What can my blind husband see? (detailed simulation)
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- Опубликовано: 29 сен 2024
- In this week’s video, Paul attempts to describe in great detail exactly what he SEES as a blind person. With the help of some visual effects we will attempt to recreate Paul’s sight for you to experience.
There are many forms of Retinitis Pigmentosa, and everyone in the blind community experiences vision loss in their own way. This is by no means a representation of all people with Paul’s condition - although it’s likely many will relate.
On the extended video, Matthew shares Paul’s most recent medical records which show Paul’s degeneration of sight over a 2-year period. Watch here: / 83685338
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/ @matthewandpaulofficial
In case anyone is wondering what it says on Paul's shirt underneath "Blindness is a spectrum.", it says: "But, ignorance is opaque."
THANK YOU for translating that -- we forgot to mention it in the video. It's a great quote!! Paul has 2 other shirts with fun braille messages beneath them. They are from a company called Eye Swear Apparel
I was just checking the comments before I posted the translation
Does Paul read braille? You two guys are great together.
So I'm mostly laughing at myself here, for some reason my brain just short circuited on the last word and I could NOT figure out what it was. Saying the letters out loud I was just "what is that? That isn't a word" but as soon as it's written down... yep, clearly a word. Thank you for writing it down and un-short-circuiting my brain.
@@sunidesus-8670 "Oh-pah-cyoo? Wtf does that mean?"
We got Matthew, Paul
And Maple
Greatest trio I know 🔥
oh wow I have tunnel vision as well! My friend suggested your videos, your guide dog is so cute! I think last time I went to the doctor they said I had 10 degrees of vision so im in the process of getting my first cane. It’s nice to find other people with the same eye condition as me, growing up i didnt know anyone that was visually impaired. Love your videos !
I've been diagnosed with retinitis pigmentosa myself, two years ago. I've been scared, but your videos have brought me comfort. Thanks for sharing your story
that’s wholesome
If you haven't already, you might check out Molly Burke's channel too since I believe she also has retinitis pigmentosa! She talks a lot about her experiences and is really great and positive 🙂
My first professional job was working as an assistant to a CEO who was legally blind. Incredibly, neither the job description nor the interview process revealed that her sight was extremely limited, as she didn't like to talk about it. I was about three months in when I noticed my checks were all authorized by the American Disability Association. I had no idea. I thought she just got very tired and needed me to read her emails aloud every afternoon. Her receptionist finally explained and told me to give her options at restaurants so she didn't just order a generic chicken sandwich every single time because practically every restaurant has one. I found ways to be much more helpful after I understood why I was there. She was so lovely with me and I miss her.
I know you guys focus on Paul's blindness. But can you please, even if it's just once, show how Paul's angry face look like. He smiles more than the people in a beauty pageant. It's difficult to picture him with an angry face ❤
Hahahhah what a unique request
Right he seems like one of the sweetest and most optimistic people ever .
That’s kind of rude. It’s no different than telling someone they don’t smile enough and you want to see them smile. No one owes anyone else specific expressions, especially forced ones, just because you want to see it.
My husband has nerve damage that has made him legally deaf. I think he's about as deaf as Paul is blind, if that makes sense. He's described it as trying to hear over loud TV static. The demonstrations are very helpful to let people know what they're going through, because I think normal-sighted/normal-hearing people have a hard time imagining it. I see how hard my husband tries to "pass" as hearing and it must be exhausting just getting through the day. Thanks for showing life as an interabled couple. More education is always a good thing!
Not trying to term you how to live, obviously.
But you could try learning ASL together. There's a whole huge deaf community out there that he might be able to find a lot of comfort in, people he doesn't have to try to pass around.
I'm just mentioning it coz not everyone knows things like that exist. And also, as someone who's beginning to harm ASL, I just think it's really cool and fun
Had an ear infection during vacation last year.
Couldn't really hear for two days due to the swelling before I got antibiotics, and it felt pretty similar to what you described.
I think those two days were more educational than most of school biology combined.
Really helped me understand the difference between good simulations and living that way, even if it only was until the doctor opened next Monday.
The simulation soundtracks I heard in school where as good as it gets, but not even close to the real thing.
