Living with Fibromyalgia and Ankylosing Spondylitis - My story
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- Опубликовано: 9 окт 2017
- I've wanted to do a video about Ankylosing Spondylitis and fibromyalgia for quite some time, but after some fairly harrowing news from the Hospital yesterday, I figured I'd finally get something done.
While I know there are crazy helpful people out there wanting to offer suggestions, CBD oils, Low/no carb diets, Swimming and a bunch of more ways of treating these illnesses more 'holistically' are either how I've coped for as long as I have or have had no effect whatsoever (such as CBD).
This is no-where near as short as I'd have liked it to be, neither does it cover every aspect as I'd have liked, but hopefully it's something that helps someone through inspiration, understanding, or simply the feeling of not being alone.
For those of you that watch the channel, this is also why sometimes my upload schedule is a bit up and down.
One of the reasons I choose Patreon and Paypal.me is to help keep me going through the fog and lack of mobility etc. Your support keeps this dodgy old cripple getting up in the morning, and for that I thank you.
Apologies for using the wrong lens and being a bit out of focus at times.
The background music used was:
Title: A.W.A.R.M. Signal Long
Author: P C III
Source: www.pipechoir.com
License: Creative Commons Attribution 4.0
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Unless otherwise stated, all music used is Royalty Free and included in Final Cut Pro editing software.
Motorcycles I have currently:
Honda Shadow VT750 Black Spirit (Phantom in the USA), highly customised - • Sunday Vlog on a Monda...
Honda Shadow VT1100 ('93 I think, 4 gears), chopped and goosenecked, still in build stages, I made the tank and tins before illness stopped me progressing.
Equipment I use:
Main Camera: Canon EOS 200D / Samsung S8
Stills capture and thumbnails: Samsung S8
Microphone: Blue Yeti, Boya BY-PVM1000, Rode Video Mic Pro
Audio Capture: Zoom H1 or Camera
Computer: Late 2014 iMac
Editing: Final Cut Pro X
Audio Editing through FCPX
Stills editing through Snapseed or Affinity Photo
Thank you to everybody that's watched and to all of you for commenting. I'm humbled to think it's helped as many people as have commented below, as well as the barrage of emails and private messages I've received.
I'm sorry I've not replied to everyone, but know that I've read all of your comments, and whether you suffer from illness as well (regardless of the condition), or you know someone that has similar challenges, you're all superstars. Don't let it define you, be strong.
Love and respect, Dean, the Vaping Biker
Vaping Biker your the Man Dean and we all hope to hold you up when your down and maybe i can put out reviews of your quality some day... hang tough Man
Dean Im an occasional viewer of your channel and found this while poking about looking for something to watch while I sit here too knackered to do anything . I too have fibromyalgia and something with my back as yet undiagnosed ( my discs are starting to degrade and herniate ) ) Im guessing that it will have to get worse before anyone takes a blind bit of notice as usuall ! I am lucky in that I can still work and have a sympathetic work place that will let me do admin on days when I need to sit but 5 hours a day especially now in mid winter when Im at my creekiest boy its taking some doing right now.
I am though good at hiding it and only a select few know I have anything, so what I wanted to say was well done to you fella I wouldnt of been able to show that side of myself to a thousand people well done to you.
Vaping Biker the depression is so bad also 20yrs with fibro an low back surgery shoulder surgeries an I still work as a machinist but with alot of missed FMLA days Im in the states
The only medication that works for me is pot , I tried every medication in the Dr's medicine cabinet they worked good at first but in a short time I was in bad shape once again . Trust me brother I know you pain hang in there .
Hey vaping thank you for you video it helped me alot i and 20 years old and i was diagnosed with ankylosing spondylitis and fibromyalgia when I was 18 been fighting it for 2 years now and seeing your video helped me realize that my pain is not in my head. And it is REAL so i thank you so much and keep up the good work
Dean, I'm not ashamed to admit that watching this brought me to tears. As I type this now I continue to cry...not just for you but for the many people who suffer this and similar conditions and feel lost, hopeless and powerless. You are such a strong, wonderful person and an inspiration. No one deserves to go through what you must every day but thanks you for sharing this with us. I am certain your words, your honesty and your attitude will inspire many people to get through another day...and another day...and on.
All my love and best wishes for you.
Also....extra love for your wonderful supportive wife!
Legion Vapes! Cowboy up. Life moves on.
