Understanding Sarcoidosis: A Visual Guide for Students
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- Опубликовано: 18 апр 2019
- This video contains a detailed and simplified explanation about sarcoidosis. We discuss the pathophysiology, presentation, investigations, complications and management of sarcoidosis.
CORRECTION Sarcoidosis can cause a facial nerve palsy, not a Bells palsy (which is an idiopathic facial nerve palsy) - thanks to David Pennell for pointing this out.
More written notes and diagrams about sarcoidosis are available on the website at www.zerotofinals.com/sarcoidosis.
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DISCLAIMER: This video is for education and entertainment only, and is not medical advice. This video should NOT be used for medical advice or to guide clinical practice. The Zero to Finals content should not be used in any way to guide medical decision making. Zero to Finals takes no responsibility for any actions taken or not taken based on the information provided. Local and national guidelines and senior clinicians are there to help you make decisions, not RUclips videos. If you need medical advice or information, seek it from an appropriately trained and licenced doctor or healthcare provider that can address your individual needs. Zero to Finals cannot guarantee the accuracy of information in this video. Please highlight any errors you notice in the comments below - thank you.
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I had Sarcoidosis when I was 18 yrs and 27 years old both times was identical symptoms it started with the lungs for a couple weeks and then a rash like hives on my legs. My heel was so sensitive and red. Gradually I started to feel pain on my joints and I couldn’t breath. The level of pain was 11 it was unbearable I couldn’t dressed my self I had my husband help me. They gave me steroids and asthma medicine inhaler. It lasted for three months with praying and Gods help it left. I still have breathing problems so I use Breo inhaler and that has help so much. I’m also felt alone with no one who heard of Sarcoidosis. I’m in my mi 40s and have to get tests every time I’m having difficulty of breathing so far I’m ok. Praying for you all.
Best of health.
I hope your symptoms stay away for longer and longer periods.
I'm glad you are doing much better. It's definitely a very serious thing to deal with some days are better than others! I just try to stay stronge and enjoy life!
@@ApuravgoelWHAT IS LUNCH NODULES
God will perfect it. What God cannot do does not exist.
Be heal forever
I found out I had Sarcoidosis in 2000. I was a junior in high school. I remember at the time little was known about this disease. It’s nice to see other people who are familiar with this vicious illness. It takes so much from your body. I wish peace and blessings to anyone battling this.💪🏾🙏🏽💯
Did you get that "wet sock" feeling?
@@jamiewilson5679 I get it often and my wife looks at me like I'm crazy when I tell her about it
@@doogiebear139 it's SO weird.🤣
Hi 😊
Sarcordosis is Awful
And Hard to Deal with
But for me it's Not just the Disease it's Self, it's the other issues like The Bad Service from The Oxygen Provider. It's getting treated as a Cigarette smoker and Not a Sarcordosis Patient who has a different Respiratory History because my Lung Disease is Not the SAME as someone who Smoke Cigarettes. If you Never Need Oxygen, you're LUCKY! God bless you and keep you healthy 💯
@@red19700 God bless, hope all is well.
My nephew passed away from Sarcoidosis about 3 years ago. He was 35 or 36. He was asymptomatic for years. He coached two basketball teams. He actually found out he had it after playing full court basketball. He later couldn't breathe right so went to doctor. He told us the doctors were surprised he had been playing ball or running because his lungs were a mess. It's unbelievable how his health went down so fast. I think it was a year or so later that he passed away. He was my brother's youngest son. Very heartbreaking. He was a great guy who loved his baby daughter, his students and his community.
Sorry for your loss. I have it as well. It keeps snatching my employment from me. First truly suffered from it the day after my 30th birthday. I'll be 50 in February. Been studying origins and human physiology along with being a pupil of holistic doctors, medicine, and lifestyle for about 4 yrs now. No pharmaceuticals whatsoever! Not even aspirin. But the disease reduced my vision from far better than 20/20 to blurred and cloudy with very annoying floaters. Then it attacked my skin above my ankles giving me terribly poor healing skin ulcers. I can't even begin to explain the intense pain at times. But I'm still doing diligence.
Sorry for your loss ❤🙏
Sorry your nephew past away. My sister is right now in icu with this. She is on a machine that works for her lungs. It affected her heart and kidneys. She is on a dialysis now. Can put her on the list till they get her kidneys together..
She was diagnosed back when she was like 18. She is over 60 it came back like 6 yrs ago. Her doctors at the fist hospital kept doing procedures which made it worst and then denied to put her on the list. Shit crazy
I so sorry to hear this.😥 There have been a couple of cases of young people passing from sarcoidosis also here in the UK. So very sad. My sincerest condolences to you and your family. Sending you much love and hugs.💛
I am so sorry. What a terrific loss. God Bless you.
I was diagnosed with Sarcoid in 1983…it was treated with inhaled steroids…no issues since…also ran two marathons so my lungs are good
@Robert Brady. God bless you Robert!! I have sarcoidosis and it's exhausting and painful. I'm praying for healing.
I have had cardiac sarcoidosis for 13 yrs. I am on prednisone, several heart meds, and have a pacemaker/defibrillator. I was diagnosed with a lung biopsy. I am in overall good health, exercise and eat a plant-based diet. I recommend National Jewish Hospital in Denver, CO where they treat many lung and autoimmune diseases including sarcoidosis.
I just got a pacemaker/defibrillator a few months ago for my sarcoidosis and it saved my life twice. Battling this disease has been a real struggle for me.
This is what took my mom in 2014. We never say it coming. One day is was talking to her on the phone the next day I got a call she was gone. Losing a mother is tough but losing them w/o warning….😢😔
I am very, very sorry you lost your mother. The shock must have been unbearable.