Shall we give it up one time for Matthew. We love you Paul, and you radiate so much light and joy. But Matthew, your commitment and dedication to walking this journey with Paul is so inspiring, and comforting. Best wishes to you both ❤️
It became so much more dificult to see when the static came in.
Exactly.... it was much harder to focus on the tunnel vision!
That's also cuz the bitrate of the video went down
Seeing so much content from these two is very surreal for me. I had an accident as a child and was (to what family/doctors have said) completely blind total darkness. I was going through therapy for a few months and then my vision came back 20/20. I always think about how different my life would've been had my sight not come back.
So I've always had total respect and am In awe with visually impaired people because it was almost me. Not to sound like it's something I escaped but its hard to think about "what could've been" when it seemed so short lived. I love this channel and always await more content. It makes me happy :)
Oh wow that has to be such a unique experience.
It would be really cool to hear from you two on your tips to making a relationship work (interabled or not)-it seems like you have such a strong and healthy relationship so i think everyone would really value your advice!
I’ve felt so alone since going blind and it’s been so hard to describe what I can see when people ask. I’m glad I’m not alone in describing my vision as like an old box tv that is fuzzy that you would slap the side of to make clear except that I can’t slap my head and make it better lol. Since finding you guys a week or so ago I feel less alone and that there are people who understand what it’s like to be blind. Thank you Paul for being so open and thank you Matthew for being so understanding and helping share what it’s like for Paul but also what it’s like for you as his husband. I gave up on my hopes for a husband and a family when I went blind at 22 but now a little hope has been restored. Thank you for sharing! ❤
Forth I love the “MATTHEW!!“
As someone who’s consumed a lot of media, blindness (as Paul and Matthew did) is very misrepresented and our only frame of reference is absolute blindness.
So true.... hopefully that will begin to change! When it comes to disabilities there is no black or white... many nuances!
1Million likes,....♥️👊👍
I also follow Molly Burke. She has to speak French to her guide dog. He does not warn her if she will hit her head. She sees light and bright colors. It fun to follow both of you. I hope you see this.
Thank you Paul for such a good explanation of what being legally blind means. My family and a couple optometrists have called me legally blind but since my glasses correct to 20/60 I am not. I definitely like partially sighted and I think I will use that from now on.
I feel like we’d be SO MUCH better off as a civilization if everyone would get onboard with the fact that when it comes to human beings, pretty much EVERYTHING is on a spectrum!!
People love their labels, and black-and-white terms, but at the end of the day, humans are more nuanced than that! ❤️🧡💛💚💙💜
Wow what a simulation of the narrow scope. Thank you for sharing and enlightening us
Thanks for watching!!
Oh the static is like when I get a sudden wave of lightheadedness! Just black and silver flecks floating around my vision as my head suddenly goes light.
I think my first understanding that blindness isn’t just complete darkness was actually watching the tv series Daredevil. The specific episode is when he describes what he sees as “a world on fire”, that’s when I realised that you can still sort of see when you’re blind, and that different people are at different levels.
That's so cool! I didn't realize he described it that way.... a very cool and accurate way to describe it. Now I need to see the show... PS, Paul's guide dog, Mr Maple, has a brother (also a working guide dog) named Murdock (named after Daredevil)
@@MatthewandPaulOfficial oh that’s awesome!! I’ve become quite obsessed with Daredevil haha
Love how chipper you are, Paul, no matter what you’re talking about. Even when you’re describing the difficulties you face with your blindness. What a positive ray of sunshine you are!
It's really great that you share your experiences and help other people! You two have my utmost respect! Keep up the good work, I think it's great, thank you very much for that! 😍💛🙏
Thanks Nico!!
Fitness coach , to make a living !
I knew an old lady that refused to admit she was blind because she could still see a tiny bit on the left side of her left eye and she could see light. She refused anything if you said it could benefit her with her loss of eyesight. For example she only started listening to audio books when I started and told her how much I loved it. She loved them and couldn't have enough for 3 months then suddenly wouldn't have anything to do with them. Turns out someone make a remark to her about how helpful audio books are for blind people.
