What's worse than being dismissed by the doctors is when another woman says "its not as bad as mine" or "we all get a period, suck it up" whe youre really struggling
It feels so devastating when that happens. When I was working as a waitress at waffle house, I had a normally lovely older woman working alongside me as the cook. But for some reason she was always nasty when it was clear I was struggling with cramps. I don't think I have any condition, and it's just cramping, but it feels like my spine, hips, and knees, are being pulled apart by all the joints. Only sometimes is it bad enough I can't ignore it. One time around the older woman I mentioned, it got that bad. I realized I was starting to fall over because I just couldn't move correctly because of the cramping. I'd even taken midol that day, even though it doesn't seem to help at all. I took a seat and just tried to breathe through it for a moment with my head down, there were zero customers in the store and it was just me and her working at the time. She started just... Berating me for the pain. "What are you doin?" "Period cramping" "Oh come on, it don't hurt that bad. Take a damn midol and get over it." "I took midol, doesn't help" "do some stretches and take ibuprofen instead and get back to moving around more and you'll be fine. So tired of your sighing." "I'm BREATHING." That day, when the second server got there, she took one look at me and was basically saying I looked like I needed help, and to either go home or a hospital. That upset the older woman who insisted I was faking it to get out of work. I said "I would have already called our boss to get my shift covered if I was trying to get out of it, or just, y'know, not have come in at all?" Well, because the other server was there, our boss was fine after a single text, saying I could go home early.
I have chronic pain and the number of people who pull this crap is mind boggling! Plus, I hate the, "Well, this other person has it WAY worse than you, so you have no right to complain!" WRONG. Just because someone else might have it worse, or perhaps it just looks worse as pain is so subjective, that doesn't mean that YOU aren't suffering or in need of treatment! If that was true then there'd only be one person at a time getting cancer treatment, or having broken bones set, or septic organs fixed or removed. If you think of it that way, then you understand how unhinged the whole argument is.
@@Robynhoodlumunfortunately exactly. We are told it’s going to hurt, but not that it shouldn’t be crippling. So we suffer thinking it’s normal. On the other hand, if we are in crippling pain monthly to point of not functioning. How does that get ignored for years? My endo was so bad that I thought I was just cramping when it was actually appendicitis. It wasn’t until I was completely unable to move, crumpled on the floor that I thought it likely wasn’t cramps. I was diagnosed with endo at the same time I was with PCOS. I went in cause I was on week 6 of bleeding. When I called to make an appointment, specifically saying it’s legit been 6 weeks. I was told women’s health couldn’t see me for 2 months! Waited five mins called back to make an appointment to get birth control. Got seen 30 minutes later. When I explained everything to that doctor. He looked at me, got up and said “I’m going to get you an appointment. I have a bit pull here.”women’s health saw me 10 minutes later. I’m so grateful for that doctor, and actually listening and not dismissing me. Like I had been for that menstruation or any time in the past when I sought help. Only to hear things along the line of welcome to being a woman.
I’m 14 but two years ago I passed out while on my period. I get a scan or smth and had blood drawn and didnt get anything back from the hospital. My mom says it was low iron but I don’t believe it. I’m a healthy person and rarely get sick, i stay on top of my meats and veggies. 😭🙏
@@Robynhoodlumwhen you get to working age and cannot get out of bed without crying in extreme pain - when you lose jobs because of it - you know it’s not normal. Also when you see other people don’t suffer as much - you know it’s NOT normal.
@@LexMex47it could be low iron too - it’s worth taking a supplement at the time. Also Vitamin D- every little helps. Also look into PMDD. It’s a psychiatric diagnoses but it’s clearly a hormonal process. This is what I have and it’s a gradual build up every two weeks.
My sister suffered from unimaginable pain with her cycle for years because she believed she'd be ignored because "it was just cramps". One day the pain was so unbearable she caved and went to the ER and the first thing the useless doctor and nurse said was "you realize you're coming in to the ER on a Friday night... For help with your... Period cramps..." She just stormed out without a word and ended up even more terrified to seek help since her worst fear was realized. It took two more years of the agony only getting worse before we convinced her to go back to a doctor. She got an obgyn and this absolute saint of a man was so determined to help. Almost immediately he found both uterine fibroids and adenomyosis. People really don't understand how terrible periods can get.
So unprofessional. I understand that healthcare workers can be very tired and overworked but that's not a way to treat a patient who has come to ask for help.
@@mylyb01 Unfortunately you’re right. My sister works for the healthcare system, the amount of crazy stories she told me is discouraging. I don’t like making assumptions but the majority of doctors are lazy and careless. They do it for the cash, nothing else
Dismissing women’s symptoms can lead to an early death….be persistent and get second opinions ….my sister died at the age of 27 in the 70s because her doctor said that her condition was simply painful periods ..turns out it was ovarian cancer .it wasn’t just that she died it was the way that her doctor dismissed her as a fraud.
So sorry about your sister, and thank you for highlighting that cancers in/around the womb, or hormonally driven (eg some breast cancers) may first present as cyclical pain in the uterus (or breast/s). Commenting to help your comment get more views. 🩷🩷🫂🫂
I would be very curious to see some data on excess deaths caused by medical misogyny. Sadly, it's not just confined to the past, women are still being told that they are being dramatic or that "it's all in their heads" or a thousand and one other bullshit excuses when they seek help for serious medical conditions.
@@resourcedragonwhats funny is that ALL pain and ALL suffering is in your head. Whether or not the pain is caused by a physical stimulus or not its still pain
PLEASE go to see the doctor WITH her and express YOUR concerns that TESTS need to be run. It’s aggravating to admit but often doctors will take a man’s word for it and actually take her condition more seriously if the man is with her.
Sadly I agree with you. Im pretty sure I have it and when I go to the doctor I am taking my husband with me. I have noticed doctors are more willing to give hime medicone and tests than me.@eatwhatukiii2532
Even if periods are painful, we should still be working towards ways to eliminate or minimize the pain instead of doing nothing because "everyone's suffering"
Yeah I remember when I was a teenager, a friend was having bad cramps and I offered her some basic painkillers. She said that those didn't work for her. I remember thinking that that's surely not normal, like if taking painkillers doesn't reduce the pain then isn't that a sign something is wrong? I was a bit confused that she thought she had to just suffer like it was expected for it to be this bad.
Well, to be fair, normal cramps are manageable with over the counter medication. Endometriosis pain doesn't even compare. You may end up bed ridden for the entirety of your period.
@@Evridikibio1 It's defidently not endo but I think they should be studied too. Just having a uterus shouldn't make you reliant on regular pain medication at least not without trying to find an actual reason why it doesn't affect everyone and trying to find a permanent solution. It shouldn't have to be torture to be studied.
I had been suffering with incredibly painful periods from about age 14. I would repeatedly go to the doctors and ask if there was anything that could be done, I was missing days from school, and as I became an adult, University and eventually work. I was always told "Oh it will settle down if you do this, if you take the pill, bla bla bla." it never did so I just gave up and accepted this was how it was. At 35 I went to hospital for another procedure and they asked me "Did you know you might have endometriosis?" I managed to get a referral and a diagnosis that same year. To say I'm livid with all those past doctors who listened to me explain how much pain I was in and not take me seriously, is a major understatement.
I don't have endo, but I have experienced excruciating pain due to other things and have been gaslit by doctors in the past. Even just reading all these other women's experiences infuriates me so much. Something needs to be done about this.. like decades ago. 😡
Same i used to skip school every month and when i went to the er the doc asked if i skipped school every month because of this and i said yes they then were skeptical that i was lying later with another doc he told me to lose my virginity and all of this would end and i was 16. Either way i go to one doc and he describes me medicine and tell me to take it frequently and i go to the other because the medicine is not helping and he tells me you shouldn’t use it often they all contradict each other and somehow they are all males in the field and if there were to be a woman she would treat you as if ur lying.
Honey believe me I can empathize with you. Something even worse than that (if you can imagine) is that up until maybe 20-30 years ago doctors were treating women who had heart attacks the same way they were treating women and it was a big surprise when women died. It’s also frightening that even to this day women are surprised when they have a heart attack. They think because they are a woman that they can’t have a heart attack. And more and more young women are having heart attacks. So while you’re getting something done on your nether regions don’t overlook the thing that keeps everything running!
I was diagnosed at age 17. Idk if an OB/GYN ignored you but now is a good to time to let women know that it's imperative to have one. Sorry you went through this.
My friend is now in a wheelchair and mostly bed bound because her endometriosis was dismissed by male and female doctors. Even after several surgeries she is still in endless pain. It’s absolutely disgraceful and seeing a friend go through this and loose her quality of life like this gives me great fear. Sad beyond belief.
Sometimes, but not all times, should a woman with endometriosis have a hysterectomy, she may still have that awful pain because the uterine lining may have "attached" itself to other internal organs & abdominal cavity, whereby the pain will be constant.
@@DontTakeItPersonall this exactly, she’s had several very serious surgeries and is under going induced menopause but the neglect, dismissals and ignorance of her doctors has left her with an abundance of issues that mean a hysterectomy is not actually possible right now. And the nhs is very very very reluctant to do a hysterectomy and wouldn’t entertain the option until it was too late.
This is so upsetting!! Glat she has at least one supportive and understanding friend in you but she must be feeling terrible after the invalidating treatment she's received :(
God I feel so bad for that woman. I've been there. It took 28 years to get diagnosed and finally get the surgery that would help me. When the lab finally looked at the organ that had been removed from my body, the question to me was, "how were you even walking around?" Simple answer. I didn't have a choice. The entire medical system needs to do better for women.
This is year 30 for me and no help at all has been given. Nothing. I was misdiagnosed here in Canada, told me it was marijuana sickness for a decade or more. I have the records to prove it. They put in my file that I did this to myself and no doctor should help me. So none did. Finally I went to Toronto yesterday, I have to wait for another year to be seen.
@@getoutjustin2553 that is so horrible. I understand how you feel. Always being dismissed and ignored. Medical gaslighting is a real problem and doctors really need to stop doing this. Having been there myself, I truly sympathize with what you are going through, and I hope more than anything that you will eventually get a doctor who will help you. I know how hard it is, but I hope you will keep trying.
@@jbach1738 first I'd like to thank you for your kind words. I needed that. Also, I sent an email to the endometriosis network looking for an expert for a court case. They didn't get back to me. They are so fake. My case could be the break we all need to get this situation under control. Only one case has ever been heard and I think that was the UK. Her win was based on the fact no doctor sent her for the laparoscopic surgery. If I'm not mistaken that's all of us right now still suffering.
32 years for me. Cysts in both ovaries 15x12cm (the size of a baby's head). Both were removed. Now the pain comes back, new cysts in my cervix. Doctors are still dismissive, only asked me back every month to "observe" and gave me cheap folic acid and menstrual stopper pills (norethisterone). I've been experiencing both dysmenorrhoea and menorrhagia for the past 3 years (probably adenomyosis, but the doctors never said this, just my own self diagnose). My life quality has become garbage-like, my bed filled with huge blood patches here and there. I can't work, I can't consentrate as much as I want/need to do my hobbies, I feel worthless, I don't dare date men and meet people. The perks of being dependent on national health insurance in my country, I guess... 🥲 (I can't pay for the surgeries myself, they will be too expensive for my thin wallet, which is getting thinner and thinner over the years because I can't build my career). I'm so sorry we all get through this, women all around the world...
Yup. Only my current GPs treat me like they believe me. Not previous GP of nearly 30 years, gynes, or consultants. My current GPs, and my dentist, and osteopath. It's messed up.
Yep. Female GP was pretty much mocking me when I came in after experiencing a sharp pain in my ankle, followed by pain walking. Completely dismissive. Took months to get into foot doc, had to use online PT to get to where I could walk somewhat normally again in meantime. He immediately knew what I’d sprained and agreed with the exercises I was doing and told me to keep at it. Still have this weird numb spot but otherwise can walk normally again.
You know what else these doctors don’t realize, they give some of us a death sentence. I went through so many doctors until one actually listened to me. I had endometrial cancer. Had it spread any further, I would not be here today. The unnecessary pain, medication, treatments,and sickness, I went through…..brings me to tears to think about. All they had to do was listen.
I'm so sorry you had to go through this. I wish you as well as it's possible and hope you're finding ways to enjoy good moments as much as it's possible
I'm so sorry this happened to you. I've been abused by doctors so many times.... I once had a OBGYN recommend me a surgery that would sterilize me, (they didn't tell me it would sterilize me) after I had a period that wouldn't stop for 60 days. I had to ask for a non painful solution (I was just afraid of the pain, had to google it later that that procedure would make me barren), and they gave me a pill that fixed the problem in 5 days. That's the kicker. A pill with zero side effects would have stopped the problem. But they wanted to give me a life altering procedure as a first choice. Just as bad, they gave me the pill and didn't tell me to stop birth control while I was on it. If not for the pharmacist saying "taking birth control with this clotting pill will give you a stroke. " I would have stroked out and died. My blood pressure was already way to high, this combo killed people without high blood pressure. I wish this was the worst thing a doctor had ever done to me or my body. Its not. They don't care about your life. They don't want you to surive. You are meat to them. Never forget that. Demand their respect, they don't have the right to tell you your worth because they went to med school to learn how to better ignore people. Never let them have the satisfaction of telling you what you feel or what you deserve. They are the enemy, not the hero. Keep your guard up. And fight for yourself. You deserve to be fought for. ❤
I went to the ER with extreme stomach pain that was keeping me up at night and I couldn’t eat and it hurt to breathe. The doctor said “it’s probably cramps” and sent me home. I wasn’t on my period and told him it wasn’t cramps multiple times. A week later still in lots of pain I went to the regular doctor who is a female luckily, turns out it was a really bad stomach ulcer. I’m glad that my female doctor understood it wasn’t cramps and helped me. More male doctors need to understand women know the difference between normal period cramps and other more serious things.
I've had female drs dismiss me too. It wasn't until I broke my back and had an MRI that they saw a large tumor in my uterus. Thankfully, after the back surgery, they waited about a year, went in, and were able to remove the tumor.
I was sent to ER for stomach pain, the kind of pain that i was unable to walk. When they situated me in a room where nurses office was near, i heard them say to each other "as a woman, i wouldn't call ambulance for stomach pain". Turns out i had a cyst in my ovary that had ruptured. This is just one example from my life, i could write a book about all of them. I have high pain tolerance so i don't "look" like im in severe pain when i try to get help. I don't trust medical personnel anymore.
My BFF went to the ER with RS pain. They told her it was the flu. Didn't do any imaging and sent her home. Hours later the pain had increased and she went to a different ER. Her appendix had burst. Worse still, it was cancerous with a highly aggressive mucinous cancer that spread throughout her peritoneal cavity. Five years, multiple surgeries, and unimaginable agony later, she was dead. Had the first ER taken her seriously (and had multiple other medical mistakes not been made along the way), she might have attended her son's wedding and been able to watch her grandkids grow up.
I was 11 when I got my first period and complained about being in tears over the toilet. It wasn’t until I was 23 that the emergency room found my hemorrhagic ovarian cysts while removing my appendix. I cried when I was told I wasn’t crazy and there had actually been something wrong with me, and the medical staff was shocked when I told them why I was crying
Almost the same story here. It took them finding a huge hemorrhaging cyst on an ultrasound they did just to placate me and shut me up for them to realize I wasn’t faking it or had low pain tolerance. All doctors need to take this seriously
That’s horrible yea I lot of women have cysts and there incredibly painful for your parents or who ever should have be taking you to a doctor was very wrong about your pain
@@kenzie_ray my aunt (I was adopted) took me in and when I told the doctor about the unusual pain he said “I’ll let your guardian decide if it’s cysts or just a bad period” and left it at that. She knew my mother had ovarian cysts too, so she was well aware but told me I was being dramatic
My friends mother unalived herself because she was in so much pain and not a single doctor believed her. One doctor actually laughed at her and said she ought to break her foot maybe that would distract her from the pain. Another doctor said she was just making it up to get pain meds and involuntarily committed her to a rehab center. She deleted herself on the fourth day in the program because the pain was making it impossible to eat or drink without becoming I'll and everyone said she was faking it. My friend and her siblings and her dad lost their mom/wife at 34. My friend was 8.
I had a cyst the size of a grapefruit on my ovary and pressing on a nerve in my stomach shooting liquid lightning up to my shoulders. When the lady in the ambulance asked me to rate my pain I said it was an 8. She said it couldn’t be because I would have been screaming. The reason I wasn’t screaming or moaning in pain was that if I opened my mouth I’d have vomited from pain again. Still makes me angry to this day. People can see when others are in pain. It’s screaming obvious. And still stuff like this happened. Chronic pain can twist the mind to the breaking point and it’s a travesty that everyone who could have helped let it happen. Her death is on them
@@uNkrEaTIvArTs Honestly, I disagree with the last part and I think that’s precisely the problem with things like this. It’s quite clear that even medical practitioners _can’t_ always tell when others are in pain or struggling. Which makes sense (different people handle pain more or less well, externalize more, ask for help more or less often… ), but must be acknowledged. Same with mental health and neurodivergence. How many girls have been told they weren’t autistic because they’re better at masking than expected? Or people that they didn’t have ADHD because they had a good GPA and went to uni? Or depression or PTSD because they could keep up with their job, their kids’ needs, and still plaster a smile on their face? No matter how good we are at reading cues and assessing probabilities, we don’t always know what others are going through. Even screaming and crying aren’t a guarantee someone is dying or even doing worse than the next guy, and even quietness and real or apparent functionality are not a guarantee everything is just fine or even remotely okay. We should absolutely use our instinct (and, particularly in the case of medical practitioners, our education and experience), but we shouldn’t rely on our inevitably limited perception so much we completely dismiss people’s claims and complaints outright and without just cause. Thinking pain and struggle are obvious and should always looks a specific way is precisely the issue, imo. The solutions shouldn’t be to make assumptions a different way: it should be, if two perspectives differ, to actually take the other seriously and try to figure out the root of the issue.
@@EIizabethGracethis... we really need to change the mindset as a whole, culturally, but by god, the medical fields need to go first in that direction...
@@uNkrEaTIvArTsI’ve also had a cyst but it twisted my left ovary. I also felt that if I talked I would throw up. It was so painful. The hospital almost let me go saying that I had a flu. Fortunately I had a surgery to untwist which I’m currently recovering from.
Currently in med school. During our clinical rotation on OBGYN the told us that a period is NOT supposed to incapacitate you. What on earth are they teaching doctors in US? Edit since it's not just the US. What on earth are the teaching doctors everywhere?
just because it's taught doesn't mean the male doctors listen. When the male doctors get into positions of power they ignore it because like this doctor says women are ignored and are accused of overreacting, and periods are supposed to be painful. There is a lot of stuff that is taught in schools, but one person saying it once to a group of people who already have another conclusion in their head doesn't do much.
I had pain so painful i almost passed out, but never went to doctors because my mother had them too and she had the exact same experiences whatsoever. Still can't believe how cruel medicine is with those who have it worse than I do. I hope sometime, somewhere in the far future, women can be treated of their pains and not be dismissed of it. Stay strong girlies!💕
Just because a problem is common doesn’t mean it’s not a problem. I’m so thankful for the doctor I have now. Found him 5 years ago. Used to have level 5 period cramps. Now my periods are pain free.
When i was younger, I used to have mild constipation Having my period Cleaned me out😂and gave relief I was born with a fistula..and had these problems...plus, they used seed oils, in the 1960s
@@kaymichelle7327i watched an interview where a woman switched to a completely carnivore diet and all her endo pain went away by the second month. I can’t remember what channel I saw it on. Can’t hurt to try it though. I’m going on it.
I’m 17. Ever since I was around 12 I’ve been telling Doctors Im in pain and each year it kept getting severely worse. We told them many years it could be Endometriosis and they all said I was “Too young for it” and to “Go to a Psychologist” etc.. Finally after years we finally got a laparoscopy (after all the begging) and it was indeed Endo. Turns out I was riddled with it on my appendix aswell!! Had to have another surgery to get it removed and found out it turned into Acute Appendicitis. Now I’m left with Pudendal Neuralgia (The Nerve in your pelvis) most likely from Endo and I’m crippled. I’ve been bedridden and can’t even get out the house. Everyone still thinks it’s an exaggeration when I tell them. Thanks to Incompetent doctors, my life basically has no meaning since I have to rely on my parents for everything. And they still wonder why women kill themselves!!
Pray for healing even if you don't believe. Ask the Sacred Heart of Jesus to heal you enough so you can walk and get around. Don't lose faith! Everyday is a chance for healing to happen. I will pray for you. 😢❤
My own daughter told me I was exaggerating my pain when she was 14. Some days I couldn't even get out of bed. She never had a painful period so she didn't believe I could b in pain. It was so heartbreaking. I'm 57 and was never diagnosed with anything. I'm done with my periods now, so I am thankful that I never have to deal with it again.
You should not let that get to you. Your daughter is a child and I stress that you explain these type of things to her because she too probably is fairly new to the topic of periods. And so am I. I don’t know much about periods and I am a 15 year old girl. My mother only ever said the basics like “you bleed every month and it will hurt a bit if you are unlucky”. So please explain it to your daughter, it may help her in the future.
I was 21 when I got my first painful period but it wasn't so bad I needed to stay in bed. It clears up for me with Tylenol and chai tea. I know someone with painful periods from PCOS who says that chai helps.
Children generally need to learn that other people experiences are not the same as their own. It's a part of helathy development. Sadly, a lot of adults never really get there.
When I started my periods, my older sister had really terrible cramps and heavy flow, I didn't expect anything positive, so I was surprised when my period was probably what healthy periods are, light minimal cramping, only occasionally bad days for it and much lighter bleeding, it really sucks for women to get so much of the short end of the stick, the least is to be taken seriously about medical issues.
? Did you not teach her yet? A 14 year old isn't gonna understand some things and the way you messaged here it seems like you think you're a victim of your child.
When I finally realized how painful this really was as a clinician: i watched an episode of "I didn't know I was pregnant." The woman didn't call a doctor or go to the hospital while unknowingly being in labor because she thought it was just her endometriosis. She had the baby in a bath tub. Let that sink in. She was in full blown labor that ended in an unassisted , unmedicated vaginal birth. Because she had routinely been in that much pain. Anyone who has had a baby without meds-think about going through that monthly!
This sounds too familiar. I got pregnant with twins and was pretty scared of the birth :) When the time came, I thought "well this isn't too bad: the contractions are just like my regular period pain". Or rather, my monthly period pain was actually just as bad as freaking birth contractions!!! Luckily, I never got dismissed, I got diagnosed at 18, was on the pill for a few years but when we were trying to conceive nothing worked. I have Endo stage 4, when the Endo tissue had permiated other organs and there is vast scar tissue. I had three operations, and all the Endo cysts and fibroids grew right back within 6 months after the operation. My chance to get pregnant was less than 3%, but I did it!!!! Second IVF attempt it worked. There is still hope!!!
