Oliver's VSD surgery update: we're home! ❤️🩹
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- Опубликовано: 1 мар 2024
- If you’re new, below are two updates I made regarding Oliver’s heart if you want additional information:
Oliver’s Diagnosis: • 1 in 100: Oliver's VSD...
3 Months Post-Surgery: • Oliver Update: 2 steps...
Our son, Oliver, had open heart surgery to repair a few large holes that we discovered in his heart a month ago. He's a week post-surgery and I wanted to finally pop on here and give you guys an update on how we're doing as a family.
Thank you for all of your kindness and support through this season of our life. We couldn't have ever imagined ourselves in this situation, but we're grateful we have such a loving community of people all around the world that are loving us and holding us up through this strange season!
There have been a lot of you that have asked how you can support me and my family beyond watcing and engaging with my content! Because of your requests, I created youtube memberships for those of you that want to support additionally! These are simply a way for you to support the content I already create. Love you guys! The link to those tiers are below! ♥️
m.ruclips.net/user/sponsor_channel... 
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This is all fresh and new and you're still processing. You will heal as he heals. Today, it's all about the surgery. Tomorrow, it's 99% about the surgery and 1% about how cute he is when he smiles. And next week, it's 90% about the surgery and 10% about his poopy diapers. And by summer, it's 5% about his surgery, and 95% about him just being your healthy, happy baby.
soo perfectly captured!!
_Very_ well said.
That's a great perspective.
Thank you for sharing that beautiful perspective!❤
❤ I love this. That's a really great way to look at difficult things thank you for sharing ❤
I am a paediatric cardiologist in the UK And this was one of the most beautiful explanations of being a heart mummy I have ever heard. I have no doubt this post will help so many other parents
A cardiologist (among many others) saved my mom's life, and I am so very, very, very, grateful that there are people like you, thank you so much for all the extremely hard work you put in your whole life to do what you do. Really, thank you so much!
100 percent helped me feel validated when my son was going through this, thank you.
My 19 year old daughter had open heart surgery for her ASD/VSD at 5 months old. It was on a Wednesday and we were discharged on Saturday. Your video brought back so many feelings! We even had a similar experience in the cafeteria! She has been a swimmer since she was 8 and has zero restrictions after surgery. You got this (and so does Oliver)! I actually went back to school after the whole experience and am now a NICU RN.
Your body isn't done processing the chemicals from the first batch of emotions before another wave of big feelings hits. Give yourself some grace. Things will level out. You are a warrior.
hearing “of course” from the surgeon when you asked to hug him… that is what makes a good doctor. wow
Fear can really mess with your head. Hope he heals quickly. You are a great mom. He is lucky to have you!!
Yes. That's when I cried. ❤ I'm sure he needed it too; of all the patients he's going to work on, he had to be under so much personal pressure to give this baby a chance at a healthy life.
My obgyn hugged me so hard when I found out I was pregnant again. It really means the world having a good doctor 🥹❤
Thank you for sharing ❤ I am a Perfusionist (person who runs the bypass machine during open heart surgeries). It’s not often I get to see or think about the effects of what I get to do everyday at work on those who we are operating on. I am so appreciative of you sharing your emotions and experience throughout this. I needed this reminder of why I do what I do. Sometimes I can get tunnel minded and often don’t remember the effect we are having. I love getting to help families like yours ❤ Hoping Oliver continues to get stronger every day!!
Thank you so much for all you do for us heart patients! I’m 31 but had 2 open heart surgeries when I was 24 and 25 and will need more throughout my life. You are a blessing ♥️
❤❤❤❤❤❤❤
Thank you for all you do! ❤
I didn't even know that was a specific occupation. Is a perfusionist trained as a nurse? Something else? Thanks for playing a special part of lifesaving surgery.
You’re amazing, thank you for caring for people who need the extra help 😎🙏🏽
So happy to hear Oliver is going to be okay. Sending Big Hugs from the Hobbit Hole. ♥♥♥
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I love your art! Specially of women. ❤ glad you know and love Elyse too! 😊❤
Scott?? Wasn't expecting to see you here, but i love seeing your empathy
Such wonderful news! Prayers continue for Oliver's uncomplicated healing!!! And for you guys to get the calm center of life back in your home, and nervous systems!❤
You were stressed over this for so long, your body needs a little time to adjust to being happy and relaxed. Once you get some good sleep, you will hopefully lose the sadness. I am so glad he is doing well.
