I have been battling with this disease for years...started in my 40's and I am now in my 60's. I also have the DH (dermatitis herpetiformis) rash. I am lactose intolerant. I would just like to point out that other "GRAINS" like corn and oats do cause a reaction in my body. I get very sick. Staying away from grains/gluten is a must...they are now poison to my body...however, doctors need to understand that once our villi is damaged, how are we supposed to absorb our nutrients??? I eat very healthy and still feel awful...my body is not absorbing nutrients even from the healthy food and vitamin supplements that I take. Muscular aches, joint pain, headaches, and feeling tired all the time. My CBC blood work shows normal readings...and all my doctor says is "Just stay away from gluten." WHAT??? I do stay away from gluten and all grains. Hello! Doctors need to think of a nutrient injection or IV that can give us our nutrients because our small intestine is now damaged and no longer absorbs from what we eat!!! Another thing...can the villi EVER restore itself and heal??? Otherwise there will be thousands of us who will be malnourished and die a slow death. Our bodies feed on itself and we are withering away. Please...we need our nutrients!!!
If you have Celiac Disease and the villa are flattened so you do not absorb vitamins then just keep away from gluten like your dr told you. The villa will repair and your absoroption will improve. They were clear about this and it is treatable in most cases.
Go see a good doctor and or specialist. In a worse case scenario I believe it would be possible to supplement you diet intravenously. But in the meantime please stay away from gluten.
you might try asking your doctor or dietician about sublingual vitamin supplements. they absorb into the body thru the tissue in the mouth, not the stomach/colon.
I've been battling this since I was a young girl. By the time they did a stomach biopsy, I was covered in the rash for almost 2 years. I was miserable and very depressed. I tested positive for CD and was prescribed Dapsone for the dermatitis herpetiformis -- all these years I relied too heavily on the medication thinking if my rash was gone I was ok and continued to eat whatever I felt like. 35 years later, I'm now very sick with this illness and know I have to adhere to the GF diet. If not I'll be extremely sick and the Dapsone barely works :( I have a biopsy scheduled because of stomach complications and weight loss. Just because your rash is gone doesn't mean you have the greenlight to eat whatever you feel like! Stick to the diet or end up like me. I've lost alot of weight and most of my hair. I pray I don't have cancer now. Thank you for your video 💖🙏💖
Thank you Dr Nielsen for giving such a informative talk on celiac disease . Now I am feeling confident as far as dealing with Celiac questions in board exams are concerned.. I look forward to see more of your lectures on Gastroenterology.
I am a diagnosed celiac (biopsy), but 23andme says I don't have dq2.5 or dq8, and I don't have all of 2.2 either. I just don't know if I have dq7.5 or not. I guess I am one of the rare ones who are negative.
I ceased to get migraine headaches following diagnosis and diet change.. Next lactose and all dairy. Since removing that from my diet, I stopped getting sinusitis. Also added brassicas, tomatoes and grapes to the list of sensitive foods. Unable to tolerate the so called gluten free oats, wheat and barley. Maize, sorghum and rice are OK.
recent research suggests glyphosate causes leaky gut, and since it is in most grains and non-organics, perhaps this is cause for non celiac gluten sensitivity? thoughts?
table at 30:40 info, seems to contradict what you say after the slide is over. as one example, the table says gluten sensitivity and wheat allergy only have gut symptoms, but later you go on to say wheat allergy has a host of (non gut) symptoms like can't breathe, and non celiac gluten sensitivity has gut and many other symptoms e.g. nerve issues, so which is it? is the table incorrect? thank you for any info you can share on this, as this appears to be the most update info i have found so far. peace. carol
I have questions and would love to talk to someone on this. I have lupus and would like to talk about lupus and celiac disease. I'm at a point of why go on. I can't enjoy any meals. 😔
I'm also thinking like that like why go on if I'm going to be in pain 24/7 it's messed up that humans get diseases that cause lifelong pain like ide rather it of just never happened or quick and over lol
1:05:05 My guess is the answer to this is the same as - why only a certain percent of people (children, adults) suffer from va cxine injuries, developer va cxine induced autoimmune diseases? (While the rest is ok (on the first glimpse)) 1:05:20 Yes, va cxines. It might seem that I'm exaggerating, but I don't think I do, I think that's exactly what has been causing the increase in incidence of celiac disease (and autoimmune diseases in general) in the last few decades.
