Neuropsychoatric Aspects of Lyme Disease
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- Опубликовано: 30 июн 2024
- This podcast will be summarized in the following sections:
1. Lyme Disease: Demographics and High Risk Areas.
2. Lyme Disease: Clinical Features.
3. Screening Questions.
4. Lyme Disease: Diagnosis.
5. Neuropsychiatric Symptoms with Lyme Disease.
6. Lyme Disease: Treatment.
7. Treatment of Psychiatric Co-Morbidities.
8. What Treatments are Not Recommended?
More Details: bit.ly/V-Podcast4
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I can tell you as a person who is almost 40 who has had chronic Lyme for the vast majority of my life- it’s a complete nightmare. The worst part is that regular doctors don’t even recognize it as real and if you’re remotely attractive or in shape nobody will believe you’re sick and feel like shit and can’t function in the world . We are at an extreme disadvantage for maintaining any kind of fulfilling life and we suffer alone - the worst kind of suffering .
I have Lyme, bartonella, bibesia, and relapsing fever borellia and I’m sitting in my garage at 1am in the morning being so fucking depressed about my life
So true. All I find that works is ginger or high quality turmeric and strict diet
Facts
See a Naturopath ... Got a Lyme Diagnosis right off the bat and blood test in a week. Plus they treat you with fewer harsh medicines that do who-knows-what?!!!
@Caroline How old were you when it started? I started feeling tired around 22 years old and then gradually the memory issues and coordination issues got worse. 39 now and finally got my Igenex results this year and am starting Azithromycin
I’m suffering bro, at this point I’m in hell playing in the devils playground
Try adding a tsp of Organic tumeric. Really helps pain, inflammation, mood, stomach, etc. It's cheap online. I'd recommend Healthy Planet store. Lifesaver
@@kkjjlane Ive heard this from others ... need to order some. Im in Chronic/Late stage of it as well as 2 of my 5 sons.
@@phreed6320 ruclips.net/video/vptrR22l-_E/видео.html he's pretty good to watch. There's a bunch of things you can do
Your comment is how I am I sympathize with all of us and may God have mercy on us to find one practitioner who realizes how hard it is to live find a place near a clinic get recognized I'm 58 I'm in torment all the time and going basically bankrupt
😔
Doc. Ty for this podcast. I am an ER RN and was diagnosed with late stage lyme disease. I also had psychotic nightmares
I contracted Lyme disease when I was under 1 year old, outside in Cloverdale BC Canada. Classic bulls eye rash, 57 years ago, I was gravely sick for two weeks and the drs at that time had NO IDEA what Lyme disease was?????? I almost died, I was given antibiotics and prayers. I have never been "normal", now at 58 years old I am suffering with pre Alzheimer's like symptoms. It has been one of the worst times in my life. I wish I could get a dx but at my age, its very hard to do. Still suffering after all these years. I wouldn't wish this on anyone.
I’m sorry you struggled for that long. I too was hit in PA at a young age and have varied dealing with it since. I was diagnosed as crazy before I figured it out on my own. I too, would not wish this on my worst enemy. The tides are turning hopefully. There will one be a day when no one has to suffer the pain we did, and to me that makes it worth having endured on thru.
Thank you anyway for covering this topic because is something many phisythians and psychiatrist dont even consider.
I have chronic lyme and herx badly with any treatment which puts me off treating it. I am 76 and have had it at least five years
A herx is a good thing because it means the bugs are dying off so if you can just hang in there and possibly add some nutraceuticals to counteract the herx you may be able to get through it. I have had lyme and multiple co- infections for decades and have pretty much given up although I recently just restarted another 6-month regimen due to two more embedded ticks, (I'm exposed on a daily basis) had six embedded ticks prior in the last couple of years but took no treatment but noticed some really severe chronic problems developing and this last time I called the doctor and said got to take treatment again whether I like it or not.