Thank you so much of this video! That's totally true, that people think blindness is kind of on/off situation. I have also RP, I still have a nice big "tunnel" left (about the size of a toilet paper roll hole). I have been using a white cane actively now for few yeqrs and still feel like a fraud sometimes. It helps me move so much better and with more confidence, but I do see other peoples confusion when I for example use my phone in public! Im trying not to let it afgect me. I just got a new, longer cane to use with heels, an I bought some sticker "diamonds" to make it bling😊 keep on the good work of educating people about the blind community!❤ Greetings from Finland!
If he truly love you, of course he will remember everything about u, what u say etc.. Even the small little things, he will definitely wiil remember.. 😍
That's LOVE 😍
Just read a book called Until I Saw You featuring a MC that had a fall causing his retinas to detach. It’s a pretty good book, and was happy to see representation! I had sudden hearing loss in my left ear a year and a half ago, while I regained most of my hearing back with steroid injections I still have tinnitus in my left ear which really is like the snow of hearing loss IMO. Like I can still hear, but now I have my own white noise machine in my ear 😂
Thanks, Amy -- we will. have to check out that book!
I have literally just finished this book too! ❤️
Is that the one by Diana Roman? wow, didn't expect my reading and YT worlds to collide like this lol
Love how Maple helps out Paul and how Matthew says on them.
I think you meant to say "stays on them." Just wanted to let you know in case you want to correct it Hun ❤
Excited for this one! Sucks that I’ll be in class when it premieres, but I’ll definitely watch once I’m home!
Great description job. I am French and also legally blind due to an agression . I lost all my central vision in both eyes. I work as a librarian and had made by a friend who is optician simulation glasses showing how my vision is so that people can understand how I see. We propose during holidays to people to discover different aspects of the librarian work by participating to a few tasks ( choosing books, creating animations…) . And since I integrated this team I added the activity of working with me with simulation glasses on. .. Quite interesting experience either for me as there guide and for them apparently.
It’s always nice to see videos from you two and Paul’s laughter >>>>>>>>>>>>>
Maybe this is a silly question but can you use black paper and print reverse face letters? Is that a thing people do?
Thank you so much guys, this is by far the best description of what it is like to be blind like Paul. To pick out what you can see out of all that "snow" has to be so hard. You are such good educators. Have you given much thought to doing a TED TALK ? Sending you all much love, R
I remember in elementary school my friend’s mom would drive us to school. She was at the time legally blind. By the time I was 16, she couldn’t drive anymore, but when she was a substitute teacher (small town so she did both) she was able to use one of those giant magnifiers to read the assignment. Not sure how things are for her now.
You hit the nail on the head with this video. I've got RP my self and this video is perfect explanation on how we see. Keep up the great and funny videos I love them.
Omg I love "partially sighted" and I am totally use that to describe my disability as "partially sane" now.
I had a cousin who was partially sighted. Her widower is also partially sighted and prefers that term too.
Thank you for the detailed description with showing us what it is like. I have 2 questions both for Matthew 1... what color are your eyes because I can't figure that out? 2. By having all the lights brighter does it bother your vision.
Will you ever do a video how the decreasing vision impacts your art…as a visual artist?
I think the two of you are absolutely WONDERFUL, and ADORABLE together -- to have, and SHOW, such positivity in this negative world is SO AMAZING ... and to be such POSITIVE role models is incredibly INSPIRING! I LOVE watching your videos and sometimes go back to the beginning and start all over again! ❤️
P. S. -- I didn't mean to forget Mr. Maple ... he's the DARLINGEST good boy, and just the PERFECT addition to your family ❤️
What does Matthew do for a living? He’s sooo thoughtful, conscientious, and handles complex multi-tasking with ease.
He's a musician - violin. Not sure what he does specifically, i.e. what he gets paid for.
I love the fact that they both have "biblical" names, because they are obviously both such "angels". Right now I only see them on the computer, but someday I look forward to seeing them (with Paul having full vision) in heaven!
I have a very close family member who has RP. She's had eyesight issues since birth and has been on a slow progression for years. I've been looking at videos today, trying to understand how the world looks through her eyes. Everything is so clinical, which is good, but it really means a lot to me that you guys are in such good spirits. Honestly, she is scared for what is in store for her, and although she keeps that chin up about it, inside she is afraid. Someday soon when she feels like talking about it, I'll show her your videos....because I think it will make her less afraid knowing there are others like her living pretty normal lives, plus she would LOVE you two! Keep making these videos. Believe me, it helps.