Yes, and you may find it amazing after following a gluten free diet for awhile how much better you feel psychologically and physically. Watch out for Natural Flavors . I have been having awful symptoms from it and some depression from not having it for a long time
@@wendyhannan2454 I'm sorry to hear that, how frustrating for you! Just a thought: have you ever had a food intolerance test done? Could be that you're also lactose intolerant or allergic to other foods....
Going to the doctor to test T3 and T4 is useless. The best way to check your thyroid is using a GLASS thermometer and measuring your body temperature for 4-5 days. Google this!
i was diagnosed with celiacs as an 18 month old toddler . i was extrem malnourished... failure to thrie is what the first dr. tomd my mum. one dr told her my stomach would heal once 🎉 my legs straightened out. idiot. my mum finally found an older dr from ireland who listened to her and then asked some family history. he determined....no tests in the early 1960's..that i was most likely celiac due to our irish ancest and other medical issues in the family. for instance asthma and cystic fibrosis. neith have been shown to be linked as yet but in his experience there seemed to be some correlatiin and we had both. i have eaten a gluten free diet since then and have been mostly healthy since then. that being said now that i am in my late 50's i have developed other auto immune diseases. this too is common. my mum was told that in his opinion there were two types of celiacs...similar to diabetes. type one was where it manifests as soon as gluten is introoduced to a baby. this is a severe form and proceeds to failure to thrive . other issues develop as the child becomes malnourished and some children died. then... there is the person who shows no symptoms, grows normally but goes on to develop celiacs later in life. similar to developing type two diabetes. this was his theory based on his experiences with seeing celiacs through his practice and life . i think with all the food modifications going on our bodies dont have the time to adapt to thise changes and we are seeing more celiacs now. all in all i have found it not that difficult to eat gluten fee. eat fresh fruit and vegetables. steam/ bake your fish or meat with no coatings. and limit heavy starches.
I'm the same age as you, had other auto-immune issues creep in, and am also Irish. I ended up testing postive for both genetic markers and extremely malnourished, although overweight. Probably due to no energy from being unable to absorb nutrition. CBD oil from Charlotte's Web, sublingual/liquid vitamins. Higher levels of D3 and Vit B complex....must be ALL B vit to work but started with B12 injections. The carnivore diet was amazing at helping me repair my stomach. After 2 years I started adding veggies. I can 't seem to tollerate ANY grains without causing edema. Also can't tollerate sugar without causing a rash flair up. I'm now 57 and feel so much better! My son was born with his legs bowed in. Looked like a cowboy who'd been riding a horse all his life. Crazy symptoms with this disease. :(
Many Drs don’t get it and I agree that first Dr sounded absolutely useless. Well done to your mother finding another Dr. Hard for you having it so young, I always feel sorry for kids that have CD. You can get this disease at any age, I heard of a lady of 80 being diagnosed with CD 😮 I was 65 but believe I had it well before.
Has anyone found a link between stress and celiac disease/gluten sensitivity? I have a rash that presents on my chest and scalp which I'm not sure is specifically due to gluten, but I think it is, also unsure whether it's Dermititis Herpetiformis or psoriasis, but also flares up much more pronouncedly when I'm under extreme pressure. Could the cortisol/stress response amp up the immune response which then speeds up the response to gluten or something similar? Going to see a specialist soon, hoping he can find the reason... I also have the HLA-DQ8 variant tested via 23&Me.
I have been battling with this disease for years...started in my 40's and I am now in my 60's. I also have the DH (dermatitis herpetiformis) rash. I am lactose intolerant. I would just like to point out that other "GRAINS" like corn and oats do cause a reaction in my body. I get very sick. Staying away from grains/gluten is a must...they are now poison to my body...however, doctors need to understand that once our villi is damaged, how are we supposed to absorb our nutrients??? I eat very healthy and still feel awful...my body is not absorbing nutrients even from the healthy food and vitamin supplements that I take. Muscular aches, joint pain, headaches, and feeling tired all the time. My CBC blood work shows normal readings...and all my doctor says is "Just stay away from gluten." WHAT??? I do stay away from gluten and all grains. Hello! Doctors need to think of a nutrient injection or IV that can give us our nutrients because our small intestine is now damaged and no longer absorbs from what we eat!!! Another thing...can the villi EVER restore itself and heal??? Otherwise there will be thousands of us who will be malnourished and die a slow death. Our bodies feed on itself and we are withering away. Please...we need our nutrients!!!
