Huntington's disease treatment | Professor Roger Barker
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- Опубликовано: 11 июн 2024
- May is Huntington’s Disease Awareness Month. To mark this Professor Roger Barker (Professor of Clinical Neuroscience, University of Cambridge), recorded a talk for us on the current and future landscape of Huntington’s treatment.
See more here: www.abcam.com/neuroscience/hu... 
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My wife was just diagnosed. She’s 25. Hearing your words, years in the future, gives me some comfort. Not that she can be magically cured, but that human ingenuity can perhaps suggest a better future for her.
Thank you - my brother suffers from Huntington's disease - which is now in an advanced stage - your feedback provides the supporting families with hope.
Huntington’s has torn its way through my family, I’ve lost many to it including my father.
Im 20 years old myself and it has had a hold over me almost every day of my life and sometimes the fear I may have it myself truly consumes me.
I have yet to get tested and I honestly don’t know how to approach the whole subject and I don’t know if I have the guts to do it yet, I know this may seem ignorant but I’m afraid I will loose myself if this happens to be my fate.
I need to be around for my family and I will do anything to assure this, I want to meet my children one day.
I really hope that this field of medicine makes some progress, the lack of conversation regarding the topic is nerve racking none the less.
To anyone else that may share my fear just know you are not alone, it is terrifying but it is a means to live your life with the greatest sense of purpose.
P.S. Any input good or bad or anyone else who may have there own story to share is more than welcome, we’re truly all in this together.
Godspeed my friend. My partner’s mother died from it 6 years ago.
Most heartening! Thanks for that!
The results of the ROCHE trial are in and the trial stopped early because of safety and efficacy concerns. No it didn't make the patients better. Those on the placebo did better. Those on the drug did worse. It discovered that we need the Huntington protein so the elimination of all Huntington protein has negative consequences in brain deterioration than if you didn't have the drug. The trial has been replaced by two new trials. Both are more tailored using two different methods for the elimination of only the unhealthy huntingtin protein, keeping the healthy Huntington protein. Early human phase one trials are only just being approved by relevant bodies in various countries globally. In vitro and in vivo of mice proved promising. Apathy might be the earliest symptom by the way.
🙏Thanks for that !
My grandfather died was huntingtons desease,, grandfather sister died in hd.now my father and his sister in hd .this desease runway in my whole family.plz we need help.there are no mediciene in pakistan.plz we need help.from pakistan
Sir,
You must contact the neuroscientists that work at Oxford university, they don't answer in videos. I think the best way is to go to Oxford Universities homepage and email or call them. Explain your desperate situation for them. The medicine is NOT released yet, but I think you should try.
Best luck, I'm praying for you all. 🥺❤
decimated our family no real help in the uk either,terrible thing to watch happen to the young and middle aged.
Why hasn't therapy to turn off the HD gene on 4 been more investigated?! Very good research & sounds promising for HD positive families.
Because we need healthy huntingtin. Healthy Huntington protein is required for 4 aspects of brain function and for adolescence and possibly other needs in the body that we don't know of. However two new trials (as of April 2021) are starting phase 1 in humans that are tailored ie they eliminate the unhealthy Huntington protein but keep the healthy Huntington protein.
@@newforestpony9567 could you tell me where is this trial and how to contact them
Exciting times
Where can I sign up for this trial? I was diagnosed with Huntingtons disease my count 51. This disease has been running in my family for 3 generations in my family. 4/5 of my sister's and brothers have it.
Sorry to hear about your family. My mother has the disease. I have not been diagnosed yet, but symptoms starting to show. I hope a cure comes soon
What are the symptoms?
In rare cases, FYI, for novel ears, Huntington's cant be brought on de novo, through spontaneous mutation; which would be the origins of all heritable diseases, actually. The speaker wasn't wrong in his statement, in that it is considered heritable, because that simply means that is how it is gotten in most cases. I just wrote this for ears that might not understand that it can sometimes be brought on spontaneously (without having inherited the mutation).
True.
How so? Is it brought on by diet?
@@Cymatic-Mage No, genetic mutation randomly for the first time. Diet is not relevant.
kindly help me with this I'm in lot of stress due to this disorder
I never know herbal medicine treatment are very effective and important not when i realize that my husband was cure permanently from Huntington's disease and this traditional herbal Dr Ehimare on RUclips also cure HPV and fibroid. You can also contact Dr Ehimare on RUclips channel OR whatsap contact +2349027349748
Look for a Huntington's Disease support group near you. Link up with the counsolor in a major university who's job it is to council people who have been tested. Best of luck to you!
@@thelmacandid8530 I wonder what did your husband do to cure it my nephews have it we need a cure
@@bekahbless3284 Contact doctor Ehimare on his RUclips channel for more information
#Drisibor Alternative Herbs
All thanks to dr Stanley who cured me from my Huntington’s disease I am forever grateful
Is it truly possible to cure it?
@@felixgerard4904 No it is not! Gunter posts this on many websites, I don't know the motivation behind this, but it is not true, and a complete heartless scam.
There is no permanent cure ‼️
I'm so happy for ya and ,What was the treatment he gave you body
#drojeabacha
Yes You can you don’t tell the public the answer
Hahaha
Bruh are u kidding me