I have severe Dupuytren's Contracture in both hands, as well as Ledderhose Disease in my feet, which is the same Disease just named after a different Doctor. I am going in next month for my 6th Surgery, this time the right hand. I've had the full Palmer Fasciectomy surgery many times, and it's not that bad. Most people don't know that there is much more involved with DD. Nodules, Puckering, Knuckle pads, Nerve pain, twisting of fingers, etc. DD can also affect all the fingers, as well as the thumbs, which it is doing in my case. I am 49 and have had it for years, which cost me my Landscape Career. Surgeon's can only do so many surgeries on the hand before they can do no more, due to permanent nerve damage. I have permanent numbness with my hands that I will never get back. It's more rare in women, but women DO get it, so keep watch of your hands if your dad has it. My Mother had it and her fingers fully contracted tightly into the palm of her hands because she feared surgery to get it fixed. I am one of 100 people in the US who has donated blood samples to the National Dupuytren's Society (Founder: Charles Eaton of Florida), to hopefully find a cure through blood tests, where they examine the Bio Markers of the blood received. I hope my donation helps. Thanks for sharing your information, but there is WAY more involved than you can imagine, such as severe pain, constantly dropping and breaking items, pain with carrying items, unable to hold onto anything like grocery bags, unable to pick up heavy items, etc, etc. Thanks for the video:) ~Kevin
Kevin, thank you for such a thoughtful response! I absolutely agree, there is so much more to this disease than meets the eye. I’m so glad there are people out there doing the important research and spreading awareness and information! I loved listening to some podcasts from Dr. Eaton, his work is so crucial and I hope that eventually a cure is found, rather than just a treatment. Thank you for bringing to light some of your experiences, I am grateful for your willingness to share!
You provided lots of good information and options for those of us with Dupuytren’s Contracture. I appreciate the easy to understand comments you provided.
Nodes, thickening, on tendons in hands, likely linked to head and shoulders and all disease seems to breed in the gut. The link needs to be updated. Thank you
Thank you for uploading this video! I'm an OT student on my level 2 physical disabilities placement at a hand therapy outpatient clinic, and this video helped a lot! Just recently we got a patient come in s/p Dupuytren's contracture release, and this video certainly helped put more perspective into what i'm working with!
Ah, cool! That's awesome!! Biggest thing with dupuytren's release is not to go too aggressive with stretching and making sure the patients understand why - it can increase collagen and scar production.
great video, i had bilateral carpal tunnel surgery in June, i am now developing these bumps, is having carpal tunnel surgery related to Dupuytren, and yes my doctor said it's a sign of dupuytrens, and just to watch it.
I had hand surgery and had use of my hand after 4 to six weeks. I had the injection process, on my other hand, and it took six months😮 along w/therapy before I had good use of my hand. From my perspective, the surgery resulted in the better use of that hand versus the other. Unfortunately, I am now experiencing hard lumps in my palm and fingers, and it is only a matter time before the process repeats.
I have a very mild case, no one else in my family has it. We are of British and Finnish background. The other name for it is the Viking disease. I had the surgery a few years ago and my surgeon who is also also a board certified plastic surgeon did the surgery and you cannot see the tiny scar. I recommend the surgery. 🇨🇦
Thank you for this very helpful info. I have only just noticed a somewhat painful lump in my left palm and a little of the cord. I am a violinist and the prospect of losing function is extremely upsetting. So I want to get out ahead of it and do what I can to maintain function for as long as I can.
I broke my left wrist and had surgery 4 weeks ago, just noticed that hard nodule in center palm so this may explain what that is. PT appointment tomorrow so will ask. Thank you.
I just had surgery on my left hand, surgery on my right coming up next month. I also looked up another similar symptom that I have had on my feet for many decades "Plantar Fibroma" Seems that a lot of Dupuytren's sufferers have the same issues.