I was diagnosed with Neurosarcoidosis in 1997 when I was 21 years old. I went paralyzed, and I had to learn to walk again. I now have it of the Brain, Spinal cord, Heart, & Lungs. I got a defibrillator at 30. My prayers go out to everyone battling this horrible disease or any auto immune diseases.🙏🏽🙏🏽🙏🏽
I am praying for comfort and complete healing upon you.
How did u find out
I have it in my lungs and eyes. I recently had a hip replacement and then 6 months later my knee replacement. I believe that it's starting to affect my joints. I need a Dr that specializes in sarc. Instead of me going to multiple different doctors
My mother just passed away last month from Sarcoidosis. She did have the double lung transplant that was a success but developed other issue due to all the different medications. The decease also spread to her lymph nodes and stomach and caused blood clots that formed in her small intestines which cause 95% of it to die. By time doctors saw the necrosis of the small intestines it was already too late. For anyone dealing with this disease, God bless you may He heal your body.
Very sorry for your loss
So sorry for your loose!
My mom passed away from this disease as well….some say it’s from minuscule mold in the air homes, work place, etc…. They really don’t know. I’m sorry for your lost my mom suffered from this illness
1 November 2021
Hi Rachel
What is 'moon face?
Thanks in advance.
Condolences Keyliyah33
I’ve had this disease for 10 years. I was initially told I had lymphoma and after many difficult moments with family members, I received a very pleasant phone call saying it was sarcoidosis all along. The doc was so happy to tell me that, I felt relieved. Little did I know. Over the years I’be only met two other people with sarc. You’re video is an easy way for newly diagnosed sarc patients to understand what could be happening along with what is going to happen next. Sadly many people, including doctors aren’t familiar enough with this disease. Please continue to make more of these videos.
Thanks Lisa
Lisa Appell - how do you feel now after 10 years of treatment? I’m a 50 year old male recently diagnosed. Thanks in advance.
I was diagnosed back in December 2018 . My family Dr along with a routine heart scan from my union diagnosed it before my actual Pulmonary Drs diagnosis was complete . Have to say I feel blessed after hearing some of the stories of people suffering a long time undiagnosed
Hope you all are doing well ❤
MATSSAKSVDOS
My mother passed away from this disease in 2013 on Easter Sunday. I watched my mom run her own cleaning business to letting it go and not being able to breathe. I'm grateful for the mother she was to me. Get ya rest my 💕
🙏🏾❤🙏🏾
May her soul rest in Peace
Thank you ladies💗
I was diagnosed with Scarcoidosis after have my second child. Over the past 16 years I have had 5 eye surgeries, and been on many rounds of methotrexate. I have never met anyone that I didn't have to explain my condition to. I found this to be very useful and informative. Thank you.
Even though this video is 3 years old, I'm just discovering it now. I am a 69 year old black female and I have had sarcoidosis since the 1990s. It seems to attack every 10 years or so. I'm afraid though that it's flaring up again now. I've gotten it in my lungs, eyes and legs.thank you for this video it's very informative
I am a black female 63yrs old, I found out I had sarcoidosis in 2001. I kept a constant dry cough, I had nodules that came on my outer skin. For two years I kept going to a neurologist, in my city. And they couldn't figure out what was going on. Until I asked to go to the IU Hospital in Indianapolis, the doctor there discovered in 3 days that I had sarcoidosis. It had start affecting my walk , like stiffness arthritis.
Thank God they started treating me with prednisone steroid, and thank God today, I no longer have a constant cough. I am still under doctor's care, twice out of a year I have to see my neurologist. Doctor James is such an awesome doctor. Again I thank God that he allowed me to find a good doctor that understood what I was going through. Because a lot of people have sarcoidosis and think that is asthma, because it affects your breathing. So again thank God for good doctors that know about sarcoidosis.👏🏽👏🏽
My BFF from childhood has sarcadosis. This disease is so unfair and difficult to DX....god bless all w sarcadosis.
I'm not a student. My sister (black female, 49 years of age) passed away from this disease. She was to receive a lung transplant,, but didn't make it for this to hapoen. Thank you for sharing details and insight as we knew nothing about it.
Sorry for your loss I feel the same way they are not educating us with this disease I can't work or do anything with this disease always in pain
@@patsysterling9113 I am so sorry to learn of your diagnosis and pain. You are in my prayers for complete healing and a testimony to others of the power and love of God. I pray that you be encouraged to continue your fight. Sending you a big hug!!
Thank you that means a lot to me
So sorry for your loss.💛💚
@@patsysterling9113 💕
I’m not a med student, but I am a patient with Sarcoidosis. Thank you for the very clear, conscience, up to date video about “All Things” Sarc. It is hard to find info like this all in one place. Hats off to you and anyone else that contributed to this easy to understand, informative video.
Thanks for the great feedback! I am glad if it helped in some way
@Emily Halifax Thank you so much mines back I’m gonna need all the help I can get thank you for the information in and where is he located
@Emily Halifax Thank you.
How can i get in nepal ?
PRAYERS FOR HEALING 🙏
I got this when I was about thirty. Had nearly every symptom you talked about. The doctors told me it would move from my lungs to other parts of my body until it took my life! I was treated with steroids, methotrexate and other drugs. I am now 82, and still Showa scarring in my lungs! My son inherited it from me. We both had it, plus both had to have an illeostomy because of ulcerated colitis. We have both had to have out rectums removed because of constant pain and bleeding. I was 21, my son was 18. No immune systems. I have severe rheumatoid arthritis too! It’s been a long sixty years for me! My son is now 64 and has suffered with these things for fifty years now. My other four children have been fine. No one in our family had ever had any of this! Guess we were just the lucky ones! Thanks for your explanations! Not much has changed, as they asked me if I had ever been in the deep south or lived in a basement. Told me it was more prevalent in black people. This was in 1969!
