Born with Arthrogryposis - AMC Awareness Day 3

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  • Опубликовано: 6 сен 2024
  • Today Ana is going to talk about her earliest memories, living with AMC, and advice for other AMCers younger than herself. #arthrogryposis #amcawareness #amcprincessana #disabilityawareness #stronggirl

Комментарии • 93

  • @beckystone7994
    @beckystone7994 3 месяца назад +11

    I don’t think Ana see’s herself as disabled I think she see’s that she had challenges and she just finds ways to overcome them , Ana is an amazing positive young lady !! She will go far in life because of her attitude !!

    • @healingmagic173
      @healingmagic173 3 месяца назад

      Ana is an 8 year old kid. Her worries is not her disabled. She is teaching us a lot in this interview.

  • @sherrylloyd8671
    @sherrylloyd8671 3 месяца назад +7

    It is amazing that Anna doesn’t dwell on her disability Very positive I’m sure she will have an awesome adulthood Their is nothing that Anna can’t do

  • @sriley3337
    @sriley3337 3 месяца назад +1

    She’s funny! Very independent and voiced her opinion surely! She will be challenging constantly! Go Ana!

  • @user-zd2yj8jt7i
    @user-zd2yj8jt7i 3 месяца назад +1

    I remember you dancing in front of the tv and doing excersizing too.
    Mom has done so well with helping Ana accept her differences. Everyone has disabilities sometimes physical and sometimes mental.

  • @rossandtaya
    @rossandtaya 3 месяца назад +1

    You’ve also done such a great job creating a positive environment for Ana. You continually call her up, not down. Well done. We’re grateful for your example & encouragement as we parent our own AMCer ❤

  • @healingmagic173
    @healingmagic173 3 месяца назад

    Ana was born that way. She knows no difference to compare. I admire her as a person.

  • @craigMcIntyre-rl1gc
    @craigMcIntyre-rl1gc 3 месяца назад +1

    Hey Ana and nana, I didn't catch yous live as in Scotland you go live about 2am in the morning here. I love that Ana doesn't let Amc define her. She's Anna not amc , amc is a condition she has to navigate but she's so smart and knows she is so much more than that x

  • @eileenryan5807
    @eileenryan5807 3 месяца назад +2

    Ana upbringing has been absolutely spot on. Awesome girl you did great

  • @shirleyhartley8076
    @shirleyhartley8076 3 месяца назад +2

    I love seeing you love on her and she loves you so much!!

  • @vickiesweitzer8625
    @vickiesweitzer8625 3 месяца назад

    #replay I think kids with disabilities don’t know a different life. The parents’ attitude and involvement plays a lot into how the child see their life. As a pediatric PT I have worked with a wide range of disabilities and attitudes. You have done a great job developing Ana’s determination by encouraging her to try things before asking for help and not dwelling on things she can’t do. Treating her as a young human instead of a disabled/sick/scary child is so important. I’ve worked with kids whose parents have focused on “my poor child,” or treated them as so special they become little helpless kings/queens, as well as parents who treat them as a “normal” kid who has some special needs. The first tend toward “woe is me”; the second becomes arrogant and bossy. The third become the most adjusted, happiest, and successful.

  • @DeniseDeford
    @DeniseDeford 3 месяца назад

    I remember seeing her walk on the grass and you were afraid she was going to fall. But, she didn’t! Ana was amazing!

  • @noellehoppe7676
    @noellehoppe7676 3 месяца назад

    When I was a young child, my memories were experiences rich in love and support and I only knew that my body worked differently and I was born with CP and as you have said Ana knew no differently and knows things she can do and doesn’t always know what she can’t do until she discovers that she either can’t do it or needs more assistance to accomplish the goal! She has had great supporters and has had a can do attitude!

