Cancer Treatment Stopped Working - PET Scan Results - PleurX Catheter
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- Опубликовано: 17 май 2023
- Kyle’s Channel:
/ @kyleapple9702
P.O. Box
Jenny Appleford
7211 Haven Ave, Unit E-407
Rancho Cucamonga, CA 91701
INSTAGRAM: jenny_appleford
FACEBOOK: Our Brave Jenny
For business inquiries: veganapplefords@gmail.com
DIAGNOSIS:
March 19th, 2021 Stage IIIA Non Small Cell Lung Cancer (Non-Smoking)
February 2022 Stage IV Non Small Cell Lung Cancer (spreading to Brain, and other parts of lung and lymph nodes)
Gene Mutation EGFR with Exon 20 Insertion
TREATMENTS: Received or currently Receiving
2021: 8 Rounds of Chemotherapy (Carboplatin and Paclitaxel) with 30 concurrent radiation treatments to chest and lung
Failed Immunotherapy directly after Chemo and Radiation (Durvalumab, 1 round)
2022: Chemotherapy
10 rounds of Chemotherapy (Carboplatin, Alimta, and Avastin)
6 with Carboplatin, 4 without
Targeted Brain Radiation (Completed)
CURRENT TREATMENT:
I am on a clinical trial for my specific gene mutation
Our GoFundMe Link:
gofund.me/5edf81e5
The purpose of my channel is to document my cancer journey to look back on, and/or help anyone else going through anything similar. It is also to potentially help loved ones supporting those who are in this fight as well. This is also an easy way to update a lot of people at once. My main goal is to have footage of this journey for my husband and children to look back on. I originally created this channel as a sort of video diary for my
family.
Thank you so much for following along on this journey. Your love and support help me so much.
Hi Jenny! Someone from another channel told me to check you out to offer you hope! 2015 I was diagnosed with double lung cancer. I’m now a 5x double lung, lymph node, rib and brain cancer fighter/ survivor! 2015 I started off with 6 1/2 weeks of chemo and radiation. I waited 6 weeks then had double lung surgery. I had my upper lobe of my left lung removed and a wedge resection on my right lung! My left diaphragm had to be sacrificed along with my left vocal chord! I now have a prosthetic left vocal chord and can talk! 2016 cancer came back in right lung so I had sbrt radiation. 2017 cancer came back in right lung neat last spot so I had proton beam radiation! 2019 cancer was detected in a lymph node and right rib so I started chemotherapy and immunotherapy! 2020 while still doing immunotherapy I had a seizure and had a tumor in frontal lobe on the brain and had gamma knife radiation! Since then all scans have been stable while doing immunotherapy every 3 weeks! For immunotherapy they do genetic testing to check pdl’s to see if your compatible with certain types of immunotherapy drugs! If I’m not mistaken they like you to be 80% compatible. Only 1 drug “Keytruda” I was compatible with and that was only 35% compatibility but I had nothing to lose so I went with it! I only had a 2% chance of surviving 5 yrs after diagnosis and that was 8 yrs ago! I pray and hope the best for you! 🙏🙏🙏
Wow. You have been through so much. What a trooper you are!!! I am so glad that you've have such success with immunotherapy! Your story will offer hope to so many who feel hopeless at this time. Thank you so much for sharing your story with us.
Keytruda gave my sister a new lease on life. She is now cancer free 🎉😊 no melanoma in the lymph nodes, no spot on her lung.
O.o
You are so inspirational with your story. You can help so many people. Love and prayers to you.❤
The catheter just might eliminate the pain of draining of the fluid.
it’s crazy to think jenny only had 5 months left when they filmed this video. she declined so fast. maybe i was in denial or uneducated on this type of cancer but i truly thought she would beat it and live at least a few more years. 😞 i think their positive attitude made me believe things were better than it was.
Re watching your videos….miss you so much. You fought the fight! ❤
I'm watching now. Jenny was a true warrior 🕊️🕊️🌹🌹🕊️🕊️🌹🌹
I love re watching Jenny’s channel….God rest her sweet soul….such an amazing human ….❤
Hi Jenny and Kyle, My sis had the pleurex drain and we found the secret to no pain, is to drain slowly. You will have a hand-held thingy to control how fast or slow the fluid comes out. If it starts to be painful (usually from the lung repositioning), you just slow it down or stop it for a minute. The hospital tends to do it very fast but at home you can control it and that is a good thing! Best of luck to you! Prayers always.....you got this!
Awesome advise!!!!!!! Drain slowly it's not a race.
As Kyle says, don't speed it's not a race 😁😁😁😁
Fantastic information. Makes sense.
