20 years post total thyroidectomy for cancer and I'm dealing with recurrence. Even after surgery, I will have to fear it happening again and I'm only 26. It's not a nice to live.
hello - i have poorly differentiated metastatic carcinoma that they found when doing surgery on my solid variant papillary thyroid cancer for which they removed 69 tumors many of which were positive for cancer. it had invasively spread into the blood vessels and obviously lymph area. it was a successful surgery and after rai high doses i got better eventually or so i think i did. my abdomen has been hurting and i got a ct scan yesterday and it is showing a hypoattenuating lesion in my liver and my tsh which was always supressed to below 0.1 is now suddenly in a month time frame high 5. they dont seem to be worried but i am and i havent had a thyroglubin check in over a year. not sure how i should approach this because i do go to a good facility i think MSK. one more thing, ive had palpable nodules in the neck for months now that dont decrease and an ultrasound a few months ago say only "possibly reactive" but i dont understand how they dont go away. thanks for your time and advice.
All this sounds like a dreadful way to "live." No way could I do all this. Not only that, one oncologist says one thing, next one says another and the third one says something else. It isn't an exact science. My bff obeyed ALL the protocol and died anyway at 51. So Typical. No $$ cash in alternatives. Cancer in 3 places? Hospice.
20 years post total thyroidectomy for cancer and I'm dealing with recurrence. Even after surgery, I will have to fear it happening again and I'm only 26. It's not a nice to live.
Do you have update
hello - i have poorly differentiated metastatic carcinoma that they found when doing surgery on my solid variant papillary thyroid cancer for which they removed 69 tumors many of which were positive for cancer. it had invasively spread into the blood vessels and obviously lymph area. it was a successful surgery and after rai high doses i got better eventually or so i think i did. my abdomen has been hurting and i got a ct scan yesterday and it is showing a hypoattenuating lesion in my liver and my tsh which was always supressed to below 0.1 is now suddenly in a month time frame high 5. they dont seem to be worried but i am and i havent had a thyroglubin check in over a year. not sure how i should approach this because i do go to a good facility i think MSK. one more thing, ive had palpable nodules in the neck for months now that dont decrease and an ultrasound a few months ago say only "possibly reactive" but i dont understand how they dont go away. thanks for your time and advice.
Thank you
3:00 liver lesions in liver and lungs.
All this sounds like a dreadful way to "live." No way could I do all this. Not only that, one oncologist says one thing, next one says another and the third one says something else. It isn't an exact science. My bff obeyed ALL the protocol and died anyway at 51. So Typical. No $$ cash in alternatives. Cancer in 3 places? Hospice.
Just let me die why do all of that