  • @kathleenwinston1669
    @kathleenwinston1669 3 месяца назад

    I wish I had found Ana sooner. I am a newbie here. She is a beautiful child! I love watching her, and mom you are pretty great too! ❤

  • @beckystone7994
    @beckystone7994 3 месяца назад +3

    I remember when Ana walked down the hill the first time snd nana you were so scared she would fall !! And I remember when she stepped up that 1-2 inch slight raised area at the cabin. Down by the lake and Austin was her caregiver and was there with y’all !

  • @Shelley44
    @Shelley44 3 месяца назад

    I love that she remembers relationships first.

  • @joanhastings
    @joanhastings 2 часа назад

    NANA UR A ROCK STAR🥰

  • @angelabeaumont3024
    @angelabeaumont3024 3 месяца назад

    I'm loving these sessions xx

  • @franduffell4424
    @franduffell4424 3 месяца назад

    I remember when Ana walked down the hill and her learning to step up . Also remember her building with the wooden blocks

  • @johnhenstock9668
    @johnhenstock9668 3 месяца назад

    I recall Ana getting used to walking and her achievements in that - walking on a grassy surface for instance. And there are so many other examples of things I've seen Ana learn to do.

  • @barbarastrahan2374
    @barbarastrahan2374 3 месяца назад +1

    You are such a positive girl Ana . I think you are a thinker and you are a great problem solver 🎉

  • @jenniferallen7558
    @jenniferallen7558 3 месяца назад

    Watching on replay 😊

  • @johnhenstock9668
    @johnhenstock9668 3 месяца назад

    Ana has a good positive attitude and this has caused her to do things some would have thought impossible for her. There are so many things she has learned to do through determination and by you, Nana, encouraging her not to give up!

  • @user-iz3xs1dc3t
    @user-iz3xs1dc3t 3 месяца назад

    Enjoyed the chat, Ana adorable ❤

  • @gailerickson1789
    @gailerickson1789 3 месяца назад

    On replay hi guys , listening to ads 30 seconds each , have a nice day love you

  • @barbararyan4377
    @barbararyan4377 Месяц назад

    Determination.. that’s the way to go!!!

  • @ruthrobertson3546
    @ruthrobertson3546 3 месяца назад

    Watching replay

  • @MMacAttack
    @MMacAttack 3 месяца назад +1

    ana is so smart and adorable what a little lovebug

  • @barbararyan4377
    @barbararyan4377 Месяц назад

    Thanks!

  • @HealingHandsMinistry-qc1rq
    @HealingHandsMinistry-qc1rq 3 месяца назад +1

    I think its pretty cool ana is just focusing on just being a kid

  • @madelynmandina7495
    @madelynmandina7495 3 месяца назад

    Don't think about what you cannot do, think about what you can.

  • @maureenlough1323
    @maureenlough1323 3 месяца назад

    Watching replay ❤ hi ladies love to hear your views Ana xx ❤

  • @RobertaDooley-ox6tg
    @RobertaDooley-ox6tg 3 месяца назад

    I had started following you when you did the stepping stones…

  • @ficforever
    @ficforever 3 месяца назад

    Your amazing Ana ❤

  • @sriley3337
    @sriley3337 3 месяца назад

    She doesn’t focus on the disability and a good way to address it. Maybe that’s the answer don’t focus on the negative focus on positive ❤

  • @susanbrown849
    @susanbrown849 15 дней назад

    Good job

  • @sherryhall9601
    @sherryhall9601 2 месяца назад

    I'm just getting caught up on the videos. I'm so sorry I haven't been really able to get on here I started back to work and my shift has changed so I don't get on as much. I also have been having some personal problems

  • @shirleyhartley8076
    @shirleyhartley8076 3 месяца назад

    I love watching sweet Ana! She’s amazing!

  • @BrendaStrey
    @BrendaStrey 3 месяца назад

    8:54 p.m. Ana, you’ve come so far and I’ve learned so much through your journey! ❤

  • @cherylmartin9618
    @cherylmartin9618 3 месяца назад

    I am a stroke patient and I had to learn everything over again I was 33yearsold and I hated to ask for help . Iwas happy when I could complete something on my own !

