great friends. I would love to spend the day with you, and just crochet the day away. wow your doctor is amazing to help you that way, I'll be praying this treatment works for you.
So wonderful that your doctor got you approved to take this infusion ❤
Prayers 🙏
I'm praying that this works for you as well as it did for me. My lupus shut down my kidneys, messed with my heart, my lungs, and caused terrible weakness and fatigue. Im sure you're familiar with all of these things. The day after infusion I would experience lots of fatigue, but other than that, it was ok. My last infusion, unbeknownst to me, had not been approved by insurance and I ended up paying $52,000.00 out of pocket! Its ridiculous how expensive these necessary treatments are. Fortunately im now on regular doses of methotrexate which is managing my immune suppression nicely.
My best wishes and tons of prayers for success with this treatment.
I dont crochet..I watch you Kayla, because you give me courage to handle the health stuff I am going through. Thank you and God bless you, Big Daddy and your family.💟
Lovel Barbara, same here with health. Kayla wish you feel better soon. send our love from Tasmania Australia xxxxxxx
God bless everyone whom have health struggles. Every day is a blessing. Feel better, much love & many prayers😻🤙💜💜💜🤗🤗📿📿📿.
Even though you are in pain you still can laugh as you tell us about your experience. You are an inspiration. I pray that these infusions will help you and the side effects will ease up. 💜🙏🏻
Your smile through all your suffering is amazing and inspiring! Praying for a miracle! Thank you for sharing!
Praying you feel better tonight and in the days to come. You are amazing and an inspiration. God Bless you and Big Daddy.
Hi Miss Kayla, Big Daddy, Dakota, Elijah, fellow crocheters and watchers ❤ hugs and prayers Miss Kayla
You are such an inspiration. I am so sorry for everything you go through, but you are always so upbeat, smiling and even laughing through everything. Thank you for sharing with us. You are in my prayers.
Hi dear Kayla!! It really is so caring of you to come on and explain the infusion to some people who may need it also. I am in total shock….42,000 for one infusion!😮 Thank God that your doctor was able to do what she did ❤ As you were explaining everything step by step, it took me back…. Back to when I had to have chemotherapy. The process was almost exactly the same. You have to finish this bag before you get the next bag. Then we’ll give you your medication. Then you have to have another bag of fluids before you go. I want to tell you that you are one strong lady ❤ You hang in there because I know this is going to work for you 🙏🏻❤️
Wow! At $42,000 that drug better be a miracle. Man that’s Big Pharma for you, just glad the company is helping you with this. Hope you get feeling better soon. I’m double praying for you! You are an excellent spokesperson. You take care sweet lady ❤️🤗🙏🙏
Bless you each hr going forward 🙏.
Oh my goodness, just when you think it can't get worse, it does. May God give you every ounce of strength, courage and comfort as these treatments progress and become necessary!
I'm scheduled for my Rutuxan infusion this morning and then another one in 2 weeks. I'm keeping you and Big Daddy in prayer, Kayla! 🥰
I do hope the infusion will do wonders to your ailment. With all the side effects this infusion has, you still look beautiful, Kayla.😊 Praying for you and Big Daddy.
It makes sense that you hurt that bad after you were sleeping all extra relaxed from the Benadryl. I've been there and just been so relaxed from muscle relaxers for instance. And the doctor told me that it's because when you're in pain all the time you carry your muscles in a stress mode of tension and when you relax that much that your body's not used to being that relaxed you ache for real.❤❤❤❤😊
I wish you all the best and hope this new drug works. I have 32:13 of 2 drugs every 3 weeks for breast cancer. Sometimes, I have body aches but mostly fatigue. Some days are worse than others. God has blessed me, so far I'm OK, not always great but OK. I'm one lucky gal.
I am so glad your doctor was able to go directly to the insurance company for the drug. The cost is so outrageous! I hope it helps you. I went thru chemo a couple of years back so I know what you went thru. By the time they do all the preliminary stuff and then the infusion, it is an Al day affair! I had a seizure during my first chemo treatment. Not a great way to start my treatment! I also had the muscle aches in my legs after my first chemo so I know what you mean about the pain. They ended up changing my drug cocktail after that. I still had the muscle aches but not as bad. It took me a few days to recover after each treatment. Ugh! I currently have stage 4 metastatic kidney cancer in my lungs and my treatment will be immunotherapy. Not looking forward to that as I have read about the side effects.
