This family drops the disability 'to do' list and loves life
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- Опубликовано: 3 май 2016
- Meet Donna Cappelli, who is mom to Julian, 15, who has cerebral palsy, and his brother Dante, 17, and married to Gerardo.
Julian’s greatest challenge is uncontrolled movement, Donna says. “If he tries to do something, his body does the opposite. It’s like him doing a marathon every single day.”
For Julian, a soccer enthusiast, therapy doesn’t always translate into positive change.
Donna’s advice for other parents? “Try to live your life normally. Try not to get caught up in a lot of the things that you feel you need to do for your child...The best thing for us is when we go and do something for Julian and not worry a day about having to do homework. And not have to do therapy and not have to stretch him out…”
Julian’s advice? “It’s okay to be different. Try what you like and it will distract you from your loneliness.”
A Family Like Mine is a video series about diverse families raising children with disabilities, produced by BLOOM, a blog on parenting kids with disabilities from Holland Bloorview Kids Rehabilitation Hospital. Visit us at www.hollandbloorview.ca/bloom
Hearing Julian talk about his loneliness is shattering. He is wise beyond his years. I hope he isn't lonely any more!
I'm a victim of a similar phenomenon although I do have a beautiful family ...Yes I can talk and type very well ..but due to my cp its hard to make friends as my profession itself happens to be a psychologist which involves people who come with already existing crisis .
You speak wise words. I have a son with severe autism who had every therapy and it took its toll. Now, I spend my days with him trying to do what makes him happy. And, yes, the sleep deprivations is killer.
This broke my heart so much! My son is nonverbal and he has autism and a mild intellectual disability and I cry everyday because I wish he could just tell me how he feels I can only imagine how stressful and lonely it might be. Your so strong your family is so strong and beautiful thank you for sharing your story
As a quadriplegic, I too dropped the disabled 'to do' list and got on with life. If Julian ever wants a new friend, then just message me and I will be happy to be his friends he seems smart, funny and very intelligent. It is not about the therapy, it is about living life.
Julian, you are a shining light with a bright spirit and wonderful personality, and smile. Thank you for telling us about yourself. xo
He is a really positive kid he is making me smile
Thank you for this video, this literally melted my entire heart and soul. I always wondered how my son who is almost 16 felt living with CP, but he cant tell me. Thank you Julian, for giving my son a voice
What a beautiful and strong family. I have a son like Julian, too. My heart goes out to you in your joy and in your heartaches.
What a refreshing take on parenting
Julian you rock! My brother Ben is 31 and living with CP. He and I went to high school at the same time, and I know it wasn't easy for him. I hear your challenges. But know that when you finish, you'll have achieved something monumental. It was amazing, as family, to be there and see my Ben graduate.
this made me cry because It makes me look and go there are a lot of people that have disabilitys and people look and go you can't do this it's very depressing you and your family are in our prayers don't give up keep your head up high and your son is so special to me may God bless you and your family
I also have a disability called spinel bifida and use a wheelchair because of it so I know how it feels when someone has a disability and can't do much but I work with them and help them
Bless you and your whole family. Sending love ❤ thank you for sharing this with the world
🥰🥰🥰 love them
Beautiful Family
amazing video
I want to be Julian friend ~! He seems like a great guy to chill with :)
He looks great for hew he is amazing with every thing he does but he is really amazing no matter what he is amazing
Hi you are so nice and cute. I think that with your experience you can help many people. Do not worry you are lucky you stay in Holland you are accepted by society you are not rejected. Show your feel!!!!!
inspiring mom: Julian is > 'love' .
23
Daniel
Wow is all i can say ..
I also have CP but in a mild form 🥺
My daughter has cerabal palsey and I tried massage therapy it helped loosen her tight muscles up. Cold help others with cp to.i was amazed .
can julian be my friend?. remarkable person.
do you live in bronz new york?.
Hi everyone i gave birth to my daughter 2 months ago at 35 weeks of pregnancy but baby groth stoped at 29 weeks and also i had preeclampsia, my baby didnt move in the womb for one day...has been 2 month in nicu facing a lot of difficulties becouse of sepsis blood infection klebsiella breathing problems,anemic,brain bleeding at stage 2 feeding intolerance first and not being able to breastfeed or bring the breasr milk becouse of covid 19,no visits at all...if someone has been throught the same or similar thing please tell me if the baby had any problems later please...ps brain bleeding is on both front ventricular stage 2 and has sings of cyst but still waiting for the next scan
Hi I knew you wrote this a whole ago. Just stopping by and hoping by everything is fine with your lil one and family ❤️
#☝️💪🙏💖.
AUTISM AWARENESS MONTH APRIL
donna where do you live?. are you on facebook?.
Kathy Wood that's Toronto.