sitting here feeling angry and sad today 6 months after my failed stem cell transplant. most days I'm ok. today wasn't one of those days..... I kind of sunk...... I appreciate you sharing your story so much. to say "six months after my failed transplant" I guess is a pretty good thing... still here. still fighting. accepting and fighting. today I have not been a trooper..... thank you Andrea. God bless you and I pray you have may years of love and cycling miles ahead of you.
Hang in there! I know how hard, demoralizing and discouraging recovery can be. I trust you have spoken to your doctor/s for advice. I used to say today was a good day, yesterday a 'not so good' one. Then the good ones beat out the not so good ones.
But did you have jak2 with this disease. I have had since 2008. Don't like pain no bone biopsy for me. No chemo. I took it did absolutely nothing to my platelets. For me it's stress and infection
What an amazing person. May you still live for a very long time and have many special experiences with your loved ones. 😊❤😊
Thank you so much.
thank you for the kind comment!
sitting here feeling angry and sad today 6 months after my failed stem cell transplant. most days I'm ok. today wasn't one of those days..... I kind of sunk...... I appreciate you sharing your story so much. to say "six months after my failed transplant" I guess is a pretty good thing... still here. still fighting. accepting and fighting. today I have not been a trooper..... thank you Andrea. God bless you and I pray you have may years of love and cycling miles ahead of you.
Hang in there! I know how hard, demoralizing and discouraging recovery can be. I trust you have spoken to your doctor/s for advice. I used to say today was a good day, yesterday a 'not so good' one. Then the good ones beat out the not so good ones.
keep up the good fight, friend!
I wish you and your partner and other loved ones many fulfilling and healthy years ahead of you.
TY
thank you for such a sweet message!
@@andreaspica485 ❤️
@@ThePatientStory Thank you. ❤️
Stem cell transplant is a wonderful procedure that can save lives. Congratulations!!!
it sure is!
Thank you for sharing your story. So much valuable information.
we are so grateful for brave souls like her willing to share their story!
So inspiring! Rock on, Andrea!
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You are a wonderful person❤ I wish you the very best ❤
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Beautiful story. God bless you and your partner. ❤🙏
thank you for listening!
What a generous patient!
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Lovely patient. Wishing you all the best.
a rockstar for sure!
You are an amazing lady. Thanks for being so upbeat. What an inspiration you are❤❤
thank you for your kind words
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God bless you ❤❤❤🙏🏼🙏🏼🙏🏼🙏🏼
thank you for the kind comment!
Wonderful…..so inspiring…..what a great, brave and gorgeous couple of goddesses you truly are!!!💜✝☮✝💜✝☮✝💜✝☮✝💜
thank you for listening to her story!
thank you
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Well, the important thing is that you got your watch back.
I have CML and ET. Going on 2 yrs.
So I was just diagnosed with essential Thrombocythemia JAK 2 mutation. Just put on Hydroxyurea. DOES THIS MEAN I HAVE CANCER??? 2 weeks ago.
But did you have jak2 with this disease. I have had since 2008. Don't like pain no bone biopsy for me. No chemo. I took it did absolutely nothing to my platelets. For me it's stress and infection
I did have the JAK2 mutation.
Are you taking Hydroxyurea?
@@peggybuetow1026 After transplant i don't need any MPN drugs
OASH ORI PERFORMANCE REVIEW 3
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brighter days ahead!
No anemia high iron
High iron from transfusions?
If you ever do a dna test, you will be your sister!
yes! my blood type changed to hers and 23&Me would not share my results with me since they could not separate her DNA from mine. ha!
@andreaspica485 crazy isn't it?!?
You appear to be a late 60’s person.
??