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Thank you ladies

God bless you.

I was diagnosed in February also. My speech is a lot worse than yours.

❤

Merry Christmas everyone.

I'm 32 and will be leaving behind my daughter. I don't know exactly when. I hope I have some time left with her because she turns 3 in January and can't talk yet, so obviously she won't grasp that mommy isn't gonna be around anymore and I don't want her to think mommy abandoned her 😭💔

Just found you, will be praying for you. May I ask what religion you are?

Tick-Borne Pathogens ( Bacterial, Viral, Fungal & Parasitical ) are responsible 😣😣😣

This is great to see. I love that you get to do this with Stacey. You two are such a great pair.

I said the wrong date. This was video'd 12/12/24.

When you suffered in cruel disease

Thank you for sharing. Your strength and faith helps me get through some of the hard times with my husband’s ALS.

Sending support 💪💪🙏🙏

Thanks for the updates!!!! Love your Christmas tree!!!! Happy Holidays to u and your family!!!!!🙏☀️🥰🌲🙏🥰🌲🙏

Brava!! This video is fantastic! I am a lower neuron onset pALS, and I too have shared a couple of videos about a year ago, maybe less. ? I am currently working on a project to make more videos of a different type, but for the same reasons as you! I’m going to watch the rest of the video now, but I already know that I want to connect sometime in the not too distant future. I’m so happy that you’ve chosen your path through this, and I applaud you. 😊😊

God bless you, such a horrible disease to have. I pray for you & a cure to be available soon xx ❤

Thanks for sharing 🙏🙏

Hi i told u in your first video that i died in 98..bled out in hospital and lived against the odds..well this was 4 yrs after BOTH my parents had age 49 themselves..well i died at age 32..WHAT i didnt tell ya was after i finally live despite dr saying different...i go home and at this time i didnt know that id DIED on the table .nobody told me..BUT i had a total blood loss and other complications SO i get my med records..BEFORE this after they take me off life support..i remembered such a vivid memory..not a dream ..well what i remember is before they put me to sleep obviously the room was full of frantic nurses..before i go to sleep...BUT heres my vivid memory..its like i opened my eyes while im on the bed and the bed is surrounded by ppl hurring to save me..they were several all around THEN my daddy walked THRU the nurses and looked at me .and that look told me .its gonna be ok..then i knew id live .so about 2 weeks later i get the med record andTHERE IT IS .I DIED AND THE COMPRESIONED ME BACK THATS WHEN I KNEW I HAD SAWMY DAD. GOD BLESS IN JESUS NAME❤

I cane across your video and your exactly right .first i died in 98 and bled totally out at hospital...pnumonia and a embolism also..dr said call family in..well i had kids but BOTH my parents had died at age 49..i had no siblings..so i had no family..after many days in icu..ISTArted showing improvement they hadnt expected..and that was 26 yrs ago..but my daddy had a simple heart balloon and died on the table ..the odds i believe were1 percent for death..i had a dream about dad .i saw part of where he was. So beautiful..he told me i couldn't come but hed be back for me and he will...i cant wait to see my savior Jesus who made it possible for heaven. God bless

Thank you for posting. I was diagnosed 3/12/2024 with limb onset ALS (sporadic).

ALS is caused by various fungi that can enter the body in several ways. Often times the infection begins in the upper regions of the nasal cavity infecting the olfactory nerve. From there, the infection slowly makes its way into the frontal lobe (motor cortex) which is what causes the disruption to signals to muscles. The parietal lobe is often unaffected because of the central sulcus - a physical structure in the brain that separates the frontal and parietal lobes - that is why most ALS patients have no problem with sensory (feeling); the infection cannot cross into the lobe to affect sensory neurons. Another clear indicator that the disease is caused by fungal pathogens is the increased level of CHIT1 proteins. CHIT1 is a protein released by mammals to fight pathogens with chitin in their cell walls such as fungi. These fungal infections are known as "insidious infections" meaning there is no sign of infection until you have serious symptoms such as muscle weakness. To treat the disease, heavy antifungals are required for long periods. Most doctors are not aware this is now a treatable disease and are still approaching it with conventional wisdom. If you have been diagnosed with ALS or a similar neurodegenerative disease, be sure you do significant research on fungal infections and their treatment. It is important also to note that companies in the US and Europe make billions annually selling equipment to patients with this disease and others like it.

I'm so glad to see you and you are truly a warrior and a beautiful person♥️

ALS can be caused by Lyme disease. The tests your doctors have access to are not sensitive enough and usually have false negatives. You have to get tested by a private lab (Igenix, vibrant, Armin etc). Borrelia can be treated (and its co-infections can be worse than the borrelia so you need to get tested for Babesia and Bartonella etc). Take your health into your own hands and get your own testing- don’t accept this diagnosis.