My my...What a journey! LaRae, what you and your son have lived through...I don't mean this as a truth comment, but have you ever thought about writing your life story? It sounds like it would be very helpful to others, and may be cathartic for you and your soon. God's Blessings to you both 🙏🏾
Unfortunately, my oldest sister died from this disease in October 2000 at Northwestern Hospital, Chicago. As a family we donated her organs and tissues for further studies of this disease. We wanted others to learn more about it as well as studies about it because when she was diagnosed with it was back in the mid eighties by a dermatologist. Again only a few doctors was aware of this terrible disease and no regimented treatment for it. What I believe what really pushed this to the fore-front was the death of comedian Bernie Mack. Bernie Mack died at at the same hospital same ICU unit almost eight years later. Knowing that another family having to go through the same things as my family is unimaginable because I know that they wanted answers as well. Awareness, education, and medical treatment for those who have it was all I could think about.
Everyone please know your family medical history and share it with other members. This is where awareness should begin and documented in your medical history. My best regards to everyone and their families.
In about 2 weeks I now if the diagnosis correct is. When that is the case 😭 is this the second diagnosis I passed on to one of the children lots of prayers for the grandkids. Diagnosed EDS 2019 age 53 and its also genetic, few months later Horner syndrome, 2009 infections in my lungs almost died sinds that time every year infections in the lungs and doctor couldn't find why. Heart attack in 2020. It's a scary time not to understand what wrong. Now I learned to now my body. Fever higher or lower temperature lot's of sleep and now stress. Hope for more awareness about this diagnosis. Learn Ehler Danlos, lung, brain, heart and Horner syndrome can be a connection to Sarcoidose. Because the diagnosis EDS already speciale care, hope don't need more. So lucky for all the things I still can do. Wishing everyone strength and sending blessings 🍀
I'm so sorry for your loss. ,😢 My baby brother passed away this February 2023 at 34 ...9/12/23 he would have been 34 this week. It took a while to diagnose but he had a very bad case of it. So painfully sad and just still don't feel real 😢. Lesions all over. Just reeked havoc in multiple organs especially the lungs 🫁
@@Mea_Davis I'm so sorry for your loss as well. I truly appreciate your response and sharing your thoughts about your personal experience with us. Gaye Nell was 39 years old at the time of her passing.
You know how difficult it was watching your love one on artificial support. Watching your parents trying to wrap their minds around the facts of preparing to lose their first born daughter. It takes time to find a way to get through the loss of a loved one. Especially, special occasions such as birthdays, holidays and family get togethers. My advice will be to speak about all the happier times spent together, spread awareness about the disease. Setup a foundation with the name to help others. It's a journey believe me. May God continue to strengthen you and yours. Peace and blessings to you.
My mother has been suffering from this for years. I am 18 and I have seen her go hospital and almost die so many times. This is very important and informative
My mom battled this illness for years she died from it
@@meyokkob458 that's so sad..late last year my mum was hospitalised for weeks..I had my finals then and there were times when it was evident that she might not come back and in your case, she didn't. I can understand your pain to some extent.. please stay strong! I am sure your mom loved you a lot and would want you to be happy!
I found this very interesting, having developed Sarcoidosis in 1986. Steroid treatment was successful, and within 6 months I was much better. I had Graves disease, and a thyroidectomy, my gallbladder removed, and complete hysterectomy. However still pretty healthy, at 67, despite morbid obesity. Not vaccinated...but have survived covid. Yay for antibodies! Thought you might find this interesting.
Good for you!! No vax is the way to go! After I don't know how many months of oral steroids I had till, I felt like I was dying. So refused to take them anymore. I hate the things. I have thick mucous in my bronchial tubes that narrows the airways. So Mucinex DM 12 hr is my go to especially around flu and cold season. No vax for me either. If I get to heaven faster then so be it. lol I have fibromyalgia too. It's a real pain. Actually many multiple pains, all day every day, for years.
@@ladybugsarah6671 Thanks and you hang in there too, ladybug!!
My friend survived Covid as well, I met her 26 years ago, we were both pregnant, she had sarcoidosis then. Continued blessings.
@@WW-kw3rt blessings to you as well!!!❤
Thank you,
I have Sarcoidosis in my left eyelid after 3x draining a chalazion. I do not have it in my eye, and I also have it on my right cheek right after I started Plaquenil. My CT was clear for any granulomas elsewhere. I've been dealing with chalazion for 2 years. Somehow it developed into a sarcoid in my eyelid and started growing toward the back of my socket. I had a biopsy done and it blew up terribly. I started on 60mg of prednisone then on Plaquenil. My eyelid still isn't healed completely and kept reopening on and off as the sarcoid shrank and inflamed. I had my biopsy done in late January 2020 and it's now July 19th 2020. Please, please, do your research on this and don't just prescribe drugs. I've noticed with clean eating and turmeric my symptoms are so much better. I also started putting black castor oil on my face and the change overnight was amazing. Went from cherry red to light pink. Also, please know these meds cause major hair loss. Vitamins are very important as these steroids suck the life out of you. So it's terrible all the way around. Not only will you get moon face, weight gain, hair loss, vitamin deficiency, mood swings, depression, but you are also fighting the effects of the sarcoid and whatever deformity that causes. Then you get into self esteem. Not to mention if you have it in your lungs and you can't breathe or you feel your heart isn't working. Be sensitive to these patients please.
Wow.. I'm so glad I decided not too even try the presidone when I was diagnosed w/ scarciod in my lungs . I new it was bad but hair loss and moon face . no thank you , the weight gain was all i had too hear to say noway to it when my Dr was giving me the side effects .