How kind of you to take the time to ket Jenny know. 🤗 I sure hope she sees this!!
This is very good news!
As someone who has done a lot of research on targeted therapies (I am a chemist in the pharmaceutical field and my graduate research was along these lines) I am biased. While there are overlaps with immunotherapy - typically the mechanism of how it works is different. Additionally, targeted therapy can work really well for actionable mutations. I am sending you all of the positive thoughts and prayers - you are obviously a very strong person.
Also, thank you for sharing everything you do in your vlogs. For me the part that means the most is how clear it is that you are a person who has cancer, but that is only part of who you are - it doesn't define you. You are also a mom/wife/daughter/fashionista/fellow claustrophobian/ and more (the fashion runway always brings a smile - your kids are adorable).
Cancer and I mean ALL cancers are a metabolic disease not caused by gene mutations according to Dr. Thomas Seyfried. That is why Jenny's treatments are failing. That is way most cancer treatments fail. 97 percent of cancer patients are dead within 5 years of treatment . That is a terrible record and yet they keep doing the same chemo and radiation damaging treatments. You have to wonder WHY!!!????
Jenny needs to get off her vegan diet and start a very low carb diet and take a few very safe drugs that will reduce glutamine . This will starve the cancer cells.. ALL cancers use ONLY sugar and glutamine as fuel . Deprive the cancer cells of those two things you will starve the cancer out.
Go listen to Dr. Thomas Seyfried he has lots of video's on RUclips.
It makes me so sad to see people buying into the Big Pharma Cancer Cabal of crap. Their treatments are dangerous and most important they don't work. It' just make Big Pharma and doctors rich.
By the way it looks like many of the parasite drugs can help to kill cancer. Fenbendazole etc. Those drug (which are VERY safe) and a very low carb diet.
O
It’s nice to see a scientist with a belief in prayers. I’m a 3 year stage 3c cancer survivor and I’ve seen the value of prayers in many ways. Thank you for giving her hope- both practical and spiritual.
@@roch145 your comment gives me hope. Thank you. I'm 6mths post treatment for 3c2 CC reoccurrence, and I hope I get to 3yrs xx
@@InnerPeaceBeauty I had rectal cancer with lymph node involvement. My tumor was very responsive to the chemo and radiation. The surgery was a bit brutal and I had an ileostomy for 9 months. So it was a long process for me. I hope your treatments are able to eliminate your recurrence. This disease can be beaten, I’m hopeful you just need a little more intervention to achieve that. I’ll send some prayers your way.
I am in Kyle's role in my story. You both have given me the gift of looking at this "new normal" of ours, in a much healthier way than I thought possible. From the bottom of my broken heart...Thank You
My heart goes out to you and your partner Paula. If you ever need a friend I am here for you.
How are you doing?
Jenny I’m a nurse and have worked with pleural catheters. It is very easy to drain, and may actually give you mor relief as it will be more frequent, but smaller drainage amounts. Praying for you.
As a former hospice nurse, the Pleurx drain kept many patients comfortable. You’ve got this, Jenny!
thats true! the drain is reliefing..i know this from my mother. shes in heaven now. lungcancer , 73,very quick only 2 weeks after the diagnosis on 15.2. this year
@@slamer2158 ❤❤❤❤
My mom, too😢
Even though I’m nearly 64 it’s still sad and it’s still hurts and I miss my mom (and dad. And my 2 sisters) like crazy. ❤❤❤🎉🎉
You are so strong! I know how hard it can be facing the unknown. Sending prayers, positive vibes and pixie dust!
Sending positive vibes for next week’s appointments Jenny! ❤
@@Nan-59 I'm sorry you've lost so many family members you love . Sendin you lots of love and hugs frm West Virginia
Jenny I just completed a rosary for you and all cancer patients that asked me to pray for them.
Jenny was always so cute when she'd say "No offense." lol
Kyle is such a great dad an husband!! Not only is Jenny going through a lot but Kyle is to!! ❤
My mom was diagnosed 3 years ago with adenocarcinoma in lung. She had surgery but wouldn’t do chemo. It returned in brain a year ago this month. She had surgery again and then radiation and it had also returned in the lung. The oncologist did a targeted treatment I assume similar to what you will be starting. Within 3 months she had no cancer showing up anywhere on her pet scan. It worked very well on eliminating any sign of cancer. I’m only telling you this to maybe encourage you. I know it’s different for everyone but the med she was on worked wonders so I’m praying it does the same for you. She was 83 and unfortunately cancer was not the only thing she was dealing with and did pass away in December 2022 but it was not from the cancer! The last pet scan was still not showing any cancer so hopefully it does work for you! Much love and prayers being headed your way.
