WHAT I DO NOW
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- Опубликовано: 6 сен 2024
- IN THIS VIDEO:
JUNE 9 - 15, 2024
Welcome to my channel...
We lost our beloved Daniel on January 12, 2024. Stay with me as I work through grief and finding purpose. It is early days. And very hard.
Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and I hope that you find encouragement, community, friendship here. A journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs.
Daniel was born with a rare condition called Polymicrogyria. It was caused by the virus, CMV (cytomegalovirus). Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure!
The Adapted Life Podcast, by Julie Hasselberger. listen !
theadaptedlife...
Write to us!
Julie Hasselberger
PO BOX 3611
Newtown, CT 06482
Music licensed by Epidemic sound and Premium Beat
filmed with Canon G7X Mark II
#caregiver #specialneedsmom #medicalcare #inspire #juliehasselberger
#cerebralpalsy#disabledchild
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I know Julie I want a hug
I’m thinking of you!
I love you ❤
Prayers for you Julie 🙏🏼🙏🏼 I wish I were there to give you big hugs hunny, give Daniels things away to other disabled children, maybe people who can’t afford to buy things for their child! Except for his personal things. Sarah’s baby is really getting big! Take care Julie,love you all 😊❤️🤗🥰
It’s really strange. I’m finding it challenging to find people who need some of his medical equipment. Maybe it’s because CT Medicaid has been really helpful with getting chairs, beds, lift equipment etc etc. But I have not really tried that hard. I start working on it, and when it is too much. I just put things back in his room and wait for another time.
Praying for you Julie.🦋🙏❣️. Have you ever thought about giving Sarah’s baby Your Grandson some of his uncles trinkets toys that he could play with and save other things for him to play with as he gets older like the sand etc he would enjoy it and have a way to connect with his Uncle Daniel though Daniel is in Heaven
I’ve thought it about. But for right now it makes Sarah really sad so I go gently with that. Daniel has many toys that are considered for babies. I am going to clean them all up really well and keep them stored.
@@jhasselbergerI understand
💜💜much love xo
Aww you have a grandson... So sweet🩵
Yes. Harrison. He is 7 months old
@@jhasselberger 🩵🩵🩵