Thank you for sharing. It’s true we have to understand family when they have those symptoms you named and be patient. I pray God just heals everyone who is on this page! Jesus you still are in the healing business
@@imajokerimasmokerimamidnig7442
I remember that day like it was yesterday . Because if the Doctor who I Seen back in 2007 would have Told me that if I didn't take the Prednisone I would be in the Emergency Room 1 years later. Instead of letting me
Choose Not for because of the weight gain. I didn't know about the other Side effects. The Doctor didn't express the Seriousness of the disease. How Could he when he didn't have me take a Chest X-ray. 🤔 But
He should have if he was a good doctor and do some blood test that day
Of my doctor's appointment. Unfortunately I Suffered from that Lack of Care
A lot
@@imajokerimasmokerimamidnig7442
The weight gain was the Reason I didn't want to take Prednisone. Sarcoidosis was New and I felt Good. If I would have known what was coming and my Health was Getting bad I would have Taken the Prednisone at first. The Doctor Did NOT explain the importance of me taking the Prednisone to Slow down the disease Progress in my Lungs. Hell he didn't even talk about all the Side effects. He asked me how I was feeling and that's ALL. I Realize that my Health was Not in Good Hands. 6 months After the Doctor visit my health took a turn for the worst. I had Difficult Breathing so I Drove myself to the Emergency Room and was Admitted in 2007.. It's Been a Very Difficult Journey. I been through the Hair lost, Moon face, and I been on a Ventilator and I will keep Fighting not to Sleep with the Ventilator so I take the Prednisone and 🙏🏽 Ect
There Needs to be MORE Focus on Sarcoidosis Patients 💯
I was Never told by my Pulmonologist that I could take a Vitamin
I have Brought Insure
Protein drink but they are costly. 🤔 I'm thinking maybe the doctors didn't suggest me taking Vitamins because of the Prednisone. 🤔
I have recently been diagnosed with Sarcardosis Pulmonary Fibrosis. Pulmonary Embellism.
Survived Pneumonia late May 2021. I have Asthma and Sleep Apnea.
The Hospital is very kind to me. I can sing again. Very determined to beat it. Thank you for your Lesson. Kind Regards Cyra xx
For the first time I have a name to put to it all. In my 20's I developed erethema nodosum but no doctors knew what to do about them. I discovered on my own stress increased them but if I took between 1000-2000 mg of Vit C regularly it kept them away. If I stopped, they came back. Now, 50 years later it is rare to get the lumps. Appreciate the info.
Hello Susan. Can you be specific in which vit C a person can take? I've been experiencing this for 4years now and doctors didn't help.
Ester C of any high quality C; not thr cheap ones. 2000 mg day
I have Sarcoidosis and Pulmonary Hypertension. One area that you did not mention is Vitamin D dysregulation. Very few doctors know of this and are continuing to prescribe Vitamin D to patients who do not require it leading to hypercalcemia. Maybe you could add this to your video. It is an excellent resource. Thanks.
So you shouldn't take vitamin D with the sarcoidosis cause I take 50.000 mg a weak. I'm always sick with this disease. Don't understand it always in pain
@@patsysterling9113 Ask your doctor to monitor it for you. It's not that you shouldn't take D exactly but it is true that people with Sarcoidosis can have problems with regulating it and if it gets too high it's dangerous.
@@patsysterling9113 You need to have the 1,25D checked. It is the one your body uses. The 25D is what doctors usually test. It is only the storage version, and is usually low in people with sarcoidosis… unless they’ve been supplementing with high doses of vitamin D.
I have been on the Marshall Protocol for 17 years. It got me off of prednisone, and any immunosuppressants, and I now have a normal 1,25D and, can function more normally, in general… although age 73 is taking a toll 🙄
I have sarcoidosis, fortunately inactive,,what , about the vit d?
My vit D is always super low during the active episodes. That isn't always in every case.
Very clear information.. Ive had sarcoidosis since I was 11 and its nothing to joke about ... THANK YOU
كيف حالك الأن
I have sarcoidosis. It was detected due to enlarged lymph nodes in the pulmonary hilux. But with me, the sarcoidosis has never settled in the lungs themselves but my joints and my sinuses! I have already been diagnosed with degeneration of both hip joints and I am only in my mid-30s. All the joints in my body are affected by the Sarcoidosis! Nice that someone has made a video that explains well what this disease is! Greetings from Norway!
Oh my praying for you! I am in the minds of getting diagnosed with it. They’ve seen it on my chest x ray, blood work and now I’m going for a CT scan then biopsy for final diagnosis. I’m taking pulmicort and salbutamol for my shortness of breath and chest discomfort. 😰
Thank you for this info. I am about 7 1/2 years out from transplant and that really brought together the info I had but with more logic to follow. I unfortunately had pulmonary hypertension and was listed around 2 1/2 years so I was really bad by the transplant but I made it through with very few issues.
If you ever have time it would be interesting to hear about after the transplant. I was really great after the transplant but have lost a lot of energy since the surgery but still get along well on my own.
Thank your for the video. I have an aggressive form of cardiac sarcoidosis which caused total heart block, causing my heart to stop 3 fimes in Oct 2021, now have an ICD and on Prednisolone, Methrotrexaite, Entresto, started yesterday on Bisoprolol and Spironolactone. I'm so grateful to be alive and to the doctors and your video has also reminded me how lucky I am that I only have it in the heart, it could be worse .
Thank you. They are throwing this out for my Mom & I've been crying for days (in the middle of 2nd yr law school finals) because I'm so scared. This taught me so much!
Thank you 💕 for this my sister-in-law died from this( she was a chain smoker of those More long brown cigarettes) and my brother tried to explain it to me and now I understand YOUR explanation better than his . So again thanks.🙏🏾💯
Those long brown cigarettes are called Black's cigars. You will hear people ask for them at the gas stations as just "blacks".
