Huntington's Disease - Matt's Interview - Founder HDYO

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  • Опубликовано: 12 авг 2013
  • Matt also comes from a background of Huntington's disease and he shared his story in an interview for Rare Disease Day 2011.

Комментарии • 38

  • @donnabryant3865
    @donnabryant3865 3 года назад +14

    I’ve avoided anything and everything JHD/HD it’s just too hard 😓since my daughter was taken from me at 30 yrs old. Leaving behind a young son who is likely to have inherited this disease. Thanks to people like Matt, he’s the voice for those who can no longer speak and shines a light for those who dwell in the the shadows. Love you Matt wherever you might be

  • @artisticwhistleblower1756
    @artisticwhistleblower1756 2 года назад +11

    What a beautiful human being he is. 💖

  • @jeanettedegiulio8220
    @jeanettedegiulio8220 4 года назад +21

    Sending my love from the lost river valley in Idaho. Hunningtons took my high school sweetheart and beyond. It also took his dad and 4 siblings. I hope for a cure so no one will suffer like this. To those with Hunningtons you truly are warriors ❤

  • @taracat7723
    @taracat7723 Год назад +5

    I shared an apartment with someone who had the HD gene. He was in his forties and still had a great job. His doctor put him on a very high protein diet with only grass fed, free range organic meats and veggies. He seemed to be very well in the year I lived there.

  • @visionvixxen
    @visionvixxen 2 года назад +6

    So important… families need to TALK about things. This is a real battle

  • @marilynbarker8255
    @marilynbarker8255 7 месяцев назад +2

    What a wonderful man… maybe soon a breakthrough in curbing symptoms and progression. 🙏🏻🙏🏻🙏🏻🙏🏻

  • @visionvixxen
    @visionvixxen 2 года назад +5

    Brave young man and family. I cannot imagine the complexity of learning/growth/grieving/reframing that any individual, much less family, deals with this. I hope a cure comes soon and bless all those who have gone before and who have been caretakers as well.

  • @esbliss
    @esbliss 3 года назад +8

    I think about him a lot. How is he and his beautiful family?

  • @susanchisena3189
    @susanchisena3189 4 года назад +6

    I hope they find a treatment. God bless.

  • @gingerlin8965
    @gingerlin8965 3 года назад +5

    you are amazing man

  • @margaridabras9281
    @margaridabras9281 9 месяцев назад

    ❤❤❤❤❤

  • @pantyflash
    @pantyflash 4 года назад +5

    Like, even though you're doomed, you're totally awesome. All the best. Way to go, babe!

    • @Livinglife595
      @Livinglife595 Год назад +1

      Not necessarily doomed. You never know what science can come up with

  • @mumr4268
    @mumr4268 3 года назад +2

    ☹🙏💗🌻

  • @hogsworthhammer9211
    @hogsworthhammer9211 6 лет назад +1

    Bummer, man.

  • @naomibeery478
    @naomibeery478 7 лет назад +4

    God bless..

  • @marilyntape508
    @marilyntape508 4 года назад

    Hi Matt 😊💜👍🇦🇺

  • @garsu1229
    @garsu1229 Год назад

    Oh how sad😢

  • @Tess3996
    @Tess3996 9 месяцев назад

    A brave young man ,at least nowadays if one partner has HD they would go for IVF and the embryo who don't have the gene is implanted....saving future generations .

  • @sairaabubakr3596
    @sairaabubakr3596 4 года назад

    I take a teaspoon of organic black seed oil daily and highly recommend it for mental clarity and other countless health benefits. God bless.

  • @visionvixxen
    @visionvixxen 2 года назад +1

    Hmm… why do they keep showing his hands

  • @romanadam206
    @romanadam206 5 лет назад

    are you living UK?

  • @kandiceblu1
    @kandiceblu1 6 месяцев назад

    I don’t know why he wants so many languages it’s I think 90% in English-speaking people and it’s almost 100% European descent not Africa not Finland China or Japan so he doesn’t have to worry about those languages

  • @binko969
    @binko969 Год назад

    Extremely Hard to listen to someone’s testimony when they constantly smack their lips & suck theirs teeth.

  • @naomibeery478
    @naomibeery478 7 лет назад +10

    Get close to the lord and get saved while you can.

    • @tomthumb7809
      @tomthumb7809 6 лет назад +21

      Naomi Beery Surely if he existed people would not get this in the first place.

    • @sunavila
      @sunavila 5 лет назад +4

      Tom Thumb I understand your point, however, there are things which we don’t understand and just because we don’t understand them doesn’t disqualify the idea of a creator. The unjust suffering of people is something that is extremely difficult to justify from a human’s perspective because we are not all-knowing and our range of vision is limited to the present and simple predictions of the future. You do not know the potential positives of these negative situations. You are not aware of the domino effect of positivity which could occur from these painful situations.

    • @jsundt9024
      @jsundt9024 4 года назад +10

      I know you mean well but when people say stuff like this all I hear is “believe as I believe soon or else I will deem you worthless!”

    • @esbliss
      @esbliss 3 года назад +7

      This is about science not GOD

    • @katydid1600
      @katydid1600 2 года назад +1

      Tom, we don't know why God gives us troubles or evil diseases like Huntington's. It's hard to understand, but if you have a relationship with God, you just trust Him.