Parenting a disabled child - AMC Awareness Day 5

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  • Опубликовано: 9 янв 2025

Комментарии • 80

  • @janemortimer5264
    @janemortimer5264 7 месяцев назад +7

    As I started watching you at start of Uk Lockdown and suddenly becoming a widow and so living in complete isolation I realised aged 70 that I had several lifestyle Neurodiversity disabilities. Watching Ana self manage and you support her has and is still teaching me how to do the same and teach others how to support me appropriately. I feel hugely grateful for this. I watch when I can as you cheer me up and give me the motivation to keep going. Thank you.

    • @maureenlough1323
      @maureenlough1323 7 месяцев назад +1

      Watching replay ❤ Hi Aaron and Nana good to see you both xx 😊❤

  • @mariacostello7363
    @mariacostello7363 7 месяцев назад +5

    Nana and Aaron, you both are absolutely amazing parents helping Ana become the most amazing young lady she can be!

  • @judithlevine8360
    @judithlevine8360 7 месяцев назад +3

    Once again you enlarged my understanding of what parenting an AMCer entails. Ana is a extraordinary kiddo for just who she is. I love listening to her explanations of the science she is learning, she is such an intelligent child and so full of life. She refuses to be defined by AMC and that is a tribute too how you and Aaron have been raising her.

  • @elizabethskabernicky2497
    @elizabethskabernicky2497 7 месяцев назад +1

    Nana your a fantastic momma & your a fantastic teacher . Daddy has to learn not to give in too quickly.

  • @haroldconnolly9684
    @haroldconnolly9684 7 месяцев назад +5

    Aaron you have been a very good dad for Ana and help her a lot on getting things done that she needs to do

  • @Shelley44
    @Shelley44 7 месяцев назад +1

    It’s so good to see Aaron too. Found you my chance. So glad you are apart of my daily routine. It’s awesome to see you both.

  • @victoriafeldhaus2871
    @victoriafeldhaus2871 7 месяцев назад +4

    It's nice seeing you and Aaron.

  • @lindas6294
    @lindas6294 7 месяцев назад +4

    That little clip for Dr. Feldman actually brought tears to my eyes. I remember when she first walked with him, so amazing!!

    • @DeniseDeford
      @DeniseDeford 7 месяцев назад

      The first video I seen was of Ana walking in the grass and have following you ever since.

  • @noellehoppe7676
    @noellehoppe7676 7 месяцев назад +1

    I loved seeings the amc awareness shirt you put out with Ana’s art and beautiful cursive writing; I hayed writing as a child, because I thought it was hard, but watching Ana write and draw, it amazes me how well she does with it…

  • @shirleyhartley8076
    @shirleyhartley8076 7 месяцев назад +3

    I’m so proud of both of you for being so loving and caring for Ana

  • @noellehoppe7676
    @noellehoppe7676 7 месяцев назад +1

    That clip and Happy Birthday to Dr. Feldman!

  • @haroldconnolly9684
    @haroldconnolly9684 7 месяцев назад +2

    nana and Aaron thanks for sharing this it is very educational glad Ana is getting more independent and being able to do alotmore things by herself

  • @tbelle5
    @tbelle5 7 месяцев назад +3

    Just an FYI. If you click on the link from the FB notification that takes you to RUclips, you can not participate in the Live chat. You have to get directly on the RUclips channel if you want to comment and see comments.

    • @KimGibbons-p9r
      @KimGibbons-p9r 7 месяцев назад

      Click on the open app button and it will take you there.

  • @johnhenstock9668
    @johnhenstock9668 7 месяцев назад +1

    Excellent clip for Dr. Feldman!

  • @lesliesteffy6275
    @lesliesteffy6275 7 месяцев назад +1

    Fall training is awesome with my spinal stenosis I went thru a period with lots of falls that I knew I couldn’t stop so I just didn’t try but didn’t know how to fall “better”.

  • @noellehoppe7676
    @noellehoppe7676 7 месяцев назад

    I managed to get my balance back during a stumble up a step yesterday… I was amazed that it didn’t result in a fall!

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 7 месяцев назад

    You are doing wonderful job with her 😊

  • @CarolineDarvill
    @CarolineDarvill 7 месяцев назад +1

    Would love another parenting live x

  • @BeaTrice10
    @BeaTrice10 7 месяцев назад

    I'm glad Aaron is a softie. I think we all need that person - and Nana, you are a wonderful mom so it's not a criticism. I love that one parent is the cop and one is Disneyland.

    • @AMCPrincessAna
      @AMCPrincessAna  7 месяцев назад +2

      🤣🤣🤣🤣
      No I get you. I tell him the same thing! Whenever he tries to crack down and kind of gang up on her with me I remind him later that she needs to have a softer place to go. I've long established that I am the authoritarian in her life and it's going to have to stay that way, and that's okay! He can be the soft one and still back me up and still offer her a place to go complain about me. 🤣 I'm willing to take that bullet so that she has consistency and stability and clear expectations to grow up with.

    • @BeaTrice10
      @BeaTrice10 7 месяцев назад

      @@AMCPrincessAna Perfect dynamic.

  • @cherylknight6406
    @cherylknight6406 7 месяцев назад +4

    Kids with Cerebral Palsy also require a lot more energy to make their bodies move too.

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 7 месяцев назад

    You are so amazing and awesome 😎 mom and dad

  • @MaryHartnett-d1n
    @MaryHartnett-d1n 7 месяцев назад

    mom and dad doing a great job

  • @SandraGero
    @SandraGero 7 месяцев назад

    Replaying in the thursday morning from windy sunny Saskatchewan Canada.