Franck Lamonica Thats really hurtful. I am now crying. Oh wait no im not.
Sorry that you give people on the internet the power to make you upset. Have a nice day.
You tell me you're not upset, then go on to explain why you are upset. Nice.
Thoughtless, intolerant AND passive aggressive. Not a good combination, maybe you should go off and think about it.
Inspiring words to anybody with chronic illness. You are a good man.
Wow dean, I knew you had some medical issues but I seriously feel for you. I hope you can keep moving forward with your head up man. I speak for all of your subscribers when I say we love you and we wish you the absolute best. We are all here for you dean.
Thank you Dean, the past two weeks my fibromyalgia is bad. I feel your Words 100%
I'd like to say thank you Dean. My uncle was diagnosed with Ankylosing Spondylitis in his early 40's. He is currently 53. He now has multiple spots of spinal fusion, and has walked with a hunch for almost 20 years. As long as i can remember. He has had this disease for a lot of years and recently has just been discovered. Keeping people informed is the MOST important thing. Recently my uncle took a bad fall. Hit his head and managed to have a seizure. Now due to his fall he actually broke his neck, and is paralyzed from the chest down. He is currently in rehab and has just started being able to use his arms and head again. I never knew anything about this disease until this recently happened. And as much as I am sad about the situation, I am glad that you are strong enough to talk about it. You Dean are a fighter. Don't ever stop fighting. You are an inspiration to myself. I wish you well. Thank you for this video
Hi Dean, thank you for posting this vid. I have suffered with ME (Chronic Fatigue Syndrome) for 20+ years. Only your partner really understands these types of condition! They are truly awful and life changing. I’m with you all the way bro. Bless you mate. Steve.
Thank you so much for this Dean so many people just don't understand I've dealt with fibromyalgia for 7 years now and it's complete hell
I recently started year 41 of my 44 years on earth. And it is indeed hell.
Even if we’ll intended, so many people are far too uneducated and it gets old extremely fast when someone reads a 1/2 page Reader’s Digest article on Fibromyalgia, then speak to you (often DOWN to you), the actual sufferer. No, eating a salad and going for a jog is not going to fix this. ANY relief is welcome relief, and when opioid haters (because they’ve been told to hate them though again have no real idea what they’re talking about or how they work *without* making any responsible patients “high” at all, just functional enough to CARE about being alive is a tough reality for for ignorant people to wrap their brains around. Methadone has been in SAFE USE for chronic pain relief for over 90 years now. Lyrica, Cymbalta and whatever the other 3rd FDA approved “Fibromyalgia Treatments” are nothing but RENAMED ANTIDEPRESSANTS. Same rules apply, like the LEGALLY REQUIRED SUICIDE WARNING LABELS, extreme weight gain, wreck your organs, kill your soul and are neck-n-neck with PLACEBOS which carry NO side effects, and best of all DO NOT EVEN WORK. Then your doc will up your dose 2-3 times. Then change your medication. Each time requiring you to wait 4-8 weeks to see if it has any benefit (it’s placebo effect, folks. No “Diet/Zero Calorie” beverage has ever been proven to help anybody lose any weight whatsoever- but they’re GREAT IF YOU LOVE CANCER!). “Side-Effects” is a weak attempt to just reword “Direct-Effects” so they don’t sound as nasty (unless you listen closely and read the actual horrible, permanent things like brain damage, permanent spasms/twitches, loss of motor control, severe headaches, induce or worsen arthritis, slash your quality of life, make you gain 80lbs in 4 months or less (stressing the rest of your body’s systems out extremely + begging for diabetes), and of course make you kill yourself (the labels aren’t “watches”, they’re “warnings”. Meaning enough people already have done it BECAUSE they took these “medicines” but would not have if they hadn’t.
I’m searching for Ketamine therapy. It can knock out severe chronic pain, anxiety, depression, suicidal ideology, PTSD ALL FOR A FULL MONTH with ONE DOSE, and NOT make you loopy or groggy or compelled to buy glow sticks. All without messing with any autonomous functions like heart/vascular, pulmonary, digestive, kidney or liver functions whatsoever. Safely. Why aren’t more doctors leaping on this treatment? Why not kill 2-5 “therapy resistant” birds with 1 stone vs chugging piles of mixed danger/suicidal pills every day for life only to become more miserable? The science is there. The doctors are dragging their feet (fewer Rx’s written and filled monthly = less $ for docs and BigPharma). But it IS FDA APPROVED!
