Multiple Sclerosis Diagnosis Part 1: Doctors, MRIs, & Spinal Taps
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- Опубликовано: 17 окт 2024
- A Relapsing-Remitting Multiple Sclerosis (MS) diagnosis absolutely changes your life. Here is my story of the struggle and patience needed leading up to the diagnosis. My hope is that sharing these details may help others facing an autoimmune disease diagnosis. You are not alone in this!
Here is an overview of the things I share in this video:
The initial symptom that started the process
The multiple doctor visits and tests over the 4 month period leading up to the diagnosis
My thoughts and feelings during this process
Please reach out to me with any questions about the content of this video as I am willing to be as helpful and open as possible. You can hear tree frogs in the background at times!
Email: theashcashmash@gmail.com
I will be watching your other videos... It was like me talking and telling my story but it was you. I had optic neuritis in my left eye 14 years ago and just now had an mri with lesions I also went the chiro route/ no drugs before beasue the mri didn't show any lesions as they do now. I am looking into functional and I do keto. (there is more that happened before- vertigo, pins and needles etc) I am interested in your journey.
Thank you for reaching out and commenting. I’m sorry to hear that you’ve had a similar journey, but with probably many years of unanswered questions until recently. You are not alone in this! I have an update coming soon as I’ve just experienced/am still experiencing optic neuritis in my other eye and an updated MRI shows lesions. Also, I have a new set of doctors that I’m seeing. Thank you for watching the videos and please reach out as much as you’d like!
You mentioned that all your MRI showed was some sinus issues. Was it just an MRI of your brain? I don’t see a neurologist until the 5th it November. But I had an MRI in July (when my neurology referral was made) and all the MRI of my brain only showed was “partial opacification of the left frontal and right sphenoid sinuses”. I’ve got a laundry list of symptoms and am 100% convinced that it has to be MS. Nothing else fits. Infact, it was my ophthalmologist that first suggested that MS might be the culprit, even before I had any numbness. I’m sure my neurologist is going to want to consult with him after my appointment.
Yes, the first MRI in September 2017 was of the brain with and without contrast. I went back through my paperwork for the exact verbiage about the sinuses from the imaging location:
There is moderate to severe left maxillary sinus mucoperiosteal thickening with an air-fluid level suggesting an acute component. Moderate bilateral ethmoid sinus mucoperiosteal thickening is seen. The remaining visualized paranasal sinuses and mastoid air cells are well aerated.
The second MRI in December 2017 was of the spine and brain with and without contrast. I do not have that radiologist report on hand.
You mentioned numbness and an ophthalmologist- are you experiencing optic neuritis? It’s hard to wait so long to get answers, isn’t it?!! Please let me know what else I can answer for you. My best goes out to you during this hard journey.
Well it all started at the beginning of the year when my migraines started becoming more frequent and severe. So my first thought was to get my glasses prescription checked. I got my new prescription in May and talked with my ophthalmologist about the migraines. He said it could take a couple weeks to see any improvement. But on the 4th of July I got a very different migraine. It lasted in total 13 days and included symptoms of dizziness, twitching behind my eyes, balance and memory problems, and even the whole right side of my face tightening. I made an appointment to see my ophthalmologist when the twitching behind my eyes started. He couldn’t find anything wrong with my eyes or retina. But he did want me to come back in a month. At that appointment he noted that I had changes the way I saw color and something else I can’t remember in my left eye. He kept asking if I had any numbness and even after I said that I hadn’t, he said that it might take 10-15 years to get a diagnosis but he thought that it was the beginnings of MS based off what he saw and my symptoms. Less than a week and a half later my numbness started and has been a daily occasional ever since. I had actually completely forgot he had said that until I went back through my notes about my appointments and symptoms. When I saw that he said that and I looked up MS, everything I have been experiencing just clicked.
It sounds like you do have some symptoms of MS. Whether it is MS or something else, there is a long road ahead, but you are not alone in this!
Please feel free to let me know what the neurologist says on November 5th. Also, let me know if you have any more questions!