  • @janicejones2646
    @janicejones2646 3 месяца назад

    That's great, Ana is watching a replay from Georgia

  • @judithlevine8360
    @judithlevine8360 3 месяца назад

    Dear AMC Princess Ana team ,I need to watch after the live stream as I need the closed captions so I don't miss a lot. would you consider a program that allows them to be on screen as you talk? I watch several live steam meetings that do this and it is huge help.

  • @user-iz3xs1dc3t
    @user-iz3xs1dc3t 3 месяца назад

    Replay watching

  • @TheresaPoirier
    @TheresaPoirier 3 месяца назад

    Do not forget that the environment created by Ana's support team, mainly your Mom who provides Ana to succeed in being her true self. Gratitude for that effort is key. ❤

  • @MarciaSellKS
    @MarciaSellKS 3 месяца назад

    Hi Nana and Ana. You are both doing a wonderful job of explaining AMC. You always have. Ana you are such an inspiration. ❤️. Ps I’m Marcia Sell. I have some odd user name on here. I guess I should try to change it.

  • @user-un2wd7tv2l
    @user-un2wd7tv2l 3 месяца назад

    I thank you for letting her live lìfe

  • @haroldconnolly9684
    @haroldconnolly9684 3 месяца назад

    Good night you guys have good one

  • @lindakrell7754
    @lindakrell7754 3 месяца назад

    Watching replay ❤❤. She is so precious. Very intelligent.

  • @martheterry1109
    @martheterry1109 3 месяца назад

    You are a smart young lady with a lot of gumption n nothing gets you down! Keep it up!💙👍😊

  • @catherinehogenson7232
    @catherinehogenson7232 3 месяца назад

    Anna can do anything she puts her heart and mind to and if it were me I would say you can accomplish anything you put your heart to don't let this disability over rule you , you can accomplish all you want by putting your mind to it and push through it Anna is very smart it would depend on your ability and mind and heart what you wanna accomplish as your goals in life .what is one goal you wana accomplish ana

  • @noellehoppe7676
    @noellehoppe7676 3 месяца назад

    Ana, I love your shirt that fits you well I know you love science very much!

  • @noellehoppe7676
    @noellehoppe7676 3 месяца назад

    Another thing that might work is having her watch a few of the clips of her running into problems earlier in life where she was trying to communicate with you what she wanted you to do to help something work like when she was trying to use a slinky to move her toys or something like that she wanted you to hold it or put it somewhere I think she wanted to basically have them her toys right on it so maybe if you watch a couple of the videos so you could just have her or have her see cause I think that she would say that and if you don’t understand your child or don’t know what they need just watch and listen he watchful in listening and they’ll communicate what they need you The best they can…

  • @haroldconnolly9684
    @haroldconnolly9684 3 месяца назад

    hello Ana and nana from fort Scott Kansas have a great day

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 3 месяца назад

    Cute 🥰 ana

  • @noellehoppe7676
    @noellehoppe7676 3 месяца назад

    An elevator pitch can be shared in an elevator ride or at the checkout in the grocery store. We are only seeing people for a few short minutes, right Nana.

  • @jennifersons9408
    @jennifersons9408 3 месяца назад

    Love hearing about this!!

  • @alwaysk57
    @alwaysk57 3 месяца назад

    Watching replay.

  • @debigenovese5650
    @debigenovese5650 3 месяца назад

    💙💙💙💙 #Replay

  • @maryplumley9828
    @maryplumley9828 3 месяца назад

    ITS ARTHROGRYPOSIS AWARENESS MONTH!! WEAR BLUE

  • @barbararyan4377
    @barbararyan4377 Месяц назад

    Do you show videos to Ana in her younger years ? Like when she walked down the hill etc. I agree with the that Ana doesn’t think of herself as disabled…. Maybe Ana looks at herself as “challenges to be overcome “

  • @nualacostello1798
    @nualacostello1798 3 месяца назад

    So precious

  • @vickithornton844
    @vickithornton844 3 месяца назад

    thank you for sharing

  • @mmenner4913
    @mmenner4913 3 месяца назад

    Yes Ana you are always Interesting, beautiful and smart. ❤️ 💙

  • @MichelleSandvold
    @MichelleSandvold 3 месяца назад

    I have a disability and I get frustrated because I wish I could do more

  • @madelynmandina7495
    @madelynmandina7495 3 месяца назад

    What are things you would like Nana to do more for you or what would you not want her to do .