Recently I was traveling to the US.....I started to notice a very sore bump on my right hand ......just over a good inch below my third finger......just like I had a deep splinter in that area....I went on line and it fit "Dupuytren's"......I was very disapointed in what the analysis was being said about it.....then my intuition told me to use a "red lamp" for 15 minutes a day......then massage the area with tea tree oil........now with about three weeks it has almost disapeared and no soreness.........also I have felt to really massage "deeply" the oil....and also to make sure the red lamp is "warm to hotly" felt........maybe this can help others.........God Bless
Thanks a lot for great information. Really appreciated! Just wondering if it is a good idea to MASSAGE THE LUMP DIRECTLY. If so, soft one or gentle one? Thanks again.
You can do gentle massage if it helps with pain! It will not change the tissue in a positive way as it is abnormal fascia. If you are too aggressive it may actually make it worse
I am 47 y/o female from Australia and I have dupuytrens so does my father. It’s slightly painful and is worse in my left hand than my right. I massage and stretch my hands daily and so far no contractures just nodules that get hot and itchy?
I have this on my hand and I know exactly how I got it, I was opening a tight lid on a jar and felt the nerve in my hand pull right away that was over a year ago, mine is more swollen than that picture and only hurts when I try opening tight jar lids again. I now use my right hand for that lol
That’s awesome!!! Is it called xiaflex? Or is it something different?! I’ve heard of xiaflex injections...but I know there’s still a chance it can come back.
Forward Therapy yes, if you find yourself in phase 1 again after treatment I would suggest supplementing injections with SANTYL /DMSO mix topically. There is much antidotal evidence that this combination works great! The injection is better than surgery IMO. Good luck!
Unfortunately, this enzyme treatment Xiaflex, is no longer available in Australia. I had this six years ago and seems to be a very good treatment. The results were good and recovery very short. So this year I needed surgery. Three months on, it’s still a work in progress.
I was told that if they do those injections in your finger they still have to manipulate your finger which causes more scar tissue which will in turn caused the Dupuytens to return back just like you had it before
Hi I am recovering from my operation last Tuesday 5th December second time on little finger first time on ring finger.at the moment it's very painful some times. My dad had it one good thing it's my left hand I'm right handed. Just thought I would tell you. Thanks my name is Christine from North Wales uk
I have had this formore than twenty years in my left hand/foot and have had the needle manipulation several times where they end with just straightening the finger in question. And if you get the habit of just straightening your finger/s it will buy some more time before next treatment. I have had open surgery as well on my pinky and that have worked well allthough there is a little damage to the nerve but nothing I notice other than in cold weather and if i use my hand alot. Luckely I heal well after surgery and they can do again on my pinky if need be. In my foot I had surgery once about ten years ago and it seems it has slowed down there which as far as I understand happens to some people. I have deviced something that keep my fingers straight when I sleep and so far it seems to have helped but it is hard to tell yet.The device ? Just a heavy stiff pillow that lay on my hand and stop my tendency to close my hand in my sleep. Oh and the treatments are quick without pain only thing you feel is when they sedate my hand/foot. which is minor compared to what the condition does to your daily life. Well made video that hopefully can eraticate the old belief that you had to live with it.
Thanks explains a lot...I recently had an accident of cutting tendon in middle finger and undergone surgery of joining tendon. Now I can't fold my middle finger and also my nerve is stiff and very thick...Is this dupuytrens contracture or can I relief from massaging the nerve? @forward therapy
I have it in my left palm at 70 years old. It's not progressing rapidly.. I can still flatten my hand. I don't remember any family members having it. But I am of all N. Euro ancestry. Another blonde curse along with sun issues.
Hi, I'm female, with east African roots. In my early 30s. But I noticed a lump in April and almost 2 months later it is visibly larger, on the ring finger tendon (?), an inch or so below where the finger meets the palm. Does Dupuytren's grow that rapidly? When I put my palm flat on a table, the lump touches the table. It's only painful if I apply pressure around the edges. I'm a bit worried after googling it now!
I was supposed to have a simple cyst removed my palm and after the removal of the so called cyst the surgeon told me I have Dupuytens contracture now. Really upsetting because The surgeon should’ve known that I had this before he went in to remove anything from my hand. My hand was absolutely normal before this now I can’t bend my ring finger back. And it hurts every day
Sorry to hear that!! Dupuytrens can come on gradually or somewhat suddenly. I would be very gentle with it and try pain management strategies like ice or heat.
