Loss of Appetite in End of Life Patients (How to Educate Patients and Families)- Hospice Nursing
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- Опубликовано: 24 фев 2021
- This video is about how to educate patients and families of hospice on loss of appetite.
If you have any questions, please reach out to me!
Here are some resources that you can refer your patients and families to if they have concerns or questions about loss of appetite:
www.nhsinform.scot/care-suppo...
www.crossroadshospice.com/hos...
Thanks so much for the video. My grandmother is 92 and has stage 5 kidney failure. She is going through the dying process. She is in a semi-coma, eyes glazed and half open. I am caring for her at home and I was worried that because she is not responsive anymore that she will starve to death. This video has put me more at ease.
The not eating thing was stressful for me while caring for my brother in home hospice-moreover, my coaxing him to “eat just a little something” was stressful for him as well. One night a thought entered my heart….I made a deal with my brother that night: I would NEVER coax him to eat or offer food again IF he PROMISED that he would tell me he wanted ANY KIND of food…regardless of the time, or effort, or cost it would take me to fulfill his desire. We made that pact that night, and from then on, with the exception of a request for a fudgesicle, we never discussed food again. The stress between us was dialed way down, and two weeks after he had a couple licks of his fudgesicle, he passed peacefully into heaven.
I’m currently helping a friend whose husband is going through hospice, and I’m blessed that I was able to relate how the pact between my brother & I got rid of the stress and guilt around food.
You should never force a person to eat when there dying. This will speed up the dying process because it causes additional stress on there body. It's uncomfortable for them. Dont make any pacts dont do any of that non sense. Respect there wishes. Honestly you are just being selfish. They are the ones dying you should try to make them as comfortable as you can and shoving food down there face isnt going to do it. Understand that this is just a natural process of dying and most just dont have control over there appetite anymore. You should of said its okay bro I dont want to stress you I understand. Feeding them isnt going to make them live any longer its just putting them in more agony. Let them choose if they want to eat or not. I swear people are selfish in this world right up until the day you die. Sad Sad world we love in.
this is coming from a dying person. I have no desire to eat. Its painful to eat when your dying. Your digestive system is so jacked up that any food just causes discomfort and pain. Im also developing phlegm in the back of my throat and its harder to swallow. I know my time is very very soon and the death rattle is approaching.
@@fatwalletoobe792 obviously they weren't doing it cuz they have some kind of fetish or something they thought that it would help them. I'm taking care of my grandma right now and I have been trying to get her to eat and she hasn't eaten in 4 days and the nurses just told me today that she's actively dying so I had no idea about it. She came home from the hospital a couple months ago and there was a good chance that she would survive the infection that she got so I didn't really have a reason to think that she would be dying up until maybe about a week ago when she started getting really weak but I figured it was because she hasn't been eating. Our culture revolves around food, when you're sick you eat soup when you're happy you eat and when you're sad you eat, it's not illogical. This person took care of a dying family remember, that's the least selfish thing that you could do.
I am caring for my 99 year old mother for the last 18 years along with my husband as a caregiver..She is being discharged from Hospice this Saturday.I am one of those people that gets upset with her if she doesn’t eat but now that I watched your video I have a better understanding of what I should do.TY
Many thanks for this video.
My mother died a few months ago - this video would have come in useful to certain members of the family who thought the nurses were not doing their job properly e.g. feeding her water a few days into her "passing over". Thankfully, mum waited for me to be by her bedside, having not seen her in years !! Now in the Spirit World, we continue to communicate using telepathically.
Thank you so much. I am caring for my dying husband at home. He has twrminal with stage 4 cancer. Your videos are so so very helpful. I am just trusting my instinct but your videos are so reassuring and comforting. You are mt Angel. May God bless you xxx
You are the angel for being there for your husband and being his caregiver.
How’s your husband? My father just passed two weeks same stage 4 cancer. He had been diagnosed since 2013 and was completely well since until 2019 when his stage 4 also spread to his traquea and started having more issues until this February 2021 he became more home bound and started declining little by little until his hospice care at home in October and passed November 2.
God bless you.
My 95 year old mother is in her final stage of dying. Absolutely no food at this point. She’s cared for at home and she was just assigned an hospice. My question is how long will she go with out food before she passes. It’s stressful seeing her dwindling right before our very eye but comforting hearing she is ok. Thanks for the Video.
My Mother's loss of appetite was so frustrating, terrifying, and sad all at the same time. I wish I had known better. My own loss of appetite worries me. Now, when I get a craving, I believe it's my Parents letting me know they're praying for me.
When a person is dying, why does it matter if they quit eating. Eating is necessary to sustain life, but will not sustain a dying persons life. These people who care for patients on hospice are angels from God.