Stay strong, Kayla. I really hope you get some good results after going thru all of this. You really are amazing and very inspirational. ❤️
God bless you Kayla. I am praying for you to get relief and rest. You and your hubby are in my prayers.❤🙏❤️🙏❤️🙏❤️
You are a very strong and brave woman. You have been thru so much, yet you smile thru it all. Not everyone can do that. Also your crochet patterns are all just beautiful. I will keep you in my prayers.❤❤❤❤❤❤❤❤❤❤❤❤
Prayers and thank God that you have that doctor in your life to help with the pain. Continued prayers and blessings to you all this Thanksgiving week. 🦜
My experience was just like yours itching and muscle aches. I had a horrible headache. The next morning my lips were swollen and my eyes. I took benedryl. They went down in 24 hours. I could hardly walk, had to use my rollater for 3 days. Better now!
What a beautiful top! Thanks for letting us in on your illnesses and progress! 🤗🤗🤗🤗❤️❤️❤️❤️🙏🏻🙏🏻🙏🏻🙏🏻
What a blessing that your doctor was able to contact the drug company and they agreed to pay for the drug as long as you need it 🙏🏻praise the lord 🙏🏻
You are such an amazing woman!💝
That sure was a super long day! Praying that you will feel better really soon!🙏🏻
Wishing you a beautiful blessed day/night 🙏🏻🤗💝💛🌻
Kayla, I love your beautiful personality.
Prayers this time your infusion works.
You're in my thoughts Mama Kayla. Another pretty blouse! Hope this is your magic bullet and it helps. ❤
The cost of all these medications is astounding. Thank goodness your doctor fought for coverage for you. I hope the muscle pain will ease soon for you and can rest without that discomfort . I also wanted to say i love the top you're wearing - so colorful ❤. Looking forward to your next video update 😊
I'm so sorry that you are suffering but heartened to see you smiling and laughing. I pray that this helps you. With much love.
Thank you for telling us about this medicine and process. You never know when someone else will need this information and I appreciate you sharing. I hope the muscle pain goes away quickly. Prayers, love and hugs my very dear friend 🙏💛🤗
Prayers, don’t worry about crochet, we love watching and you.
it’s so wonderful that your doctor got your infusions approved! I can’t believe how much that procedure costs. Sending many positive thoughts and love to you!
Kayla, prayers for you always.! You are brave.! God is seeing you through.! Don't loose hope.
It's so good to see and hear you, Kayla. You are so strong. You are an inspiration to all of us.
You may not feel too good but I tell you your skin tone looks healthier than it has in a while!! And that was not meant as a rude statement, I just noticed you looked almost glowy. I pray the muscle pain subsides and you get some relief. Just imagine how much better you will feel with the injection plus the pain pump!!! you'll be crocheting a whole Christmas village!!!lol Much love to you and Big Daddy and many prayers for both your health. 🥰
Dear Kayla
You are truly mother courage. Sending all my blessings with love and real admiration from Mary in Ireland
Thanks for the update. I appreciate you letting us know how you are doing even though you are having a rough time! You need to rest like they said though! We could wait till you felt better.
my goodness Kayla, I am so glad they are covering that medicine for you, that's amazing!
I get that sometimes in the night where I have horrible pain in my legs & hips. It is usually when I havent drank enough or is I have sweat alot & it screwed up my electrolytes. I have fibromyalgia & for some reason that happens to me a lot! I also have ankloing spondylitis & that has a lot to do with it too. So far I keep plugging away take one day at a time, I really hope that these infusions help you Kayla! You are in my prayers, take it easy & follow doctors instructions!
I hope the side effects go away and the med works really well for you. Thank you for sharing. Prayers and best wishes.
