I go in on the 4th of Feb to initiate the process of getting diagnosed. I've been putting ti's off long enough I cant walk anymore and the weakness has began showing itself in my right foot and hand . My voice is showing the same thing. 😢
Brava!! This video is fantastic! I am a lower neuron onset pALS, and I too have shared a couple of videos about a year ago, maybe less. ? I am currently working on a project to make more videos of a different type, but for the same reasons as you! I’m going to watch the rest of the video now, but I already know that I want to connect sometime in the not too distant future. I’m so happy that you’ve chosen your path through this, and I applaud you. 😊😊
I am so glad to see you!!! You usually do your videos on the 1st of the month so I was worried about u!!!! Praying that the progression of your ALS slows up or goes into remission. Have a great rest of the week and look forward to your next video!!!!☀️🥰🙏☀️🥰🙏
@@bethbrock2797 Hello Beth! Nice to meet you here. I am Ken age 61. It started in my lower right foot. I think the first indication that something was wrong was about 16 months ago but I initially did not pay attention to it.
The Revised Amyotrophic Lateral Sclerosis Functional Rating Scale (ALSFRS-R) is a tool used to evaluate functional deficits in amyotrophic lateral sclerosis (ALS).
My daughter can no longer lift her hands like you. She can't walk alone anymore. Her voice is getting weaker and harder to understand on the phone. She had a feeding tube put in which upset her because she wasn’t ready for that but her lungs could do the surgery. It has taken two weeks to recover from surgery. Glad you are doing so well. 😊
Beth, as Sandy Traub has said, I admire your positive spirit as you deal with a very difficult physical condition. Prayers for you. Also, when I have any kind of body cramp, leg cramps, I sip a little apple cider vinegar. It stops my cramps almost immediately. My mother-in-law, Margaret, told me this little trick years ago. It always works. When my Mike was sick, he would get leg cramps quite often. He would always ask me to get him done apple cider vinegar. But check with your doctor first.❤
Proverbs 3 - 5 Trust in the Lord with all thine heart; and lean not unto thine own understanding. 6 In all thy ways acknowledge him, and he shall direct thy paths.
I go in on the 4th of Feb to initiate the process of getting diagnosed. I've been putting ti's off long enough
I cant walk anymore and the weakness has began showing itself in my right foot and hand . My voice is showing the same thing. 😢
Sending love! ❤❤🎉🎉 I admire and cheer you and your optimism.
Thanks Sandy❤
Bless u. U have us all out here wishing u well. Keep the positive vibes.
❤thank you!
Brava!! This video is fantastic! I am a lower neuron onset pALS, and I too have shared a couple of videos about a year ago, maybe less. ? I am currently working on a project to make more videos of a different type, but for the same reasons as you!
I’m going to watch the rest of the video now, but I already know that I want to connect sometime in the not too distant future. I’m so happy that you’ve chosen your path through this, and I applaud you. 😊😊
Thank you ❤
I am so glad to see you!!! You usually do your videos on the 1st of the month so I was worried about u!!!! Praying that the progression of your ALS slows up or goes into remission.
Have a great rest of the week and look forward to your next video!!!!☀️🥰🙏☀️🥰🙏
Thank you friend
I will keep that in mind!
I'm so glad to see you and you are truly a warrior and a beautiful person♥️
thank you
Thank you for posting. I was diagnosed 3/12/2024 with limb onset ALS (sporadic).
Upper limb or lower?
@@bethbrock2797 Hello Beth! Nice to meet you here. I am Ken age 61. It started in my lower right foot. I think the first indication that something was wrong was about 16 months ago but I initially did not pay attention to it.
Yep, when we don't have ALS on our radar we think it's something that will go away. Blessings to you.
The Revised Amyotrophic Lateral Sclerosis Functional Rating Scale (ALSFRS-R) is a tool used to evaluate functional deficits in amyotrophic lateral sclerosis (ALS).
My daughter can no longer lift her hands like you. She can't walk alone anymore. Her voice is getting weaker and harder to understand on the phone. She had a feeding tube put in which upset her because she wasn’t ready for that but her lungs could do the surgery. It has taken two weeks to recover from surgery. Glad you are doing so well. 😊
Ooo I never thought about how your lungs could impact that. Good to know. Thanks for telling me.
I'm glad your daughter has you❤
God bless you, such a horrible disease to have. I pray for you & a cure to be available soon xx ❤
❤thank you
Doctrine & Covenants 6:36 Look unto me in every thought; doubt not, fear not.
Beth, as Sandy Traub has said, I admire your positive spirit as you deal with a very difficult physical condition. Prayers for you. Also, when I have any kind of body cramp, leg cramps, I sip a little apple cider vinegar. It stops my cramps almost immediately. My mother-in-law, Margaret, told me this little trick years ago. It always works. When my Mike was sick, he would get leg cramps quite often. He would always ask me to get him done apple cider vinegar. But check with your doctor first.❤
Oh I appreciate this advice!
I get leg cramps when I'm not drinking enough water. I also use Vick's VaporRub.
Proverbs 3 -
5 Trust in the Lord with all thine heart; and lean not unto thine own understanding.
6 In all thy ways acknowledge him, and he shall direct thy paths.