What is Tardive Dyskinesia?
HTML-код
- Опубликовано: 20 июн 2021
- Tardive dyskinesia (TD) is a neurologic disorder associated with the long-term use of certain medications (dopamine receptor-blocking agents) for some types of mental illnesses, such as major depressive disorder, bipolar disorder, and schizophrenia. TD causes involuntary movements of the body such as facial-tics, rapid eye blinking, sticking out of the tongue, lip pursing, and jaw clenching. Some people experience involuntary twitching and jerking of their arms, legs, or torso.
In this video, Lauren shares her personal experience with TD, and also sits down with Dr. Leslie Citrome, a psychiatrist and Clinical Professor of Psychiatry and Behavioural Sciences at New York Medical College, and who specializes in tardive dyskinesia. A big thank you to Dr. Citrome for sharing his expertise with us!
JOIN OUR ONLINE PEER SUPPORT COMMUNITY
Join a welcoming community of your peers and find comfort in sharing your experiences. By joining our community, you can benefit from the support of others who understand what you’re going through. We offer live weekly facilitated video peer support groups and text channels to communicate about a wide range of topics. Join today and start feeling less alone with what you’re going through.
• Schizophrenia Peer Support Community: www.schizophreniapeersupport.com
• General Mental Illness Peer Support Community: www.onlinepeersupport.com
HELP SUPPORT THE CHANNEL
We depend on the support of our audience to create this valuable resource. If you have found our content helpful, please consider supporting us today. Your contribution can make a huge difference and enable us to continue providing valuable resources to those living with mental illness.
• One-time donation: donate.stripe.com/9AQ6oV5S0ef...
• Monthly donation: / livingwellwithschizoph...
MENTAL HEALTH APPAREL
Wear your support for mental health! Our t-shirts, sweaters, and mugs not only spread awareness but also help support this channel. Pick up some mental health apparel today and make a statement while making a difference.
livingwell.myspreadshop.com/
SPEAKING & CONSULTING
Looking for an expert speaker or consultant for your upcoming event or project? With years of experience and a passion for mental health advocacy, I can provide the insight and inspiration you need to make a positive impact. Visit my speaking website to learn more!
www.laurenkennedywest.com/
SOCIALS
Instagram: / livingwellwithschizoph...
TikTok: / livingwellschizophrenia
Twitter: / lwschizophrenia
Website: www.livingwellwithschizophren...
#schizophrenia #livingwellwithschizophrenia #schizoaffectivedisorder #mentalhealth #tardivedyskinesia #TDAwareness
JOIN OUR ONLINE PEER SUPPORT COMMUNITY
Schizophrenia Peer Support Community: www.schizophreniapeersupport.com
General Mental Illness Peer Support Community: www.onlinepeersupport.com
Lauren, I have been watching yr videos for quite a while and I have NEVER noticed extra blinking etc., What I do notice is being really moved by your courage, intelligence and commitment to live a good life despite these challenges. And your desire to share that with others
I never really thought anything of the blinking.
Same. I never noticed anything that's any different from other people. I guess some people are just more sensitive to noticing things like that?
You are such a beautiful person. Please ignore those who don’t understand how you have lived with this serious condition. I have Bipolar 1 and I totally stand beside you in everything you say…. Send much love and hugs, you are so courageous ❤❤❤
Where’s all the actual medical tests for these supposed mental disorders and their chemical imbalances before they give drugs causing a chemical imbalance?
I for one never noticed your ticks, more focused on your thoughtful and well presented topics!
Looks like I'll be having "the talk" with my psych soon.