Took 15 years for my diagnosis. I was unable to stand for more than twenty minutes without misery. Mine started from a C-section. My twenties and thirties were ruined. My kids didn't get to have an active mom.
I was told, by a female doctor, when I was 14 that 'It's just something us women have to put up with'. Couldn't go to school / work some days due to pain. Can't stand upright and the pain still knocks me to the floor some days. Finally diagnosed with extensive pelvic adhesions at 32. Everything glued together, yet I was told countless times it was in my head, I was 'looking for attention'. This was caused by a burst appendix and peritonitis when I was 11. It's shocking that even today, our pain is ignored. Sending positive thoughts to all.
They diagnosed me with PCOS and I said “my mom, my sister, my aunt all have endometriosis I think I have it too. My symptoms don’t match PCOS” and they said “well, it’s hard to diagnose that” OKAYYYY doesn’t mean I don’t have it???
I had ONE echo by a competent gyno after 14 years of pain and finally got diagnosed. If he can see it that quickly, how is it hard to diagnose?? It's ridiculous.
Thanks for talking about this! For 34 years I suffered the worst pains, for 2 days I was out for the count. I could not live my life normally. But my doctor only suggested birth control. They literally just mask the issue instead of trying to figure out how to solve it. I’ve had my son since and no longer suffer from bad periods but my heart goes out to all my ladies who still suffer!
Thank you for being a voice for women. I can tell you that all my life men have dismissed menstrual pains and called women weak, tell us to toughen up and to "get over it" and on the days that are so intense of pain where even leaving the home the movement of walking bring excruciating pains we still have to go to work, clean the home, care for the kids, serve her man and somehow be cheerful and slap an unknowing smile on our face. Yet when a man gets the sniffles, the world stops. I'm not bashing men, they don't know any better but to completely dismiss and insult a woman for being a bit moody or short tempered you would be too if you just suffered hours upon hours of knife stabbing sharp pains in your lower regions. Thank you for being a voice to women and letting some women know that it could be other medical issues going on, even PCOS is very painful especially when the cysts explode(burst)
@@GhoulishGash you have no idea. I used to have normal periods, but then I developed endometriosis one day, and my period pain went from normal to excruciating. Back when my periods were normal, I used to invalidate others women's period pain, but now that I experince it, I know it's real, and I feel horrible for invalidating them. I used to hardly notice my periods, and now they have me screaming out in pain and completely bed ridden and unable to walk. Endometriosis can even be life threatening. Did you know that endometriosis causes internal bleeding that can fuse organs together and even cause cancer. You have no idea what you're talking about when invalidating endometriosis pain. It's on the list of the top 20 most painful diseases in the world. Go watch those videos of men trying out period simulators and come back. Endometriosis is extremely common too. 10% of women are surgically diagnosed, but it's massively under-diagnosed, and up to 30% of women might have it. Go learn your facts before invalidating one of the most painful diseases in the world
My daughter has stage 4 endometriosis. She had an excision early last year, they found it in her diaphragm and removed it. However, in the late fall and winter, she started having bad chest pain, breathing issues. Her lung had herniated through her diaphragm where the excision was. She had it fixed a free months ago. She lives in constant pain. She’s tried to have a baby only to have 2 miscarriages. My heart breaks for her, it’s hard to see your kids in pain, even when they are adults.
Could also be adenomyosis, or uterine fibroids. I suffered for several years gyno after gyno with no help.. Interventional radiologist can help you SO much more. I was diagnosed and treated within the first month of seeing my IR
I assume this was conducted, but has your daughter been EXTENSIVELY tested for Vitamin D, B12, B9 and zinc deficiency given endometriosis? Not addressing present deficiency will destroy health.
@@DrakesdenChannelyes, she has. She had her 3rd excision surgery. She works with pain management. She desperately wants a baby and has not been taking all the meds she could be due to that. Ultimately I think she we have to have a hysterectomy, which is heartbreaking.
@@MetalGoddessJen75 Horrid to hear, but the best you can do is continually checking mineral and vitamin status every few months and making sure to eliminate inflammatory foods and correct issues. I would absolutely recommend a hair analysis for heavy metals and minerals, which may be lacking and causing further issue. With pregnancy, Vitamin B9 is crucial and definitely need to consult doctors on pregnancy vitamin supplements.
"We found it everywhere." My surgeon's words after my first endo surgery in '19. I wept. Those words told me (and every person that discounted my agony) that I was not actually "being dramatic" or "just have a low pain tolerance" but an actual disorder that could not be denied.
That's me . At the age of 39 but suffering since age 10..had a myomectomy to remove fibroid but I knew from searching online that it must be endo I was suffering with from my first period. It was on my colon ovary,bladder, etc.
I am so happy you got the help you needed and it is unfortunate that you hadn’t been heard for so long! I just wanted to chime in and point out, that “how much” endometriosis you have, doesn’t necessarily correlate with how much pain you’re in. Some women are riddled with it while having little to no symptoms, and some women will experience immense pain, even if it’s just a tiny spot. It is so unfair, but I wanted to say it in case someone has bad pain and gets a lap where they find very little endometriosis.
@@ravioliravioligivemeareaso4447 very good point!! Even if the surgeon doesn't find any it doesn't mean it is not there. It may be something else entirely that is painful as well-there's not "nothing wrong". Point being-we know when there is something wrong in our bodies, and should be heard when we voice concern.
I had a hysterectomy 10 months after having my 4th living child because I hadn't stopped bleeding since her birth. My doc had me back in 8 weeks later post-op. She said my uterus was very rubbery, like a basketball. She also said it looked like a hornet nest she pulled off the side of her house a couple years previously. Then she told me about the endo and adeno and said that all 4 of my living children were miracles, because as awful as my uterus was, I should never have had ANY kids.....she also said the lab results came back from the uteran biopsy. It was precancerous. Dodged a HUUUUGE bullet there!
@ravioliravioligivemeareaso4447 sometimes when it's everywhere, it can damage other organs to the point it can be debilitating. I don't have a family history of endo, and none of us had ever heard of adenomyosis until I was diagnosed with it after my hysterectomy.
I’ve had excruciating periods since I was a child. After 25 years of being told to “everyone has bad periods, take some pain meds”, I just got diagnosed with multiple uterine fibroids the size of chicken eggs a few months ago. This hit really close to home, especially the part about women suffering alone. Thank you for bringing up more awareness to this. It means a lot.
I'm sorry you had to suffer alone, and no empathy was shown to you. And no, not everyone has bad periods. For me, most of the time, the pain was mild and a motrin took care of it then it was pain free. I consider myself lucky.
As a woman who doesn't get any period pain, I always though "If I don't get pain but others do there must be a reason for it. Why haven't we found the reason yet?" but no, I didn't have pain because I was lucky and having pain is the "normal". Pain should never be treated as normal. If men had to go through pain every month the reason for my pain free periods would've already been found centuries ago.
My experience with this stuff is rather limited (still a teen) and it changed so so much through the years. First I had almost nothing, then I had Periodic pains (not that much to cry or anything but it still hurt a lot). It got better due to birth control pills but it’s still there. The first time I ever heard of it not being normal was because of my Dad. Not my Mom or a doctor. My fucking Dad. Still never had any explanation rather it’s a disease or not. But it’s nice to hear that there are woman who don’t have these problems!
@@Shadow-by2kb it's pretty frustrating seeing all my friends suffer through it and there being hardly anything to help them with it. Body changes definitely affect periods, my mom's friend had said that after having her first kid her cramps went almost completely away. Did you ever have a weight change by any chance? I'm convinced weight gain or loss affects how periods feel. I keep trying to lose weight, which means my weight changes a lot and I keep noticing my periods also change. I still don't get pain, I do get other symptoms like being moody or having food cravings. I swear they get more severe the more weight I lose.
I knew a woman who suffered from severe pain and doctors dismissed her suffering as “period pains are normal” for years. She killed herself. They discovered endometriosis in an autopsy because she wrote a note and this was the reason. Society has failed women, and medicine is only starting to realise that. A shocking part of it was that two female doctors scolded her for being dramatic. She begged for a hysterectomy and they dismissed her.
Wish she was in India. The tests are taken immediately if we tell the Dr that we suspect the condition and want to get tested, within that day the results are out.. And treatment can be started then and there. Wish the West has such a system where no matter what the patient is taken immediate care.. I have faced such problems in US and they are taught to say I think that everything is in your head.. BS.. what's in your head.. doc.. why do you guys even study medicine if you are not able to treat the patients properly and atleast listen to them!! 😢
I'm from India too, and I was facing some minor fatigue and fainting many times, also I'm from one of the hottest regions of India so I ignored it and thought maybe summers and dehydration was responsible for that ... But my doctor forced me for a blood test and later we came to know that I was severely anemic 💀@@rajib8231
I'm an NRI and my mom raised me with the impression that India does not have progressive healthcare for women. Lived with that belief for years, until I started having issues with using a menstrual cup and the doctor in my residential country stopped me mid speech and started BERATING ME for using a cup. When I came to India the doctor was so much more understanding and heard me out. @@rajib8231
What India are you talking about?? Lol. It's the exact same.here, I can say by your name you are not even a women/girl @@rajib8231. Don't talk on our behalf. I have tons and tons of similar examples where doctor dismissed our symptoms. I have first hand experience on it too..
I am from India. It took 17 years for my diagnosis and guess what its not even doctors who diagnosed its completely my research based on my symptoms.Trust me i have visited well renowned hospitals. It is true everywhere period pain is dismissed. Doctors say oh its just pain it happens to every women. Even when in every period you go through pain way beyond tolerance, vomiting, nausea, leg pain, thigh pain , diarrhoea . You can't eat , you can't drink whatever you consume you just puke. But still there is no remedy . At last my surgery was done and was diagnosed Stage 2 endometriosis. I don't have kids. Because you don't have to deal only with pain but fertility issues are real too. So the societal pressure of having kids even after going through so many hormonal treatment your life becomes hell. But still i was hoping i will have pain free life after surgery and will adopt kids but no, I am not pain free . In a 4 week menstrual cycle i remain in pain for 3 weeks , mild pain for one week and severe pain for 2 weeks. I have to leave my job . Life is tough honey no matter where you are. You can't even imagine how many times the thought of giving up on life comes in mind. Specially when you are married. But still you have to be strong
I read an article recently that stated studies traced most endometriosis to a certain bacteria, and they believe that’s how it starts. Hopefully doctors will soon have a good method to test women for this bacteria and have a create a cure
I'm pretty sure tho its a genetic thing. From what iv can tell with my experience and my gynecologist explanation of my condition, it seems to be a genetic deformity but I do hope it could be cured
@@partygamingz3332It's genetic to an extent. Any geneticist will tell you disease is about gene expression. Gene expression is altered by stress, hormones, toxin exposure, and physical and emotional traumas. It's a bit of everything, but so far there are no definitive studies done that prove any genetic correlation to endometriosis - even with the common MTHFR mutation. It's still at the "correlation, but not causation" point. They do know it can run in families, but that still could be more to do with environmental factors or learned habits. Some day it will be much more clear! It's so great to live in a day and age where so many medical studies are available online!
@@maryamjoha They found it in aborted male babies in France. It's genetic. You're born with it. It doesn't become active until you start producing large amounts of estrogen because that's what it feeds off. It doesn't become active in men because they don't produce enough estrogen. This was known and documented when I had my hysterectomy 15 years ago. Edit: As this doctor stated, it wasn't really studied until the 90s. Meaning there's a lot of undiagnosed women from past generations. Someone not knowing a family member had it doesn't make it not hereditary. It just means they were never diagnosed. Just like hereditary diabetes. While it may skip a generation, it's still hereditary.
I think the most terrifying example of this is from the women that suffer ectopic pregnancies or their appendix bursting. Their period pains were so painful that when those things happened, they didn't even know until it was too late. That part is absolutely wild to me. Edit: It literally breaks my heart reading your stories in response to this comment. I wish I could offer more than just thoughts and prayers but keep fighting the fight, girls. You're all so much stronger than me, I'll be rooting for you!
I went through an ectopic in 2017. My tube exploded because lil bean was growing in my right tube. I got sent home a million times from the ER with the phrase “if you’re miscarrying, go home and call your OB, there’s nothing I can do” despite me telling them over and over again that my OB was pretty sure it was and ectopic and to return to the ER if I had more pain or if it just kept continuing. I also had abnormal bleeding and was passing bits of my own tissue each time I went to the bathroom. The last woman that sent me home use the excuse that it was New Year’s and that everyone was tired, so I’d have to go home and deal with it there and come back in the morning to see my main doctor. A few nights later I literally felt everything explode in me and the blood flood my abdomen. It was even worse when the blood began to clot. The pain was unbearable. I was rushed to the ER AGAIN and this time i demanded to speak to the hospitals president to make sure that woman didn’t almost send someone to their death again. My drs who did the surgery said that my rupture was millimeters away from an artery, and I was very lucky to be alive.
@@elithasim make sure you have the Dr who writes you off to put it in your notes and sign it, don't EVER. EVER. leave until they do. once it becomes their name attached to it, they risk lawsuit after the fact for dismissing you without investigation and will be more likely to help, absolutely insane that strongarming is nearly the only way you can get the help you need, but it's there. much love ❤
This was me last year. I really thought I was on my period. The pain kept getting worse and worse until I started screaming “I’m having a miscarriage”…I didn’t even know I was pregnant. I finally threw up and was knocked out cold after. The throwing up and passing out thing is a “normal” occurrence for me when I’m cramping. Next morning I woke up feeling absolutely fine but my mom was not convinced. I was actually hemorrhaging the whole night from an ectopic pregnancy while passed out. I could’ve lost my life in my “sleep” at 31 years old that night. Thanks be to God I am currently pregnant with our rainbow baby.
My recovery from invasive surgery to get sterilized and to treat endometriosis, was easier than the majority of my periods. I was in recovery for two weeks, and couldnt work. Id still prefer that over periods I had as a young woman any day of the week.
After 34 years of excruciating periods, I finally got diagnosed with adenomyosis and had a hysterectomy. When the surgeons went in, they found extensive endometriosis. They resected as much as they could. It’s only been 7 weeks, but living without that pain is amazing!
I had adenomyosis also. I had a hysterectomy at 34. I was sick for an entire two weeks before my period. It was the same thing every month and it was exhausting!
Hysterectomy for Adenomyosis changes lives, for sure. I think I was lucky that I didn't have endo, but when I got a hysterectomy in 2014 at age 41... for the first time EVER I heard the word Adenomyosis. No one online or that I knew, even those w/ Endo had heard of it. My OBGYN (female) didn't ever mention the *possibility* for my 37-42 long cycles that ended w/ 7-8d of heavy painful bleeding. She wanted me to get an Ablation which would have just cost a few hundred, & kicked the can down the road until I could afford the Hyst in a year after meeting Medical deductible for "routine" (non GYN) care. SUCKS because I think I'm having bladder issues tied to some of those ligaments that are no longer attached to my uterus. .
My hysterectomy at age 35 was a lifesaver. The monthly SEVERE pain starting at age 12 caused vomiting, diarrhea, shaking, chills, sweats, acute headaches, complete body pain including down my legs & throughout my back/neck. I'd lose 6-7 days a month from school, work, and home life. Having 2 babies did not help. Grew worse. I'm 65 now, and though I was depressed after that surgery and got through that, I have never once regretted it. Doctor had a tough time removing uterus vaginally bc it was swollen to size of a football with endo.
I went to my obgyn last year day before my 38th bday and I wanted a full hysterectomy due to endometriosis and due to my health issues and problems healing after surgeries he highly advised AGAINST it and told me my best option is to stay on the birth control shot until I'm thru menopause. I understand where he's coming from as it's a major surgery and I would have a lot of difficulties healing & not causing more issues. But it still sux.
@@MariahWatkins2007 I had a partial hysterectomy to keep those good hormones going, but now I’m on a drug to suppress them short-term. I’m 47, so I’m not too far off from menopause. But OMG it has been amazing for me. Also, I just learned from my cardiologist that there seems to be a connection between endometriosis and dysautonomia, which I also struggle with. Since the surgery, my heart issues have been improved, which he said he sees quite often and I may even heal completely from the dysautonomia. Crazy! Don’t be afraid of getting a second or third opinion. (Also, I’ve tried everything I could before resorting to therapy. Last treatment was IUD, which helped, but not enough. My doctor was glad we did the surgery before the endo got to my bladder.
I had endometriosis. The pain I suffered at times was horrendous. At times I would almost blackout with the pain. I used to think I was just no good at being a woman and if I could just be a little bit stronger I wouldn't be so bad at being a woman. Finally, in my late 40s I had a hysterectomy (It's not necessarily easy to talk medical staff into doing a hysterectomy when you haven't had children). Once I had recovered from the operation I realised I had been ill for the last 20 years. I wasn't a failure at being a woman. I had been suffering with a genuine disease and had been ill for 20 years. Having that hysterectomy was one of the best days in my life...
@@Ann--Rosethat is absolutely not normal pain dear. No one should have to handle pain like that. Period pain should be uncomfortable, not distressing. Throwing up from the pain is severe pain. You must find a gynaecologist who is experienced in treating endometriosis. You can do this online by joining endometriosis forums in your area or state and asking them for help. They will support you. Learn about endo and write down your symptoms. The only way to diagnose and cure endo is laparoscopic excision surgery. The pill just hides the symptoms. If a doctor just wants you to take the pill without giving you a laparoscopy to find out if you have endometriosis or not, find a better doctor. I have had terrible pain for 15 years and the only thing that finally helped me was cann*bis suppositories (Foria Relief is the brand in California). You can make them yourself by mixing whole spectrum cannabis oil with cocoa butter. Sorry for the info dump but information is power! Screenshot this message and reply if you have any questions. Fight for yourself dear and don't ever give up. 💜
I was never diagnosed with endometriosis but I did have a wonderful doctor that told me to come into the office when I was having bad cramps. When I did this the next month, she took external & internal ultrasounds on my uterus. She was shocked to see that I was having uterine spasms aka labor pains. I had to deal with this pain, along with a high temperature of 102 - 105° F, a blinding headache, and bleeding so heavily I would go through at least a box a tampons and a full package of pads (worn at the same time) for 5 - 15 days, per month. I was put on the pill, which cut my issues down to 5 days total, but did not help with lessening the issues. I started my period at 9, but it didn't get really bad until I was about 12. I had my last period at 55. That's a LOT of years to deal with such pain.
Once I had a terrible stomach ache, my mother took me to the doctor, he said it was a tummy bug and that I had to go to the pharmacy. The pharmacist hears my symptoms and asks, "Are you sure you're not pregnant?" I was ten.
It's very sad that people always ask "you sure your nit pregnant?" Even if you are 6 years old. Growing up any time I was having issues with anything, the first question would be "pregnant?" No. Why would you even be asking a little child that?? Doctors almost never believe women or kids when it comes to pain. It's very sad. I just got lucky when I moved to Texas that they actually had doctors that would listen and try their best to take care of you.
My mom worked for Vanderbilt Hospital in the ER back in the 80s. She said the youngest mother she met was 9, but that mothers under the age of 12 weren't uncommon. These things are a lot more common than most people think. There's a reason they ask those questions, despite age. Most wouldn't look at a child or granny and think they could be pregnant, but it's something that's easy to rule out.
I've had cysts on my ovaries since I was a kid, I've had a couple burst. My dad just told me I had a low pain tolerance. Doctors told me it was a normal level of pain. Fast-forward to my late 20s, going to a gynecologist and having a pelvic untrasound for the first time. The tech just looked at me stunned and asked "how are you not in pain?" I said "I am... But I'm used to it." I had two cysts over 10 centimeters in diameter. Side note, eventually one caused my ovary to twist around my fallopian tube. I had to have surgery, my fallopian tube was removed and the other tube was deemed non-functional. Having large cysts is not just a "be stronger, deel with it" thing. It is dangerous to your life.
Omg same! In 2012 when I was 26, i had an ultrasound done bc I was in agony, I had a heating pad strapped to my stomach and couldn’t stand straight. Not only were my ovaries covered in cysts but one was so huge that it made the ovary flip itself, cutting off the blood supply causing it to swell twice its size. I’d never heard of something like that happening before! It wasn’t until I went to that one dr in my 20’s that someone finally listened to me
I’ve had similar experiences with ovarian cysts and ruptures of them. I personally believe every woman should have their insurance cover MONTHLY gyno visits to check for ovaries and avoid any potential ruptures or fallopian contusions.
My story is very similar to yours. I had to have surgery to remove cyst & my gyn asked me how was I not on pain meds. She recommended a hysterectomy but I said no. So she let her office know when I call asking for meds to give them to me. She said I was the 3rd worse case that she ever saw in her 30+yrs.
I think it's possible, they have sub reddits with lists of doctors that will sterilize you at your request instead of denying it because "what if your (future) husband wants kids?" I wouldn't be surprised if they already had lists of doctors and providers that are more compliant with patient care and needs.
Frankly speaking there must be official complaints and thus them getting cited to cone in and "either pass the test checking if your knowledge and conduct is up to date or off with your license" if reports accumulate. As my GYN said: "It's no longer acceptable for any gynecologists of any generation to not know endometriosis in 2023 (at the time, in Germany)." Also the only way to diagnose it for real is explorative laproscopy (probably spelling it wrong right now) and that doesn't help with dismissive doctors whom you need - to forward you to as specialist - to be helpful! ///orz///
One of my college friends has endometriosis and ended up needing a hysterectomy to keep from bleeding to death. She was only diagnosed when a new gynecologist saw her in a fetal position during a period. When my friend told him what her mom had told her (periods are painful), he said “honey, they’re supposed to be painful, not torture.” She was 18 when she was diagnosed, having her first period at 12.
I went to my doctor over and over again due to my pain and symptoms and because she never found anything (and I guess didn't think of endometriosis) she started accusing me of faking it and told me I was simply too weak for life and too weak to go to university. Literally wtf?? I'm so grateful to my gastroenterologist who suspected endometriosis (I heard about it for the first time from him) and we were later able to confirm it. He's my new doctor now!
Wtf!? I hope your reported that doctor. That's SO unprofessional and just downright mean. Her being too stupid to diagnose is not your fault, it's her responsibility to send you to the right specialist or look outside the box for answers. It's time for women to start making more noise when we're treated badly by "medical professionals".
@@maryamjoha Unfortunately, reporting a doctor in my country leads to nothing... especially over something like this, they'd probably just tell me to relax and find a new doctor if I'm unhappy (which I did, of course). Doctors have so much power here, you don't really stand a chance. But luckily, she was already pretty old (makes sense given her mindset😅) and she retired shortly after I left to find a better doctor.