  • @ruthrobertson3546
    @ruthrobertson3546 3 месяца назад

    I have shared

  • @user-un2wd7tv2l
    @user-un2wd7tv2l 3 месяца назад

    Like my mom did for me having Cp and a brain injury

  • @victoriafeldhaus2871
    @victoriafeldhaus2871 3 месяца назад

    Tell them to reach out, because they aren't alone.

  • @lassenstreet
    @lassenstreet 3 месяца назад

    #Replay

  • @cherylmartin9618
    @cherylmartin9618 3 месяца назад +1

    how much can you do on your own ? how much do you want to do on your own ?

  • @victoriafeldhaus2871
    @victoriafeldhaus2871 3 месяца назад

    Hello Ana and Nana

  • @victoriafeldhaus2871
    @victoriafeldhaus2871 3 месяца назад

    I remember the hill. I held my breath until she was at the bottom.

  • @user-ge1yx6bx2y
    @user-ge1yx6bx2y 3 месяца назад +1

    Ana I like your shirt

  • @sriley3337
    @sriley3337 3 месяца назад

    What age was surgery? Not much memory before age 4-5 for most children unless a traumatic event maybe?

  • @maryplumley9828
    @maryplumley9828 3 месяца назад

    What about her first time dancing at the Arthrogryposis convention

  • @kerenolivero7097
    @kerenolivero7097 3 месяца назад

    replay :)

  • @user-un2wd7tv2l
    @user-un2wd7tv2l 3 месяца назад

    You got what I meant

  • @Jingles032
    @Jingles032 3 месяца назад

    I have ADD and I do not let it control my life. I remember my 8th birthday and up i do not remember anything blow my 8th birthday.

  • @000euMJ
    @000euMJ 3 месяца назад

    I love when she focuses on the math. So only 0,0012% of her memories are about AMC. 😂🥰

  • @sallyalexander7228
    @sallyalexander7228 3 месяца назад

    hi guys

  • @LindaMcneal-rg9wy
    @LindaMcneal-rg9wy 3 месяца назад

    How bout your early casting?

  • @victoriafeldhaus2871
    @victoriafeldhaus2871 3 месяца назад

    You could share what your mom does for you, that you value.

  • @victoriafeldhaus2871
    @victoriafeldhaus2871 3 месяца назад

    Try 3x before asking for help.

  • @LindaMacLeod-Garcia-mx8bt
    @LindaMacLeod-Garcia-mx8bt 3 месяца назад

    👋 hi.

  • @maryplumley9828
    @maryplumley9828 3 месяца назад

    Does she remember Mr Dan's CRASH PAD

  • @michelleginn6947
    @michelleginn6947 3 месяца назад

    Hi .from new Zealand 🇳🇿

    • @user-mx9zc4yf8u
      @user-mx9zc4yf8u 3 месяца назад

      I’m impressed you always in courage her to keep trying until she conquered the job. I would find myself wanting to help her. A good parent lets a child accomplish what they can to become stronger and successful.

  • @offBeatRock777
    @offBeatRock777 3 месяца назад

    Hi Ana

  • @maryplumley9828
    @maryplumley9828 3 месяца назад

    I know she remembers THE FAN

  • @user-un2wd7tv2l
    @user-un2wd7tv2l 3 месяца назад +1

    You let her live not make her ĺive her disability

  • @user-un2wd7tv2l
    @user-un2wd7tv2l 3 месяца назад

    I think are to blame for that Nana because you let her grow and do what she can on her own

  • @karenbertelson7114
    @karenbertelson7114 3 месяца назад

    Hi Ana and Nana