Interview with Emma about Huntington's Disease

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  • Опубликовано: 3 авг 2024
  • Emma talks about the impact of HD on her family, how she copes and her feelings about being at risk. Part of the HDA & HDYO's 'Young People' interview series

Комментарии • 29

  • @juliapark5133
    @juliapark5133 Год назад +1

    This comment is 11 years on, I hope this amazing young lady is doing great and is healthy .

  • @lisah7078
    @lisah7078 4 года назад +10

    what a mature and lovely young woman. thank you Emma for sharing your story. I wish you and your brother the very best.

  • @nancyhaynes4459
    @nancyhaynes4459 Год назад

    Emma, try not to feel guilty. Being a caregiver is so exhausting especially dealing with such a horrible disease. You were so young to have such a responsibility. I would recommend you and your brother see a grief counselor if you haven’t already. Take care of yourself. You and your brother sound like very outstanding children. Good job for taking care of your mother.

  • @Katiepiepie666
    @Katiepiepie666 12 лет назад +1

    A very frank and raw interview Emma all these interviews show what a terrible effect HD has on families, as well as the strength and courage these inspiring teens have. Such a brilliant series of interviews.

  • @Sutters87
    @Sutters87 12 лет назад +2

    Thank you :)

  • @rsunday4784
    @rsunday4784 6 лет назад +6

    I'd want to know so I could make certain decisions before the illness took over and rendered me incapable. Not everyone who has it dies so quickly, is able to communicate, go out and shop even for unnecessary items towards the end like that. A person generally follows a similar course as other family members but not always. I'd definitely want to make plans to make the most of whatever remaining good years I likely had left. I'd also want time to help brace and prepare my loved ones for the eventuality. Plus if negative then I could relax, breathe a sigh of relief and not spend the next several years or more needlessly dreading, worrying, feeling sad about the possibility - whatever, all for absolutely no reason.

    • @janroach1852
      @janroach1852 Год назад

      She has plenty of time to plan as this disease has a slow onset. She will have symptoms occur progressively and then get tested. The process of dying from this disease takes years. Six years, as her mother had, was a quick progression but having it only six years is merciful. If it was me I woiuld not get tested unless the anxiety of not knowing became too stressful. I would get tested if I wanted to have children but there is even a way to have children without Huntingtons without being informed yourself if you have it.

  • @jemi4675
    @jemi4675 12 лет назад +1

    This is a wonderful video, thanks SO much for sharing it. You have a family with those of us affected by Huntington's Disease.

    • @beccyholden5750
      @beccyholden5750 5 лет назад

      Hi my mum has it and so do I really great video know what you have been through

  • @teresaneale6728
    @teresaneale6728 11 лет назад

    Thank you Emma you have been very brave.
    To the last comment (luchth) I hope you will ignore this.
    I feel very sorry for this person but it is Another reason why I do not want to be tested myself.

  • @mikecondos8692
    @mikecondos8692 11 лет назад +2

    wow...my mom was adopted too...and i have HD

  • @hanafri8
    @hanafri8 3 года назад +1

    It will be better to get tested although it must be frightening,but at least you will be able to move forward with your life. What a horrible,horrible disease.

  • @pam164
    @pam164 Год назад +3

    Wonder how she is doing now this was ten years ago. Hope she is free of it.

  • @cynthiaamitrano8915
    @cynthiaamitrano8915 3 года назад

    I don't quite understand the timeline. Was her mom totally debilitated? It sounds like she was on her own for some time and functioning well. You will still worry constantly whether you get tested or not. I debated having gene testing because my mom and both sisters had breast cancer as well as my mother's sister. I did it and am not sorry. I realize this is different than ALS, but it can be and usually is fatal.

  • @rcdowdy
    @rcdowdy 6 лет назад +1

    As a species we are only designed to live til child bearing age to provide off spring and nothing more. Anything beyond Menopause is really icing on the cake. Don't really serve a purpose afterwards. This is one of the ethical issues of Hunnington's.

    • @BrendanMurrayJubana
      @BrendanMurrayJubana 3 года назад +1

      Everyone who can’t have children should be immediately eliminated! 👍

    • @OffTheWagons
      @OffTheWagons 11 месяцев назад

      That's not true

  • @janemike3490
    @janemike3490 2 года назад

    I recommend Dr Oje Abacha on his RUclips channel for getting rid of my Huntington disease.

  • @omega36001
    @omega36001 3 года назад

    What would Jesus do?