That's really sad. I don't get mine too much anymore because they gave me birth control for 7 days to stop it. But I always go to ER, and they give me an IV drip with pain meds. Im glad they believe me because the pain is just to scary
Please look into Whole Food Plant Based Nutrition! One of my colleagues was able to reverse her endo with it! PCRM has good articles about WFPB Nutrition vs reproductive health, and of course you'll also prevent many other conditions and diseases!
I have thrown up and fainted multiple times from the pain I have during my period. I first thought it was normal and my doctor suggested I should start the pill, to “help with my depression”, “prevent acne” and “lower the pain”. Well it hasn’t helped me a bit, I just gained weight, I’m moody and depressed, and switched doctors three times already, but everybody tells me the same thing. “Period is painful for every women” or “maybe you’re just more sensitive than others” or “it’s really hard to diagnose so even if you had it, I don’t think you’ll ever get to know”, just stuff like that. I don’t think it’s normal for an 18y.o. to faint and throw up from the pain, needing ibuprofen 600-800 every 2-3 hours just to get through the day and no, I am not “sensitive”. I played soccer almost 7 months with a broken ankle, had a dislocated knee cap and relocated it myself and have multiple piercings and tattoos, all without too much pain. But this? This is just too much to bear honestly.
I'm so sorry to hear all this. The only thing I feel a need to tell you is to just watch out for any new random pains where your liver is as time goes on self medicating. I took stupendously high amounts of Tylenol and ibuprofen combined every 4 hours to get through my last three years of high school due to unexplained chronic pain no one believed I had, and self medicated myself into mild liver disease. Doctors accused me of drinking myself to that level but I can't actually drink (stomach issues from the pain medicine also), never been drunk in my life (24 now). Just took 800-1000mg OTC NSAIDs every 4 hours of waking life for roughly 2.5 years every single day. It's so frustrating and lonely being looked at ignored because the pain is invisible to everyone else. Keep fighting the good fight and just always try your best to be mindful of how you're treating one problem, and how it may impact your body in the future. I just can't stand seeing teenagers/young adults go through this bs with the medical system and I get scared thinking of what people might have to go through, what I went through. How hard it all is, how isolating at times. Stay strong, and never stop advocating for yourself. As my doctor told me, "if you don't keep complaining about the problem and make it our problem we just naturally assume the problem you have has gone away and is no longer in need of solving." So don't let em forget you're still in pain, or THEY WILL. It can be hard to keep fighting for yourself, but you can never give up, that only makes things worse and harder to tackle later on when you try again. Wishing you the best in your battles, keep going on always, never stop picking yourself back up
I just wanted to say i have been through this for multiple years. I would pass out from pain. Throw up. But after multiple ultrasounds i had found cysts on ovaries. Ibuprofen was the only help. A surgeon i went to for a consult said theyd just take out my uterus because why do i want to be miserable he said. I said because i want to be a mom someday. I walked out mad. I kept my uterus and continued to deal with it. I will say that ibuprofen and a fiber during pms helps the most. Heating pads during your period on your lower back. Constipation makes it so much worse. After my first pregnancy my symptoms were cut in half. After 3 kids i have bad periods but not excruciating. Have hope.
Check insurance, and call an OBGYN or Gyno office directly. If you need a referral, go to the doctor and refuse to leave without one. Say you want it written in your chart that they are denying this referral while you are expressing “x” symptoms… I was told that since college from ALL primary care doctors. The last time one told me “period pain is normal,” I went home and phoned an OBGYN office directly. Told them my symptoms and they immediately scheduled an ultrasound over the phone. Turns out I had uterine polyps and adenomyiosis. It took me 14 years to get taken seriously. It’s B.S. Skip the primary care doctors, because they’ll never believe you. I also learned that the magic words are to tell them you’re “spotting between periods.” Because doctors overlooked 14 years of me barfing from pain, unable to go to work and school because I can’t control the bleeding, etc. but the second that started happening, all of a sudden they cared, when my main symptoms were unchanged for 15 years. I also had to eventually switch OBGYN’s to one who specialized in endometriosis and am finally getting the surgery this June! The first one I went to told me they don’t like to do the surgery for endometriosis because they treat it the same with hormones, birth control, and blood clotting medicine. No, I would like 15 years of painful inflammatory tissue (that could also latch on to other organs and even can cause cancer) removed. So find doctors who will treat you! Good luck!
It's not normal and you need treatment STAT, that means right away. I found hot baths and hot water bottles over that part of me were very helpful with the pain until I was able to get help.
I saw an interesting interview with a woman who went on a completely carnivore diet and by the second month her pain was gone. I can’t remember what channel I saw it on but I’m giving it a try. I can live without carbs if it means no more agony.
I was rolling in pain after birth. I couldn't walk. I couldn't even sit. I would pass out from the pain. I couldn't carry my baby and I was terrified drive. I spoke with my doctor at the hospital, who dismissed me. I called the office begging for help. They told me to wait for my postpartum appointment in six weeks, and they still ignored me! THREE YEARS LATER, I was still in the same condition. I went to see my primary doctor for something else, and took along my handy donut pillow. She took one look at my pillow, asked me what was going on, and wrote a referral for a pelvic floor physical therapist that very minute. Turns out I had significant damage from a birth injury.
I knew somebody once who was consistently dismissed and/or emotionally abused by doctors for her endometriosis, to the point she mostly stopped believing in medicine and became a conspiracy theorist. People in this field must be capable of empathy, otherwise they cause damage.
I'm really glad someone brought this up because I think this is a hugely underestimated pipeline to harmful "alternative medicine" practices (no shade on non-medical treatments that actually work, there IS stuff that's legit, but unfortunately the term gets co-opted by a lot of bullshit). You usually find more women in those types of spaces or participating in those practices, right? And relatedly, you usually find more anti-vax women than men. It's not because ~women be feelings~, it's because when the mainstream literally fucking refuses to help you, OF COURSE you turn to the snake oil salesmen promising you the cure!
I'm one of those "crazy" conspiracy theorists, because of how heartless doctors are. Have to take care of myself, supplements, exercise, eating healthy, doing my own research, ect. Can do almost anything for my health except for actual surgery.
In my case, things got all fuvked up. I got lucky and was diagnosed fairly young, about 10 years ago. Unfortunately, a few years later, I switched insurance (because of cost/new employer) and the new health insurance refused to accept that diagnosis, stating I was ~too young~ to have it and I was ~over reacting~ to the pain. My over reaction was that my EMPLOYER was so concerned about me that they called an ambulance to take me to the hospital. The paramedics were so concerned because my blood pressure was so low that they couldn't get a reading. They were very VERY concerned because they took it several times and it didn't read. The nurse when I arrived was concerned because apparently I was so pale, I looked like a corpse, and I was shivering from cold sweats. This wasn't a one time occurrence either and I've learned to just not go to work during my period. But I'm over reacting, it's my bad. I still can't get a proper diagnosis and with the other issues I have going on in my life, I don't have the time or energy to fight for that.
No, of course the insurance company knows better than the doctor 🤦🏽♀️ Really sorry you're in that situation, hope things change for the better for you
I'm so so sorry please don't give up. You have to keep pushing on you will get diagnosis to stick. I'm sick that you have to fight for this but please don't stop you deserve care
@@korvincarry3268I work at a neurologist office I say this often. I have straight up grilled the person making decisions they have no medical training and somehow they find unscrupulous medical professionals that uphold their decisions. Health care should never be about profit it should be about people and health
I started suspecting endometriosis myself after my period pain got off the charts in intensity..This month alone i screamed in agony an entire day (day 1 of period) which left me pale and shaky and nauseous and ultimately fainted ..FROM PAIN. This is NO JOKE. Everyone dismisses us with some painkillers (which i can't even take anymore because i developped intolerance). We need treatments, we need progress and we need to be heard !!! Bless you all sisters out there who go through this horrendous thing every month .
I've found taking iron helps with the pain some, plus you need to anyway since you're losing blood. And lots and lots of water. A heating pad also can be a godsend. Other that that I wish you well because sometimes there just isn't anything that helps with that level of pain - that won't destroy your organs or screw with your brain at least. Look into herbal supplements (NOT home remedies or MLM crap) that will gradually improve the hormonal imbalance aspect of it and that will also improve the pain a bit. It's still probably won't go away, but it's important that you can get it down to tolerable/manageable.
That’s sounds horrendous, idk where you live but if it’s legal for you to get thc (preferably edibles) I highly recommend doing it. Even if it helps just a little
I have had endometriosis develop since i first got my period. I had a laparascopic exploratory surgery as a teen to diagnose it but it was "invisible to the naked eye" as it was developing on a cellular level at the time. I went through 5 years of doctors forcing me to take drugs that made me sicker and it never helped that my normal menstrual cycles were 3-4months apart and lasted a full month. Imagine bleeding for a full month straight and passing out from the blood loss. I constantly felt the endometrial tissue spread through my abdomen and twist my organs until i couldn't walk. It took 8 doctors before i convinced a surgeon to perform a total hysterectomy at age 19. I hiked a mountain 3 weeks post op because it was easier than ever without the strain. It saved my life.
@@marvin2678First of, its "periods" not "peripd" and well not everyone's periods are the same so I hope you know you're sounding like a total fool right now
Which is why women with these conditions swallow the pain or dismiss it entirely. After all, other women still live their lives through all the pain so why can’t they. That pain is their normal experience and it’s incredibly hard to compare pain levels because these women have always experienced this pain.
My sister had it when she was 12. The doctors told her not to make a fuss and that it was a normal period. And then our mother did too. It was so bad that she had to throw up and sometimes fainted. But even with these symptoms the doctor just said that it was normal. When she asked for tests to be done, the doctor said that she wouldn't do it if nothing was wrong. It was so bad that she didn't dare go to the gynecologist anymore. Until she came to my grandpa crying and said that she felt like she was going to die. Our grandpa then took her to the gynecologist, who was a man. He actually treated her for the first time. After just one test it was immediately clear that she had it and he was shocked that her gynecologist at the time had never noticed it, even though the symptoms were clear.
Endo shows in a laparoscopy which is usually not the first test...what did he do? Because unless organs fuse together, you won't see anything on ultrasound, CT, etc..
There is no test for endometriosis. Exploratory surgery is required to diagnose & confirm (if already suspected.) It's the biggest reason for the delayed diagnosis. Surgery isn't a first, go-to option. It's a last resort option when all others have failed. Another big reason: the symptoms are same or similar to several other probs/conditions that don't require surgery to diagnose &/or are easier to treat. Usually those will be ruled out first, before moving to the final option of surgery.
My girlfriend's period cramps are so bad that sometimes she can't even walk, meds don't help her that much and so far the only thing that has helped her are warm compresses, but it's still awful to see her suffer so much, sometimed she can't even eat and it's even worse when we get our periods at the same time because neither of us has enough energy to cook/buy stuff we need :(((
Same thing happens to me. The cramps affect not just my abdomen but also my legs and it's excruciating. It's why I keep things like frozen pizza or cans of soup in the house. I have a family so I also have stuff like frozen batches of spaghetti sauce and meatballs or chili or just quick, packaged stuff that can be heated in the microwave with no real cooking and one dish. It makes a big difference because while sometimes I'm sick from it, other times I'm super hungry and not eating makes the headaches much worse. I also love my air fryer because there's nothing like a batch of fresh, crispy, greasy French fries some months.
Years before finally getting my Endometriosis diagnosis. Finally found a doc that went, "sounds like Endometriosis, I'll send you to a gynecologist ". Gynecologist said it's probably just "painful periods" but went ahead and sent me for an ultrasound. Ultrasound tech said they couldn't see anything, so it's probably just "painful periods " but we'll send you to a OBGYN surgeon if you want. I said yes. NICEST MALE DOCTOR I'VE EVER HAD! He said it sounds like Endometriosis and I had surgery. Sure enough, Endometriosis. Felt 10x better after surgery, but I've been having bad reactions to preventative meds, so finding stuff that works is hard...started taking a low hormone birth control and Frankincense and NOW I only have painful periods. My body aches and pains have been reduced dramatically. Chronic nausea is BAD AND i can tell if I accidentally missed my meds, because that nausea hits hard. My sister was happy when I got my diagnosis because now there's official "family history" of it and she's got a better shot getting her diagnosis earlier than I did.
Hey have you tried the medication Duphaston? Maybe that can help you. I have problems getting my normal period so instead of birth control I take this.
Wait so my doctor also said they ddint find anything when i got ultrasound. My mom and my family has a histoyr of endo so could that mean that i could actually have it?? And the pain staking periods that make me need to faint and want to go to sleep and cant even get up without need to run to the toilet could have still been endo and my doctor was just blind
@@bingolinging Wait, you have family history and they STILL don't take you serious? Yeah, find you a different doctor. The only way they can actually confirm Endometriosis is by doing surgery and physically looking. Don't take no for an answer. You know your body, don't let them gaslight you or family.
I remember before I got married I kept telling my husband how painful my periods were and he couldn’t wrap his head around it. The second period I had after we were married he told me that if I wanted to have a hysterectomy, he wouldn’t be against because he couldn’t stand to see me in all that pain. Regular painkillers don’t help. The contraceptive pills stopped helping.
I had one for this reason. I couldn't spend my entire life in agony 3 weeks out of every month. The vomiting, I was told it was just hormonal and get over it because some day I'll want kids, after I had a partial hyst, no more vomiting, imagine that! I've had a extremely high pain tolerance my whole life, this was the only pain that ever had me vomiting. And on a regular basis at that. The idea of kids is nice but for me not worth a life of incapacitating pain daily. I'll settle for a surrogate or adoption. I don't regret my decision at all. Life was miserable and the pill hardly helped. I was done.
@@CenturyOakWindStarWow we are the same 3 weeks every month of feeling sick, even when I skipped my period. No women in my family have this and they can't wrap their head around the idea that someone can be suffering this much pain
A friend of mine has been asking for tests from her doctor for 10 years, has been to 4 diferent doctors and got the same response from all of them "periods hurt welcome to being a woman" she finally got them to run some tests and they found cysts on her ovaries and uterus, thankfully they aren't cancerous and she's finally getting treatment she should have been getting a decade ago, doctors refusal to acknowledge womens pain is infuriating
I highly doubt it’s just 10% of women. The number is definitely higher than that. Doctors barely care to do the procedure to even check. Healthcare and especially women’s healthcare in the USA is awful!
Its probably everywhere, here in a town in he netherlands we have an awful doctor who didnt believe me and my mom when we said that walking up 6 flight of stairs was torture for me due to being exhausted and literally in pain in my leggs, and it doesnt get better, i have been walking like mabye 50 staircases every week for months before giving up and realising my body is just not going to get in better shape that way. He wanted to discourage me from getting an elevator pass. When i said:"you just want to see me in pain" he was like:"no! Now YOU are twisting my words!". I dont think he should be a doctor, thats just more than idiotic. How am i twisting his words when he basically says that i just need to torture myself by walking up stairs? Thats straight up gaslighting. This is the same person who said that hypermobility is not a disease and that its always good to have... He tried to disprove that that was where my pain was coming from to say "see, you dont have pain when walking up stairs"... Fucking asshole but he did give me an elevator pass... Not because he wanted to but i got it.
10% is enough for it to be common. 10% is not rare but many doctors act as if it is. Medical study of women corpses donated to science have found women with no medical history had horrific undiagnosed cases of endometriosis many more times than expected.
@@theultimateawkwardness4025 it’s really sad I really feel like the care we are receiving for medical professionals has really decreased greatly. I’m sorry you had to go through that.
@@robertsteinbach7325 Thank you so much for that information, I really feel like doctors have a really bad habit of down playing patients concerns about their health.
@@imaginationparadise1494 thank you for your words. He is a pretty bad doctor but he gives everyone what they want so in the end you will get what you want. I have had way way more trouble with mental care, quite hilarious some things, just the irony though.
I waited 25 years for a diagnosis. Multiple burst cysts with no pain relief. And then they couldn't ignore a 12cm ovarian endometrioma that almost cost my life. I've been in pain every day since I was 11. Not one doctor took me seriously.
This is me right now. And I gave up trying to get help about 10 years ago. I've been suffering for almost 25 years now. I have a strong family history of endometriosis and pcos. And my pain started up a few months before my first period at 11 years old. At first the doctors said my hormone levels were normal and I was too young to have pcos. Maybe the doctors would find it in younger people if they tested for it. My symptoms are the same ones my mom and grandma experienced. And the pain is debilitating. I am so used to extreem organ pain, that I can't always tell whether I am experiencing physical pain or if is a depressive episode. Pain effects me like any other person. But I'm so used to pain, that I only become conciously aware of it when it is all encompasing. And I have given birth 3 times unmedicated. I was more than well prepared for the pain of childbirth. I honestly believe that I could endure a fair bit of torture without breaking.
My mom bleeds through a super plus tampon AND an over night pad (within 1-3 hours) during basically her entire period but her doctor told her it’s normal. THATS NOT NORMAL!!!! She also had to go to the ER about 7 years ago due to hemorrhaging!! Doctors need to do better!! I tell her constantly to get a new doctor but she doesn’t listen 🙃
I’m a mom & can totally relate to the exact same problem I had my period stop at an early age compared to the average woman, by 37 yrs old it all stopped but I suffered many years of extreme bleeding & no sleep because of all night changing I was afraid to even move to avoid blood flowing
I had the same thing unfortunately. I would bleed through both in about 45mins. I was literally bleeding to death. My "periods" lasted 8 days to sometimes months long. I bled so much I was severely anemic. I had to go through a dozen OBGYNs in order to find my last. I didn't have endometriosis or PCOS. It was cancer. I had to have a full hysterectomy and even that wasn't simple.I had a rare disorder where the outside lining of your stomach fuses with the outside lining of my uterus. When they sucked out my uterus, it ripped it away from where it was fused with my stomach. I almost died on the operating table. It took hours of surgery to find where I was bleeding from and two blood transfusions to keep me from dying. Please don't let your mom leave it any longer. I have learned to be my own advocate, because if you aren't, no one else will be. I have had to go through multiple rounds of doctors and specialists until I found one that listened. Because sure, she may have Endometriosis or PCOS, but it could also be cancer that is killing her slowly. ❤️ I'm sending you and her nothing but good juju and I really hope she can get answers soon. 🫶🏻
Undiagnosed endometriosis nearly killed me. I suffered excruciating pain monthly for decades. Then, in my early 40"s, my periods became erratic; nothing for many months followed by spotting and/or painful heavy bleeding for days or weeks or months on end. At age-45, one day the bleeding was so intense that that night I finally passed-out due to blood loss. Yes, it was a frightful night getting up every five minutes to run to the bathroom; I had no idea that I was in the process of bleeding to death. By the grace of God, my elderly father heard me slam to the floor unconscious at 4am and called 911. Unbeknownst to me, I was transfused. When I regained consciousness, I saw I was in the hospital. I was in the ER. I asked the nurse what was going on because there were many people peeking in on me...some were even timidly approaching me, lightly touching me and scurrying away without a word. The nurse said: Honey, we've never seen anyone come in with so little blood and then survive. You came in here with maybe 4oz of blood in you. You were white as a sheet. No one expected you to live. It's a miracle that you have revived. News about such things travel fast in this place so people from all over the hospital came to see the miracle...and that's why some could not help but touch you. Since you have revived, you are going to have an emergency hysterectomy; the surgeon is on his way to the hospital.
That's where I was heading too with my adenomyosis. I had a period that lasted over 2 weeks with a steady flow. I felt tired and weak so I got an urgent appointment at the hospital. That's when I got my diagnosis. My condition had become worse over the years so my birth control didn't work anymore and that's why I was bleeding out. My uterine wall was full of fissures. I got pills to stop the bleeding and iron for blood renewal. If I had waited another week I think I would've been in your position.
The woman crying in front of her mirror in the bathroom IS SO me on certain months. It's just too much, TOO much pain that all you could do is just stand while slouching and cry while writhing in pain. It's torture.
I have pmdd(pre menstrual dysphoric disorder) I’ve had it since I was 10 years old and the pain was so bad that I would vomit and heave until I was sitting in a pool of my blood,vomit and tears my flows were so heavy the moment it started I need Heavy flow products the ENTIRE period the cramps and joint pain were so bad that I had to take 4 Advils, every 4 hours on the dot or else I would I would be in immense pain until they kicked in. And don’t think it stops there pmdd fucked me over bad my body can’t regulate it temperature so I am ALWAYS sweating if its a bad day I’ll break down sweating and literally fainting faster than you can say heat exhaustion, even if I’m in an ice bath I’ll still be sweating and dizzy(true story) it’s awful and it’s affecting my quality of life for many years I missed my childhood because of it and I can’t help but blame the sexist way medicine works for taking it away from me. I was 10 years old I didn’t deserve it.
I had endometriosis and very painful periods for 12 years. I did have a good doctor who diagnosed early on and told me if we wanted children now was the best time because it would keep the endometriosis at bay which it did. After 3 children and a couple of years of more pain I ended up with a total hysterectomy. My endometriosis was really bad. Wrapped around my ovaries and lodged into my colon. I looked 6 months pregnant by the time we gave up on trying to fix the problem through surgeries because it wasn’t working. After the hysterectomy I lost 25 pounds and felt like a million dollars. So glad my doc took my issues seriously. And, yes, he was a man. Thanks doctor Joel!!!!
jesus that sounds next level hellish oh my god! endo fighter here as well considering a hysterectomy because i’m a lesbian and know i’m never gonna wanna have kids or if i did would much rather foster to adopt, but i’ve heard from many that that doesn’t even completely rid you of it 😭 just a ghoulish monster that sleeps in your uterus and refuses to go away :/
@@TamagotchiFreakFan we are women so we handle a lot of crap. I was a single mom the last 9 years of the 12 too. I had a total hysterectomy so know uterus either. That’s the way they did it back then. I encourage you to find a doc that takes it seriously. I was sick with pain half of each month. I wish you the best and applaud your choices.
@@TamagotchiFreakFan we are women so we handle a lot of crap. I was a single mom the last 9 years of the 12 too. I had a total hysterectomy so no uterus either. That’s the way they did it back then. I encourage you to find a doc that takes it seriously. I was sick with pain half of each month. I wish you the best and applaud your choices.
@@audreydoyle5268but the thing is patriarchy is so ingrained within this world that we actually need guys like him to advocate stuff for us. Guys like him is the bridge for women like us to be heard by the majority. Only then we will be able to be listened to and NOT dismissed when we speak up. I may dislike that this is the way, but I have high hopes that women in the future won't face discrimination on matters such as this. Because they are now listened to.