Words cannot describe how thankful I am to you for this video, but I will try. When you said that you were "gaslighting yourself" I just broke down. I had open heart surgery at 50 for a double bypass. You explaining how you feel and the back and forth of your emotions was exactly what I have been going through. I have never heard anyone explain it like you did and didn't realize that this is what I was doing to myself. I haven't quite been able to forgive myself for al l the trauma I caused. I want you to know you are not alone. PTSD is real and manifests its self in really strange ways. You will get through this and so will I. Love to you and your family. Oliver is so lucky to have you.
I saw your Pumonary Hypertension binder . Our daugher was diagnosed at 5 months old and she is now 10 years old. If you ever have questions, I am happy to help. PH is really rare. From one cardiac mom to another you are doing an AMAZING job!
Else and Jonas, I was born I'm 1987. I was born healthy but started getting sick at 6 months old. Noone knew why. But when I was 4 years old, after a horrible few days, I was diagnosed with an ASVD and Pulmonary Arterial Hypertension. I am now 37 years old. I lived a long life and now I'm being told I need a heart and lung transplant.
Your little Oliver is what we in the PAH/PH community call a PHighter. Little babies are resilient. Your little man is no exception!!
Woah why would you make them worry for their baby’s future like that? Like I know there’s a hopeful message attached, but that’s…. They’re already facing such a long recovery and so much uncertainty.
@@maddiedoesntknoI think the point was that Oliver won't be needing any transplants.
And reassuring Elyse & Jonas that Oliver has a rosy future as a healthy little boy, thanks to their recent trauma (of Oliver's life-saving surgery).
Oliver’s VSD was caught fairly early and medical science has brought things like various heart surgeries miles forward in even relatively short decades. There is lots of hope for him ❤
@@maddiedoesntknoThis is a " YES, - AND" sort of acknowledgement. The difference is technology and medical advances, true. Outcomes may vary, and probably have improved for kids-these-days. Having surgery earlier saves lives while lessening damage over time, AND being a congenital heart patient * is a lifelong health factor to consider. ( I also was born with AVSD, atrioventricular septal defect, and my parents learned early, but the doctors said it was safer to wait till kids were bigger to do open heart surgery. It was patched in the 80's when I was 5. Dr.'s can now do surgery when a child is 5 *months old with more precision. That's huge. Even so, dental work, or any infections that reach the blood ARE a risk for congenital heart patients, and DO require care.) Being conscious of this is a reality. Making peace with it, just as any chronic illness, allowed me to manage it better and admit when habits might've needed changing as an adult. ( As a child, people said I was, " good as new"/ my heart was "bionic", but that overconfidence led to lots of mistakes, which could've been prevented with a more thorough understanding of what to be aware of.) ** Also, it would've been good to know earlier that neurodivergence and migraines are often co-occuring genetically/ and/ or due to circulation for people with these conditions, but now that I know, it feels less frustrating, just part of the package.
From a pediatric cvicu nurse, you are doing amazing. Thank you for sharing when you didn’t have to and spreading awareness to CHD.
The emotional let down is enough to make you feel like you’re spinning in circles to make sense of what just happened. It’s a massive experience that takes its role on your body. Feel your feels. And let yourself know it’s alright to feel it all. The more you’re kind to your self, accepting it all, the quicker you’re going to balance out. I’m so proud of you. You’re just so good and kind and real.
Yes, yes, this! Just because you're in a better situation now doesn't mean you have fully processed everything you've been through. You've probably not processed it at all just trying to get through it!
Sending love and prayers your way. Yep, it's a LOT of emotions. You're doing so great sharing and feeling them all. Big hugs to you and your beautiful family.
I'm so glad Oliver is doing well.
This is so well said ❤
My son had to have his entire colon removed. After weeks of being in an out of dr.’s offices and multiple hospital stays suddenly he was having surgery. It was on a Saturday and I arranged for friend to be there with us. The minute I walked into the waiting area and saw my friend, I completely collapsed in her arms. It was like finally I could let go of the emotions I was keeping locked up. What you have gone through is one of the hardest things you will ever experience. Be kind to yourself. Also consider counseling and find support groups for your son’s condition. Have a people that share your experience is priceless!!!!❤❤❤❤ My son was 18 when all this happened to him and today he’s 24.