I appreciate you trying to get the word out to psychiatrists, as every single one of mine missed the Lyme I've had since childhood, but please do not use the ISDA as a source. Use ILADS if you want to help your patients. A 30-year infection is not going to be cured by a few weeks of antibiotics, and the serology testing is something like 50% false negatives. Patients suspected of having Lyme should see a Lyme Literate doctor, not a regular internist or family doctor. Also, coinfections with Lyme are extremely common, particularly Bartonella and Babesia, which need testing and treatment as well.
Just be prepared to spend 20k destroy your gut micro biome in the process and still not get to the place you need. Look at BVT I couldn’t handle the reactions and had to stop but it’s the only thing that ever provided relief other than Xanax for some reason.
@@dyingtonoIf you take Xanax (Alprazolam), be sure to also take Thiamine (B-1). Xanax is an anticholinergic that depletes acetylcholine increasing your risk of dementia eventually. B-1 increases your acetylcholine.
I am a plethora of history in these field personnel experience without any on going care or understanding, im dying and my entire family is abandoning me as are many many friends due to my symptoms and complete lack of care for me. Im being hijacked and have been for decades at this point. Devastating humiliating demoralizing dehumanizing I am numb and so broken and spirit!!!! Family says "if you were really sick, the doctors would help you, ypu are just lazy, irresponsible, uncontrollable, crazy and theres no gekp for someone who won't help themselves" ive been blamed, black steeped, misunderstood, neglected, ignored, chastised, ridiculed, belittled, locked up, beat up, Isolated and more..... at this point my past wrecked, my present unbearable, my future to scary to face knowing what I know is coming after all thats been, where is the hope, compassion, the do no harm? I'm 47 alone no job, no education, no medical or mental health care without insurance or the energy and mental cognitive to fight for myself and those closest think its all mental that im obstinate definite and just uncaring to help myself. If I could correct this without proper care, God knows I would of a long time ago. It is a comfort to hear this. Not once was it ever brought up in decades of symptoms and drug failure (conditions worsened actually on psychotropics alone, first time in my life began to improve when I was officially diagnosed in 2016 with late-stage Lyme and sevral other infections untreated for yearrrrrssssss). I was not able to continue treatment: 1) no other medical/ mental would see me for this or seemed to believe it was possible when with a cdc positive test. It is morbidly under recognized and severally neglected, leaving emence suffering and a history of tragedy and trauma. I could possibly never know a good life or productive outcome, as I am a daily prisoner to this and the harsh reactions of those around me, who absolutely do not understand or see any medical or mental health support for me. Doomed worhout proper care, truly inhumane and cruel. It took every to get the diagnosis after a stack of other serious health and mental difficulties (im denied disability even still and cannot advocate for myself). I need help. So many orhers just like me only younger and im watching them lose their futures too, without proper care etc. I was only able to treat for approx 1yr out of a lifetime with this. Too complex and cumbersome for me alone and as of now there's not any thing promising to help me, no one is fighting for me.
You can cure yourself! Google up the alternative cancer protocol "Colloidal silver + MSM". Colloidal silver is a universal pathogen killer (viruses, bacteria, protozoa, funghi), it kills them all, there is no resitance. MSM carries it into the CNS. Take serrapeptase to remove the biofilm from lyme cysts. There is a book on Amazon from someone who cured his lyme with colloidal silver. I am sure it will work and within 1 - 4 months the lyme can be effectively dead! Unlike with conventional treatment that only makes the lyme hide inside the cysts and cells so that it survives. Then look into how to heal your nervous system: it's possible! See e.g. Medical Medium information. You can get your life back but conventional doctors won't do it, you have to! Be ready for some die-off symptoms (herxing) and don't overload yourself. Take antioxidants. You'll be fine.
Oh, and there are famous 6-month herbal protocols, too. You can also try autovaccinations to train your immune system to kill the lyme (it's a supportive treatment, not a cure).
I am so sorry. Late stage lyme is insidious. I also have Bartonella, which I suspect you may too. I'm fortunate my family hung in there with me and helped me find a lyme literate doctor for treatment, otherwise I'd be homeless. It took almost everything from me. Many doctors are clueless about vector borne illnesses or are afraid to have to deal with the IDSA lying bastards. (Wormser you suck.) I hope you find help. This can kill you. Please seek advocacy. Contact ILADS maybe they can help. Good luck to you.