I'm sorry for your mom but what an encouraging comment for Jenny. Thank you so much for your input
Prayers to you. That bird was a blessing from above that you aren’t alone. Hugs pretty brave gal. We are all here for you!
As a retired respiratory therapist watching your difficult journey w/sadness. The drainage system was designed to give you more control ,comfort and precious time to do it at home. As a cancer patient, I have found edible gummies with THC/CBG/CBD helpful for pain (daytime) and THC tincture sublingual 1-2 drops helpful for management of pain,sleep,anxiety management and appetite (night). I retired 2/2021 and was diagnosed with ovarian CA in 5/2021. Currently on chemotherapy again after I trial of immunotherapy which destroyed my thyroid....this disease sucks. I love the times I feel restored to some "normalcy", the THC gummies help a lot. Since you will be off your clinical trial, visit a dispensary its worth it. One foot in front of the other. Thanks for sharing your journey. Your family's Love is so evident, Love is what matters most.
❤
Added you to my prayers, warrior. Love you just because!
How did they find ur cancer someone told me to ask for a blood test ca 125 I think I don't have any symptoms but I just wanna be proactive
The vitamin gummies of any kind is full of sugar.....sugar is a cancer feeder. You want to starve cancer cells not feed them. My issue with conventional doctors is they only stick a "band aid" over the wound....in other words they are treating the symptoms & not addressing the source of the problem.
@@moniquegarcia1011 my mom, aunt and grandmother had breast cancer. My dr recommended i get tested. I'm worried if I test positive my health insurance premium will skyrocket. I NEVER miss my yearly mammogram. Best regards.
It’s never TMI. For those of us without cancer, it’s very precious to understand what you’re going through. I can’t imagine how it must feel for those of you who struggle with this. Thank you Jenny, really. Please, keep sharing
100% agree.
You two are amazing. Trial is over. Now back to regular programming. That’s ok. Your participation in trial has provided valuable data for future treatment of lung cancer. I had a brain tumor and went thru clinical trial. It did not work so I am back to chemo injections. Just roll with the punches. Surround yourself with love and positivity. Thank god for Kyle, your biggest supporter and your dad, the lifesaver for watching your kids. One day at a time. One challenge at a time. It’s ok to be scared. Prayers for you. Hugs. May your treatments go smoothly. Find Fingers crossed.
Wise words
100% agree with you.
Very, very, wonderfully said. ❤❤❤❤❤❤❤❤❤
Such nice, perfect words you have written.
I hope you have someone that has your back, to love you through getting your cancer treatment.
Please take care ❤❤❤🕊️
So strong and empathic leaving those positive words when being in such a terrible situation yourself! Bless you and all my positive thoughts coming your way as well.🌸
I think that even if you are completely healed, your children are going to really appreciate you for making these videos. You are showing your kids how very strong you are, how loving strangers can be, how family rallies to help loved ones in need and what a strong marriage looks like. I have prayed for you and will continue to do so. May God bless you in a mighty way and give you strength and peace as you go through this struggle. Much love to you all!!
You look beautiful Jenny ❤..and you never give out TMI 😂😂😂😂😂😂
You are the sweetest couple and family. So much love and commitment to each other.
Jenny is a Warrior. She moves through this journey with such grace. These videos are such a gift to her children. No matter what happens, they will know their mommy is a brave warrior. God bless this family.
And to know she inspires others in their battles, thank you so much Jenny to share and motivate.
Hi Jenny & Kyle I'm sending you lots of love & prayers your way. Winnie looked lovely in the Daisy dress & your dad did Winnies hair perfect ❤your dad is lovely. In fact your whole family are amazing. Jenny you really are a brave , strong lady & an amazing mum. We are here for you. I wish I could be closer to give you a big hug but I'm from UK so I'm sending a virtual hug. I will be praying for you & that your treatment runs smoothly & you will be pain free🙏🙏🙏❤❤❤
As a former oncology nurse, I saw many folks have the pleurocaths placed, and it greatly increased quality of life for them. Some discomfort initially, but well tolerated after. It’s not nearly as invasive or as large as what they use for the “once and done” drainage tubes, but you won’t be draining off the large amounts of fluid at once. Smaller amounts at more frequent intervals is usually better tolerated. Having the drainage catheter in is a good thing if you think of it that way….fewer trips for drainage at the hospital, etc. reframe how you approach it. It makes it easier.mi know you can do this. You’ve already demonstrated your strength and resilience, even when giving into your doubts and fears sometimes.