I’ve had my entire colon removed too recrum included. I can’t imagine how scary it was to suddenly need that done!
That must have been absolutely terrifying. It’s totally normal that your body is now needing to process all of that terror. Be kind to yourself regardless of the competing thoughts going on. You’re allowed to process whatever feelings are happening in your body without needing to explain them. I’m so happy Oliver is ok. Thank you for updating us.🫂💜💜💜💜💜💜
You said the surgeon said 'of course' to the hug and Idk why I just started bawling. It took me right back to that moment for me when my babies had surgery.
I'm so glad he's doing so well. Take care of you. It hit me so hard like 2wks later.
My baby has never had surgery and I was bawling through this video too. Just so hard to live in a world where babies can have holes in their hearts, and so good to live in a world where those holes can be fixed
I've never gone through anything like this and also cried about the surgeon hug🥹❤️ powerful moment
As a mom of a child who was in a similar situation I totally relate with the feelings of up and down. My daughter had brain surgery for a tumor and all the feelings are so true You go back and forth and waiting during the surgery and after the surgery. You are so valid!!! She was almost 2. You are amazing doing so well! I remember her doctors saying you will remember more than they will and they bounce back so quick. It’s us that takes longer to bounce back. I was always waiting for the next shoe to fall! She is now 19 and has no recollection of anything but I can remember every single thing. Hugs mama. I know how you feel and know this new normal will be so good! Hugs and know you are doing amazinf
Thank you for the update. I have a coworker who has a son who went through this almost 30 years ago, and her son is 30 and is in great health. He volunteers at a camp for cardiac kids every summer, and he loves knowing that a surgeon saved his life when he was so little. So grateful for Ollie!
From a fellow mom of a CHD kid and former RN - it’s ok have ALL the feelings. It’s so SO normal to experience the emotional pendulum. Give yourself the grace to feel it all. You’ve got this! And glad to hear Oliver is on the mend!
“And that is good, so why do I feel bad” really hit home for me. My son spent 32 days in the NICU. He’s been home for 6+ months now and I still have days where I cry about the times when he wasn’t okay.
I work in a Cardiac Surgery office and your reaction to this whole thing and the conflicting feeling is 100% natural and normal. You're never alone in something like this even though it feels like you are. And thank you for sharing this with all of us! I know this will help other parents in the future.
This is so kind 😭 thank you so much for your encouragement, it means the world to me!
It’s not a surprise to those of us who have been watching you for years, but you are a great mom. ❤
"The healing is hard." Pretty much sums it up. So glad to hear that he's doing well. Many hugs!
What a gracious surgeon to let you hug him after everything went well. That probably made his day as much as it made yours. You've been through so much. I'm glad you're listening to how you're feeling and that everything turned out well. Remember to take it one day at a time and know that your family is so strong and beautiful!
I'm 53 years old and my brother's 51 and he had surgery as an infant under 6 months of age and it has a huge scar on his upper abdomen lower chest. It was a major surgery and traumatizing. I'm sure for my mom and dad, but I'm here to tell you that neither one of us think about it for a second other than my brother had a cool scar and a cool story to show and tell when we were kids. Hugs to you and the family
I just cried and cried and cried through this video. Mom of two boys- both healthy so far (19 and 9) and just being a mom… felt every second. Thank you for letting us in like this. So happy all went well. You’re such a wonderful human, Elyse.
The floating feeling about living in the happy news for a minute is everything & the cashier was a beautiful soul. Thank goodness for people like that. & a surgeon who hugs you is just so spectacular. I’m weeping. (Mother-Baby RN here btw). Thank you for the sharing.