I developed tartive dyskinesia when I was about 14 as the result of all kinds of psychotropics to treat bipolar type 2, they never told me what the actual drug was that caused it but I still to this day think it was lithium. I remember when I was in my teens there was about two and a half years there I couldn't even feed myself my mom didn't even trust me with a fork because my hands were shaking so bad she thought I might stab myself, she insisted on feeding me because the food would fall off of my spoon or my Fork before it could even get to my mouth my hands were shaking so bad. My legs would jerk and kick randomly and according to my mom, I would start shaking so bad in my sleep that I would fall off of my bed this is why my parents insisted on putting the Box spring under my mattress on the ground instead of on a bed frame so that when I fell out I wouldn't fall so far before I hit the ground. I still shake to this day. I can't tell you how many times I have broken bones, fingers, toes, ribs, I probably just broke my 8th rib on both sides because I just fell over onto the one part of my couch that is supported by wood. I can't even breathe in without pain. This is tardive dyskinesia and what you get to look forward to dealing with it. It's like living with Parkinson's except I have never experienced Parkinson's disease. You shake all the time you have random body movements all the time people look at you like you're a f****** monster some people look at you and shake their head other people look at you and feel bad and I am God damn sick and tired of it. I can't tell you how many times I have had a gun under my chin. But I don't do it because I have a little girl. I can't stop my body from shaking and when people ask why I am shaking so much I try to tell them but nobody knows what tardive dyskinesia is. It is so frustrating. I swear to God I hope they find a way to cure this in the future because nobody should ever have to go through this. I cry myself to sleep every night because I'm just so frustrated and I wish that I could just have a happy life but I can't remember not shaking everyday since I was in my very early teens. I can't remember a time when I didn't have a broken bone because of falling and breaking something. I can't remember the last time I was even able to hold my own dick at the bathroom. You know how undignified that is? I struggle to even keep a meaningful relationship with a woman that I love more than my own life. Because anytime intimacy occurs whether it is simply holding each other or actual physical sex I can't stop shaking. God bless her. She calls me the human vibrator. This is all because of medication. I wasn't born this way. Please, people. Listen to my story. If your kid has bipolar disorder especially type 2, please make sure that you get a second opinion before ever putting your kid on any kind of psychotropics. Take my word for it you will be saving them literally a lifetime worth of torture if you just get a second opinion. And don't ever put your kids on lithium. They will thank you for that decision later in life. I hope you all have a better life than I do. No one should have to go through this. God bless you all and I hope you all have wonderful lives and meaningful relationships. Please learn from what happened to me. Don't go down my path. You all deserve to be loved and God bless. I will be praying for all of you
Did you take an atypical antipsychotic
As a nurse, I truly appreciate your content. Thank you, and to this doctor for some great information regarding TD.
Man made disease caused with flawed medicine from flawd animal experiments kn animals that didn’t have any mental disorders - have a think about it!
I just want to say that I have a friend that I grew up with who is dealing with catatonic schizophrenia. I learned a lot for your channel about how I can help him/relate to him. He's my best friend and I don't want to lose him completely... Thank you for helping me understand.
people like you really warm my heart, you're a great friend, thank you
My cousin (also my best friend) is going through his worst state of schizopherenia until now and it is so emotionally suffocating... I found this channel just in time as well. I hope he gets better.
@@viniciuskolbe5167 Are your cousion getting better?Any improvement ?...how to stop sczophernia?
Thank you for the info on this, I never knew. I also wanted to say, your videos are so well done. The sound is so clear and the editing is seamless. This is pro-level to me. Thanks.
Tardive Diskynesia is the most scary side effect of Dopamine antagonists IMO, especially as it can become irreversible. Hopefully, science will soon discover 3rd generation antipsychotics that bring therapeutic benefits while completely eliminating the risk of certain side effects.
Unfortunately I don’t see any way you can get a potent psych drug without heavy side effects.
@@user-xy4ff5yp7b Since the exact mechanisms of action in current medication are still not fully understood, and because there are still some receptor targets (esp. sigma, various binding sides for endogenous neurotrophic agents and targets which don't even have a common name yet) that haven't specifically been evaluated in studies, there might be a chance.
Another possibility is that scientists discover a common genetic defect in people with schizophrenia and are able to develop a vaccine (mRNA technology makes it possible) that targets misfolded proteins or other malfunctioning parts of the signaling cascade (i.e. overexpressed receptors of a certain subtype). I.e. this has proven very promising in studies in some forms of dementia.
I think the greatest advances in modern medicine are yet to come.
@@Psychx_ Wow, that’s fascinating. I never knew any of that. Especially with the gene therapy. I wonder if changing those genes would alter a person’s personality too?
@@user-xy4ff5yp7b It's really more of an immune therapy than a gene therapy. All it would do is to indirectly affect neurochemical signaling or gene activity by lowering the concentration of certain proteins.
Depending on which part of the neurochemical signaling is altered, changes in personality can theoretically occur. Most likely it's gonna be something minor though - like being less afraid/uncomfortable in certain situations, having altered eating habits or starting new hobbies that somewhat align with the interests of the affected person.