I have ankylosing spondylitis and fybromyalgia. It's a real trial through life , it affects your mental state too . The anxiety created from being in pain for long periods of time is incredible
How did you get diagnosed with AS?
Me also .The pain never goes away .
i completely understand Dean. I like you look fine on the outside with my clothes on, but have been thru 13surgeries and all sorts of rehabs. i was in a car wreck that killed my brother driving and the 2 guys in the car that hit us. i was the only survivor. its been 20 years and my body has just detoriated, ive now got 5 ruptured discs and 3 herniated discs as well as being paralyzed. spinal stenosis, degenerative spine disorder, and osteoarthritis. i completely empathize and sympathize with ya my friend. Very big of you to put this out there. i hate talking about whats wrong with me, but if you dont people just think we're normal and unfortunately we have become far from normal physically. i wish you the best.
Thank you Dean. Thank you for your story, which is both heart rending and a soaring inspiration. Your courage and boundless enthusiasm is evident in all the things you do and the countless souls you have touched with not only your knowledge and experience, but also the wisdom you have amassed while fording the difficult waters you must traverse. My thoughts and prayers are with you sir.
DUDE!! i dunno how you do it going through this and still smile like you do! hats off to ya! this made me cry :(
I would never have expected that a man who suffers from this diseases can be that positive and happy like you. thx for sharing
A very honest and to the point video. Thanks for all the information you gave us all on your ailments. Your ability to be so cheery and positive in your other videos and in real life at the events is amazing considering whats going on. Never feel embarrassed about your condition, we all love you and "get it" so much more now you put this up. Take care dude, Gav
Dean you have left me speechless and in tears at what you live with every day. More now than ever I will appreciate your videos knowing the struggle and effort that goes into each and every one. Keep doing what you do with the knowledge were all here to support you
omg i have so much respect and admiration for you to live daily with the things you do. i for one am happy that your fighting and trying to continue to do what you do for vaping we all appreciate it very much.
Dear Dean,Thankyou for sharing this with us.The fact that through all this you still have a tender smile and twinkle speaks volumes about you.
Keep it up and stay strong.
Dean, sorry for your recent news, I’m lost for words really but please know this, you are the best at what you do, and a throughly nice bloke on here. Keep doing what you are doing!
We love you Dean! Stay strong man.
This is something special. Thank you for sharing your story. You deserve every supporter you have.
Incredibly brave to share and in such a well articulated way. You really are quite an inspiration.
Dean you are not only one of the best reviewers on RUclips you are an inspiration to not only me but so many people that suffer from situations like this everyday I fill each of my days with SIMPLE WINS to drive and push myself a little bit everyday thank you for your strength and the delight of watching your videos
People like you is what gives me the courage and the strength to get through each day good or bad. Such a great idea to put this video out, keep fighting dean life is a wonderful thing and alot of people take that for granted, it goes by quick so you gotta make the best out of it. Thanks again.
Don't let it get the better of you Dean, you are a fascinating guy with lots to share, I very much appreciate your presence on YT. All the best.
Dean,
I'm so sorry you have to deal with this, it's alot more serious than I thought.
You are a very brave man and an inspiration not only to fellow sufferers, but to anyone going through difficulties in their everyday lives.
Keep having it large!
Thanks for sharing ...as a fellow Ankloysing spondylitis sufferer...I. know how bad it is ...I never knew about the Fibromayalgia ..
fibromyalgia is a very misunderstood disease. the slightest pressure even the lightest touch of a finger touching you causes extreme pain. it seems crazy, but it's TRUE. Someone can tap you on the shoulder and I can help in pain. IT IS THAT PAINFUL!!!! You wouldnt wish it on your worst enemy.
Thanks for sharing that Dean. I've been here a while, so knew you were quite unwell. But I'm saddened to hear the true extent. I'm impressed though, by your spirit in not letting it define you. Stay strong my friend and much love to you and Mrs. Biker x
damn, i'm so sorry to hear that, it really sucks. Thank you so much for sharing your story, it takes a lot of courage to be so open, but spreading awareness is always a good thing. Be strong man!
Dean sir, I didn’t think it would ever be possible, but I have even more respect for you. I’ve always enjoyed the informative reviews because they are always so thorough. My prayers and positive energy go out to you. Stay strong and take care.