I had the chance to drain one for a patient in nursing school, and he didn’t seem to feel the draining and had relief after.
my Dad had it weekly in the ER 2 liters each time from the fluid building up and compressing his lung. We were so happy for the relief he got.
@@ES-fc9cy How do you drain? Tubes, if so how the tubes inserted??
You are in the hearts and prayers of so many, Jenny and Kyle. Thank you for sharing your journey with us. So proud of you both and I was glad to hear the PET scan shows things are stable. Sending comfort, peace, light and love to all of you. We are with you each step of the way.
We are all hoping, praying, and fighting this beast alongside you and your family. Even though the clinical trial stopped working for you, your team is already planning your next moves. You're a strong person and very much admired for your constant kindness and grace during these challenges. Much love to you and your darlings ❤
I'm in liver failure and on a fair amount of pain meds (multiple med issues) let me tell you that constipation is no fun! Its like going through childbirth with no reward (that you wants to take home at least) and it never ends, when i get diarrhea its a great day. I believe in you, believe you will find the best path through all this, and do so with humor and grace ❤
Look into castor oil wraps
Truly sorry for all you are going through with the liver complications, Paula♡♡~You may have already tried Mineral Oil for the constipation; it is the ONLY thing that works well for me whilst dealing with IBD for years...I get mine at Kroger/Ralph's for under $3 a bottle and simply drink however much is needed to finally clear out~Then stay on couple tablespoons daily or adjust as needed...Know it can be the worst feeling ever, and I even ended-up with an emergency impaction last year:( Wishing Many BLESSings During Your Health Journey☆☆!!
(Holly in Arizona)
Paula, thank you for sharing your situation and I hope that you have many good days ahead. Keep your thoughts in the right direction and know that people care about you from afar.
Unsure if anyone suggested Lactulose? For severe constipation it can really do the trick.
Bless you and your family and your care team. Prayers for your continued health.
God bless you and your family and may he keep you all strong.I am a retired Marine and a twelve year survivor of pancreatic cancer.Nobody gave me much hope to survive yet here I be.Think positive,rest and eat as well as you can because it all helps.Remember that you have a Marine thats got your bqck and sending you waves of positive energy Anything that I can do please reach out.SEMPER FIDELIS
I am sorry that the clinical trial did not result in remission. You are a breath of fresh air, and I hope the next treatment will work better for you.
We learn from you Jenny. As a nurse I do not even think twice about anything you discuss. You are sharing the truth with us. I thank you.
So many nurse fans❤👋👋
Hi Jenny, my name is Katherine and am a 4 time cancer survivor and I have multiple sclerosis. I too am living with Stage IV Lung
Cancer. Thank you so much for your tmi comments!!! Oh my goodness you are not alone!! I want you and your husband to know that I am praying for y’all! I used to have a lot of fear but now I don’t. I gave my life over to the care of my Lord and Savior Jesus Christ and now when I am facing with the scans, tubes in the lungs, surgery chemo, radiation and everything else that we go through. I just stop.
and give it to him. I can honestly say that I have faith that everything is going to be okay. It’s going to work out according to God’s Will. I go for my next scans in July. Until then I will be watching your videos and praying for your health and healing and for your wellbeing of your precious children and your wonderful husband and father and support system. God Bless You. ❤️🙏✝️
Blessings to you Katherine. I pray you will recover and be healthy again.
God Bless you on your journey Katherine. ❤️
Praying for you 🙏🏻
The pleural catheter was such a blessing for my husband when he was ill. So much better than having to go to the hospital to drain the fluid.
There is no TMI to a colitis sufferer. Girl, I feel your pain between D & C. My bf always tries to change the subject!
Agree; no TMI....let us know what's up and we'll do our best to help and support!
Married to a Crohns sufferer and poop is just part of our daily discussion at this point 😅 I have gotten to where bodily functions are no big deal.
Please ask your team to refer you to a gastroenterologist for your medication induced constipation. Constipation just adds to feeling miserable. Gastroenterology RN here married to a gastroenterologist. It can be easily fixed if you keep ahead of it. Sending love your way ❤
Thank you for your information!!
Im prescribed big boxes of MiraLAX. Works fine for me. I cannot deal with constipation, makes me grumpy.
Miralax works GREAT for medication induced constipation if you can use it! Mix with Gatorade or even Lemonade!
Stool softener gel type work as well.
@@enigma_-_79 By far the best option because you can mix the exact dose you need for a perfect bowel movement or complete flush job. there's a GOOD reason why it's rec. by MANY doctors when prepping a person for colonoscopy/
You are one of the bravest persons I'm aware of. Each of your videos is a lesson of resilience, love, wisdom and kindness. Thank you, Jenny, you've made me a better person.