Extreme changes in personality (like suddenly developing risky behaviors or a peaceful person becoming permanently angry and aggressive, a complete change in a person's interests and sense of humor, etc.) are usually associated with physical injuries to the brain (like trauma, stroke, tumors and so on) or with psychosis.
Maybe 15-20 years down the line the first medical trials with vaccines against mental illnesses start. Then we can say for sure which effects it's going to have.
TD, and other so-called side effects are all really manifestations of the same Parkinsonian effects that the drugs have. The drugs block normal neurotransmission in the brain of patients or anyone else who takes them, and this impairs thoughts, learning, emotions, and so forth.
When the patient becomes more docile, apathetic, sluggish, and so forth, this is viewed as an "improvement" in their condition. That is, the harmful effect is viewed as the beneficial effect. The whole idea behind the drugs is as wrong as the lobotomies that preceded them.
What are considered and simplified into "illnesses" are often the result of a complex of traits, and issues affecting individuals. Also, a lot of the time many things categorized as an illness are just normal stuff people have to deal with in life for which there is no easy drug cure. Oftentimes empathy can go a long way, but I think also getting people to deal with their emotions is another important aspect of it. There will never be some easy way of dealing with these things, but regardless, considering the dire state of psychiatry to date I don't think what you propose will ever happen.
I learn so much from your channel, Lauren! I've only ever heard about this from commercials, so it's eye-opening and useful to hear your experience and experience from a professional.
Thanks for sharing! This was a great and insightful interview.
Lauren, I am new to your channel. I have to say you are clearly intelligent, beautiful and a wonderful interviewer. Please don’t pay any attention to those who tease you about any movements they say are odd. I did not see anything of note, and you are doing a fantastic job on your channel. And the doctor is so good at explaining topics and making them understandable without being too simplistic. Please keep up the good work.
I’m so glad you went over this. I’m always on the watch with my son.❤️
Your vulnerability is wonderful, thank you for addressing this!
Thank you so much for bringing light to the experience of people with these illnesses ❤️
Thank you LWWS ! Feeling VERY positive and happy with this accessible information.
I never noticed any ticks. You do a wonderful job explaining Mental Health. I am a teacher and I have learned so much from you.
I looked up TD on RUclips because I saw commercials about it and didn't really know what it was, so I wanted to find out more. This video was very interesting and informative. Thank you for posting this.
Thank you for your video! Congrats on the sponsorship. I think you did it right.
I found this video really informative. Thank you for posting it!
Dear Lauren,
I have NEVER noticed anything strange about your videos in any way, shape or form. You look absolutely lovely to me and are a wonderful speaker. I have no idea what those people were talking about. Literally. No idea. I think it’s very rude too that they said something like that to you. If they were trying to be helpful, I hope they said something in a kind way to see if you noticed it. And if you did feel that you had some symptoms, I am so glad that you were able to remedy them! But I have literally never noticed anything and I have been watching you for a couple of years now! God bless you Lauren!! Blessings to Rob, your kids and extended family as well. And blessings to the doctor and all of your viewer on this channel! Best wishes for a wonderful, happy, healthy and joyful New Year!! 🙏💖
Lauren, thank you for this info! It was very helpful!
Dr. Citrome is such a great explainer!
Lauren you are a Hero!!!! You are helping so many people with your videos and your positive energy!!!!!Thank you so much ⭐️⭐️⭐️⭐️⭐️⭐️⭐️
Really excellent video! Thank you, Lauren. I did not even know there was a treatment for this!
I've been watching you for a year and I have never noticed any of these twitches. I am focusing on what you are saying. You look great on camera - no need to be self-conscious.
I have TD as a result of having been on several antipsychotics, including Risperidone and Haloperidol. I didn't even know what TD was until a psychiatrist I had pointed it out and asking me about mouth and facial tics that I hardly even noticed I was doing. I, too, blink a lot. But most of my tics are oral. I purse my lips, smack my lips, and chew on the inside of my cheeks. Some people have said/assumed I was a drug addict because of my chewing motions. 🙄 *Sigh...*
Risperidone jacked me up. My TD was in my toes luckily so I could hide it. Just kept flicking my big toe against the others all day long. Switched to Lithium and it stopped.
