The Doctors Who Treat My Ehlers-Danlos Syndrome, POTS & Fibromyalgia [CC]

Getting diagnosed for Ehlers-Danlos syndrome, postural orthostatic tachycardia syndrome, which is POTS and conditions like fibromyalgia can be such a challenge.
After sharing information on the doctors who treat my endometriosis and adenomyosis, I continue this series with more on the doctors who treat my EDS, POTS and fibromyalgia.
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Original article to this video:
The Doctors Who Treat My Ehlers-Danlos Syndrome, POTS & Fibromyalgia:
allthingsendometriosis.com/do...
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Follow me on Social Media (and check out my website & podcast too!):
Website: allthingsendometriosis.com/
Instagram: / footprintsnoboundaries
Pinterest: / itstarot
Facebook Page: / footprintsnoboundaries
Podcast: open.spotify.com/show/2l9oX7A...
~~~~~~~~~~~References mentioned in video:
Dr Joytsna Oak:
www.kokilabenhospital.com/pro...
Physiotherapist Vaibhav Daga:
www.kokilabenhospital.com/pro...
Nutritionist Pooja Udeshi:
www.kokilabenhospital.com/pro...
Dr Gayatri Mittal:
www.thelondonhypermobilityuni...
Dr Pradeep Chopra's Webinars:
1. A webinar from April 2017: • Dr. Pradeep Chopra pr...
2. A webinar from December 2019 part 1: • Dr. Pradeep Chopra, MD...
3. A webinar from December 2019 part 2: • Dr. Pradeep Chopra, MD...
Jeannie De Bon:
jeanniedibon.com/
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Website Reference:
How I was diagnosed with Ehlers-Danlos syndrome:
Blog: allthingsendometriosis.com/jo...
Video: • How I was Diagnosed wi...
Migraine to CSF Leak Journey:
Blog: allthingsendometriosis.com/in...
Video: • From Migraine, to CSF ...
Kinesiology Taping:
Blog: allthingsendometriosis.com/us...
Video: • How To Use Kinesiology...
Treatments to manage Ehlers-Danlos syndrome:
Blog: allthingsendometriosis.com/tr...
Video: Part 1: • Treatments to Manage M...
Part 2: • Physiotherapy & Exerci...
My Diet for Endometriosis & Ehlers-Danlos Syndrome:
Blog: allthingsendometriosis.com/my...
Video: • My 6 Diet Changes for ...
My MCAS Journey: "It's Not a UTI, It's Painful Bladder Syndrome!":
Blog: allthingsendometriosis.com/mc...
Video: • My MCAS Journey: "It's...
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Disclaimer: I am not a medical professional. I am a patient and have created this platform to share my experiences. This is all purely informative and in no way am I providing medical advice. Please consult a medical professional.
#EhlersDanlosSyndrome #Fibromyalgia #POTS #Hypermobility #LivingWithEhlersDanlosSyndrome #LivingWithFibromyalgia #EDSDoctors #DoctorsEhlersDanlosSyndrome #DoctorsFibromyalgia #Dysautonomia #hypermobiltydoctors #ChronicIllness #ZebraStrong #Spoonie #EDSPhysiotherapist #EDSNutrition

[@Dulcimerist]

Thanks for sharing! I live in an isolated part of the USA, so it's been difficult to find doctors who are knowledgeable about Ehlers Danlos syndrome and its related issues. Thankfully I found a local general practitioner who has become an EDS specialist because her daughters have EDS. We've been finding research articles on the latest treatment options for POTS and other issues, and found a good combination of medications to mitigate my symptoms. It's important to have a doctor who's willing to try various options to find the best option for each individual patient, rather than using a "cookie cutter" approach for everyone.

[@FootprintsNoBoundariesByShruti]

Thank you for sharing too - once again.
EDS and POTS is so complex - but I am really glad your research is helping you get the medication and treatment you need. And yes, we need doctors who are open and willing.

[@ArchAngel435]

Shruti, you ought to consult with an ayurvedic practitioner for all your health issues. Covid has shown us that allopathy merely treats symptoms and oftentimes aggravated the condition through excessive drug protocols.

[@FootprintsNoBoundariesByShruti]

Thank you for sharing Loretta.
I was on Ayurvedic treatments for quite a while and not just went through the medicines they provided, but also the oil, herbs and heat treatment along with a whole diet change.
It wasn't something that worked for me.
It's important to realise that one-off Ayurvedic treatments won't work, it needs to be sustained, and when you're experiencing disability, and severe pain, travelling to treatment centres everyday, isn't possible - not just the cost (and it is not cheap), but the time, effort, and then be stuck without strength to get through your day when there is work and the rest of life involved.
None of this is an excuse, but merely sharing the reality.
Frankly, I'm better off making smarter everyday choices that allows me to manage my pain (such as eating well, controlled movement, light strength training, getting apt rest, listening to how my body is feeling, meditating, being mindful of the content I consume etc - and I use walking sticks, I'll use a brace whenever I need to, I get taped when I have subluxations and no, no medication for EDS - I'll take a pain killer SOS if there has been a day when I have had to push myself because of lack of choice) ...and then, that allows me to get on with life.
I hope this gives you an alternate perspective. Ayurveda works for many - and it's a beautiful way of life but for me, it wasn't a practical - I hope one day it will be :)

[@suyashji7]

Thanks for sharing 🙏

[@FootprintsNoBoundariesByShruti]

You're welcome :)