I've had fluid removed from my lung both ways--- When they SUCTION out the fluid with a machine, IT IS PAINFUL, you're not crazy. But when they use a catheter and let the fluid drain on it's own, with gravity pulling it out, you will not feel a thing. We're all with you.
Yes Kyle! No regrets! ❤❤❤ never regret Disney 😊❤
Proud of you Jenny
Praying you continue to fight this deadly battle. Your family is worth it all 🙏♥️💓💯🙏
I'm so happy that the pet scan was good. A few curves in the road can be navigated. Let your team handle the details. Celebrate you!!!!
Nope, not the news we want. This did show how well you both cope with the ups & downs of a cancer journey. Allowing for car therapy & feeling all the feels before Winnie time = fantastic parenting. Praying that the cath provides relief & that new treatment puts the chomp on the cancer. You are loved ❤
So grateful for your community, Jenny. That momma friend doesn’t realize the blessing she is for you and yours and your daddy fixing Winny’s hair (and Winny so proud!😄) and of course your hubby Kyle. You are quite the team♥️
My heart goes out to you. I fought stage 4 cervical cancer. I vowed I would never fight it again. I say that because it ruined my quality of life. I couldn't handle my grown children crying and my friends begging me, so I fought it. I love them all but their day to day living didn't change, mine did and it lacks quality due to the radiation destroying 18 inches of my intestines and they radiated through my stomach so now even eating is a lost enjoyment. I am keeping you in my prayers honey, you have a young family and they need you. Much blessings from Texas.
@susie Daw. Prayers for you as you travel this difficult road. All our hope can safely be placed in Jesus who has gone to prepare a place of perfection for all who believe 💕🙏🙏
My son in law’s dad took one round of chemo and refused anymore, it was as bad as the cancer he said. Prayers for you.
I had cervical cancer & interstitial radiation( which they didn’t tell me) destroyed part of my intestines, so I have a colostomy & permanent vaginal damage…).. I don’t have cancer, but was left with serious damage, but I am Happy to be alive & live life to the fullest… I’m learning to live with the changes & Jenny(my name too), you are soooo blessed to have all your help & support. I didn’t have that & I can understand your fears! And the unknown & waiting is so hard…. It’s good to see that you’re able to go to Disney & out to eat & lots of daily things…. Im praying your new treatments go easy on you & help you to enjoy your life & I pray NO PAIN for YOU!! Thank you for sharing…. Get lots of rest after ur big day & Disney day!!
I'm stage 4 cervical with mets in my lung and windpipe. It's a rough road. My heart goes out to everyone who is suffering 💔
Please never feel like you're sharing too much. I can't imagine what you're going through. You are so much stronger than you can imagine. It shows when you speak and I hope you know your strength is helping many of us get through our days of struggles. Sending many prayers to you and your family always! 🙏🙏
We learned today that my husands cancer has returned, bummer. And you pop up on my feed with your smiley face and I am grateful for that. Love to you from us, who are fighting with you.
Your face lit up when the bird came close to say hello 💕
Jenny... good news Pet Scan.... you are such an inspiration to us all. Beautiful family... and that hubby!!!! ... don't get me started... a GEM!
SO I am going to give you a little bit of HOPE ... there is a difference between having a drainage procedure done than having a constant catheter hooked up, The body gets adjusted to foreign things in your body and adjusts.. when you have a procedure done, your body almost goes into fight or flight mode! You having this catheter in your lung to drain will be good because you wont be putting yourself and your body in shock every month or so you have it drained. that's one thing to keep in mind. I hope this helps.
There's no giving up on you jenny, let's move onto the next. We are all here with you and your doctors are on it 💪
Working my way backward with these videos, she looks sooo healthy in this video. 😢
Glad there’s a new option for you Jen. Winnie the little fashion icon. Stay in the fight. Lots of love and light to you all. 💙❤️❤️💙✨✨✨✨
So proud of you. What a way to pivot and focus on the good things today. Much love to you guys.
You’re a rockstar, Jenny. Ain’t no mountain high enough, no valley low enough, or river wild enough- God is always there with you, and He will see you through it all. 💜 🙏
I have been on a targeted therapy for my CML (leukemia) since 2006. The therapy came out in 1999 . Other than a bone marrow transplant, this disease was not curable. New things are available are the time. Please stay as positive as you have been able too. It’s hard sometimes though and that’s ok. ❤
Continued prayers! Love Winnie’s dress and her beautiful hair. Granddad did a great job.
