I’m 64 I just diagnosed Bicuspid aortic valve commissures at 10 and 4 o clock Mild sclerosis, no significant AS. Yrace-mild AI (seen best in Apical views).What are my options??
I have this also.The time has come for me to get replaced.Dr.McCarthy did surgery on my mother for the same valve in 1997 at the Cleveland Clinic.I wish I could go to him now He is the best !.
I just turned 63 and APRN found murmur during physical that wasn't there 9 months prior. I had an echo that showed me on the border between mild to moderate. Echo stated possible bicusid valve but echo could not get a good pic. Everything else was normal except slight hypertrophy of ventricals. Chambers normal and pumping 60-65% which i understand is normal. Went to Cardiologist and said nothing to do since I have zero symptoms and frequently walk/hike 2-3 miles 3-4 day/wk. and lift weights with no problems. I have no high BP or cholesterol. Said come back in a year for another echo and if still inconclusive on bicuspid then maybe order a CT to confirm. Do you think I should get a second opinion?
I’m 64 I just diagnosed Bicuspid aortic valve commissures at 10 and 4 o clock Mild sclerosis, no significant AS. Yrace-mild AI (seen best in Apical views).What are my options??
@@alwaystruth1.2 Keep getting it checked every 6 months or whatever your cardiologist recommends. Stenosis can progress rapidly sometimes so it's important to keep an eye on it. if it gets too bad you'll have to have a valve replacement. depending on your case they may be able to do it through a catheter so no open hesrt surgery.
I have a bicuspid aortic valve I was diagnosed when I was first born...I still haven't had surgery because it is no harm I get echoes every year to make sure it's not acting up or something.. I'm not allowed to play sports such a wrestling football hockey and lacrosse basically all contact sports...so my question is If I had this surgery would I b able to play football or hockey?
I had same problem I did bodybuilding for 7 year 2 years kick boxing but still doc says I don't need surgery by the way if u need any help u can contact me at WhatsApp +923165416717
I have BAVD too. I was told as a teenager I would probably need surgery in my 30s. But im 43 now and still hanging in there. Two years ago I was told I will need surgery in 5-10 years. A question I have is about exercise. I've noticed people commenting on that. Are we not supposed to exercise?
I am an adrenalin junky myself, and I want to also know if I can still do the stuff I love to do, like skydive, rollar coasters, P90x...ETC...that would really suck if I cant :/
I have Bicuspid Valve, I don't need surgery - apparently because it's not a problem, until I'm 40-50 I just need echocardiography on me then I will get the valve fixed. Until then I'm restricted to soft excercises.
My son is 9 and bicuspid auortic valve was found in 2015, not birth. This year the size has changed and football was pulled but swimming and soccer okay, for now I was warned soon contact sports would be a no. I'm absolutely terrified, how do you even explain to a 9 year old who loves sports and running. :(
@@MichaelWilliams-if4qk hellow Williams direct me where I can get help am currently in Kenya ....sent me your WhatsApp contact plz or email so that we can communicate.thnx
I am so scared , I have just been told I have bicuspid valve , I am 37. I struggle to breath and my blood pressure is a little high sometimes.. I have been having panic attacks for the last 4 years and and they have only just found the heart issue. My anxiety is so bad I’m scared my kids will find me dead. I can’t deal with not breathing right I cannot climb stairs, I cannot run, yet doctors say my lungs are clear, 99 98 % oxygen in my body. I get stabbing pains left side of my chest, pain in my stomach. Cardiologist says my heart is functioning normal and no stenosis slight leak but so minimal. Saying I shouldn’t be experiencing any problems ... please help
This is happening same to me ......I have been having regularly panic attack when covid is at its peak but after some time I realise shortlessness of breath could not go to the doctor because concern about breath issue so doctor put me in isolation and would checked me after 14 days .mean while my result came and I'm selected as constable in state police . After that we fill congested chest ,some time severe chest pain ,shortlessness of breath regularly go to cardiac physian and tell everything he do normal check up ECG echo cardiograph and tmt all report is normal but grade 2 thickness in aortic valve .he said u have RHD(rheumatic heart dieses ) caused by bacteria in developing country abou 10 to 15 % adolesce are being affected by it so don't worry take penidure 12l in every 3rd week After that we did not feel much better so I go to another clinic and go through the same procedure .doctor did echo me and say u r the BAV!after diagnosed with BAV I go to the higher clinic and same result with mild AR.and ascending aorta .doctor said not need to surgery almost 15 year even in future.but my problem is persisanlty increasing .some time severe chest pain occur and some time chest feel congestive ..I DONT KNOW WHAT TO DO ???may God help me plese ...very sacaring about surgery but not needed now acoording to doctor I leave the job after prescribed by the doctor because so much strenuous work involved in it so plese help
I’m 64 I just diagnosed Bicuspid aortic valve commissures at 10 and 4 o clock Mild sclerosis, no significant AS. Yrace-mild AI (seen best in Apical views).What are my options??
I’m 64 I just diagnosed Bicuspid aortic valve commissures at 10 and 4 o clock Mild sclerosis, no significant AS. Yrace-mild AI (seen best in Apical views).What are my options??
We just responded to your other comment about BAV treatment options. Hope that helps!
I have this also.The time has come for me to get replaced.Dr.McCarthy did surgery on my mother for the same valve in 1997 at the Cleveland Clinic.I wish I could go to him now He is the best !.
Yes, Dr. McCarthy is a heart valve guru. How are you doing after your heart valve surgery?
