Thank you 💓this is so exciting 💘 i'm glad i didn't listen to "he's talking about mouth dystonia, not neck dystonia " and stuck with you lol ! This is so right-on
I found you almost a year ago, wish I would have found you sooner. My story is this one; I had been working in a very toxic workplace along with stressors in my home which led me to develop psoriasis. I started a biologic which from what I learned can make your bones weaker. The tension started where I couldn’t turn to the right, (summer of 2020) every time I injected myself I felt more anxious and tension which was getting worse. I went to a neurologist in August of last year who prescribed me a medication that acts like a benzodiazepine two weeks after I suffered an adverse reaction. Now I have neurotoxicity along with MCAS. Symptoms consist of brain fog, tension, insomnia, muscle spasms throughout my body, short term memory loss, food sensitivity. I was getting better by eating clean and detoxifying my body. I ended up injecting myself with the biologic and I am back to square one sensitive to everything.. I had Akathasia in the first month of my reaction. There is a root cause to everything and there can be a solution without using bandaids (medicine) that causes more harm than good
As you say it is a composite problem. Its very fitting then that the solution is also composite. For me it started with getting sober, then losing weight, living on a ketogenic diet, meditation, regular daily exercise, what position I sleep in. I also take medication(Baclofen) Its a holistic thing.
Good evening. Im in South Africa and have eyelid dystonia in a light way. I have just bought myself Lionsmane and started on it only yesterday. 8:05. I figured mine is from the result of a tear in my frontal lobe. Thats what i figure can be the cause
I woke up one morning in April 2024 with a stiff neck. As weeks went on, I noticed my head was pulling towards my right shoulder.i tried so hard to hold my head straight but just couldn't. I was really scared. I started Googling why I couldn't hold my head up straight. Cervical dystonia popped up. I knew this was what I had. I messaged my neurologist in April, but she was on maternity leave till July. I've been on so many different medications, with bad side effects. I finally had an appointment with my migraine neurologist, but she does not work with Dystonia. She referred me to a dystonia neurologist. I'm waiting for my authorization with insurance for botox. This is a horrible disease not many people know about. I'm so glad you're doing well. I watched your videos a few months ago and was wondering what happened to you. I'm glad you're doing well still. I pray for a cure. Some days, I just lay in bed all day. I pray I get relief like you have found. God bless ❤
He leído las facs, tengo 55 años y 12 con distonia, aunque en tratamiento siempre, la mandíbula tampoco es simétrica, y mi mordida es abierta, tengo todos los factores que dificultan el tratamiento, con estas condiciones…los pacientes pueden esperar mejorar?
Hi I was just diagnosed with CD & FMD in June this year after a year long battle dealing with this condition . It’s progressed rather quick for me I’m currently stuck to my left side with pulling, contracting and head pain and spasms/ contractions/ tremors . Is there hope for me ? I have yet to receive any treatment like Botox I’m only on meds and doing physical therapy which has done nothing
One more important causal co-factor: repetitive action such as playing an instrument etc.!
You’re saving lives brother. Keep going and sharing. I love you
❤️❤️❤️
Wow thank you for this info as I had trauma as a child in growing up and had those exact anxiety and tension feelings.
You can get better! ❤
@@hopefordystonia thank you for encouragement, I do believe so. Love from SA ❤️
thanks for that beautiful video
Thank you for watching!
Thank you so much for your beautiful, holistic and lifechanging work❤
❤️❤️❤️ it’s an honour to share it with you, Anne!
Thank you for the amazing video!
Hola! Sería maravilloso ver algún vídeo de pacientes, suelen ser testimonios que dan mucha esperanza y ánimo. Gracias!
Visite www.hopefordystonia.com/testimonials
Thank you 💓this is so exciting 💘 i'm glad i didn't listen to "he's talking about mouth dystonia, not neck dystonia " and stuck with you lol ! This is so right-on
Glad it was helpful! ❤️
I found you almost a year ago, wish I would have found you sooner. My story is this one; I had been working in a very toxic workplace along with stressors in my home which led me to develop psoriasis. I started a biologic which from what I learned can make your bones weaker. The tension started where I couldn’t turn to the right, (summer of 2020) every time I injected myself I felt more anxious and tension which was getting worse. I went to a neurologist in August of last year who prescribed me a medication that acts like a benzodiazepine two weeks after I suffered an adverse reaction. Now I have neurotoxicity along with MCAS. Symptoms consist of brain fog, tension, insomnia, muscle spasms throughout my body, short term memory loss, food sensitivity. I was getting better by eating clean and detoxifying my body. I ended up injecting myself with the biologic and I am back to square one sensitive to everything.. I had Akathasia in the first month of my reaction. There is a root cause to everything and there can be a solution without using bandaids (medicine) that causes more harm than good
Thank you for sharing! You can get better. Be sure to watch the roadmap video if you haven’t already ❤️🙏
As you say it is a composite problem. Its very fitting then that the solution is also composite. For me it started with getting sober, then losing weight, living on a ketogenic diet, meditation, regular daily exercise, what position I sleep in. I also take medication(Baclofen) Its a holistic thing.
Thanks for sharing your experience 🙏
Please make more videos
Yessir ☺
Good evening. Im in South Africa and have eyelid dystonia in a light way. I have just bought myself Lionsmane and started on it only yesterday. 8:05. I figured mine is from the result of a tear in my frontal lobe. Thats what i figure can be the cause
Have you watched the video on the Eight Steps?
@@hopefordystoniaNo and I will do so now. I also subscribed to your info email
I woke up one morning in April 2024 with a stiff neck. As weeks went on, I noticed my head was pulling towards my right shoulder.i tried so hard to hold my head straight but just couldn't. I was really scared. I started Googling why I couldn't hold my head up straight. Cervical dystonia popped up. I knew this was what I had. I messaged my neurologist in April, but she was on maternity leave till July. I've been on so many different medications, with bad side effects. I finally had an appointment with my migraine neurologist, but she does not work with Dystonia. She referred me to a dystonia neurologist. I'm waiting for my authorization with insurance for botox. This is a horrible disease not many people know about. I'm so glad you're doing well. I watched your videos a few months ago and was wondering what happened to you. I'm glad you're doing well still. I pray for a cure. Some days, I just lay in bed all day. I pray I get relief like you have found. God bless ❤
Thank you for sharing - you can unlearn this and get better!
He leído las facs, tengo 55 años y 12 con distonia, aunque en tratamiento siempre, la mandíbula tampoco es simétrica, y mi mordida es abierta, tengo todos los factores que dificultan el tratamiento, con estas condiciones…los pacientes pueden esperar mejorar?
Si se puede mejorar!
Hi I was just diagnosed with CD & FMD in June this year after a year long battle dealing with this condition . It’s progressed rather quick for me I’m currently stuck to my left side with pulling, contracting and head pain and spasms/ contractions/ tremors . Is there hope for me ? I have yet to receive any treatment like Botox I’m only on meds and doing physical therapy which has done nothing
You can get better! Check out the video at www.hopefordystonia.com/welcome and feel free to reach out on the website once you’ve watched ☺️
Do u have any cases beside u what heal ? And u have a visual proves videos of what u had ? I have a friend who really need help I want to help
Visit www.hopefordystonia.com/testimonials to see client stories and the knowledge base section to learn about mine