Whatever you do don't listen to these people advocating for herbal remedies and especially don't listen to the guy advocating for msm. That stuff is literally industrial bleach and drinking it has killed people. I'm sorry you don't have any support from family and friends. I recommend trying to get in contact with your local health department as a lot of times you can find free health visits through their clinics. Good luck!
Oh, try the Medical Medium protocol by Anthony William. You can starve out the viruses and bacteria causing all this while eating a healthy diet of fruits and vegetables. Find his books and podcasts on lyme disease, depression, chronic fatigue etc. And btw, MSM is methyl-sulfonyl-methane, a harmless food supplement, which is not to be confused with MMS.
Waiting for my lab tests for late stage Lyme. Your presentation was very helpful - I found a symptom I did not discuss with my dr. - inability to find the right word.
Yes, that happened to me in addition to speaking slowly...and I could not control the spaces between words. I was very afraid I would speak that way including hesitation to find the correct word in my brain. But it did go away. I was bedridden for 2 or 3 weeks. Undiagnosed for about 3 yrs first. I just kept getting worse before I got better. That stared 15 yrs ago. I have chronic Lyme still. I'm better but I'm still limited in what I can do. It changed my life completely. Never knew I got bit, no bulls eye rash. No doctor would test me. I know that was the fault of the CDC.
It was extremely helpful thank you
Does the affected person experience neurological symptoms constantly, or do they have episodes? My friend had, what I thought was a schizophrenic meltdown after refusing anti-psychotic medication. Her episode lasted for days of not eating, experiencing hallucinations & anxiety attacks. She said she has lymes disease, but she was fine after finally taking her meds. Trying to figure out how to best support her.
I haven’t been diagnosed with Lyme but I feel like my symptoms line up with Lyme I’m going in for an MRI on the 22nd I have been having mood changes,depression,anxiety,it started at 15 but got progressively worse after my first child and after my second and third child too. The depression was hard to get over and I still struggle with mood changes and I hate it because that’s not who I am. Then I started to sweat at night then my headaches were getting worse and the I started waking up with these extreme headaches. Then it was the forgetting things and the being clumsy feeling weak and extremely tired all the time even if Ive slept well now my legs and hands are tingling and numb pressure on the left side of my head and eye and ear it’s honestly mentally debilitating. Hopefully they can find what is wrong. I also feel pain in my ankles and in my spine
Definitely the short attention span and ability to concentrate is one of my issues and the overwhelming feeling
@@lizethmadrigal5484 The sum of symptoms that you are describing perfectly fit Lyme disease and co-infections. You should be tested with a Lyme literate doctor. Don;t bother with your GP or because they usually know nothing about Lyme and use testing methods that are unreliable. You can waste a lot of time and money, and being miserable for years with untrained doctors. Unfortunately, the tests that are precise and reliable are not covered by insurance. There are I-GENEX and ARMINLABS. Check them out.
Garance thank you so much for you reply to my comment. I’m definitely going to look into getting a Lyme specialized doctor because I cannot keep living like this.
@@lizethmadrigal5484 You are very welcome. No, you cannot live like that, neither should you. You can get better. You need a good diagnosis, and a good doctor, open to functional medicine, not only to antibiotics. Lifestyle is very important: diet (NO sugar, low carbs, no gluten), emf's from WIFI and cell phones, get rid of chemicals in personal care and house cleaning products, laundry detergents etc... Antibiotics alone do not do the job. Lifestyle is extremely important. You can already start today, before you see a doctor. No guilt, only getting back to your power :) Good luck!
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And hyperthemia, is one of the few things known by now that work completelly erradicating the infection. Why is it contraindicated? Also ozone does wonders, can be said the same of hydrogen peroxide wich is almost the same. Also why anti-bartonella isnt recomended? Bartonella is more of a neurological problem than lyme per se. these guidelines are weird and full of bull.
you are an arm chair md. So much of what you said is nonsense
I was going to add a similar reply, a lot of what he said is so outdated I almost turned it off but I'm staying till the end just to be sure that I can comment on specifics.