Cbd is a life saver,but I know it doesn't work for everyone.Don't really know what to say.Would say my prayers are with you but I don't pray.But you are definitely in my heart.Dean you are honestly a good-hearted person I can hear it in your voice.Keep your head up and keep pushing forward as you do everyday.
I think it's great and admirable, not only with what you're trying to achieve with this video, to inspire others and make them aware their not alone in trier suffering, but for going to the lengths you have to explain and shed more light on these debilitating ilnesses.
Already massively appreciate and enjoyed all the content you put out but knowing more now about your conditions and what you go through....your an absolute trooper Dean and I sincerely hope they can do something for you sooner rather than later!
Brought me to tears. Not only your story but knowing so many people suffer. I have my own share of health issues but no one deserves what you & others like you are going through.
Stay strong. Love your vids. Such an awesome attitude towards life in general!
I cannot even imagine, at all. It is great for you to share your struggle, your journey, and your experience. Your attitude and fortitude is commendable and inspiring. Thank you for sharing, Dean.
Thank you for taking the time to explain these terrible diseases. I have suffered for 25 years now and you are the first one to get close to how I feel. Thanks again for putting this out there.
Dean just know that you are loved and supported through all of this by your friends and family out there in the community, I consider you as both. Your smile and laughter always brightens my day. I can't say anything that hasn't already been said, I will just say that you have made an impact on my life and how I tend to view things now. To know that underneath that big happy exterior is someone who deals with something that strong just makes me realize how insignificant all my bull shit is. Love you brother.
Dean.. I really salute you. Knowing as a reviewer and your life is really an extraordinarily person you are. Is really my honor to know you.
Much respect for sharing Dean. Education and awareness plays a massive role for invisible illness', so hats off to you Sir for taking the time to make this video.
Dean you really are a true inspiration to anybody who has gone through any life changing problems.no one deserves what you and all the other people that suffer from this disease have to go through everyday. thank you so much for all the work you have done
Your efforts are not in vain, Dean! Keep the struggle! We're behind you 100%. Smiles from a grown man who you made cry.
Always remember Dean you are loved for your works and efforts around the world, which not many of us can actually make a claim to. If anything brother you can be sure of that. Be proud and let that carry you through the hard times. Thank you for sharing this and all of your videos. From across the pond, my hope and prayers are with you.
Dean you're amazing! Even with the serious level of pain you endure, you are are always smiling and laughing, which is truely admirable, good on ya! I wish you well.
I love your pure grit and determination Dean. Stay strong, we love you ❤️
Dean, thank you for posting this. I took suffer from both fybro and AS, and your video is the only one I’ve come across that describes what I too have to endure on a daily basis. Thankfully I don’t need the assistance of a cane or chair at this time, but this is an unpredictable disease that no one can truly predict the future. I too have a pharmacy of medications that I must take on a daily basis and infusions every six weeks to simply keep me going and alive. I don’t wish for anyone to have to go through what I feel when I open my eyes in the morning and have learnt to embrace what I have and not let it define me as a person or beat me. Sure there are mornings I rather just lay in bed with the covers over my head, sure it takes me close to two hours after awakening to be able to move and get myself to a situation where I can now step out of the bedroom and begin my day, and sure I dread closing my eyes at night because I know when I awaken, I have to go through it all again. But again I don’t let it define or break me!
I have found that mountain biking helps to stretch everything out and keep me limber as much as possible: though not taking wicked jumps because I know the pain I have to endure if I take a fall. I am fortunate to be able to ride my bike and if that’s taken away from me, well then I’m not sure at the moment how to handle that. So I’ll ride as long as I am able to and take the massive pain that comes after I cease my activity, but it is a small price that I pay to still keep my whits about me and my optimism despite the anguish and pain.
So thank you again for this and keep strong. Do whatever you can for yourself that will keep you going one more day and simply take life, one day at a time! 🤟
I hope that our love that we send from Crete makes you feel a little better Dean. We love the real way you smile, we love the way you just "talk" to all of us, really hope that this message will make you feel a little bit STRONGER my friend.
Stay strong, keep just to "be" the guy we are happy to watch in every new video of him!
You are a wonderful person, just keep "being" near us.