I just turned 63 and APRN found murmur during physical that wasn't there 9 months prior. I had an echo that showed me on the border between mild to moderate. Echo stated possible bicusid valve but echo could not get a good pic. Everything else was normal except slight hypertrophy of ventricals. Chambers normal and pumping 60-65% which i understand is normal. Went to Cardiologist and said nothing to do since I have zero symptoms and frequently walk/hike 2-3 miles 3-4 day/wk. and lift weights with no problems. I have no high BP or cholesterol. Said come back in a year for another echo and if still inconclusive on bicuspid then maybe order a CT to confirm. Do you think I should get a second opinion?
I have the same thing. My doctor told me once I get the surgery I won't have any restrictions on my heart rate so I can excersise as much as I want.
Awesome. Did you get the aneuryzm fixed as well? How are the workouts going today? 😄
@@spar0035 yep. I had to have my valve re-replaced in 2021 with a tavr. Still doing great!
I’m 64 I just diagnosed Bicuspid aortic valve commissures at 10 and 4 o clock Mild sclerosis, no significant AS. Yrace-mild AI (seen best in Apical views).What are my options??
@@alwaystruth1.2 Keep getting it checked every 6 months or whatever your cardiologist recommends. Stenosis can progress rapidly sometimes so it's important to keep an eye on it. if it gets too bad you'll have to have a valve replacement. depending on your case they may be able to do it through a catheter so no open hesrt surgery.
Hi, this post about your bicuspid aortic valve was 11 years ago. How are you doing now?
I have a bicuspid aortic valve I was diagnosed when I was first born...I still haven't had surgery because it is no harm I get echoes every year to make sure it's not acting up or something.. I'm not allowed to play sports such a wrestling football hockey and lacrosse basically all contact sports...so my question is If I had this surgery would I b able to play football or hockey?
I had same problem I did bodybuilding for 7 year 2 years kick boxing but still doc says I don't need surgery by the way if u need any help u can contact me at WhatsApp +923165416717
Some patients have gone back to playing professional sports. That said, please discuss with your medical team.
I have BAVD too. I was told as a teenager I would probably need surgery in my 30s. But im 43 now and still hanging in there. Two years ago I was told I will need surgery in 5-10 years. A question I have is about exercise. I've noticed people commenting on that. Are we not supposed to exercise?
Do you take vaccine for covid19?
We would encourage you to discuss exercise with your medical team.
I am an adrenalin junky myself, and I want to also know if I can still do the stuff I love to do, like skydive, rollar coasters, P90x...ETC...that would really suck if I cant :/
I'm the same as you
We would encourage you to discuss the adrenaline activities with your medical team.
I have Bicuspid Valve, I don't need surgery - apparently because it's not a problem, until I'm 40-50 I just need echocardiography on me then I will get the valve fixed. Until then I'm restricted to soft excercises.
Hi how are things
Please get regular echocardiograms to ensure the bicuspid aortic valve disease doesn't progress rapidly.
I also have a bicuspid aortic valve it scares me cause I'm only 17 and at times I feel like my heart stops and i can't breath its scary
My son is 9 and bicuspid auortic valve was found in 2015, not birth. This year the size has changed and football was pulled but swimming and soccer okay, for now
I was warned soon contact sports would be a no. I'm absolutely terrified, how do you even explain to a 9 year old who loves sports and running. :(
Don't worry, I was 20 when I had mine replaced. I'm 43 ok know and doing just fine!!
@@MichaelWilliams-if4qk hellow Williams direct me where I can get help am currently in Kenya ....sent me your WhatsApp contact plz or email so that we can communicate.thnx
My name is saqib I'm 25 I have bicuspid its leaking but doc days I don't need surgery yet
How are you now? Did you end up getting surgery for your bicuspid aortic valve?
I am so scared , I have just been told I have bicuspid valve , I am 37. I struggle to breath and my blood pressure is a little high sometimes.. I have been having panic attacks for the last 4 years and and they have only just found the heart issue. My anxiety is so bad I’m scared my kids will find me dead. I can’t deal with not breathing right I cannot climb stairs, I cannot run, yet doctors say my lungs are clear, 99 98 % oxygen in my body. I get stabbing pains left side of my chest, pain in my stomach. Cardiologist says my heart is functioning normal and no stenosis slight leak but so minimal. Saying I shouldn’t be experiencing any problems ... please help
This is happening same to me ......I have been having regularly panic attack when covid is at its peak but after some time I realise shortlessness of breath could not go to the doctor because concern about breath issue so doctor put me in isolation and would checked me after 14 days .mean while my result came and I'm selected as constable in state police .
After that we fill congested chest ,some time severe chest pain ,shortlessness of breath regularly go to cardiac physian and tell everything he do normal check up ECG echo cardiograph and tmt all report is normal but grade 2 thickness in aortic valve .he said u have RHD(rheumatic heart dieses ) caused by bacteria in developing country abou 10 to 15 % adolesce are being affected by it so don't worry take penidure 12l in every 3rd week
After that we did not feel much better so I go to another clinic and go through the same procedure .doctor did echo me and say u r the BAV!after diagnosed with BAV I go to the higher clinic and same result with mild AR.and ascending aorta .doctor said not need to surgery almost 15 year even in future.but my problem is persisanlty increasing .some time severe chest pain occur and some time chest feel congestive ..I DONT KNOW WHAT TO DO ???may God help me plese ...very sacaring about surgery but not needed now acoording to doctor
I leave the job after prescribed by the doctor because so much strenuous work involved in it so plese help
How are you doing now? Did you end up needing surgery?
I have balloon valvoplasty because my BAV turned into Aortic stenosis Now I'm fine and after 8-10 years I will have Aortic valve replacement
Wow, that's great to learn about.
I’m 64 I just diagnosed Bicuspid aortic valve commissures at 10 and 4 o clock Mild sclerosis, no significant AS. Yrace-mild AI (seen best in Apical views).What are my options??
We just responded to your other comment about BAV treatment options. Hope that helps!