So I’ve recently come down with this. Major fatigue but it’s manageable with extra sleep. I intend to start a regiment of colloidal silver and daily sauna. It just doesn’t seem like there’s any good western medicine method of remedy for this.
Great video. Thank you.
No, there is a lot of misinformation in this video. 👎🏽 This video is promoting IDSA and CDC disinformation that will likely lead you down the path to a lifetime of suffering. 🥺
i never understood "late" stage lyme, does it mean it would one day go away? some doctors have told me they blame the antibiotics themselves to the fact that recovery never happens due to the additional damage caused by them
They never damaged me. They give doxy to teenagers for some months for severe acne. What about that?
@@debraemig417 worth to question that. I am simply annoyed at the excuses given
As am I. My Lyme literate physician has dealt with Lyme himself and coinfections. I was not given a test for almost 3 yrs. BECAUSE I did not know that I got bit and I never had a bulls eye rash. My pcp at that time (15 yrs ago) said,"Then you do not have Lyme disease". I had gone to him several times es in that 3 yrs telling him something was wrong. I felt funny, foggy brain, confusion and an occasional little stumble here and there. He did all blood tests and everything and nothing wrong. Until I got extremely fatigued, exhausted and then bedridden for a few weeks. I could hardly move. Everything hurt. My head felt l8ke a bowling ball, stiff neck, legs of concrete. I thought I might die...and I didn't care. That's how bad I was. I cried every morning in pain. Like a truck ran over my ribs every night. I did slowly get well enough to now get a blood test. Could hardly make it. Shaky legs. My Western Blot was extreme! All that wasted time.
Because my pcp was not educated about Lyme. I did change pcp's. Took awhile to find a Lyme literate physician also of course he was a medical doctor as well. He had Lyme, he knew what we felt like. He helped me, it took several yrs, he diagnosed me with two other coinfections. Just by touch. He treated me for those as well. The truth is...no one knows what it feels like until they get it. It has helped to watch what I eat. Sugar and yeast feed the spirochete.
@@debraemig417 people like me can relate. Im still searching relief
Don't ever give up. I will add that I had more than "one round of treatment" through out the last 15 yrs.
I was hoping for some new information but when long term antibiotics and supplements are what probably saved my life and you slipped up and called it Lymes disease way too many times. There was some useful information though.
Also pcr isnt completelly reliable, better go do a elispot.
I had positive elispot and abnormal low CD57+NK and doctors in UK will not except it 🤯
@@GTschumacher Same here. Positive elispot and low nk57 too. Dont recognise it in spain either. They could, doing a elispot in a lab here in spain but even if they admit it, medically they cant give you any treatment nor help. I went treating myself with liposomal essential oils from ying zhang and greg lee and also mms cds from andreas kalcker and jim humble and nowadays i have no more symptoms. Im thankfull i didnt keep on insisting on the doctors. I know many people that were derived to psychiatry and given medication that made them go worse. When the problem is actually a brain infection. Claiming they were hallucinating their symptoms. Really dumb for people that study 5+ years for some bullshit degrees and go nuking their chests as being experts and blaming all the people around them as if they know nothing. Crazy world we live in and should not underestimate its crazyness. Heal on your own mate. Is the best. If you want more info reply this comment with a e mail. Peace!
@@Xyzjdisbzjd did you have neurological issues mate..? How long for you to start feeling better after you started treatment
Your lecture is way off topic, titled "neuropsychiatric aspects" but you literally spend 95% on extremely BASIC things like definition, bite-time-rash which is less than 40% of cases, on and on. Opportunity lost to actually inform people.
36-48 hours is wrong.
Absolutely!
This is classic text book junk , it doesn’t cover other states that Lyme is heavy in. The South is covered in deer ticks and the time is not correct. All it takes is the tick to bite and it’s on .