Oh mama, my eldest had open heart for a BIG ASD in 2018 and I can understand EVERYTHING you are saying. He is now a CRAZY active, football playing, amazing 8 year old. What an adventure and a gift and a trial all in one, from one heart warrior mama to another, I can understand every emotion ❤
Thank you so, so much for sharing this with the world when you didn’t need to share or update. You don’t owe the world anything but you sure are leaving a beautiful mark on the world by sharing your vulnerability. I appreciate your honesty especially regarding your mixed feelings. It’s nice to hear people admitting the mix of emotions during a crisis, trauma, difficult time, rather than pretending and showing people what we think they want to hear. Praying for Oliver, August, you, and your husband for all around healing and strength and release. You’re doing an amazing job as advocates and parents❤
If I could “love” your comment a million times I would ❤❤. Such a beautiful way to say thank you for the update despite “us” not being owed anything while also acknowledging her rawness and just genuineness is why we love her and her family both so much! We should all live JUST to leave a beautiful mark on the world. ❤Much love from another “unique random internet” stranger who wishes to pass on some love.
The flip flopping back and forth you’re explaining, I’ve never been able to put it into words. And it’s like WOW! Someone else has this brain too and we’re all gonna be okay because other people are functioning like me and they’re doing the damn thing too. Ugh I just love listening to your videos. Thank you. And so glad your family has moved into this next season of healing!
Mama all of these feelings make complete sense. I hope you’re giving yourself as much compassion as possible throughout all of this. I’m so happy to hear that Oliver is ok, but this transition is still so emotionally hard. It makes sense that the feelings are insanely complicated & intense. ❣️ hoping for continued good health for you & your family. 💐
These sweet people make hospital trials so much , not easy, but are a comfort.
Sure, the _sweet_ ones do. 😀
But, the callous, cold ones! You want them to die so they cannot hurt or neglect your child!
If the medical staff are all the Good kind of people, then thank God.
If they aren't, they have not just hurt the baby, but (less important) they have made the parent Hate them enough to kill them.
A human Being being driven up to that level is an injury they don't recover from, no matter how small because they can always reach that level of Rage again.
(Notice I spelled that "Hate" with a capital "H".)
But again, if the child's is harmed or helped is most important.
@@TheNoiseySpectator you're talking to someone who has medical ptsd from a stay that cause 3 extra surgeries and 2 broken bones. I had some awesome people as well but at two other hospitals.
My son had to be in the hospital for 3 weeks due to a serious and life threatening illness. At the time, I was 17 weeks pregnant with our second son.
One thing I was not prepared for was the phase you are in which is the healing at home with meds. My brain kept telling me (at the hospital) that if I could just get him home, things would be good. But you do lose the sense of security that you had at the hospital bc you don’t have anyone telling you if you’re doing things right and if your child is continuing to heal. The medicine schedule and process was grueling for us. This happened almost 3 years ago and we are just getting to the point of feeling good and “clear” in the way we talk about our son’s illness. It is overwhelming.
Just know, you are doing so good momma! You and your husband are exactly who Oliver needs on this journey. Allow yourself to feel all the feelings but just don’t live too long in the sadness.
Praying for you ALL as you heal at home.
Our grandson had the same surgery and it’s an absolute emotional wreck. The text saying he was on bypass was a moment we will never forget. The fear, joy and invasive thoughts are so hard on your body. Prayers to all of you for continued healing.
So happy that Oliver is ok. I’ve had 3 open heart surgeries one when I was 2, another at 3 and one at 22. Plus 4 other heart surgeries. I’m turning 40 this year. Oliver was in good hands. But I’ve seen the babies all hooked up to a bunch of IVs and tubes attached to them. It’s a lot! Thank you for sharing your story!
I just want to thank you for explaining anxiety in such a clear way. I understood every word and thought you shared. Your description of feelings was perfect. As a mom, a person with anxiety, and a patient… not heart… these words about gaslighting yourself touched my soul. You really do got this!!!!!
Thank you. Thank you. Thank you. I am a heart mama and I’ve felt all of these feelings a million times over and no one in my life understands. For the first time in almost 4 years I feel understood
Another cardiac mama here to say ❤❤❤
No, THIS was beautiful and so real and so appreciated. Thank you for sharing and validating the “ands” of life - scary AND beautiful.
You are SO allowed to be scared, anxious, sad, fearful...and happy. This was and IS traumatizing. I am so happy Oliver is home, I'm so happy you're all together, that doesn't mean you're not allowed to still process ALL of the emotions. You are SO strong, and amazing and a FANTASTIC mommy. ❤❤ sending so much love and all of the prayers ❤
My anxiety and PTSD are giving you a hug. This is a blessing and I pray for healing for ALL of you.