Jenny, you are loved by so many especially your best friend and Husband. He is amazing.
Good morning Jenny, you are such a beautiful, amazing person. Continued prayers for you and your family, ❤
I hope you’re okay sweet Jenny! I’m your neighbor to the south in north county San Diego and I think of you and your family often. ❤️
Mockingbird encounters are typically seen as good omens or having a generally positive message, according to both folklore and modern wisdom. They are viewed as signs from guardian angels, or spirit animals encouraging you to express yourself, tap into your individuality, and protection of those you love.
Nice to see you taking the news so well. Hopefully, if the fluid is drained regularly, your lung won’t need to re-inflate so much and there’s less pain. Also, you won’t have to lie flat with a catheter in, you can be on your side.
Targeted treatment sounds good. I like that the doctors don’t want to “waste time” so the problem gets worse. Fingers crossed that the new treatment works even better than BLU.
Hope you enjoyed lunch. Winnie looks like a Princess.
My mother did to clinical trials simultaneously while taking traditional chemo for stage 4 NSCLC 12 tears ago. Avastin was one of the drugs. I'm so proud of her fight despite the eventual outcome. I pray for you and your sweet family every time I watch you! Thank you for sharing your journey!
As far as looks go, you are not on Oxygen even at stage 4. You definitely have strong lungs Jenny!
I’m so sorry you’re going through this. I just finished treatment for inflammatory breast cancer. Stage 3C. It was a lot, but I feel very fortunate. Thinking of you guys and praying for you and your family. Hoping this next treatment doesn’t hurt too much for you. Your whole family is adorable. God bless
I’m feeling so positive Jenny ❤good to see you smile 🙏🙏🙏try miralax for constipation Kyle you are a gem so much wisdom 👏
I am an oncology RN and so inspired by you and your positively and transparency in your journey. ❤❤❤
Your children are going to cherish these videos when they grow up
What on Earth is going on with all the young adults having cancer? I don't understand! Alot having stage 4 when they find out, this just doesn't make sense to me. I have seen several on utube
that are on this same cancer journey all seem young 😢 God Bless You !
it's probably the youtube algorithm, since you are watching cancer related videos you will get recommended more of these types of videos. The reason it may seem lots of young adults have cancer is probably that younger people use youtube more than older folks.
Could be the vaccine
Prayers always, for complete healing and relief from pain, fear and discomfort, you got this girl!
Jenny, former nurse here. I believe that by keeping the fluid drained rather than waiting for a large buildup, your comfort level will be much better. You won’t have the pressure on the surrounding tissues.
God, heal Jenny. She is a dedicated mother, wife and beautiful person. Please heal her our Heavenly Father. I ask you this in the name of the father, the son and the holy spirit, amen.
@@bobfrench5026 that’s what I was thinking. If the pain is because (as she explained in another vlog) the body gets used to the cushion, then all of a sudden it’s gone…makes sense it would hurt; so getting it draining constantly would cause the body to get used to it not being there. Makes total sense in my non nurse brain. ❤😊
@@socrates5135 Amen.
As long as we're in TMI territory: What you're describing (constipation + diarrhea) sounds like what I shall unabashedly coin as "Butt Champagne" -- the constipation is the cork, and well, when it pops... The only thing missing is the celebratory impetus.
You asked for it ;)
Jenny, thank you so much for sharing your journey with us and as a cervical cancer survivor I truly understand what’s it’s like to feel afraid. I admire your grace, beauty, strength, and courage and the outpouring of love from your supporters on this channel is truly amazing. ❤Love & Prayers sweet lady.🙏
I'm having cervical biopsies next month.
@@southernsweetgirl100 sending you healing love and prayers that all goes well with your biopsy’s. Let me know how your doing. Hugs🤗
Your redirection to focus on the present and celebrate being able to go home today and enjoying time with your dad and children is such a positive approach. I am grateful you shared this with us. Sending virtual hugs to both of you. Wishing you strength and peace on this new clinical journey.