  • @sandy6173
    @sandy6173 7 месяцев назад +1

    Ana has come on a lot in four years I’ve been watching you.

  • @mmenner4913
    @mmenner4913 7 месяцев назад

    You are both great parents ❤️ ♥️

  • @melaniewallace1133
    @melaniewallace1133 7 месяцев назад

    She is amazing

  • @victoriafeldhaus2871
    @victoriafeldhaus2871 7 месяцев назад

    This is important information!

  • @johnhenstock9668
    @johnhenstock9668 7 месяцев назад +1

    Another most interesting talk. Ana may have weak muscles (though she works to overcome that) - but she's got a very powerful brain!

  • @amyschiavoni6315
    @amyschiavoni6315 7 месяцев назад

    Hello. Good to see you.

  • @winnienonnemacher603
    @winnienonnemacher603 7 месяцев назад

    I’m watching replay . Very interesting

  • @LornaGee-z5i
    @LornaGee-z5i 7 месяцев назад

    Replay watching nice to see you both❤

  • @lanag2232
    @lanag2232 7 месяцев назад

    Replay. Sorry I was busy earlier, but am enjoying these.

  • @angelabeaumont3024
    @angelabeaumont3024 7 месяцев назад

    Watching replay ,hi guys x

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 7 месяцев назад

    I am from crown point Indiana 😊

  • @DeniseDeford
    @DeniseDeford 7 месяцев назад

    Watched replay.

  • @PauletteHerberholt
    @PauletteHerberholt 7 месяцев назад

    Watching replay.

  • @cherylpelletier3165
    @cherylpelletier3165 7 месяцев назад

    Aaron got his haircut!! Its been a long time

  • @noellehoppe7676
    @noellehoppe7676 7 месяцев назад

    What about making an AMC awareness?

  • @LornaGee-z5i
    @LornaGee-z5i 7 месяцев назад

    Ana amazing ❤

  • @PatTurnbo
    @PatTurnbo 7 месяцев назад

    Watching replay

  • @noellehoppe7676
    @noellehoppe7676 7 месяцев назад

    Does Anna ever have to rehearse walking places where she’s more likely to stumble? I need to do that. I also need to practice when I need to dock for a tree that would hit me in the face stepping over the sidewalk all that stuff….

  • @carolkelly1136
    @carolkelly1136 7 месяцев назад

    You should have included, I think anyway, what its like to parent a disabled and a gifted child as well

    • @AMCPrincessAna
      @AMCPrincessAna  7 месяцев назад

      It's arthrogryposis awareness month. It's not about her giftedness right now.

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 7 месяцев назад

    ❤❤❤

  • @cindydaniels7292
    @cindydaniels7292 7 месяцев назад

    Replay. Love y'all.

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 7 месяцев назад

    When are you live at??

  • @noellehoppe7676
    @noellehoppe7676 7 месяцев назад

    Would you guys buy that assistive device for her feeding herself ever that’s not covered by insurance because they say it’s not medically necessary?

  • @EugenaJones
    @EugenaJones 6 месяцев назад

    Great video - you look
    Pretty tonight❤❤ 28:40

  • @sherrygoodwin9820
    @sherrygoodwin9820 7 месяцев назад

    💙💙💙💙

  • @haroldconnolly9684
    @haroldconnolly9684 7 месяцев назад

    good night you guys have a great one sleep well and get a lot of rest

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 7 месяцев назад

    When do you live at?

  • @SheliaMasterson
    @SheliaMasterson 7 месяцев назад

    Does Anna's issue cause her a lot of pain?

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 7 месяцев назад

    Hey there Nana and Aaron

  • @melaniewallace1133
    @melaniewallace1133 7 месяцев назад

    She is getting at the age that hair styles are Important

  • @melaniewallace1133
    @melaniewallace1133 7 месяцев назад

    Does she get a summer?

  • @haroldconnolly9684
    @haroldconnolly9684 7 месяцев назад

    Hello nana and Aaron how are you doing good I hope I’ve been doing well here

  • @noellehoppe7676
    @noellehoppe7676 7 месяцев назад

    Wow!!!! He wanted her up on it right away after resting it for a couple few days…

  • @dianasue434
    @dianasue434 7 месяцев назад +1

    Hi. Live. Yay I am almost first

  • @sallyalexander7228
    @sallyalexander7228 7 месяцев назад

    hi everyone

  • @avamerehome
    @avamerehome 7 месяцев назад

    Hi guys

  • @daphnejohnson6167
    @daphnejohnson6167 7 месяцев назад

    #Replay

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 7 месяцев назад

    Do Ana like do art stuff

  • @RitaRomaguera
    @RitaRomaguera 7 месяцев назад

    Replaying

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 7 месяцев назад

    You just take one day at time

  • @noellehoppe7676
    @noellehoppe7676 7 месяцев назад

    Apple crumpet she didn’t want to eat..

  • @noellehoppe7676
    @noellehoppe7676 7 месяцев назад

    What about making an AMC awareness? Just come out with a new band.

  • @SusanWeekly-ji1bc
    @SusanWeekly-ji1bc 7 месяцев назад

    Replay 🌸🩷🌸

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 7 месяцев назад

    Do she do special Olympics?

  • @sandy6173
    @sandy6173 7 месяцев назад

    Replay

  • @kerenolivero7097
    @kerenolivero7097 7 месяцев назад

    Replay :)

  • @noellehoppe7676
    @noellehoppe7676 7 месяцев назад

    Would you guys bring Ana breakfast in bed?

  • @melaniewallace1133
    @melaniewallace1133 7 месяцев назад

    She is amazing