My hands both of them laterly looks swellen and gets stiff at night and morning do movement then throughout the day goes back normal what can you say , is the problem
it's not uncommon to have more swelling and stiffness in the night or mornings! usually when we're sitting still and not doing so much movement with the hands.
@@unisreddy sometimes it occurs more at the beginning of the day. it's not always consistent - sometimes it can get worse throughout the day but other times it's worse in the morning.
I had the surgery, left hand. It failed. So much scar tissue now, it's like wearing a leather glove. Loss of dexterity, hard to write my own name. In my early 70's now, nothing more can be done.
I’m so sorry to hear that! Scar tissue can be SO challenging with this type of surgery. Hopefully you have found some helpful modifications or adaptive tools to help with those tasks requiring fine motor coordination!
Thanks Kelly for making my hand famous. My brother your Uncle Jim just told me he has it as well. So the hereditary issue is there. Dad
I have severe Dupuytren's Contracture in both hands, as well as Ledderhose Disease in my feet, which is the same Disease just named after a different Doctor. I am going in next month for my 6th Surgery, this time the right hand. I've had the full Palmer Fasciectomy surgery many times, and it's not that bad. Most people don't know that there is much more involved with DD. Nodules, Puckering, Knuckle pads, Nerve pain, twisting of fingers, etc. DD can also affect all the fingers, as well as the thumbs, which it is doing in my case. I am 49 and have had it for years, which cost me my Landscape Career. Surgeon's can only do so many surgeries on the hand before they can do no more, due to permanent nerve damage. I have permanent numbness with my hands that I will never get back. It's more rare in women, but women DO get it, so keep watch of your hands if your dad has it. My Mother had it and her fingers fully contracted tightly into the palm of her hands because she feared surgery to get it fixed. I am one of 100 people in the US who has donated blood samples to the National Dupuytren's Society (Founder: Charles Eaton of Florida), to hopefully find a cure through blood tests, where they examine the Bio Markers of the blood received. I hope my donation helps. Thanks for sharing your information, but there is WAY more involved than you can imagine, such as severe pain, constantly dropping and breaking items, pain with carrying items, unable to hold onto anything like grocery bags, unable to pick up heavy items, etc, etc. Thanks for the video:)
~Kevin
Kevin, thank you for such a thoughtful response! I absolutely agree, there is so much more to this disease than meets the eye. I’m so glad there are people out there doing the important research and spreading awareness and information! I loved listening to some podcasts from Dr. Eaton, his work is so crucial and I hope that eventually a cure is found, rather than just a treatment. Thank you for bringing to light some of your experiences, I am grateful for your willingness to share!
@@ForwardTherapy You're welcome:) Have a wonderful day.
You provided lots of good information and options for those of us with Dupuytren’s Contracture. I appreciate the easy to understand comments you provided.
Thank you!! I hope it helps!! (:
Nodes, thickening, on tendons in hands, likely linked to head and shoulders and all disease seems to breed in the gut. The link needs to be updated. Thank you
Thank you for uploading this video! I'm an OT student on my level 2 physical disabilities placement at a hand therapy outpatient clinic, and this video helped a lot! Just recently we got a patient come in s/p Dupuytren's contracture release, and this video certainly helped put more perspective into what i'm working with!
Ah, cool! That's awesome!! Biggest thing with dupuytren's release is not to go too aggressive with stretching and making sure the patients understand why - it can increase collagen and scar production.
Hi Eugene did you do a case study or anything on DC?
great video, i had bilateral carpal tunnel surgery in June, i am now developing these bumps, is having carpal tunnel surgery related to Dupuytren, and yes my doctor said it's a sign of dupuytrens, and just to watch it.
Thank you for sharing, just started to see this in my hand palm...doing hand stretching daily
Be gentle! Definitely don’t be aggressive. But maintaining motion can help with symptoms!
Please be careful. Hand stretches can make it worse.
I had hand surgery and had use of my hand after 4 to six weeks. I had the injection process, on my other hand, and it took six months😮 along w/therapy before I had good use of my hand. From my perspective, the surgery resulted in the better use of that hand versus the other. Unfortunately, I am now experiencing hard lumps in my palm and fingers, and it is only a matter time before the process repeats.