Thank you for the update Jenny. I’m hopeful that the drain will prevent the pain you experience when they do it. 🙏🏻🙏🏻 So glad they didn’t see anything majorly change. Yay! Small victories.❤I know though that change is scary but YOU are our BRAVE Jenny! You are so loved! Continuing to pray for you, Kyle, Winnie and Ellis. Your Dad is a GEM! 🙏🏻♥️🙏🏻♥️🙏🏻
Jenny, everything you’re feeling is normal. I’d be scared in your position. The unknown is always so difficult. My mom is one who had the catheter and found it way way easier than continual thoracenteses, so I’m praying it will help you rather than cause pain like you’ve experienced. Love and prayers for you, and all your family x 🙏🏼❤️🩹🙏🏼❤️🩹🙏🏼❤️🩹🙏🏼🌺
❤❤❤I will find and conquer a cancer walk in your name Jenny.. You are so strong❤
Hey Jenny been following you for awhile, I've been in remission from rectal cancer for 10 yrs & I so admire you! Well 2 weeks ago I had my annual CT of abdomen & chest, still having them because my tumor levels never went down all the way, well I got the dreaded call, I have several masses in my stomach & 7 nodules in my lungs, I had an endoscopy on Friday & the dr. Literally told me to pray it is lymphoma & not stomach, we will be going to oncologist on Thursday , praying for the best. Thank you for your encouraging videos & sharing your lovely family with all of us. ❤
Oh jenny, I wish I could give you the biggest hug 🫂 Kyle, you're amazing, and I send you and the kids big hugs too
🫂Big warm hug, Jenny. I said a prayer immediately and will continue to pray every day for you to have strength and some peace in the days ahead.
Special hello to Winnie, I named my newly adopted, fuzzy, little kitten after her. I wanted her to know❤❤❤❤❤❤❤❤❤
Hi Jenny. I've been following your story, just listening and praying for you. I felt compelled to comment today because of the catheter insertion. My brother has Stage 4 lung cancer - diagnosed October 2020. His I upper left lobe, inoperable due to location and vessels it is attached to. Anyway, he had brain mets, gamma knife, LITT procedure, radiation to the lung, chemotherapy and immunotherapy. Last August the pleural effusion started. The chemo/immunotherapy stopped. It was a side effect of that. He had to have it drained and had the SAME excruciating pain you experience with the procedure. Watching you is like watching what he went through again. In any case, he eventually was hospitalized to have a procedure to biopsy his heart and lung wall tissue (don't remember the name of the surgery) to see if it came back cancer (up to that point the fluid was negative for cancer). Post operatively he had 3 drains - each lung and the sac around the heart were draining. He was like a new person with the drains in. He could breath and move and talk without exhaustion and difficulty. Long story short, he went home with 1 drain on the left lung (others removed before discharge). He was SO MUCH more comfortable with the drain rather than going in to have the thoracentesis every week. Eventually, the drain was removed and he hasn't had it since November - and NO MORE thoracentesis. He has the fluid checked regularly, but it hasn't returned. Everyone expected it to, but it didn't. All this to say - you just don't know what will happen, but that's okay. Pray that it's good. Pray that the good outweighs the bad. Whatever it takes - just keep that smile on your face. I pray for you daily.
Oh my what a lovely adorable inviting video! Two peas in a pod, flashing smiles while having fun bantering, showing us the best of your best with great heart! Precious! Endearing! Unforgettable! BTW Jen, you said you didn’t go for cute this day but you have the face of the girl next door, you know, the one that everybody just wants to get to know better or are drawn to by her uniquely beautiful powers! And Kyle is the boy next door! A match made in Heaven 🤩❤ You guys were glowing in spite of the big “C” always lurking around like a €¥#\
Sending prayers that your new treatment will be good for you. I am so proud of you Jenny - the courage that you show is a true inspiration to us all. You and Kyle are truly a "dream team" and I love your sweet children, your dad and even your fur babies. Stay strong. We love you!!
Hi Jenny , I am so proud of how you are moving thru your battle. You should be so proud of your self. As for you digestive issues. I have suffered most of my life. Some times when you are consttipated and having cramps to go like diarrhea, you could be having colon spasms. This makes it almost impossible to go. There is a medication that is a tiny pill you put under the tongue. It stops the spasms. You might ask your doc about it. Also due to the medication I take I have to make sure I use fiber or eat some good fiber. Lots of prayers your way.❤❤❤❤❤
I had constipation the whole time I was on Chemotherapy and then diarrhea the whole time I was doing radiation. I had stage 3 c uterine cancer and I beat it and have been cancer free for 3.5 years. There is always hope. You are so strong. You got this.
Hi Jenny Jesus ‘ s blood can heal you and save you dear put your trust in JESUS He Loves you. I am a Breast Cancer Survivor 2007 I am victories in Jesus mighty name. Bless you I am going to storm heaven for you
Sounds promising Jenny you are both amazing, going through this together, 🙏x
Your courage through this journey has been remarkable! You have had not only God's support but support from family and friends! My prayers are with you every day and sending love and hugs!!
