I have HAE and have been doing my best to research and understand it. Thank you for your help with this. I could never have flu vaccines because I react badly to PEG. Watermelon and cucumbers cause a reaction too. I realise I had attacks during my period that started when I was 12 years old. I am 61 years old and was only recently diagnosed. Period pain was something a girl had to put up with - despite the agony I was in for 3 days each month where my stomach would swell to three times the size and I had vomiting and diarrhoea. I really reacted badly to my first flu vaccine, where my face swelled and breathing was difficult. As it was unheard of to have such a reaction I had another flu vaccine the next year and the reaction was the same. After all these years of misdiagnosis it was a relief to finally be validated. I insisted on seeing an immunologist and now have the report. Still learning more about what sets me off, but my naturopath has been marvellous.
Definitely the best explanation for HAE thank you Kristeen,well done ❤❤❤❤❤
I have HAE and have been doing my best to research and understand it. Thank you for your help with this.
I could never have flu vaccines because I react badly to PEG. Watermelon and cucumbers cause a reaction too. I realise I had attacks during my period that started when I was 12 years old.
I am 61 years old and was only recently diagnosed. Period pain was something a girl had to put up with - despite the agony I was in for 3 days each month where my stomach would swell to three times the size and I had vomiting and diarrhoea.
I really reacted badly to my first flu vaccine, where my face swelled and breathing was difficult. As it was unheard of to have such a reaction I had another flu vaccine the next year and the reaction was the same.
After all these years of misdiagnosis it was a relief to finally be validated.
I insisted on seeing an immunologist and now have the report.
Still learning more about what sets me off, but my naturopath has been marvellous.
Can someone with HAE Type 3 take Advil or any nonsteroidal anti-inflammatory drugs?