My daughter had her first OHS at 2 weeks old, she had her second OHS at 2.5 yrs old. The first surgery she was hospitalized for 36 days. For the second surgery she was in and out in like 4 days and her first 10 minutes home she laid on her belly rolling around on her freshly closed sternum trying to get a goldfish that fell under the couch. 😳 I was screaming inside but she was acting like it was a normal Tuesday. 😅 It’s insane how resilient these kids are. ❤ it is for sure an emotional rollercoaster for us parents, stay strong Mama! ❤
Not me crying, remembering handing my infant to an anesthesiologist for a surgery. As a heart patient, and the mother of twin boys who both had surgery at 6 weeks of age (not for heart) I felt every single little part of this. It is terrifying to know your baby is having any surgery, but his heart. Elyse, you're my hero. I am ever so grateful to hear of the success of Oliver's surgery.
I think your self-perceived lack of eloquence communicates well the confusing fluctuation of emotions and feelings of overwhelm. I think talking through and around your experience while trying to find the right words in itself may express what you’ve been through more fully than the perfectly crafted speech could. I don’t have kids so I can only imagine what you’re going through, but saying you were gaslighting yourself perfectly captured the way I’ve felt while loved ones were hospitalized. Your self awareness is A++. So glad Oliver’s surgery was a success. Keeping your family in my thoughts. ❤
I think you became a viral vlogger so Oliver would get like, a million prayers up to heaven ❤
SO GLAD he is OK ❤
I’m a heart mom, my guy was 6 weeks old when he had his COA repaired. Thank you for sharing your experience. It’s not easy.
He was so proud of you, the doctor! He knew he needed to be there in that moment
As a mom and a doctor I’m sending a big hug. It’s so helpful for others to see what it is like to go through this and normalize your emotions, you are a great mom.
Thinking of you! I went through this as a single mama at age 19. Your feelings are completely valid and it’s great to go through all the emotions. It helps you heal a lot better! 💕 Prayers of healing and health for you all! Children’s Omaha Cardiology is amazing; their entire team is phenomenal!
I absolutely get the feeling of not being sure how to feel. My daughter had a craniotomy at 10 yrs old for a brain tumor. It was the most horrible and best experience of my life. I've never felt more helpless and thankful at the same time. She's 13 and driving us crazy now with her teenage antics. It gets better.
"We just gotta sort the pressures out." That phrase feels both literal and figurative. It's been a lot and it's okay for it to take you time to process it and feel it all. Hang in there!
As a fellow heart mom, thank you for this video! My daughter had her open heart surgery 2 years ago and I have never heard a more accurate explanation of the emotions that happened that day better than you just laid out. The conflicting emotions/expectations are debilitating and even harder because you have to just keep going for your kids. Thank you for sharing this and know that there is an army of heart moms out here who hear you, support you, and completely understand what you are saying.
Your explanation of what is going on with your son could not have been more beautiful. Your raw humanity and the depth of your love shine through and that is stunningly beautiful.
One heart mom to another you nailed it. All the emotions are so very complicated that I wasn't able to put into words or comprehend what was happening and you validated everything I've felt. Thank you for that.
AN EMOTIONAL SUPPORT COFFEE!! That is totally what my coffee everyday is for!
I was doing fine until the surgeon was not only ok with the hug but didn't let go until you did. That's amazing right there. Made me cry.
Love to you all.
I am so glad the surgery went well. Heal up little Oliver 💕
Hi, I’m an OR Nurse - like the one who sent the text. In our charting system that we use to notify the family via text we have some automation as well as prewritten commonly used texted to send ( for ease of use, quick, standardized text) that kinda gets the job done of notifying the family. But once I have the time ( because something things area crazy busy and we can’t call, then we have those text that definitely comes in clutch to send an update out) I always try to call instead- I feel like updates land better over call. And when I can’t call but can spare a min…. I custom the message( we have that option too) instead of sending the pre-populate “ the patient is doing well” “ surgery has started” . I’m glad you shared your perspective on the text message updates. Makes me feel like I’ve been something good for my patients. Because I’ve always felt them to be distance.
