Welcome to the FPA's Video Series featuring presentations from the 2023 FPA Conference. The topic for today’s webinar is an Update on Medical Treatment of Trigeminal Nerve Pain and Other Nerve/Craniofacial Pain Disorders presented by Wolfgang Liedtke, MD, PhD, Member Chair of Neurology, Psychiatry, Pain Medicine, and Sensory Systems at Regeneron Pharmaceuticals, Member of the Global Development Scientific Council, Member of the American Clinical and Climatological Association and an FPA Medical Advisory Board Member. Although the video is not live, we encourage you to comment and ask questions. Your participation and feedback will help us gauge interest in a variety of topics to better serve the community with future webinars. The Facial Pain Association (FPA) does not endorse any product, doctor, procedure, medical institution, or its staff.
Such incredibly important information. Such a great description of our pain attacks and how it ties to PTSD. Thank you!! I am wondering if this will be available as a transcript. It' challenging to read the captions and the information in the slides. Thank you.
In July of '24, if I make it, I'll be 75 and have been suffering with T.N. for F I F T Y Y E A R S. T.N. is a terrific "life ruiner". The Creator knew I'd have to live with T.N., but He made me anyway... It's not very encouraging to know that T.N. will be with me until the end.
@@ranagauravus Seizure meds. like dilantin, carbamazepine, tegretol, etc. all with bad side effects. Had a rhizotomy, but never an mvd operation. The disease is called the "suicide disease" and if it wasn't for using alcohol to temporarily stop the severe, awful pain, I'd have been a statistic... I could write a book on the painful, negative experiences I've had to live with during my 50 years with T.N. I wouldn't wish T.N. on my worst enemy !
@@JeffHogue-em6zx but why mvd did not opted, any special reason like negative side effects or recurrence rate is high or other issue and how alcohol stopped pain like if attack happen then at that time you take alcohol in pain
@@ranagauravus $$$ Too, I've read where in some cases, the pain returned after the operation. There are chances of undesirable complications post operative incidences especially something I really don't want...hearing loss (I am a musician). No, at my advanced age, I figure I'm going to ride it out. It would take years of mental recovery, to try and get back to a normalcy of existence in my life if I had the operation and it stopped the pain. As a side note, having T.N. for so long, it has made me not want to really speak or to hang with anybody. When I was on the job, I didn't want anybody asking me a question, for having to answere,, it was awfully painful. Don't know how I kept my job ! I don't blame anyone for not understanding, but T.N. is much more than super-pain, it changes the mind on how to live and survive, as you're getting the crap beat out of you with pain 24/7 and you never know when the episode will end ! It lasts for several months... Lovely, right ? Ok, so long. All the best to you and may you NEVER develop the dreaded trigeminal neuralgia.
Thank you for joining us for tonight's webinar. You can receive information and resources in your inbox when you sign up for FPA's Bulletin at this link www.facepain.org/sign-up/
Thanks for the info
Welcome to the FPA's Video Series featuring presentations from the 2023 FPA Conference. The topic for today’s webinar is an Update on Medical Treatment of Trigeminal Nerve Pain and Other Nerve/Craniofacial Pain Disorders presented by Wolfgang Liedtke, MD, PhD, Member Chair of Neurology, Psychiatry, Pain Medicine, and Sensory Systems at Regeneron Pharmaceuticals, Member of the Global Development Scientific Council, Member of the American Clinical and Climatological Association and an FPA Medical Advisory Board Member.
Although the video is not live, we encourage you to comment and ask questions. Your participation and feedback will help us gauge interest in a variety of topics to better serve the community with future webinars.
The Facial Pain Association (FPA) does not endorse any product, doctor, procedure, medical institution, or its staff.
Such incredibly important information. Such a great description of our pain attacks and how it ties to PTSD. Thank you!! I am wondering if this will be available as a transcript. It' challenging to read the captions and the information in the slides. Thank you.
In July of '24, if I make it, I'll be 75 and have been suffering with T.N. for F I F T Y Y E A R S. T.N. is a terrific "life ruiner". The Creator knew I'd have to live with T.N., but He made me anyway... It's not very encouraging to know that T.N. will be with me until the end.
which treatment you had meanwhile like mvd surgery and other??
@@ranagauravus Seizure meds. like dilantin, carbamazepine, tegretol, etc. all with bad side effects. Had a rhizotomy, but never an mvd operation. The disease is called the "suicide disease" and if it wasn't for using alcohol to temporarily stop the severe, awful pain, I'd have been a statistic... I could write a book on the painful, negative experiences I've had to live with during my 50 years with T.N. I wouldn't wish T.N. on my worst enemy !
@@JeffHogue-em6zx but why mvd did not opted, any special reason like negative side effects or recurrence rate is high or other issue and how alcohol stopped pain like if attack happen then at that time you take alcohol in pain
@@ranagauravus $$$ Too, I've read where in some cases, the pain returned after the operation. There are chances of undesirable complications post operative incidences especially something I really don't want...hearing loss (I am a musician). No, at my advanced age, I figure I'm going to ride it out. It would take years of mental recovery, to try and get back to a normalcy of existence in my life if I had the operation and it stopped the pain. As a side note, having T.N. for so long, it has made me not want to really speak or to hang with anybody. When I was on the job, I didn't want anybody asking me a question, for having to answere,, it was awfully painful. Don't know how I kept my job ! I don't blame anyone for not understanding, but T.N. is much more than super-pain, it changes the mind on how to live and survive, as you're getting the crap beat out of you with pain 24/7 and you never know when the episode will end ! It lasts for several months... Lovely, right ? Ok, so long. All the best to you and may you NEVER develop the dreaded trigeminal neuralgia.
Thank you for joining us for tonight's webinar. You can receive information and resources in your inbox when you sign up for FPA's Bulletin at this link www.facepain.org/sign-up/
It's also not possible to see the bottom of the slide, due to placement of the doctor's face on screen.
Midfacial pain is never mentioned, why