If you have Celiac Disease and the villa are flattened so you do not absorb vitamins then just keep away from gluten like your dr told you. The villa will repair and your absoroption will improve. They were clear about this and it is treatable in most cases.
Go see a good doctor and or specialist. In a worse case scenario I believe it would be possible to supplement you diet intravenously. But in the meantime please stay away from gluten.
you might try asking your doctor or dietician about sublingual vitamin supplements. they absorb into the body thru the tissue in the mouth, not the stomach/colon.
I've been battling this since I was a young girl. By the time they did a stomach biopsy, I was covered in the rash for almost 2 years. I was miserable and very depressed. I tested positive for CD and was prescribed Dapsone for the dermatitis herpetiformis -- all these years I relied too heavily on the medication thinking if my rash was gone I was ok and continued to eat whatever I felt like. 35 years later, I'm now very sick with this illness and know I have to adhere to the GF diet. If not I'll be extremely sick and the Dapsone barely works :( I have a biopsy scheduled because of stomach complications and weight loss. Just because your rash is gone doesn't mean you have the greenlight to eat whatever you feel like! Stick to the diet or end up like me. I've lost alot of weight and most of my hair. I pray I don't have cancer now. Thank you for your video 💖🙏💖
Wish you the best... Hope you are fine
God Bless. Hope you are well
Look into salicylates.
May blessings and recovery be yours !!!
Ddd Dee eeeeeeeee÷ee÷e÷ ?,???????,?,,,,?,,,??]],], pmm0,
I think everyone should be screened for celiac disease.
I agree, I have CD, and my adult kids need to be tested. It can happen at any age. I was 65 and I’m sure I had it years before.
That would make to much sense! Better for the pharama industry to prescribe medication, cuz there's no money to be made with a change of diet 😉
Thank you Dr Nielsen for giving such a informative talk on celiac disease . Now I am feeling confident as far as dealing with Celiac questions in board exams are concerned.. I look forward to see more of your lectures on Gastroenterology.
This is a very good presentation. Thank you!
I have lipedema. I bet there is correlation.
Hosting hookworms put my celiac disease into full remission. I have no idea why every celiac doesn't use them.
I am a diagnosed celiac (biopsy), but 23andme says I don't have dq2.5 or dq8, and I don't have all of 2.2 either. I just don't know if I have dq7.5 or not. I guess I am one of the rare ones who are negative.
its gluten sensitivity
The gold standard for diagnosis is biopsy. I would not trust 23andme. You do have celiac because gluten is causing damage to your small intestine.
Diagnosis by the AMA is always iffy...they don't know everything, thier testing is not 100% accurate
I ceased to get migraine headaches following diagnosis and diet change.. Next lactose and all dairy. Since removing that from my diet, I stopped getting sinusitis. Also added brassicas, tomatoes and grapes to the list of sensitive foods. Unable to tolerate the so called gluten free oats, wheat and barley. Maize, sorghum and rice are OK.
Sounds like there's not much left to eat?! How are you doing now?
Thank you so much for this video, I’m learning so much about CD. However more people are being diagnosed with CD, and I can’t help but wonder why ?
recent research suggests glyphosate causes leaky gut, and since it is in most grains and non-organics, perhaps this is cause for non celiac gluten sensitivity? thoughts?
Makes sense. Also salicylates could be an issue. Plants natural pesticides.
table at 30:40 info, seems to contradict what you say after the slide is over. as one example, the table says gluten sensitivity and wheat allergy only have gut symptoms, but later you go on to say wheat allergy has a host of (non gut) symptoms like can't breathe, and non celiac gluten sensitivity has gut and many other symptoms e.g. nerve issues, so which is it? is the table incorrect? thank you for any info you can share on this, as this appears to be the most update info i have found so far. peace. carol
I have questions and would love to talk to someone on this. I have lupus and would like to talk about lupus and celiac disease. I'm at a point of why go on. I can't enjoy any meals. 😔
I'm also thinking like that like why go on if I'm going to be in pain 24/7 it's messed up that humans get diseases that cause lifelong pain like ide rather it of just never happened or quick and over lol
@@MapleStarBlitz take vitamin B1 benfothiam 200mg 3 times a day, also look into herbs to kill EPSTEIN BARR VIRUS!! THIS VIRUS IS THE CAUSE OF LUPUS
@@notadocf538 what in the world are you going on about
1:05:05
My guess is the answer to this is the same as - why only a certain percent of people (children, adults) suffer from va cxine injuries, developer va cxine induced autoimmune diseases? (While the rest is ok (on the first glimpse))
1:05:20
Yes, va cxines.
