Sjögren’s Dialogues: Exploring Neurological and Mental Health Complexities

An interactive webinar where patients and healthcare professionals engage constructively to understand lesser discussed aspects of Sjogren's Syndrome.
The panelists are
Dr. B.G. Dharmanand, President Indian Rheumatology Association, Senior Rheumatologist, Manipal Hospital
Dr. Debashish Danda, President APLAR, Senior Rheumatologist, CMC Vellore
Dr. Bansari Gujar, President-Maryland Society of Rheumatic Diseases, Rheumatologist at Rheumatology Associates of Maryland, USA
Dr. Sarath Menon,
Consultant Neurologist, in charge of Neuromuscular & Autonomic Clinics at Aster Medcity Hospital, Kochi
Dr. Mukund Prabhu, Associate Professor, Department of Cardiology, KMC, Manipal
Dr. Sujoy Ray - Psychiatrist, Member, Royal College of Psychiatrists, UK
Ms. Kirtida Oza,Co-Founder Director Sjogren's India, Patient Leader
Moderated by Aparna Mittal, Founder PatientsEngage
#WorldSjogrensDay #SjogrensAwareness #SjogrensSyndrome #RheumaticDisease #AutoImmuneCondition

[@jillgreenaway9688]

I was a Family Physician but had to take early retirement due to illness.
I became ill in 1988 and have been ill without any definitive diagnosis nor treatment in all that time.
I have deteriorated precipitously in the past year.
I am in Canada.
I have really pushed for further investigation over past 6 months and finally saw a rheumatologist 4 months ago - 5 minute appointments / no history, no examination. I pushed for investigation for Sjogren’s syndrome and this was done - reluctantly - and I had to pay out of my pocket for the blood tests. Results are positive - but no treatment, no follow up offered. I was given the results in a 2 minute phone call.
I am really ill and with each passing week become more ill.
I hope people are getting better healthcare on other countries.

[@denise3808]

Wow! There’s so many issues Sjogrens can cause ! Lungs kidneys etc shocking I hope you do
Find help .

[@joeyhachtman7068]

I recommend going to a university hospital for superior care rather than private practitioner who seems disinterested? This was extremely edifying as to wide range of systems affected. It took nearly 30 years for my diagnosis as the incidents of seemingly unconnected symptoms were sporadically spread over literal decades. It was actually the sudden appearance of purple toes that inspired my podiatrist to suggest a rheumatologist. I have always been careful about diet and exercise. My only complaint for years was my eyes, but my then opthalmologist was markedly unconcerned. Then in spite of regular dental care, my teeth were cracking and chipping.... Yes to vitamin D, upped dosage from 2000 iu to 5000 and awful fatigue seemed to disappear overnight! Thank you all for this clarity on the puzzle wrapped in an enigma!

[@s.vasanthakumarpharma1210]

Excellent Initiatives by Hon'ble Dr. Dharmanand Sir... 🙏🙏🙏🙏🙏🙏

[@denise3808]

58 mins in shes so right …. You live it you know … you can’t live it out of a text book.. you feel it you breathe it ! Having a good DR makes a humongous difference!

[@PatientsEngage]

Thank you so much for sharing your views

[@pamelasmith2625]

I am watching from Ontario, Canada. Very informative presentation. Thank you so much!

[@PatientsEngage]

Thanks for watching! Please share with others if you think it can help them

[@rajjj46]

Hi am about to move canada soon and have being diagnosed with sjorren syndrome recently. Where do i get treated once i move there. Can u guide me?

[@jfouts1979]

My issue, here in the US, is getting 'doctors' to be invested in my healthcare....I put doctors in quotes simply for emphasis....I have seen plenty of doctors, and basically have to beg them to treat me or follow-up with me despite extreme worsening symptoms over a period of over a decade...

[@naturelover1284]

please talk about dizziness and not working due to this,

[@PatientsEngage]

This is an important feedback. So sorry to hear about the challenges in this regard

[@wendyhannan2454]

Thank you Drs, could you please tell me the difference between Fibromyalgia and Sjogrems syndrome ?

[@arlenegerred3683]

🎉hello 👋 am Canadian, I am unable to see any neurologist or rheumatologist due to the fact I don't have a family doctor

[@PatientsEngage]

So sorry to hear this. Hope you are able to navigate the healthcare process soon

[@alixmortimer5143]

𝓟Ř𝔬𝓂𝔬𝐒ϻ