It's very nice to "have" you in our lives, do your best to continue to do that my friend! :)
Dean, you are a trooper. I have nothing but respect for you and Ms, Biker for being there by your side. My hat is off to you my good sir. And if I could I would come by with some tea and biscuits to try and bright at least one day for you. Stay strong because you are a winner!
Never give up Dean, you're attitude is an inspiration. My heart Truly goes out to you. Keep doing what you do and never forget that what you do everyday is amazing!
You sir are a strong man. I have so much respect for you and the Mrs. Thanks for sharing your story and educating all of us. Positive energy sent your way today and always. Just so you know you're not alone either. Keep on trucking and staying positive. Good things will come your way. Be strong be safe and thank you for all that you do.
I'm truly at a loss for words... I've been sitting here staring at my first sentence for nearly 20 minutes in tears. After a long time watching your videos I am only just now aware of your illness and I am dumbfounded. Your cheerful and upbeat nature has brightened my day over and over and now I truly can not wrap my head around how you do it. It makes me a bit ashamed of myself for ever complaining about my day. I will no longer watch your videos simply for vaping advice but now will be watching for inspiration to make the best of every day. Thank you for all that you do and I pray that a treatment or a cure is found for these horrific conditions.
Thank you for educating those of us who knew little about the specifics of your illnesses. I'm both awestruck and inspired by your ability to do the things that you do under such dreadful circumstances. The opening quote is perfect and you, sir, are a man of high character.
My heart goes out to you Dean. You are an inspiration. You are making a difference and producing excellent content here. Thank you for everything you do.
Dean, I'm inspired by your strength. Congratulations on finding the courage to share this with the world. I too suffer of joint pain and the doctors have not found a reason why. It’s not as bad as it is with you, but I’ve had to stop using a hand for a day because of the pain. Or have to walk slower because of my knee. I thank you for your openness and I truly hope that you can overcome the pain doing what you love the most and with the people that love you the most. Keep the chin up my friend and I will see you on the internet.
Thank you so very much. I'm quickly losing my vision due to diabetes and macular degeneration however i was able to watch this vodeo and now it will remain with me in memory forever. This took guts to share, the kind of guts I feel I need to aquire. My respect and appreciation level for you and the content you provide has gone up X10. Keep it up, stay strong man. Thanks again.
Man, this is hard to hear. Especially from such a good dude as you yourself are. Thanks for sharing your story with us, Dean. You’re in our thoughts and prayers 100%! Keep pushing, brother.
Dean may God Bless you and Comfort you. You are an inspiration to those who suffer from debilitating diseases like yours.
I Thank you for your reviews, and I pray that you will find peace and comfort in your Life.
Stay strong, and fight the good fight!
Hi Dean, thank you for sharing what must have been a difficult video to make.... your courage, honesty and integrity know no bounds. You are an inspiration and one hell of a good reviewer. May you always stay strong and forever have it large 🖒❤😙
Dean, after watching this, I respect you a great deal more. I never knew the constant pain you have to endure.
Thank you for sharing your reviews and your knowledge with us. Most of all, thank you for sharing your story.
My best friend has crippling rheumatoid arthritis, so this hits very close to my heart.
My thoughts and prayers are with you.
This was beautifully raw and honest. May you experience blessings for the gifts you are sharing with the world.
Wow I'm speechless. To be able to smile and be upbeat, as you always are on your regular videos, despite the pain you have to deal with, you are truly an amazing guy and very inspirational. Puts into perspective the minor trivial things that affect me. I am really grateful that you shared this with us and I hope you feel better soon and get cured of everything despite what the hospital say.
Thanks on behalf of our AS-Fibro warrior community. So glad that you shared your story. I have been fighting this for the last 25 years. The fatigue really gets you. The pain I could still fight.
brother, I wish that I can empathize and help you but I can't.......but I love your vids and you seem to have one of the most outgoing, loving, happy personalities out there! stay strong. as someone with ptsd I know what its like to have social disconnect and I hope, I pray, that that others can find, through any illness, a way to continue life and you my friend are an inspiration to me that tells me I can still be a happy and friendly person in life!
Dean, this brought me to tears. Thoughts and prayers brother. After watching your story i pray that you bring the inspiration that i just felt. Bless you sir.
This is one of the most encouraging, powerfull, honest and touching videos I saw in the last years. I will not give you sympathy, because I think you do not want it, but I give you all my respect and strength to stand what ever you will face. Even if I am just one of those subscribers, I feel proud to know you at least a little.