Paul's smile is so magnetically, dazzlingly radiant.
My boyfriend has RP and I'm loving this channel. I'm learning a lot from you ❤
That is awesome!
Thank you for explaining this i was like woe he really gets sround great for a blind person i always thought blindness was total darkness i had no idea most blind people have some sight but its not very well. ❤ you two are amazing people BTW
Our pleasure!
❤🏳🌈👑🎀 Love ls Love
I came looking for this video, because I just saw Paul reading in a short video and I was totally confused. I am glad this video exists. Thank you so much for clarifying what blindness really is.
Now, the description of what is seen instead of black sounds like what we all see if we rub our eyes for too long or too hard, or even when something hits our eyes. It's like the eye is recalibrating our vision or something.
WHERE’S MAPLE?
Alanis might say that it’s ironic that a blind man would have such beautiful and expressive eyes. Y’all are cute and it’s a good thing that you are amenable to sharing your experience. I like the way you support each other.
I'm not sure if this is too personal of a question, so feel free to not answer it if it isn't. But i know you said Paul's strand was like mutated since it wasn't passed down. But it is a hereditary disease. Does that mean if Paul wanted to have children in the future, would it be passed down to his children? Or no, because it was a special strand? I apologize if this is a sensitive subject or is too personal.
Thank you Matthew and Paul for explaining about Paul blindness. Please don't ever let ignorant comments tear either of you down. Just block the loser.
The black screen shots reminds me of "Secnt of a Woman" when Al Pacino says the line "I'm in the dark here!"
9:33 OMG! That's a HUGE difference from the black background.
You guys are adorbs. I'm sure this has been asked, but I'm super curious if there's any chance of gaining vision with gene therapy?
Can you name a show or movie that shows this the best? We do normally show the black out blind, but is there anything for other levels of blindness in shows or movies?
Have you ever thought of getting black paper for Matthew? For printing white ink onto?
9th! Hi, I am new to you're channel and I love your videos.
I was born with cataracts in both eyes and am also not able to get surgery due to high risk. It is predicted that I will be completely blind by the age of 30. I am now 20 years old. Right now, and I am 20% blind.
Towards the end of the stream, could you please give some advice on how to cope and do daily tasks for people who just became blind? It would mean a lot. Thanks.
i’m so sorry to hear that you’ll be blind by the age of 30 :( also, rather than this being a livestream, it’s a premiere, so it’s already been pre-recorded and edited.
Oh no, so sorry to know you are unable to get the surgury. Why are you high risk?
I love your videos and stories too. You guys are awesome and adorable. That’s True I have blear eyes vision and I’m happy that I not completely blind. I’m less ear vision. But I wearing glasses,hearing aids too. I’m happy so yeah. I’m happy I found you guys and that’s I’m following you guys.
Hearing fatigue is a real thing for deaf/HOH there is also eye fatigue from working hard to lip read I imagine that it is similar with blindness
Buy black paper to print
Just got done watching the extended video, great video guys thank you for sharing Pauls story it was incredible 😊❤ Btw Matthew the comment you made in the live chat earlier bout pauls bionic eyes too funny😂 love you guys, you guy are awesome sauce😊❤!! I can't wait for the next video or shorts😊❤!!
I'm after a matriculation so hopefully this video will make me feel better❤
Ok but these 2 i feel can brighten anyone's day! They for sure always make my day especially with Paul's "Matthew!" 😅
I got tested in 2018 after my eye operation I have 7% of sight in my left eye. My right eye does all my seeing
I've never been able to explain what I see.
This explains it quite well in a way that people can understand. Thank you!
You both are so amazing together and to watch, thank you.
My vision is somewhere around 20/450, but with glasses I can correct it to be closer to 20/20 so I dont fall into legally blind, though I would struggle living life with my vision at the level it is without my glasses.
I love the “Matthew” 😂
This is like Amazing Grace lmao. I once was blind but now I see.
They look adorable together I discovered these guys in October and I can't stop watch these every night who agrees that these guys look so cute together.
👇
I appreciate your explaining blindness and its spectrum and showing us what Paul sees. Great education for the sighted community. Plus the humor and lighthearted way you explain? Is refreshing. Thanks so much.