I have a very mild case, no one else in my family has it. We are of British and Finnish background. The other name for it is the Viking disease. I had the surgery a few years ago and my surgeon who is also also a board certified plastic surgeon did the surgery and you cannot see the tiny scar. I recommend the surgery. 🇨🇦
That’s great!!!! Glad to hear it’s doing so well!
@@ForwardTherapy I was lucky, I have a very mild case. I would still recommend surgery. I have had no reoccurrence.
Thank you for this very helpful info. I have only just noticed a somewhat painful lump in my left palm and a little of the cord. I am a violinist and the prospect of losing function is extremely upsetting. So I want to get out ahead of it and do what I can to maintain function for as long as I can.
Yes!!! Very good to notice it early on and work to maintain function and flexibility, and manage pain!
A nice overview. I just noticed I have this in both hands. Thank you.
Thank you!!
I broke my left wrist and had surgery 4 weeks ago, just noticed that hard nodule in center palm so this may explain what that is. PT appointment tomorrow so will ask. Thank you.
Yes - mention it to them!
I just had surgery on my left hand, surgery on my right coming up next month.
I also looked up another similar symptom that I have had on my feet for many decades "Plantar Fibroma"
Seems that a lot of Dupuytren's sufferers have the same issues.
Thanks my mom just got this the other day..
darn! I hope she won't have much pain or limitation from it. Have her try some gentle stretches!
Recently I was traveling to the US.....I started to notice a very sore bump on my right hand ......just over a good inch below my third finger......just like I had a deep splinter in that area....I went on line and it fit "Dupuytren's"......I was very disapointed in what the analysis was being said about it.....then my intuition told me to use a "red lamp" for 15 minutes a day......then massage the area with tea tree oil........now with about three weeks it has almost disapeared and no soreness.........also I have felt to really massage "deeply" the oil....and also to make sure the red lamp is "warm to hotly" felt........maybe this can help others.........God Bless
Thanks a lot for great information. Really appreciated!
Just wondering if it is a good idea to MASSAGE THE LUMP DIRECTLY. If so, soft one or gentle one?
Thanks again.
You can do gentle massage if it helps with pain! It will not change the tissue in a positive way as it is abnormal fascia. If you are too aggressive it may actually make it worse
@@ForwardTherapy thanks a lot for your advice. Really appreciated!!
I am 47 y/o female from Australia and I have dupuytrens so does my father. It’s slightly painful and is worse in my left hand than my right. I massage and stretch my hands daily and so far no contractures just nodules that get hot and itchy?
I have this on my hand and I know exactly how I got it, I was opening a tight lid on a jar and felt the nerve in my hand pull right away that was over a year ago, mine is more swollen than that picture and only hurts when I try opening tight jar lids again. I now use my right hand for that lol
There are now, enzyme injections 2 treatments and it’s gone. They do them in Maryland.
That’s awesome!!! Is it called xiaflex? Or is it something different?! I’ve heard of xiaflex injections...but I know there’s still a chance it can come back.
Forward Therapy yes, if you find yourself in phase 1 again after treatment I would suggest supplementing injections with SANTYL /DMSO mix topically. There is much antidotal evidence that this combination works great! The injection is better than surgery IMO. Good luck!
The doctors I worked with in my internship used xiaflex and the results did seem good! I’m glad you’ve had a good result.
Unfortunately, this enzyme treatment Xiaflex, is no longer available in Australia.
I had this six years ago and seems to be a very good treatment. The results were good and recovery very short.
So this year I needed surgery. Three months on, it’s still a work in progress.
I was told that if they do those injections in your finger they still have to manipulate your finger which causes more scar tissue which will in turn caused the Dupuytens to return back just like you had it before
Thank you
One end of mine actually has a tunnel popped up from my palm. It had shown up all the sudden after a couple years of numbness and tingling in my palm.
Is it true that Dupuytren’s is common with people who suffer from. Diabetes.
That's a great question! I'm not sure - would like to find out.
@@ForwardTherapy I did read it somewhere but unfortunately can’t find the document now.
