Connecting Endometriosis and Ehlers-Danlos Syndrome [CC]
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- Опубликовано: 24 июл 2024
- It's been a while and I wondered if my endometriosis and Ehlers-Danlos syndrome could possibly be connected. I decided to investigate, because if they were connected then it would help me rethink and rework my diet and overall treatment plan.But first, are endo and EDS connected?
In this video, I share what I found out.
Please remember that I am not a medical professional. I am a patient and have created this channel to share my experiences. This is all purely informative and in no way am I providing medical advice, so please consult a medical professional.
Time Stamp:
Connecting Endometriosis and Ehlers-Danlos Syndrome
00:21 - What is Ehlers-Danlos syndrome?
01:32 - How is Ehlers-Danlos syndrome diagnosed?
02:36 - Disclaimer
03:11 - What is endometriosis?
04:15 - How is endometriosis diagnosed?
04:51 - Can endometriosis be cured?
05:13 - Ablation Endometriosis Surgery
05:25 - Endometriosis Laparoscopic Excision Surgery (LAPEX)
06:13 - Are endometriosis and Ehlers-Danlos syndrome connected?
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Original article to this video:
My Experience: Connecting Endometriosis and Ehlers-Danlos Syndrome
allthingsendometriosis.com/my...
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Follow me on Social Media (and check out my website & podcast too!):
Website: allthingsendometriosis.com/
Instagram: / footprintsnoboundaries
Pinterest: / itstarot
Facebook Page: / footprintsnoboundaries
Podcast: open.spotify.com/show/2l9oX7A...
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Website Reference Links:
How Much Does Laparoscopic Endometriosis Excision Surgery Cost?allthingsendometriosis.com/ho...
My Guide: How To Prepare For Endometriosis Laparoscopic Excision Surgery:
allthingsendometriosis.com/pr...
My Guide: What To Expect After Endometriosis Excision Surgery
allthingsendometriosis.com/my...
My Experience: Treatments to Manage Ehlers-Danlos Syndrome
allthingsendometriosis.com/tr...
My Experience: Endometriosis v PCOS:
allthingsendometriosis.com/en...
Can Endometriosis Kill You?
allthingsendometriosis.com/ca...
Understanding the Connect Between Endometriosis & Fibromyalgia:
allthingsendometriosis.com/co...
My Experience: The Relation Between Endometriosis / EDS and Chronic Fatigue:
allthingsendometriosis.com/en...
Are Ehlers-Danlos Syndrome & Fibromyalgia Connected?allthingsendometriosis.com/eh...
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External Links mentioned in the video:
Ehlers-Danlos Society quote:
www.ehlers-danlos.com/what-is...
Mayo Clinic on endometriosis:www.mayoclinic.org/diseases-c...
Annie Seggara Tweet: / 1193335066740559872
Natalie Blagowidow video:
• Natalie Blagowidow - O...
Jennafer Vangde Vegte Article:
hermanwallace.com/blog/living...
NCBI study quote:
pubmed.ncbi.nlm.nih.gov/9420859/
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Disclaimer: I am not a medical professional. I am a patient and have created this platform to share my experiences. This is all purely informative and in no way am I providing medical advice. Please consult a medical professional.
#EhlersDanlosSyndrome #Endometriosis #PeriodPain #HealthAndFitness #EndometriosisDiet #PainManagement #Hypermobile #EhlersDanlosSyndrome #MentalHealth #Acceptance #EndometriosisAndEhlersDanlosSyndrome #LivingWithChronicPain #Fibromyalgia #HowToTalkToYourself #HealthBlogger #HowToTalkToADoctor #ChronicFatigue #PainRelief
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Thank you for sharing I have both aswell too. It's great to bring awareness. Xx
Thank you for stopping by Niquita. It's amazing how many women have both conditions but sometimes doctors don't know much about EDS and it all goes undiagnosed. I hope you've had experiences that have been positive.
I had severe endometriosis which led to a hysterectomy at 22. This was long before I’d ever heard of the conditions I have, which are vascular and hypermobile EDS, POTS, and MCAS. I’ve seen dozens of doctors and am still fighting to find any doctor here that knows anything about these conditions. They also caused me to wake up legally blind in a way that glasses or surgeries can’t help as well as having a subarachnoid hemorrhage on Easter Sunday of 2021.
Well FML. Thank you
I have both as well, yesterday I stumbled upon a headline saying Halsey, the singer, also has both disorders and was looking for a link, from there I got curious. Thank you for this video, I truthfully don’t understand what goes on in my own body well enough, thank you for helping me educate myself!
Thank you for taking the time out to comment and encourage.
I believe that it is very important, as a patient to educate ourselves about our conditions. It helps us to be able to work with ourselves better and advocate better with our doctors who seem over-worked and dismissive - personally I find myself having to push some doctors to get answers and then there are some who are very helpful.
Good luck on your journey.
I’m so happy I stumbled upon your channel. Everything you mention makes so much sense. I currently am diagnosed with stage 4 endo but I highly suspect I’m suffering from heds as well. Thank you for the informative videos
Hi Alicia, I'm so glad that you've found my channel helpful. It's amazing how much is connected and once that connection is made by the doctors, so many of our other symptoms begin to make sense. Thank you for taking the time out to leave a comment.
I have Endometriosis and suspected EDS type 3 as well. I found progestins made me more likely to sprain, strain and dislocate. I wonder if progesterone drop before period could be implicated in a worsening of symptoms. Anemia could also contribute.
thanks for sharing :)
Anaemia in itself makes functioning tougher especially when you have painful periods and heavy bleeding. I'm not aware of the progesterone and anaemia connection with EDS though, but then again, I'm not a specialist medical professional. But sometimes, with the way EDS is, I'm not surprised of its connection with any medical condition!!
It's interesting that you say that, because my symptoms started to get really bad during the luteal phase of my cycle(7-10 days before period) and then again during ovulation. My symptoms clustered based on my cycle.
I am so grateful for your blog and this video, both of which have been so so helpful to me on my journey. I cannot thank you enough.
Hi Lily! Thank you so much - I'm really glad that it's been helpful to you. And thank you for dropping by and leaving a comment. It encourages me to keep at it. :)
Thank you
You're welcome :)
Who is ur doctor... Pl share the details... I have been suffering for a long time...
Hi Nayana, I've done a blog post on doctors who help treat my endo - I hope it helps: allthingsendometriosis.com/doctors-treat-endometriosis-adenomyosis/
I’ve seen many people with dysautonomia and endometriosis. I am one of them. Do you know if these 2 illnesses are related? Why do they appear at the same time?
Hi Claudia, that's a great question. I did some quick research and found that women with dysuatonomia/POTS are four times more likely to have endometriosis. Why and how that is? To answer that I need to do a bit more research and I will - hopefully will make a detailed video on it.
Thank you for this question :)
@@FootprintsNoBoundariesByShruti Yes, it would be very interesting to know. My personal guess is that since dysautonomia means automatic bodily functions go out of whack, I think this might lead to the immune system getting confused and attacking endometrial cells that get into the uterus rather than clearing them up as it normally should. Of course, this is just my guess and something that makes sense to me... since I believe i did not have Endo long before I was diagnosed with dysautonomia. Maybe when my ANS started going crazy my endo started as well.