Patients respond to gene therapy treatment for sickle cell anemia
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- Опубликовано: 16 окт 2024
- "60 Minutes" followed several patients as they underwent a groundbreaking gene therapy treatment aimed at curing sickle cell anemia. CBS News chief medical correspondent Dr. Jon LaPook and patient Jannelle Stephenson join CBSN to discuss how the therapy works and what's next for Jennelle.
As someone who has full blown Sickle Cell, this is amazing to see come across my RUclips feed!!! I'm so glad that this terrible disease is getting SOME kind of attention & that things aren't entirely hopeless for us. I had a friend that died a month ago from this, I so wish she could have made it to see this. I'll have to do a lot of research on this, because just a few years ago, whenever there were talks of someone being cured, they were accompanied by them dying from rejections. I hope this really works.
🙏🙏🙏
As the mom of a warrior, I’ve been both astonished and angered at the lack of research and limited knowledge of SC within the medical community. It is nice to hear the practitioner’s perspective and hearing him describe his feelings of helplessness, makes me a little more compassionate towards them
I thought I was the only one that was treated like a drug addict in the ER whenever I had crisis..
And its worse now because there is a saline and opioid shortage because of backlash from the opioid crisis.
No, you're not the only one at all.
@@genericamerican7574 & yea, the hospitals in my area still blame the shortage on Hurricane Maria, the one that hit Puerto Rico & Trump was throwing paper towels at people, & that was 1.5 years ago smh.
Same in my hospital
Know that you are not the only one, I was treated the same way.
I’m so happy for you jennelle, god bless you and I hope you never feel pain or get a sc crisis ever again
My sister is 34 and was diagnosed at 2 with sickle cell disease. Her organs are still doing good but this week she had the worst crises ever. Four days in pain with heavy drugs every two hours for . I pray she remains healthy enough to see a cure. I pray to God for everyone to see a cure 🙏❣️🙏 please Lord.
In Jesus Name 🙏
My daughter has the worst type. Hopefully a cure comes or at least significantly improved treatment
What I hate most about telling ppl about sickle cell. When they tell me about the one person they knew with it... that died smh @9:38
I'm so happy there is a cure for this I'm tired of suffering 😭
Thanks so much for sharing this information it means a world to me it very helpful and a life saver.
i can understand your pain.. my girlfriend have this.. i literally cry with her when she have pain crisis.. now this gives hope to us
I'm extremely happy , if they're a cure for sickle cell cause this disease is very painful specially when you have the crisis some of those stupid nurses think that people with sickle cell are addicted to pain medication that why we come to the hospital. I hate to go to the hospital when I have the crisis cause of the treatment from some of those stupid nurse some of them are heartless...
I have a family member with sickle cell SS and once she was finally able to get her hands on L glutamine it cut her crisis down by more than half and this is something that should have been given to people with sickle cell from birth but because it is so expensive it was never even a thought.
I realize that it's also now sold over the counter and on Amazon.
Endari is the name brand which will cost a couple of grand if your insurance is willing to cover that but it's amazing to know that it is now sold over the counter and even on Amazon .
the literal name is L glutamine and the starting dose is usually 20 mg per day.
10mg in the morning & 10mg at night.
This tasteless powder has been such a miraculous treatment and the sooner it is taken the better of a chance you have at living a life normally before this disease begins to do irreversible damage to your body and organs but no one Will tell you this which is the most upsetting part of it all .
we had to figure it out on her own and then beg doctors for it because they know that there is no money in cure only money in a lifetime of treatment.
Hey, more on this? Like clear names of the drug
Pleas can you give me more details about this medicin. I live in Europe & have a baby who is diagnosed with this!
@@MMM-km3by did you keep the baby”s ombilical cord??? It’s really important if the baby doesn’t have the same blood type as the siblings. They can use the ombilical cord to cure the baby in the future.
I'm so happy for these people. It's a awful thing to watch someone go through.
The young with that hat had the best outlook on the situation, yet he has suffered most. Hospitalized 200 times before the age of twelve. I too suffer but maybe to old for this type of treatment.