Hi Jenny. I had a lot of pain until a Pleurx catheter was placed in my lung and it was getting drained several times a week. I hope you’ll be pain-free, too, once it’s placed and you get drained. The targeted therapy treatment sounds very promising. I wish you the best and will be praying for you and your family. Please say a prayer for me, too, my PetScan is coming up in a couple weeks. 🙏🏻
I will add you to my prayer list 🙏x
Praying that your PET scan does NOT light up! 🙏🙏🙏❤️❤️
@@Truth1561 Thank you so much for praying for me. It means a lot.
@@lj9524 Thank you, hopefully it won't light up.
Just found your channel last night. I watched about 3 hours of it. I’m sure you have heard this all before but I just needed to tell you that you are so beautiful, so brave, so strong , so honest, and so inspiring. Also, so helpful for others who are dealing with serious health issues. Keep on keepin’ on! 👍
Hi Jen and Kyle
When I check on you I tell my husband that I have to see how my friends are doing.
I hope and pray for you and your family for healing and being free of pain.
Sending love❤♥️🙏🙏
I feel the same way
@ Lorrie Bogart what a lovely post
And hope Kyles stomach feels better❤
I love your refreshing honesty and telling it like it is. When I was on opiates for years the constipation was horrible. I forgot what it was like to feel normal to go to the bathroom. I have been off opiates for 5 years and my GI tract is working very well. What a relief to not have that. I agree, Id rather have the runs than constipation. Sending you love and prayers Jenny. Seeing you happy and healthy.
Thank you for sharing all the TMI about treatment and the bodily issues all people struggle with. Sending warm comforting thoughts you and Kyle.
We’re all praying for you guys! You got this ❤🥰
Yes. I’ve had both. Opioids gives you constipation, and radiation for endometrial cancer gives you severe bathroom trip emergencies! One day at a time, Jenny. Cancer sucks, going thru it sucks. Why did I do? Cry, cry, cry take anxiety meds and now I’m cool as a cucumber!!! Praying hard for you. ❤❤❤❤❤
You might feel better having more control of the draining. I wish you the best.😊
I’m so proud of both of you! You both have kept your heads up, smiles on even with scary news. God has you both. With your pain meds your docs should have you on a med for constipation. If not, make sure to ask them for something. There’s no need to have that discomfort. You all are in my thoughts and prayers. Take care of yourselves. Plenty of rest for both of you!
It's not as simple as having something for the constipation. When you are really backed up because of the meds, even the don't work. My heart goes out to her
@@mindfuleats4517 It wouldn’t be a med just as needed but something to take daily. Usually a standard for patients I’ve cared for with daily and/or long term pain medications. Hopefully prevents the miserable back up before it gets started.
Stay strong. I will say extra prayers for you. From U.K. x
I love your dress Winnie it's fab-u-lous !!!!!👗
And your top Jen.👕
I have never seen a mockingbird. 🐦⬛
I don't think we have them here in the UK.
By the way, no despair- onward and upward with new treatment.
You got this, Jen 💙 👍.
Janice 👵 🇬🇧 xxx
Jenny, I got a giggle out of your sweet dad, “I was afraid to redo these… “ ☺️ Your whole family seems like the best people. 💕
Hoping and praying the next path does very good things for you. 🙏🏻
Hey Jen. I haven’t Sedna a video for a while and that’s ok. I just watched this one, which I missed somehow. I am also a cancer survivor-breast cancer. I had surgery, chemo and radiation. Cancer sucks and treatment sucks. I’m doing good now but honestly, treatment was so hard. I thought to myself, this chemo stuff seems crazy. Dripping neurotoxins into my body. Someday this as treatment will be looked back on and will be considered barbaric. Until then, I’m ok and it’s the best we’ve got right now. Research! Research! Research! I pray for a cure for ALL cancer patients. Hang in there lovely, courageous Jenny. So many people are praying for you and your family💕💕💕💕
Praying for continued healing and that the catheter does not cause u pain and that the new treatment does miracles.
In your pleural space Jenny. I think that you will find the catheter very helpful. Prayers.
I'm glad you have a good man like Kyle. It's important to have a supportive, loving partner.
I** am not sure if you'll see this comment or if you're busy scrolling through all the other videos, but I Am praying for you.
You are one of the bravest people I know! Hugs and love to you all ❤
Lots of prayers! Catheter is not necessarily painful. My friend has had one for a long time. Doing fine. Take cares and hugs all around ❤❤
You and Kyle are so cute together ❤️ So funny and affectionate even when facing some seriously scary times. Makes my day.
Your husband's and your attitude toward your journey through all this is inspirational. Much love you and your family!