Ps. Going on bypass is a high stress step for cardiac procedures….so totally get the use of the prefilled text. Sometimes we get soooo busy we don’t get to update.
I think you explained it perfectly. You didn’t even get a chance to adjust to bad news before there was good news before there was bad news before there was good news. I’m sorry for the whole situation but glad it turned out as well as it did. May he continue to recover well. Modern medicine is truly a miracle.
I just have to say, it’s so refreshing to hear the good and the bad and all of your emotions you felt. It makes the rest of us feel so seen compared to most content creators who make everything seem “so perfect” all the time.
There is no easy way to explain the anxiety, fear, happiness, joy, worry, thoughts racing about the future, being present for the healing… Yeah, it’s a roller coaster. I’m very happy for you and your beautiful family! 💕
Parenthood forces us to hold two opposing emotions in the same breath. Both are true. Both are valid. Wisdom is giving them both equal space. You are relieved/grateful/ecstatic that his surgery went well and truly devastated that he had to have open heart surgery. Thank you for posting this and being vulnerable showing us both truths.
So beautifully put 💙 praise God, my child has not had any medical issues, but have felt the two opposing emotions in the same breath many times. Especially during the newborn phase.
I'm in tears. And I get it. 100%. My husband had OPS (quad) at 65 and all the feels w/Oliver are the same. "Survivor's guilt"....omgosh I didn't have those words. I needed those words. 😭😭😭😭 Personally, I don't think a f/u video is needed. This was perfect. It was enough. It was everything!!! Stay blessed ❤🙏🙏🙏
Just proves the best videos are near & dear to your heart. Beautifully said momma bear, Oliver is thriving under your parenting, no doubt!
Thank you - No one ever felt me more safe than the Cardiac surgeon we had for our son's VSD repair. When he did the pre-op appointment it was calm and peaceful. Also, I brought a puzzle and went into a bubble and didn't emote which enraged my husband for not caring about our baby in surgery. I barely finished the boarder of the 1000 piece puzzle before they called me over. You are right...there is nothing you can do to alter the goings on in the room so why stress yourself to the point of tears or panic.
“Why do I feel like it’s not good?” Because that’s your son. That’s your son that just went through a major surgery, and you’re also traumatized because there were no warning signs ahead of time. You’re probably guarding your own feelings by not letting yourself believe it’s going to be okay. That’s a valid feeling. You guys are going to find your new sense of normal soon. I’m glad everything went as well as it could. ❤️
Thank God. I'm so proud of you for processing this, even publicly. We are here with and for you. Oliver has many, many internet aunties. Love your little family 💓
Thank you so much for the update. I am sending your family all the best wishes! I just wish I could give you a hug. You are a wonderful mother.
Praise God for the wonderful doctors and nurses who treated him and for a successful surgery!
Praying for your family in recovery! ❤️🙏🏼
I learned a long time ago that you can be really happy and really sad at the same time. It sounds like you are grieving the loss of the life you thought you were going to have with your baby but also immensely grateful and happy that you still have a future that includes him in it. Sprinkle some anxiety on top and you’ve got a rollercoaster of emotions. Take care of yourself my friend ❤ healing is hard
I spent many many years in and out of the hospital as a child for surgery to get rid of / shrink the same thing. I ended up having 10 surgeries between the ages of 5 days old and 15 years old. One of my fondest memories..... one of the things I remember the most was how my mom and dad were there for me every single time without fail. My mom went with me to all of my appointments and scans and my dad was always there with me when I woke up from surgery. They are cherished memories and I am so grateful that both of my parents took care of me and supported me the best they could. Your son will remember that. He will remember how you and Jonas were there for him and took care of him, and as he grows up, he'll be so so grateful. It's really hard to be a mom now with a child myself who suffers from a medical diagnosis but with my history of being in their shoes, I have been able to take care of my child and love them through it. You guys are awesome!!
You described the emotions in a way I couldn't! Thank you for taking the time to update us! ❤
I'll never forget something that the surgeon who did my dad's kidney transplant said-- you may not have been cut open yourself, but the family goes through a different type of trauma, especially during long surgeries or serious hospital stays. Take the moments for a break or a walk or a coffee when you need them. Don't let them pile up until you're under so much weight that you can't breathe. It's okay to need those moments, to take that deep breath and think about something else for a second or two. So glad the surgery went well!!