I have nyctalopia, night blindness. And when the lights get too low for me, my eyes(brains?) start inventing all sorts of noise (static) which prevents me from seeing. In the dark areas between the static I can see shapes and if the floor and furniture have great contrast, I can kinda estimate where I am going, but having a floor colored cat might have been a mistake... Somehow my cats have learnt this, so every time I turn the lights off, they meow if I walk at them. Or it is more like a little 'kurrr' to let me know not to step on them. The hardest part of this is trying to explain it to my friends and family, who forget I have this cause on daytime I can see 20/20 but suddenly on low light, when THEM can see still perfectly, I use my hands to scout the way. They kinda half think I pretend... Hardest part for me emotionally is I have never seen stars with my own eyes, just in pictures.
That was amazing. So educational. How does Paul make aesthetic choices being blind? Is it a case of remembering you liked the look of certain things, decor, clothes colours etc?
Paul, Matthew will always be behind the curtain!!!
just love you two, you make me laugh everyday.
what do you all do for a living? I don't think I have never heard.
you all are fantastic and love that you embrace Paul's ability and share with everyone.
You should consider buying black printer paper. If you’re using Word document or something similar, just remove the dark background from your text box before printing.
I was going to suggest this too. It is an option to at least try out
Question... Do you wear contact lenses? Because there is a video from September of this year where you do this thing about straws and your eyes are a totally different color and opacity.
These videos from this channel have given me the confidence to actually get out there and spread awareness.
I'd like to clarify a few things
1) I am visually impaired not blind
2) my left eye is significantly weaker than my right eye and has several issues with it. E.g a squint and a lazy eye.
3) I can never get laser eye surgery my eyesight due to the risks as I'm about to explain
4) I have myopia or short sightedness
I was told at the age of 17 (while asking if I could drive) that I can legally drive.
What really annoys me is that with my eyesight I am not "bad enough" to get support. And as I saw Paul's t-shirt that it's a spectrum I can agree. VI is also a spectrum. If you have anything less than average vision or have always had issues with sight you should actually receive help. But I've learnt that I'm not "bad enough " to get compensation or help for my studies. Instead my anxiety and ADHD are "bad enough " and this is something I have noticed in society as well. Especially when asking what menus say. It's like I need a cane to get help in public.
Ader watching this channel I realised that actually...I should go out and try to spread awareness.
So now, I do colour runs around my neighbourhood to support charities for the blind and visually impaired.
And in the future...I would like to actually get some form of game out there that is supportable for the blind or visually impaired (I am hoping to become a games designer)
Edit:
My right eye is
9/6
My left eye is
36/6
As of last year. (2022) I haven't yet figured out my left eyes change of prescription (right hasn't changed) left changed a little bit but idk what it is now.
Thank you guys! My friend is legally blind, but gets told she’s not, simply because glasses kind of help her vision, but it’s continuing to get worse. She doesn’t mind the blindness, but she hates when she’s told she’s not by literal high school kids who have no clue what they’re talking about, because of movies.
Lovely One !!! Always !!! With An Other Lovely One !!! Always !!! With Lovely Maple !!! Always !!!
I love you guys so much
I watch a RUclipsr called Luxaria. She watches and reacts to TV from decades ago. In one episode of America's Next Top Model, it explored a person with Retinitis Pigmentosa. That is a drop in the ocean for blind representation. Thank you both for giving more information about a different kind of blindness to what most media depicts.
I was going to ask what Paul can see on one of your short videos but decided to search your channel. This video is great and give us a better understanding of Pauls Condition :) Thanks guys ♥♥
Y’all are the most adorable couple, ❤
I ❤ learning about you guys keep shining Paul I have fewer friends who goes through this keep up with the vlogs😊
I think it’s fascinating that static can come in many forms. I’ve never thought of static as being something some people see, I’ve only really only thought of it as something some people hear. I have Tinnitus as well as some missing auditory skills so I always hear the static but I never see it. I just find it kinda crazy that one word can mean different things to different people, although i guess that’s just how words work 🤷🏼♀️
Thank you for putting out these videos. Paul's journey and view of what blindness is is so foreign to the fear and anxiety my family experienced watching my grandfather agonizingly lose his sight to macular degeneration late in life, and now having to watch my uncles and father fight the same thing even earlier than he did. I'm only 34 but my ophthalmologist is worried I have signs I might be developing it as well, and with my fibromyalgia already making focusing and seeing in low light near impossible if I stress out enough to make my optic nerve fritz out I'd be lying if I wasn't scared of the hand I've been dealt. Seeing Paul (especially with Mr. Maple) in these videos gives me hope that there can still be hope, and that I won't just be a burden to my partner and family. Seeing Matthew in these videos also helps calm the negative thoughts in my head that try and give me a reminder that my husband will be there for me, no matter what the thoughts try to tell me (especially because he would likely pull the same stunts and honestly they are what got me watching these videos). I will forever be grateful for your videos, and will continue to watch as long as you still feel comfortable sharing your lives with us.