My wife asked if she could be checked for endometriosis to find out if that was causing the extreme pain and other symptoms with her period, and the doctor interrupted and said she was too old. He said the average age of diagnosis was 27, and since she was 33 and intercouse wasn't painful, there's no way it could be endo. Then this dismissive, uneducated doctor had his office call to try to upsell a hysterectomy without giving us the information we actually requested. He didn't understand averages, that the potential symptoms aren't a requirement for diagnosis, and was only trying to sell an expensive procedure. Had to drive the round trip of 4 hours too; biggest waste of time amd money we'd ever had with a doctor. Welcome to western Kansas rural healthcare.
goodness i’m luckily canadian so all my doctor dismissals are free but driving 4 hours and being told THAT, AND having to foot the bill at the end???? i would be livid omg.
Thank you. I was in so much pain. My periods lasted 9 days of pain, heavy bleeding, nausea, and feeling like my whole abdominal area was on fire. I was later diagnosed with endometriosis and sent away. Smh. I was told to just take Tylenol. I was already over-medicating myself. ( taking over 6 pills of Tylenol every 4 hours). I was able to have 1 live birth but lost 2 to miscarriage. Thank you for raising this awareness.
Thank you for being honest! My period (usually) was much more painful than my labour. I was in labour for 8 hours, not knowing - because the pain was nothing compared to how the menstrual cycle usually feels.
My friend had that happen to her as well. She gave birth at home unplanned because the pain she was feeling was so much less than her periods that she didn’t go to the hospital because she couldn’t believe she was actually giving birth.
Wait, it hurts you for an entire cycle? Or when you get your period? I don't know if I have it, everyone's pain is different, I just know I can't go to work for a day, sometimes two, I'm feeling nauseous, sometimes I need to throw up, can't walk straight and stand for more than a minute, it's the only thing that makes me release noises of pain. I can't eat and even drinking water seems to make it more painful, and it can come in waves, extreme pain just shooting through my stomach. Pain killers takes time to work if they even work. Last few periods I started taking a muscle relaxant and a pain killer at the same time and try to fall asleep, with a heat pad in a fetus position, and usually the pain gets better after waking up.
I have endometriosis and I've been to the hospital because I couldn't even sit down even t3s didn't lessen the pain. My only option hormonal birth control
Same here, I'm forced to use the ring which was the less invasive one. It has helped, but my periods still leave me weak and in so much pain... three weeks a month we suffer and they don't see it.
the best friend of my SO had that. She couldnt even breathe because of the pain. Collapsed sometimes from it. She was told that she should suck it up, she is a woman. Its normal to have pain. She was overreacting etc. Absolutely cruel. At least she doesnt have anymore pain now. RIP, galpal.
im so sorry for both your partner and your loss I wish things could have been different for her and the rest of women who suffer from this, but i guess that will take time
I'm not diagnosed endometriosis, but I know something is not right with my body. I started clotting & bleeding so bad that I would bleed out within 30mins. A nurse asked if I was possibly miscarrying. I'm like I've had this problem for 2 years. I also get cysts in my ovaries. Their only solution for me was to be put on birth control. How disappointing. Knowing how painful my periods are, I can't imagine what you deal with. Wishing you well & that you find healing for it .
@isabella-dw8eg Sounds like me as I didn't have endometriosis either. I did, however, have a different condition called adenomyosis. It's where your uterine lining is actually growing into your uterine wall. Extremely painful! Profuse bleeding, clotting, etc. & also 8 day period on a 21-day cycle. This was a nightmarish situation that I endured for over 15 yrs. 😱 Finally, I found a sympathetic doctor who did a partial laparscopic hysterectomy. It's been smooth sailing ever since. I thank God for that doctor. He was so sympathetic to my plight. (I had cancer & was undergoing chemo. Due to the chemo, I had no platelets. My oncologist was concerned that I'd bleed to death from my normally abnormal horrendous monthly period.) Doc fixed me. No more periods, pain, or profuse bleeding. Life is great again. 😊 I hope you're able to get a diagnosis & treatment. My best to you. Hugs.... 🤗
Even if you tell them that you think you have endometrioses they say its all in your head. And after 20 years you come in the hospital and they say you have endometrioses and we need to take out a part of your intestine. Wel i told you alle but no one was listening and telling i was crazy
@@valeriaswanne It's like the old saying. You gotta be a little bit crazy otherwise you'll go insane. But seriously though. Doctors being dismissive of women's issues is a huge problem.
Medicine is failing all women in the period department; me and my mom both have polycystic ovaries and while that's certainly not as painful or as uncommon as endometriosis, it's still pretty painful, like passing out and crying painful. When I went to the gynecologist for the first time at 14 years old they literally gave me birth control and called it a day, there were no warning about possible side effects and nobody asked me if I wanted them. What followed was the most painful period in my life, passed out from blood loss two times and couldn't move for two days, missed school and everything, just slept mostly because I literally couldn't concentrate on reading or watching anything. The gynecologist knew it would happen because she also gave me some pills for the blood loss or something like that. Fast-forward until now and I've been taking birth control pills for 7 years, it has helped definitely! No pain, but if I ever try to stop taking them, the pain comes back. And worse than that, last year the brand I used just randomly stopped working for me, went from no pain to going to the hospital because the sudden pain was so weird. The doctor told me to literally never come back for an abdominal pain with too much blood if I'm not pregnant. He said that while I was in pain and missing a day of work because of it. Got sent to the gynecologist for an evaluation, she told me to change the brand of the birth control and that's it, no alternatives, nothing. Am I supposed to keep buying birth control pills (which are expensive btw, they're not normal birth control pills) until I hit menopause? Is this all there is for us? This is not even mentioning all the pain my mom has went through for her entire life because of it, she got surgery 5 years ago, the cysts came back so she had to get her ovaries removed 2 years ago.
my cramps where so bad back in the 70's - 80's that I would pass out. My uterus would have extreme contractions. No idea if I had endometriosis but I had 3 children and then a total hysterectomy at age 24. But I can say that 33 hours of labor with no pain medications did not hurt as bad as my monthly periods.
I went to the doctor because I kept fainting, along with other weird symptoms. Went to the doctor, doctor sent me to the ER to get tests pushed along faster because she thought it was urgent. At the ER, i explained my symptoms and what I thought it was, but they only tested me for a heart attack. No referral, no nothing. Just said "you should eat healthier." Went back to the doctor, she said "oh, they didnt order a CT or anything? Thats why I sent you. Oh well. Its just anxiety." and that was that Turns out, I'm type 2 diabetic (exactly what I had brought up multiple times to every doctor and nurse I saw, all of which brushed it off). I guarantee you, if a man came in with the same symptoms, it wouldn't have been an issue. I almost fkn died.
Endometriosis runs in my family, yet my sister who's 20 cannot be tested for it because the doctors around here say "she's too young" and basically all of them telling her to deal with the pain. It sucks because endometriosis doesn't discriminate our age like the doctors do!
I found it nearly impossible to get testing or treatment for my endo/fibroids before the age of 30. Doctors fear messing with a woman’s fertility as though that’s more important than our health and ability to live. Ended up needing an urgent hysterectomy and I am so grateful to my OBGYN for being so open and willing to fix me. I had periods that were so painful I was going into shock. I bled for 65days, and needed 6 iron transfusions to be stable for surgery. The best thing you and your sister can do is advocate strongly, seek second opinions, and be firm and unwavering in your determination to improve quality of life and get the help you need. No one cares as much for you as you do, and you and your family deserve proper care and medical treatment.
I started my periods when I was 9 years old. No one would listen about the pain. I was in my late 40's when a wonderful female doctor listened and discovered that I have endometriosis. Unfortunately ladies, I have gone through menopause about 10 years ago and the damn disease is rearing it's ugly head again. I guess I should have had a hysterectomy years ago. I chose to wait for menopause instead, not knowing that it could still affect me.
My mother, who actually works in women's health as a NP, dismissed my period pain as typical all through my teen years even though I was sobbing in bed during my period and pounding advil. When I turned 21I ignored her and went to a specialist. Was diagnosed immediately and given meds for continuous birth control following the 'invasive' procedure that was nowhere near as bad as the cramps themselves. I'd bet my life its more than 10% of women too.
@@cHeEsEcAkE_0_0545 But then they would have to start acknowledging women as at least human... which is something they simply refuse to do. Even women doctors adopt the thinking to worm their way up the power ladder. You have to act and say things the higher staff want to hear or you'll never make it anywhere. Which is a part of the rampant Psychopathy for these kinds of positions. Like Any kind of higher level 'suit'. You can't get and maintain the spot without playing by their rules and acting how they want you to.
Bias in science and medicine affects all academia because it was the foundation of what's being taught. People don't always realize how much misogyny is built into the system, and medicine is where it shows. It sucks
They never took me seriously. It wasn't until i got real serious and became my own advocate and demanded an vaginal ulta sound my 40's . They found stage4 endometriosis, fibroids, a mass on my left uterus and cis on my cervix which means my Hemorrhaging and infertility could hv been solve had they treated me earlier but i was dismissed and treated like we dont need another blk child in the USA 😢so im never had one due yo racism and gross negligence 😢
I remember sleeping and then suddenly waking up with nausea and an extreme flash of pain that became more intense by every passing minute, I felt so hot and started sweating so much, my back was also killing me and no position would relief the pain. After an hour of patiently trying to endure the pain I just started crying like a child, the pain was genuinely so unbearable that at that moment I wished I was in a very very long sleep instead
I remember crying on the floor and resisting the urge to vomit (I will do whatever I can not to vomit). I could not stand or sit or do anything else than cry from pain, biting my hand to not disturb anyone else. I did my best to hide, because I was so ashamed of not being able to get over my "normal cramps". Lucky for me, it was usually just an hour or three before it got better. And even that hour or three were like better bits and worse bits, like it could be overwhelming so much I could not think of talk and a while later I could slowly get up and even slowly walk. I look back at my 12 year old self, hiding at school bathrooms, lying on the floor, with no pain killers, because I was too young for it. After about 40 minutes someone came to find me. I got embarrassed and came out, stumbling and pale as a ghost from pain. Teachers looked puzzled and allowed me to call my parents and go home. I got better at masking the pain later. And after I was about 25 years old it got less often. Like not every period I drop to my knees from pain. And lo and behold! My new doctor actually looked and she found out what was wrong! Only 20+ years of worst pain I have ever felt and it is curable and it probably will get better! I hope so much it really will get better...
I remember those pains. Couldn't really get out of bed, balled up while rocking back & forth trying to breathe through it, had to crawl to the bathroom cuz I couldn't stand, even if bent over. Every tiny movement was excruciating. Level of pain was very concerning, considering I have a high pain tolerance. No medical issues according to the docs.
I have been suffering from endometriosis since I was nine and I was always told it was normal. Passing out from cramp pain and migraines, throwing up any meals I ate for up to three days straight, and bleeding up to two weeks at a time. I developed sever iron deficiency and once had my period for several months in a row. There needs be more awareness and help for women who struggle with this.
I feel this so much! I have had very long, heavy, and painful periods ever since they started and it took until my 20s to get a diagnosis of endometriosis. Yes, many women struggle with period pain, but we should still be able to function during it. It's infuriating how many women don't get taken seriously and get told to suck it up when they're literally writhing in pain. Periods should not be that severe!
I suffered for 37 years with undiagnosed PCOS and endometriosis. I missed many school days and important events due to being ill and in so much pain. I was not believed and never given proper treatment. As a result I became sterile. I truly hope modern doctors have learned to be more empathetic and understanding of what women go through every "bloody" month.
I felt her pain .. i used to call my parents at 4 am on the phone from crippling pain while they’re in the same house .. but i could not move ! Such a hard thing to live through every month .. i’ve been eating all sorts of anti inflammatory foods and feel better these days, sending love to all of you who suffer from this out there ❤
My gynecologist told me yesterday that ovarian cysts are normal, all women get them, they’re supposed to be painful, and that it’s called ovulation. She also didn’t even know what a period cup was. I’m definitely getting a new doctor. She told me all of that when I asked if my IUD caused my cysts and if I could look at getting another IUD in the future since it helps me avoid excess weight gain and helps my mental health.
Hey girls, there is hope as to what causes endometriosis! There's an article in The Lancet (very reputable, peer-reviewed science journal) that Fusobacterium may be linked to endometriosis, and that treatment with antibiotics (In mice models) helped reduced endometriosis symptoms! The article is "Bacterial Infection liked to Endometriosis" by Priya Venkatesan. The experiment that found these results is "Fusobacterium infection facilitates the development of endometriosis through the phenotypic transition of endometrial fibroblasts" by Ayako Muraoka et al. So whilst it is yet to be seen if this treatment will work in humans, we have hope now besides "Girl idfk take some ibuprofen or smthn" :D
Too late for most. It’ll be many many more years before they come even close to human trials. Plus they have to do many other studies to see if they can replicate that. So in the meantime, we keep fighting for adequate pain management and treatment
I have stage 4 endo and pcos. It took me 10 years to be diagnosed. I’m not saying this is a cure but I haven’t had any flare ups since my parasite cleanse 2 months ago. I had the worst chronic pain my 50+ doctors had ever seen, I spent weeks/moths in bed. It might not work for you but I believe parasites gave me endo and pcos and hundreds of thousands of women are now starting to believe the same thing.
My Gyno diagnosed me with Endometriosis because my periods were so painful that I’d vomit over and over, and occasionally pass out. Tried to put me on hormonal birth control. I refused because I have a clotting disorder. Fast forward a year later. I completely changed my diet, and found out that I had a serious magnesium deficiency. After taking supplements my periods are COMPLETELY NORMAL. Minimal pain for the first time in my life. Hopefully this information can help someone out there. Your doctor won’t think to look for deficiencies, they’d rather just throw hormone-altering meds at the problem (and Tylenol. Which doesn’t work. Thanks, healthcare) which comes with its own risks. It won’t fix everyone’s problem, because period pain can have many different sources, but do yourself a favor and check your magnesium levels. I could have avoided YEARS of debilitating pain 🤦♀️
YES. I really think the invention of the birth control pill completely stalled out research in women's medicine. Very few doctors look for an actual root cause.
If this was a male issue they would be treated. It is the worst kind of pain and I don’t have a uterus anymore due to fibroids. I have a high pain threshold.
You can have removal of your uterus or untill then go on birth control pills ,they help Discuss it with your gynaecologist Change the doctor Change the City Change the country for a good doctor Do it sis
Ive trwd everything short of a hysterectomy bcyz the 4 differents docs ive deen wont do it. Im "too young" and "what if you want a 2nd child". Im almost ready to say im trans to see if i can get a hysterectomy that way. Girl i worked with got her hysterectomy in 6 months because shensaidbshe was trans, wasnt even taking hormones. I kno that sounds fucked up but im at my wits end.
I was dismissed constantly growing up that periods are just "like that" with my extreme pain. When I moved in with my foster moms at 16, I got an ultrasound and whoop-de-doo I had ovarian cysts the whole damn time
Now at 22 I have an IUD (which was extremely painful to get, that's a whole other issue) and now my cyst issues have lessened significantly. The people who dismissed me didn't "believe" in birth control for people my age so I just had to suffer in silence for years while in extreme pain. "Hypochondriac" was a word that was thrown at me constantly because I didn't "seem" to be in that much pain but when you grow up your whole life having to "tough it out" through every pain, it can start to appear like the pain I am experiencing isn't "that bad" cause I can still walk around. I broke three of my fingers in grade school by accidentally slamming them in a car door and I never went to the doctor because of my family dismissing me as I was "only crying, and that's just for attention" and not, idk, screaming my head off? Noticed years later that several of my phalanges are permanently bent and healed in a strange way and went "Wow so that extreme pain I was in while being told to stop crying because it was 'annoying' was the pain of several broken fingers". I never realized that being forced to mask my pain would make it harder to get treatment as an adult because at this point it is so hard to tell when something is "too much" cause I had it beat into my mind that I can't possibly be in that much pain and still function, therefore it isn't real and is "in my head".
I have a friend who had to have a partial hysterectomy in her mid 30s bc her pain, quality of life, and moods became so bad. The surgeon, who's her obgyn dr, was shocked and confused to see countless amounts of cysts all over her uterus that was removed bc all and many tests shown nothing or that she was "fine". She's dramatically improved since the surgery.
I had a leg paralysis today because of period, I couldn't move my legs, wake up from bed, and I had way more problems like vomits and diarrhea, but oopsie, I can go to the doctor only when I'll be 18! It sucks because period starts at age of EVELEN, 7 years of waiting in pain every month just to hear doctor saying "That's not my fault you've been born girl" or that "period is just your pretty nature"
Oh, and taking paracetamol was helping me 2 years ago, now pain is so strong that SOMETIMES paracetamol with coffee helps, but not always, I just sleep to avoid my period hurt because that's the last thing that helps me
What's worse than being dismissed by the doctors is when another woman says "its not as bad as mine" or "we all get a period, suck it up" whe youre really struggling
It feels so devastating when that happens. When I was working as a waitress at waffle house, I had a normally lovely older woman working alongside me as the cook. But for some reason she was always nasty when it was clear I was struggling with cramps. I don't think I have any condition, and it's just cramping, but it feels like my spine, hips, and knees, are being pulled apart by all the joints. Only sometimes is it bad enough I can't ignore it.
One time around the older woman I mentioned, it got that bad. I realized I was starting to fall over because I just couldn't move correctly because of the cramping. I'd even taken midol that day, even though it doesn't seem to help at all. I took a seat and just tried to breathe through it for a moment with my head down, there were zero customers in the store and it was just me and her working at the time. She started just... Berating me for the pain. "What are you doin?" "Period cramping" "Oh come on, it don't hurt that bad. Take a damn midol and get over it." "I took midol, doesn't help" "do some stretches and take ibuprofen instead and get back to moving around more and you'll be fine. So tired of your sighing." "I'm BREATHING."
That day, when the second server got there, she took one look at me and was basically saying I looked like I needed help, and to either go home or a hospital. That upset the older woman who insisted I was faking it to get out of work. I said "I would have already called our boss to get my shift covered if I was trying to get out of it, or just, y'know, not have come in at all?" Well, because the other server was there, our boss was fine after a single text, saying I could go home early.
Yeah, it's stupid because not all women get bad cramps. They are oblivious.
My own mom said this to me when I was 16. I couldn't speak from the cramps and she refused to have me looked at because she was sure I was faking it.
I have chronic pain and the number of people who pull this crap is mind boggling! Plus, I hate the, "Well, this other person has it WAY worse than you, so you have no right to complain!" WRONG. Just because someone else might have it worse, or perhaps it just looks worse as pain is so subjective, that doesn't mean that YOU aren't suffering or in need of treatment! If that was true then there'd only be one person at a time getting cancer treatment, or having broken bones set, or septic organs fixed or removed. If you think of it that way, then you understand how unhinged the whole argument is.
Exactly, that's the worse .
"It's just your period. It's supposed to hurt."
Sir, I AM ON THE FLOOR. I passed out from the pain! That's not normal!
But when it happens every time since your first period and people tell you it is normal, how would you know any different?
@@Robynhoodlumunfortunately exactly. We are told it’s going to hurt, but not that it shouldn’t be crippling. So we suffer thinking it’s normal. On the other hand, if we are in crippling pain monthly to point of not functioning. How does that get ignored for years? My endo was so bad that I thought I was just cramping when it was actually appendicitis. It wasn’t until I was completely unable to move, crumpled on the floor that I thought it likely wasn’t cramps.
I was diagnosed with endo at the same time I was with PCOS. I went in cause I was on week 6 of bleeding. When I called to make an appointment, specifically saying it’s legit been 6 weeks. I was told women’s health couldn’t see me for 2 months!
Waited five mins called back to make an appointment to get birth control. Got seen 30 minutes later. When I explained everything to that doctor. He looked at me, got up and said “I’m going to get you an appointment. I have a bit pull here.”women’s health saw me 10 minutes later.
I’m so grateful for that doctor, and actually listening and not dismissing me. Like I had been for that menstruation or any time in the past when I sought help. Only to hear things along the line of welcome to being a woman.
I’m 14 but two years ago I passed out while on my period. I get a scan or smth and had blood drawn and didnt get anything back from the hospital. My mom says it was low iron but I don’t believe it. I’m a healthy person and rarely get sick, i stay on top of my meats and veggies. 😭🙏
@@Robynhoodlumwhen you get to working age and cannot get out of bed without crying in extreme pain - when you lose jobs because of it - you know it’s not normal.
Also when you see other people don’t suffer as much - you know it’s NOT normal.
@@LexMex47it could be low iron too - it’s worth taking a supplement at the time. Also Vitamin D- every little helps.
Also look into PMDD. It’s a psychiatric diagnoses but it’s clearly a hormonal process.
This is what I have and it’s a gradual build up every two weeks.
My sister suffered from unimaginable pain with her cycle for years because she believed she'd be ignored because
"it was just cramps".
One day the pain was so unbearable she caved and went to the ER and the first thing the useless doctor and nurse said was "you realize you're coming in to the ER on a Friday night... For help with your... Period cramps..."
She just stormed out without a word and ended up even more terrified to seek help since her worst fear was realized.
It took two more years of the agony only getting worse before we convinced her to go back to a doctor. She got an obgyn and this absolute saint of a man was so determined to help. Almost immediately he found both uterine fibroids and adenomyosis.
People really don't understand how terrible periods can get.
So unprofessional. I understand that healthcare workers can be very tired and overworked but that's not a way to treat a patient who has come to ask for help.
That first nurse and doctor are so impudent. Can’t believe there’s some healthcare workers acting like that, they should know better
@@RoIeModeI not "some" btw. It's most.
@@mylyb01 Unfortunately you’re right. My sister works for the healthcare system, the amount of crazy stories she told me is discouraging. I don’t like making assumptions but the majority of doctors are lazy and careless. They do it for the cash, nothing else
So sad. Makes me angry 😡
Dismissing women’s symptoms can lead to an early death….be persistent and get second opinions ….my sister died at the age of 27 in the 70s because her doctor said that her condition was simply painful periods ..turns out it was ovarian cancer .it wasn’t just that she died it was the way that her doctor dismissed her as a fraud.
I am so sorry about the loss of your sister and everything she and your family went through. ❤
Many condolences 💐 ❤I’m so sorry to hear that and what you and your family had gone through. 💐
So sorry about your sister, and thank you for highlighting that cancers in/around the womb, or hormonally driven (eg some breast cancers) may first present as cyclical pain in the uterus (or breast/s).
Commenting to help your comment get more views. 🩷🩷🫂🫂
I would be very curious to see some data on excess deaths caused by medical misogyny.
Sadly, it's not just confined to the past, women are still being told that they are being dramatic or that "it's all in their heads" or a thousand and one other bullshit excuses when they seek help for serious medical conditions.