You are so honest and real about all this. Thank you.
Thank you for sharing. I appreciate you being so transparent. I'm lifting up your family in prayer.
Love how honest and raw you are. Thank you for being who you are and talking about the hard things so others can resonate and not feel alone either! You are amazing!
Crying with relief for you! Thank you so much for sharing!
This was a PERFECT update and you articulated it all so well.❤ Thank you for sharing with us and praying for Oliver's complete healing.💙
Thank you for your openess and vulnerability and for making the important things in your family that should be private, private. I respect the heck out of you and always love your updates.
Thank you for being so honest .. it will help others who share those same feelings … Fear that our children will be ok … guilt that our children are ok when others have a different journey… Joy when we get to celebrate the wins !!! Celebrate the wins … it’s ok !!!❤❤❤❤
Omg including a quick clip of highlights? Brilliant. Thanks for sharing the latest with us and letting us cheer all of you on ❤
You are truly an amazing person. Thank you for sharing this. Prayers for Oliver’s complete healing and for peace for you.
Thank you for sharing your journey with Oliver. May prayers of healing surround your family both emotionally and physically. Blessings.
Sending you so many hugs. All of your feelings are valid.
“Healing is hard” those words will stick with me for a long time. Thanks for the update and sharing ❤
I’m so happy for you Oliver and your husband. You have been in my thoughts. Thank you for the update. 💕💕💕💕
Thank you for updating us on Oliver’s surgery and recovery. Sending love and hugs from NYC.❤
It's so generous of you to share all of this. I am so happy that your family's journey is in a positive direction. I will be sending thoughts of support and strength and peace your way.
Thank you for the good news. So many prayers were answered for your little baby boy!
You are healing too mama. All good thoughts and healing vibes being sent your way!
Been thinking about you and your family a lot. Thank you for updating us. We all love and support you!
You are so wonderful. Thank you for showing us how real the feelings are. You have taught me to recognize the feelings and process them. You are a great example to all of us
Thank you for sharing this. ❤ I am so glad he is doing well.
I'll be able to explain this "a lot more beautifully" - I thought this was a beautiful update! You are just wow!! Blessings and love to all of you!
I'm so grateful for your update. I'm glad Oliver is doing so well AND I'm glad you shared your journey through the constant ups and downs. Explaining how you're experiencing it helps people to know how to show up for and be with you in more helpful ways. It also helps people understand how to show up and be for others more realistically and compassionately when their loved ones, coworkers, and acquaintances are going through similar. You have no idea how much good you are doing for the world with this video. Thank you, Elise, and I wish all the bet for you and yours.
Thank you for just being real. God bless you all.🤗🙏
My oldest son, also named Oliver, was born with an autoimmune blood disorder that causes him to have extremely low white blood cell counts specifically neutropenia and anemia. This in turn led to many, many, very scary infections and hospital stays in his early years. I felt like I was always on guard and that even when he seemed to be doing so much better I couldn't let me guard down. He is now 13 and still has to deal with complications from his blood disorder but is doing really well! I don't think you ever lose that "something bad could happen" feeling, especially as a mom. It has forever shaped me as a mom. I completely related to that " everything is going to be ok, but doesn't feel ok" feeling. As their mom we feel so responsible and like we need to be ready and aware at all times. it WILL be ok and you DO have this but its totally OK to feel all over the place and unsettled. It does take time, and lots of patience and grace for yourself as you settle into this new normal. We're praying for your entire family and I love seeing all the updates! Hang in there and if you ever need to chat or vent feel free to message me!
Thank you for updating. I'm glad it went well and I hope it continues to go well! I can only imagine what you are going through.
Thank you for sharing! Your are doing amazing and yes it's the Mom in you that you are so worried but you and you family got this!
You guys are so lovely, and I absolutely adore how you are so real. Goals... ❤❤❤
Great news. We will continue praying for Oliver and your family.
I just want to hug you! I'm glad Oliver is doing well and I'm praying for all of y'all!
Oh Elyse, thank you for this update. You are all so loved 🫶💕❣️