I also took risperdal and invega sustenna. I'm stopping the drugs since I noticed spasms in my arm .
Is TD parmenent?
That is what the cheek chewing is?
GREAT VID! SO HELPFUL /genuine
I’m a 4th year pharmacy student and my lecturer linked this video to her PowerPoint for us to watch. Just thought I’d let you know your content has a value in education from patient to practitioner level!
Thank you for this video. You are always so informative. This has helped me so much.
Thank you for your informative video. Dr Citrome's information was so helpful.
Your channel is going from strength to strength Lauren!! ❤️
Very interesting interview. Well done 👏 I've learned a lot.
Thank you so much for this video. I used to work in a group home with teens and there was a young man who had schizo affective disorder. He had ALL of those symptoms but was dx'ed with tourettes because how they set up psychology appointments is the facility paid one psych and he came once a year, he also didn't talk to the kids, instead he only reviewed notes and talked to the "team lead" for each home.
Since that time I learned about TD and I think so often about how that young man was likely dx'ed incorrectly bc of a failed system and I hope he was able to actually talk to a psych and get dx'ed appropriately after he turned 18 and had to move.
For those of us who have suffered from Akathisia or other side effects of drugs, we share a profound responsibility to warn others. You might be the difference between someone's life or death. You'll get treated badly sometimes, but helping others escape agony or worse is well worth it!! I know unlike many I've known, I sure will stand for the whole truth!
I developed Akathisia as a result of meds, too. My psychiatrist wasn't transparent enough. I'll be warning others.
Thanks! I've had this since June non stop.
This is a very valuable video.
I can't believe people are so mean to you in the comments. You're such a kind and helpful person! I hope they don't effect you too much.
Love your videos! Thanks and keep going! ❤❤❤ You are amazing!
This is powerful thank you
Thank you. Great video. I'm still thinking you should explain things to my patients instead of me. You do it so much better.
Great informative video, thank you!
I just want to say I don’t anyone to feel self conscious about this or feel judged, there are so many people who are completely understanding of what people are going through, and tons of us have symptoms or side effects that are “invisible”. No judgement here when I see peoples quirks ☺️
People's quirks are wonderful and beautiful. It's tragic though that they are taught to hate them so much they must try to murder them with drugs which then gives them these nightmarish, humiliating, and uncanny false quirks. Your real, individual quirks are replaced by these twitching inhuman puppet impulses solely from being brain damaged by psychiatric drugs.
Symptoms I love and do not ever judge because they are human.
Side effects from these shitty behavior control drugs, I will always find to be disgusting and tragic, just as I find the practice of making people take them for to kill their real quirks.
For some dealing with side effects of medication is better than dealing with the disabling and dangerous effects of their illnesses.
Hello Lauren. I just watched your video and I would agree that your TD is very mild, I hardly noticed it at all. Thanks for the video. My story is this. All my life all I wanted to be was an actor. After the Army, I set out to pursue my dream. My pursuit landed me in Los Angeles California in the early 90's. After living in LA for about two years I started getting attention from all the right people and getting invited to all the right functions. I had worked many times as an extra and I loved it. One morning I woke up and I noticed that my lower jaw and my tongue were moving.
I could feel it, I looked in the mirror and I could even see it. This was scary. This happened two more times before I finally went to see a doctor. Unfortunately, the third time was a charm, and a bad one at that. The last two times it just stopped on its own, this time it didn't stop. Any actor will tell you that your body is your most important tool. I had also gotten sober and drug-free as well+. I lost everything.
I couldn't work anymore, those involuntary movements saw to that. I was done as an actor. I totally lost it for several years. I started drinking again and using street drugs every day. I stopped dating, and eating out and tried never to talk to anyone, ever. I lived alone and that brought on agoraphobia. I attempted suicide a few times as a result of using crack cocaine, crack seemed to make me feel better somehow but little did I know that the stuff was going to turn on me one day. My younger sister fooled me into going home to visit my Mom for Christmas. I returned to my hometown and wound up staying. I checked myself into a VA hospital and did a three-month tour. The staff treated me very well. Being in that environment helped me with the agoraphobia. As I stated earlier when I lived in LA, I met a lot of really famous people, but the famous are just people too. I had attended some AA meetings in LA and my sponsor then was a well-known musician. Out of respect for him, I will not mention his name. I saw him on television taking an award. He used to always say to me "If you can dream it, you can do it". After rehab, I had a whole new attitude.
