Revolutionizing Childhood Hearing Loss Treatment with Genetic Therapy
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- Опубликовано: 1 окт 2024
- Recently, there have been headlines in the news including, “Gene Therapy Restores Hearing” or “Gene Therapy Allows Child to Hear for First Time.” This is an important scientific breakthrough that has a lot of potential for the future of hearing healthcare.
But what does this mean for parents of children with hearing loss today? What do genetic therapies mean for the future of hearing loss?
In this video, Dr. Teresa Caraway PhD, CCC-SLP, LSLS Cert. AVT CEO, Hearing First and Dr. Jace Wolfe, PhD, CCC-A, Pediatric Audiologist offer parent-friendly explanations of the latest scientific advancements in gene therapy for children with hearing loss! They explain how the therapy works on a rare type of genetic hearing loss caused by an otoferlin gene mutation.
Inside, you’ll find answers to some of the most common questions, including:
1️⃣ What is gene therapy?
2️⃣ What do these developments mean for a baby with hearing loss?
3️⃣ What is the role of genetics in a baby’s hearing healthcare?
Whether you’re curious about genetic therapy, interested in how this impacts your child with hearing loss, or an industry professional seeking more information, this video highlights this scientific breakthrough and what it may mean for the future of pediatric hearing loss.
Subscribe to the Hearing First channel for more informative content on childhood hearing loss and innovation today.
//RESOURCES
AAV-Mediated Gene Therapy Restores Hearing in Patients with DFNB9 Deafness: bit.ly/3US95Ou
AAV1-hOTOF gene therapy for autosomal recessive deafness 9: a single-arm trial: bit.ly/42PF5ok
// FIND YOUR COMMUNITY
Family Support Community: bit.ly/3QZHyGN
Families Facebook Group: bit.ly/3kDTrWK
// FOLLOW HEARING FIRST
Facebook: bit.ly/3HrIgK2
Instagram: bit.ly/3wmHur5
Pinterest: bit.ly/3ksAvdw
#genetictherapy #otoferlinmutation #genetherapy #science #hearingaids #hearingloss #cochlearimplants #listeningandspokenlanguage #LSL #listeningstrategies #hearinglossjourney
Thank you
Hello Doctor, my baby is suffering hearing loss.cause doctor said its genes problem what should I do now
Here is our Find Your Way guide for parents that will walk you through next steps: bit.ly/3VXPTzt. We also recommend setting up an appointment with a pediatric audiologist. And you can connect with other parents whose children have hearing loss and ask questions in our Facebook group for families: bit.ly/3UHyhqp.
Hello Doctor ,my sisters baby girl has hearing loss in india .baby girl is 8 months old doctor suggested for cochlear implant I need your suggestions ma’am
Hello, thanks for your message. You can find out more about cochlear implants here: bit.ly/3VoqtLc. We also recommend that you and your sister join our Facebook Group for families of kids with hearing loss. Other parents share their advice and information about the cochlear implants their children received: bit.ly/3IGjVQf.
Iam very loss hearing .my age 38.please clarify suported me gene therapy ?
The research for gene therapy is still in its early stages, but we recommend seeing your primary care provider and getting a referral to an otologist/neurotologist. The Hearing Loss Association of America's website www.hearingloss.org is another great resource for adults with hearing loss.
I lost my hearing on my right ear when I was 3 or so now I’m 39 . Would love to get my right ear to rehear
We recommend going to your primary care provider and getting a referral to an otologist/neurotologist as a first step. The Hearing Loss Association of America is also a great resource: www.hearingloss.org
India mein kab tak a sakti hai Jain therapy please hamen bataiye meri request hai aapko please hamen bataiye
Thank you for your message. Because gene therapy is in the early stages of development, we recommend working with a pediatric audiologist, pediatrician, and early interventionist to figure out what will be the best plan for your child with hearing loss.
Kya yah therapy India mein Di ja rahi hai
India mein kahan per hai
Mera baby dhai saal ka hai 95 hearing loss hai kya aapke pass treatment ho sakti hai
Gene therapy is still in the early stages of research and testing, but we recommend connecting with a pediatric audiologist in your area to get advice on what the next steps should be for your child. We also have several families from India in the Families of Children with Hearing Loss Facebook Group: bit.ly/3UHyhqp. They'd be able to give you more specific information about what resources are available in India.
Kya yah gene therapy hearing loss ke liye India mein kab tak aaegi
It is not yet available to the general public anywhere in the world. But your pediatric audiologist will be able to recommend which hearing devices would help your child get access to all the sounds of speech. And once they have access to sound, the very best thing you can do for your child is to spend lots of time time talking, reading, and singing songs with them.
When it comes to India
We have a number of other families from India in the Families of Children with Hearing Loss Facebook Group: bit.ly/3UHyhqp. They'd be able to give you more specific information about what resources are available in India.