Wow, that's just as bad as Gastroparesis. I'm so sorry you have to deal with these issue's, it's a very hard road being a chronic illness patient, thank god you have Paul he is so good to you and I can understand how it feels in the difficult moments when all they can do is hold you and comfort you as best they can, they might think they are helpless but, having your hubby by your side is such a great comfort and knowing they understand what you're going through makes it a bit less hard on you emotionally and mentally. Sending you a big hug my friend trust in god and know that he is there always.🙏💐
I'm currently recovering from post MALS surgery. I had it done July 21 and got back home August 21. Healing is definitely a roller coaster but I can say after doing all my research, ending up on a feeding tube and dealing with what I did, open surgery with him has been way worth it. I am sorry you're currently dealing with MALS. We Unicorns gotta stick together! I send my love!
Today, I am having my one year anniversary from open surgery. I have to tell you that after 16 years to get a diagnosis and to the point where there is no medication that will help the pain, I am thrilled to be pain-free from Mals. I had the right Doctor who is experienced, educationed and knowledgeable -it has made a difference. I would not wait if I knew I was diagnosed with mals, I wouldn’t wait for surgery because it only gets worse as time goes by. Thanks for your info-hope you are feeling ok!
I’m 95% sure I have MALS. My grandma had a stent in her celiac artery about 20 years ago and her pain went away. I should be receiving a phone call tomorrow from a MALS doctor here in Chicago. I FEEL YOUR PAIN. I’ve been dealing with all of those symptoms for 17 years. 🥺😳
Fellow MALS patient here, I can’t eat at all, I’ve been on TPN for almost a year, and finally got my diagnosis last May. I’m still waiting for surgery because covid has backed everything up.
I have superior mesenteric artery syndrome(SMAS)as well as gastroperisis......SMAS is a compression of the 3rd part of the duodenum which can also include the left renal artery and can also involve MALS...
My husband and I both have severe chronic illness & pain. What would you guys do if you’re both too sick to get out of bed for weeks? That’s our problem.
Thankfully one of us is always decent enough to be able to do things around the house. Somedays we are both down but again one of us pushes through for the other. It can be scary thinking about it but you have to be positive all the time and keep moving forward💚
They did all these tests and all they found was wild Gastroparesis but the pain is like under sternum in between my ribs and I feel like MALS seems to fit but they’re making me get tested for eating disorder and it’s all in my head
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Wow, that's just as bad as Gastroparesis. I'm so sorry you have to deal with these issue's, it's a very hard road being a chronic illness patient, thank god you have Paul he is so good to you and I can understand how it feels in the difficult moments when all they can do is hold you and comfort you as best they can, they might think they are helpless but, having your hubby by your side is such a great comfort and knowing they understand what you're going through makes it a bit less hard on you emotionally and mentally. Sending you a big hug my friend trust in god and know that he is there always.🙏💐
I'm currently recovering from post MALS surgery. I had it done July 21 and got back home August 21. Healing is definitely a roller coaster but I can say after doing all my research, ending up on a feeding tube and dealing with what I did, open surgery with him has been way worth it. I am sorry you're currently dealing with MALS. We Unicorns gotta stick together! I send my love!
I hope your feeling better my love 👍💚
How's the recovery going so far ?
Today, I am having my one year anniversary from open surgery. I have to tell you that after 16 years to get a diagnosis and to the point where there is no medication that will help the pain, I am thrilled to be pain-free from Mals. I had the right Doctor who is experienced, educationed and knowledgeable -it has made a difference. I would not wait if I knew I was diagnosed with mals, I wouldn’t wait for surgery because it only gets worse as time goes by. Thanks for your info-hope you are feeling ok!
I’m 95% sure I have MALS. My grandma had a stent in her celiac artery about 20 years ago and her pain went away. I should be receiving a phone call tomorrow from a MALS doctor here in Chicago. I FEEL YOUR PAIN. I’ve been dealing with all of those symptoms for 17 years. 🥺😳
I am soooo sorry you've been dealing with it for 17years!
I hope this doctor can help you get some relief 🤗💚
I have MALS. I watched your video this morning, and I am admitted tonight .....again. I feel your pain
I'm sorry! I hope your feeling better and go go home as soon as it's safe for you💚🤗💚
I had MALS surgery in 2019, what a roller coaster ride this has been... 🦄
I have SMAS and I also have severe pain. I have a feeding tube due to both gastroparesis and SMAS. Thank you for the education.
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Thank you for sharing.
Thank you watching 💚👍🤗
Fellow MALS patient here, I can’t eat at all, I’ve been on TPN for almost a year, and finally got my diagnosis last May. I’m still waiting for surgery because covid has backed everything up.
I'm sorry your still waiting. I hope they get you in soon to get you some pain relief.
Let me know how you do!
So does she have a connective tissue disorder like ehlers danlos
Hmmmm! Never heard of it. Thank you for sharing. ❤
I have superior mesenteric artery syndrome(SMAS)as well as gastroperisis......SMAS is a compression of the 3rd part of the duodenum which can also include the left renal artery and can also involve MALS...
Thank you for sharing that, I will do more research as I haven't heard of that before 👍👍
Can I ask how the male pain compares to gastroparesis pain?? I’m about to get this surgery and I’m so so scared my gp won’t go away
My husband and I both have severe chronic illness & pain. What would you guys do if you’re both too sick to get out of bed for weeks? That’s our problem.
Thankfully one of us is always decent enough to be able to do things around the house. Somedays we are both down but again one of us pushes through for the other.
It can be scary thinking about it but you have to be positive all the time and keep moving forward💚
Thank you for sharing.
You said you have pain when and after eating- what about in between?
They did all these tests and all they found was wild Gastroparesis but the pain is like under sternum in between my ribs and I feel like MALS seems to fit but they’re making me get tested for eating disorder and it’s all in my head
Did you have swelling across/underneath the breastbone. Swelling at the top of the abdomen in the middle of breast?
Did u get this deal with? I have the same thing but it's a hernia
I do, and I have been diagnosed with MALS.
How is she now 😢
Do this cause a twisted feeiong in abdomen
Fungal infections can cause this as well, FYI. No surgery needed most likely.