I began to challenge myself. I joined the toste masters an organization for public speakers that helped me overcome my fear of speaking to people, I did stand-up comedy at open mike night I learned to laugh right along with those idiots who would laugh at me and lastly I took up the saxophone as a form of physical therapy. To play the sax had to develop muscle memory to position my tongue to move on command to get the right note, aside from the fact that I love sax. I still have a ways to go in recovery but as a direct result of challenging myself, I just celebrated 8 years of being clean and sober. Two years ago I got married to the most wonderful woman that I've ever met. I still don't eat out yet, we're working on it though, hey, " Rome wasn't built in a day".
We bought our first home in a small town which my friends from New York like to call Mayberry, We love it here though. All this from a guy who once spoke multiple languages, who now still struggles to speak English. I look at all of the things that changed my life for the better as a result of living with TD instead of all the things I can no longer do. Anyway, I hope that my little story can help somebody somehow. Thanks for the read. By the way, If you'd like to hear me play, here's a link, enjoy. The song is called "God Has Smiled on Me"
ruclips.net/video/EF6dUMIugwM/видео.htmlsi=CjtmRvxA9y321Wwr
OMG. I just wanted to let you know that you are an incredible spokesperson, and I haven't noticed the symptoms you described. If people were watching your videos that closely, I suspect it was because of your beauty rather than your tics.
I noticed the "lip-smacking" more in your first video than in any other. In fact, I had attributed it to being nerves, and that's why it's gone away- you've become more comfortable with this. That said, and this is going to sound really weird, but your voice and the occasional soft lip-smacking give me such ASMR tingles!
Shopping at 10pm sounds better than yet another pill but to each his own
Congrats on getting A sponsor! I took Seriquil for A while and knew it was A risk. I take Klonapin and gabapentin instead now. I don't have schizophrenia I have ASD, SAD and depression.
I've never heard a doctor say that the person receiving treatment was important. Thank you, Dr.
This was so informative! Side note but I also love your dress!
Thanks for this.
First time viewer here. This video was outstanding! You are very articulate and seem to give off “good person vibes.” I don’t know anything about your experience with schizoaffective disorder but if it was/is anything remotely close to what my daughter goes through then you bring tremendous hope. She’s 15 and has been diagnosed with autism and bipolar since age 7, approximately. However, psychosis has slowly but steadily took over as the most problematic of the three. She’s been at a mental institute for three months and they are very close to finalizing her diagnoses. They gave me a heads up yesterday they are leaning heavily towards autism AND schizoaffective disorder. I don’t care what they call it, I just want to know how to treat it so my baby girl can get at least some joy out of life. She has already been on several antipsychotics in her life. She already has akathisia so I am very concerned about Tardive dyskinesia.
L
Thanks for sharing. I’ve never heard of those terms.
I've had Tardive Dyskinesia for many years, and mine is combined with clinical OCD. Not fun. Thanks, Lauren, for another good video. Very informative.
Thank you, this was very informative for me also. I am very happy that psychiatric treatment is so much more advanced nowadays. I am an anaesthetist from Sveden, during my education (35? Years ago) I met an old family doctor who told me then older chronic psychiatric patients in asylums who never had treatment had Parkinsonistic like stiffness and delayed movements, like their dopamine system was burned out.
I remember that. I am so happy that ppl with mental illness get better treatment and can live a fulfilled life. And sadly that’s not the case for hundreds of thousands of mentally ill people in developing countries.
I wanted to thankyou so much for your series..this is very helpful for family members...and medical people. In the United States Walmart has a formulary... medications in the same family that have gone off patent go down to five dollars.
Thank you, very useful information!
Hi Claudia, I'd need your advice on this. Can we talk please?
I ended up with both vocal and motor tics resembling Tourettes. There's another tardive disorder called Tardive Tourettism and it is less common. Makes me really self conscious with making noises too.
Thank you for raising awareness and not giving up on making videos. I know it can be difficult to live with both.
My son has the same thing. He also laughs uncontrollably. He has not been successful w medication to control it.
Really helpful and great examples maybe now we can think allot diffrent when we see people with this in daily street life .