Matthew and Paul, thanks for the video. Thank Paul for always sharing his blindness with us and Paul is so inspirational. I am getting educated about blindness and Paul. I am very new to the channel.
Ya know, I thought that these bloody eye floaters constantly floating around were bad! You make me feel super guilty for ever complaining about how poorly my eyesight is. Don't take anything for granted, anything! Lesson learned again. Thank you sir.
not even through the ads, but already hyped.
Good representations of (color) blindness are interesting af.
Especially since youtube is around and we can put it over videos, rather than showing it to kids in school on overhead projectors.
Through the ads by now, and having you two present it rather than a middle school biology teacher makes it even better
When I saw the static they Paul has to see every minute he is awake made me so sad. I can’t imagine what he is going through. My husband almost lost his vision from a retinal detachment…. But that was only one eye. Blessings to you both. 🙏🏻
I have lattice degeneration in both of my eyes. It has been such a journey. I hate it. I still have to get laser treatment. It was suppose to stop and it started a lot earlier than most people. It's odd going to a specialist and everyone was in their 70s and up and i was in my 20s when i started going.
The static made it so much harder to see
Love you guys.... ❤❤
Fifth, I love maple
It's interesting to hear about reading---the reverse contrast, large font are the same tricks I use! I'm not blind, but I am rather farsighted and wear glasses to fix it, but reading can still be difficult, especially if I'm trying to wind down for the night or want to read laying down in bed. Granted, I'm sure my font size isn't quite as large.
I have begun using dark backgrounds with white texts when i use my computer, but can tolerate my phone having white background with black texts, but i also have my phone closer to my face lol. I do need to get glasses eventually though because ive noticed how even the white words on dark will blur lately and anything on a backlit screen causes me to be unable to read it, even with squinting. So at fast food shops, i have to have my oldest son double check the screen for me. If i have been emotionally upset, i cant see anything without squinting or it will be so blurry with streaks above and below the letters. I recently moved my furniture around and sit farther from the tv now. I cant read subtitles or my discord chat that has a dark background with white letters without squinting and since my laptop is hooked to my tv due to screen being broken, i had to enlarge all of the font on the laptop so its legible for me when i have really blurry vision. It comes and goes too. I could be really blurry for 1-3 days, then nearly perfect vision again for days, weeks or months. And my kids hate it and tease me lol. I just cant afford to get glasses, so i adapt things around me instead.
I had no idea Paul was also wearing contact lenses. What were the benefits of contacts over glasses for you, and do you have to wear sunglasses?
Visual snow is so hard for me to translate to the people in my life. It's like sometimes it's one thing and sometimes it's another thing and I have no control lol
You two are just so happy and positive even about some things that others would feel truly lost in the face of. Such an inspiration, regardless of struggle.
I say I’m partially sighted and also say visually impaired bc I can see just not the way others can and glasses don’t work or I’ve just not given them time idk 😂 but I’ve learned how to explain my sight it’s like where’s Wally some things are really obvious while some are blending in to much
Awe you guys just bring me so much joy! Your love and care for each is so beautiful ❤❤❤❤
I suppose I do say I'm visually impaired, but do like the term partially sighted. I always find it hard to describe what my vision is like when people ask about it. I have had a condition since brith and had complications in my left eye which means I only see out of my right eye. In the left I do kind of see light, but it's like looking through a load of gel that has been put in my eye. The condition that I have also means that routine procedures like cataract surgery can be more risky and compplicated.