i have male turner's syndrome also called noonan syndrome. I have a characteristic often with autism called social communication disorder. this video was helpful. i have ADHD as well
Conditions like Turner's syndrome, Noonan syndrome, autism, and ADHD often co-occur and impact individuals differently. We're glad to hear that the video was helpful for you. We are developing a playlist on social communication challenges, and we hope that you will find it valuable.
My brother’s wife has noonan syndrome and so does one of her brothers. My sister in law (with noonan syndrome) is in denial about having it so refuses to get their young children any medical help with it. Their first born seems to have a more severe case than the other two children. It’s a bizarre situation.
I understand that you're in a challenging situation regarding your brother's wife and her children's health. It can be difficult when someone is in denial about a medical condition, especially when it affects their children's well-being. Here's a reply you could use: "I'm really sorry to hear about the situation with your brother's wife and her children. It must be incredibly tough for all of you. Noonan syndrome is a serious condition, and it's essential for the affected individuals to receive medical attention and support. It might be helpful to approach the topic with empathy and understanding. Express your concerns about the health and well-being of their children and offer to be there for them during this challenging time. Encourage them to seek advice from medical professionals who can provide the necessary guidance and support for managing Noonan syndrome. Ultimately, decisions about medical care are up to the parents, but it's crucial to emphasize the importance of early intervention and proper treatment to improve the quality of life for their children. If possible, try to have an open and honest conversation to address their concerns and fears about the condition. Remember that offering support and being there for your brother's family can make a significant difference during this difficult period. If needed, you could also suggest resources or support groups that could provide valuable information and assistance on coping with Noonan syndrome. Wishing you and your family the best in navigating this situation with care and compassion."
I'm sorry to hear that you have Noonan syndrome. Noonan syndrome is a genetic disorder that can affect many parts of the body. It can cause a range of symptoms, including short stature, heart defects, learning difficulties, and distinctive facial features. However, it's important to remember that everyone is unique and valuable, regardless of any conditions they may have. It's also important to seek medical care and support from healthcare professionals who specialize in treating Noonan syndrome to manage any symptoms and improve quality of life.
@@RetroGameNerd98 and it's pretty hard to love yourself, I do hate people telling that I'm not different but truth is that I can feel that I'm not "normal" the way I am is totally related to this syndrome
i have male turner's syndrome also called noonan syndrome. I have a characteristic often with autism called social communication disorder. this video was helpful. i have ADHD as well
Conditions like Turner's syndrome, Noonan syndrome, autism, and ADHD often co-occur and impact individuals differently. We're glad to hear that the video was helpful for you. We are developing a playlist on social communication challenges, and we hope that you will find it valuable.
Here is the link to our playlist ruclips.net/p/PLFXVOCnaQIoT7kYhhPToXs5J_QkoP7i2b
These pictures are showing people with Downs syndrome NOT Noonan. It makes me question the reliability. Plus it's clearly AI generated.
My brother’s wife has noonan syndrome and so does one of her brothers.
My sister in law (with noonan syndrome) is in denial about having it so refuses to get their young children any medical help with it. Their first born seems to have a more severe case than the other two children. It’s a bizarre situation.
I understand that you're in a challenging situation regarding your brother's wife and her children's health. It can be difficult when someone is in denial about a medical condition, especially when it affects their children's well-being. Here's a reply you could use:
"I'm really sorry to hear about the situation with your brother's wife and her children. It must be incredibly tough for all of you. Noonan syndrome is a serious condition, and it's essential for the affected individuals to receive medical attention and support.
It might be helpful to approach the topic with empathy and understanding. Express your concerns about the health and well-being of their children and offer to be there for them during this challenging time. Encourage them to seek advice from medical professionals who can provide the necessary guidance and support for managing Noonan syndrome.
Ultimately, decisions about medical care are up to the parents, but it's crucial to emphasize the importance of early intervention and proper treatment to improve the quality of life for their children. If possible, try to have an open and honest conversation to address their concerns and fears about the condition.
Remember that offering support and being there for your brother's family can make a significant difference during this difficult period. If needed, you could also suggest resources or support groups that could provide valuable information and assistance on coping with Noonan syndrome.
Wishing you and your family the best in navigating this situation with care and compassion."
ابني متلازمه نونان من العراق
Thank you for sharing your experience
I have Noonan syndrome
I'm sorry to hear that you have Noonan syndrome. Noonan syndrome is a genetic disorder that can affect many parts of the body. It can cause a range of symptoms, including short stature, heart defects, learning difficulties, and distinctive facial features.
However, it's important to remember that everyone is unique and valuable, regardless of any conditions they may have. It's also important to seek medical care and support from healthcare professionals who specialize in treating Noonan syndrome to manage any symptoms and improve quality of life.
As someone who has lived with this disorder, you must learn to love yourself for what you are and what you can become with this disorder.
@@RetroGameNerd98 and it's pretty hard to love yourself, I do hate people telling that I'm not different but truth is that I can feel that I'm not "normal" the way I am is totally related to this syndrome
@@TheDisordersCare don't be sorry it a honor to have it and I get where you are coming from
Me too
My baby she is noonan syndrome in the Philippines
Thanks for your feedback