Excessive blinking?! Wow, some people sure notice odd stuff, maybe they need more interesting hobbies? It's not something I ever noticed Lauren. Hope you and Rob and kids doing well xx
Lol great point- im sure it’s one of those symptoms the person suffering notices more than anyone else
So true
Sometimes the blinking can be really hard and quick. My son had that from an antipsychotic med. People commented because they were concerned--- at least that's what they said.
Why get so aggressive about it? They pointed out something she should have been noticing anyways
No.
Like you can't sit still. And even if you foce yourself to sit still, you will start blinking out of control.
Your so clueless.
Very good video!
Hi Lauren, do you have any thoughts about the recently developed Ipseity Disturbance Model? It was developed as a way to more fully explain the way Schizophrenia develops and how it and other disorders on the Schizophrenia spectrum (e.g. Schizotypal Personality Disorder and Schizoid Personality Disorder) all have a common origin and share many symptoms even when they all differ drastically from each other in how they manifest.
I've watched lots of Lauren's videos and never noticed the symptoms. I guess a few people did, but her level of TD doesn't seem like something that's all that obvious.
My brother who died of a form of toxic overdose on Resperdal cycling repeats of varieties of anti-psychotics and self medicating with the in house drug. He hadn't taken a heavy lethal dose. And he used blister packs) at age 45 in 2001 was on the old school doses as we're his friends from the late 70s on. Ticks were neck jerks and unable to move the neck to the left, blinking and facial freezing, grimacing. It was like " let me reset you to not only stigma but letting you know you are a complete monster".
An other grate video Loren I love the way you say NAMI Maryland.
I used to have the shakes pretty bad.(TD) is still something I deal with but I'm addressing my neurological health.
However I'm not in the practice of pushing people to not to take meds or ignore the advice of there doctor.
But the dopamine hypothesis was written before we knew about the the gut biome effects on dopamine production. just so you know..your a remodel meny of us. having a conversation about medication side effects, involuntary movements with out discussing action potentials or how gates/channels can spontaneously open when theres a celluler miss communication. Do to what i can only describe as pent up cemical energy in the nerves system trying to go upstream to tell the some one in HPA axis that it hadn't resolve the problem becausei cannot escape the hallucinations. All in group jokes aside. leaving out an important observation of how and why your body moves is a bit of a disservice dont you think loren we are developmentally impaired bot stupid. schizophrenic persons have arousal issues do to issues abnormalities in basil ganglia
This probably also leads to the limbic system twisted sinaps do to how the flow rate of a system like the brain can develop when it fluctuates so wildly. but anyway I have found that my schizophrenic health stems from understanding how the body works and as different symptoms occur understanding the symptoms sorce and how to remedy it in healthy way allows me to live medicine free. of course the amount of time I have invested in understanding these systems makes it less practical of a treatment options but allows me to living well with schizophrenia 😉 much love
Hello. I am glad to see you address tardive dyskinesia. I have taken typical and atypical antipsychotics since diag of schizophrenia in 1975. I have had TD Very bad, and i never thought there would be a "cure" for it. I am making videos documenting the titration on Austedo XR for it right now. I thought i had a RUclips channel, however, i cannot find all of my videos from searching my name on RUclips's search. Idk there, but I do have series of schizophrenia videos on RUclips not all are on Facebook, the updates for my practitioner. She gauges my tremors and involuntary movements and reconstitution of my nervous system damage done by 48 years of antipsychotics. Thank you!
Wow your hitting every topic
I suffer from TD, I watched your video, i appreciate your commitment and effort, now i'm in love with you LOL
Thank you
Wow...no one talks about this!! I had this problem when I was on Abilify. I remember when it first happened 8 months after I started the medicine, my facial muscles would freeze like a slack mouth, or my eyes would only be able to look up. It was painful, scary, and embarrassing. I had to take Cogentin it did nothing to help. I am so lucky that I was able to one day get a better voice to get my needs met. I just dealt with those symptoms for years.
thank you.
Thanks so much for this. I just went from 400 to 500 mg of seroquel and my face above my right jaw keeps twitching and I was freaking out. This helps feel better to be informed.