@@resourcedragonwhats funny is that ALL pain and ALL suffering is in your head. Whether or not the pain is caused by a physical stimulus or not its still pain
girlfriend has this and the pain she goes thru on a daily basis because of doctors shrugging it off as period cramps is infuriating.
PLEASE go to see the doctor WITH her and express YOUR concerns that TESTS need to be run. It’s aggravating to admit but often doctors will take a man’s word for it and actually take her condition more seriously if the man is with her.
Change the doctor
Sadly I agree with you. Im pretty sure I have it and when I go to the doctor I am taking my husband with me. I have noticed doctors are more willing to give hime medicone and tests than me.@eatwhatukiii2532
@@eatwhatukiii2532 She's a woman too.
@@eatwhatukiii2532 also threaten a malpractice suit if they refuse
Even if periods are painful, we should still be working towards ways to eliminate or minimize the pain instead of doing nothing because "everyone's suffering"
@@gingersnap7202 yeah and it forces people to go around comparing their pain to everyone else's instead of just getting the help they need.
Yeah I remember when I was a teenager, a friend was having bad cramps and I offered her some basic painkillers. She said that those didn't work for her. I remember thinking that that's surely not normal, like if taking painkillers doesn't reduce the pain then isn't that a sign something is wrong? I was a bit confused that she thought she had to just suffer like it was expected for it to be this bad.
@@gingersnap7202 you guys ever took a shit on your period and it be so painful you couldn't stop vomiting
Well, to be fair, normal cramps are manageable with over the counter medication. Endometriosis pain doesn't even compare. You may end up bed ridden for the entirety of your period.
@@Evridikibio1 It's defidently not endo but I think they should be studied too. Just having a uterus shouldn't make you reliant on regular pain medication at least not without trying to find an actual reason why it doesn't affect everyone and trying to find a permanent solution. It shouldn't have to be torture to be studied.
I had been suffering with incredibly painful periods from about age 14. I would repeatedly go to the doctors and ask if there was anything that could be done, I was missing days from school, and as I became an adult, University and eventually work. I was always told "Oh it will settle down if you do this, if you take the pill, bla bla bla." it never did so I just gave up and accepted this was how it was. At 35 I went to hospital for another procedure and they asked me "Did you know you might have endometriosis?"
I managed to get a referral and a diagnosis that same year. To say I'm livid with all those past doctors who listened to me explain how much pain I was in and not take me seriously, is a major understatement.
I don't have endo, but I have experienced excruciating pain due to other things and have been gaslit by doctors in the past.
Even just reading all these other women's experiences infuriates me so much.
Something needs to be done about this.. like decades ago. 😡
Same i used to skip school every month and when i went to the er the doc asked if i skipped school every month because of this and i said yes they then were skeptical that i was lying later with another doc he told me to lose my virginity and all of this would end and i was 16. Either way i go to one doc and he describes me medicine and tell me to take it frequently and i go to the other because the medicine is not helping and he tells me you shouldn’t use it often they all contradict each other and somehow they are all males in the field and if there were to be a woman she would treat you as if ur lying.
@@user-zo1dv4in8d FUCK THAT CRAP!
THEY TOLD YOU TO LOSE YOUR VIRGINITY!?!???!?
Honey believe me I can empathize with you. Something even worse than that (if you can imagine) is that up until maybe 20-30 years ago doctors were treating women who had heart attacks the same way they were treating women and it was a big surprise when women died. It’s also frightening that even to this day women are surprised when they have a heart attack. They think because they are a woman that they can’t have a heart attack. And more and more young women are having heart attacks. So while you’re getting something done on your nether regions don’t overlook the thing that keeps everything running!
I was diagnosed at age 17. Idk if an OB/GYN ignored you but now is a good to time to let women know that it's imperative to have one. Sorry you went through this.
My friend is now in a wheelchair and mostly bed bound because her endometriosis was dismissed by male and female doctors. Even after several surgeries she is still in endless pain. It’s absolutely disgraceful and seeing a friend go through this and loose her quality of life like this gives me great fear. Sad beyond belief.
Didn't she have hysterectomy?
Sometimes, but not all times, should a woman with endometriosis have a hysterectomy, she may still have that awful pain because the uterine lining may have "attached" itself to other internal organs & abdominal cavity, whereby the pain will be constant.
@@DontTakeItPersonall this exactly, she’s had several very serious surgeries and is under going induced menopause but the neglect, dismissals and ignorance of her doctors has left her with an abundance of issues that mean a hysterectomy is not actually possible right now. And the nhs is very very very reluctant to do a hysterectomy and wouldn’t entertain the option until it was too late.
@@AnnieEclectic sorry, to hear that!
This is so upsetting!! Glat she has at least one supportive and understanding friend in you but she must be feeling terrible after the invalidating treatment she's received :(
God I feel so bad for that woman. I've been there. It took 28 years to get diagnosed and finally get the surgery that would help me. When the lab finally looked at the organ that had been removed from my body, the question to me was, "how were you even walking around?" Simple answer. I didn't have a choice. The entire medical system needs to do better for women.
This is year 30 for me and no help at all has been given. Nothing. I was misdiagnosed here in Canada, told me it was marijuana sickness for a decade or more. I have the records to prove it. They put in my file that I did this to myself and no doctor should help me. So none did.
Finally I went to Toronto yesterday, I have to wait for another year to be seen.
@@getoutjustin2553 that is so horrible. I understand how you feel. Always being dismissed and ignored. Medical gaslighting is a real problem and doctors really need to stop doing this. Having been there myself, I truly sympathize with what you are going through, and I hope more than anything that you will eventually get a doctor who will help you. I know how hard it is, but I hope you will keep trying.
@@jbach1738 first I'd like to thank you for your kind words. I needed that. Also, I sent an email to the endometriosis network looking for an expert for a court case. They didn't get back to me. They are so fake. My case could be the break we all need to get this situation under control. Only one case has ever been heard and I think that was the UK. Her win was based on the fact no doctor sent her for the laparoscopic surgery. If I'm not mistaken that's all of us right now still suffering.
@@getoutjustin2553 *"MARIJUANA* sickness"?!
That is unbelievable. Marijuana makes so many symptoms go away.
32 years for me. Cysts in both ovaries 15x12cm (the size of a baby's head). Both were removed. Now the pain comes back, new cysts in my cervix. Doctors are still dismissive, only asked me back every month to "observe" and gave me cheap folic acid and menstrual stopper pills (norethisterone).
I've been experiencing both dysmenorrhoea and menorrhagia for the past 3 years (probably adenomyosis, but the doctors never said this, just my own self diagnose). My life quality has become garbage-like, my bed filled with huge blood patches here and there. I can't work, I can't consentrate as much as I want/need to do my hobbies, I feel worthless, I don't dare date men and meet people.
The perks of being dependent on national health insurance in my country, I guess... 🥲 (I can't pay for the surgeries myself, they will be too expensive for my thin wallet, which is getting thinner and thinner over the years because I can't build my career).
I'm so sorry we all get through this, women all around the world...
Too many doctors dismiss female pain. Either females don't really feel pain, or they're exaggerating. And that's not just male doctors.
As it turns out when the culture you grew up in told you that extreme pain every month is normal, you treat it as normal even when it isn’t.
Who is it then as women know women feel pain and science knows women feel pain we are humans ffs not alines
Yup.
Only my current GPs treat me like they believe me.
Not previous GP of nearly 30 years, gynes, or consultants.
My current GPs, and my dentist, and osteopath. It's messed up.
If men could get it, they’d have endometriosis treatment dialed in
Yep. Female GP was pretty much mocking me when I came in after experiencing a sharp pain in my ankle, followed by pain walking. Completely dismissive. Took months to get into foot doc, had to use online PT to get to where I could walk somewhat normally again in meantime. He immediately knew what I’d sprained and agreed with the exercises I was doing and told me to keep at it. Still have this weird numb spot but otherwise can walk normally again.
You know what else these doctors don’t realize, they give some of us a death sentence. I went through so many doctors until one actually listened to me. I had endometrial cancer. Had it spread any further, I would not be here today. The unnecessary pain, medication, treatments,and sickness, I went through…..brings me to tears to think about. All they had to do was listen.
I'm so sorry you had to go through this. I wish you as well as it's possible and hope you're finding ways to enjoy good moments as much as it's possible
💐 sending you a big hug
I'm so sorry this happened to you. I've been abused by doctors so many times....
I once had a OBGYN recommend me a surgery that would sterilize me, (they didn't tell me it would sterilize me) after I had a period that wouldn't stop for 60 days. I had to ask for a non painful solution (I was just afraid of the pain, had to google it later that that procedure would make me barren), and they gave me a pill that fixed the problem in 5 days.
That's the kicker. A pill with zero side effects would have stopped the problem. But they wanted to give me a life altering procedure as a first choice.
Just as bad, they gave me the pill and didn't tell me to stop birth control while I was on it. If not for the pharmacist saying "taking birth control with this clotting pill will give you a stroke. " I would have stroked out and died. My blood pressure was already way to high, this combo killed people without high blood pressure.
I wish this was the worst thing a doctor had ever done to me or my body. Its not.
They don't care about your life. They don't want you to surive. You are meat to them. Never forget that. Demand their respect, they don't have the right to tell you your worth because they went to med school to learn how to better ignore people.
Never let them have the satisfaction of telling you what you feel or what you deserve.
They are the enemy, not the hero. Keep your guard up. And fight for yourself. You deserve to be fought for. ❤
Honestly, keep going to that doctor
I'm so glad you made it :)
I went to the ER with extreme stomach pain that was keeping me up at night and I couldn’t eat and it hurt to breathe. The doctor said “it’s probably cramps” and sent me home. I wasn’t on my period and told him it wasn’t cramps multiple times. A week later still in lots of pain I went to the regular doctor who is a female luckily, turns out it was a really bad stomach ulcer. I’m glad that my female doctor understood it wasn’t cramps and helped me. More male doctors need to understand women know the difference between normal period cramps and other more serious things.
Exactly!
I've had female drs dismiss me too. It wasn't until I broke my back and had an MRI that they saw a large tumor in my uterus. Thankfully, after the back surgery, they waited about a year, went in, and were able to remove the tumor.
I was sent to ER for stomach pain, the kind of pain that i was unable to walk. When they situated me in a room where nurses office was near, i heard them say to each other "as a woman, i wouldn't call ambulance for stomach pain". Turns out i had a cyst in my ovary that had ruptured. This is just one example from my life, i could write a book about all of them. I have high pain tolerance so i don't "look" like im in severe pain when i try to get help. I don't trust medical personnel anymore.
My BFF went to the ER with RS pain. They told her it was the flu. Didn't do any imaging and sent her home. Hours later the pain had increased and she went to a different ER. Her appendix had burst.
Worse still, it was cancerous with a highly aggressive mucinous cancer that spread throughout her peritoneal cavity. Five years, multiple surgeries, and unimaginable agony later, she was dead.
Had the first ER taken her seriously (and had multiple other medical mistakes not been made along the way), she might have attended her son's wedding and been able to watch her grandkids grow up.
I was 11 when I got my first period and complained about being in tears over the toilet. It wasn’t until I was 23 that the emergency room found my hemorrhagic ovarian cysts while removing my appendix. I cried when I was told I wasn’t crazy and there had actually been something wrong with me, and the medical staff was shocked when I told them why I was crying
Almost the same story here. It took them finding a huge hemorrhaging cyst on an ultrasound they did just to placate me and shut me up for them to realize I wasn’t faking it or had low pain tolerance.
All doctors need to take this seriously
Yes. Same story here.
That's so bad! I'm sorry you've been through this 😢.. I wish a speedy recovery for you
That’s horrible yea I lot of women have cysts and there incredibly painful for your parents or who ever should have be taking you to a doctor was very wrong about your pain
@@kenzie_ray my aunt (I was adopted) took me in and when I told the doctor about the unusual pain he said “I’ll let your guardian decide if it’s cysts or just a bad period” and left it at that. She knew my mother had ovarian cysts too, so she was well aware but told me I was being dramatic
My friends mother unalived herself because she was in so much pain and not a single doctor believed her. One doctor actually laughed at her and said she ought to break her foot maybe that would distract her from the pain. Another doctor said she was just making it up to get pain meds and involuntarily committed her to a rehab center. She deleted herself on the fourth day in the program because the pain was making it impossible to eat or drink without becoming I'll and everyone said she was faking it. My friend and her siblings and her dad lost their mom/wife at 34. My friend was 8.
It's "funny" bc I DID break my foot and we didn't even find out for 3 years bc pain was so normal to me.
I had a cyst the size of a grapefruit on my ovary and pressing on a nerve in my stomach shooting liquid lightning up to my shoulders. When the lady in the ambulance asked me to rate my pain I said it was an 8. She said it couldn’t be because I would have been screaming. The reason I wasn’t screaming or moaning in pain was that if I opened my mouth I’d have vomited from pain again. Still makes me angry to this day.
People can see when others are in pain. It’s screaming obvious. And still stuff like this happened. Chronic pain can twist the mind to the breaking point and it’s a travesty that everyone who could have helped let it happen. Her death is on them
@@uNkrEaTIvArTs Honestly, I disagree with the last part and I think that’s precisely the problem with things like this. It’s quite clear that even medical practitioners _can’t_ always tell when others are in pain or struggling. Which makes sense (different people handle pain more or less well, externalize more, ask for help more or less often… ), but must be acknowledged.
Same with mental health and neurodivergence. How many girls have been told they weren’t autistic because they’re better at masking than expected? Or people that they didn’t have ADHD because they had a good GPA and went to uni? Or depression or PTSD because they could keep up with their job, their kids’ needs, and still plaster a smile on their face?
No matter how good we are at reading cues and assessing probabilities, we don’t always know what others are going through. Even screaming and crying aren’t a guarantee someone is dying or even doing worse than the next guy, and even quietness and real or apparent functionality are not a guarantee everything is just fine or even remotely okay. We should absolutely use our instinct (and, particularly in the case of medical practitioners, our education and experience), but we shouldn’t rely on our inevitably limited perception so much we completely dismiss people’s claims and complaints outright and without just cause.
Thinking pain and struggle are obvious and should always looks a specific way is precisely the issue, imo. The solutions shouldn’t be to make assumptions a different way: it should be, if two perspectives differ, to actually take the other seriously and try to figure out the root of the issue.
@@EIizabethGracethis... we really need to change the mindset as a whole, culturally, but by god, the medical fields need to go first in that direction...
@@uNkrEaTIvArTsI’ve also had a cyst but it twisted my left ovary. I also felt that if I talked I would throw up. It was so painful. The hospital almost let me go saying that I had a flu. Fortunately I had a surgery to untwist which I’m currently recovering from.
Currently in med school. During our clinical rotation on OBGYN the told us that a period is NOT supposed to incapacitate you. What on earth are they teaching doctors in US?
Edit since it's not just the US. What on earth are the teaching doctors everywhere?
Don't forget canada they ignore women's issues too
They teach the to refuse abortions. Take that women!
Sweden in that boat too
Uk too
just because it's taught doesn't mean the male doctors listen. When the male doctors get into positions of power they ignore it because like this doctor says women are ignored and are accused of overreacting, and periods are supposed to be painful. There is a lot of stuff that is taught in schools, but one person saying it once to a group of people who already have another conclusion in their head doesn't do much.
I had pain so painful i almost passed out, but never went to doctors because my mother had them too and she had the exact same experiences whatsoever.
Still can't believe how cruel medicine is with those who have it worse than I do.
I hope sometime, somewhere in the far future, women can be treated of their pains and not be dismissed of it.
Stay strong girlies!💕
Just because a problem is common doesn’t mean it’s not a problem. I’m so thankful for the doctor I have now. Found him 5 years ago. Used to have level 5 period cramps. Now my periods are pain free.
Omg, that sounds to good to be true😢
When i was younger, I used to have mild constipation
Having my period
Cleaned me out😂and gave relief
I was born with a fistula..and had these problems...plus, they used seed oils, in the 1960s
HOW?!??!?!?
How??? Please give details, my doctor doesn’t take it seriously
@@kaymichelle7327i watched an interview where a woman switched to a completely carnivore diet and all her endo pain went away by the second month. I can’t remember what channel I saw it on. Can’t hurt to try it though. I’m going on it.
I’m 17. Ever since I was around 12 I’ve been telling Doctors Im in pain and each year it kept getting severely worse. We told them many years it could be Endometriosis and they all said I was “Too young for it” and to “Go to a Psychologist” etc..
Finally after years we finally got a laparoscopy (after all the begging) and it was indeed Endo. Turns out I was riddled with it on my appendix aswell!! Had to have another surgery to get it removed and found out it turned into Acute Appendicitis.
Now I’m left with Pudendal Neuralgia (The Nerve in your pelvis) most likely from Endo and I’m crippled. I’ve been bedridden and can’t even get out the house. Everyone still thinks it’s an exaggeration when I tell them.
Thanks to Incompetent doctors, my life basically has no meaning since I have to rely on my parents for everything.
And they still wonder why women kill themselves!!
I believe you 100%,
I'm also bedridden due to medical neglect, gaslighting , misdiagnosis and abuse
I'm 17. Also endo. Same issue.
So sorry about this!😢
Your life has meaning and Im glad you are here. Thank you for sharing and I hope things get better for you❤❤
Pray for healing even if you don't believe. Ask the Sacred Heart of Jesus to heal you enough so you can walk and get around. Don't lose faith! Everyday is a chance for healing to happen. I will pray for you. 😢❤
Dude: Doc, I can't get hard.
Doc: We have a pill for that.
Dudette: Doc, my period is torture.
Doc: That's normal.
So true but "dudette" got me cackling 😭
All the pill does is increase heart rate and blood pressure. Its not a magic pill
@@Roseberry606When 'gal' is offensive/outta fashion
@@whohan779litterly no one said that 😂
Thank God we have painkillers
My own daughter told me I was exaggerating my pain when she was 14. Some days I couldn't even get out of bed. She never had a painful period so she didn't believe I could b in pain. It was so heartbreaking. I'm 57 and was never diagnosed with anything. I'm done with my periods now, so I am thankful that I never have to deal with it again.
You should not let that get to you. Your daughter is a child and I stress that you explain these type of things to her because she too probably is fairly new to the topic of periods. And so am I. I don’t know much about periods and I am a 15 year old girl. My mother only ever said the basics like “you bleed every month and it will hurt a bit if you are unlucky”. So please explain it to your daughter, it may help her in the future.
I was 21 when I got my first painful period but it wasn't so bad I needed to stay in bed. It clears up for me with Tylenol and chai tea. I know someone with painful periods from PCOS who says that chai helps.
Children generally need to learn that other people experiences are not the same as their own. It's a part of helathy development. Sadly, a lot of adults never really get there.
When I started my periods, my older sister had really terrible cramps and heavy flow, I didn't expect anything positive, so I was surprised when my period was probably what healthy periods are, light minimal cramping, only occasionally bad days for it and much lighter bleeding, it really sucks for women to get so much of the short end of the stick, the least is to be taken seriously about medical issues.
? Did you not teach her yet? A 14 year old isn't gonna understand some things and the way you messaged here it seems like you think you're a victim of your child.
When I finally realized how painful this really was as a clinician: i watched an episode of "I didn't know I was pregnant." The woman didn't call a doctor or go to the hospital while unknowingly being in labor because she thought it was just her endometriosis. She had the baby in a bath tub. Let that sink in. She was in full blown labor that ended in an unassisted , unmedicated vaginal birth. Because she had routinely been in that much pain. Anyone who has had a baby without meds-think about going through that monthly!
This sounds too familiar.
I got pregnant with twins and was pretty scared of the birth :)
When the time came, I thought "well this isn't too bad: the contractions are just like my regular period pain". Or rather, my monthly period pain was actually just as bad as freaking birth contractions!!!
Luckily, I never got dismissed, I got diagnosed at 18, was on the pill for a few years but when we were trying to conceive nothing worked. I have Endo stage 4, when the Endo tissue had permiated other organs and there is vast scar tissue. I had three operations, and all the Endo cysts and fibroids grew right back within 6 months after the operation.
My chance to get pregnant was less than 3%, but I did it!!!! Second IVF attempt it worked. There is still hope!!!
@@katemangos1705 Im proud of you.
And yet I’ve heard that Sickle Cell crises are worse than labor pain. 🤯
Glory to God❤. God is Good❤. May God continue to bless you and your family In Jesus's Mighty and Wonderful Name❤@@katemangos1705
How did she not realised that she was pregnant ?
Took 15 years for my diagnosis. I was unable to stand for more than twenty minutes without misery. Mine started from a C-section. My twenties and thirties were ruined. My kids didn't get to have an active mom.
Its okay you're kids can understand dont push you're self youre always a fighter and still is
You're still their mom, they're here, you're here. You can do endless things together (= ❤
wait, if i can't stand during my period for 20min it could be endo ???
@@aliceliddell8413 Probably yeah but regardless you really need to see a gynecologist about it. You shouldn't have to live like that.
I was told, by a female doctor, when I was 14 that 'It's just something us women have to put up with'. Couldn't go to school / work some days due to pain. Can't stand upright and the pain still knocks me to the floor some days.
Finally diagnosed with extensive pelvic adhesions at 32. Everything glued together, yet I was told countless times it was in my head, I was 'looking for attention'. This was caused by a burst appendix and peritonitis when I was 11.
It's shocking that even today, our pain is ignored.
Sending positive thoughts to all.
They diagnosed me with PCOS and I said “my mom, my sister, my aunt all have endometriosis I think I have it too. My symptoms don’t match PCOS” and they said “well, it’s hard to diagnose that”
OKAYYYY doesn’t mean I don’t have it???
FR!!
I had ONE echo by a competent gyno after 14 years of pain and finally got diagnosed. If he can see it that quickly, how is it hard to diagnose?? It's ridiculous.
BUT IT'S THEIR JOB FOR GOD'S SAKE
It's also not hard to diagnose because it's such a visible thing when you look inside the body.
@@Padraigp you mean Diagnostic laproscopy?
Thanks for talking about this! For 34 years I suffered the worst pains, for 2 days I was out for the count. I could not live my life normally. But my doctor only suggested birth control. They literally just mask the issue instead of trying to figure out how to solve it. I’ve had my son since and no longer suffer from bad periods but my heart goes out to all my ladies who still suffer!
Thank you for being a voice for women. I can tell you that all my life men have dismissed menstrual pains and called women weak, tell us to toughen up and to "get over it" and on the days that are so intense of pain where even leaving the home the movement of walking bring excruciating pains we still have to go to work, clean the home, care for the kids, serve her man and somehow be cheerful and slap an unknowing smile on our face. Yet when a man gets the sniffles, the world stops.