@@pixelhinatabecca989 no they're not, the cigarettes are called More , red pack regular ,green pack menthol . Maybe I left that part out. My bad.
You are the only Dr person since smart phones Ben out to talk bout sarcadoisis bless your heart IV had it since 1985 im now 75 black woman thanks for the talk and the info I substribed
Thank you so much for sharing all this information to your students and the rest of us.💕
I truly appreciated this presentation. It was simple, to the point and handled just about every scenario possible. It would be a good one for not only students, but present day doctors and is great for family and friends to watch to understand this disease. Thank you.
So glad you like it Judith! Thanks for the positive feedback
Thank you. My late husband had this and I could remember well all the various things you covered. His was pulmonary and also in his brain which caused a seizure. The prednisone helped so much but then caused its own set of problems.
sorry for your loss sandysue202. hoping you have solace and peace.
- God Bless and Keep
MAY HE IS RESTING WITH OUR FATHER WATCHING OVER YOU🙌🙏🏼
I gained weight with the Prednisone. I average 210 with my weight and taking the medication I gained 15 pounds. I cut the pill in half where it was scored and started taking half a pill and got down to 210 again. I never told my doctor that I cut the dosage and didn't have any side effects from cutting it. I tore up my lungs from coughing and now it's it gets too cold I wheeze until my body warms up.
My husband had neurosarcoidosis for 27 years, he finally passed away from a massive stroke in 2016..it is a sad and terrible disease. I am so sorry you had to go through this with your husband.
Thank you for posting this. This has been difficult to explain to other about this condition. I sent this video to others in the family to aid in the education process of this condition. Thank you ✨
Thank you. This is a rare debilitating disease. Once thought might have it. Simple chest x-ray showed not. Instead a virus uncontrolled spreading dysfunction to most organs or at the least cysts on them. I checked out info on sarcoidosis and found the highest number of support groups in and around Seattle, WA. Some evidence suggests it's triggered by exposure to the mold found on evergreen trees. Praying for all those with immune diseases. Thank goodness doctors are much more knowledgeable and learning more all the time.
I had not heard that but it would make a bit of sense in my case. We had a live christmas tree one year (frazier fir). I was in medical care before Christmas. Everytime i coughed, it tasted like pine sol. It was a horrible start to the new year. My weird symptoms of lung and body issues came and went for years til i was sent to the cancer ctr after a spotted ct scan.
Recently got it.. and guess where I live ...Seattle 😞😒🤦🏾♂️ just moved here from Chicago
Sarcoidosis patho, Dx and management was explained in a very clear way! Thank you!
I have this it's hard sometimes my cough attacks it changes alot vision alot of things thank you for sharing ❤
My Mom was diagnosed with Sarcoidosis. It affected her lungs so bad, at one point we thought we were gonna lose her. But through God's mercy, she's still alive and with us, but, she's suffering daily. She has lost so much weight, she doesn't wanna go out anymore. This is a horrible disease, on top of that she developed shingles😭😭😭
It definitely is my mom died from it it’s a horrible disease I hope the find a way to help your mom
Hey I'm sorry to hear that your mom is having a very hard time with the disease. Trust me I know just how your Mom fells. I have been dealing with Sarcodosis Since 2008. And, it's been SO AWFUL ‼️ The first time I was Hospitalized, it was the Most Scariest Time for me and my Family. The Second Time Not as Much but still Difficult. 3rd Time Difficult and Annoyed at some of the
Lazy Nurse and Bad Student Doctors. Every Hospital is Not a good Hospital. If you can TRY to Have Someone with you Around the Clock. I know it can't be done
Now with COVID 19. But once it's Back to Normal in the Hospitals... please remember this for your Mom and yourself etc
It's a Physical, Mental, Emotional Struggle with Limits on what you are Able to do. Tell your Mom to keep fighting and Never Stop ❤️💐
Ensure is good for her immune health
It's a good source of Proteins and Victims
I hope she feels better
🙏🏽, 🙏🏽 🙏🏽
Had she received a Shingles shot before
I just fought out that the Shingles can come in 2 parts which means 2 Shots.
@@lovetonegirl my mom had this so onto of diabetes. I'm sure this contributed to her death in 2006.She got diagnosed with it in about 1995.
PA student. I appreciate your style. Thanks for all the content!
Really glad you like it!
My Dad passed away from Sarcoidosis and I have it now I wish he was here lil was known about this when he was diagnosed. They gave him 3 yrs to live he fought for 13 when complications from it killed him. I fight every day as well
Praying for complete healing of this disease for you 🙏🏾
I am a nurse who is fascinated by human biology and disease. Great video, easy to understand and informative! Thank you I will be subscribing! .
I think this disease needs more publicity…. Very few doctors understand this disease and you end up seeing multiple doctors for same disease. It’s horrible having sarcoidosis, lungs, liver skin eyes it affects all now my liver is really bad because of the medication I was prescribed it is horrible
I have a family member who's had it for a number of years there are so many things that you guys go through I've a little more understanding God's Blessings...
Hi, my mother had it n I have learned all the ends n outs about it.. My mother went through so much. I can totally understand what you guys are going through love💕
I had this diease God healed me,Praise the Lord.