Sorry this is unrelated but your video quality is *chefs kiss*
Hi I'm Tabitha Howard and I am 34 years old. I just found out that I have tardive dyskinesia and I was very surprised about having it. My mom says I annoy her with my ticks. Thank u so much for this video, I get very self conscious about it.
There is a medication which causes the tardive dyskensia. I can't remember its name but look into meds, especially ones not prescribed before. The tardive dyskensia might not stop when the med is stopped, so best avoid it if possible.
My father took clonazepam for several years while I was living with him and had severe tardive dyskinesia. For the longest time I thought I was simply making him uncomfortable but when I learned what medicine he was taking I realized why he had so many ticks (especially shrugging his shoulders). When I was a teenager I was not on any meds but I had serious td ticks around my mouth and eye brows due to anxiety... it’s fascinating stuff but also terrifying to me. I could see people’s faces change as I would interact with them and begin to feel anxious giving me ticks... feels bad man. But now that I am taking several psych meds for mental illness I have no ticks?! It’s weird. Thanks for the informative video Lauren!
I’ve also had intense tremors in my hands since puberty... but I’ve noticed lately that is greatly reduced when I feel less stress
Meditation helps a ton with my tremors as well :) if anyone reading this is interested in learning meditation techniques check out the retreats at city of ten thousand Buddha’s in Eukiah CA
After watching this I feel blessed to only have this in my hands and fingers
Huh lol no blessed
TD has terrified me for awhile because not a single physician told me what it was, or to look out for it when I started antipsychotic medication. I was totally unaware my jerky movements were a result of the meds! I was unable to drive for awhile, my legs would kick out at random times, I’d scrunch up my face, would blink really hard. Now I’m trying lamictal which is a shame because the antipsychotic medication treated my bipolar more effectively but I just don’t feel good when I literally can’t sleep because my muscles are tending so hard so frequently.
I’m glad that you are spreading awareness, I just can’t believe that the first time I heard about TD it was on Google not from my doctor.
they never even care... its so sad.
don't worry mate. I didn't even notice the blinking. my experience with this is my toes now feet are always having shaky ticks. im 41 was diagnosed at 18. life has been a challenge but you can learn a lot from trauma. everyone has it. some more than others. I knew a woman who was. ..... well thinking about it and hearing her friendly voice or hylutionation in my head or maybe just emphasising with her it's not my story to tell but was horrific. empathy is one reason I feel im blessed as a scitzoaffective sufferer or as I like to think survivor. thanks for the vids. they help so many people like myself. but if things get too hard within you ....pleaase look after little Lauren. she's in there and is so important.
I also have TD, is it true that discontinuation of medication could return you to normal?
I just got diagnosed with Tardive Dyskinesia even though I've been dealing with symptoms of it for over a year and went to the hospital for it multiple times. I got put on DULoxetine for my body issues (caused by my HEDS) and it caused the TD. I'm glad to find this video though, since it seems like there's not a whole lot of information on it that I can find?
I have so much experience with TD and oh my god it sucks. I'm taking Artane for it which helps but doesn't take it away fully. thanks for the educational video
you should devote much more time to these movement disorders and interview many patients about their medication regiments.
also, multiple diagnoses e.g. SZA, ADDHD, PTSD, ASD, GAD/SAD, BPD etc. and how these patients manage these comorbidities.
I developed abnormal movements after withdrawing from sertraline, an ssri. I was on the drug for only 3 days at a dose of 50mg daily so I figured it was okay to quit cold-turkey. The symptoms got severe at one point when I was doubled over because of torso jerking. At one point, I randomly felt so weak I just let myself fall to the floor and just stayed there for a while. (I should also point out that I'm getting nausea and headache which might be other withdrawal symptoms, but I had those regularly before taking sertraline).
For the most part, when I'm occupied, I don't have the symptoms, but when I'm not, they come back as neck and arm twitches.
I think one of the most interesting things is that the fdacial dyskinesia mentioned, where you face just adopts one position for a while, is something I've had for a couple years, way before ever taking sertraline. I've put it down to autism as I am autistic, but now I'm wondering if it couple be something else.
I have a 68 year old neighbor with TD and she has a long tongue that constantly goes in and out of her mouth. Some 11 years ago when my daughter first became mentally ill some psych ward doc prescribed her a drug with TD side effects and we got her off that quickly. When there are alternative meds available, no doctor should ever be prescribing a psych drug with TD as a predominant potential side effect.