Hi I am recovering from my operation last Tuesday 5th December second time on little finger first time on ring finger.at the moment it's very painful some times. My dad had it one good thing it's my left hand I'm right handed. Just thought I would tell you. Thanks my name is Christine from North Wales uk
Best of luck recovering!!!!
I have had this formore than twenty years in my left hand/foot and have had the needle manipulation several times where they end with just straightening the finger in question. And if you get the habit of just straightening your finger/s it will buy some more time before next treatment. I have had open surgery as well on my pinky and that have worked well allthough there is a little damage to the nerve but nothing I notice other than in cold weather and if i use my hand alot. Luckely I heal well after surgery and they can do again on my pinky if need be. In my foot I had surgery once about ten years ago and it seems it has slowed down there which as far as I understand happens to some people. I have deviced something that keep my fingers straight when I sleep and so far it seems to have helped but it is hard to tell yet.The device ? Just a heavy stiff pillow that lay on my hand and stop my tendency to close my hand in my sleep. Oh and the treatments are quick without pain only thing you feel is when they sedate my hand/foot. which is minor compared to what the condition does to your daily life. Well made video that hopefully can eraticate the old belief that you had to live with it.
Thank you for video! I have a question: Can heavy physical exertion on the fingers and hands (rockclimbing) provoke the development of the disease?
My doctor at the Mayo Clinic in Rochester mn said it is not physical labor that causes it but genetics.
Thanks explains a lot...I recently had an accident of cutting tendon in middle finger and undergone surgery of joining tendon. Now I can't fold my middle finger and also my nerve is stiff and very thick...Is this dupuytrens contracture or can I relief from massaging the nerve? @forward therapy
I'd talk with your doctor! It's hard for me to know what's going on without seeing it.
I have it in my left palm at 70 years old. It's not progressing rapidly.. I can still flatten my hand. I don't remember any family members having it. But I am of all N. Euro ancestry. Another blonde curse along with sun issues.
Keep an eye on it! sometimes it progresses slowly and doesn't affect you functionally.
Hi, I'm female, with east African roots. In my early 30s. But I noticed a lump in April and almost 2 months later it is visibly larger, on the ring finger tendon (?), an inch or so below where the finger meets the palm. Does Dupuytren's grow that rapidly? When I put my palm flat on a table, the lump touches the table. It's only painful if I apply pressure around the edges. I'm a bit worried after googling it now!
Sometimes dupuytren's can advance quite suddenly! It could also be a tenosynovitis (trigger finger) - not sure if you've had a doctor diagnose it!
I was supposed to have a simple cyst removed my palm and after the removal of the so called cyst the surgeon told me I have Dupuytens contracture now. Really upsetting because The surgeon should’ve known that I had this before he went in to remove anything from my hand. My hand was absolutely normal before this now I can’t bend my ring finger back. And it hurts every day
Sorry to hear that!! Dupuytrens can come on gradually or somewhat suddenly. I would be very gentle with it and try pain management strategies like ice or heat.
My hands both of them laterly looks swellen and gets stiff at night and morning do movement then throughout the day goes back normal what can you say , is the problem
it's not uncommon to have more swelling and stiffness in the night or mornings! usually when we're sitting still and not doing so much movement with the hands.
Thanks for letting me know it's common
Trigger finger would it trigger all day or will it stop as the goes
@@unisreddy sometimes it occurs more at the beginning of the day. it's not always consistent - sometimes it can get worse throughout the day but other times it's worse in the morning.
I had the surgery, left hand. It failed. So much scar tissue now, it's like wearing a leather glove. Loss of dexterity, hard to write my own name. In my early 70's now, nothing more can be done.
I’m so sorry to hear that! Scar tissue can be SO challenging with this type of surgery. Hopefully you have found some helpful modifications or adaptive tools to help with those tasks requiring fine motor coordination!
But I need the cord attached.
💙
I have this after i toke my ring out
Wow no offense but you look like Darryl Hannah
Haha I don’t know who that is, is this meant to be a compliment or an insult? Hah
@@ForwardTherapy A compliment. She's an actress from the 80's and 90's, lol
Wowwww thank you 🥰🥰