🙏🏾🙏🏾🙏🏾
Amen
HALLELUJAH GOD IS GOOD
My aunt Caroline was the only person in our family that I know of diagnosed with Sarcoidosis in her 30s in the 90s while I was a teenager and I never heard of this nor understood what it was especially living in a small town Clarksdale Mississippi so thank you for this video. 💯 Despite still carrying on with her vices of smoking and drinking, no matter how sick she got or how many scares she had in and out the hospital she still stayed the same, always bounced back and was gon play her spades, laugh, listen to her Blues and Betty Wright and get up sayin “Ayeee alright now!” when her song come on 😂🥰 She definitely seemed a lot older than she really was and I’m 40 now and so to imagine being her age finding this out I’m glad to know she tried to stay in good spirits about it although stubborn or not as compliant with taking care of herself as she should’ve been such as completely stopping her vices at the very least. I don’t know all what happened with her but I know at one time she had an oxygen tank and not sure if she still did but wasn’t using it as she should’ve, she had a large growth that looked like a hump on her shoulder and upper back removed, she lost a lot of weight and shuffled around or had help when walking as she got older, I do vaguely remember something going on with her lower legs like bruising or those spots you’re talking about, and her eyes turned blue she went blind in one eye and could barely see in the other one. And even with all that going on she still could keep her a man okkk! 😂 Even healthy women have an issue with that so I was like I see you Auntie and he took GOOD care of her cooking, cleaning, etc 💯 She lived longer than they expected and she lived with this for over 20 years before passing in Hospice at 56 around Thanksgiving on 11/26/16. So thanks again for helping me understand what her body was going through 💯
Rest in Paradise Auntie Caroline Faith Tribble-Hale and love you always! 🙏🏽🕊👼🏽💓
Love your post I'm too also from Clarksdale now living here in Memphis but for a girl like me from the brickyard I'm only 35 years old and just found out that I've had this disease since 2018 but just finding out because I ended up with P.E. (blood clots in lungs). Noone really understand the constant pain you feel in your chest you feel it moving I have my good and bad days. The coughing be so severe that some days I either throw up or shit on myself. It be days where I don't have no energy. But I gotta keep pushing for thses kids. It's like the hospital and doctors can only do so much with this disease. I'm not myself today as we speak but I'm here. This is just a lung disease that's painful and if not treated right it could cause damage
@@jessicajohn9798 I lived in the Roundyard with my Mom (who’s in Southaven now) and with my Grandma in the Upper Brickyard and I think when my Aunt was diagnosed she was living on Grant by that Piggly Wiggly before it changed to something else so heyyy 👋🏽😊💓💯 I’m so sorry to hear that for you but definitely keep pressing on doing what you CAN do, pace / be patient with yourself and take as best care of yourself as you can cause I believe my Aunt could’ve not had as many issues worsening or possibly lived longer with somewhat of a better quality of life had she not been as stubborn and taken better care of herself by at least stopping smoking cigarettes especially if you’re saying this condition causes that level of chest pain. I don’t see how she was able to keep smoking and endure all that. I pray for you and your family that you’ll have more good days, healing or help managing it better, and that you and your kids will prosper and surrounding by people who truly understand, love and support y’all! 🙏🏽🕊👼💯💓
@@jessicajohn9798 and keep your will to live especially for your children! I truly believe deep down my Aunt was always the “black sheep” although as I got older despite the family he say she say drama even before I was born, as I got older and always with a mind of my own I saw how she was more lively, cool and wish I spent more time with her (I went to school, moved around to different states, etc) and saw her every now and then but I believe she didn’t take as good care of herself so other people would be around to help her more. She may didn’t have a lot of money or outward accomplishments but she wanted to leave home at a young age and have children and a family which she did! People talked mess about her but I respect how she stayed true to being herself and how she had a close relationship with her kids, even stepped in taking care of grandkids when one was doing bad and raised her even being sick herself, and although my Grandma and Mom could barely keep a man my Auntie even sick had her some men through the years who took care of her and she was loved okkk! 😂💯 I don’t get along with my Mom although I tried for years and gave up the last year we haven’t spoken cause hitting 40 I’m not living thru the same bs and breaking negative generational patterns at least with me and my kids minus their negativity and pulling each other down bs I’m over it 💯 She always claimed my Aunt was jealous of her when in reality I believe they were jealous of my Aunt and the family she built! Maybe they were in different ways jealous of each other but money don’t equal good character and there are other measures of success other than material shii cause it’s plenty people with material things and good health who are still unhappy and jacked up relationships with their kids/family and no real friends or don’t know how to have fun with no personality or sense of humor I’ve seen both sides of the fence with my own eyes 💯 Its sad only time they truly came together and put mess aside are the times she would be in the hospital scared she wouldn’t make it even though by the grace of God she would bounce back until that last time. Plus the older I got and when I moved to Arkansas where she lived as she was real sick and to be around more plus starting over myself, I got to see her personality more and how when in her element playing spades and listening to her music not around bs she was funny, firey (she a Sagittarius) and could drop some real talk on you! 😂 I wish some things were different but just live for you and your kids despite what other people gotta say, take care of yourself and when you need the help I’m praying you have it! 🙏🏽💯💓
Oh and if you can survive/make it out of Clarksdale you can make it anywhere and get through a lottt 😂 So you got this Queen! 😊💪🏽👑💯💓
Your aunt sound like she was a pretty cool person& you do too
Wow, what a nice long tribute to your Auntie. I have learned a lot by reading everyone's responses to this video. I am 65. I got diagnosed 2 weeks ago. Don't know what is in my future with this nasty condition...I like the idea of a good, clean diet. But I also like my cocktails. Every night I have one Side Car. Cheers.
Thanks for explaining this. Someone close to me passed away within 2 weeks of lung cancer. I know he had been diagnosed with Sarcoidosis about 15 years prior to his death. I don’t think he had any follow up after the initial diagnosis and treatment.
Thank you for posting the information on sarcoidosis. I had my biopsy 2 days ago, and the doctors suspect either sarcoidosis or lymphoma. While it was easy to find information on lymphoma, It was difficult for me to find any information on Sarcoidosis, and this video was a tremendous help. Thank you.