Every AP cause TD given enough time, unfortunately. Vast majority of patients older than 50 or 60 have TD because of the cumulative effect of taking AP for years.
Yeah it's the anti psychotics blocking dopamine to the basal ganglia causing cumulative damage over time and the longer your on them the worse it gets and dopamine super sensitivity to worry about if you do try to come of them
Psychiatrists are either evil or extremely misinformed.
That's interesting about the fast blinking. I used to get that quite a bit when I was younger. Doctors told me it was an allergy thing. I don't think it's a medication thing because I've never been on antipsychotics and I have always had those ticks that where given as examples.
shes so pretty !!!
Love you Lauren ❤❤❤❤❤❤❤❤❤❤❤❤❤
This is true I've been on different antipsychotic medication and most of all of them I've had TD. What is the next step of treatment without take side effects tablets to manage the TD?
I’m on cogentin daily. It has helped immensely, so I guess I’m not experiencing TD like I had thought. Very interesting !!
Hi Ella, how can I reach to you? I'd need your advice on this.
I feel my mom has this she's got constant ( side to side ) jaw movement even when she speaks, she's also on anti depression medication. I have not had an official diagnosis as yet but her symptoms are lining up, I feel that this is causing long term damage that may lead to stuff like TMJ, my question would be who is best in the medical field to give such a diagnosis?
Thanks
I definitely have the delayed and late onset almost constant blinking and the facial grimacy more so after I've had some nerve damage during neck surgery and low back surgery and especially oral surgery including removal of all my teeth by the VA and grinding and scraping of the jawbone and leaving me without teeth or dentures. I thought it got worse after that. The thing is I didn't know how bad it was until I looked at my wedding video and I was embarrassed to death. I have never taken an antipsychotic medication for more than one to two days and have been on benzodiazepine for over 30 years. I have never been diagnosed with tourette's either but I can remember my twitches sometimes under stress at school and no without any support system whatsoever it's worse than ever. Sometimes I feel like I'm going to break my jaw. I can't get a health care provider to believe in me enough to do more in-depth study of my problem. After watching your videos I wonder if I do have schizo type disorder.
Hi Lauren, could you please give doctor’s information, so I can get consultation with him.
Just know. I think your vlogs are great.
I would never be rude to you. X
Thank you for your video! I am also among those who never noticed any TD in you, and I am sorry that you felt self-conscious about it. I have a question: what is the difference between tardive dyskinesia and akathisia? I am a bit confused. Thanks in advance!
And the difference between those and dystonia. Apparently different antidepressants can cause different ones of these three issues, but they all kinda sound the same...
please do consider making a video about bpd. I'm struggling with my relationship with everyone
As someone who lives with bpd it's common to struggle in relationships.
@@tsulehisanvhisystem9352 Is there no therapy or,counselling?
@@aaymathebest4705 Thereis but finding it and affording it are challenging as those that live with bpd are discriminated against and denied treatment because they're "high risk" or at least that's what I was told.
I experienced involuntary biting of my tongue and involuntary night jerks in the past on certain anti-psychotics in the past. I'm not sure if this was TD or drug induced parkinsonism.
In the last year and a half I have not experienced this on my new medication.
I ended up developing this which kind of sucks cause one of the channels I do interviews for korean adoptees and I am very conscious of it. From my perspective it looks really stupid. Sometimes I don't even realize I am doing it. I am not sure but lately in later videos which are 1.5 to 2 hours long I don't see it occur as much. I know there are drugs that treat this but I never wanted to put myself on more drugs. I am thinking the culprit is my latuda at the highest dose of 120 mgs it works wonders but I am beginning to think the high dose is causing TD. Anyways I appreciate this video. I have bipolar disorder and I upload various mental health content as well.
Can you reverse supersensitivity by giving a dopamine agonist? It should be able to reverse it by downregulating the receptor and return the sensitivity to the baseline level? Although it would make the psychotic symptoms worse initally. Is that beeing tested in animal models?
We all love you
I have TD on my tongue, it moves so much my tongue is so sore from hitting and rubbing my teeth. I am on ingrezza 80 mg.
This is the only think I have taken and doesn’t seem to work well. What other meds can be taken? Thank you
i use bexol and olimelt for schizophrenia treatment can these types of medicine have side effects