Dean you are now and always will be an absolute gentleman. I would love to shake your hand. Even with the shit you've gone through and are going through you've touched so many people. You're an inspiration and I commend you on your work ethic and your ability to not give up. Thank you for sharing this with us, it's nice to see that while you may not physically be on top form that you've remained true to yourself and never let it best you. Also thanks for making us cry. Much love, you beautiful bearded bastard
You're the man Dean, stay strong brother.
Dean you have been thought the wars your still here and your still fighting it and we will always be here for you bro 😀😀
This video was very emotional for me to watch. You are such a wonderful and amazing person Dean. Keep your head held high, I am so sorry for the pain and suffering that you go through. Keep on keeping on!
Don't stop making videos! We all love them
Dean I had no idea! You have my upmost respect for tackling this in the way you do.
You only touch briefly on your channel on the subject of your ailments and tend to make light of it - the explanation helps us understand the compounded issues you face. The fact that you rise to the challenge and win, even if not every time, shows a strength of character you should be very proud of. The content you create really helps others in many ways (you helped me drop the cigs in a big way from your work by explaining the workings of vaping better in your own style) THANK YOU Dean, and I wish you all the strength you need for the future.
Dean, all our thoughts and prayers man, keep fighting...
Dean, I have watched your videos for quite a while now, and I have heard you speak of these issues, I had no idea how bad it truly is. My heart hurts to know the pain you have to deal with. You have brought so much joy to me and so many others with your content despite all that you have to cope with. I pray for you and your wife. You are an amazing person whom I wish I could live nearby so that I could help you out. Much love, brother!
You are a Strong and super strong hearted individual. Thanks for sharing. You have helped me over the years and I never knew what you are going through. I owe you a lot Dean. I wish for you to feel like a million dollars tomorrow. Cheers mate 🍻
Much love to you Dean for giving us a real life glimpse of you. All too often, and I am guilty of this, in this fast paced instant gratification desensitized society, we don't take the time to pause and feel, connect, and relate. Once again, tons of love to you brother. Thank you so much.
I love you Dean. Youre easily one of my favorite people in this world and Im just amazed at the strength you have to do all that you do. Keep being strong and fighting.
Had no idea, you have hidden it well! My heart aches for you, any anyone dealing with chronic pain. Keep doing what you are doing Dean. You have the right outlook on life. Never give up!
Wow Dean, you did a great thing by sharing this. You will have helped other people for sure. Im sorry to hear about your pain. On the other hand i just wanted to say that you are always a pleasure to watch, and i am absolutely honest in saying that you have one of the best attitudes in a human being i have ever seen. I don't know you personally, but i feel constant positive vibes while watching you, and you are fantastic at sharing that light with the world. Keep truckin'.... every day is worth it. Peace brotha.
This must have been very hard for you to share but from the bottom of my heart, I thank you. Not just for the insight into these ailment (I don’t want to massacre the spellings) but mostly thank you for your inspiration, this was amazing, you are amazing. Thank you Dean. Thank you.
Dean your an absolute legend I have so much respect for you and I'm sure that's a shared feeling with everyone who watches you videos! keep smiling don't give up we love you!
Hey Dean... I hope you understand how deeply inspirational your story truly is. This world needs more people like you in it. Your spirit is undeniable and your passion is evident in every word you speak. Don't ever give up, don't ever give in and thanks for all you do.
Dean, I feel for you mate, stay strong and brave and keep going forward. Hopefully all the love you are getting here from so many admirers can inspire you at the worst times.
Dean I want to thank you for opening up and sharing your story. I admire your courage and strength. I my self deal with pain everyday. I have simular issues I have been diagnosed with fibro .... but I do not accept that, have had a neck fusion due to herniated disc as well arthritis and I do have crohns disease. I fight everyday to deal with pain issues and fight very hard with battle. My husband James has simular issues as well. Pain is a huge struggle. I do maintain a full time job and there plenty of days I want stay in bed and hide from the world. I enjoyed watching your video not for pleasure ....but for the subject matter. I thank you again for opening up and sharing to the world!
Dean, you are a strong man and will walk it through. you will have lot of blessing along. Stay strong pal and my blessing to you!
Mate, you're an inspiration! All the best!
I’ve been waiting for this video dean , very we’ll explained. I suffer from AS and have done since my mid teens (started very young) it started as stiffness and progressed to not been able to move at times.