Bless u. U have us all out here wishing u well. Keep the positive vibes.

Beth, as Sandy Traub has said, I admire your positive spirit as you deal with a very difficult physical condition. Prayers for you. Also, when I have any kind of body cramp, leg cramps, I sip a little apple cider vinegar. It stops my cramps almost immediately. My mother-in-law, Margaret, told me this little trick years ago. It always works. When my Mike was sick, he would get leg cramps quite often. He would always ask me to get him done apple cider vinegar. But check with your doctor first.❤

I am so glad to see you!!! You usually do your videos on the 1st of the month so I was worried about u!!!! Praying that the progression of your ALS slows up or goes into remission. Have a great rest of the week and look forward to your next video!!!!☀️🥰🙏☀️🥰🙏

Doctrine & Covenants 6:36 Look unto me in every thought; doubt not, fear not.

Proverbs 3 - 5 Trust in the Lord with all thine heart; and lean not unto thine own understanding. 6 In all thy ways acknowledge him, and he shall direct thy paths.

I get leg cramps when I'm not drinking enough water. I also use Vick's VaporRub.

The Revised Amyotrophic Lateral Sclerosis Functional Rating Scale (ALSFRS-R) is a tool used to evaluate functional deficits in amyotrophic lateral sclerosis (ALS).

Sending love! ❤❤🎉🎉 I admire and cheer you and your optimism.

My daughter can no longer lift her hands like you. She can't walk alone anymore. Her voice is getting weaker and harder to understand on the phone. She had a feeding tube put in which upset her because she wasn’t ready for that but her lungs could do the surgery. It has taken two weeks to recover from surgery. Glad you are doing so well. 😊

Prayers 🤲 for Us 🙏 all

Prayers🙏

Friends are wonderful greetings from Australia ❤

Hi Beth. I’m going through ALS testing now but my symptoms are all pointing towards it. How are you dealing with thinking about next 3-6 months? I’m scared to death and wanted to know how you deal with it.

Thought I had locked myself out of the house, so I rang the doorbell. My husband answered and said the door wasn’t locked. My thumb was too weak to depress the latch. That was one of my first symptoms.

Beth. You are amazing! You mention changes in your voice but you seem to sound normal in all your videos.

Can you tag who you spoke to that helped you find the neurologist that specializes in asl?

Is there any hope of medicine for ALS in coming year

I had a scare in 2021… had trouble pushing my brakes in the car and lifting pots or pans and dropping things and muscle cramps and spasms . Then it all went away . Sometimes I wonder if it will return

Hello there. Just found you on here and will be looking forward to seeing more. Thanks for the info. I’m four years into my progression and still don’t have a for sure diagnosis. It appears to be ALS or PLS.

Oh this is so good! You look beautiful and I'm glad you have the love and help♥️

Thanks for the update, you look very pretty today.

❤❤Love to Beth and Laura! Both looking great! #friendsarefriendsforever

❤️🩷🩷💚❤️💚🩷Thanks for the updates!!!! That is so wonderful that u have such genuine friends to help u!!!! Have a great Labor Day Holiday!!!💚🧡💙🧡💚

Prayers 🙏🙏

God bless you. Thank you for sharing the uplifting ideas. My husband does most of the cooking now. It has been enjoyable when we prepare the meals together. Something new for us. Part of our new normal.

Hi Beth.. I thought I had commented on your first video but went back to look and it’s not there.. I’m currently waiting for a neurologist appointment and have been waiting a long time..both my primary doctor and rheumatologist are both putting out referrals and putting urgent..I’m am very certain of what the diagnosis will be,.I have had symptoms since December of last year and they have spread from spasms in my bottom lip to hands, then right shoulder atrophy and spasms in right arm then extreme right hand weakness,.some spasms are so strong they hurt, then also it’s so easy to pull muscles doing absolutely nothing,.now I have spasms in my esophagus when I eat and fatigue is bad but I also have lupus which is why I see a rheumatologist but she says these new symptoms are definitely not autoimmune and I agree. My question is how did you get into an ALS clinic and did you have to have a diagnosis to get in or did you just make yourself an appointment? I hope you see this and can help me, I’m loosing hope at seeing a neurologist any time soon and need to know what’s wrong with me 😢

Hi Beth. Thank you for the update. I am sorry that you have to be an ALS sufferer. It's so heart breaking and frightening. I will add you and your husband to my prayers. I hope speaking to us will help you. In turn you help others! God Bless. 🙏❤🙋🙏