Taking care of my grandson 17 going through this now.
Oh please give your grandson a hug from Glasgow Scotland. Xx❣❣❣❣❣❣
He passed away Nov 30 2021 forever 17
@@loisroberts2216 I hope hes got to meet my 2younger sisters who passed away within the last 2yrs and that they're all happy. God bless. X
@@loisroberts2216 Really sorry for your loss it's always sad when someone passes on but especially when they are so young. Rest in Peace to your grandson and I hope you and the family are getting through this tough time. 😘
How I wish I knew about these videos at the time I was caring for my daughter before she passed. The retrospect at least helps with my grief. Thank you for making them🙏🏻
I am sorry for the loss of your daughter. I am watching to prepare for the loss on dad. I’m glad you are finding them of some reassurance and comfort now. I hope you have beautiful souls surrounding you and helping you try to process the grief. I know it never leaves but may the hugs from strangers give you comfort knowing we understand the pain losing a child. Xx
Thank you for this, so helpful. I'm caring for my mother right now at home in the last few days of her life and it's a weird feeling not to be giving her food and drink, but I know her body is beyond processing it. She can no longer express if she wants to eat or drink, she has dementia, but I offer little amounts up and she either takes them or has lips tight shut. It's a hard process for family, but she seems peaceful and comfortable. I hope that's the way it stays until the end.
"May the Lord bless you and keep you. May the Lord make His face to shine upon you and be gracious unto you. And may God give you His peace in your going out and in your coming in, in your lying down and in your rising up, in your labor and in your leisure, in your laughter and in your tears…"
In my mother's final days, this gradually happened to her. The only thing she wanted in the last few days was tea, she always loved tea. #RIP
Thank you so much for posting this video. My 92 year old Mom had end stage Parkinson's and end stage heart failure. She had loss of appetite and I was freaking out. The night before she died I gave her two tablespoons of soft Vanilla Edy's Ice Cream. That was all she could get down the whole day. She wouldn't eat or drink much for 5 days. She told me that eating regular food was like eating an extreme sour apple and she didn't want to eat any more. But vanilla ice cream was her favorite and I'm so happy she got that small amount down and she willingly ate it. I felt so bad because I wasn't coaxing her anymore but your video helped me to feel better about her last days here. Again thanks so much!
I just lost my mom last Monday. I wish our hospice nurse was like you in explaining. I was so frustrated in my mom not eating.
Must be a hard job. My mother is palliative care. My mum lost her appetite and she kept vomiting
Thank you for sharing. I think Hospice is a wonderful idea & organization in most places. You sound very loving & devoted. You and all like you are very appreciated.
My father is in hospice while in a nursing home. His appetite has left rather early, and it distressed all of us for a week or so, because he was a fussy eater beforehand, and even the professional were unsure he had reached the point of diminished appetite. Once we realized his situation has changed, so did our behavior. The nursing staff continue to offer, but not push food upon him. He does still have thirst; they continue to provide enriched beverages as well as water and let him choose among them. He is on a pureed diet, but his chart specifically allows him a 1/2 peanut butter sandwich, because he likes it even now on occasion (it's a child's "sammich"; no crust, fairly thin peanut butter and bread, to reduce risk of choking). He occasionally complains to me, saying "they" push him to eat when he doesn't want to. I gently remind him that they are offering him food in case he wants it; he may say no; they must offer, but he is in control. Update: we have reached the point where my father is accepting almost no food, and I commend the staff's handling of his final days.
Thank you we are going through this right now with our mother .This help very much
My mom’s husband woke up one time (home hospice) and wanted food. He didn’t specify what. The easiest thing was reheating breakfast leftovers. He ate it all with a glass of chocolate soy milk. Then he went back to bed and never got up.
I want to Thank you for the education on hospice very educational and detail..... I just went through this with my mom in earlier in Sept she past away ... it was very heart breaking and not really knowing what was going on it made it worse for me, cause I panic more with the nurse felt i was not doing enough or she was not doing enough.. But with you confirming the process what is going on made me feel much better. For at the time I thought it was something really wrong and I thank you for relieving me of the pain and guilt that I carry with me.... However, I would like to ask you about her seeing angels and other family member that had past away is that normal also?
@lovely boa I don’t know what’s normal or not, but I spent the last two months of her life staying with my Mother at her request in 2001. She had certain requests of me which I honored & one was no hospital, she wanted her girls to care for her once she learned she had stage 4 cancer. I think it’s different for everyone & we did need the help of Hospice, wonderful, bc I wanted Mom to have proper care at home, and it wasn’t my field of study. I took FMLA at my job & relocated to be with Mom & Dad.