🙏 for you and your family. I too have multiple chronic illnesses and I completely understand laughing through the pain. Hang in there girl and never give up. 😘💕
I totally understand with 35 issues with my health. I had to shave my head due to hair loss. Auto immune disease is no joke. I’ve 😢been sick for 17 years unable to work. I’ll be 60 the 25 th of this month. I’m in my bed all day cause furniture hurts. Know I am praying for you ❤
It's too bad they couldn't find an infusion site closer to you. That's a long drive after being at the site for 7 hours. I'm so glad that you're feeling better now. I hope this medication works for you and you see marked improvement. That was so sweet of the pharmaceutical company to take care of that expense! I pray that all goes well with you. Much love! ❤😊
Hi Kayla, hope you are doing good ❤❤😊😊
Hi Kayla, i will be praying that the next time you go to get infusio, it will go well. There are no side effects in Jesus' name, amen!!! ❤♥️🤗🙏
You are a strong lady Kayla, God will see you through. Thanks for sharing with us.❤
Hi Kayla!
I am so glad to hear you are doing pretty good after your infusion. My son's former girl friend is very sick too and only 35. She was to start an infusion but I havent heard how it went. She broke up with him because she didn't want to burden him with this any longer even though he begged her to stay. Very hard on him for her to leave.😢 Anyway, I pray 🙏 that you will gain some reprieve from your autoimmune diseases. Take good care! ❤
I really hope this treatment helps you Kayla, take it easy and have a wonderful weekend.
You're such a sweet person with a sweet voice.
Hi Kayla. Musele pain is horrible I’ll keep you in my prayers. Your cup is way cute❤🌼⭐☕🧶
Every time I see you in your pretty crochet sweater, it reminds me to make one! All the best to you, Kayla. Wishing you well 💜
Hi kayla, sending you healing & get well wishes from the UK 🇬🇧. Rest up! And take it easy! I hope big daddy is feeling OK too!.love to you both! Mandy uk ❤xxx😊
My doctor did that for me once, went to the drug company and the drug company sent it to me in the mail 😊
Oh Kayla.... OUCH!! I'm super thankful that you've been approved for that wildly expensive infusion!!! WOW! Great that your Dr advocated for you! Now I can see why the Lord has held off your pain pump, so that you can know exactly what the side effects are! I'm sure that having the pain pump would be wonderful with the horrible muscle pain, but also would have been confusing! May God bring relief for you soon & excellent results overall for your body as you progress with the infusions! May God comfort you dear friend. 🥰Blessings from South Australia💕🐨
Oh sweet Kayla, I am so sorry that you have to go through so much all of the time. You are such a sweet, dear person. 42,000 for one dose of medication?!?!? THAT IS CRIMINAL! Our system is such a mess. I'm so very happy that you were able to get your infusion and I am praying that it helps so much. I'm sorry that you had to experience the itching and all the muscle aches, Hugs to you and I hope you feel so much better soon. 🥰
You are such a doll. Pain, itching, the works and you still smile, chuckle and laugh. Thank you for sharing your journey.
Kayla you are such a strong lady I hope and pray this medication helps you. Get lots of rest.
God bless you and big daddy - thank you for sharing. Praying for you 🙏🏻❤️🌹
You are an inspiration young lady! You smile through your pain and keep such a positive attitude about everything! I so enjoy watching your videos and I pray this medicine helps you and doesn’t cause any problems for you. I would love having you as a neighbor. We would be goods friends for sure! Good luck to you sweetheart!
I feel so bad for you, but hopefully it will help. They do need to get Big Daddy a more comfy chair though, he's a saint. You take it easy and let your body adjust.❤
You are such a brave person to go thru all of suffering and testing you have to endure. Will pray that this works out in a positve way for you.❤❤❤❤❤
Miss Kayla you are such an inspiration!!!!!!!!
Oh man wow my long term partner takes his twice a year. He describes it as feeling like the flu. Girl, I’m praying for you cause he is yellow after his and doesn’t function for days. But he looks and feels great after a few days. He has wagners vasculitis and it’s painful for him.