Some days I look normal fit and healthy but the pain is always there and mine is not as bad as yours I feel for you dean I know how much mine hurts so I can only imagine the pain your in , and your right dwelling on it doesn’t do you any favours but sometimes it’s hard to find the energy or the motivation to do simple tasks but nobody seems to understand they just think ur lazy and can’t be arsed and then there’s the sleep to top it off can’t sleep at night but can sleep all day ........
Thank you for everything you do your awesome , chin up and stay strong
This really is the most relatable video I have stumbled upon so far. Thank you for sharing your story. I wish you all the best.
Thank you so much for sharing Dean, you're an inspiration. Not only to the people suffering from similar disabilities but also to "healthy" people to not take their mobility for granted and to squeeze every last bit out of their lives as long as they possibly can. Dean doesn''t need you to feel sorry for him, he needs you to appreciate what you have and get sh1t done. To overcome whatever obstacles lay between you and what you want to do. Think of that the next time you find yourself f4rting around wasting your time.
Actually in tears. I really shouldn't have watched this in work. I knew things were difficult. I didn't realise how difficult. I know your health has failed in the time I've known you as I've saw the things you post, the scooter then the wheel chair, the change in personality when you're sore. This is a fantastic thing you've done. I had no idea what these were and this has explained them perfectly. This will be a massive help to anyone suffering from these diseases. In fact not just these diseases. I love you mate.
It is hard to imagine what you go through on a daily basis. I am glad that you shared your struggle with us so that we can be inspired to do more in our own lives. I feel great empathy for you, and hope that somehow you can continue to persevere in your fight to live large.
Thanks Dean, for everything. I appreciate all that you do.
Literally in tears right now we all love you dean ❤️❤️
Respect...I'm speechless...God bless and protect you mate and may your life be filled only with joy and no pain... Thanks for sharing..no more words than that..
Dean, that took a lot of courage,thank you for sharing. I knew you had health issues, but I had no idea that it was that severe.
It makes me appreciate what you do so much more. You will always be in our thoughts and prayers. Stay strong and Have It Large! Thank You
I want to thank you so much for opening up and making this video. I personally really needed to see this at this exact moment in time. I have ankylosing spondylitis and fibromyalgia (with some other fun more diseases thrown in). I'm twenty. I was diagnosed with AS officially at about 14 and was officially diagnosed with fibro four months ago. I've just started treatment for my AS again after 4 years of just trying to grin and bear it. I had my first Humira injection today and at first was extremely excited to be in treatment and to get to feeling better until it set in that the medication will take months to begin to work and I've been struggling with that concept. I needed this video to remind me that I've just got to keep working and not let my disabilities overcome me, no matter how much I want to give up. You've helped me so much in this moment. Thank you from the bottom of my heart and I wish you luck with your continued journey.
Holy hell man how do you do it. I couldn't imagine even thinking about life while trying to deal with such things. Thank you for making this video because not only will it help people who also suffer the same things but people like me, who have problems yes but after watching this my problems feel like nothing in comparison. Call it a wake up call or swift kick in the ass if you will, it puts things into perspective for me. You've got to be one of the toughest people I've seen. Always know us subs are here for ya brother we're all one big screwed up family of sorts. Stay strong Dean.
When i met you back in April, in vape Jam UK and then started following you i never had any idea the struggle that you were having. After watching this, which by all means of consideration might be one of the most inspiring stories on 2017 in my book. And even for someone who have constant back pains and bad knees, your words resonates loud in my ears. With all my love and prayers to you Dean.
Muj
I have only been subscribed to your channel for a few months and I would have never known you had any medical or health issues whatsoever..... well done you!!!!
You are so right your disease (s) don't define you.... at least not to me..... I realise that will be of very little comfort to you but I want you to know you are the kind of person that makes this world worthwhile to live in!
Keep up the good work
Good thoughts and wishes
Joe.
Stay strong, watching this was inspiring Dean, keep fighting, and never give up
You have the drive and focus that most of us can only imagine ... true inspiration. Thank you for putting yourself out there .
Gosh I freaking love you Dean, you are such an inspiration. I am personally so grateful for everything you do and you are simply just a damn good human being.
Wow Dean, thank you for sharing this with us. Strong stuff to deal with. The only thing I can say is stay strong and not give up. Best wishes from Norway.