Oh wow, in all my research, I never heard anyone say that PANS could be caused by RSV. That really resonated. My son developed all those symptoms directly after a bout with RSV. It took me SO LONG to even figure out that he had P/P because it was always mentioned alongside strep.
Because the nervous system is so interconnected to immune function, specifically the Vagus Nerve... things can easily go both ways where neuro/dysautonomia components can be triggered and made worse by any viral (or bacterial) infection and immune challenge! The key is to always address the foundational neurological dysfunction and dysautonomia first and foremost!
My daughter developed PANDAS at age 3. It took over 4 years before it was "correctly" diagnosed. Since our insurance refuses to acknowledge its as a real illness, we went with the homeopathic route, as recommended by a doctor we meet with on zoom once a month - paid out of pocket. She is 11 now and with the treatment I'd say she's 85-90% improved. The first 6 months alone saw about a 50% improvement in the intensity and duration of her "flare-ups". I'm not saying use homeopathic remedies, because every situation is different, but it did work for us.
LOVE that you saw results! Sadly yes, so many neurological conditions and especially PANDAS are completely missed (and then some) by the conventional pediatrician and medical system.
@@inexcelsisdeo8475At first it was Nux-Vomica, now she's on Chamomilla. A certain dosage diluted in water. They customized it based on her specific symptoms because apparently there's dozens of options. We'd check in every month on zoom to report any changes. They'd up the dose anytime it seemed she'd plateaued. It's simple over the counter stuff but the results have been great. Her "flare-ups" last minutes instead of days or weeks, and with far less intensity
The problem is Very few docs will correlate the massive pediatric vaccine schedule with dysregulation of the immune system, and I. Turn not being able to clear infections….. leading to PANS. If left untreated, this eventually develops into psychosis
That's why we call it the "Perfect Storm" -- so many things are simply TOO MUCH and contribute to the onslaught, overload, dysregulation, and continued stacking of issues later on in life! Thankfully there are docs who KNOW and can help get the job of healing and staying healthy going forward done for families!
Our nine-year-old son was diagnosed with PANS back in January of this year after he started having wild episodes around bedtime where he seemed drunk, out of control, and like he'd been possessed. He has been on an antibiotic since then, and his mycoplasma pneumoniae antibody numbers are coming down, albeit very slowly. We're hoping the majority of the symptoms subside once his numbers are low enough.
So glad you've found out what it is and have a plan in motion to bring those down! Is there a protocol in play to help support his body and neuro-immune system to keep those numbers down on it's own after the Abx are done? And to rebuild the gut + microbiome!?!
He takes Florastor and Interfase for his gut, but of course due to his condition and autism/ADHD, he is a very picky eater and does not get great food in his body.
My daughter is 22 and has non-verbal autism. We are just finding out after many years of meds and behavioral interventions that it is likely PANS. Her mycoplasma pneumonias is high in addition to come of her Coxsackie titers. Did your son need an MRI of the brain?
My son was diagnosed by doctor with adhd and Tourette's....could he have pandas? As im trying to find a cure for him and there's not much around Tourette's but to accept it. He never had any signs until age of 8
Oh wow, in all my research, I never heard anyone say that PANS could be caused by RSV. That really resonated.
My son developed all those symptoms directly after a bout with RSV. It took me SO LONG to even figure out that he had P/P because it was always mentioned alongside strep.
Because the nervous system is so interconnected to immune function, specifically the Vagus Nerve... things can easily go both ways where neuro/dysautonomia components can be triggered and made worse by any viral (or bacterial) infection and immune challenge! The key is to always address the foundational neurological dysfunction and dysautonomia first and foremost!
My daughter developed PANDAS at age 3. It took over 4 years before it was "correctly" diagnosed. Since our insurance refuses to acknowledge its as a real illness, we went with the homeopathic route, as recommended by a doctor we meet with on zoom once a month - paid out of pocket.
She is 11 now and with the treatment I'd say she's 85-90% improved. The first 6 months alone saw about a 50% improvement in the intensity and duration of her "flare-ups". I'm not saying use homeopathic remedies, because every situation is different, but it did work for us.
Hi can you share details whom you saw?
LOVE that you saw results! Sadly yes, so many neurological conditions and especially PANDAS are completely missed (and then some) by the conventional pediatrician and medical system.
WHAT IS THE TREAMENT??
@@inexcelsisdeo8475At first it was Nux-Vomica, now she's on Chamomilla. A certain dosage diluted in water. They customized it based on her specific symptoms because apparently there's dozens of options. We'd check in every month on zoom to report any changes. They'd up the dose anytime it seemed she'd plateaued.
It's simple over the counter stuff but the results have been great. Her "flare-ups" last minutes instead of days or weeks, and with far less intensity
that was so interesting and cool!
The problem is Very few docs will correlate the massive pediatric vaccine schedule with dysregulation of the immune system, and I. Turn not being able to clear infections….. leading to PANS. If left untreated, this eventually develops into psychosis
That's why we call it the "Perfect Storm" -- so many things are simply TOO MUCH and contribute to the onslaught, overload, dysregulation, and continued stacking of issues later on in life! Thankfully there are docs who KNOW and can help get the job of healing and staying healthy going forward done for families!
Our nine-year-old son was diagnosed with PANS back in January of this year after he started having wild episodes around bedtime where he seemed drunk, out of control, and like he'd been possessed. He has been on an antibiotic since then, and his mycoplasma pneumoniae antibody numbers are coming down, albeit very slowly. We're hoping the majority of the symptoms subside once his numbers are low enough.
So glad you've found out what it is and have a plan in motion to bring those down! Is there a protocol in play to help support his body and neuro-immune system to keep those numbers down on it's own after the Abx are done? And to rebuild the gut + microbiome!?!
He takes Florastor and Interfase for his gut, but of course due to his condition and autism/ADHD, he is a very picky eater and does not get great food in his body.
My daughter is 22 and has non-verbal autism. We are just finding out after many years of meds and behavioral interventions that it is likely PANS. Her mycoplasma pneumonias is high in addition to come of her Coxsackie titers.
Did your son need an MRI of the brain?
My son was diagnosed by doctor with adhd and Tourette's....could he have pandas? As im trying to find a cure for him and there's not much around Tourette's but to accept it. He never had any signs until age of 8