🙏🙏🙏 You are an amazing woman. Lifting you up to Jesus for strength, healing & peaceful rest.❤
Hoping this treatment works for you Kayla. Much love and prayers!❤
I feel so bad for you. You are a real trooper. I hope this medicine helps. You are always in my prayers 🙏🏻 Take care.
Thank you for sharing. I sure pray your next dose goes better without the itchiness and muscle ache. 🙏 ❤
Kayla I’m praying for you and Big Daddy ". You look beautiful in that top. Benadryl doesn’t help me to sleep I wish it did. Kayla I deal with muscle pain but I buy from Walmart “Stop Pain” get the rub on not the spray . The spray is very cold going on and that is bad. The roll on does get cold but not terribly cold. I could not live without my Stop Pain.
Praying for you that this medicine will bring positive results. You are such a inspiration, God bless you!
Prayers always. I hope this will help you. Hopefully the muscle pain will ease. ❤
I've been on benlysta for seven years. Thank you for sharing your experience. I know it can cause brain cancer and death but tias never crossed my mind. You are an inspiration to me!
Kayla, I will be praying for you dear. I understand about auto immune diseases. I suffer from Rhematoid. Chronic pain I have fibromyalgia and a whole lot of nerve ailments. I have 4 bulging disc in my back and a. Pinched nerve. Also a bulging disc In my neck and pinched nerve and well as both knees are bone on bone. So no stranger to pain. Bad hips too But seeing you go through all of yours I feel lucky and my heart goes out to you. Bless your heart you take it all in stride. Yes honey I will be praying for you🙏🙏🙏🙏 I pray this new medication helps you . And your pain will ease Bless you and your family ❤🤗🤗🤗
You are such a inspiration to everyone. I really hope this works for you. I can’t believe why they make a drug that no one can afford. Thank goodness the drug company was able to help you out. Hang in there my friend, I’m sure you will be able to crochet soon
Hugs & love to you both. I can’t even imagine. I will pray for your pain to ease. December is a coming… that pain port will help hopefully.
Just hold some yarn. Or have your little helper help you with a project. I’m glad your itching stopped!
Have a great weekend.
♥️🫶🏻♥️🫶🏻
Praying for you that these infusions will help and the side effects subside. Glad you are in good spirits through all of this.
Love you Kayla girl x
You look so pretty.that blouse is perfect.
Keeping you in my daily prayers Ms Kayla 🙏🏻🙏🏻🙏🏻
❤️ Kayla bless you. You are such a strong woman. Praying you feel better soon.
Hang in there, Kayla! I hope the infusions help you tremendously. Rest up and feel better. Have a happy Thanksgiving with your family!
Praying for you nonstop!!!
Praying for you Kayla. ❤❤❤
Lots of HUGS to you!! You are so brave!! God Bless You, Sweetie!!! 🙏🏻❤️🤟🏻
🙏🙏🙏 for you Kayla 💜
Kayla i will be praying for you that this will work, such a wonderful kind lady,
You’re in our prayers.
Take it easy Kayla sending prayers
Happy days 🙏🙏
I love your sense of humor and your attitude toward life.
Thank you for being such a strong woman. Continuing to pray for you
God bless you. 💚
Praying for you Kayla blessings to you and your family
Sending Love hugs Prayers 🙏
Prayers Kayla 🙌 Thank you for the ibfo.😊 Praying that the muscles stop aching,and you start to feel better. 🤗🙌 God Bless
Praying for you
Sweetie 😂you Rock!!! I have allt of auto immune diseases also, an diabetes disorder and you crack me up every time you say something funny… or joke around. I’m sorry for your pain and pain in the health of your body. We pray that your recovery will be swift and speedy and that you will get better and better soon. Much love Kayla and your family… stay strong and keep fighting. Jesus is good. Love Terri in Vale Oregon
Sending prayers 🙏❤.
love and prayers God Bless everyone.i praying tomorrow will be a good day for you.
Sending love and prayers. 😍
Prayers for your pain to ease quickly. Love ❤️ and hugs 🫂.
Sending love and prayers 💕
Bless your heart. I hope you are feeling better tomorrow.