Information for Sarcoidosis is definitely out there! 20+ years ago we didn't even internet. Google Sarcoidosis & only rely on reliable websites, Medical, Clinic, Hospital, Clinical Research. Good luck! Be Blessed! Be careful! Stay safe!
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@W how are you doing now?
So helpful for me to bring this info to the doctors!
brief yet covering everything.. awesome video
Brilliant lesson. Thank you.
THANK YOU! I was diagnosed in 1987 (the age of 37 in my LUNGS and SKIN by 2 different doctors, I HEALED COMPLETELY 1994 ( I am now 2021 age 71- look like 40) My HEALING PROCESS I wrote all the DETAILS in my first book and about many others ILLNESSES I HAD. "The book without a name, you read you name it" and shared on my cable show "SELF AWARENESS" I AM GRATEFUL for my EXPERIENCES, I LEARNED a LOT ABOUT WHO I TRULY AM and MY DIVINE GIVEN POWER WITHIN that we all have we are all connected! I AM HELPING PEOPLE HEAL THEMSELF. "ANYTHING CAN BE HEALED!" LOVE, PEACE, and MORE BLESSINGS! ROSE WHALEY-RUclips.
How did you heal it
I have sarcoidosis in my lungs spleen and wind pipe and enlarged lymp nodes around my heart, I've got it on my skin as well I've just been for a heart scan at the weekend to check to see if it's inside my heart. This is a very informative video for people to try and understand this disease
How would someone like you be affected by COVID-19
😒
How did you find out you have it in your windpipe. I’m curious because I had it in the lungs, I have swallowing problems, sometimes a feeling like I got the wind knocked out of me.
This video was very helpful! Thank you so much💕
I was diagnosed in 2008, mine is pulmonary.. Nasty disease, nice to see more info and im not alone..
Feel lucky to have discovered this channel❤️
I have sarcoidosis and the inflammation has wreaked havoc on my joints. I was fortunate that I never developed disease in my lungs, but I did develop disease in my liver, bones and kidneys.
Outstanding video, very informative!
Bernie Mack had pneumonia and sarcoidosis. He is missed.
He smoked a lot n would not quit
Bernie Mack was on prednisone for years. He passed over from having pneumonia. Pneumonia is treated with prednisone. Prednisone didn't combat the pneumonia coz his body was use to daily consumption of prednisone. I was dx with Lofgren Sarcoidosis the day after he passed. Scared the crap outta me. I'm very selective when I need to take prednisone. I wanna use it if things get bad like it did for Bernie. RIP
@@happyhannah680 he had a condition just stop it was more than just smoking in that case it wouldn't be as rare....
@@janderson947 I know my son has sarcoid also with cirrhosis from sarcoid
@@debmadden4157 Thanks for info.
hello, this is an informative video on sarcoidosis. my secretory was also suffering from this condition. she visited many hospitals but didnt get any relief. then one day she visited planet ayurveda and got sarco care pack. now she is fine
I have multiple organs involved and this video will really help my family understand what I’m facing !
Oh it’s very hard when you have a disease or illness that can make you feel so unwell, and it’s very hard for your family and friends to understand what you go through. I have a chronic regional pain syndrome which has made me so unwell, it’s been lonely and hard. This disorder sounds horrible. I’m so sorry you have this. I hope you have treatments and a good physician that is helping you ! Good luck
I was diagnosed with sarcoidosis way back in the 70's. I am just now seeing what my symptoms really are and why I am having them. I am now in my late 70's.
Very easy to understand video which explained a lot to me. I believe that I have had sarcoidosis since October 2017 and it was misdiagnosed as fibromyalgia. All the signs were there, red raised lumps in my shins and the breathlessness along with all the muscle and joint pain, CRP levels were high and still It took a mamogram one year later to even suggest sarcoidosis. My rheumatologist didn't know what to look for in the way of symptoms and when she was on holiday her replacement read my notes and sent me for a CT scan which showed lung, lymph node and spleen involvement. I was transferred to the chest clinic and in the transfer letter to my surgery it stated that there was no sign of the condition. which caused major problems when it came to shielding letters. The consultant I have now is a brilliant well informed doctor who has my complete trust in his decisions. Many patients have difficult journeys to get to this stage and I can only hope that with recognition of sarcoidosis symptoms, it will make it easier for future medics to recognise and treat this condition.
A lot of what you are saying has been my experience. I'm curious if you got a flu shot just before your symptoms in 2017? I, too, believe I have sarcoidosis(systemic), have been dx'd with fibromyalgia, but know that's not what I have. My Mom had systemic sarcoidosis. Unfortunately, she didn't get proper treatment and passed at 56 years young. I'm also curious to know what findings were found on mammogram? I have a nodule in breast that they've been following for 10 yrs now, plus lung and thyroid nodules and endless other symptoms that point to sarcoidosis, but can't find a doctor near me that understands sarcoidosis. Unfortunately, my ACE level is normal. I pray you and me both get proper diagnoses and treatment... hang in there!🙏🏻❤
Yes I had a flu Jag in 2017 just before all the symptoms appeared because I thought at first it was a reaction to the Jag, and then it didn't go away just got worse. Hope you are keeping well and be safe.
Very detailed. Thank you!
en doctor house lo nombran demasiado .. pero lo que puedo decir es que estoy aprendiendo más ... Es lo mejor
My biopsy is coming up and this guy not only informed me he scared the 💩 out of me
What was your results? And how are you doing now?
@@alankritghosh_007 I have idiopathic pulmonary hemosiderosis and my issues are still the same. I was prescribed micophenolic which is a immunosuppressive drug! Haven’t taken it because of Covid! Can’t be out here more vulnerable
@@nocapenzo3318 what is your age?