I heard Mom ask Dad to put extra quilts in the guest room one night bc she didn’t want her Mom & Dad to get cold in there. Dad asked her what she was talking about. Mom said, “Mom & Dad came to see me and I don’t want them to sleep in a cold room”! Dad told her he’d make sure there were plenty of covers on all of the beds, so not to worry, everyone would be warm in the house, then he kissed her on the forehead. Her parents had been gone several years.
Yes, my Mom saw angels more than once. She was a very precious godly woman, so it didn’t surprise me. I was holding her hand her last minute here while she slept, her Hospice nurse keeping check on her vitals as they dropped, then the nurse told me she was gone. Her hand didn’t let go or tighten on mine, but she went home. I have been with others so can tell you it’s definitely not the same with everyone. But yes, my mother told me she was watching the angels playing on her front porch with a smile & I believed her. I still miss her, but knew she needed to go home. She stayed here long enough here.
I hope this helps, knowing my Mom had angels waiting too. GBU. ~
Thank you💜❤
thank you
Nobody ever told me any of this. Nobody bothered to tell me that my grandmother was dying until the week before she passed. They just assumed I knew. Meanwhile I'm trying to gently convince her to eat at least a meal or two a day, whatever she wants, and panicking calling gastro after gastro begging for an emergency visit because of her GI issues and stomach pain.
I deeply sympathise with you no one told me my father was going to pass ... On the day he dyed I tried to give him apple compote ! I managed to persuade him to try it, he stuck his tongue out like it was poison to him. I express my concern to the nurses that day how worried I was ! and all they said to me was "Oh he will be fine ," earlier that week they said he would be going home !!! that evening Dad passed away just after I left hospital . There was a lot more that went on that day I feel so heart broken 💔
@@moniquedonna1979 it's so sick. And you know that they knew. When I started freaking out about how no one had told me, everyone acted like I should have known. Like they just assumed I knew and didn't care or something. I left my job and took care of her for three or four months thinking she was having a bout of health problems like she routinely gets for a few months every couple of years, but no one ever said anything. When the doctor recommended hospice only about a month before, she specifically said that it didn't mean she was dying soon, but it would just be best for her comfort and mine if we had some help.
Is it funny to some people? Is it supposed to be comforting to deny people the ability to cope along with their loved ones? We're never going to get that time back. I don't believe anything was left unsaid, but I still would have liked to say it all one last time.
This is why I can't wait for the inevitable robot takeover of jobs, because at least a computer would have told the facts.
@@nadapenny8592 same thing happened to me, the nurses just kept saying that my grandma is fine and that everything's normal and then today they told me that she's dying all of a sudden. They told me that she needed to be taking her pills everyday and I would tell them that she throws them up because she hasn't eaten in 4 days and now they're saying she doesn't need to take any pills except her Care pack that has pain medicine in it. She's on hospice by the way but the same thing, they told us that it didn't mean she was dying just that it was extra care for her because she went to the hospital for a wound infection.Why wouldn't they just tell me the truth? I don't get it.
O and I have learned he is in the final transition stage. I understand a lot of things so much better now. I used to call it the Cancer rollercoaster. I feel so much better to know this up and downs are 'normal and to be expected.
This happened to my late partner jus before hospice it worried me a bit but I can see you see is part of th process yr so young to be doing this job but yr truly a angel 😇
I wish that I had known this information earlier in the year when my wife was in her last weeks of life.
Fighting eating is a form of denial that I've seen multiple times. The family will insist their loved one needs to eat while the patient is fighting it tooth and nail.
Thank you! 😍
So grateful for this info. Thank you 🧡
Thanks for this. My husband just started home hospice and I have little idea what to expect.
This went on with my mommy I just lost her I witnessed it all in her it broke my heart
my mom never showed many symptoms. she had heart failure. she kept her appetite on up until the day she died. finding her laying on the sofa cold as ice and stiff was traumatizing though. Unfortunately with sudden deaths like that you never get to say a proper goodbye.
Love your videos! Can’t wait to see your future uploads. ❤️
Thank you for your kind words!
Thank you ☺️
Very helpful information .. thank you
Thank you. I am glad you found it helpful!
I still feel so bad about 7 years ago when my husband went through the dying process and he was in the hospital he had CHF and the hospital told us he could only eat shorten things and the things that were given him by the hospital he didn’t like what he had to choose and the food that he liked he couldn’t have and he was miserable when knowing he was given 6 months or less to live. I felt that he wasn’t giving a fair opportunity to be happy in his last days on earth and if I knew what the what I know now as I look back at my dear husband had to goes through and as his caregiver I would’ve do whatever I can to give him what he wanted to eat. They were simple foods that he wanted and after seeing him so sad and unhappy . I felt so bad for my husband. I won’t ever forget I was at the hospital everyday. He died a sad man. I should’ve told the doctors let him be happy and let him order what he wanted. He died a few days later and I’m still sad and loss from that ordeal when he was diagnosed.