It might seem that I'm exaggerating, but I don't think I do, I think that's exactly what has been causing the increase in incidence of celiac disease (and autoimmune diseases in general) in the last few decades.
Is it normal to get depression when you have celiac?
yes
Yes, and you may find it amazing after following a gluten free diet for awhile how much better you feel psychologically and physically. Watch out for Natural Flavors . I have been having awful symptoms from it and some depression from not having it for a long time
I follow a gluten free diet, however I’m still exhausted. 🤷♀️
@@wendyhannan2454 I'm sorry to hear that, how frustrating for you! Just a thought: have you ever had a food intolerance test done? Could be that you're also lactose intolerant or allergic to other foods....
What thyroid tests? I have been tested for t3 and t4 and can’t get doctors to test for more.
Going to the doctor to test T3 and T4 is useless. The best way to check your thyroid is using a GLASS thermometer and measuring your body temperature for 4-5 days. Google this!
i was diagnosed with celiacs as an 18 month old toddler . i was extrem malnourished... failure to thrie is what the first dr. tomd my mum. one dr told her my stomach would heal once 🎉 my legs straightened out. idiot. my mum finally found an older dr from ireland who listened to her and then asked some family history. he determined....no tests in the early 1960's..that i was most likely celiac due to our irish ancest and other medical issues in the family. for instance asthma and cystic fibrosis. neith have been shown to be linked as yet but in his experience there seemed to be some correlatiin and we had both. i have eaten a gluten free diet since then and have been mostly healthy since then. that being said now that i am in my late 50's i have developed other auto immune diseases. this too is common. my mum was told that in his opinion there were two types of celiacs...similar to diabetes. type one was where it manifests as soon as gluten is introoduced to a baby. this is a severe form and proceeds to failure to thrive . other issues develop as the child becomes malnourished and some children died. then... there is the person who shows no symptoms, grows normally but goes on to develop celiacs later in life. similar to developing type two diabetes. this was his theory based on his experiences with seeing celiacs through his practice and life . i think with all the food modifications going on our bodies dont have the time to adapt to thise changes and we are seeing more celiacs now. all in all i have found it not that difficult to eat gluten fee. eat fresh fruit and vegetables. steam/ bake your fish or meat with no coatings. and limit heavy starches.
What do you mean by straightened your legs ?
I'm the same age as you, had other auto-immune issues creep in, and am also Irish. I ended up testing postive for both genetic markers and extremely malnourished, although overweight. Probably due to no energy from being unable to absorb nutrition. CBD oil from Charlotte's Web, sublingual/liquid vitamins. Higher levels of D3 and Vit B complex....must be ALL B vit to work but started with B12 injections. The carnivore diet was amazing at helping me repair my stomach. After 2 years I started adding veggies. I can 't seem to tollerate ANY grains without causing edema. Also can't tollerate sugar without causing a rash flair up. I'm now 57 and feel so much better! My son was born with his legs bowed in. Looked like a cowboy who'd been riding a horse all his life. Crazy symptoms with this disease. :(
@@adm6785 what tests to find out if we are malnourished?
@@tknzdworldfirstidentylinke6404 It's been so many years now, I can't remember all of them. I do remember vitD, Folate, and B12.
Many Drs don’t get it and I agree that first Dr sounded absolutely useless. Well done to your mother finding another Dr. Hard for you having it so young, I always feel sorry for kids that have CD. You can get this disease at any age, I heard of a lady of 80 being diagnosed with CD 😮 I was 65 but believe I had it well before.
Has anyone found a link between stress and celiac disease/gluten sensitivity? I have a rash that presents on my chest and scalp which I'm not sure is specifically due to gluten, but I think it is, also unsure whether it's Dermititis Herpetiformis or psoriasis, but also flares up much more pronouncedly when I'm under extreme pressure. Could the cortisol/stress response amp up the immune response which then speeds up the response to gluten or something similar? Going to see a specialist soon, hoping he can find the reason... I also have the HLA-DQ8 variant tested via 23&Me.
Very interesting. Id like to see studies on this. I think 🤔 there might be a correlation.
How is it going, did you find an answer?
Meeting Dr IGUDIA RUclips channel was the beginning of a new life for me after using his herbs medication in curing my Coeliac disease.