Unforgettable Memories at Disney World

Taking our boys to Disney World has been a dream since they were born- Join us as we share our unforgettable 4-day adventure at Disney World (with Duchenne Muscular Dystrophy)! From thrilling rides and delicious treats to magical character encounters, this highlight reel captures all the fun and laughter we experienced. Get ready for a dose of Disney magic and see why this trip will be truly unforgettable!
👉🏻 Disney DAS Pass Portal : disneyworld.disney.go.com/gue...
Disclaimer: This is not medical advice. These videos simply serve as documentation surrounding this treatment and decisions we've made, as parents, to potentially better the lives of our children.
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What's Elevidys? Elevidys is a gene therapy from Sarepta. It's the first gene therapy FDA approved for pediatric patients (4-5 years old) with Duchenne muscular dystrophy.
Sarepta has also produced Exondys 51.
HUGE THANK YOU to Sarepta (Elevidys) and the Seattle Children's Hospital!!!
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Hey! If we're meeting for the first time- We are the Bafus family, and we are starting this RUclips channel to give hope, document our journey, and to shine light on duchenne muscular dystrophy.
For our first 7 days, we posted one video a day, documenting Mason's $3.2 million, once in a lifetime gene therapy.
You can watch that here ➡: • Mason's Gene Therapy
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We are typically private people, just like you, but this disease has forced us more into the public, and that's ok. We've learned that this is not a disease that anyone can fight alone. So we decided to take to RUclips to help spread the message and raise awareness of this rare disease.
You can follow us here 👇
/ bafusfamily
/ @bafusfamily
#disney #dmd #familyvlog

[@bolyardhomephone7167]

SLIKNNNYY DOGGGGG!!!

[@BafusFamily]

😂😂😂😂

[@jenniferagee2450]

Beautiful Family, I’m Glad You All had a Great time, my 23 year old son (High Functioning ASD) and I was there for 8 days this past November/December. We Love Disney too we also stayed at All Star Movies. ❤🏰

[@BafusFamily]

We were so impressed with that hotel! It was perfect for how affordable it was 😁 my next hope is to go during Christmas 🎄