I'm not bashing men, they don't know any better but to completely dismiss and insult a woman for being a bit moody or short tempered you would be too if you just suffered hours upon hours of knife stabbing sharp pains in your lower regions.
Thank you for being a voice to women and letting some women know that it could be other medical issues going on, even PCOS is very painful especially when the cysts explode(burst)
As someone with pcos, wtf you talking about?
Really? Cuz from what I've seen is women who, more often than not, go on about how painful their periods are, usually to one up each other or men.
@@GhoulishGash you have no idea. I used to have normal periods, but then I developed endometriosis one day, and my period pain went from normal to excruciating. Back when my periods were normal, I used to invalidate others women's period pain, but now that I experince it, I know it's real, and I feel horrible for invalidating them. I used to hardly notice my periods, and now they have me screaming out in pain and completely bed ridden and unable to walk. Endometriosis can even be life threatening. Did you know that endometriosis causes internal bleeding that can fuse organs together and even cause cancer. You have no idea what you're talking about when invalidating endometriosis pain. It's on the list of the top 20 most painful diseases in the world. Go watch those videos of men trying out period simulators and come back. Endometriosis is extremely common too. 10% of women are surgically diagnosed, but it's massively under-diagnosed, and up to 30% of women might have it. Go learn your facts before invalidating one of the most painful diseases in the world
@@sundragon13 uh huh 🤨
@@GhoulishGash uh huh what? Everything I said was factual. Do your research before invalidating someone's painful disease
My daughter has stage 4 endometriosis. She had an excision early last year, they found it in her diaphragm and removed it. However, in the late fall and winter, she started having bad chest pain, breathing issues. Her lung had herniated through her diaphragm where the excision was. She had it fixed a free months ago. She lives in constant pain. She’s tried to have a baby only to have 2 miscarriages. My heart breaks for her, it’s hard to see your kids in pain, even when they are adults.
Could also be adenomyosis, or uterine fibroids. I suffered for several years gyno after gyno with no help.. Interventional radiologist can help you SO much more. I was diagnosed and treated within the first month of seeing my IR
🥺
I assume this was conducted, but has your daughter been EXTENSIVELY tested for Vitamin D, B12, B9 and zinc deficiency given endometriosis? Not addressing present deficiency will destroy health.
@@DrakesdenChannelyes, she has. She had her 3rd excision surgery. She works with pain management. She desperately wants a baby and has not been taking all the meds she could be due to that. Ultimately I think she we have to have a hysterectomy, which is heartbreaking.
@@MetalGoddessJen75 Horrid to hear, but the best you can do is continually checking mineral and vitamin status every few months and making sure to eliminate inflammatory foods and correct issues. I would absolutely recommend a hair analysis for heavy metals and minerals, which may be lacking and causing further issue. With pregnancy, Vitamin B9 is crucial and definitely need to consult doctors on pregnancy vitamin supplements.
"We found it everywhere." My surgeon's words after my first endo surgery in '19.
I wept. Those words told me (and every person that discounted my agony) that I was not actually "being dramatic" or "just have a low pain tolerance" but an actual disorder that could not be denied.
That's me . At the age of 39 but suffering since age 10..had a myomectomy to remove fibroid but I knew from searching online that it must be endo I was suffering with from my first period. It was on my colon ovary,bladder, etc.
I am so happy you got the help you needed and it is unfortunate that you hadn’t been heard for so long!
I just wanted to chime in and point out, that “how much” endometriosis you have, doesn’t necessarily correlate with how much pain you’re in. Some women are riddled with it while having little to no symptoms, and some women will experience immense pain, even if it’s just a tiny spot. It is so unfair, but I wanted to say it in case someone has bad pain and gets a lap where they find very little endometriosis.
@@ravioliravioligivemeareaso4447 very good point!! Even if the surgeon doesn't find any it doesn't mean it is not there. It may be something else entirely that is painful as well-there's not "nothing wrong". Point being-we know when there is something wrong in our bodies, and should be heard when we voice concern.
I had a hysterectomy 10 months after having my 4th living child because I hadn't stopped bleeding since her birth. My doc had me back in 8 weeks later post-op. She said my uterus was very rubbery, like a basketball. She also said it looked like a hornet nest she pulled off the side of her house a couple years previously. Then she told me about the endo and adeno and said that all 4 of my living children were miracles, because as awful as my uterus was, I should never have had ANY kids.....she also said the lab results came back from the uteran biopsy. It was precancerous. Dodged a HUUUUGE bullet there!
@ravioliravioligivemeareaso4447 sometimes when it's everywhere, it can damage other organs to the point it can be debilitating. I don't have a family history of endo, and none of us had ever heard of adenomyosis until I was diagnosed with it after my hysterectomy.
I’ve had excruciating periods since I was a child. After 25 years of being told to “everyone has bad periods, take some pain meds”, I just got diagnosed with multiple uterine fibroids the size of chicken eggs a few months ago. This hit really close to home, especially the part about women suffering alone.
Thank you for bringing up more awareness to this. It means a lot.
I'm sorry you had to suffer alone, and no empathy was shown to you. And no, not everyone has bad periods. For me, most of the time, the pain was mild and a motrin took care of it then it was pain free. I consider myself lucky.
As a woman who doesn't get any period pain, I always though "If I don't get pain but others do there must be a reason for it. Why haven't we found the reason yet?" but no, I didn't have pain because I was lucky and having pain is the "normal". Pain should never be treated as normal. If men had to go through pain every month the reason for my pain free periods would've already been found centuries ago.
My experience with this stuff is rather limited (still a teen) and it changed so so much through the years. First I had almost nothing, then I had Periodic pains (not that much to cry or anything but it still hurt a lot). It got better due to birth control pills but it’s still there. The first time I ever heard of it not being normal was because of my Dad. Not my Mom or a doctor. My fucking Dad. Still never had any explanation rather it’s a disease or not. But it’s nice to hear that there are woman who don’t have these problems!
@@Shadow-by2kb it's pretty frustrating seeing all my friends suffer through it and there being hardly anything to help them with it. Body changes definitely affect periods, my mom's friend had said that after having her first kid her cramps went almost completely away. Did you ever have a weight change by any chance? I'm convinced weight gain or loss affects how periods feel. I keep trying to lose weight, which means my weight changes a lot and I keep noticing my periods also change. I still don't get pain, I do get other symptoms like being moody or having food cravings. I swear they get more severe the more weight I lose.
@@cantthinkofaname5234tbh not really (well I did grow a bit since I got my period but not much and didn’t have significant weight changes)
Same always thought I was lucky for it had good genetics or something...
Same I'm on my period rn but it it's never painful for me
I knew a woman who suffered from severe pain and doctors dismissed her suffering as “period pains are normal” for years. She killed herself. They discovered endometriosis in an autopsy because she wrote a note and this was the reason.
Society has failed women, and medicine is only starting to realise that. A shocking part of it was that two female doctors scolded her for being dramatic. She begged for a hysterectomy and they dismissed her.
Wish she was in India. The tests are taken immediately if we tell the Dr that we suspect the condition and want to get tested, within that day the results are out.. And treatment can be started then and there. Wish the West has such a system where no matter what the patient is taken immediate care.. I have faced such problems in US and they are taught to say I think that everything is in your head.. BS.. what's in your head.. doc.. why do you guys even study medicine if you are not able to treat the patients properly and atleast listen to them!! 😢
I'm from India too, and I was facing some minor fatigue and fainting many times, also I'm from one of the hottest regions of India so I ignored it and thought maybe summers and dehydration was responsible for that ... But my doctor forced me for a blood test and later we came to know that I was severely anemic 💀@@rajib8231
I'm an NRI and my mom raised me with the impression that India does not have progressive healthcare for women. Lived with that belief for years, until I started having issues with using a menstrual cup and the doctor in my residential country stopped me mid speech and started BERATING ME for using a cup. When I came to India the doctor was so much more understanding and heard me out. @@rajib8231
What India are you talking about?? Lol. It's the exact same.here, I can say by your name you are not even a women/girl @@rajib8231. Don't talk on our behalf. I have tons and tons of similar examples where doctor dismissed our symptoms. I have first hand experience on it too..
I am from India. It took 17 years for my diagnosis and guess what its not even doctors who diagnosed its completely my research based on my symptoms.Trust me i have visited well renowned hospitals. It is true everywhere period pain is dismissed. Doctors say oh its just pain it happens to every women. Even when in every period you go through pain way beyond tolerance, vomiting, nausea, leg pain, thigh pain , diarrhoea . You can't eat , you can't drink whatever you consume you just puke. But still there is no remedy . At last my surgery was done and was diagnosed Stage 2 endometriosis. I don't have kids. Because you don't have to deal only with pain but fertility issues are real too. So the societal pressure of having kids even after going through so many hormonal treatment your life becomes hell. But still i was hoping i will have pain free life after surgery and will adopt kids but no, I am not pain free . In a 4 week menstrual cycle i remain in pain for 3 weeks , mild pain for one week and severe pain for 2 weeks. I have to leave my job . Life is tough honey no matter where you are. You can't even imagine how many times the thought of giving up on life comes in mind. Specially when you are married. But still you have to be strong
I read an article recently that stated studies traced most endometriosis to a certain bacteria, and they believe that’s how it starts. Hopefully doctors will soon have a good method to test women for this bacteria and have a create a cure
I believe it’s all the crap in our food causing inflammation or more.
I'm pretty sure tho its a genetic thing. From what iv can tell with my experience and my gynecologist explanation of my condition, it seems to be a genetic deformity but I do hope it could be cured
@@partygamingz3332It's genetic to an extent. Any geneticist will tell you disease is about gene expression. Gene expression is altered by stress, hormones, toxin exposure, and physical and emotional traumas. It's a bit of everything, but so far there are no definitive studies done that prove any genetic correlation to endometriosis - even with the common MTHFR mutation. It's still at the "correlation, but not causation" point. They do know it can run in families, but that still could be more to do with environmental factors or learned habits. Some day it will be much more clear! It's so great to live in a day and age where so many medical studies are available online!
@@maryamjoha They found it in aborted male babies in France. It's genetic. You're born with it. It doesn't become active until you start producing large amounts of estrogen because that's what it feeds off. It doesn't become active in men because they don't produce enough estrogen. This was known and documented when I had my hysterectomy 15 years ago.
Edit: As this doctor stated, it wasn't really studied until the 90s. Meaning there's a lot of undiagnosed women from past generations. Someone not knowing a family member had it doesn't make it not hereditary. It just means they were never diagnosed. Just like hereditary diabetes. While it may skip a generation, it's still hereditary.
That’s very interesting so much can be caused by bacteria or bio flora, they even think that may be the case with Alzheimer’s too.
THIS IS MY LIFE PAIN SINCE AGE 9 AND I HATE WHEN I FEEL LIKE SHIT BECAUSE OF GASLIGHTING!
I think the most terrifying example of this is from the women that suffer ectopic pregnancies or their appendix bursting. Their period pains were so painful that when those things happened, they didn't even know until it was too late. That part is absolutely wild to me.
Edit: It literally breaks my heart reading your stories in response to this comment. I wish I could offer more than just thoughts and prayers but keep fighting the fight, girls. You're all so much stronger than me, I'll be rooting for you!
I went through an ectopic in 2017. My tube exploded because lil bean was growing in my right tube. I got sent home a million times from the ER with the phrase “if you’re miscarrying, go home and call your OB, there’s nothing I can do” despite me telling them over and over again that my OB was pretty sure it was and ectopic and to return to the ER if I had more pain or if it just kept continuing. I also had abnormal bleeding and was passing bits of my own tissue each time I went to the bathroom. The last woman that sent me home use the excuse that it was New Year’s and that everyone was tired, so I’d have to go home and deal with it there and come back in the morning to see my main doctor. A few nights later I literally felt everything explode in me and the blood flood my abdomen. It was even worse when the blood began to clot. The pain was unbearable. I was rushed to the ER AGAIN and this time i demanded to speak to the hospitals president to make sure that woman didn’t almost send someone to their death again. My drs who did the surgery said that my rupture was millimeters away from an artery, and I was very lucky to be alive.
@@elithasimjesus. that’s insane
@@elithasim make sure you have the Dr who writes you off to put it in your notes and sign it, don't EVER. EVER. leave until they do. once it becomes their name attached to it, they risk lawsuit after the fact for dismissing you without investigation and will be more likely to help, absolutely insane that strongarming is nearly the only way you can get the help you need, but it's there.
much love ❤
This was me last year. I really thought I was on my period. The pain kept getting worse and worse until I started screaming “I’m having a miscarriage”…I didn’t even know I was pregnant. I finally threw up and was knocked out cold after. The throwing up and passing out thing is a “normal” occurrence for me when I’m cramping. Next morning I woke up feeling absolutely fine but my mom was not convinced. I was actually hemorrhaging the whole night from an ectopic pregnancy while passed out. I could’ve lost my life in my “sleep” at 31 years old that night. Thanks be to God I am currently pregnant with our rainbow baby.
My recovery from invasive surgery to get sterilized and to treat endometriosis, was easier than the majority of my periods. I was in recovery for two weeks, and couldnt work. Id still prefer that over periods I had as a young woman any day of the week.
After 34 years of excruciating periods, I finally got diagnosed with adenomyosis and had a hysterectomy. When the surgeons went in, they found extensive endometriosis. They resected as much as they could. It’s only been 7 weeks, but living without that pain is amazing!
I had adenomyosis also. I had a hysterectomy at 34. I was sick for an entire two weeks before my period. It was the same thing every month and it was exhausting!
Hysterectomy for Adenomyosis changes lives, for sure.
I think I was lucky that I didn't have endo, but when I got a hysterectomy in 2014 at age 41... for the first time EVER I heard the word Adenomyosis.
No one online or that I knew, even those w/ Endo had heard of it. My OBGYN (female) didn't ever mention the *possibility* for my 37-42 long cycles that ended w/ 7-8d of heavy painful bleeding. She wanted me to get an Ablation which would have just cost a few hundred, & kicked the can down the road until I could afford the Hyst in a year after meeting Medical deductible for "routine" (non GYN) care.
SUCKS because I think I'm having bladder issues tied to some of those ligaments that are no longer attached to my uterus. .
My hysterectomy at age 35 was a lifesaver. The monthly SEVERE pain starting at age 12 caused vomiting, diarrhea, shaking, chills, sweats, acute headaches, complete body pain including down my legs & throughout my back/neck. I'd lose 6-7 days a month from school, work, and home life. Having 2 babies did not help. Grew worse. I'm 65 now, and though I was depressed after that surgery and got through that, I have never once regretted it. Doctor had a tough time removing uterus vaginally bc it was swollen to size of a football with endo.
I went to my obgyn last year day before my 38th bday and I wanted a full hysterectomy due to endometriosis and due to my health issues and problems healing after surgeries he highly advised AGAINST it and told me my best option is to stay on the birth control shot until I'm thru menopause. I understand where he's coming from as it's a major surgery and I would have a lot of difficulties healing & not causing more issues. But it still sux.
@@MariahWatkins2007 I had a partial hysterectomy to keep those good hormones going, but now I’m on a drug to suppress them short-term. I’m 47, so I’m not too far off from menopause. But OMG it has been amazing for me. Also, I just learned from my cardiologist that there seems to be a connection between endometriosis and dysautonomia, which I also struggle with. Since the surgery, my heart issues have been improved, which he said he sees quite often and I may even heal completely from the dysautonomia. Crazy! Don’t be afraid of getting a second or third opinion. (Also, I’ve tried everything I could before resorting to therapy. Last treatment was IUD, which helped, but not enough. My doctor was glad we did the surgery before the endo got to my bladder.
I had endometriosis. The pain I suffered at times was horrendous. At times I would almost blackout with the pain. I used to think I was just no good at being a woman and if I could just be a little bit stronger I wouldn't be so bad at being a woman.
Finally, in my late 40s I had a hysterectomy (It's not necessarily easy to talk medical staff into doing a hysterectomy when you haven't had children). Once I had recovered from the operation I realised I had been ill for the last 20 years. I wasn't a failure at being a woman. I had been suffering with a genuine disease and had been ill for 20 years. Having that hysterectomy was one of the best days in my life...
I'm only 13 and I often puke from the pain, you think I have it? My mom says thats normal cause im to young and just cant handle the pain yet
God bless you dear❤️
@@Ann--RoseI think you should go to the doctor, not everyone has it that painful
@@amask99 thanks for the advice :)
@@Ann--Rosethat is absolutely not normal pain dear. No one should have to handle pain like that. Period pain should be uncomfortable, not distressing. Throwing up from the pain is severe pain. You must find a gynaecologist who is experienced in treating endometriosis. You can do this online by joining endometriosis forums in your area or state and asking them for help. They will support you. Learn about endo and write down your symptoms. The only way to diagnose and cure endo is laparoscopic excision surgery. The pill just hides the symptoms. If a doctor just wants you to take the pill without giving you a laparoscopy to find out if you have endometriosis or not, find a better doctor.
I have had terrible pain for 15 years and the only thing that finally helped me was cann*bis suppositories (Foria Relief is the brand in California). You can make them yourself by mixing whole spectrum cannabis oil with cocoa butter. Sorry for the info dump but information is power! Screenshot this message and reply if you have any questions. Fight for yourself dear and don't ever give up. 💜
I was never diagnosed with endometriosis but I did have a wonderful doctor that told me to come into the office when I was having bad cramps. When I did this the next month, she took external & internal ultrasounds on my uterus. She was shocked to see that I was having uterine spasms aka labor pains. I had to deal with this pain, along with a high temperature of 102 - 105° F, a blinding headache, and bleeding so heavily I would go through at least a box a tampons and a full package of pads (worn at the same time) for 5 - 15 days, per month. I was put on the pill, which cut my issues down to 5 days total, but did not help with lessening the issues. I started my period at 9, but it didn't get really bad until I was about 12. I had my last period at 55. That's a LOT of years to deal with such pain.
Once I had a terrible stomach ache, my mother took me to the doctor, he said it was a tummy bug and that I had to go to the pharmacy. The pharmacist hears my symptoms and asks, "Are you sure you're not pregnant?"
I was ten.
Unfortunately, younger girls have had babies.😢
It's very sad that people always ask "you sure your nit pregnant?" Even if you are 6 years old. Growing up any time I was having issues with anything, the first question would be "pregnant?" No. Why would you even be asking a little child that??
Doctors almost never believe women or kids when it comes to pain. It's very sad. I just got lucky when I moved to Texas that they actually had doctors that would listen and try their best to take care of you.
@@evilsharkey8954 Only in the case of the world's youngest mother in the 30s and that was an anomaly that should not be.
My mom worked for Vanderbilt Hospital in the ER back in the 80s. She said the youngest mother she met was 9, but that mothers under the age of 12 weren't uncommon. These things are a lot more common than most people think. There's a reason they ask those questions, despite age. Most wouldn't look at a child or granny and think they could be pregnant, but it's something that's easy to rule out.
@@evilsharkey8954 Yes but it's not a typical question a pharmacist should ask a girl. Because it's not likely.
I've had cysts on my ovaries since I was a kid, I've had a couple burst. My dad just told me I had a low pain tolerance. Doctors told me it was a normal level of pain.
Fast-forward to my late 20s, going to a gynecologist and having a pelvic untrasound for the first time. The tech just looked at me stunned and asked "how are you not in pain?" I said "I am... But I'm used to it."
I had two cysts over 10 centimeters in diameter.
Side note, eventually one caused my ovary to twist around my fallopian tube. I had to have surgery, my fallopian tube was removed and the other tube was deemed non-functional.
Having large cysts is not just a "be stronger, deel with it" thing. It is dangerous to your life.
Omg same! In 2012 when I was 26, i had an ultrasound done bc I was in agony, I had a heating pad strapped to my stomach and couldn’t stand straight. Not only were my ovaries covered in cysts but one was so huge that it made the ovary flip itself, cutting off the blood supply causing it to swell twice its size. I’d never heard of something like that happening before! It wasn’t until I went to that one dr in my 20’s that someone finally listened to me
I’m so sorry your pain was undermined 😭🙏 I hope you find solutions to give you true lasting relief soon
I’ve had similar experiences with ovarian cysts and ruptures of them. I personally believe every woman should have their insurance cover MONTHLY gyno visits to check for ovaries and avoid any potential ruptures or fallopian contusions.
:((
My story is very similar to yours. I had to have surgery to remove cyst & my gyn asked me how was I not on pain meds. She recommended a hysterectomy but I said no. So she let her office know when I call asking for meds to give them to me. She said I was the 3rd worse case that she ever saw in her 30+yrs.
There needs to be Lists if Doctors who are dismissive of this and another separate list of Doctors who diagnose properly.
For fucking real
I think it's possible, they have sub reddits with lists of doctors that will sterilize you at your request instead of denying it because "what if your (future) husband wants kids?" I wouldn't be surprised if they already had lists of doctors and providers that are more compliant with patient care and needs.
frl we need something like rate my professor but w doctors
Yes! Like that google doc that was floating around for drs that would perform sterilizations for women that don't want children.
Frankly speaking there must be official complaints and thus them getting cited to cone in and "either pass the test checking if your knowledge and conduct is up to date or off with your license" if reports accumulate.
As my GYN said: "It's no longer acceptable for any gynecologists of any generation to not know endometriosis in 2023 (at the time, in Germany)."
Also the only way to diagnose it for real is explorative laproscopy (probably spelling it wrong right now) and that doesn't help with dismissive doctors whom you need - to forward you to as specialist - to be helpful! ///orz///
Thank you SO much. All girls need to be aware of this!
From a 68 yo nana👋❣️🇨🇦
One of my college friends has endometriosis and ended up needing a hysterectomy to keep from bleeding to death. She was only diagnosed when a new gynecologist saw her in a fetal position during a period. When my friend told him what her mom had told her (periods are painful), he said “honey, they’re supposed to be painful, not torture.” She was 18 when she was diagnosed, having her first period at 12.
Nice. Your friend was lucky. Diagnosed 2 years before the average time 👍
I went to my doctor over and over again due to my pain and symptoms and because she never found anything (and I guess didn't think of endometriosis) she started accusing me of faking it and told me I was simply too weak for life and too weak to go to university. Literally wtf??
I'm so grateful to my gastroenterologist who suspected endometriosis (I heard about it for the first time from him) and we were later able to confirm it. He's my new doctor now!
Wtf!? I hope your reported that doctor. That's SO unprofessional and just downright mean. Her being too stupid to diagnose is not your fault, it's her responsibility to send you to the right specialist or look outside the box for answers. It's time for women to start making more noise when we're treated badly by "medical professionals".