I did not realize that we were actually in the dying phase. My mom is 97 and had gotten a uti, which initially made her stop eating. The infection cleared up great but she hated taking the medicine. Two weeks in, she had lost about 25 pounds. And the dr says now it’s time for hospice.
Thank you awesome video wish I had known this before
I am experiencing this now...
Asking a family member not to worry about a starving parent,feels as bad as watching your kids starve.
My dad got stuck in a bed since 2021 it was medical neglect and depression that created his lose of appetite, he wants to give up but I won't let him no previous underlying health issues.
Hospices seem like assisted suicide to me.
I totally agree with you. The entire medical industry. I'm starting to question everything they said before my mother passed. I don't trust them at all.
Hope your dad is doing better.
@@2008betwixt Thank you for your kind words, unfortunately my dad past away on the 8/10 .
He suffered alot in the end getting medical help was like banging your head against the wall,expecting your head ache to go away.
All the best to you and your family hope life is treating you well, once again thank you for your concern.
@kemalahmet4202 I'm so sorry to hear that, my condolences to you and the family. Yes, medical help seems to be so hard to get when you really need it. These past 3 years have been terrible for many. I'm getting by. Being a past carer who was able to work alongside RNs has helped me. My mum is in her final stages of dementia. You did a great job trying your best for your dad. Bless you.
@@2008betwixt Thank you well and truly good luck,hope all's well with mum, yer I've a back round in education and social care.
My Dad never trusted social workers and refused any type of private care,the struggle for him is at least over now he's in God's hands.
When my dad was passing under hospice care, my oldest brother was infuriated because he was not given IV or GT feedings. My dad, at that point was barely here and mostly comatose. My sister and I, were the holders of his final medical care wishes, so there was nothing he could do. We told him over and over that that trauma and invasion was not something our dad would agree on. The maniac macho in him did not allow him to reason. So he left, and that was for us a great relief.
Thanks for the I information nurse
I great fly
you dont think using betaine hcl to increase stomach acid and to break down their food and clear their stomach will help, or have you just decided to let them die without addressing the cause of their lack of appetite?
give canabis that will turn the hunger on and vitamn c like lemons
Thanks for the video, much appreciated. Very informative during our difficult time.
Hi I will like to know were you work what city my mom is going true last stage of dementia and Iam looking to a place for mom
Thank you Holly for making these educational videos that make ii so helpful for me to understand what the wonderful hospice branch of nursing is all about.
How long from when they stop eating? 😰
when they feel like it
Hospice doesn't feed them water or food.
@@truthseek3017what if they ask for it
My mom had an appetite while in ICU with ESLD. The nurses would hardly feed my mom. So i would. She was there for 6 days. By the 4th day the nurses told me my mom cant swallow water. So they wouldnt give her anything to drink and she kept asking me for coffee, i felt so bad
I wish I saw this a month ago. My mom went home with hospice on a Sat. She passed away the that Mon. 😢
I see this with my brother and it is painful experience for me
I am an EMS Educator working on a presentation about hospice for EMTs and Paramedics. I think your videos are excellent. I like how they break apart the area of hospice into individual topics. I would love to see you do a video on hospice emergencies and interacting with EMS.
Thank you for your kind feedback! That is a great topic for a video. Thanks!
What if the person has Alzheimers?
Good question. My mum has it and lost her appetite about 2 years ago. But giving smaller, more often meals helped her eat. She would never eat given the opportunity. Her eating has gradually become less, but I never stop trying to encourage her to eat. She has no problem eating ice cream funny enough. I give her Ensure to keep her calories up. But the key is not to get to worked up on it all. Feeding blended dinners is easier too. Standing to her side and bringing the spoon in brings a natural opening of her mouth, rather than standing in front of her. So there are some techniques that may help
Just let them not eat. My dad usually pushes away the food and that's that.
A honey 😘🌹🍵
My grandmother is in her final days. She has stopped eating and drinking on and off for the past few months. Except for the latest Mother’s Day where she became better than she had in ages and even did a cross word puzzle with me and my mother so she had a final lovely meal with us all together. That was all my mother wanted for Mother’s Day and she got it! 🥰🥹💞
you dont think using betaine hcl to increase stomach acid and to break down their food and clear their stomach will help, or have you just decided to let them die without addressing the cause of their lack of appetite?