I was diagnosed in 1989. I had severe swelling in my legs overnight, sore nodules under my skin and problems breathing. It took 6 months for my diagnosis to which I was put on a steroid regimen for months. I finally started to feel better but had serious weight gain from the steroids. I still have flare ups from time to time. Thank you for sharing this info.
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U explained sarcadosis in very simple manner .kindly tell us about treatment also .
He did tell you about three different drugs they put you on prednisone first which that makes your life a living hell I don’t suggestion I was on it I have 42% bonus 25 compressed fracture’s and there’s two other medications I put you one Mine went into remission in eight years and now the damn things back and I just don’t think I could go through this again if I knew you guys would like to start a group I think it would really help us
Not a student, but this was very interesting. Hope you are still putting things out.
Very very well done video, thank you very much for such excellent presentation
Thank God for Modern Medicine..😊. What a big difference from ten years ago until now . Everyone please stay safe and well 👋😊🙏🏾🙏🏾🙏🏾
I was waiting for this video! Thanks a lot! 🔥
Thanks! Was supposed to be out yesterday but this one took a lot of work and I couldn't get it done in time!
@@ZeroToFinals I can imagine! You videos are always fantastic! Just keep putting quality above quantity!
@@howtomedicate Thanks. Will do!
Thank you, very informative, learn something new about my Sarcoid, great video
Thanks for the no nonsense explanation!
Really helpful and covered all aspects, as the title of channel "Zero to Final".
Really great video, was super easy to understand! Love your website too!
Thank you!
thank you so much for this good, understandable information. I am a patient...
Very helpful. My fiance has lived with continuing with his busy lifestyle this for 30 years would be interested in long term such as this.
Unfortunately some people go through it smoothly and others go through hell and of course I am the one for per 5% goes through hell
Super helpful, thanks! I have an exam tomorrow about systemic diseases and I just couldn't understand what the hell sarcoidosis was.
Thanks Jack. Sarcoidosis is a hard one to get your head around!
I have sarc in my lymph notes I found this so interesting thank you so much
You are a nice person and I thank you for your time
AWESOME VIDEO. VERY CLEAR CONCEPTS. EASY TO UNDERSTAND. THANK YOU VERY MUCH MAN.. VERY GOOD JOB DONE
Thanks Ziaul!
Thank you for the information . May God help us all our local hospital doctors will never have the knowledge to even know if we have sarcoidosis or any other diseases. 🤦♀️
Thank you so much for explaining things very clearly
I was diagnosed with sub Dermal Sarcoidosis 4 years ago. I've had no treatment apart form my own input, via lots of Dark or black foods, aubergines, blackberries, blackcurrants. grapes, strawberries, and lots of smoothies made with those fruits, to which I added powdered Aronia Berry. Now it's much better, still some small lesions on my back and neck, but most of the large ones are gone.
Hello do the black foods really help?
@@melvino8926 not with the more progressive types or stages, at least not in my experience. Although, I am glad to hear it helps in some situations.
I want to thank you for this video because I am one who do suffers with this disease I have been taking steroids and other medication since 2009 which is the year that I got diagnosed with sarcoidosis
@JDUB77 how are you doing now?
MOST HIGH BLESSINGS FOR HEALING TO AND FOR ALL OF US WHO SUFFER WITH THIS SARCOIDOSIS. ALSO BLESSING TO THE DOCTORS NURSES MEDICAL STAFF WHO TAKE CARE OF US AND MAY OUR LOVE ONES WHO PASSED ALREADY REST IN PEACE. I WAS DIAGNOSED WITH IT AT AGE 28 IN MY LUNGS. NOW I AM 62. I DO BELIEVE I HAVE OUTBREAKS OFF AND ON.
AND DO HAVE TO GO ON PREDNISONE FOR A SHORT TIME. PRAYERS OF HEALING FOR ALL OF US. AH’MEN 🙌🏽
I have it. I was 40 yrs old (2008) when I was diagnosed. I’m a white male and besides being over weight, I was in perfect health. Since then, I’m only using 36% lung capacity and I’ve been on 2liters of oxygen 24/7. I was on 4 liters but but I lost a lot of weight. God has been good to me!!!!!!
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It is absolutely helpful. Thanks ☺️
superb review, thank you!
This was really helpful! Thank you so much!
Nice demonstration..keep up the good job👍👍
Thanks Khaled!
Very informative, thank you.
Thank you for his information I’m being tested for this now
I was diagnosed with sarcoidosis age 70.
My main symptom was fatigue for which my doctor suggested hydroxycloroquine.
I took it for a couple of years, but I dont think it really helped.
Now I feel a lot better and only see my consultant once a year for an X ray and lung function test
This video is so great I have NEUROSARCOIDOSIS and it so 📌 point, thanks
Sarcoidosis is one of the few diseases that can cause bilateral facial palsy and it can also cause upper and lower motor neurone facial palsy.
Thanks for this amazing presentation.
Thanks for that information. I have Sarcoidosis plus three more other members of my family. My granddaughter does not have the disease. About three years she did had problems with facial palsy.
Very Useful.. Thank you so much
thanks.very nicely explained
I was diagnosed in 2006. At the time, I didn't know what sarcoidosis was. It's been quite a learning experience.
Hi, I never heard of Sarcordosis and like you
It was New to Me. Sarcordosis has Brought me To my Knees and it has Change my Life in a Major way. And I could NOT get Through this without my Heavenly Father, Amen ❤️💯
@@red19700 how are you doing now?
@@alankritghosh_007
Hi, I'm doing good
Thank You for asking. It's taking a while to get to place where my fear is less and my Will for Life is Determined and A fight to get as Close to where my Health use to be. Praise God for his blessings, Amen.