@@maryamjoha Unfortunately, reporting a doctor in my country leads to nothing... especially over something like this, they'd probably just tell me to relax and find a new doctor if I'm unhappy (which I did, of course). Doctors have so much power here, you don't really stand a chance. But luckily, she was already pretty old (makes sense given her mindset😅) and she retired shortly after I left to find a better doctor.
That's really sad. I don't get mine too much anymore because they gave me birth control for 7 days to stop it. But I always go to ER, and they give me an IV drip with pain meds. Im glad they believe me because the pain is just to scary
Please look into Whole Food Plant Based Nutrition! One of my colleagues was able to reverse her endo with it! PCRM has good articles about WFPB Nutrition vs reproductive health, and of course you'll also prevent many other conditions and diseases!
After so many ultrasounds, it took one person to finally look behind my ovaries they actually found my cysts. So frustrating.
I have thrown up and fainted multiple times from the pain I have during my period. I first thought it was normal and my doctor suggested I should start the pill, to “help with my depression”, “prevent acne” and “lower the pain”. Well it hasn’t helped me a bit, I just gained weight, I’m moody and depressed, and switched doctors three times already, but everybody tells me the same thing.
“Period is painful for every women” or “maybe you’re just more sensitive than others” or “it’s really hard to diagnose so even if you had it, I don’t think you’ll ever get to know”, just stuff like that.
I don’t think it’s normal for an 18y.o. to faint and throw up from the pain, needing ibuprofen 600-800 every 2-3 hours just to get through the day and no, I am not “sensitive”. I played soccer almost 7 months with a broken ankle, had a dislocated knee cap and relocated it myself and have multiple piercings and tattoos, all without too much pain.
But this? This is just too much to bear honestly.
I'm so sorry to hear all this. The only thing I feel a need to tell you is to just watch out for any new random pains where your liver is as time goes on self medicating. I took stupendously high amounts of Tylenol and ibuprofen combined every 4 hours to get through my last three years of high school due to unexplained chronic pain no one believed I had, and self medicated myself into mild liver disease. Doctors accused me of drinking myself to that level but I can't actually drink (stomach issues from the pain medicine also), never been drunk in my life (24 now). Just took 800-1000mg OTC NSAIDs every 4 hours of waking life for roughly 2.5 years every single day.
It's so frustrating and lonely being looked at ignored because the pain is invisible to everyone else. Keep fighting the good fight and just always try your best to be mindful of how you're treating one problem, and how it may impact your body in the future. I just can't stand seeing teenagers/young adults go through this bs with the medical system and I get scared thinking of what people might have to go through, what I went through. How hard it all is, how isolating at times. Stay strong, and never stop advocating for yourself. As my doctor told me, "if you don't keep complaining about the problem and make it our problem we just naturally assume the problem you have has gone away and is no longer in need of solving." So don't let em forget you're still in pain, or THEY WILL. It can be hard to keep fighting for yourself, but you can never give up, that only makes things worse and harder to tackle later on when you try again. Wishing you the best in your battles, keep going on always, never stop picking yourself back up
I just wanted to say i have been through this for multiple years. I would pass out from pain. Throw up. But after multiple ultrasounds i had found cysts on ovaries. Ibuprofen was the only help. A surgeon i went to for a consult said theyd just take out my uterus because why do i want to be miserable he said. I said because i want to be a mom someday. I walked out mad. I kept my uterus and continued to deal with it. I will say that ibuprofen and a fiber during pms helps the most. Heating pads during your period on your lower back. Constipation makes it so much worse. After my first pregnancy my symptoms were cut in half. After 3 kids i have bad periods but not excruciating. Have hope.
Check insurance, and call an OBGYN or Gyno office directly. If you need a referral, go to the doctor and refuse to leave without one. Say you want it written in your chart that they are denying this referral while you are expressing “x” symptoms…
I was told that since college from ALL primary care doctors. The last time one told me “period pain is normal,” I went home and phoned an OBGYN office directly. Told them my symptoms and they immediately scheduled an ultrasound over the phone. Turns out I had uterine polyps and adenomyiosis.
It took me 14 years to get taken seriously. It’s B.S. Skip the primary care doctors, because they’ll never believe you.
I also learned that the magic words are to tell them you’re “spotting between periods.” Because doctors overlooked 14 years of me barfing from pain, unable to go to work and school because I can’t control the bleeding, etc. but the second that started happening, all of a sudden they cared, when my main symptoms were unchanged for 15 years.
I also had to eventually switch OBGYN’s to one who specialized in endometriosis and am finally getting the surgery this June! The first one I went to told me they don’t like to do the surgery for endometriosis because they treat it the same with hormones, birth control, and blood clotting medicine. No, I would like 15 years of painful inflammatory tissue (that could also latch on to other organs and even can cause cancer) removed.
So find doctors who will treat you! Good luck!
It's not normal and you need treatment STAT, that means right away. I found hot baths and hot water bottles over that part of me were very helpful with the pain until I was able to get help.
I saw an interesting interview with a woman who went on a completely carnivore diet and by the second month her pain was gone. I can’t remember what channel I saw it on but I’m giving it a try. I can live without carbs if it means no more agony.
I was rolling in pain after birth. I couldn't walk. I couldn't even sit. I would pass out from the pain. I couldn't carry my baby and I was terrified drive. I spoke with my doctor at the hospital, who dismissed me. I called the office begging for help. They told me to wait for my postpartum appointment in six weeks, and they still ignored me! THREE YEARS LATER, I was still in the same condition. I went to see my primary doctor for something else, and took along my handy donut pillow. She took one look at my pillow, asked me what was going on, and wrote a referral for a pelvic floor physical therapist that very minute. Turns out I had significant damage from a birth injury.
I knew somebody once who was consistently dismissed and/or emotionally abused by doctors for her endometriosis, to the point she mostly stopped believing in medicine and became a conspiracy theorist. People in this field must be capable of empathy, otherwise they cause damage.
This is an extremely important point to bring up! And that is medical gaslighting
Indeed 😢
I'm really glad someone brought this up because I think this is a hugely underestimated pipeline to harmful "alternative medicine" practices (no shade on non-medical treatments that actually work, there IS stuff that's legit, but unfortunately the term gets co-opted by a lot of bullshit). You usually find more women in those types of spaces or participating in those practices, right? And relatedly, you usually find more anti-vax women than men. It's not because ~women be feelings~, it's because when the mainstream literally fucking refuses to help you, OF COURSE you turn to the snake oil salesmen promising you the cure!
I'm one of those "crazy" conspiracy theorists, because of how heartless doctors are. Have to take care of myself, supplements, exercise, eating healthy, doing my own research, ect.
Can do almost anything for my health except for actual surgery.
@@amberslahlize7961 I think it's better to take care of yourself in that case too, sometimes doctors can actually make you get worse.
In my case, things got all fuvked up. I got lucky and was diagnosed fairly young, about 10 years ago. Unfortunately, a few years later, I switched insurance (because of cost/new employer) and the new health insurance refused to accept that diagnosis, stating I was ~too young~ to have it and I was ~over reacting~ to the pain.
My over reaction was that my EMPLOYER was so concerned about me that they called an ambulance to take me to the hospital. The paramedics were so concerned because my blood pressure was so low that they couldn't get a reading. They were very VERY concerned because they took it several times and it didn't read. The nurse when I arrived was concerned because apparently I was so pale, I looked like a corpse, and I was shivering from cold sweats. This wasn't a one time occurrence either and I've learned to just not go to work during my period. But I'm over reacting, it's my bad. I still can't get a proper diagnosis and with the other issues I have going on in my life, I don't have the time or energy to fight for that.
No, of course the insurance company knows better than the doctor 🤦🏽♀️
Really sorry you're in that situation, hope things change for the better for you
Why am I going through the same stuff basically omg I hate this world
I genuinely dont understqnd how were allowing insurance companies to PRACTICE MEDICINE WITHOUT A MEDICAL LICENSE
I'm so so sorry please don't give up. You have to keep pushing on you will get diagnosis to stick. I'm sick that you have to fight for this but please don't stop you deserve care
@@korvincarry3268I work at a neurologist office I say this often. I have straight up grilled the person making decisions they have no medical training and somehow they find unscrupulous medical professionals that uphold their decisions. Health care should never be about profit it should be about people and health
I started suspecting endometriosis myself after my period pain got off the charts in intensity..This month alone i screamed in agony an entire day (day 1 of period) which left me pale and shaky and nauseous and ultimately fainted ..FROM PAIN. This is NO JOKE. Everyone dismisses us with some painkillers (which i can't even take anymore because i developped intolerance). We need treatments, we need progress and we need to be heard !!! Bless you all sisters out there who go through this horrendous thing every month .
You got painkillers?! LUCKY! I'm jealous ❤ all I got was schizophrenia 😅 I can't feel pain anymore!
I've found taking iron helps with the pain some, plus you need to anyway since you're losing blood. And lots and lots of water. A heating pad also can be a godsend. Other that that I wish you well because sometimes there just isn't anything that helps with that level of pain - that won't destroy your organs or screw with your brain at least. Look into herbal supplements (NOT home remedies or MLM crap) that will gradually improve the hormonal imbalance aspect of it and that will also improve the pain a bit. It's still probably won't go away, but it's important that you can get it down to tolerable/manageable.
Hot baths with epson salts. The epson salts have magnesium and help with the spasms.
That’s sounds horrendous, idk where you live but if it’s legal for you to get thc (preferably edibles) I highly recommend doing it. Even if it helps just a little
You’re lucky you got painkillers I always got dismissed with birth control
I have had endometriosis develop since i first got my period. I had a laparascopic exploratory surgery as a teen to diagnose it but it was "invisible to the naked eye" as it was developing on a cellular level at the time. I went through 5 years of doctors forcing me to take drugs that made me sicker and it never helped that my normal menstrual cycles were 3-4months apart and lasted a full month. Imagine bleeding for a full month straight and passing out from the blood loss. I constantly felt the endometrial tissue spread through my abdomen and twist my organs until i couldn't walk. It took 8 doctors before i convinced a surgeon to perform a total hysterectomy at age 19. I hiked a mountain 3 weeks post op because it was easier than ever without the strain. It saved my life.
And people say we're the weak ones while often having our pain dismissed and told to just deal with it.
I mean you kinda are....If you need peripd vacation...
Wtf @@marvin2678
@@marvin2678
lmao the fuck is peripd vacation
I was told "dang that sucks..." -female doctor
@@marvin2678First of, its "periods" not "peripd" and well not everyone's periods are the same so I hope you know you're sounding like a total fool right now
PSA: period pain that is so bad that you cannot function and go about your day is not normal.
It isn’t? 0-0 I’ve only had two periods as of now and that’s been my experience
@PurpIe.Potato Debilitating period pain is a common sign of endometriosis other illnesses.
@@PurpIe.Potatosome pain is normal. Pain that makes it so you can’t go through daily life is not.
Which is why women with these conditions swallow the pain or dismiss it entirely. After all, other women still live their lives through all the pain so why can’t they. That pain is their normal experience and it’s incredibly hard to compare pain levels because these women have always experienced this pain.
My sister had it when she was 12. The doctors told her not to make a fuss and that it was a normal period. And then our mother did too. It was so bad that she had to throw up and sometimes fainted. But even with these symptoms the doctor just said that it was normal. When she asked for tests to be done, the doctor said that she wouldn't do it if nothing was wrong. It was so bad that she didn't dare go to the gynecologist anymore. Until she came to my grandpa crying and said that she felt like she was going to die. Our grandpa then took her to the gynecologist, who was a man. He actually treated her for the first time. After just one test it was immediately clear that she had it and he was shocked that her gynecologist at the time had never noticed it, even though the symptoms were clear.
Endo shows in a laparoscopy which is usually not the first test...what did he do? Because unless organs fuse together, you won't see anything on ultrasound, CT, etc..
And they ONLY treated her and cared because another man was with her.
There is no test for endometriosis. Exploratory surgery is required to diagnose & confirm (if already suspected.) It's the biggest reason for the delayed diagnosis. Surgery isn't a first, go-to option. It's a last resort option when all others have failed. Another big reason: the symptoms are same or similar to several other probs/conditions that don't require surgery to diagnose &/or are easier to treat. Usually those will be ruled out first, before moving to the final option of surgery.
Thank you for confirming what I’ve suspected my whole life! Hopefully things start changing with doctors like you.
My girlfriend's period cramps are so bad that sometimes she can't even walk, meds don't help her that much and so far the only thing that has helped her are warm compresses, but it's still awful to see her suffer so much, sometimed she can't even eat and it's even worse when we get our periods at the same time because neither of us has enough energy to cook/buy stuff we need :(((
Same thing happens to me. The cramps affect not just my abdomen but also my legs and it's excruciating. It's why I keep things like frozen pizza or cans of soup in the house. I have a family so I also have stuff like frozen batches of spaghetti sauce and meatballs or chili or just quick, packaged stuff that can be heated in the microwave with no real cooking and one dish. It makes a big difference because while sometimes I'm sick from it, other times I'm super hungry and not eating makes the headaches much worse. I also love my air fryer because there's nothing like a batch of fresh, crispy, greasy French fries some months.
Years before finally getting my Endometriosis diagnosis. Finally found a doc that went, "sounds like Endometriosis, I'll send you to a gynecologist ". Gynecologist said it's probably just "painful periods" but went ahead and sent me for an ultrasound. Ultrasound tech said they couldn't see anything, so it's probably just "painful periods " but we'll send you to a OBGYN surgeon if you want. I said yes. NICEST MALE DOCTOR I'VE EVER HAD! He said it sounds like Endometriosis and I had surgery. Sure enough, Endometriosis. Felt 10x better after surgery, but I've been having bad reactions to preventative meds, so finding stuff that works is hard...started taking a low hormone birth control and Frankincense and NOW I only have painful periods. My body aches and pains have been reduced dramatically. Chronic nausea is BAD AND i can tell if I accidentally missed my meds, because that nausea hits hard. My sister was happy when I got my diagnosis because now there's official "family history" of it and she's got a better shot getting her diagnosis earlier than I did.
Hey have you tried the medication Duphaston? Maybe that can help you. I have problems getting my normal period so instead of birth control I take this.
Nicest male doctor? Must be a rare breed.
Wait so my doctor also said they ddint find anything when i got ultrasound. My mom and my family has a histoyr of endo so could that mean that i could actually have it?? And the pain staking periods that make me need to faint and want to go to sleep and cant even get up without need to run to the toilet could have still been endo and my doctor was just blind
@@bingolinging Wait, you have family history and they STILL don't take you serious? Yeah, find you a different doctor. The only way they can actually confirm Endometriosis is by doing surgery and physically looking. Don't take no for an answer. You know your body, don't let them gaslight you or family.
I remember before I got married I kept telling my husband how painful my periods were and he couldn’t wrap his head around it. The second period I had after we were married he told me that if I wanted to have a hysterectomy, he wouldn’t be against because he couldn’t stand to see me in all that pain.
Regular painkillers don’t help. The contraceptive pills stopped helping.
You married a good man
@@trinitythomas9379 thank you! I am so grateful for him.
@@trinitythomas9379hes good for doing the bare minimum?
I had one for this reason. I couldn't spend my entire life in agony 3 weeks out of every month. The vomiting, I was told it was just hormonal and get over it because some day I'll want kids, after I had a partial hyst, no more vomiting, imagine that!
I've had a extremely high pain tolerance my whole life, this was the only pain that ever had me vomiting. And on a regular basis at that.
The idea of kids is nice but for me not worth a life of incapacitating pain daily. I'll settle for a surrogate or adoption. I don't regret my decision at all. Life was miserable and the pill hardly helped. I was done.
@@CenturyOakWindStarWow we are the same 3 weeks every month of feeling sick, even when I skipped my period. No women in my family have this and they can't wrap their head around the idea that someone can be suffering this much pain
Experiencing the device that simulates period pain with varying intensity should be made a must for graduating highschool!
A friend of mine has been asking for tests from her doctor for 10 years, has been to 4 diferent doctors and got the same response from all of them "periods hurt welcome to being a woman" she finally got them to run some tests and they found cysts on her ovaries and uterus, thankfully they aren't cancerous and she's finally getting treatment she should have been getting a decade ago, doctors refusal to acknowledge womens pain is infuriating
I highly doubt it’s just 10% of women. The number is definitely higher than that. Doctors barely care to do the procedure to even check. Healthcare and especially women’s healthcare in the USA is awful!
Its probably everywhere, here in a town in he netherlands we have an awful doctor who didnt believe me and my mom when we said that walking up 6 flight of stairs was torture for me due to being exhausted and literally in pain in my leggs, and it doesnt get better, i have been walking like mabye 50 staircases every week for months before giving up and realising my body is just not going to get in better shape that way. He wanted to discourage me from getting an elevator pass. When i said:"you just want to see me in pain" he was like:"no! Now YOU are twisting my words!". I dont think he should be a doctor, thats just more than idiotic. How am i twisting his words when he basically says that i just need to torture myself by walking up stairs? Thats straight up gaslighting. This is the same person who said that hypermobility is not a disease and that its always good to have... He tried to disprove that that was where my pain was coming from to say "see, you dont have pain when walking up stairs"... Fucking asshole but he did give me an elevator pass... Not because he wanted to but i got it.
10% is enough for it to be common. 10% is not rare but many doctors act as if it is. Medical study of women corpses donated to science have found women with no medical history had horrific undiagnosed cases of endometriosis many more times than expected.
@@theultimateawkwardness4025 it’s really sad I really feel like the care we are receiving for medical professionals has really decreased greatly. I’m sorry you had to go through that.
@@robertsteinbach7325 Thank you so much for that information, I really feel like doctors have a really bad habit of down playing patients concerns about their health.
@@imaginationparadise1494 thank you for your words. He is a pretty bad doctor but he gives everyone what they want so in the end you will get what you want. I have had way way more trouble with mental care, quite hilarious some things, just the irony though.
I waited 25 years for a diagnosis. Multiple burst cysts with no pain relief. And then they couldn't ignore a 12cm ovarian endometrioma that almost cost my life. I've been in pain every day since I was 11. Not one doctor took me seriously.
WTF! THIS HAS GOT TO STOP!
Ah, hope you got something to help you feel better
And now ?
This is me right now. And I gave up trying to get help about 10 years ago. I've been suffering for almost 25 years now. I have a strong family history of endometriosis and pcos. And my pain started up a few months before my first period at 11 years old. At first the doctors said my hormone levels were normal and I was too young to have pcos. Maybe the doctors would find it in younger people if they tested for it. My symptoms are the same ones my mom and grandma experienced. And the pain is debilitating. I am so used to extreem organ pain, that I can't always tell whether I am experiencing physical pain or if is a depressive episode. Pain effects me like any other person. But I'm so used to pain, that I only become conciously aware of it when it is all encompasing. And I have given birth 3 times unmedicated. I was more than well prepared for the pain of childbirth. I honestly believe that I could endure a fair bit of torture without breaking.
My mom bleeds through a super plus tampon AND an over night pad (within 1-3 hours) during basically her entire period but her doctor told her it’s normal. THATS NOT NORMAL!!!! She also had to go to the ER about 7 years ago due to hemorrhaging!! Doctors need to do better!! I tell her constantly to get a new doctor but she doesn’t listen 🙃
I’m a mom & can totally relate to the exact same problem I had my period stop at an early age compared to the average woman, by 37 yrs old it all stopped but I suffered many years of extreme bleeding & no sleep because of all night changing I was afraid to even move to avoid blood flowing
I had the same thing unfortunately. I would bleed through both in about 45mins. I was literally bleeding to death. My "periods" lasted 8 days to sometimes months long. I bled so much I was severely anemic. I had to go through a dozen OBGYNs in order to find my last. I didn't have endometriosis or PCOS. It was cancer. I had to have a full hysterectomy and even that wasn't simple.I had a rare disorder where the outside lining of your stomach fuses with the outside lining of my uterus. When they sucked out my uterus, it ripped it away from where it was fused with my stomach. I almost died on the operating table. It took hours of surgery to find where I was bleeding from and two blood transfusions to keep me from dying. Please don't let your mom leave it any longer. I have learned to be my own advocate, because if you aren't, no one else will be. I have had to go through multiple rounds of doctors and specialists until I found one that listened. Because sure, she may have Endometriosis or PCOS, but it could also be cancer that is killing her slowly. ❤️ I'm sending you and her nothing but good juju and I really hope she can get answers soon. 🫶🏻
I truly hope and pray your mother changes to a doctor that is an adult and lisyens to you both.
I had a hysterectomy, kept
my ovaries and feel great.
Undiagnosed endometriosis nearly killed me. I suffered excruciating pain monthly for decades. Then, in my early 40"s, my periods became erratic; nothing for many months followed by spotting and/or painful heavy bleeding for days or weeks or months on end. At age-45, one day the bleeding was so intense that that night I finally passed-out due to blood loss. Yes, it was a frightful night getting up every five minutes to run to the bathroom; I had no idea that I was in the process of bleeding to death. By the grace of God, my elderly father heard me slam to the floor unconscious at 4am and called 911. Unbeknownst to me, I was transfused. When I regained consciousness, I saw I was in the hospital. I was in the ER. I asked the nurse what was going on because there were many people peeking in on me...some were even timidly approaching me, lightly touching me and scurrying away without a word. The nurse said: Honey, we've never seen anyone come in with so little blood and then survive. You came in here with maybe 4oz of blood in you. You were white as a sheet. No one expected you to live. It's a miracle that you have revived. News about such things travel fast in this place so people from all over the hospital came to see the miracle...and that's why some could not help but touch you. Since you have revived, you are going to have an emergency hysterectomy; the surgeon is on his way to the hospital.
Truly an amazing story. You had a second chance at life. I hope you are doing wonderful things and thanking God every day for this gift.
@@hikeypoo You betcha! (You're preaching to the choir! Lol)
I hope you are living a better life now 😊
That's where I was heading too with my adenomyosis. I had a period that lasted over 2 weeks with a steady flow. I felt tired and weak so I got an urgent appointment at the hospital. That's when I got my diagnosis. My condition had become worse over the years so my birth control didn't work anymore and that's why I was bleeding out. My uterine wall was full of fissures. I got pills to stop the bleeding and iron for blood renewal. If I had waited another week I think I would've been in your position.
We don't die because of diseases we die because it's time to go. Happy for you that you survived and big up for how participate to saving you
The woman crying in front of her mirror in the bathroom IS SO me on certain months. It's just too much, TOO much pain that all you could do is just stand while slouching and cry while writhing in pain. It's torture.
