A Day In My Life With POTS
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- Опубликовано: 2 май 2019
- In today's video I vlogged a day in my life with POTS, from the symptoms I have on a day to day basis to some things I do to help manage it. Hope this video can spread awareness and help others out there who also have pots!
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For this video I filmed what a day in my life with POTS is like! I had so much fun making this video and I hope you enjoy!
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FAQ:
How old am I: 19
Where do I go to college: Towson University
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Thanks for sharing Lindsay. I went for 13 years before I was diagnosed with POTS. I used to take those same salt tabs and just started keeping Sea Salt and water through the day. I take at least 4-8 crystals at a time and when I get the tremors I always take some salt and water and just relax for a while. I wear thigh high or full compression stockings every day from the time I wake up until I get back in bed, which help tremendously. I actually use a wheel chair with no foot pedals and walk and stand frequently. This helps my daily energy. Small frequent meals helps with the nausea. Unfortunately heat exacerbates our condition. I monitor my blood pressure and sit as soon as I feel my heart racing. I thank God for the Mayo Clinic and finally getting a diagnosis 6 years ago. None of my previous doctors had even heard of POTS, including all of the neurologists specializing in MS and so many other conditions.
Wow you’re way more active than me! I’m so fatigued all the times and nauseous after everything i eat 😭😭😭
The stairs! The stairs are what kill me and I get what you're saying. I'm a dance teacher and for the most part I'm fine in class, but make me go up a set of stairs and I feel like I could fall flat on my face!
I also have POTS and I want to thank you for including the stairs. This semester (high school) it seems like I never have two classes next to each other so I’m constantly having to walk across my school and go up and down flights of stairs which I also have problems with. I can’t count how many times my friends and I have been late to class because I had to sit down at the top of the stairs due to difficulties breathing, chest pain, and lightheadedness and they don’t want to leave me. Thankfully most of my teachers are understanding and have worked with me to even on occasion send a friend to my class to inform them I’ll be late. Thank god for good teachers
It is really nice to know that I'm not the only one. There's not many here that understand what this is and I get weird looks all the time, even from Doctors. I was just recently told that Neurologists are not staying in my state. Hopefully people feel inspired to learn how to help people who have POTS. Thank you for these videos.
I have pots and have to go children's hospital and another doctor for my pots and this video has helped so much thank you!!!
I have POTS too. My symptoms started gradually and hardly occurred. Now they have turned into a daily occurrence and is something I have been monitoring (I am also a nursing student) so this has been extremely difficult to deal with in nursing school. Has anyone else in these comments dealt with their symptoms getting worse almost suddenly with time?
Thank YOU, the stairs part confirmed what happened to me one day. I went up stairs and it was like I was dying I couldn’t catch my breath at all, no air in or out. Heart beating so fast. My friend was visiting and she was in shock she never saw me that way. I am going in for testing on Halloween. I sure hope they see I have it, I been sick a long time with no help from doctors.
very accurate day in the life as said from a fellow POTS patient!
I recently have been having dizzy spells and I can't stand on my feet for more than a few mins, have fallen several times. Using a cane now. Started back in january when I was on an anti anxiety med. Can't really go too many places without falling asleep standing up. Thought it was narcolepsy, seeing a neurologist monday. Stay strong you are a beautiful person ❤️
I just ordered a pair of those socks and scoped out some holiday patterns for later🎉🦓
omg you go to towson thats so cool i just transferred there!
I take the same salt tabs and I get them from CVS. They are at the pharmacy so you have to ask the pharmacist for them
I have POTS too! I'm glad I'm not alone
Yes the truth I have pots and I'm sitting here watching it going yep that's what I do
I have had pots since I was 18 I'm 31.i understand how u feel.
this just fills my heart with joy knowing im not alone...ive been having a rough week and yesterday i got admitted to the hospital....curently on an iv and breathing macine
and salt stick brand is amazing!! ive never been able to find them at the store so i do amazon
Thanks for sharing this made me feel less alone in this.. I’m curious if u tried any diets like keto or carnivore and if it helped ?
Seriously appreciate you sharing this!!