I pray that's not the case. My sister is 34. Maybe how well your body has sustained health to a certain degree would benefit. If you have organ issues maybe a little tough to fight the chemo. Don't ever give up. 🙏🙏🙏
Truly hope that there is a cure for this disease... I'm 45yrs old and myself have been suffering from this disease since birth. I have reach the point that I'm tired going through this and I hope that these doctors are more educated more now than before! It has been times that I had to go to the hospital for pain control and sometimes my results come back normal but yet I'm still in a lot of pain. This is the misconception these Doctors and nurses have when we are in crisis! I just want them to have a better understanding of what we go through dealing with Sickle cell disease... Myself have SS and already had 2 mini strokes, 2 hip Replacements, seizures and now eye'm also dealing with 2 Slip Disc in my back. Eye also have some kidney issues from all the blood transfusion that eye had. Eye also have glaucoma and part blind in my right eye due to my mini strokes that eye had. Out of 45yrs, eye can actually say that this year has been one of my best years ever since having Sickle cell disease. Eye also have learned to change the way eye eat because that also has a affect on the type of food eye eat. Since from staying away from fried foods, process foods, my health has improved. Far as the water, eye drink up to a gallon of water a day and to avoid sugary drinks which is no good for you as well.. But far as the cure, that's excellent to hear that and they can use this technique to save others from this awful disease and save lives. Me personally don't want the cure because eye feel like it's no good for me at this time. Save this for the next generation that's coming up.
I almost lost my son to SC anemia if not for Dr Solution who helped me in curing my son's sickle cell anemia.
I was made to believe there was no cure by medical doctors but now I believe otherwise because my son was cured from SC late 2018.
I came across reviews about how someone cured his sickle cell anemia with help from Dr Solution, at first I didn't believe because I was not so sure but I still went ahead to give it a try.
I contacted the Dr and told him everything and he told me that he will prepare a herbal medicine for me which I will give to my son, and few days after we had this conversation, he prepared the medication and sent it to me.
After the 2 weeks of using the herbals as instructed by the doctor, I took my son for checkup with no assurance but faith, and behold the results came and showed that he was totally free from sickle cell anemia.
You can also reach out to this exceptional Doctor on e-mail: solutionhealinghome@gmail. com
Call or WhatsApp + 234 8077683109
@@braynhilton5300 I wanna say Thank you for this informative information and glad to hear that ur son is now cure from this awful disease we go through. Now that I have his information, I'll certainly call him and see what they can do for me! I'll definitely pass this message along to others in the Sickle cell community. Thank you so much for sharing ur testimony about this. ASÉ to you and ur family Brotha King!!!
@@braynhilton5300 hello
@@danielwhite8252 ...I hate that when they try and tell u that ur hemoglobin is "fine" but yet ur in excruciating pain...i asked my hemt. he told me no im not crazy n just cuz ur # are "fine" u can still be in pain!! Its a tough disease but after 34yrs. I have learned to advocate for myself & that we need to stick together! Which is why I am planning to start graduate school for public health cuz us with this disease are not treated fair and there are so many things we could sue the govt. For because we dont have same "rights" u could say as other chronic illnesses... but I wanna do my part n hopefully make life just Lil easier for generation behind me!!!
@@Nikkole_B Ur definitely right about the Hemoglobin part. It has been times where I end up in the ER from the same situation! That is why I tell a lot of Doctors that some of them need to retrained and have better studies done for these nurses and Doctors. Then on top of that they need more Doctors and nurses that specializes strictly for that all over these hospitals and besides certainly ones. We all can't just get up and go to certain hospitals that don't have any type of protocols for us who has these awful disease!
This is amazing, and they are so right, I have ss, and I’ve gone to the hospital, and the Dr a lot of the times don’t believe you, they think you just want pain meds, and I hate when they do that, cuz it’s like they don’t believe you, and you have to be in pain till they feel like giving you pain meds
How do you deal with the pain? And prevent it? My daughter has just been diagnosed with SS.. Shes still a newborn, but the symptoms will come eventually. Any advice?
@@YoungHaveNot God willing your daughter won't experience pain but in the event she does, you have to be a very strong advocate for her by making sure she's treated by doctors and nurses with empathy and kindness. You may have to go through a few different types of pain meds before finding the right combination that helps her, but again. I pray your daughter never has to experience that pain 🙏🏾
This could be a breakthrough not only to Sickle Cell Anemia but also to other diseases even auto-immune ones.
My son died on born marrow transplant but now i wish i can save my little girl that will make me relieved
Sorry
Ludi fly in really sorry to hear about your son, my Dr doesn’t want to do the bone marrow transplant on me cuz I’m over 30, they say that the older you are, the harder it is to have a successful transplant
Sorry for your loss.. heart breaking. My daughter has the worst type
That mean they have a cure for HIV
MY THOUGHTS EXACTLY!
Check out CRISPR. Labs are using it to cure any disease that is out there, right now.
They had a cure when they created the disease.