I have pmdd(pre menstrual dysphoric disorder) I’ve had it since I was 10 years old and the pain was so bad that I would vomit and heave until I was sitting in a pool of my blood,vomit and tears my flows were so heavy the moment it started I need Heavy flow products the ENTIRE period the cramps and joint pain were so bad that I had to take 4 Advils, every 4 hours on the dot or else I would I would be in immense pain until they kicked in. And don’t think it stops there pmdd fucked me over bad my body can’t regulate it temperature so I am ALWAYS sweating if its a bad day I’ll break down sweating and literally fainting faster than you can say heat exhaustion, even if I’m in an ice bath I’ll still be sweating and dizzy(true story) it’s awful and it’s affecting my quality of life for many years I missed my childhood because of it and I can’t help but blame the sexist way medicine works for taking it away from me. I was 10 years old I didn’t deserve it.
I had endometriosis and very painful periods for 12 years. I did have a good doctor who diagnosed early on and told me if we wanted children now was the best time because it would keep the endometriosis at bay which it did. After 3 children and a couple of years of more pain I ended up with a total hysterectomy. My endometriosis was really bad. Wrapped around my ovaries and lodged into my colon. I looked 6 months pregnant by the time we gave up on trying to fix the problem through surgeries because it wasn’t working. After the hysterectomy I lost 25 pounds and felt like a million dollars. So glad my doc took my issues seriously. And, yes, he was a man. Thanks doctor Joel!!!!
Thank God he told you to hurry and have babies!! It sounds like you were close to being unable.
🫂
jesus that sounds next level hellish oh my god! endo fighter here as well considering a hysterectomy because i’m a lesbian and know i’m never gonna wanna have kids or if i did would much rather foster to adopt, but i’ve heard from many that that doesn’t even completely rid you of it 😭 just a ghoulish monster that sleeps in your uterus and refuses to go away :/
@@TamagotchiFreakFan we are women so we handle a lot of crap. I was a single mom the last 9 years of the 12 too. I had a total hysterectomy so know uterus either. That’s the way they did it back then. I encourage you to find a doc that takes it seriously. I was sick with pain half of each month. I wish you the best and applaud your choices.
@@TamagotchiFreakFan we are women so we handle a lot of crap. I was a single mom the last 9 years of the 12 too. I had a total hysterectomy so no uterus either. That’s the way they did it back then. I encourage you to find a doc that takes it seriously. I was sick with pain half of each month. I wish you the best and applaud your choices.
Appreciate the fact a male is fighting for us women and our health instead of dismissing it. ❤
It should not take a man's word to advocate for us. We ought to be acknowledged the first time WE speak.
@@audreydoyle5268gender doesn't matter! Women are just as likely to roll their eyes and scoff as any man. Just read some of the comments here.
Men always advocate for women and never the other way around. Typical. Shows how little women actually care about men.
@@audreydoyle5268but the thing is patriarchy is so ingrained within this world that we actually need guys like him to advocate stuff for us. Guys like him is the bridge for women like us to be heard by the majority. Only then we will be able to be listened to and NOT dismissed when we speak up.
I may dislike that this is the way, but I have high hopes that women in the future won't face discrimination on matters such as this. Because they are now listened to.
My wife asked if she could be checked for endometriosis to find out if that was causing the extreme pain and other symptoms with her period, and the doctor interrupted and said she was too old. He said the average age of diagnosis was 27, and since she was 33 and intercouse wasn't painful, there's no way it could be endo. Then this dismissive, uneducated doctor had his office call to try to upsell a hysterectomy without giving us the information we actually requested.
He didn't understand averages, that the potential symptoms aren't a requirement for diagnosis, and was only trying to sell an expensive procedure. Had to drive the round trip of 4 hours too; biggest waste of time amd money we'd ever had with a doctor. Welcome to western Kansas rural healthcare.
goodness i’m luckily canadian so all my doctor dismissals are free but driving 4 hours and being told THAT, AND having to foot the bill at the end???? i would be livid omg.
Sad to see how incompetent some doctors are. Very frustrating
Unfortunately, that's not just rural Kansas that does that... Many places in the US
Thank you. I was in so much pain. My periods lasted 9 days of pain, heavy bleeding, nausea, and feeling like my whole abdominal area was on fire. I was later diagnosed with endometriosis and sent away. Smh. I was told to just take Tylenol. I was already over-medicating myself. ( taking over 6 pills of Tylenol every 4 hours). I was able to have 1 live birth but lost 2 to miscarriage. Thank you for raising this awareness.
Thank you for being honest!
My period (usually) was much more painful than my labour. I was in labour for 8 hours, not knowing - because the pain was nothing compared to how the menstrual cycle usually feels.
My friend had that happen to her as well. She gave birth at home unplanned because the pain she was feeling was so much less than her periods that she didn’t go to the hospital because she couldn’t believe she was actually giving birth.
Wait, it hurts you for an entire cycle? Or when you get your period? I don't know if I have it, everyone's pain is different, I just know I can't go to work for a day, sometimes two, I'm feeling nauseous, sometimes I need to throw up, can't walk straight and stand for more than a minute, it's the only thing that makes me release noises of pain. I can't eat and even drinking water seems to make it more painful, and it can come in waves, extreme pain just shooting through my stomach. Pain killers takes time to work if they even work. Last few periods I started taking a muscle relaxant and a pain killer at the same time and try to fall asleep, with a heat pad in a fetus position, and usually the pain gets better after waking up.
This Wednesday, I'm getting a laparoscopic checkup, after 15 years of extreme pain and period bleeding ever since I was 8. Wish me luck
Good luck.
how did it go???
I hope you finally get the help you need!
I am sorry you had to experience that. Good luck pal
I have endometriosis and I've been to the hospital because I couldn't even sit down even t3s didn't lessen the pain. My only option hormonal birth control
This sounds horrible, and I know it is. I hope it will get at least a little better in the future, and I wish you the best
I hope you're not experiencing any bad side effects from the birth control! Sending you hugs and strength!
My aunt just cut it all out. Full hysterectomy.
my only option as well with severe pcos
Same here, I'm forced to use the ring which was the less invasive one. It has helped, but my periods still leave me weak and in so much pain... three weeks a month we suffer and they don't see it.
The worst part is when a man tells u don't be extra it's just a period u should be use to it by now.
the best friend of my SO had that. She couldnt even breathe because of the pain. Collapsed sometimes from it.
She was told that she should suck it up, she is a woman. Its normal to have pain. She was overreacting etc. Absolutely cruel.
At least she doesnt have anymore pain now. RIP, galpal.
Oh shit... How did she die, if I may ask?
😢
im so sorry for both your partner and your loss
I wish things could have been different for her and the rest of women who suffer from this, but i guess that will take time
My condolences ❤❤❤
As a sufferer of endometriosis, this hit hard.
I feel you girly, I know and understand your pain, you’re not alone
I'm not diagnosed endometriosis, but I know something is not right with my body. I started clotting & bleeding so bad that I would bleed out within 30mins. A nurse asked if I was possibly miscarrying. I'm like I've had this problem for 2 years. I also get cysts in my ovaries. Their only solution for me was to be put on birth control. How disappointing. Knowing how painful my periods are, I can't imagine what you deal with. Wishing you well & that you find healing for it .
@@isabella-dw8eg I’m on the pill too and I’ve never even tangoed
“Im an adult virgin” is my boss music
@isabella-dw8eg Sounds like me as I didn't have endometriosis either. I did, however, have a different condition called adenomyosis. It's where your uterine lining is actually growing into your uterine wall. Extremely painful! Profuse bleeding, clotting, etc. & also 8 day period on a 21-day cycle. This was a nightmarish situation that I endured for over 15 yrs. 😱
Finally, I found a sympathetic doctor who did a partial laparscopic hysterectomy. It's been smooth sailing ever since.
I thank God for that doctor. He was so sympathetic to my plight. (I had cancer & was undergoing chemo. Due to the chemo, I had no platelets. My oncologist was concerned that I'd bleed to death from my normally abnormal horrendous monthly period.) Doc fixed me. No more periods, pain, or profuse bleeding. Life is great again. 😊
I hope you're able to get a diagnosis & treatment. My best to you. Hugs.... 🤗
@@laurieparks2680 I do have a diagnosis
Even if you tell them that you think you have endometrioses they say its all in your head. And after 20 years you come in the hospital and they say you have endometrioses and we need to take out a part of your intestine. Wel i told you alle but no one was listening and telling i was crazy
Eventually you do go crazy. It's freeing, really.
@@valeriaswanne It's like the old saying. You gotta be a little bit crazy otherwise you'll go insane.
But seriously though. Doctors being dismissive of women's issues is a huge problem.
Medicine is failing all women in the period department; me and my mom both have polycystic ovaries and while that's certainly not as painful or as uncommon as endometriosis, it's still pretty painful, like passing out and crying painful.
When I went to the gynecologist for the first time at 14 years old they literally gave me birth control and called it a day, there were no warning about possible side effects and nobody asked me if I wanted them. What followed was the most painful period in my life, passed out from blood loss two times and couldn't move for two days, missed school and everything, just slept mostly because I literally couldn't concentrate on reading or watching anything. The gynecologist knew it would happen because she also gave me some pills for the blood loss or something like that.
Fast-forward until now and I've been taking birth control pills for 7 years, it has helped definitely! No pain, but if I ever try to stop taking them, the pain comes back.
And worse than that, last year the brand I used just randomly stopped working for me, went from no pain to going to the hospital because the sudden pain was so weird. The doctor told me to literally never come back for an abdominal pain with too much blood if I'm not pregnant. He said that while I was in pain and missing a day of work because of it.
Got sent to the gynecologist for an evaluation, she told me to change the brand of the birth control and that's it, no alternatives, nothing.
Am I supposed to keep buying birth control pills (which are expensive btw, they're not normal birth control pills) until I hit menopause? Is this all there is for us? This is not even mentioning all the pain my mom has went through for her entire life because of it, she got surgery 5 years ago, the cysts came back so she had to get her ovaries removed 2 years ago.
my cramps where so bad back in the 70's - 80's that I would pass out. My uterus would have extreme contractions. No idea if I had endometriosis but I had 3 children and then a total hysterectomy at age 24. But I can say that 33 hours of labor with no pain medications did not hurt as bad as my monthly periods.
Same labor without meds was nothing compared to period pain. I didn't need any pain meds
That is horrifying, so sorry you went through all that.
I went to the doctor because I kept fainting, along with other weird symptoms. Went to the doctor, doctor sent me to the ER to get tests pushed along faster because she thought it was urgent. At the ER, i explained my symptoms and what I thought it was, but they only tested me for a heart attack. No referral, no nothing. Just said "you should eat healthier." Went back to the doctor, she said "oh, they didnt order a CT or anything? Thats why I sent you. Oh well. Its just anxiety." and that was that
Turns out, I'm type 2 diabetic (exactly what I had brought up multiple times to every doctor and nurse I saw, all of which brushed it off).
I guarantee you, if a man came in with the same symptoms, it wouldn't have been an issue. I almost fkn died.
Endometriosis runs in my family, yet my sister who's 20 cannot be tested for it because the doctors around here say "she's too young" and basically all of them telling her to deal with the pain. It sucks because endometriosis doesn't discriminate our age like the doctors do!
I found it nearly impossible to get testing or treatment for my endo/fibroids before the age of 30. Doctors fear messing with a woman’s fertility as though that’s more important than our health and ability to live. Ended up needing an urgent hysterectomy and I am so grateful to my OBGYN for being so open and willing to fix me. I had periods that were so painful I was going into shock. I bled for 65days, and needed 6 iron transfusions to be stable for surgery.
The best thing you and your sister can do is advocate strongly, seek second opinions, and be firm and unwavering in your determination to improve quality of life and get the help you need. No one cares as much for you as you do, and you and your family deserve proper care and medical treatment.
Make sure she demands for every test they decline to give her, she wants it all documented.
I started my periods when I was 9 years old. No one would listen about the pain. I was in my late 40's when a wonderful female doctor listened and discovered that I have endometriosis. Unfortunately ladies, I have gone through menopause about 10 years ago and the damn disease is rearing it's ugly head again. I guess I should have had a hysterectomy years ago. I chose to wait for menopause instead, not knowing that it could still affect me.
My mother, who actually works in women's health as a NP, dismissed my period pain as typical all through my teen years even though I was sobbing in bed during my period and pounding advil. When I turned 21I ignored her and went to a specialist. Was diagnosed immediately and given meds for continuous birth control following the 'invasive' procedure that was nowhere near as bad as the cramps themselves.
I'd bet my life its more than 10% of women too.
It's a shame that doctors are so negligent especially female doctors
@@cHeEsEcAkE_0_0545 But then they would have to start acknowledging women as at least human... which is something they simply refuse to do.
Even women doctors adopt the thinking to worm their way up the power ladder. You have to act and say things the higher staff want to hear or you'll never make it anywhere.
Which is a part of the rampant Psychopathy for these kinds of positions. Like Any kind of higher level 'suit'. You can't get and maintain the spot without playing by their rules and acting how they want you to.
Bias in science and medicine affects all academia because it was the foundation of what's being taught. People don't always realize how much misogyny is built into the system, and medicine is where it shows. It sucks
So glad he's talking about this. The unawareness/dismissal/disrespect of monthly menstrual pain has always made me furious.
Thank you, doctor.
I'm so sick of having my severe symptoms either dismissed or treated as a joke.
They never took me seriously. It wasn't until i got real serious and became my own advocate and demanded an vaginal ulta sound my 40's . They found stage4 endometriosis, fibroids, a mass on my left uterus and cis on my cervix which means my Hemorrhaging and infertility could hv been solve had they treated me earlier but i was dismissed and treated like we dont need another blk child in the USA 😢so im never had one due yo racism and gross negligence 😢
Husbands’ response: “Gee whiz, you’re ALWAYS sick!”🤷🏻
My ex is like that, and makes fun of my health issues, some men are awful, I'm sorry you have to put up with that ❤
My parents do that. I was just telling someone today how isolating it is to go through things like that.❤
me n my husband would b throwing hands if he said that🙅♀️
My female teachers say to me that until I almost faint bc of pain and later I faint
@@Carbonaralover3000 😩
When the pain is so bad sometimes I can't breathe, it's just a normal period. Medicine has absolutely failed us.
I remember sleeping and then suddenly waking up with nausea and an extreme flash of pain that became more intense by every passing minute, I felt so hot and started sweating so much, my back was also killing me and no position would relief the pain. After an hour of patiently trying to endure the pain I just started crying like a child, the pain was genuinely so unbearable that at that moment I wished I was in a very very long sleep instead
I remember crying on the floor and resisting the urge to vomit (I will do whatever I can not to vomit). I could not stand or sit or do anything else than cry from pain, biting my hand to not disturb anyone else.
I did my best to hide, because I was so ashamed of not being able to get over my "normal cramps". Lucky for me, it was usually just an hour or three before it got better. And even that hour or three were like better bits and worse bits, like it could be overwhelming so much I could not think of talk and a while later I could slowly get up and even slowly walk.
I look back at my 12 year old self, hiding at school bathrooms, lying on the floor, with no pain killers, because I was too young for it. After about 40 minutes someone came to find me. I got embarrassed and came out, stumbling and pale as a ghost from pain. Teachers looked puzzled and allowed me to call my parents and go home.
I got better at masking the pain later. And after I was about 25 years old it got less often. Like not every period I drop to my knees from pain.
And lo and behold! My new doctor actually looked and she found out what was wrong! Only 20+ years of worst pain I have ever felt and it is curable and it probably will get better! I hope so much it really will get better...
I remember those pains. Couldn't really get out of bed, balled up while rocking back & forth trying to breathe through it, had to crawl to the bathroom cuz I couldn't stand, even if bent over. Every tiny movement was excruciating. Level of pain was very concerning, considering I have a high pain tolerance. No medical issues according to the docs.
Are you still suffering today or did you get it taken care of?
I have been suffering from endometriosis since I was nine and I was always told it was normal. Passing out from cramp pain and migraines, throwing up any meals I ate for up to three days straight, and bleeding up to two weeks at a time. I developed sever iron deficiency and once had my period for several months in a row. There needs be more awareness and help for women who struggle with this.
I feel this so much! I have had very long, heavy, and painful periods ever since they started and it took until my 20s to get a diagnosis of endometriosis. Yes, many women struggle with period pain, but we should still be able to function during it. It's infuriating how many women don't get taken seriously and get told to suck it up when they're literally writhing in pain. Periods should not be that severe!
I suffered for 37 years with undiagnosed PCOS and endometriosis. I missed many school days and important events due to being ill and in so much pain. I was not believed and never given proper treatment. As a result I became sterile. I truly hope modern doctors have learned to be more empathetic and understanding of what women go through every "bloody" month.
I felt her pain .. i used to call my parents at 4 am on the phone from crippling pain while they’re in the same house .. but i could not move ! Such a hard thing to live through every month .. i’ve been eating all sorts of anti inflammatory foods and feel better these days, sending love to all of you who suffer from this out there ❤
My gynecologist told me yesterday that ovarian cysts are normal, all women get them, they’re supposed to be painful, and that it’s called ovulation. She also didn’t even know what a period cup was.
I’m definitely getting a new doctor. She told me all of that when I asked if my IUD caused my cysts and if I could look at getting another IUD in the future since it helps me avoid excess weight gain and helps my mental health.
How the hell did she even get the job??
@@rosesyrup1104 I don’t know, but that was the scariest appointment I’ve ever had.
Wow, just... wow!! I'm so sorry that you had to listen to that crap! Get a new one asap! What a shit show and I wish you the best of luck!! ❤❤
Hey girls, there is hope as to what causes endometriosis! There's an article in The Lancet (very reputable, peer-reviewed science journal) that Fusobacterium may be linked to endometriosis, and that treatment with antibiotics (In mice models) helped reduced endometriosis symptoms! The article is "Bacterial Infection liked to Endometriosis" by Priya Venkatesan. The experiment that found these results is "Fusobacterium infection facilitates the development of endometriosis through the phenotypic transition of endometrial fibroblasts" by Ayako Muraoka et al.
So whilst it is yet to be seen if this treatment will work in humans, we have hope now besides "Girl idfk take some ibuprofen or smthn" :D
Thank you for sharing this information!
I hope everyone is doing okay. Stay as well as you can. Hydrate. Eat. Be safe ♥️
March 25, 2024
Too late for most. It’ll be many many more years before they come even close to human trials. Plus they have to do many other studies to see if they can replicate that. So in the meantime, we keep fighting for adequate pain management and treatment
I have stage 4 endo and pcos. It took me 10 years to be diagnosed. I’m not saying this is a cure but I haven’t had any flare ups since my parasite cleanse 2 months ago. I had the worst chronic pain my 50+ doctors had ever seen, I spent weeks/moths in bed. It might not work for you but I believe parasites gave me endo and pcos and hundreds of thousands of women are now starting to believe the same thing.
Last sentence had me giggling
Many many maaaany thanks. I' ve already screenshot your valuable comment. 🧛🏻♀️🖤
My Gyno diagnosed me with Endometriosis because my periods were so painful that I’d vomit over and over, and occasionally pass out. Tried to put me on hormonal birth control. I refused because I have a clotting disorder. Fast forward a year later. I completely changed my diet, and found out that I had a serious magnesium deficiency. After taking supplements my periods are COMPLETELY NORMAL. Minimal pain for the first time in my life. Hopefully this information can help someone out there. Your doctor won’t think to look for deficiencies, they’d rather just throw hormone-altering meds at the problem (and Tylenol. Which doesn’t work. Thanks, healthcare) which comes with its own risks. It won’t fix everyone’s problem, because period pain can have many different sources, but do yourself a favor and check your magnesium levels. I could have avoided YEARS of debilitating pain 🤦♀️
Thank you so much for sharing 💕
YES. I really think the invention of the birth control pill completely stalled out research in women's medicine. Very few doctors look for an actual root cause.
will check this out, thank you!
Acid reflux tablets can also lower magneisum levels so make sure to look out for that if you ever need to take them
Jup, magnesium helps a lot!!❤
If this was a male issue they would be treated. It is the worst kind of pain and I don’t have a uterus anymore due to fibroids. I have a high pain threshold.
I have Endo and the Drs won't do anything to help. It's even landed me in the psych ward. No relief. I can't wait until I go into menopause 😢
You can go into medically induced menopause, maybe, I was 43, so not that far away when I was.
You can get hysgerectomy
😢
You can have removal of your uterus or untill then go on birth control pills ,they help
Discuss it with your gynaecologist
Change the doctor
Change the City
Change the country for a good doctor
Do it sis
Ive trwd everything short of a hysterectomy bcyz the 4 differents docs ive deen wont do it. Im "too young" and "what if you want a 2nd child". Im almost ready to say im trans to see if i can get a hysterectomy that way. Girl i worked with got her hysterectomy in 6 months because shensaidbshe was trans, wasnt even taking hormones. I kno that sounds fucked up but im at my wits end.
I was dismissed constantly growing up that periods are just "like that" with my extreme pain. When I moved in with my foster moms at 16, I got an ultrasound and whoop-de-doo I had ovarian cysts the whole damn time
Now at 22 I have an IUD (which was extremely painful to get, that's a whole other issue) and now my cyst issues have lessened significantly. The people who dismissed me didn't "believe" in birth control for people my age so I just had to suffer in silence for years while in extreme pain. "Hypochondriac" was a word that was thrown at me constantly because I didn't "seem" to be in that much pain but when you grow up your whole life having to "tough it out" through every pain, it can start to appear like the pain I am experiencing isn't "that bad" cause I can still walk around. I broke three of my fingers in grade school by accidentally slamming them in a car door and I never went to the doctor because of my family dismissing me as I was "only crying, and that's just for attention" and not, idk, screaming my head off? Noticed years later that several of my phalanges are permanently bent and healed in a strange way and went "Wow so that extreme pain I was in while being told to stop crying because it was 'annoying' was the pain of several broken fingers". I never realized that being forced to mask my pain would make it harder to get treatment as an adult because at this point it is so hard to tell when something is "too much" cause I had it beat into my mind that I can't possibly be in that much pain and still function, therefore it isn't real and is "in my head".
I have a friend who had to have a partial hysterectomy in her mid 30s bc her pain, quality of life, and moods became so bad. The surgeon, who's her obgyn dr, was shocked and confused to see countless amounts of cysts all over her uterus that was removed bc all and many tests shown nothing or that she was "fine". She's dramatically improved since the surgery.
I had a leg paralysis today because of period, I couldn't move my legs, wake up from bed, and I had way more problems like vomits and diarrhea, but oopsie, I can go to the doctor only when I'll be 18! It sucks because period starts at age of EVELEN, 7 years of waiting in pain every month just to hear doctor saying "That's not my fault you've been born girl" or that "period is just your pretty nature"
Oh, and taking paracetamol was helping me 2 years ago, now pain is so strong that SOMETIMES paracetamol with coffee helps, but not always, I just sleep to avoid my period hurt because that's the last thing that helps me