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life update: autoimmune hepatitis
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- Опубликовано: 18 авг 2024
- it's been a while! here's a life update regarding where i am today following diagnosis. i answer some questions i've been asked, and talk about current state.
enjoy! xx
casey
Thank you for this update. I am in the process of getting a diagnosis. My biopsy is scheduled in 2 weeeks. I am hoping that treatments will work well for me. May you continue to be healthy.
You will do just fine during the biopsy. I just had one and I was afraid. It was not bad at all. I wish the best of luck.
Thank you for sharing. I am in my 9th month of AIH diagnosis. I also have fatigue and tremors known as FND. It’s seemed to come along when I got sick. Things are slowly getting better. Really appreciate the update and the support. Your hair looks fabulous! 😊
so happy to see you thriving and healthy
Haven’t drank alcohol in 7 years and been off immune suppressants for over 2 and half years. My dr doesn’t put me on Aza or steroids right away if my liver enzymes go up no more then double. It could be a supplement or virus so he waits. My enzymes were over 1500 7 years ago. 🤦♀️. I was on 25 Aza lowest mg. Thanks for your video. 😊. Do you have fibrosis or anything? Best of luck !!! Live your best life !!
Thank you queen for sharing this information :) you made me feel better, also, do you also need to hide from the sun? :0 because I heard that we AIH patients needs to be extra careful with exposing to sunlight
You should totally be wearing sunscreen if you’re taking azathioprine :)
@@KCD14 but normally wearing sunscreen would be enough? Or how's that been working for you? :)
@@mimamaestupapa5846 yes, I just make sure to reapply more often and even wear in the winter too!
Hi! I have AIH and I’m just not happy with my specialist. Which hospital do you go to for your specialist? Who do you recommend for your specialist. I’m literally stuck and have difficulty reaching my own specialist
Great to see you.. Can you elaborate about workout🏋🚴💪?
I work out consistently multiple times a week including cardio/running, and weight lifting/training. I do high intensity work outs without issue
@@KCD14 thanks 🙂
During ur treatment, was your jaundice especially unconjugated normal or it was slightly higher
Which type autoimmune hepatits you have
Did ur eyelashes fall out too? I don't know if it's just because of crying everyday but I'm shedding eyelashes and hair so bad
I don’t think so! But I was also crying every day, hang in there❤️ I had a different issue where my eyelashes were just weak so I’d recommend a good eyelash serum, and rosemary oil for hair growth!
@@KCD14Thanks so much. Do u have any recommendations for lash serums?
@@user-ys9bk2xz9f I like the ordinary peptide one!
Do you have high blood sugars as a consequence of taking steroids?
I did not when I was on it and still don’t
Haven’t drank alcohol in 7 years and been off immune suppressants for over 2 and half years. My dr doesn’t put me on Aza or steroids right away if my liver enzymes go up no more then double. It could be a supplement or virus so he waits. My enzymes were over 1500 7 years ago. 🤦♀️. I was on 25 Aza lowest mg. Thanks for your video. 😊. Do you have fibrosis or anything? Best of luck !!! Live your best life !!