Every disease has a cure when they create it don’t be fooled it’s all about how much they can make
@@tiffanyrena!!!
AML and MDS have started showing up in Sickle cell patients treated with lentiglobin therapy. That's a concern. Will CRISPR safer?
Please I’m in ghana and how can I contact this doctor cus am also living with sickle cell disease 🙏🏽
I improved excellently from my sickle cell crisis with assistance of herbal medicine from Solution Healing Home RUclips channel,, ruclips.net/video/1RqEM0-yuuw/видео.html
Is this treatment available for all in USA? Can a child get this treatment? Does anyone know?
There is always HOPE🌅
If i get cured I just wanna go swimming. With out a care all day long.
How much is it to get the treatment? I have a brother who is suffering from it. He needs it badly
I feel you dear.
Is this true? how can we get into this?
Do you still have pain?
Please how can contact this Doctor?
This comes to late to help my sister who passed away about 4 years ago, but it's still interesting.
How old was she
can i have the address to the website
if this work in thalassemia trait too?
What is the web site to go on I'm interested somebody plz tell me how do you sign up....
How can we contact plz give no
How can i contact this Doctor?
Bryan I need your contact plz
Daddy Drammeh Braynhilton@ gmail. com
@@braynhilton5300 what about you what's app number because I don't have email please send me your WhatsApp number
@@braynhilton5300 will need ur help
So who do you go to if you have a different genetic disease?
I have now 19 year old son in college worrioar .(sckler ) THEY are.. In Rwanda ,it's a rare condition . any support groups in Kigali?
HIV man I don't know
How can i get in touch with that Doctor?
I want to know too
this dr Jena is the same one to accuse patience in the ER of faking there pain, how dare sit up there try to play hero
SC affects Hispanic people too & Arabian
the new cure is a big blessing…✨🙏
thanks for sharing ❤️!
This Gene therapy and crispr cas9 technology will change suffering to a celebration. So glad we live in the information age aka golden age.👍❤️
Please I want you all to help me thank Dr Edos on youtube channel who took out his time to help me cure my anemia he is truly a good doctor #dredos can help you.
This disease left me heart broken and now fighting to save my little girl still living with it😂
@mebelsilver4680please can you drop more details of the Doctor?
@mebelsilver4680hello, please can I get the contact?i have a baby with sickle cell
I am from Nigeria and my son has sickle cell please medicine i can buy in Nigeria he is 10years 1 month
Look up Patrick delves
I almost lost my son to SC anemia if not for Dr Solution who helped me in curing my son's sickle cell anemia.
I was made to believe there was no cure by medical doctors but now I believe otherwise because my son was cured from SC late 2018.
I came across reviews about how someone cured his sickle cell anemia with help from Dr Solution, at first I didn't believe because I was not so sure but I still went ahead to give it a try.
I contacted the Dr and told him everything and he told me that he will prepare a herbal medicine for me which I will give to my son, and few days after we had this conversation, he prepared the medication and sent it to me.
After the 2 weeks of using the herbals as instructed by the doctor, I took my son for checkup with no assurance but faith, and behold the results came and showed that he was totally free from sickle cell anemia.
You can also reach out to this exceptional Doctor on e-mail: solutionhealinghome@gmail. com
Call or WhatsApp + 234 8077683109
@@braynhilton5300 that person is selling you shake oil!!!
@@braynhilton5300 Please are you for real? Is this really true? Where in Nigeria is the doctor at. Please reply.
@@braynhilton5300 ...this sounds to good to be true and they say when it does "its most likely TRUE" like other person said "selling snake oil"
Good nob
Am really happy to know it’s has a cure now if only I have a Dona it will go for it’s
I love science
Pause, so they could have been disarmed HIV?
Outside the body in a test tube 🧪. Not once there’s billions of copies of it circulating around your body
@@RHt09 ....still all they need is a solution on the condom. This is why it's hard to trust scientists when they play doctor
Moe Money they already have developed condoms with antiviral coating. And the risk of getting HIV if your partner is HIV+ and you use your condom consistently is only 1 in 2400 per year. So what’s your point?
India mey v sikal cell ka parmanent Testament hona chahiye..
I do half to agree that Sickle cell disease does affect the African American people but it also affects every other race as well.
90 percent black people, stop it. If it effected 90 percent caucasions, best believe it would have been cured in the 80s
White people do not get sickle cell amnesia stop it
Please I want you all to help me thank Dr Edos on youtube channel who took out his time to help me cure my anemia he is truly a good doctor #dredos can help you.